Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Post Info TOPIC: Hi All


Guru

Status: Offline
Posts: 647
Date:
RE: Hi All
Permalink  
 


Hi STL,

i'm glad you recovered enough from the big bug bombing to find some enjoyment on your trip.

yea, that resting between rounds of fun really saves the day.

soon you'll be home embracing the memories and resting, resting ,resting.

i have my 3 days off now , in a row; so i can get a few things done with lots of rest in between..i don't do much on my work days except rest,work and drink water.... oh yea and the occasional piece of cake now that my stomach agrees with me on this

have a wonderful rest-up when you get home



__________________

Gt:1a-36yrs†.Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on†3.6.18:.†A1 activity.† f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND.†Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



Senior Member

Status: Offline
Posts: 195
Date:
Permalink  
 

Hi 5,

Ended up feeling awful Sunday arvo, nauseous, woozy, tingly head but moving round and round, down to my neck back up to my ears which were super sensitive.†confuse I† feel hopeful† my bugs were doing some frantic last ditch circle work round my head, trying to get away from the constant onslaught of bug bombs i'm sending their way. Hey bugs - you can run but you can't hide. Only 6 bombs left of my first pack then I have my first blood test. Had been a busy 36 hours with the boy, which I am sure would have been part of the cause. He kept me on my toes that's for sure. I was glad when he left and I could have a lie down. lol.

Felt better in morn and again today, still that bit dohey feeling, slight nausea. Neck and shoulders are aching too. Out for a birthday dinner tonight, then home tomorrow.



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



Guru

Status: Offline
Posts: 647
Date:
Permalink  
 

i'm glad to hear you are having a good time stl



I needed to reduce the photo size. HD files are often too large. Tig



-- Edited by Tig on Sunday 20th of May 2018 09:35:13 AM

Attachments
__________________

Gt:1a-36yrs†.Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on†3.6.18:.†A1 activity.† f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND.†Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



Senior Member

Status: Offline
Posts: 195
Date:
Permalink  
 

Hi Tig,

Yes it is lovely. My young grandson stayed with me last night and we are about to go for a walk with the dog. Lovely to spend some time with him today. Not much on tomorrow that I know of then Tuesday is sons birthday so we we go out for dinner. It will be lovely. I was a bit concerned about going away but so far so good. As you say it is lovely to see everyone but being home Wednesday will be even better, as you say there are† no obligations, I can laze if i wish. walk when and where I wish. At the mo I love the creek while its still good and dead from our hot summer. Birds Rabbits Kangaroos. It will be wet and overgrown soon and off my walking agenda. LOL. Winter is descending on us fast so don't have to worry about the sun at the mo. I can't stop drinking. I feel the need, without knowing that I must with the bomb.



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND

Tig


Admin

Status: Offline
Posts: 8531
Date:
Permalink  
 

Hey STL,

Drink plenty of fluids, dont spend lots of time in the sun, remember to take that BB every day and have fun! Let us know about your trip when you get back. Itís good to get away and forget about those four walls for a moment in time. It will do wonders for your attitude. I always feel a bit at odds when Iím away from home, but find it helps clear the mind. It also makes me appreciate my own surroundings when I get back! Iím a creature of habit now. I think itís called ďlazyĒ, lol!

Cheers!



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. Ranges

Signature Line Set Up/Abbreviations† †Payment Assistance



Guru

Status: Offline
Posts: 2893
Date:
Permalink  
 

STL,

Relatively early days (as far as we know) re BP (existence of, response to med, and contributory factors - perhaps even such as HCV!)

You're funny, describing your hopeful but "fail" smoothie treatment (I wish it HAD worked). Being that it IS early days to judge your BP thing, keep trying the ace inhibitor (as suggested by your doc) increasing it as she suggested, as just see what happens. She will likely keep a good eye on you and your kidney function labs and your overall† response to the new BP med, to safegaurd you. Sounds like the standard routine, that if after a trial period, one month or so, if the drug did not seem effective enough, then increase the dose. May-be (after your HCV had left the building forever) and been gone for a while, you might find some day your elevated BP also coming down, perhaps not needing BP meds in future - YA NEVER KNOW! Something to ponder, wish for, hope for - that would be a nice bonus. Ask your doc about that possibility.

Living in my funny mixed up land of morphing psuedosemi-CommonWealth slash North American vacinity (Canada) - I agree fully with your default measure to write it out MAY 1! I did that by choice for a long time, saves mix-ups. My math, wgts and measures, dates, odometer, have all been messed with by the powers that be. Wish they just stuck to one system please. I could gladly tolerate draining water twisting the wrong way, but for heavens sake I can't drive safely anymore, not know whether I am speeding in mph's or kph's at a glance or not, or how far I've gone! I have to get out the calculator and convert the meat, fruits and veg receipts after I get home to figure out if I have been rooked in kgs or lbs. No idea how tall I am anymore, I used to be 5'4", now I can never remember what that is in cm. Nor how hot I am, in celsius or fahrenheit. How many gals can I afford to fill if the sign says $161.9L!† Lumber, rulers, tapemeasures ... forget it. Recipes! - oh the conversion jungle is deadly. Man I really hated it when they put those little boxes on your cheques, where they force you to put 1.5.18 or 5.1.18 in them instead of Jan 5 or May 1. Sigh.

Have a nice away. C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



Guru

Status: Offline
Posts: 647
Date:
Permalink  
 

have a wonderful time STL, may the woozies be easy for you today.

please feel free to call me 5 , that is how i sign my posts anyway :smile



-- Edited by 5-1-18 on Friday 18th of May 2018 07:34:37 PM

__________________

Gt:1a-36yrs†.Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on†3.6.18:.†A1 activity.† f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND.†Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



Senior Member

Status: Offline
Posts: 195
Date:
Permalink  
 

Hi 5-1-18,

The Treatment Train....lol. Glad your feeling good at the mo. Hope it lasts. I'm just getting packed up to head to town for a function tonight and a birthday Tuesday so I'm hoping Im going to be OK, for a few days away. The kids know I'm on the treatment, so should be just fine. LOL.

When you posted your normal BP I checked mine and it was 151/87, so I said yours looks great - Mine's always highest first thing in the morning. Mentioned it to the doc when I saw her yesterday and she said thats the thing with peeps with high BP compared to those with normal. A normal person is always lowest in morning after resting whereas a person with a high BP is the opposite.

Hopefully we can both stay clear of the woozies



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



Senior Member

Status: Offline
Posts: 195
Date:
Permalink  
 

Hi Canuck,

Yes you are right it is lovely I found the forum and 5.1.18† (Gorr its weird writing a date that way - to me that reads 5 Jan....lol - when I joined and went to write my start date I wrote it my way 1/5/18 and then realised no North Americans don't write it like that. Couldn't log it your way because to me that would just be wrong, so solved my widdle dilemma by writing 1 May LOL)

Took my Tab an hour ago and feeling great at mo. Big day today so here's hoping. Just getting packed up now. No Canuck I have never had feelings like this before which is what makes them weird and makes me confident it is the drugs causing it. Everything else I have felt at the odd time may or may not be side effects, because I have had them before. Things like feeling a little Nauseous - mmm felt nauseous before particularly if I need to eat. Insomnia mmm I'm a terrible sleeper anyway. You know what I mean. Little things that I can't say the meds are causing this because they are things I have had before. I still walk heaps without a problem.

As to the BP, no idea how long I have had it. I only got a hint to a problem when I went in for day surgery a few months ago and the nurse took it and asked if I was stressed. MMM Funny question I thought. Nothing else happened, wasn't told I needed to see my GP or anything but it irked me a bit so next time I was at the docs I mentioned it. It was 170 something over 90 something. I tried diet for a month because I didn't like the idea I had to take a pill daily for ever, but sadly that failed. Added everything to my smoothie that "will lower it in two weeks" rarara. well next time I went back it was 185/96 so she put me on a very low dose pill. Perindopril 4mg. I have a machine now and Its still not ideal - right now 143/87. She gave me a script for 8mg the other day but told me I could finish what I had of these. I might go get it anyway or try 2 of these...lol

Well I must away. Take Care.



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



Guru

Status: Offline
Posts: 647
Date:
Permalink  
 

hi C†smile

yep, we are on the treatment train.

i woke up feeling ok today but saving my energy for work.

my boss called last nite to see if i was ok and how i was doing, told her about the time change† for the meds and that i should be able to work.......we'll see....biggrin.† soon i'll get ready.

did you see my BP? it was normal, i wrote it in here somewhere.hahaha

ttyl, time to meditate. 5



__________________

Gt:1a-36yrs†.Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on†3.6.18:.†A1 activity.† f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND.†Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



Guru

Status: Offline
Posts: 2893
Date:
Permalink  
 

Hey STL,†

Very good you and 5.1.18 have been keeping us so well informed.

I am still of the mind that both you and 5.1.18 are going to hit an "evening-out" on these feelings you both have been having this last little while on the "new to you" HCV meds.†

I was glad to know about you (recently) being put on BP meds?

With your BP hx, and recently being put on BP meds, of course you will know to monitor your BP at home to look for any fluctuations. Did you ever get any wooziness or headache or head" band" tightness before (before HCV treatment and before you got put on BP meds)?†

How bad was your BP in the past, and for how long, prior to you being put on BP meds, what kind of BP med did you get, and how has it worked thus far?

I felt dough-headed while on Vosevi (understatement) but I was that way prior to the HCV meds! - (Tig and others will attest to it that I am still that way. heehee). The worse of the mental quagmire was during treatment though, and without being able to prove it I blamed the NS3/4A I was on (the VOX) - hard to say though. Some on epclusa feet little or nothing, others do, for others it stopped after an initial period.†

I am still holding out, for that both you, (on your epclusa) and 5/1/18 (on her Harv), will hit a better plateau on how you are feeling and soon. Onward, your doing it, and winning, as we speak!††smile†C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)

Tig


Admin

Status: Offline
Posts: 8531
Date:
Permalink  
 

Be fore-warned, these newest medications can cause a serious sweet tooth! Itís probably time to do one of two things, either stay clear of all sweet shops or purchase one of those gift cards that can be refilled. Dairy Queen is my weakness!†wink



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. Ranges

Signature Line Set Up/Abbreviations† †Payment Assistance



Senior Member

Status: Offline
Posts: 195
Date:
Permalink  
 

Day 10 and feeling pretty good considering. Have to stop this eating especially sweet things. LOL very naughty.

ROFL Tig

Yes Canuck that is what she showed me. Pointed at the Hep C line and said see your not much over, this is good.



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND

Tig


Admin

Status: Offline
Posts: 8531
Date:
Permalink  
 

Can it be possible, 1982?†



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. Ranges

Signature Line Set Up/Abbreviations† †Payment Assistance



Guru

Status: Offline
Posts: 2893
Date:
Permalink  
 

heehee. Tig is abjectly un-offensiable! You'll see, once ya get ta know us better. Believe me, i keep trying all my best tactics to get a rise out of him and it never seems to work no matter what I come up with. I knew he was jes jestin around, because he easily feels old just being that he went through interferon then interferon/riba/vitrelis, most distasteful oldtime drugs! Cured the hard way makes a person tired sometimes, but he's never cranky. If you thought the insulting gifted pill box made you officially old, all we really have to do is look back (just a few years too!) to know EVERYTHING is old, pre-harvoni!†smile

Hm, if I am recollecting correctly, seems to me I am just a hair older than dinosaur-dirt Tig, so what does that make me then?

Oh love it that I have these old fogie HCV stories, well kiddies .... waaaaay back in 2015, I had to drive uphill 400 km's to get to treatment, both ways, in the snow too, with only a partial brain, swollen ankles and half asleep ... hee hee

You got rooked, coming out of the office with just a pill box - (being that I got my drugs via a trial) I got lunch everytime I visited!

Vegemite, I was gonna tease ya and ask what THAT was, but thought i would spare you - I know what it is, my Granny ate it, and I always wondered, WHY?

Your smoothie DOES sound VERY healthy, and very much a meal, I am sure your epclusa IS enjoying it, Tig might not, (secret) he is not much of a "kale" man. I'd be game to try one, could you mail one ya think?

BTW - your preliminary report on the aprox. 7ish or 8ish kPa fibroscan does sound very good - likely similar to this colored graph chart for Fscores (what they showed you in the office?).†http://hepcbc.ca/tests/non-invasive-tests/fibroscan/

I am enjoying your good attitude, your way with words and your humour! You'll be OK, (you'll see).†wink†C.†



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



Senior Member

Status: Offline
Posts: 195
Date:
Permalink  
 

Thank goodness Tig, Doh.... now I see what you mean. So pleased I haven't inadvertently caused upset.

Reading all you survivors stories, these drugs are certainly a miracle and I for one am so pleased they are available to all in my country, at very little cost. I can put up with a little unpleasantness, if it comes my way, to be rid of the thing once and for all. Nothing really to talk about, I feel a little yucky at times, but believe it is the war going on inside of me, never felt like it before. Dohey in the head, like a band applying a little pressure round my head, supersensative....Bit weird....so know it is

a. - the drug or

b. the war - and we are going to win!



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND

Tig


Admin

Status: Offline
Posts: 8531
Date:
Permalink  
 

No, no, no! I didnít take it that way at all! Iím thrilled to see the advances and even happier to be older than Dragon dirt! Youíre the first to mention that some of the references to these fabulous new treatments are finally becoming more common. Advancements in care and commentary are always welcome!



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. Ranges

Signature Line Set Up/Abbreviations† †Payment Assistance



Senior Member

Status: Offline
Posts: 195
Date:
Permalink  
 

Sorry Tig,

Didn't mean to offend I just meant that most of the threads/posts on the board re Epclusa treatment were from 2016, when a lot of members were undertaking the trial. I found those threads extremely interesting indeed. I became a member because of them! Thank you for the board and information provided here. Feeling really bad that an innocent comment seems to have caused upset. Not my intention at all.



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



Senior Member

Status: Offline
Posts: 195
Date:
Permalink  
 

Hi Canuck,

I have taken a green smoothie on an off for a few years. When I was diagnosed with the dreaded High Blood Pressure late last year I got back on the wagon trying to beat it with diet alone, but alas failed regardless and was given my first "you must take one of these every day" pills. Was failing the must take it every day thing - not badly but the odd "OhOh I Forgot" or mmm "did I take my pill" thing and then hearing the importance of not missing a pill once I was to start this treatment, I put it in practice to not forget ever. I had been practicing for a few weeks prior to the Epclusa, and havent missed one since. Put an alarm on ph and all. So this is now my morning routine. My liver nurse gave me a little pill box and all LOL must now be officially an old bird, with a pill box and all. (refuse to leave it in the middle of the table though ROFL)

My Smoothie certainly is a meal if I set it all out on a plate. goes something handful Spinach and handful Kale, Half Orange, Half Banana, Half Apple, Avocado, almonds cashews, walnuts, along with a multitude of seeds and spices, blended with coconut water and water. Makes 1 1/2-2 large glasses - more filling, fantastic energy boost and I figure a lot better for me than a slice of† Vegemite on toast, though it didnt help the BP sadly, hope the Epclusa is enjoying it.

Anyway Week 1 under my belt, pill box refilled. 11 to go!

BTW re the antidepressants that was when I stopped visiting specialists - my fibro man asked If I needed another script for them. (first visit 3 months after diagnosis) Hadnt even collected the last one. Did I realise I could get a script from my GP. He'd see me again in 3 months. I was livid - I'm not depressed I'm in Pain you idiot! I had just travelled (100 miles 160 km-whatever you talk) for that. That was when I realised what the majority of the medical professionals thought and why would I waste another 50 bucks petrol bill to come back. That was third trip in 3 weeks, my osteo man had left and the really old guy they had in that day, said I was fine, he didn't know what I was doing there anyway.....Praps he should have read my file! I Just learned to live with pain, ignore it lol. I lost a heap of weight, finally quit chain smoking, started walking etc adopting the "physician heal thyself" attitude, all about the time I found I was Hep C Pos.

Sounds like you've really been there too. My referral for the Hep treatment came via a locum while the doc was on hols. HoHum.... So thankful for that day, he queried my bloods, alcohol consumption etc and I said I am Hep C Pos. He was on it. Are you on treatment - no - why not and here I sit 10 months later. Without seeing him that day I sincerely doubt I would be any the wiser. so Thankful



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND

Tig


Admin

Status: Offline
Posts: 8531
Date:
Permalink  
 

Now I really feel old and outdated... I have never before heard a new member (STL) refer to a conversation related to Epclusa as ďolder postsĒ! That makes me older than Dragon dirt... Iíll accept that as an earned merit badge, lol!

Iím thrilled that there are no new posts related to my treatment protocol. That is something Iím glad we donít have to find answers for any longer. I know you will all feel some changes on these new drugs. Just know that I believe from talking with those before you, they are typically short lived. Hydration, diet and rest seem to be the best advice to deal with any side effects. Regardless of the side effect profile, these are powerful medications. Strong antivirals that are attacking a formidable foe. I used to say, every side effect felt, is another blow to the Dragon. Consider it the screendoor hitting it on the way out!



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. Ranges

Signature Line Set Up/Abbreviations† †Payment Assistance



Guru

Status: Offline
Posts: 2893
Date:
Permalink  
 

STL,

I think you said you are taking your Epclusa in the AM? And described taking it with a couple glasses of water AND a super-healthy smoothie drink?

Epclusa can be taken on an empty stomach with lots of water (and with smoothies and whatever), it is not required that you take a solid food meal with your Epclusa dose, but I would always opt for taking any med WITH food, especially IF it is not contraindicated, and taking food with Epclusa is definitely NOT contraindicated. So, your smoothie is OK, but I am thinking maybe you should try some "solid food" with your Epclusa.†

A "moderate fat-containig meal" actually assists the absorbtion of the "VEL" in your Epclusa (in an infinitesimal amount), not significantly, but that tendency exists, so it is NOT at all a bad thing to take your Epclusa with a moderate fat-containing meal (like a solid food breakfast).

You may find any vague (or definite) stomache/GI complaints (nausea or such) might be less noticable when you take Epclusa with a meal.

I don't know what is in your smoothie, and if this is something you ALWAYS normally eat every AM as a routine breakfast, or, if it is something new, but if you ARE in the habit of eating just an "ordinary breakfast" every morning, and breakfast time IS the time you have chosen to take your Epclusa, then I would take the Epclusa with a "moderate fat-containing breakfast meal" (along with lots of water ALL day long), the healthy smoothie drink can still be fit in any time of the day. I am thinking a more solid (mod. fat-containing) breakfast type meal with your Epclusa might help your gut. If this smoothie is something "new" to you, maybe that itself may take some getting used to.

Some folks on Epclusa have noticed some GI things, but generally it was mostly in the beginning, and transitory, and will pass. Other have noticed ZIP!†

You and I (as GT3a's) are so lucky to have been recipients of Gileads "VEL" (you with your Epclusa and me with my Vosevi), don't worry, your Epclusa will work beautifully for you.

So many parallels in our hx's (sorta), I had all but given up complaining about how i was feeling over the decades, but once I was FINALLY diagnosed in 2015 tho, I searched hard through every medical record I could find, over all these decades of escalating symptoms/complaints, I found a mere couple FBS's, cholesterols, an estrogen level, a thyroid function test, even an Epstein-Barr test for mono - (close! but no cigar), I found not a single liver panel in my records!, if some had ever been done on me I wonder what my ALT was! As few and spotty as my records and tests were and the number of doc appointments i did attend, I did manage to find about a million of the R&M's and C&S's I had tho, and evidence of many other things I had to have done, kidneys, imagings/antibiotics, referrals out for gyne stuff, eyes, ears, skin and boney things, etc. Over the last decade (after about the third time round I had been offered anti-depressants), I had just about given up discussing things with them other than presenting myself to get scripts I wanted, or to ask for an xray, or a consult-out based on my theories, etc. Had it not been for a newbie GP doc in training - "listening" to me one day, (while I was just trying to get my script re-newed and get out of there before the no-smoking lecture came, or before she too would offer me anti-depressants), her, hearing me say, "yes indeedy (sigh) I had been feeling rather "punkish", FOR QUITE SOME TIME NOW!", frustratingly understated ("try decades dear" I did not shout at her out loud!). She decides to test me for anemia, (hm, OK, ya, nice of her, I think to myself) - ferritin came back high, hm she thinks and ponders, she calls me back for full monty labs, AND a liver function panel (well FINALLY!), and off we go, a high ferritin, leading to more bloods, a liver panel and eventually her and me to the HCV diagnosis. Then, off to the races with hep specialists.†Thank goodness I got that student doc that day. She was not around very long after that, but I wish I could really thank her for getting me diagnosed : ) C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



Senior Member

Status: Offline
Posts: 195
Date:
Permalink  
 

Hi Dishbrat,

I have read your posts and noticed you were another newbie about to start treatment, but with a different medication. Lovely to say Good Day. All the best on your journey. I look forward to reading your updates. I am on the other side of the pond so my day 6 has just begun.

I will keep posting - as you and I have found, googling brought us here as it will those who come after. I noticed that most of the talk on my medication was older posts, so I will be sure to update my progress. I think everyone going through this must be somewhat apprehensive and reading others stories can be helpful. There are some amazing stories on this board and it gives us hope that we too will slay the dragon.

Kind Regards



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



Senior Member

Status: Offline
Posts: 195
Date:
Permalink  
 

Hi Tig,

Lovely to hear from you also. Should I have any questions I am sure I am in the right place for answers. Ive just had my two glasses of water with my bug bomb, while replying to Allison. Now Ive made my smoothie and back to typing. Have to say I felt a little off last night. Tired yet couldnt get to sleep, Lower tummy pains, felt a little like I might vomit but by this morn I feel fine. Don't know if it was a bit of this war going on inside me at the moment or something unrelated, but I feel ok again this morn so here I sit with a big healthy drink to get my day started.

I only learned my genotype on Monday and on googling it I did read that was not good. More chance of serious complications such as Cirrhosis or cancer. Also seems the cure rate is a little less with this geno, so here's hoping I will be lucky. I can't remember what my number was with the fibroscan 7.5 or 8.5 but she pointed at the graft and explained I was only just outside the ideal area in the greeny yellow section so was not bad at all.

Anyway nice to chat. Take Care.



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



Senior Member

Status: Offline
Posts: 195
Date:
Permalink  
 

Hi Allison,

Thank you for the welcome. How awful it must have been to be ill with a new baby to care for. Pleased to hear the baby was fine. My Liver Health Nurse told me that she could understand wrong diagnosis. The results can be difficult to diagnose and back in the 70's and 80's not as much was known, so understandable.

I have had so many off things in my bloods over the years but noone ever put it together. Liver enzymes all over the place,† do you drink much? No rarely these days. OK we will see what they look like next time. High Iron, High Folate. don't take supplements. Told them I didn't. When they heard how much spinach, Bok Choy, Kale I was eating they just blamed that and left it.† High Rheumatoid factor. Fibroyialgia can cause that. You have† osteoarthritis, not rheumatoid. What ever it was it was blamed on something else. I was seeing so many specialists for different things, till I just stopped going. I felt was getting nowhere, big trips to see these people to be asked do you have enough medication see you in three months. Ho Hum.

It took a me to request the test to get the answer and even then it was an empty answer. there is nothing can be done. Stay off the alcohol and fatty foods. Look after yourself. Anyway nice to chat. So pleased to hear you have slayed your dragon. Hope I will be saying the same soon.



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



Member

Status: Offline
Posts: 22
Date:
Permalink  
 

*WAVES* Hi STL!

I'm new around here too, but these folks are wonderful!

Good luck with your journey, make sure you post a lot of updates, because like you and I, there are people reading these forums, before joining, to find different info on the different treatments now available.

I haven't started treatment yet, I've had all my prep work done though, and I see my GI Dr, on the 17th! From what I've read on his online clinical notes, I'll be starting Mavyret, for 8 weeks.

Drink that water, and keep that positive attitude! Have a great night!



__________________

45, F, Dx2000, VL 5.3M, ALT 113, AST 45, F0 (Blood work), GT 2 (? Couldn't establish subtype??), treatment naive, type 2 diabetic, recovering addict 11/22/02

RX Mavyret, 8 wks. SOT: 6/5/18. Liver function blood work at the end of week 3, for my Family Dr.† ALT 50, AST 24.

5wk-UND, EOT 7/30/18

Tig


Admin

Status: Offline
Posts: 8531
Date:
Permalink  
 

Hi STL,

Welcome from me, too! Glad you found us and thrilled to hear your good news. Obtaining treatment with Epclusa is fantastic all by itself! Itís an extremely effective treatment that will do the job well.

Your bio was quite interesting. We Hep C nerds enjoy reading such comprehensive histories! So thanks for sharing your story. Youíre not alone either. There have been many stories about misdiagnosis, but thankfully you seem to have avoided the advanced fibrosis that has plagued so many. Especially with 3a. That can be the one genotype that brings lots of surprises in its late stages. You are fortunate to have avoided such issues. I know youíll begin to feel improvements once you have successfully beaten the Dragon into oblivion. The future looks bright!

Strive for that 3-4 liter per day water intake and youíll avoid most of the common side effects. Youíre already ahead of the game and I can tell youíre going to do well. I wish you all the best! If you have any questions, donít hesitate to ask. Cheers!



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. Ranges

Signature Line Set Up/Abbreviations† †Payment Assistance



Senior Member

Status: Offline
Posts: 408
Date:
Permalink  
 

Welcome and hurray that youre on treatment †

I too went yellow a couple of days after a blood transfusion,was told I had hepB and to avoid butter...eventually kinda felt better and went on my merry way( had a brand new baby to figure outraising) I gave up all alcohol, tried to eat liver healthy stuff, I always had highish LFTs and high iron ..so eventually a new Dr tested my hepB status and told me I didnt have it....I thought great, Ive cured it with diet, the high Iron levels are because I eat so much seaweed and spinach....no†what I didnt realize was that Id never had it. Took another 15 years before I was informed about my donors HCV and got tested.

Anyhoo, isnt it fabulous that we can get rid of this nasty destructive virus..?†

Glad youve found the forum

Alison



__________________

60y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

2.5years...post tx... successful dragon slayer†



Senior Member

Status: Offline
Posts: 195
Date:
Permalink  
 

Thank you very much for the warm welcome and informative posts Canuck. When I hear from the nurse I will be asking if I can get copies of my tests thus far and my future ones. She showed me the graph for the fibroscan when she did it, but nothing other than that. ultrasound she said all looked good but no real information and I have absolutely no idea of these numbers everyone talks re their bloods, so hoping I will be able to get copies of my blood results. I just know that over the years my liver enzymes have been unusually high, but I was fit and healthy, hardly ever visited the doctor so noone ever sorted out why.

Lol I read your story re the hep b and wondered if you ever really had it at all, or like me were wrongly diagnosed, but seems you know you really did have it. I believed for all these years I had had it only to hear Monday that nope - I never had it at all.

I can't wait to beat this thing and see curious if other things I have suffered over the years may improve also. I can only but hope.

Kind Regards



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



Guru

Status: Offline
Posts: 2893
Date:
Permalink  
 

Hey, I just read your excellent bio, which filled me in further very well - I too had a bout of "hepB" back in about 1973 (or so I always thought, and was told) got better from it (it naturally resolved), and I never looked back, until ... fast forward to 2015 when, finally, someone eventually stumbles over my hepC that I had also been packing ever since 1973! I did have the hep B back in '73, just didn't know about the hepC that came with it! - we could be twins (sorta). Good you are getting labs at 4 weeks.†smile†C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



Guru

Status: Offline
Posts: 2893
Date:
Permalink  
 

Hey,†

Big welcome from me! And congratulations on a whirl-wind start! Always glad to see a fellow GT3a get the likes of Lovely Epclusa. ("Bug Bombs" - heehee).

Good portrayal (and info) on your hx and journey thus far BTW.†

What a nice May Day for you, with your May 1st start. A new spring for you.

Sounds like you don't have questions, good you sound well prepped and organized, good your team has sped you through all the appropriate corners. Good you had the U/S and fibroscan. I am sure they assessed your Hep a and b status. Great you have the scripts in hand and have a blood draw scheduale. Will your first blood draw be at 4 weeks?†

Almost one week done! Good you are feeling no ill effects since starting the meds.

I was like you, not up to date on how effective the new hepC drugs were nowadays. Not until I was diagnosed in Jul of 2015, up until then I had learned virtually nothing about hepc, period, nor the treatments. Once diagnosed though, then, all of a sudden I learned a lot, on purpose, in a big hurry. Like you, I also had my hep c for a long time (but I just didn't know it).

12 short weeks of Gileads magic, and you will leave that part of your 37 years behind you, and be a GT3a no more.†biggrin

We will be here for you, in anyway we can assist.†Of course we will be interested in your progress and what your labs and tests show.

LOTS of water! C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



Senior Member

Status: Offline
Posts: 195
Date:
Permalink  
 

Just to say a big Hello to everyone. I'm behind the times only learning there were now effective treatments available to all, in July 2017. I was referred for treatment, got a reply saying we will ring you when we have an appointment for you, but when nothing seemed to come of it I had pretty well resigned myself to nothing was ever going to come of it when I got a call and everything has been flying the last few weeks.† Specialist, Liver Health Nurse, Blood tests, fibroscan, ultrasound, more bloods required and then Monday I saw my nurse, learned I was to be Epclusa received all my information on the medication and my first bottle of Bug Bombs, a scripts for 2 more bottles and blood test forms for my testing schedule and away I went.

Arrived home to read my pack and talk with my best mate Google about the treatment which led me here, where I have been reading non stop for days.

Tuesday I got up took two big glasses of water, my first big bug bomb and a lovely big green smoothie containing everything good and healthy I could find to add to it. This morning was day 5 of the same routine and all is going great. Havent noticed any ill effects so all is good. Hope all remains so.

Best wishes to all on their journey now and to all whov'e gone before. I am excited to think that after some 37 years I may actually be free of this disease.†



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND

Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.

Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.