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Post Info TOPIC: Recently diagnosed but hopeful


Veteran Member

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RE: Recently diagnosed but hopeful
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Welcome Annie,I too got hep c from a transfusion in 1979.I wasn't diagnosed until 2000.Fatigue was my primary symptom .Back then I was classified as genotype 2 but testing last August determined I was 1b/2.I waited 18 years for the new DAA's to start treatment.I just finished 12 weeks on Mavyret and was undetected at 6 and 12 weeks.You really need to get a copy of your bloodwork from your Dr. V/L not low is pretty vague.The really good news is your diagnosis could not have come at a better time.The new DAA's have an amazing cure rate.You're on your way to a hep c life.



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62 yo male GT 1b/2 ALT 60 AST 51 V/L 985,000 Fibro A2 F 3/4 began 12 wks Mavyret 9/13/2018

6 wk labs ALT 12 AST 18 V/L NOT DETECTED EOT 12/05/2018 NOT DETECTED



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I'm just finding this all really confusing.† I've probably had this for over 40 years.† The likely suspect is a blood transfusion in 1974.† It was only caught when I tried to donate blood.† I've been checked for Hep A and B and HIV, which are all clear.† I'm going to ask my family doctor for the paperwork because they could only tell me that the VL is "not low".† I've been referred to a liver specialist but don't have an appointment yet.

I just don't understand how I could have this in my body for that long with no real symptoms and, as far as I can tell, no liver damage.† I have suffered from mild depression and fatigue for a long time.† Is it possible those are symptoms?† My body has been fighting this off for a long time.† I'm hoping that once I get through the treatment, my energy level will increase.† Right now I feel like some days I'm pushing it just to get through.† Then, to add to the stress, my basement flooded last spring and I've been going through all kinds of digging, renovations and way too many decisions.† I just want to sleep and some nights are good but some are really bad.† It's a good thing I'm retired.



__________________

age 64
gender F
genotype 2
fibrosis stage unknown but bloodwork shows no liver damage
HCV diagnosis date Oct/18
Waiting for appointment with liver specialist Jan. 31/19
HCV medication(s) none yet but probably Epclusa
HCV lab results (viral load 2,950,000, AST unknown, ALT 10
No prior treatment



Guru

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Hi annie,

Glad to meet you here, and glad it sounds like you should be starting treatment soon.

Thank goodness for these new era drugs! It is possible that you may not get any "sides"! We had one youngen here who was in one of the early epclusa trials, he was easily and well-cured, but when he started taking the trial drugs, he felt nothing!, and the suspicion crossed his mind that (maybe, by mistake) they had (in error) given him placebos, instead of the real deal! - turned out he had indeed been given the real deal. He never once relayed nor complained about feeling bad while he was on his epclusa. So, maybe others might have that experience too! Of course some our folk around here who have done epclusa (or some of the other new era drugs) have not always felt 100% through treatment, and sometimes we debate as to whether some yuck IS from "drug" sides, or not. But generally the drug sides are very tolerable - certainly NOTHING like the nasty treatment drugs of yore!†

I am not sure how much assessment you have completed to date, but if you have not had a recent fibroscan or an abdominal ultrasound done - inquire about getting those done. Also, make sure they assess your Hep A/B immunity levels, as well as determining if you need any immunization for those (or for flu) prior to starting your hepc treatment.

Fire away if you have any specific questions you are pondering, we will all try to help where we can.†smile†C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

(SEE UPDATES IN BIO)



Moderator

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Oops, sorry Annie. †I see have provided info in your signature already. †Anyway, still glad you're here. You should do well on your treatment.



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin,†SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!! †I WON!!

EOT 6 Months 11/12/2016 †CURED

Tig


Admin

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Helloooo Annie,

So glad youíre here! I see you have met some of our fine family here. We have friendly, knowledgeable people here and we all enjoy providing whatever support we can, to all affected by this slow killer. Itís not just the liver damage, itís all of the different ways Hep C can manifest itself.

Once destroyed, youíll get back to health and can be pleased that you beat this early. With an ALT of 10, thereís no indication of inflammation. You are fortunate to have discovered this early. I know youíre going to do well.

If you need anything, donít hesitate to ask.†smile



__________________

Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ† †Lab Ref. RangesHCV Resistance

Signature Line Set Up/Abbreviations† †Payment Assistance



Member

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Welcome, Annie!† I am new too,† (to this forum)†I, unlike you was diagnosed a long time ago,† back when interferon/ribavirin was the only option.† I remember when my family doctor actually asked me not to take treatment†at the time, assuring†me that someday soon better options would be available, and he was right.

I'm†glad you decided to take care of this ASAP instead of waiting SO long as I did.† I am also† glad you found this lovely group of people, I have only been around here for a very short time and they have already been a comfort to me†smile



-- Edited by lilbrownie on Friday 14th of December 2018 05:31:07 PM

__________________

Age 62

Diagnosed 2007

Hepatitis C Genotype Type 1

HCV PCR Quantitative 3,763,192 IU/mL

FIBROSIS SCORE 0.64

FIBROSIS STAGE 0.01

FIBRO ALT 102 U/L

FIBRO AST 68 U/L

GGT 76 U/L

FIBRO BUN 9 mg/dL

FIBRO PT INDEX 103 %

FIBRO METAVIR CLASS F2

INFLA PT SCORE 0.73

INFLA METAVIR CLASS A1/A2



Member

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Thank you.† I'm sure it will be Epclusa.† This is a link to an article by the Doctor I'm being referred to.

https://lfpress.com/2017/03/07/london-liver-specialist-urges-people-to-get-tested-treated-cured-and-move-on-with-their-lives-because-new-drugs-have-a-98-per-cent-cure-rate/wcm/7f4f6226-f26a-259c-9c52-290eb956bd53



__________________

age 64
gender F
genotype 2
fibrosis stage unknown but bloodwork shows no liver damage
HCV diagnosis date Oct/18
Waiting for appointment with liver specialist Jan. 31/19
HCV medication(s) none yet but probably Epclusa
HCV lab results (viral load 2,950,000, AST unknown, ALT 10
No prior treatment



Senior Member

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Posts: 147
Date:
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Hi Annie,

Welcome to the forum! You found the right place for support. I notice you have Genotype 2 which is the most responsive to treatment with the new DAA drugs like Epclusa. In the ASTRAL-2 study patients with Genotype 2 took 12 weeks of Epclusa and 99% reached SVR12 meaning no HCV virus was detected 12 weeks after end of treatment. That is what I took. Your gastroenterologist will determine which drug is best for you. It will either be Epclusa or Mavyret. Harvoni is not used to treat Genotype 2.



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Male, 65, Dx 1990, GT 2a/2c. Pre-tx VL 11,500,000, ALT 10, AST 18, F3, 12.4 kPa. Rx: 12 weeks Epclusa, SOT 3/8/18, EOT 5/30/18. Week 2 VL 50, ALT 12, AST 21. Week 10 VL not detected, ALT 12, AST 18. EOT + 12 weeks: VL not detected, ALT 11, AST 19. EOT + 24 weeks VL not detected, ALT 9, AST 24.



Moderator

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Posts: 544
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Welcome, Annie.

A silver lining here is that you were recently diagnosed. †That means you don't have to go through years of fretting and hoping for a cure. Lucky you in that regard. The new treatments are highly successful, including Epclusa.†

What do you know from your tests? †Do you know your genotype, your viral load, your ALT and AST levels? †You can put all of that in your signature line. †It helps us to know how to best support you.

And support you, well will.

I'm glad you here, and glad you are hopeful. †It will all pay off.

Cheddy



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin,†SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!! †I WON!!

EOT 6 Months 11/12/2016 †CURED



Member

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Posts: 19
Date:
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I'm new to all this and just looking for information and support.† From what I've read this should be a relatively easy ride but not looking forward to side effects anyway, probably Epclusa because that's what my Doctor has written about.



__________________

age 64
gender F
genotype 2
fibrosis stage unknown but bloodwork shows no liver damage
HCV diagnosis date Oct/18
Waiting for appointment with liver specialist Jan. 31/19
HCV medication(s) none yet but probably Epclusa
HCV lab results (viral load 2,950,000, AST unknown, ALT 10
No prior treatment

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