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Post Info TOPIC: Peripheral neuropathy and Hep C


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RE: Peripheral neuropathy and Hep C
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Hi everyone Harry here ,hope everyone going ok !just a short brief 3 pm Saturday afternoon middle of a heatwave ,I can totally relate to the feet numbness plus swelling been told hot weather does not help ,IV also been getting infections  that usually mean anti biotics to heal ,still getting tests done on blood ,still no virus thankfully ,but I seem really prone to get infections plus bloating mainly on stomach an legs ,my dr just does not seem to understand hcv ,nor does he have any answers ,just seems to think I shouldn't have any problems lol,seeing I did treatment an got rid of virus ,I've been waiting to do stress test on treadmill ,last appointment I had they told me to make another appointment as my asthma has been playing up with the smoke from fires plus heatwave ,so just got to wait again, waiting seems like what a lot of us do ,we must be very patient people ,ha ha.How are you going Tig ?hope not getting to close to the bears...and good luck with the feet guys your not alone .it's been over a year Poste treatment for me ,good luck everyone ,gotta go drink some cold water.cheers.



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D writer


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I have mild pn...mostly burning on the tops of my feet, and a bit of numbness/no feeling at other times ...I had it before treatment a little bit but treatment made it a lot worse. (but Im grateful to be cured)
It seems we all have to be our own researcher and advocate with medicalprofessionals when it comes to the effects of HCV on our various systems. And experts too confuse

 Im sorry to hear of your toe troubles. 

 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 



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Nick both hubbie and i tested to have mild neuropathy in just the one leg they tested so considering how our limbs and feet and hands feel i'm pretty sure it's all over us. we both had hcv for over 30 yrs each.

but we are also past 65..soooo........ 

he is 70 and has more pain but has had a few injuries thru the years to complicate matters.



-- Edited by 5-1-18 on Monday 20th of January 2020 03:39:36 AM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



Newbie

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Have been HCV+ for over 30 years now but only diagnosed 2008. Can't remember how long I have been 'clumsy' (catching my foot on the pavement, kicking objects rather than moving around them) but have only very recently been made aware of Perpheral Neuropathy and its relationship with Hep C. Recent years have seen me have lacerations to the soles of my feet which I did not notice at first and did not take care of soon enough because they did not seem to trouble me. I now know that they did not trouble me because I do not have 'normal' levels of sensation in my feet. I keep getting asked by doctors and nurses if I am diabetic (or they assume that I am). Have been tested for diabetes several times and each test has come back negative. Anyways, I  got a bad sore on one of my toes and thought I'd let it sort itself out - upshot is I got an infection all the way back to the bone. Have been seeing podiatrists for past two years and just last week had surgery to remove part of my toe to stop infection getting any further. Thankfully am recovering well from the op and have no pain (neuropathy coming in to play?). Was only a few days ago that a GP friend of mine suggested a link between HepC and neuropathy. All the time I have been seeing doctors and podiatrists I have always mentioned my HCV status but none of them ever suggested a link between my lack of sensation in feet and HCV. I would add that I had a serious spinal issue in the 1980s (crushed spinal cord at C7, paralysis until a few weeks after operation to relieve pressure, now mostly fully mobile) and assumed that recently diagnosed lack of sensation in my feet was due to that spinal injury. And now I found out peripheral neuropathy can be directly related to HCV, or perhaps as a side effect of having been on two courses of Interferon.



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