Hep C Discussion Forum

Iris Dragonfly · Guru

RE: Hello new here, needing advice;

Tig · Admin

Hey Manny,

What a drag, dude! Good grief, I’d say what’s next, but like you, I usually find out that I should’ve kept my mouth shut! I don’t know why these events tend to follow one after another. Let me say though, once you start feeling better, move forward with renewed vigor and put the negativity to rest. That’s how we all achieved our cure of this dreaded virus. By believing better days are ahead, you will gain the momentum needed to get there. Best of luck, I’m so glad you’re on the mend.

Observer · Guru

Harry ....magnesium citrate is ok...it does help cramps and can help with sleep (and its amazingly helpful for constipation) but the glycinate one is better for nervous system according to my information

glad its cooling down for you. Take care

tig, that sound very intense....I would have been tempted to try a milk bath haha haha

Observer · Guru

Manny , sorry to hear you had a heart attack...but glad they are able to treat it...you take it easy and get that healed up and then tackle the hep c treatment.

Harry · Senior Member

Hi Manny ,hope you are feeling better ,I'm also in my 60s, I'm waiting to do a stress test ,I was diagnosed with asthma ect, couple yrs ago , dr wants to see if my shortness of breath is my asthma or I also may need a stent,it would explain my shortness of breath doing some jobs, anyway really hope your feeling bit better , I

Harry · Senior Member

cheddy,how are you hope you guys staying safe it all looks very hectic in USA at moment .Im waiting to do a stress test on a treadmill to check my heart condition ,just in case my breathlessness isn't all asthma ,I wouldn't be surprised if I didn't need a stent also,just last couple of mths little jobs like I use to do put trash out ,cut grass ,are making me seem to get bit more breathless ,anyway hope he is feeling better take care .

Harry · Senior Member

Tig, it made me wonder why pharmacist would sell me something that hot ,I had same idea as you cold water !! I put feet in cold tub of water made it worse for sure ,it's just about gone now 3 days later !! I won't be using again either. Take care mate.

Cheddy · Moderator

Oh, Manny.

I'm so sorry to hear that you had a heart attack. I am, though, glad they got ahold of you in time to put in a stent. That was close.

My husband found himself in need of a stent some years ago after learning his main descending artery was 99% blocked. The next symptom would have been the last. It was a real wake up call for him and put him on the best diet and fitness trend ever. He lost a load of weight. He swims, bikes, runs and is 1000% happier as a result. His cholesterol is in check with meds and his blood pressure is ideal. I'm saying this because I know how frightening events like these can be. I also know how much better things can become.

Right now is your chance to get better, one thing at a time. Take care of the heart issue immediately (as if you had a choice) and inquire about your HepC treatment to follow.

What a very strange time. We are a determined group around here. I'm glad you joined in.

Please let us know what your doctors have to say. We're always learning.

Really big wellness wishes from here.

Cheddy

manny15 · Newbie

thanx for the encouragement everyone, but i have some news here, the day before i decided to start my treatment i had a minor heart attack n needed a stent, so now i'm on 5 different meds which make me feel like crap, blood thinner is the worst, i have yet to ask the Dr if i will be able to do the treatment with mavyret any time soon, discourage to say the least but thats how my life has been one thing after another just chipping away at my health ...????

Tig · Admin

Hi Harry,

I can relate to the Capsaicin cream! They started me on that for nerve pain related to my neck injury. The doctors gave me Lidocaine cream to put on my neck and lower back first, then I was instructed to put the Capsaicin cream a few minutes later. They said the Lidocaine would eliminate the burning. Ha, ha! It burned so bad that I got in the shower and tried to wash it off. That was a big mistake, because it made the burning increase 10 fold. I ended up with welts from the chemical burn! Never again will I try that for nerve pain or anything else.

Harry · Senior Member

Observer,I meant hasn't got mag glycinate in not sulphate.,gnite maybe it will still have goodness in it I hope ,

Harry · Senior Member

observer hi ,yes I thought bit wierd when I saw what was in oitment ,it wasn't cheap to buy unfortunately I couldn't take it back seeing I opened it,it's proy advertised on line with list of ingredients ,so glad I only used small amount !!IV got bottle of magnesium 600mg high strength,but looking at label it has mag oxide, phosphate,chelate,and citrate I tablets no sulphate , unfortunately it says good for nerves cramps muscle pain ,I will try an get magnesium with sulphate next time ,thanks for your info enjoy the woodpeckers,and stay safe ,it's sure a crazy world atm,I think we are lucky to have grown up when we did ,cooling down here now it's big change from summer here.

Observer · Guru

Whooooaaaa Harry chilli on your feet for nerve pain? I cant imagine that would be pleasant.

Maybe a bit for muscle aches but not nerve pain....

some people seem oblivious to other peoples reality.
I do hope you are taking magnesium glycinate ...it really helps me with tinnitus, nerve pain and muscle cramps.

All is good here thanks...although my province has opened some businesses, I never really went anywhere before the pandemic hit ....so nothing really changed.
I had a baby woodpecker visit the yard today...she couldnt get to the suet (just kept sliding down the pole we have it hanging on) so her dad came and got chunks of it and fed her right outside my window...that was cool

take care

Harry · Senior Member

Observer how are you ?thanx for info everyone,other night I had extremely painful feet ,I had to do visit to all night pharmacy try an get something for neuropathic type pain I purchased a creme ,chemist informed me that it was best thing for feet ,it's called zostrix made from capsican , chilli, input small amount on feet ,half hour later my feet felt like on fire extremely hot stuff ,I rang chemist he told me I must use 3 times a day for a mth before I felt any relief,it's been 3 days now heats slowly going think I will suffer the aching feet rather then use this creme ,anyway just a warning beware of chilli lotions.stay safe everyone.

Harry · Senior Member

Hello Many, I'm in Australia ,I finished Epclusa treatment 2 yrs ago, treatment was successful it was a 12 week course,I'm also in my 60s,I think if it means getting rid of virus you should consider doing before it can do more damage,It seems to clear virus in majority of people ,as for side effects I had a few try and talk to your liver dr( good luck with that) he should be available in your case to monitor and give you support ,I was assured of backup and support from liver clinic I attended,very helpful pre treatment ,but could not hardly get a return call if I needed answers to any problems I had,doesn't mean it's the same where you are ,I think the DAAs in Epclusa similar to what you will have, I wish I had been able to do treatment years ago ,before hcv had chance to infiltrate my body as much if I had I wouldn't be getting half the aches and pain I now have ,yes I think you should hit the hcv if you have the chance ,I realise some people have no side effects there lucky, I got rid of virus not without a few side effects ,a lot better then the old treatments lucky!also having hcv for along period would have a lot to do with the side effects as immune system probley has been working overtime ,has to be less stress getting rid of virus ,just read and ask questions ,water seems to help a great deal and don't try doing to much I found i,d get exhausted easy ,good luck with it, and remember it's not all plain sailing for everyone, ask questions an don't believe everything .

Cheddy · Moderator

Hi Manny,

I'd like to welcome you and tell you that I sympathize with your concerns. This journey always starts out being scary.

I have little to add to the good advice you have been given so far. Pretty much every one of us here have been cured - yes, CURED - with histories that span decades of treatment protocols. Todays treatments are so much easier than before, and they work. Side effects of treatment are now minimal, in fact unlikely, compared to letting this virus eat at your liver.

Get it done. Be brave and get it behind you. Having HepC is doing nothing good for you.

We're here for you if you need support along the way, and we will keep telling you to drink more water. Drink more water. It really reduces the side affects of making big changes in your body.

All the best in improving your health in every way.

Cheddy

-- Edited by Cheddy on Friday 12th of June 2020 02:47:11 PM

Tig · Admin

Hi Manny,

There isn't a drug made on the planet that won't cause some sort of adverse reaction. It's subjective. Consider all of the pharmaceutical commercials on TV! They spend more time, in fast talk to inform you of all the negative things that might happen. The incidence of all adverse reactions with Mavyret, is quite low. You are under the care of a physician and you will be working hand in hand with them. You'll be able to bounce questions off them and us as you progress. There will be a period of time after you start treatment when you'll feel different. That's to be expected as you begin slaying the beast, but it's tolerable. It's all tolerable, if you experience any side effects at all. Remember my recommendation to drink a gallon of water per day, I'm not kidding for a moment. If you follow that intake, you'll be ahead of the game.

If you haven't reviewed this, I want to provide the link to the manufacturer's monograph for MAVYRET. These monographs are often helpful.

PS: Zepatier was another one of the DAA Wonder drugs when it came out. There were a bunch of them. They all work on the same principle and all had very low or no side effects. Treatment about killed me, but I prevailed. Thank goodness these new drugs are so much easier.

manny15 · Newbie

thanx for the reply i read somewhere here bout someone on mavyret had high heart rate i have to deal with that on a daily basis it real uncomfortable thats the biggest worry i have? but i may have no choice my nephew was on zepatier n said he had zero side effects? i do like the 8 weeks instead of 12 tho

-- Edited by manny15 on Tuesday 9th of June 2020 09:24:34 PM

Tig · Admin

Hi Manny,

Sorry for the delay in welcoming you. I’m glad you found us and hopefully we can allay your fear of treatment. Are you thinking 8 or 12 weeks of treatment?

You describe many of the symptoms (extrahepatic manifestions) that many experience with this disease. It’s important to realize, if your symptoms are the result of long term HCV, then you need to stop it before it causes more damage. It’s a good thing to do and will greatly reduce your chance for HCC. We have plenty of friends that have had transplants. I know they would recommend treatment as soon as possible. I do, too.

The side effect profile of Mavyret is small. We have info here on the forum. The thing people never hear about, is that there’s one thing that will help make treatment side effect free. Water, just good old water and lots of it. We recommend you drink a gallon per day. I promise you, a gallon a day and you’ll breeze through it. We have lots of good ideas on water consumption!

Let us know if you have questions and share your viral load, genotype. I enjoy following lab results. It’s great to follow your progress and we’re a little nosy, lol! We put that info in our signature line, then it follows your posts. Take care and good luck! Stay in touch.

Observer · Guru

Hey Manny,

welcome...

Its pretty quiet in here these days as so many people with HCV are getting healed... but others more knowledgeable than I will show up.

I can see your conundrum about doing the DAA after seeing videos from that woman and all her issues..

Longterm HCV can affect our nervous systems, hormonal system our vascular system as well as digestion etc. so it could have been unfortunate timing that she got cured of hep C then had all these other health breakdowns.

We have had a lot of folks on this site that were and are successful using mavyret.

I was on a different DAA and it was not an easy picnic but all my long list of lousy health issues from 32 years of packing around the virus... have improved significantly.

once youre clear of the virus your Dr may have better success finding the right blood pressure meds for you...

livers do a LOT of work for our bodys so your reaction to the BP meds could possibly be from your liver not processing

manny15 · Newbie

hello friends

i'm a 63 year old male i have had hep c for over 30 years, thought it was no big deal as i was feeling fine up until recently, so a little back round is in order first, i must of contracted hep c from home grown tats many years ago, so bout 10 years ago i asked my Dr. how the hep C was doing' he ordered blood tests and tells me that he did not see any sign of hep c, i was blown away thought my clean living n divine healing must of done the trick, now up to current events with a new Dr and another round of blood work she asks me did i know i had hep c, i said well yes but for the last ten years it did not show up in my blood work, she thought it must of went dormant but has come back with a vengeance, for the last years i have had all kinds of new physical ailments like irregular heart beat, rapid heart beats, full body muscle cramps, dizziness, constant gas bloating, and just sick all the time, some nights i feel like i'm gonna die, just UN-explainable internal feeling of yuck.

i also have high blood pressure what a nightmare its been trying to find a med to treat it without debilitating side effects, thought i found something then one month later comes the feeling of just yuck, i also have terrible sleep apnea, which brings its more feelings of yuck.

so recently i was prescribed mavyret, it all happened real quick three days after blood work i was told that, that would be the med to treat my kind of hep c, so after all the issues i have been through with meds n their side effects i do research before poppin something into my mouth.

so here's where it gets sketchy, i run across a video on YT of a ladies journey with mavyret, it appears she does fine with minor side effects, but she does a new video 6 months after completing the mavyret, she says shes had two strokes, rectal cancer and a pace maker implanted in her chest all in just 6 months after using the mavyret treatment, so naturally i'm bummed out n Leary of starting treatment ??? so i convey my concerns to the Gastro Doc n he turns into a complete ass...

so is the treatment worse then the cure, i really don't want to make my life worse then it is but like i said there are days i'm sure i don't have much longer being on this earth... if anyone has some info they wouldn't mind sharing i'm still learning ti navigate this site, my budy did treatment with zepatier n had no side effects n is doing fine today is their a better treatment, by the way i had an older brother who did the old treatment n died of liver cancer...thanx for letting me vent here Manny

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