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Post Info TOPIC: Where are you from? What Genotype?


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Western Massachusetts, Geno. 1a

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25 yrs HepC. type 1a geno. 6mill viral load,3.5 out of a 4 liver biop.started Sept.19, 2012,Tx.Rib.,Incivek, Peg,4wk. Vl 61,undetected @12 wks,undetec.Wk 24



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millie dswn wrote:

1A(tt) Seattle 3rd battle, strart 6m first week on incivek went to 1250


          Is it decrease to 1250 in a week?



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Murat
28.07.12: HCV-RNA +, VL:7.1m, 1b
02.08.12: incivo-riba-pegasys started
24.07.13: HCV-RNA: WEEK 3, 12, 24, 36, 50 UND(SVR!!)
*all men have fears but the brave, put down their fears and go forward... sometimes to death, but always to victory.


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1A(tt) Seattle 3rd battle, strart 6m first week on incivek went to 1250



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Diag 2000, infected  1978. Type 1a(tt) on 3rd round of peg/ riba Sep 7, 2012  started tele.riba.peg. Hopeful.......



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1B Infected in Chicago



-- Edited by Michaele on Monday 24th of September 2012 06:10:56 PM

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MDodrow


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Mexico,  1B



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HCV, Genotype 1b, F1, age 30, VL before tx: 930900 IU/ml, started triple TX with Incivek on Sept. 20, 2012, UND @ week 4, 16, 24 and EOT +12



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Wow, nice to hear from you. I'm from Galveston, TX, decided to get as far away as I could and stay in the south. Landed in T-Town got an accounting degree, worked around B ham until I retired 3 years ago. Now I find out I have this bad boy and have had it for around 40 years. Another WOW!!! Anyway, waiting for an appointment at UAB or Kirklin Clinic. Will let you know.

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HCV Gen 1a, VL 13.2 million, diagnosed in August 2012, have had disease since the early 70s. Have had appointments postponed at UAB 4 times. Don't know when I will see Hepatologist, hope it is soon so I can get this show on the road.



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Hey Artie, I grew up in Birmingham. Let when I was 18 or so and went west. Did most of my debaucherous activity on the South side of B'ham in the early 70's. Seems that there were a number of us from that time that ended up with 1A. Welcome to the forum.



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Geno 1a, Viral load at 2 4, 8, 12 and 16  weeks, UND, Triple therapy Incevek done,   Peg & Riba Done, UND and making plans for the future!!



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I am Genotype 1A and lived in Aurora CO but been in Tampa FL area since 97.

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Geno type 1A Started Abbott clinical trial mid Jan 2013. :-)

Viral load when I started this trial 4.75million  Went 12wks on placebo and started real meds on 4/5/13 after 1wk  on real meds 25 after UND @3wks,6wks.w00t: Done trial 6/27/13 and still UND.

 



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1b , Turkey

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Murat
28.07.12: HCV-RNA +, VL:7.1m, 1b
02.08.12: incivo-riba-pegasys started
24.07.13: HCV-RNA: WEEK 3, 12, 24, 36, 50 UND(SVR!!)
*all men have fears but the brave, put down their fears and go forward... sometimes to death, but always to victory.


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Hi and welcome Artie. Probably if you post this in the New Members Section, you'll get replies. There is no straight answer to your question. Each patient needs a thorough workup before treatment. As you've had HCV for 40 yrs., you'll want a liver biopsy or fibroscan to assess the degree of liver damage. A Google search shows most hepatologists are in Birmingham- there are at least 19 at different clinics, so surely you don't have to wait until Feb.? There are a battery of blood and other tests to be done before treatment is contemplated. Try to speed things up.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 74 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +4 years

Malcolm



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I'm from Alabama C 1a, VL 13MM In the US, what is the normal time between diagnosis and start of treatment. There is only 1 Hep clinic in Alabama, and it may be as late as February before I see the Drs.

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HCV Gen 1a, VL 13.2 million, diagnosed in August 2012, have had disease since the early 70s. Have had appointments postponed at UAB 4 times. Don't know when I will see Hepatologist, hope it is soon so I can get this show on the road.



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HCV Genotype 3 (no subtype)
Sarajevo, Bosnia & Herzegovina, Europe

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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!




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I'm in NY, genotype 2.



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genotype 2, initial vl 69,000 -- Pegasys/Ribavirin started 10/5/12 UND since week 1



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LI,NY 1A



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Geno 1a, second time around, stable viral load since 1973, timing is right for new therapy



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Picked up genotype 1B in North Dakota. 



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Diagnosed: May 2012

Genotype: 1B,  VL: 9 million

Stage: 3/4 fibrosis, activity level: 3

Started TX: Aug. 31, 2012 .....Peginterferon alfa-2a, Copegus, Incivek 

LC


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I am in Illinois, in the US and I am 1a. I have a couple months before starting treatment.

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Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 



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Grew up 1/2 in Maryland and the other 1/2 here in Georgia ....

Geno type 1a seems to be the popular brand... getting ready to start triple theapy trx in about 2 weeks.. best of  luck to you...

Stephanieflowerpot.gif plan on being a " Was" soon



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND



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NYC 1a

6 weeks post tx, still und



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ordinary

Third round of treatment. Started with telprevir and peg/riba in August 2011. UND after 2 weeks. Stopped telaprevir in Sept. due to rash. Continued peg & riba with addition of boceprevir. Did 48 weeks. TX ended July11th. Labs UND as of August.



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Ontario, Canada 1b

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58 yrs, cirrhotic, Genotype 1b 48 weeks Victrelis triple, SOT 7/13/12 victrelis started week 5. Starting VL 4,000,000  Wk 8 33 copies  Wk 24 UND, EOT UND 6 months post Tx DET. The battle goes on.



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Michigan, USA here..1A



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~



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USA PHILADELPHIA PA
3A

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-Aurianna-

Genotype: 3A; VL = 322,130; SOT July 20th, 2012(Ribavirin &Peginterferon)

 

We cant become who we want to be by remaining who we are.




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Washington State, genotype 1 A. 4 1/2 weeks into treatment.



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Born in New Jersey live in SW Florida now. 1a



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Packerfan24


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British Columbia, Canada. I am the ever popular 1a. Starting treatment in late August.



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gen type 1a diagnosed Jan 2012. Triple tx victrellis, peg, riba. UND at 12 wks. (British Columbia medical only checks at 12 wks.)



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Michigan genotype 1A



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Geno Type A1- VL 16.2m - F1-F2 Moderate Fibrosis - Started treatment 4/16/13 Sofosbuvir/Ledipasvir 6 months -  UND week 4 (5/14/13) - EOT 10/1/13 - 12wk blood draw 12/20/13 UND - 24wk/final blood draw March 2014



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I am from Ontario , Canada  , genotype 1 and starting Pegasys treatment tomorrow morning, getting very nervous



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Zowie


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Wow...I sure didnt realize how many types of hep there are.  I am new to this whole thing, and i just started my treatment this week.  so far so good. type 2 is all i know, I think its time to dive in and learn all i can.  Not to mention that i would appreciate the support and meet new friends.  Carpe Diem!  from Connecticut



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Carpe Diem..



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So Cal. 1a1b mixed

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Debra

 

Geno type 1a1b

Began Peg/Rib 4/16/2012  

Began Victrelis May 14, 2012            4 week and 8 week labs undectable

12 weeks und. 16 weeks und. Week 17 Cut peg, added Neopogen 5+months und.!



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Cinnamon Girl wrote:

Here`s an interesting map I found showing the world-wide distribution of genotypes -

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC100152/figure/F2/

I`m from England - (was) genotype 3a

 


 Hi Dave, I think this is the map you mean, with the gen 1 subtype breakdowns.  I posted it on the first page of this thread.

~ Jill xx  smile



-- Edited by Cinnamon Girl on Friday 6th of July 2012 11:13:35 PM

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Jill 

(68 yo, lives in UK)

Was Gen 3a, 

24wks Peg/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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Geno 1a, living in So. Cal.; not sure where I met the dragon, possibly Vietnam or in jail(where I worked for 26+ years).

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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 



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1b, Fort Lee, NJ (infected in Russia 20+ years ago, probably)



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Gen. 1b. 1st Tx in 2003 Rib/Peg. Biopsy F3-F4; 2nd Tx started 2/28/12, Pegasys+RibaPak+Victrelis for 48 weeks. VL: 260,000 (starting), 125,600 (4 weeks), UND-weeks 6-45.EOT 1/7/13 after 45 full weeks. Post Tx 4,12,24 weeks -UND  SVR!



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And then there are the subtypes as well.  I couldn't find it but someone else  had posted a similar geographical breakout with the subtypes.  In North America 1a is much more common than 1b.

SF is San Fran yes.  I live halfway across the Bay Bridge on Yerba Buena/treasure Island.

Best,  Dave



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo



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 Hey there Dave, great information.  Thats why I prefaced my info as hearsay. I didnt even realize that there were any strains past 2-OMG. I had really ignored my diagnosis thinking I could cope. So now its time to become informed and overcome this little bugger. Probably start tx next friday, just waiting for the pharmacy to call about shipment.  Davesf=Dave , San Francisco?



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Hey there Bob,

Here is a link to a map that shows worldwide genotype distribution.

http://www.who.int/vaccine_research/documents/ViralCancer7.pdf

P.S.- Just realized that you are just down the street from me.



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo



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Texas, 1b

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 1A from San Lorenzo, CA>  San Fran Bay area----------I had heard that the 1 a@b strains were european and the 2@3 strains were asian varieties, just hearsay and dont know the relavence



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I was diagnosed with 1b back in 1998, but then Kaiser tested me last year and said it's type 1a.  My dr says I may have both.  But you're probably talking about someone else.  My viral load went from 4.7 million to 371 to UND to <43 to UND to <43 to UND.  Just got back from dr appt.  Last Monday's lab showed UND. 



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.



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I vaguely remember reading a post from someone whose genotype "switched" during treatment.  Something along the lines that the test only declares the dominant genotype.  So when the first one got knocked down to UND, the test then showed the second one.



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo



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I was told by my Liver doc's office that a person can be infected with more than just one Genotype of Hep. (ie: having Genotype 1A does not preclude one from contracting Genotype 2b etc.)

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Genotype 1A, Genotype (from parents) CC, Viral Load=7,514,000 (as of 12/6/11) Started Triple Therapy TX: 12/17/2011.UND @ 4-48 Wks Taken Off Incivek @ 6 wks due to Rash Response. Finished TX 11/17/12. SVR year 1



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USA; Massachusetts. Genotype 1A.

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Genotype 1A, Genotype (from parents) CC, Viral Load=7,514,000 (as of 12/6/11) Started Triple Therapy TX: 12/17/2011.UND @ 4-48 Wks Taken Off Incivek @ 6 wks due to Rash Response. Finished TX 11/17/12. SVR year 1



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Me too, six months from ending tx I'm still UNDbiggrin.

From the east coast of Florida.



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I can do everything through HIM who gives me strength Phil 4:13

 Genotype 1a,(983,330- 7/26/11) (HCV not dectected on 4 week labs 10/24) started tx 9/23/11 Incivek, Riba & Pegasys.12/01/11 off all Hep C tx. VL as of 12/5 UND    UND on 4/5/12 labs!!!!!



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1a Russia, but living in New York since 2000, got it either right before or just after came here , not sure. Good luck everyone

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I'm Alex. Diagnosed with hep c 12 years ago. Genotype 1a. Started tx on 1/31/12 Ironically, I'm an RN. VL 15.9 (!) mil.  Wk 5, 8, 12, 16, 20 - all UND :)



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1a, from west coast of Canada.



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Geno 1a, VL 289,000 at start of Tx Nov 2/11. Und after 4 wks on Interferon, Ribavirin, and Victrelis, Finished Tx June 25/12. Still und. Virus back Sept 2012 VL over 1 million.

Started Harvoni Sept 22/16. VL 2 million. F score 2.

10/24/16:HCV UNDETECTABLE. Alt 21, Ast 21.

EOT: Dec 14/16



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Australia. 1b. Probably caught in in Vietnam as medical worker 35 years ago.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 74 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +4 years

Malcolm

kr


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1a Canadian - probably got it in Montreal.   On week 33 of triple (4 week lead in, 44 week victrelis/peg/riba) - defnitely ready to be done - hope I have some hair left.



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NH, genotype 1a, Bad side effects so stopped triple Tx at 13 1/2 weeks-hummm, 1 month later "undetected", who knows!

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B161-NH



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Amazing to see where everyone is from. I'm originally from Oregon, but living in Canada now. Genotype 1, from a blood transfusion in Oregon over 30 yrs ago.

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Susan Yantz


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I am a Mississippi Gal! Geno 1a mildly chirrois Tried tx 11 yrs ago Start triple w/ Invicek This Friday! Thankful For formun

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!



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1b  viral load 5m  attempted treatment 1999 but had to stop due to thyroid complications...am attempting treatment again soon with triple therapy and close monitoring of thyroid levels..anyone else out there have Hashimotos thyroiditis and on treatment? 



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1b  WV Started triple therapy 7/13/2012.



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1a

Portland, OR Originally (where I got it...I think)
Los Angeles, CA (currently)



-- Edited by Derekrex on Monday 14th of May 2012 07:17:14 AM



-- Edited by Derekrex on Monday 14th of May 2012 07:17:33 AM

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