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2ndTimeAround


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RE: And the rash to my list
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gatekeep wrote:
zuzusfam wrote:

 

gatekeep wrote:
marktrux wrote:

 

Yes it gets much better. A bunch of the side fx, including the buttburn go away. I've still got some rash left but its very managble and tolerable, i guess its some leftover riba-rash, but its nothing like the incivek rash. Everything gets much better once the incivek ends. Plus you can loose the highfat eating schedule and thats sweet. Theres nothing like being able to set down and just eat a salad.

 

Mmm salad. I'm going to definitely get more active and loose this ridiculous weight I put on. I hope to get more energy back too after Incevek. Thanks, Brian

 I said, "Mmm salad" in my head when I saw this post. smile

After reading some of the other posts, does drinking a ton of H2O help with the ghastly rash? I drink approx 90-120 oz/day. I am praying that my rash will not prevent me from finishing treatment (just started week 10 today). That is a 180 degree turn-around from last week when I wanted to quit. I have rash spots on my face as well as other parts of my body. Upper back, chest and outside elbows itch the worst! I try to ignore the itching and am partially successful. This dragon is a mean sucker! It pulls out all of the stops, doesn't it?

 

Water helps with all the side effects but, don't over hydrate.

 my doc told m to half my body weight and that;s how much water i needed to drink.



__________________

geno 1a started peg interferon/ribavirin/incivek 12.07.12.  vl 7.5 copies (32 million) at start. 2.4 (251) as of 01.07.12 vl went up to 5.5 as of 03.05.13. treatment stopped.
gatekeep


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zuzusfam wrote:

gatekeep wrote:
marktrux wrote:

 

Yes it gets much better. A bunch of the side fx, including the buttburn go away. I've still got some rash left but its very managble and tolerable, i guess its some leftover riba-rash, but its nothing like the incivek rash. Everything gets much better once the incivek ends. Plus you can loose the highfat eating schedule and thats sweet. Theres nothing like being able to set down and just eat a salad.

 

Mmm salad. I'm going to definitely get more active and loose this ridiculous weight I put on. I hope to get more energy back too after Incevek. Thanks, Brian

 I said, "Mmm salad" in my head when I saw this post. smile

After reading some of the other posts, does drinking a ton of H2O help with the ghastly rash? I drink approx 90-120 oz/day. I am praying that my rash will not prevent me from finishing treatment (just started week 10 today). That is a 180 degree turn-around from last week when I wanted to quit. I have rash spots on my face as well as other parts of my body. Upper back, chest and outside elbows itch the worst! I try to ignore the itching and am partially successful. This dragon is a mean sucker! It pulls out all of the stops, doesn't it?

Water helps with all the side effects but, don't over hydrate.

__________________

25 yrs HepC. type 1a geno. 6mill viral load,3.5 out of a 4 liver biop.started Sept.19, 2012,Tx.Rib.,Incivek, Peg,4wk. Vl 61,undetected @12 wks,undetec.Wk 24
zuzusfam


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gatekeep wrote:
marktrux wrote:

 

Yes it gets much better. A bunch of the side fx, including the buttburn go away. I've still got some rash left but its very managble and tolerable, i guess its some leftover riba-rash, but its nothing like the incivek rash. Everything gets much better once the incivek ends. Plus you can loose the highfat eating schedule and thats sweet. Theres nothing like being able to set down and just eat a salad.

 

Mmm salad. I'm going to definitely get more active and loose this ridiculous weight I put on. I hope to get more energy back too after Incevek. Thanks, Brian

 I said, "Mmm salad" in my head when I saw this post. smile

After reading some of the other posts, does drinking a ton of H2O help with the ghastly rash? I drink approx 90-120 oz/day. I am praying that my rash will not prevent me from finishing treatment (just started week 10 today). That is a 180 degree turn-around from last week when I wanted to quit. I have rash spots on my face as well as other parts of my body. Upper back, chest and outside elbows itch the worst! I try to ignore the itching and am partially successful. This dragon is a mean sucker! It pulls out all of the stops, doesn't it?



__________________

53 y.o. female, diagnosed in 1998. Started tx Oct 8th 2012. Genotype 1a. VL 600,000 before treatment; VL 98 11/12; UND 12/12. Reduced interferon to 135mcg 12/12. 12/17/12 stopped incivek due to rash. 12/20/12 Stopped all meds due to sx
Bouba


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I put up 4-5 kilos in the first 4 weeks of Incivek. Reckon mixing fat with carbos was the worst thing to do. Trying to alternate more now in favor of cream, cheese etc instead of ice-cream and fatty spreads. Not enough energy to excersize and burn it. Though believe that drinking a lot  - my average about 3 litres a day - retains some liquid in your system that adds up another kilo or so. Cheers!

 



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58 yo male, HCV since 1981. Gen 1B (IL28B, CT). Diagnosed 1999,  VL before tx 100'000. Biopsy A2, F3 fibrosis. Naive, SOT (with Incivek) Oct 26, 2012. UND @ week 4, 12, 18, 24, UND 12 and 24 weeks post-RX
krowdog


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gatekeep wrote:

 

Mmm salad. I'm going to definitely get more active and loose this ridiculous weight I put on. I hope to get more energy back too after Incevek. Thanks, Brian

 Hey Gate, a little off topic, but about the weight...

   I started Tx at 170 lbs, and after the Incivek, was 189 lbs.  Having to eat lots of fat, and then having little oxygen (RBC's and hemo) to burn it with pretty much sucks.  I didn't gain any more when I stopped the Icivek, but didn't start losing any until the first weeks after Tx.

   I'm now holding at 160 lbs, and feel great.  I think feeling so sickly for so long really gave me the incentive to go out and live.  The avatar is my first roped climb, done this weekend.

  Good luck, and hang in there.  This is a tough thing we do, but I believe it can change us for the better.

  Best wishes,

Brad

 



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(Geno 1a, Incivek Triple Tx, 6 month post TX - 9/20/2012 = SVR!!!)
JoAnneh


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I would have gone insane without
Triamcinolone Acetonide cream!
The RIBA has brought rash back but not
As torturing as when on Invicek.
Yet he has made me aware to moisturizer
And use my cream to stop it
From spreading.
I mixed almond and coconut oil as lotion today.
Skin so dry. I now wake up 2-3 times a night to
Go to bathroom and drink about 16 ozs water throughout
The night. Sleeping like a baby these days
And learning to accept the lounging lifestyle.
As of December I can say just 4 more months to go!
Yay! Thankful I have been able to endure tx.
Prayers are powerful after all!
Hang in my Hep C friends!
JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Mary Jane


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gatekeep wrote:
marktrux wrote:

 

Yes it gets much better. A bunch of the side fx, including the buttburn go away. I've still got some rash left but its very managble and tolerable, i guess its some leftover riba-rash, but its nothing like the incivek rash. Everything gets much better once the incivek ends. Plus you can loose the highfat eating schedule and thats sweet. Theres nothing like being able to set down and just eat a salad.

 

Mmm salad. I'm going to definitely get more active and loose this ridiculous weight I put on. I hope to get more energy back too after Incevek. Thanks, Brian

 Hang in there gatekeeper.. ya gotta do what ya gotta do.. week #11 for me now,I am getting some of the rash, but not like how you and the others describe.. and of course some other stuff.. I drink alot an use a ton of lotion... xanex is my bud. I hope it gets better for ya.. peace and love MJ



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
gatekeep


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marktrux wrote:

Yes it gets much better. A bunch of the side fx, including the buttburn go away. I've still got some rash left but its very managble and tolerable, i guess its some leftover riba-rash, but its nothing like the incivek rash. Everything gets much better once the incivek ends. Plus you can loose the highfat eating schedule and thats sweet. Theres nothing like being able to set down and just eat a salad.

Mmm salad. I'm going to definitely get more active and loose this ridiculous weight I put on. I hope to get more energy back too after Incevek. Thanks, Brian

__________________

25 yrs HepC. type 1a geno. 6mill viral load,3.5 out of a 4 liver biop.started Sept.19, 2012,Tx.Rib.,Incivek, Peg,4wk. Vl 61,undetected @12 wks,undetec.Wk 24
gatekeep


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Hi I soak in a Luke warm shower bath with Euciderm calming cleanser. I then use Aveeno mild super moisturizer. After I dry I use Rx 2.5 hydrocortisone on the hot spots. In the day I take Rx Hydroxzine 10 mg. at night I take 25mg. Hydroxzine and Xanax so not to loose my mind. Water is a all day thing. I'm going to moisturize more. Last night was me and a ruler to itch my back it felt so good. The rash is thousands of raise red dots filled with water. If the dots all come together I'm done with incivek.per MD.

-- Edited by gatekeep on Sunday 25th of November 2012 06:16:33 PM

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25 yrs HepC. type 1a geno. 6mill viral load,3.5 out of a 4 liver biop.started Sept.19, 2012,Tx.Rib.,Incivek, Peg,4wk. Vl 61,undetected @12 wks,undetec.Wk 24
iggle


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Geez that rash sounds bad. Try your best to make it through these last 2 weeks. Feel better.



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JoAnneh


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Brain, Have u had a chance to try
Triamcinolone. Drink loads of water
And then some more!
We know you are doing all you can.
Is the rash visible? Try Benadryl!
My doctor told me to get my rash under control
Immediately but it has a mind of its own.
Hope u can tough it out. Let us know
JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
marktrux


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Yes it gets much better. A bunch of the side fx, including the buttburn go away. I've still got some rash left but its very managble and tolerable, i guess its some leftover riba-rash, but its nothing like the incivek rash. Everything gets much better once the incivek ends. Plus you can loose the highfat eating schedule and thats sweet. Theres nothing like being able to set down and just eat a salad.



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KCCO

 

 
gatekeep


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Update,the rash has held firm on about 3/4 of my body. The Hydoxzine 25 mg. has held it to a dried out sunburn type feeling. I'm trying to do everything I can to go the distance. MD called yesterday and informed me they would have to take me off of incivek and remain on Rib.& Peg. If the rash progresses any further. I can't wait to loose the incivek part. From what I've been hearing here is that it gets better after it? Thanks,Brian

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25 yrs HepC. type 1a geno. 6mill viral load,3.5 out of a 4 liver biop.started Sept.19, 2012,Tx.Rib.,Incivek, Peg,4wk. Vl 61,undetected @12 wks,undetec.Wk 24
marktrux


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i really hope you can make it the full 12 weeks but i understand how nasty the Incivek rash can be. I had it too, but i dont think mine was as bad as yours sounds, and it drove me absolutly crazy. The longer you can make it the better the chances of SVR are, but my Dr. told me he had a few patients that quit Incivek before week 8 and were still able to acheive SVR, so there's still hope if you are forced to stop. I'm sure you've tried eveything under the sun so I dont have any advice to offer you, but I do want to tell you "GOOD LUCK!" Incivek can be a life saver and we all deserve it.



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KCCO

 

 
news


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Hey, Brian. The doctor will decide what you should do. But a few folks who had to quit Incivek just carried on with peg/riba for a little longer than normal. They seem to be doing OK. Right now, don't worry about that. Just do everything in your power to get that rash under control. Hydrate all day. Keep medicine on the rash always. Avoid hot water in baths and showers. We're pulling for ya'. Alan

__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Bloomster


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Wow, I'm feeling for those of you on Incivek with this horrible rash.  I hope this improves or at least becomes more bearable for you.  Caroline



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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
Biggyb


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Maybe they will switch up to the Victrelis. My main problem has been with the Riba.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
gatekeep


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gatekeep wrote:

Just came back from MD. I was was told if my rash continues I will be taken off the incivek . The rash now covers 3/4 of my body. I going to try to stay on it until the end. I only have 3 wks of it left. But as we all know it feels like a life time. MD also uped my dose of Hydroxyzine to.25 mg three times a day.

-- Edited by gatekeep on Tuesday 20th of November 2012 12:03:35 AM

So what happens after I can't tolerate the incivek? Do they just keep you on Rib. And interferon for the next 28 wks.?

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25 yrs HepC. type 1a geno. 6mill viral load,3.5 out of a 4 liver biop.started Sept.19, 2012,Tx.Rib.,Incivek, Peg,4wk. Vl 61,undetected @12 wks,undetec.Wk 24
JoAnneh


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Also, my rash and itch improved around week 10 and than
Tortured me for a week when I had finished Invicek.
It didn't itch only burned like fire!
This happen to others for about a week after stopping.
Hoping your improves soon

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
JoAnneh


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Gatekeep,
Have you tried Triamcinolone Acetonide?
It works! If you haven't tried it, call doc for it ASAP.
After you apply it leave it on 30 minutes than
Soak dry areas in Vaseline and do not scratch.
It spreads when itched. This helped my rash.
Also, I even tried apple cider bath I read others had
Tried. I thought I was going to come
Out of my skin! Hope you get relief from these suggestions?
Good luck! Oh, I also took a cold damp cloth and put on rash where it
Was hot to try and calm the pain.
It's a wicked rash! I feel your pain,
JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Biggyb


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I feel for ya, mine was so bad it was unbelievable also. Did all that stuff you have done.

Finally the doc reduced my Ribavirin from 1200 to 600 a day..It's practically gone now, also he prescribed me Triamcinolone which is great stuff.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
gatekeep


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Add the rash to my list
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Thanks for the light at the end of this long dark tunnel

-- Edited by gatekeep on Tuesday 20th of November 2012 12:07:21 AM

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25 yrs HepC. type 1a geno. 6mill viral load,3.5 out of a 4 liver biop.started Sept.19, 2012,Tx.Rib.,Incivek, Peg,4wk. Vl 61,undetected @12 wks,undetec.Wk 24
gatekeep


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And the rash to my list
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Just came back from MD. I was was told if my rash continues I will be taken off the incivek . The rash now covers 3/4 of my body. I going to try to stay on it until the end. I only have 3 wks of it left. But as we all know it feels like a life time. MD also uped my dose of Hydroxyzine to.25 mg three times a day.

-- Edited by gatekeep on Tuesday 20th of November 2012 12:03:35 AM

__________________

25 yrs HepC. type 1a geno. 6mill viral load,3.5 out of a 4 liver biop.started Sept.19, 2012,Tx.Rib.,Incivek, Peg,4wk. Vl 61,undetected @12 wks,undetec.Wk 24
hrsetrdr


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Gatekeep,   I feel your pain(itch rather), when I was on tx I used Benadryl 50mg, which helped the itch & the sleep.   It's just been since post tx that I've used Xanax, helps with "quality-of-life".

Water, lots of water makes a difference.   Shoot for a gallon-a-day, but try to at least drink 3 liters/3quarts or more(the better).

For rash from being in the Sun I used betamethasone dipropionate

For some ugly, itchy psoriasis-looking spots(which I still have) I use Triamcinolone acetonide.

-just a reminder:   every time you scratch...the itch will come back exponentially.   gen068.gif

 

Tim



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
12Step Guy


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I've had a little luck with Desonide Ointment 0.05%, but I think it is only available by prescription. Mine only itches briefly, then turns into a sm hard bump with a dry patch on it. Looks like psoriasis but I don't think it is.



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Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
gatekeep


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I've just entered 8 th week of tx. I now officially have the rash, Its on my arms, legs back of neck, I've takin oat meal baths,soaked myself with Aveeno,script of 2.5 hydrocortisone and a script of Hydroxyzine HCL 10 mg. I've been through the ringer with treatment. I have resorted to Xanax at night. The itch at times is unbelievable .

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25 yrs HepC. type 1a geno. 6mill viral load,3.5 out of a 4 liver biop.started Sept.19, 2012,Tx.Rib.,Incivek, Peg,4wk. Vl 61,undetected @12 wks,undetec.Wk 24
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