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Post Info TOPIC: Started Epclusa 1 May 2018


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RE: Started Epclusa 1 May 2018
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You are right, and you are answering your own questions! smile And Tig is right too ... you commented on what Tig said ...  " Hope it is just  as Tig said these results fluctuate. " 

The key items (that should reassure you that your labs are normal, quell your fear of failure and indicate your cure) - are within all of these comments:

... your ALT and AST's have been within normal limits, twice now.

... "my provider says they are fine I guess they are".

... "was very nice and said All looks good".

Some people having lower numbers than you has no bearing on your cure whatsoever, it is not a comparison that counts - your ALT and AST are within normal limits period, had you had the luxury of being abe to draw your bloods frequently, before, during and after your cure you would have seen fluctuations I am sure, after cure you might get some generally even lower LFT's (but really, who cares) as long as they are within normal limits. Within normal limits is good enough for the kinda gals I go with! Within normal limits is, well ... NORMAL! Ya kint ask fer much more than that! When we are operating within the realm of normal limits, a rise or lowering of a few points either way are meaningless, as long as they are within normal limits, that is what counts.

There are some here on this site who were lucky to have frequent bloods done and could follow the ups and downs in thier ALTs. Some cured people have been lucky enough to keep having frequent follow-up bloods done and some have been lucky enough to see that their LFT's have continued to decrease some! Everybody is dif. What is important is that you are GLORIOUSLY within normal limits.

I would be happily wallowing in pride over your now-lovely normal ALT/AST's and celebrating them, over your old LFT'S - and that's fer sure. wink biggrin C.

I enjoyed hearing your locums comments, nice that he points out what he considers are the important bloods to you, and, his comments on how DDA's are working out there in his world/our world!

Have you noticed anything dif now, now that you been off epclusa for a little while? Are you still having the exact same sleep/eat patterns, bodily maladies as always. Other than an initial relief of finishing my vosevi, and noticing some of the on-treatment feelings dissipating quite quickly after finishing the course, it took me quite some time to start detecting some changes for the good, especially in fog/fatigue/strength - slowly things got better, sometimes weird unexpected improvements occured, I am still improving. I thank Gilead and my doc every day. In little ways or large ways I hope you start to soon reap the benefits of your cure - it is already obvious (according to your ALTs) that (since at least week four) your liver has finally been relieved of the duress it has been operating under for quite some time. More good things to follow. 

Later, after you are further along, I would still like to ask you about that very unsatisfactory event of those doc assessing your badly fixed hand - and how all THAT went down with those guys! That's not right - maybe someday, you should re-group, bump heads with newer/kinder, more reasonable heads and be offered the choice of having that hand fixed. That whole story they told you rubs me the wrong way - thats not right - you deserve to have things fixed if you think it will help you, and if the surgery would help you! 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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Those are all excellent numbers, STL! The Lymphocytes are part of the white blood cell group. Overall, as is stated, your WBC’s are completely normal. So having the lymphocytes elevated only means, as your doctor said, they’re there to combat anything that might try and spoil your party. Your body is having none of that! It’s all good...



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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I don't miss those little pills a bit.  Time for new habits.  Think of a habit  you've been wanting to take up and set the alarm for that! 

I understand though.  Getting diagnosed, approved, and treated is a long and indelible process. I thought it would never end.

 

It does



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Thanks folks. Does seem a little concerning that my numbers went up rather than down 8 weeks later, but since my provider says they are fine I guess they are. I see a lot of people here posting much lower numbers. Hope it is just  as Tig said these results fluctuate.

Yes Canuck .......all my results were very normal cepting the same three as last time. When I have a particularly odd one it is only a one of....it doesn't usually resurface [touch wood}

RDW 11.9 Low (May 11.4) [range 12-15]

Mean Platelet Volume 8.8 Low (May 9.3) [range 9.5-13]

Lymphocytes 4.2 High (May 4.39) [range 1.5-3.5]

I saw a locum yesterday and he said he wouldnt even look at those as by bloods are fine ....he circled the ones at the top of the sheet and said these are the ones I take notice of and they are all good.

Haemoglobin 123 [115-155]

White Cell Count 7.58 [4-11]

Platelet Count 257 [150-450]

He said the Lymphocytes fight infection and disease and having a few extra was good in my case LOL

He was very nice and said All looks good. He has heard only good things re people being cured very quickly and easily with the new drugs, and how amazing they are.

 

 



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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Nice STL. Boringly normal ALTs and AST's, twice no less! The second repeat round of ALT/AST at your EOT only re-inforces the momentus importance of your first "foregone conclusion" of what your 4 week crash meant, you have hit bottom (in the nicest and best possible ways), that hitchhiking varmit died long ago, poof, and you can mark your ALT by that! (Epclusa police ... "Nothing to see here folks, all cleaned up long ago, move along! everybody, straight to EOT+12 week SVR")! heehee wink C.

PS - did they do any other bloods at all, like iron or ferritin levels, you said once you had a high iron level show up didn't you - maybe they will check your ferritin level, and/or maybe re-check just some of your other chemistries again. How is the insomnia dept BTW?, you haven't mentioned it in a while. 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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Excellent numbers STL! They will fluctuate as things normalize and you adjust back to yourself again. As long as they don’t jump off the chart and continue to stay a lovely shade of normal, you have nuttin’ to worry about... 

October will be here before you know it!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Not bad at all! Best wishes for great news in Oct!



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1, VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Got the printout of my EOT Bloods. ALT 23 AST 30....... MMM I note up a bit from last time. After 4 weeks they were 16 and 23. They tell me that's fine so guess I shouldn't be concerned......Here's hoping Oct will bring good news!



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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Thanks Canuck, you have become a dear friend on this journey I've travelled. Its been a bit strange this week without my magic beans. Different, as you say my life had been so focused on taking them. I have missed them being a part of my life. Now I sit and wait out the next 12 weeks to see if the magic was mine. I feel good. Spoke to my nurse yesterday who says my bloods were all good, much the same as last time. I will go to my GP next week and see if I can get a copy/more information.

Off to the big smoke dreckly' Time for a night of fun and laughter. Probs stay a few days....till they get sick of me, I get sick of them. If the pup doesn't be good it mightn't be too many nights. shh.gif

 



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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Hey STL,

You said ... The alarm wont be ringing...". EOT is a weird time/milestone, us, so geared up, getting psyched up and ready for treatment, slogging through/complying with treatment and then .... nothing. We finally kinda get used to the routine, the concepts that were formally new to us, believe and accept the fact that we ARE indeed getting cured and will now be bettter, when, all of a sudden the pills run out - now what! The pills became (for me anyway) a little savior I swallowed each day and was dependant on for great feelings of security and hope, when they were gone there was this weird little emptyness. At the same time I was as gleeful and excited as a child marvelling at the sound of those last few pills rattling around in my bottle, getting near to the end, then there were only 2, then one, until there were none. It was a relief just in itself to NOT have to take them, but I had fleeting thoughts of missing their security and company as well, in a way. I think for most folk having hepc undermines our basic security, we are at a distinct disadvanage to say the least, hepc is NOT a confidence builder disease, when they say it is a systemic disease, boy they mean it - it affects everypart of us, mind and body. The docs, our freinds here and supports along the way of our journey, help us get through it all, but the piils come to represent the epitomy of the very best help we have ever recieved. Thank you science and Gilead. No wonder I felt funny with no more pills left. I had called them my biggest-bestest-strongest-bro (or buddy) EV-ER in a bottle, my army, saviour. It's a journey alright. Keep on doing what you are doing, walking, treating yourslef good, restings as you need it. Revel in the good work you have just done. I loved your little symbol when you said aaaah, what shall I do tomorrow!  relax.gif   C. biggrin



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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 Thanks Iris, I'm not going anyplace soon.....I will certainly update my news and of course I shall be hanging about keeping an eye on how all you "Works in Progress" peeps are doing.
Iris Dragonfly wrote:
they grew you some strong stalk.  Iris

 Love it Iris heart.gif



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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Congratulations See the Light!!! good news biggrin indeed, What Will you do? The nasty little worry in the back of the mind can at last take it's leave. I'm really glad for you. I will be nice to hear how you feel over time, do check in and let us know eh?

Many blessings and bu-bye beans! they grew you some strong stalk.  Iris



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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naďve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)



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LOL You both made me laugh.....Its nearly 7.30.....The alarm wont be ringing with my silly little message set that made me smile each morning when I had to turn it off.....

Even had to take a pic of it for the memory before deletion....

Day one of the rest of my life 7.29 AM....MMM what shall I do relax.gif



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30

Tig


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WOW! Look who just reached EOTville! Time to disembark the Epclusa Train and get onboard the train to SVR. All aboarddddd....

Congrats

 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Image result for woohoo gif



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.



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CONGRATS STL!!



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1, VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 



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Well that's Bean Number 84 down the hatch. My dear friend Epclusa Bottle number three is empty. The Pillbox is no longer required. 7.30AM "Magic Bean Call" alarm removed from the phone. EOT Bloods have been drawn. Now I sit back relax as I move closer and closer to the light.

EOT is Here....EOT is Here.....EOT is Here



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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Nite Nite......Sleep tight Canuck

 

11 1/2 hours but who's counting. ROFL

 

Yes 5 I will go down for the blood draw in the morning......will have some have some insight into my liver health by the end of the week. Then ill join you on the big 3 month wait to see if the treatment was successful nod.gif



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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I hardly ever pay attention to the clock, I just know I've been (oops) up too late, for sure, when I start to see sunrise! I never know what time it is on your side of the pond (or the correct day, for that matter), nor do i get it right even over here! Don't wear a watch and generally just dunt care to, I'm usually late for eveything and I prefer to make my buddy wear all the watches and be the minder - so easy for me. Stress boy, personality A type so he's constantly watching the clock anyway, what for I dunno!

So I waaaaaas gunna say "one more sleep" eh? But that is problematic, me with no timesense and our time warp. Suffice to say, it surely IS going to be mighty fine to see you take that one last lovely bean, in what ... 12 hours and 25 mins (but who's counting). 

Oh dear, I see 5, you are incorrigible, bad influenece on me girl, goading me on to stay up another 3 hours!

I HAVE to go to bed - got to get up early tomorrow for some stupid home plumbing disaster we are going to try to take care, on a Sunday no less, right - will be brushing my teeth with cold water from a bottle in the AM, no more tea for me tonight, it will only make me pee and with no water for flushing the toilet ...

I hope you are feeling a little better 5 and that you have an absolutely grand EOT celebration tomorrow STL even if the venue has to be in a lab for a while. You can do a EOT happy dance anywhere, and who cares who's looking. wink C.

https://www.youtube.com/watch?v=4wt824D1Bqg

   



-- Edited by Canuck on Sunday 22nd of July 2018 06:07:23 AM

__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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are you getting EOT labwork done this week? oh yea, the joy of not having to focus on "is it time for my pill?" .... it was like the baby that needed to be feed and bathed and changed.



-- Edited by 5-1-18 on Sunday 22nd of July 2018 05:47:38 AM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.



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Thanks 5 its yes hard to believe that in 12 1/2 hours my last magic bean will be down the hatch, and within a couple of hours I will have had my EOT blood test. I will be so weird to not have to focus on 7.30 am any more. party.gifsun.gif



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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SeeTheLight wrote:

clap.gifYes Iris it sure is. I have a new pic ready for Monday when I swallow my last lovely  little Magic Bean toolmao.gif


 , i'm so excited for your upcoming EOT



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.



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clap.gifYes Iris it sure is. I have a new pic ready for Monday when I swallow my last lovely  little Magic Bean toolmao.gif



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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Wooo Hooo!! the light at the end of the tunnel must be getting brighter

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in the silence of the woods, you will not be alone- Chief Seattle

59 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naďve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)



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Yes it certainly gets me that so many of us seem to suffer with the same type of thing, and it is only us realising to late that it connects, to this blasted dragon. My foot thing has been so bad at times I could not even bear the Doc, Physio or Ciro to touch them without screaming and yet they see nothing wrong. As Observer said, even a sheet at times can be excruciating. Who would believe that a virus running rampant in out blood and damaging our liver could have this effect on our feet/nerves. The things this darn virus does besides killing our liver. angered.gif I wonder in this day and age if the Medical Profession will realise it is not in our head - the pain we suffer is real and extreme. We are not bunging it on for drugs. Certainly not one of my problems that I would have ever put down to the Hep, and clearly the medical profession do not associate it either.

5 more beans to go!



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30

Tig


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Hey Ya’ll,  wink

If I didn’t know we were all getting better and just read our histories, I’d be the first to wonder how we made it this far! Good grief, we’ve all had quite a journey, haven’t we? It is encouraging to see that we’re not alone with so many of these issues. Even more so when we read of the improvements. The pizzer is it took so many years to figure it out... 

I’ve got the added joy of a serious spinal injury and it has taken front seat to many of the lingering hepatic manifestions related to long term HCV. Arthritis and nerve damage seems to be getting worse, but as STL mentioned, you learn to live with it. Doctors all think we’re seeking pain meds, so the standard answer is physical therapy, OTC anti inflammatory drugs and repeat visits that accomplish absolutely nothing. Oh well, they say “bite the bullet”, so I‘m looking for a flavored bullet to bite on. That seems to be working as well as anything.

6 Beans, STL? Wow! You’ll be done and that Dragon will be a thing of the past, in no time. I must agree, Year of the Dragon, is a good sign. 

FA66D93F-9DC1-4DE9-8681-4A157D3CF325.jpeg 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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the tops of my feet hurt too :( . so do the bottoms and sides a lot too... i too am hoping a lot of this stuff eases off when we recover as time goes by. i use a topical gel with ibuprophen in it that i order from the UK. i only use a little but it seems to help.... have you tried various aspirin lotions and other potions?

and neck pain- and i hear ya about the doctors; it is almost like they are just shooting darts at a dart board.

i'm so thankful the magic beans came our way

i get to go to the dentist and eye doctor on the 25th...... oh lucky mebiggrin

maybe even sinus doctor tomorrow if my ears are still all messed up. , i always wonder if they can really see anything by shining the light up my nose and in my ears.hahaha

have a good sleep stl, and a good magic bean morning as the count down continues 5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.



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Wow Observer and Canuck,

It just amazes me how many people who's stories I have read who suffer similar things to me. All these years I just thought I was a weirdo. I have had the medical profession look on me as either crazy or a druggie trying to get my hands on some good meds. I think they realised pretty quick I was not chasing drugs when after they initially insisted on prescribing stronger and stronger drugs patches etc and they were doing absolutely nothing for my pain so I said no thanks and left them to it and and learnt to ignore the pain. My cross to bar and all that. Pain is only a state of mind. Guess I just learnt to ignore it. The downside is I have been known to ignore the pain of broken bones also which has caused another set of problems as in things like bones knitting wrong...ohoh. I just gave up on doctors in general, since there was never anything real wrong with me. I didn't want any antidepressants etc. All the years of funny blood results yet noone ever thought I may have this virus. It was only discovered when I asked to be checked after a call from my old friend telling me she had learned she was positive and felt given our hep story of 20 years previously I should be checked. then another 16/18 years of knowing the truth yet noone cared. You have it but it wont kill you, easy on the booze and protect others from your blood rarara. It took a locum to suggest treatment last year when he saw my odd blood results and I told him I had Hep C. Guess it is never anywhere visible in our notes since I have always had to point it out. I tell you what when I got referred for treatment last year and got the standard - you are on a waiting list, dont call us, we will call you thing I really never thought it would happen. My most recent journeys into the system had not been very fruitful in treatment to get wrongly aligned bones fixed. I even had a lovely Indian Registrar who was going to do a bone graft go off to speak with the head honcho and came back saying ...he feels because of your age and you no longer work it will be best to leave it - my interpretation - you are too old and useless for us to worry about - left me feeling this hep referral would go the same way...My name would never come up so when it did I couldn't believe it. Then everything went so quickly and I was actually going to get treatment. Only then did I really start reading up on the treatment and others experiences etc on and after treatment here and realised I was not alone. I was so pleased to have found you lot. So many others have suffered the same things as me. I was just gobsmacked when I found this forum and starting reading your stories. I was notalone - I was not  just a weirdo.

Now Observer as to the magnesium. I did try that some years ago. I think initially I bought the wrong one, then I bought three or four lots of what I thought was a good magnesium. Cant actually remember which one glycinte I don't think sounds like it - maybe chelate or similar. I know I studied up on it at the time. Its getting late here, Ill have to think about it in the morning but I didn't find any benefit from it and it wasn't cheap so I stopped buying it. I kept up the calcium and vit D for the osteoporosis and mega b for the nerve problem in my hand the hand surgeon had recommended but left it at that. I have been really hoping the feet thing would improve with treatment but seeing yours is still pretty bad and mine particularly in my left foot is getting worse the last few weeks, maybe my cure wont help, the damage is already done. Who could have known that this virus I was led to believe wouldnt kill me, was probably causing so many other issues in my body which never ever entered my mind were likely connected. Having these nerve things so many years guess I can't dare to hope my magic beans will really bring about that much magic.

Don't think I will be seeing the nurse either. She will ring me re bloods. I already have the paperwork. Had it since my treatment began. Next weeks bloods are CBE and MBA20.....SVR12 are for HCV, RNA PCR (qualitative) Anything else will be back with my GP for future normal bloods. As I said apart from the LFT's none of the other odd results have been ongoing, just something different each time, so yes I will be curious to see any future abnormalities for sure.

Clearly we have different names for drugs here. I read you talking about different meds, I have no idea what they are, so don't comment. You always mention Tylenol for one...Never heard of it - no idea, but clearly it was common. thought it is clearly common mild pain med. Here we have as our common over the counter headache pill type things are Panadol/Panamax. Thought in my mind it must be something like that. The packet only lists 500 m paracetamol , where when I looked up tylenol it lists a different ingredient but following on told me that this ingredient(Too late to google again but you know what I mean)  is paracetamol so bingo...penny drops....finally got that one sorted... laughing.gif

I do have confidence that I will be cured come SVR12. I was even born in the year of the dragon....lol - hope its a good omen. I look forward to getting those liver function numbers from next weeks test and as my nurse has said many times if those numbers look good she is confident a cure will be mine, but we can't be sure until October. I certainly will be asking if I will be having any further fibroscans in the future. We shall see.



__________________

65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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Ah, I see, just the clinic nurse handles you versus the doc having to handle you - works.

That's right, (I forgot) you DID previously clarify that (that of course) they will be giving you all the other routine bloods (except VL) at EOT. I hope that they repeat the tests (as before) which included the CBC and MBA20. I would ask for a ferritin (as they had mentioned at one time that they had found a high serum iron?). Good she will arrange U/S following for you, you could also ask for repeat ongoing periodic fibroscans. Any of your labs, that have ever been out of wack in the past, should be done again at some point, just to prove that they are indeed still funny or remain normal. 

When you do go back to see the nurse, and to get your labs done at EOT, do list all your bodily complaints to her that have been chronic, ongoing (just so that they are foremost in her mind), give her a written list even, hopefully she keeps good notes and will keep inquiring of you, as you progress, as to what SHE believes is of interest to follow - you can also impress apon her which of your items of distress, dysfunction YOU find most important and wish to be followed, in the hope that somehow/someday we are going to get this stuff to disappear. Just make sure she knows where you are at (as far as complaints).

I had different feet things going on than you. In the recent years before treatment I got more and more pedal edema, not appeased with any control measure i could create, seemingly it would come, go, reappear, or just stay ... all of a mind of it's own! with no real causative association with diet, salt, water intake, exercise, elevating feet or having them dependant, it was a mystery to me (of course not knowing I had hep c!). I would get foot cramps too, out of a dead sleep in the middle of the night was bad enough, but those that happened during the middle of exercise class, while in the dentists chair, or while driving on the freeway were very inconvenient! I'm not much of any kind of swimmer, but in the pool I had to have the edge of the pool always safely within grasp or I could embarrassingly drown with my leg cramps! Never in a million years did I ever think anything like my foot and leg cramps/pedal edema was being caused by anything more than ... an unlucky out of shape mysteriously aging unhealthy bod, old kidneys, maybe a little dehydration, electrolyte imbalance, just needed a tad of magnesium etc., blah, blah, blah. It has stopped!, no more pedal edema, only occasion foot cramps, rarely leg cramps - much MUCH better than I used to be, and I did NOTHING dif (except for that my hepc was found and cured!) I am very pleased with this change for the good since my cure. The edema stopped fairly quickly after cure, and I am still, just now, noticing how much less frequent the cramping is now, as compared to the past ... biggrin. I express this example hoping you too will see changes like these. I lost a long time pain too, it simply just up and vanished!, and some other mystery items disappeared too, but that's another story.

Now, with all this talk about being "in the dark" until SVR12. Nonsense - I am of the FIRM belief you were (like almost 100% of us) set up/positioned/destined to be cured from the second that first pill past your lips, and that you WERE already UND at the time your LFT's crashed at week 4! When your LFT's crashed like that at 4 weeks, that is when (or, probably VERY close to when) you went undetected! The rest is just simply sustaining it. It's as rare as hens teeth that people don't get cured nowadays. You are exhibiting the very evidence of an early crashed und at 4 weeks.

I do a lot of reading for fun, scads of studies, i wish I could find the one for you I was re-reading just the other day, but I can't seem to scurry it up again - it was just highlighting what has come to be well-known, with the likes of these new DAA's ... how VERY profoundly, how VERY importantly these early LFT "crashes" ARE - they are VERY significant, VERY telling . I consider you a done deal girl.

You'll get a glimpse of your lovely crashed LFT's, again, at EOT, nice milestones, but that early crashing week 4 one should be cherished. wink C.

 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Omg StL ...

that pain on the top of your feet is probably/ possibly peripheral neuropathy. furious I had it a bit very randomly from the HCV but the Drs always thought I was crazy when I *complained* ....then during treatment it got so bad I couldnt even let the sheets or blankets touch the top of my foot. It comes and goes now but is still pretty bad, its worse on days that my tinnitus is worse and thats nervous system caused too.... Ive heard apparently some people get it from chemo, so it doesnt surprise me that our powerful treatments might just be amplifying the damage that the HCV did to our nervous systems.

 

oh and about the leg cramps/restless legs at night thingy... I suffered with both those for years and years...and now I take magnesium glycinate (not citrate) every night before bed and I do not get them at all anymore, unless I forget for a few nights in a row. 

Hopefully the proper bed was the answer for you, but if they start again I recommend the magnesium 

6 beans yay. Thats exciting 

 



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60y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

2.5years...post tx... successful dragon slayer 



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Hi 5, Lovely to see you. Yes I have been reading but I really haven't had anything of interest to report. Basically things have been going a bit too smoothly. OhOh shh.gif 6 beans left in the beanbag..... shoutbox.gifNext week I will velieve I am moving into the light....Had a great nights sleep last night even.... rofl.gifWhats the world coming to!!!! LOL Most of my things I don't feel are medication issues ....just me issues..... as Marvin said in hitchhikers guide.... LIFE - loathe it or ignore it - you can't possible like it.....

Windy as today, I think the roof is going to blow away......walking in one direction would be great but the other way Whoops.... lmao.gif Typical.....Feel good this morning



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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Hey Canuck,

LOL No no Dr appointment. I don't even know if I see her again. (Prob not if I am cured) That appointment was just to organise some tests to get the treatment prescribed. We have liver health nurses who deal with the ongoing treatment, blood tests, ultrasounds etc. I believe from what she said I will have ongoing ultrasounds for a few years, I think that will be six monthly initially so guess there will be one of those invites come my way perhaps a little before SVR 12. I do have a blood test scheduled for next weeks EOT. But its not VL as I have been told again and again it is irrelevant  as we wont know for sure if I am cured until October. Any results prior to that my be false negative so we dont test. I realise things are different in your part of the world but ehh thats how it is here and I will go with the flow. Thats fine with me. I do get where shes at. It would be worse to think I am cured for three months and then find out I'm not. I will get my LFT results so they should tell the story adequately.

Don't think I can blame all my aches and pains on my magic beans. I live with these things all the time. The only time my foot thing disturbs me at night is when I am overtired and get the restless leg thing where I may have to get up and walk for a while and then hope I fall asleep quickly before it starts again. They used to cramp a lot at night but touch wood haven't had any of that for ages. I changed my bed to a normal bed bout a year ago (from a water bed I had had for 30 years) I was sorry to see it go but being so low and moving it was getting too hard for an old girl to get out in a hurry (perish the thought at mo with all the extra toilet breaks...lol.)lmao.gif  and I actually think as much as I hate to admit it that a normal bed does appear to have improved that. My left foot was very painful on my walk yesterday. I only did 3 K. Its the top of my feet that are the problem and nothing works for the pain. Over the years I have been given stronger and stronger meds but they don't even touch the pain all they do is get me flying so high I no longer care about the pain, so I won't take em. I think most of them think its in my head as they do with fibromialgia - unexplained pain - no swelling etc. With my feet I find as much as they hurt something chronic when i first start a walk but ehh I can walk it off.

As to the excessive phlegm thing thing we will see next week if it goes, normally that is something that only happens when I am getting a cold/flu, though I am a very allergic person.

Thanks for caring smile.gif

 



__________________

65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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woohoo! we are starting the 7 day countdown with STL , i was wondering where you were at on your thread, i do see you around the board posting to others so that was cool.

i feel for you and all the pains, seriously i do know how that goes. i'm so glad you didn't have to go off to daily work during that last month. after 2 months i was done in.

i hope you have a good heating pad for your body; i live by mine.

i think the whole sinus was designed for another creature and added onto us humans at the last minute , cos i know too many ppl [and me] who suffer so much with this model.

i hope you get to take it easy and rest as much as possible on this last week

5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.



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There you are STL! Been wondering how you were. 

Wow, only one week to go, I am glad - I will be so glad to see you finished this work - and it has been work, you deserved a smoother ride, but ... you did it and are doing it VERY well. I always wish there was a magic sleep wand handy around here, if we could fix nothing else, it would be nice if folk could get a few extra winks of sleep when they wished for it. Now snot gets in the way of zzzz's! Too cruel. Ya, please do not let the pup in his well-intentioned ways try to fix your sinus thing for you - eww. 

I was always mostly a cat person growing up, eventually when we got our dog, I had formerly been grossed out to think of slobby dogs licking the leftovers off the same plates as their humans and then it all going into the sink for a quick washup - horrors, I thought - hmph, didn't seem to take me long at all before I was sharing dog saliva, dog kisses, wearing 11 years worth of dog hair. 

I had an allergist tell me I should try an experiment for a month, snorting some steroid in saline wash up my nose into my sinuses and back out again - ho-li crud yuck, i failed miserably at it - the doc then let me try a much more poilte nasal "spray" much closer to my skill level, maybe it helped, maybe it didn't, I don't know, i just kinda gave up on all of the spraying and mucking about. I never had "post-nasal drip" before (as far as I know) and yes, it did bother me at night, and generally I sleep like a rock, man, this would be too much if you are already of the light to non-existant variety of sleeper. Always clearing my throat during day. I do try to gargle with hot, hot salt water when it is bad - normally that does work pretty good for me anyway for things like sore throats.  

Ya, you have your fair share of discomforts alright - hard to say what's up with your bad neck and all this post-nasal drip thing added to your other things that might "normally" plague you - your feet bothering you too - does that keep you awake the most? - I sure do hope these things let up as soon as possible for you after cure. We'll just let this drug crud (sorry Gilead and epclusa- I really DO love you!) get outta your system, clear you out, clean you out and wait for "the good" to start to show, in it's delightful fits and starts. Won't be long now, EOT is a VERY good milestone. wink C. 

PS - I know you said are not getting VL labs until SVR12, but do you get a doctors appointment at the end of treatment? If you do, you should list and tally all the things you have been experiencing, just to see if he is motivated to do some kinds of blood work on you before your SVR12.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Well here I sit with one week to go. Put the last 7 magic beans in the pillbox this morn. Really thankful for the magic beans and the friendship and help received here. Thankful to have managed so well, with few nasty side effects, especially considering I live a pretty isolated life here, the majority of the time, with just my pup for help. She does give lots of love but can't make me a cuppa tea or get my din-din. She does say oh mumma you don't feel good ill kiss it better a tad too much for me....yuk

Still having this mucous thing going on - definitely not a cold so will see if it goes away when I finish treatment. Like Iris my neck has been killing me but I suspect that and most of my other aches and pains are likely Arthritis/fibromialgia/neuropathy type issues rather than my treatment. My feet have been killing me I know that. I think most of them are my age and these other issues. Was hoping some of these issues would improve after treatment. Guess I shall see. I really haven't had much to report. Have a bit of the lingering headache type thing a lot of the time but its only mild. I would say no fatigue at all. I do feel a bit dohey still at times, and can be a tad lazy no-b- bo'd, but actual fatigue I would say I haven't suffered.

All the best to my on-treatment friends and recovering from treatment friends along with my long time cured friends. Its been a joy to know you are here for me. Thank You. worship.gif



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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ohh Canuck, how sweet - we are on par. My town is small, so most things we have to travel for. There is a larger town 40K (25M away) which has most things but for a bit of variety we do need to hit the big smoke. My kids are down there so I go down fairly often. The country here is quite dry. The hills are only now getting a little green tinge to them. Its been getting cold, but not much rain as yet. We had a few days of rain a couple of weeks ago which has just started to tinge the dry ground. Rain is predicted for the next few days so I washed the linen yesterday. Just did a load of dark clothes and have put it out but will keep an eye out. Its windy as so shouldn't take long, if the rain holds off. Nowhere near as cold this morning so water flows freely. I'm pretty lucky I rarely can't get anything out the pipes whereas my friends regularly cant till about 9.30AM. Doesn't usually cause damage, we just have to be patient. We just make sure to fill the kettle and make sure we have a few bottles in store just in case. It always cracked me up when I worked in pubs, when the tourists from Canada and UK would mention how cold it is. I'd always say but you get it a lot colder than we do. They tell me it feels colder here. We don't get snow, just frigid heavy frosts. They tell me its to cold to snow. LOL.

I agree water is an amazing thing. We could not survive without it! Even most of out motor cars can't run without it so its not just living being who rely on it.

I didn't drink much early yesterday and I think I paid the price with pain in both sides most of the day. I'm on it this morn. Just gone nine and I have a litre down and two cuppas.



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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gee i didn't think about pipes bursting

yep, i'd have jugs of water everywhere.

i'm a bit worn out today too, no beans but coming back from all that and plus allergy sinus woes; i've always had those blankstare

it's def a good day to rest



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.



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STL,

I almost live in the bush (sticks, timbuctoo, rural, country)  "out there" and WILL travel - (well, ... it's really just a small town ... so I HAVE to travel actually) when I'm needing something from the big city that is!

Funny the parallels we have STL, I was out of town on an "away" too (U/S). I too left my "pet" behind (as he is a downright liability when his shop til ya drop gene is lacking and I have to seriously restrain my shopping time/quota, mind you ... James IS the better driver!). 

That water freezing thing ... sounds not only inconvenient, but a bit worrisome, depending on the water system you sport where you live. Hope the pipes/well/supply (whatever) is going to be alright. I live in a place, where at the extremes, we can get to 40 above in summer and 40 below in winter, know all about pipes freezing, about it being too hot, and the goldilocks paradox! heehee

Don't run out of water - stock pile if you think you are going to have another freeze, boil it up and drink liberally (hot and cold), try that for your aches and pains AND for that post-nasal drip thing you mentioned - another weirdness we share I guess (I've never really have that before, post-nasal drip) but i have been having that weirdness of late too! Maybe a hot salt water gargles for your post-nasal? Stay warm. Amazing how many things water cures! Hot water,  salt water, cold water, soaks, drinks, teas, gargles, compresses, ice, etc ... it's one of my all-time fav medicines and treatments. 

And speaking of water, we live across the big pond from one another but we step in each other footprints - I'd follow you anywhere, you and your world sound nice. winksmile C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Yes 5 it was a good easy day. Just vegged in front of teli when I got back. Had a good nights sleep. Water consumption is becoming a bit of a problem these cold days, particularly mornings. I had only had a half my big glass earlier when I have to take my magic bomb. Must admit I wasn't keen on getting out of bed this morn. Its now nearly 9 and I have only had 1 and a bit glasses and a cuppa. Feeling a bit achy this morn too...wonder if that's why.



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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awesome STL, it sounds like you made a very fun day of it and that all the alarms went off for the magic bean

i took my easy 20 min. walk today and we made a small dinner. it's so nice to have the tummy back to normal.

then i parked in front of the tv for some mindless movies.

i hope you and doggo get to sleep in on your next morning yawn

5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.



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Yeah 5, wasn't sure if the alarm would sound when ph connected to car stereo since music just pauses briefly when text comes in, so had my eye on the clock on dash just to be sure, but it alarmed me too so alls good. Quick easy trip really. Got straight through xray and down to specialist sector 1/2 hour or so early and amazingly got straight in to see him too. Sometimes you sit for hours. I was out of hospital in a bit over an hour. Fueled up, did a bit of shopping and back here just after one. Never expected that. Some days are diamonds...lol...Feeling bit tired but understandable given the early start and road trip. Guess us country folk are used to doing the miles....lol

Sun is shining and doggo pleased I'm home.

 



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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wow stl, taking the magic bean on the roadtrip.hahaha

i hope it got warmer for you today and that little doggo found the wam bed to sleep while you and magic bean went on the road trip.

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.



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Well 6.15AM and I'm out of bed, (have been for over an hour) its freezing - no water coming out taps, so good job I showered last night. All of me is dressed already - case of have to. Big day - off to town again. Xrays at 8.45 then specialist (Hand not liver) Expecting I will be cleared today, so sure it will be one of those why did I bother type days. God knows why the give someone who lives so far away such an early appointment. Was going to go down yesterday and stay, but decided to just make it a day trip - silly me - already regretting it. Doggo wont be at all happy when she twigs I'm off and shes not. She doesn't think we should be up this early. Thinks mummas crazy. Might leave her ladder up to bed so she can go back to bed if she gets too cold - if she realises Ive left her ladder there....lol. Set the alarm just in case I slept in but woke up way too early anyway. Typical. Will have to take my magic bean with so I can take on road. Bit out of order, just had breaky and cuppa but not time for my pill. Have had a bit of the mucous running down back of throat lately. Heard peeps talk about flu like symptoms as a side so think that is what it is as I'm sure I don't actually have a cold. Only odd thing I've noticed of late. Been making sleep a little difficult last few nights. Have a good day/night everybody. Ive got my road cuppa and a few water bots for trip.



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30

Tig


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SeeTheLight wrote:

You wont be too far ahead then for the SVR. I just checked my paperwork and the note says this test is done no earlier than 15 Oct. Hope you feel a bit better in a few days.  clap.gifooohhh aaahhhhh got it never been able to get those extra emo's you often use as they not clickable....just tried c&p and he's clapping right here......now there will no stopping me... nana.gif

Looks like the sun.gifis thinking of sticking his head out. - 0C - 32F earlier, might even consider dressing my top half soon ready for a walk. Very hard to motivate taking warm dressing gown and jammy top off too early these cold mornings, so I spend first few hours in the land of half dressed. (5 to 9 am now)


If you copy and paste the text version of the emoji you want, they will post to your message. There is a link to “more emoticons” under the emoji list when you post a reply. Here’s the list if you want to print it. I did that so I had a quick reference. 

Emoji List



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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yay for the emoji's ...they do add fun to a post.biggrin

oh yea, i'm a jammy person... got all sorts for all sorts of weather , cute so i can run about the house feeling like i'm already dressed.hahaha

in a case to walk the doggie, pulling a sweatshirt over the jammies would work too..... the undress to dress always gets me too

yea, i'll prob wait till you do your labs to do mine, sounds about the right timing to know.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.



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You wont be too far ahead then for the SVR. I just checked my paperwork and the note says this test is done no earlier than 15 Oct. Hope you feel a bit better in a few days.  clap.gifooohhh aaahhhhh got it never been able to get those extra emo's you often use as they not clickable....just tried c&p and he's clapping right here......now there will no stopping me... nana.gif

Looks like the sun.gifis thinking of sticking his head out. - 0C - 32F earlier, might even consider dressing my top half soon ready for a walk. Very hard to motivate taking warm dressing gown and jammy top off too early these cold mornings, so I spend first few hours in the land of half dressed. (5 to 9 am now)



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30



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i agree stl, reading tig's story and some others def gave me strength for the journey

i test early october rather than now and that works for me

have a wonderful evening , i'll chat with you soon 5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.



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Tig wrote:

2/3rds down, one to go!   smile   Exciting times for sure and youve been doing a marvelous job of handling all things treatment! It has been fun to have this nice group of Warriors from all corners of the planet. It really makes it easier and helps to know exactly how its going for all on the journey. Doing it together makes a positive difference! Im happy for you. 

Keep doing what youre doing and start planning your own EOT party. I know from multiple experiences, the time passes quickly. Youre almost there!  


 Why thank You Tig, number 1 of the new batch down the hatch along with a slice of avocado on toast and a cuppa. 2 glasses of water already down the hatch.

The journey so far really has been pretty easy. I am very fortunate for sure. I read your profile again yesterday more knowledgeable than last time I read it and oh wow. What an amazing man you are, going through such an awful treatment for so long and still able to come through it with so much gratitude and willingness to do it all over again if you had to.



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65/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibroscan 8.6 Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30

Tig


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2/3rd’s down, one to go!   smile   Exciting times for sure and you’ve been doing a marvelous job of handling all things “treatment”! It has been fun to have this nice group of Warriors from all corners of the planet. It really makes it easier and helps to know exactly how it‘s going for all on the journey. Doing it together makes a positive difference! I’m happy for you. 

Keep doing what you’re doing and start planning your own EOT party. I know from multiple experiences, the time passes quickly. You’re almost there!  



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

Hep C FAQ   Lab Ref. Ranges

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how wonderful a time you had. i'm so glad you are doing so well on epclusa.

i like to stay in as much as possible in the winter also; but i can do a long stretch of tv any time of year

i hope you get a few more sunny days as a nice surprise for you.

5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=33,00039.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.

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