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Post Info TOPIC: Started Epclusa 1 May 2018


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RE: Started Epclusa 1 May 2018
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LOL,

Yep they say we talk bit diffrent in "Staya" I recall mentioning to some English Folk one day that i'd been mia cas I was in bed with with a wog. Think I nearly got banned - who would have known it didn't mean Iv'e been layed up with the flu...rofl.

As to the CBE that is what the test series was called but as Canuck says it is the same thing by many different names. Dunno why.

I wasn't concerned bout those results either. I think if everything was within normal range they would be no reason to issue your "come back pills" - when they call and wish to see you about your results hence they get another $37 bucks.

Sorry Yeah it was folate as in folic acid. thought I spelt it wrong when your spell check didnt like it [says she who can't spell] The lead one I was asked if I had been removing lead based paint but I hadnt and next test it was fine again but my Iron was very high....Told her Inhadn't been chewing on Iron droppers either......who nose!



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65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33

Tig


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But don't ya wish the labs would have one universal language eh? FBC,CBC,FBP, CBP, FBE, CBE! All the same ting”

Huh, what? Don't start confusing my already fossilized hippocampus... 

 



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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STL,

We could figure what CBE and MBA were, but I definitely had to look up some of these other things (kippy, arvo, a tired roll) heehee,  I love the terms you use ... tea time, heaps of things, sleepers. smile

But don't ya wish the labs would have one universal language eh? FBC,CBC,FBP, CBP, FBE, CBE! All the same ting!

Thanks for sharing the rest of your labs, they don't seem too far out of wack. Your doc is not too overly-concerned about any particular one, right? Then, you should not be either, they will likely improve all on their own as you cure and after your cure. They and you will be sure to keep following them until they are within normal limits again. I too had lab oddities pre-treatment, some quite marked, and they ALL miraculously normalized post-treatment and over time - I am betting the same will happen for you - and, as well, that's a good sign, maybe, (the slight improvement in sleep of late) maybe it IS just heralding the sleep improvements to come for you, or ... maybe it was just our sleepytime wishes for both you and 5, but regardless, I do believe you WILL see changes for the good in many areas once you are finished being cured up. I did. And the things that did improve first or fastest kind of surprised me (in the nicest ways). 

Back to the old VL importance topic ... it is quite correct, what they say about VL being of less (or little-r) consequence nowadays with the likes of our tried and true new powerful DAA's, whether you or I are packing a 100,000 load or have a 10 million count, it is all the same as far as epclusa is concerned. Any VL "detected" is "infected", period, and treatment is required. As it stands in the books, anyone, including treatment-naive (TN) 3's, when we get epclusa, we will always get 12 weeks, period. There are only a few caveats (as long as they remain in practise) affecting "length of treatment", if we need to "add drugs or time", or if a certain double or triple be best to choose instead. Caveats, such as for Harvoni - if you are TN and black - then it is suggested you get 12 weeks of harvoni, not 8 weeks, and that would be regardless to the VL. Another Harvoni caveat they have been going by is the 6 million VL cut-off (under 6 million 8 weeks can be considered, over 6 million 12 weeks should be considered), but this then DOES require that a pre-treatment VL assessment be done to chose the right regime for you. For all the DAA's there are caveats regarding being treatment experienced, RAV testing, levels of cirrhosis, kidney disease ... but as far as I can recall it is only for harvoni who would require this pre-treatment VL testing, to see if you are over or under the 6 million cut-off.

Um, I am not up on "lead" levels. I didn't even think it was an "usual" thing they would be looking for in screening. Still, it's good to know all blips you own, so you can watch them resolve again through following and re-testing. 

This "foliate" being high that you mention .... I am not sure if perhaps you speak of folate or folic acid, "foliate" I don't know. Maybe if it was high folates, then that screening would have likely been in part to rule in or out certain kinds of anemias, B/iron, did they do "ferritin" levels on you?  Some people (like me) accumulated iron (probably in part because my body was just not being able to funtion properly having HCV), I obviously had been accumulating iron, for maybe quite some time (unbeknownst to me or anyone) pre-treatment - my pre-treatment ferritin was high, (and some of my other related labs were as well) and they ALL resolved to be normal again, post-treatment. My ferritin level and iron saturation improved after my HCV was gone, and just kept improving, until it was normal again.

How is recovery going from your bleach tumble of late? Too old for break dancing, but can do a mean bleach twist? Hope the joints and parts heal up quick from that fall. wink C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 62 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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CBE huh? I looked for something like that and kept coming up blank. Thanks for the explanation, I'll never forget now. If I struggle with something, it seems to store in a part of my brain rarely accessed lately. I think it's called memory, lol! I struggle with that, too!

It's hard to figure out the way some of these docs think. One will freak out over the smallest thing and the next says ”big deal”. I say as long as they’re close and the Big one's are accurate, then we're good. Call it my simplistic approach to blood test results. It seems to work for me though. Some call it ball park figuring....

I do believe you'll experience some increased energy once your liver is on a glide path to normality. When it can't filter the toxins properly, they just stay in us for a longer period of time. It affects everything adversely, especially muscle tissue. Fatigue follows and so does discomfort. I have lingering joint pain and that's chocked up to age and two rounds of Interferon. There are many benefits to SVR and we get some and hopefully all of them. Took time but I firmly believe SVR gives us more time to discover them. Your ”One Day” will happen. Believe! wink



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Yeah Tig,

Thats what I figured, when that didn't even work, I just took the attitude -  Don't worry about it - nothing works .....Just try to grab some sleep when I get a tired roll. Def one thing I pray improves when I am cured, and actually for me its been a good week so who knows.

Thats the same thing CBE "Complete Blood Examination"

One of these days I might have one where all readings are normal. As I have said before - every blood test I have as well as the Liver ones being high there is always something weird shows up as well Calcium, Urea, phosphate, Lead. High Rheumatoid factor but Rheumatologist deems I don't have Rheumatoid Arthritis but I have fibromialgia.  Foliate extremely high "you don't need to take supplements" I don't but I eat a lot of greens. Yet next test no change in eating habits but no mention of Foliate but we are now concerned about lead.....Always something odd shows up. One Day !!!!



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65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33

Tig


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I don't think you've got anything to be concerned about with the very slight abnormal results listed. These things fluctuate often during treatment and yours aren't off by much. I think the one test you listed as CBE to likely be a CBC. I haven't heard of a CBE before. I described the two tests below.

You mentioned being prescribed Temazepam for sleep and it didn't work for you. Wow! That's a benzodiazepine and usually knocks most people out! I took it for awhile and it blasted me! I now have 50mg of Trazadone that works nicely without the next day woozies, when needed. I try and avoid anything if possible. Benadryl OTC works okay, too.

MBA20-Another common analysis is the MBA20 which tests for 20 different chemicals or compounds in your blood including cholesterol, glucose, urea, creatinine, electrolytes and liver function.

CBC-Complete Blood Count which tests several items like red blood cells (RBC), white blood cells (WBC), platelets (PLT) and about a dozen other things as ordered. It primarily tests the blood cell makeup and shows anemia, possible infection, etc.



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Hi 5,

Been good for nearly a week now - worst night was 5 hours so all is looking up. My prob is I am either awake or asleep and I go instantly between. There is no waking up. I open my eyes and its instant wide awake whether its been 10 mins or 5 hours. I do hope my cure will help in this department as well as making my liver happy.

I am certainly doing well feeling pretty normal most of the time now, so thats great. I am blessed.



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65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33



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Hey Canuck,

Guess my sleep is just **** lol. I am a light sleeper, very little deep or rem. Been getting worse for years. Restless legs too. I have to go to sleep when the tired roll hits or I just dont sleep. Many nights I have no sleep at all or maybe a quick 1/2 hour or so. (In saying that I don't feel tired after a quick kippy. Even a little 1/2 hour shut eye in the arvo will prob mean I wont get to sleep till 3 am or so and then only another little shut eye is any at all. Seems to work in  cycles. when I nearly fall asleep tea time or earlier and manage to fight it it may take a few hours to fight it off so come 9 or 10 pm I am wide eyed and bushy tailed and nothing will make me sleep (although I could not keep my eyes open at 6) now I will not get another tired roll till maybe 5 or 6 am when I am thinking of getting up if at all. Tried heaps of natural things years ago to no avail. The doc even gave me some sleepers once Temazapan and they did ab nothing - not even make me a little tired. I'm a weirdo. My friend says 1/4 tab will knock him out....Think I could take the whole darn packet.  lol. So I just don't bother. The most annoying thing is when I get a really bad tired roll late arvo. I hate that.

Bloods were I guess most of the general stuff. The series were called CBE and MBA20 if that means anything to you.

The five that were out of normal range were

Chloride 94 Low <95-110>

Anion Gap 20 High <7-17>

RDW 11.4 Low <<12-15>

Mean Platelet Volume 9.30 Low <9.50-13>

Lymphocytes 4.39 High <1.50-3.50>



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65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33



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SeeTheLight wrote:

Thank you 5. All is going well here. I have even had a few very good nights sleep in a row. (around 6 hours or so)  Hope that continues. I have had the young grandson (8) for the long weekend, so the days were quite full. I am suffering next to none sides so am very pleased indeed. Took the youngun back yesterday and wasn't even tired so all is good. My halfway mark yesterday - couldn't help but think The $37,500 worth of Magic Beans I have consumed so far only cost me under 10 Bucks. That is the thing that most amazes me with this treatment. I believe they are doing their thing. Guess it will be a long wait to October to know for sure, but I shall have to be patient.



 

i hope you are getting some good rest after the youngun, how awesome that you were able to enjoy that time
i love "magic beans" so much......that's exactly what they are.
i'm so happy we got our magic beans for free, after all we got the virus for free too blankstare
i won't know my finals till about October also, and i agree....those enzymes tell a good story about how the liver is doing under the beans.
there are times i can't believe how good i feel  , and other times how awful i feel..... thankfully it's not constant; and when it's over i'll be saying it really wasn't that bad for a cure.


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GT1a for 36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off.

3.6.18:Alpha 2-Macroglobulins, Qn=400/high. A1 activity.  f3@60: fibrosur bloodtst. TumrMrk=norm. enz=mostly norm.VL=3,933,000 

.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. 



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STL, 

Halfway done! Yay! How time flys. The uphill part is all done now, it's easy-coasting downhill to EOT for you. We will be cheering 5 on to her soon EOT and another UND for her. BTW, I bet ya a million bucks you've been sitting on an UND (for quite some time yourself). biggrin 

I feel for both you and 5 about the added sleep difficulites - good 5 found the valium and unisom as a way to help - what kind of things have you tried?

I got my partner (who is of that sleepless breed too) to experiment with melatonin, so he has been for quite a while now, it HAS worked to a fairly good degree for him, he IS better (on it) than he used to be, but as well, he has had some past physical afflictions become less troublesome at the same time, so, credit for less disturbed sleep may lie there (in part) as well.

Currently, after being on melatonin for quite some time now, and it working for him, he is experimenting in being "off" of it for a while, to see if old patterns re-emerge. I think he will always have a natural tendency and inclination to have eyes pop open and stay open way too early in the AM just cause a thought passed through his brain, no rolling over for him - gotta get up!, but that's just what A personalities go through (I think), have to answer the phone, ya know? But ... being that he noticed sleep improvement being on melatonin, have you tried that? Being that he noticed improvement just by having a lessening of his other afflication, perhaps then after the miracle of your HCV's cures, maybe that will also help in your sleep department? - ya never know!

We know your listed LFT's are good, and that we won't look for a VL until EOT+12 weeks, but what were some of the other kinds of bloods they drew on you, or will draw on you, until then?

Here's hoping the sleeping cupid cradles your noggins in a dreamy pillow all night. zzzzzzzzzzz. winksmile C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 62 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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Hey, as long as that ALT stays like that, you’re golden! The liver profile is always a key indicator of how things are doing. I consider it my favorite cheat sheet!



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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i hear ya about the cost... cost me nothing for the cure. neither did the interferon on the short testing period.

it's all so worth it knowing my liver is getting some relief right now



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GT1a for 36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off.

3.6.18:Alpha 2-Macroglobulins, Qn=400/high. A1 activity.  f3@60: fibrosur bloodtst. TumrMrk=norm. enz=mostly norm.VL=3,933,000 

.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. 



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Thank you 5. All is going well here. I have even had a few very good nights sleep in a row. (around 6 hours or so)  Hope that continues. I have had the young grandson (8) for the long weekend, so the days were quite full. I am suffering next to none sides so am very pleased indeed. Took the youngun back yesterday and wasn't even tired so all is good. My halfway mark yesterday - couldn't help but think The $37,500 worth of Magic Beans I have consumed so far only cost me under 10 Bucks. That is the thing that most amazes me with this treatment. I believe they are doing their thing. Guess it will be a long wait to October to know for sure, but I shall have to be patient.



__________________

65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33



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i'm glad you are hanging in there and doing well on the path to svr, happy half way to you



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GT1a for 36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off.

3.6.18:Alpha 2-Macroglobulins, Qn=400/high. A1 activity.  f3@60: fibrosur bloodtst. TumrMrk=norm. enz=mostly norm.VL=3,933,000 

.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. 



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STL, i've also had insomnia at least 15 yrs.

i have a hard time falling asleep, but once i do i usually sleep ok [ taking 1mg. valium for a long time now, sometimes up to 2mg if needed] But only when i need to work the next day; and  half a mg. if i have an early appoinment every few months or so.

7-8 deep sleep seems to be enough for me now; but i still need lots of rest no matter how much i sleep. plus having to get up to pee wakes me up, but better than wetting the bed

i too can lay still in bed if i don't fall asleep, i know that at least my body is resting. if i get up and do something then even my body will be worn out.

i do chk the laptop if i go a cpl hrs without falling asleep, also i eat a half piece of bread-that seems to help me.

i have enough energy to match my body's stamina, it's all so weird. i guess age also plays a big role in this. I rather give my body a break before it starts to hurt

i kinda wish i didn't have another blood test till eot+3months. not much we can do about what's going on except believe that it's working....... and why not? it works for most ppl. we are most ppl biggrinbiggrinbiggrin

but, i think they use the results in some way for research and a heads up to us as far as the liver panel [enzymes etc], when those tests are good or bad it indicates something about the treatments effectiveness. so a good lab is def pointing toward good results

ok, back to resting now , today i am holding back so i have energy , stamina and a good mood for work this weekend



-- Edited by 5-1-18 on Friday 8th of June 2018 04:54:26 AM

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GT1a for 36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off.

3.6.18:Alpha 2-Macroglobulins, Qn=400/high. A1 activity.  f3@60: fibrosur bloodtst. TumrMrk=norm. enz=mostly norm.VL=3,933,000 

.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. 

Tig


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Hi STL,

We have a similar service here in the US, one where you can pre pay for certain tests without a doctor’s order. I see HCV testing available through this CA company, but may be the antibody test. Give them a call and see if they offer the HCV RNA PCR or knows where it can be done. 

Blood Tests Canada



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Hi Canuck,

Nice to see you back. Its been a bit rather quiet around here. LOL

I don't know if its even possible to request the VL test and pay. It seems they don't find it a necessary test at all. Not even pre treatments. As they said to me = the number of the bugs is not a factor. I have the virus and it is being treated. My blood test form just says on Hep C treatment. Monitoring Bloods. I did get a copy of the results from my GP as it was sent to her as well as my treatment provider so now know there were a few slight abnormalities in my bloods in general, but my liver ones were all good so that's the main thing I guess. Guess I will just go with the flow and see where it takes me come Oct.

As to sleep, I was really hoping that would improve but alas....nope. Although I do have a teli in bedroom I only use it to watch my programs of an evening sometimes, particularly when it is cold, but I turn it off when I think Im feeling tired and do no turn it back on overnight. I lay in bed all night whether I sleep or not. The trouble is wake up so often, sometimes even as often as half hourly, sometimes I go straight back to sleep but often I dont. last night I had a big gap between 1am and 3.30. From 3.30 I slept well till after 7 which is a little later than normal. From 10 - 1 I only slept in little breaks. I've been like this for prob 20 years. It so annoys me. I would love to shut my eyes at 10 and open them at 6 but it don't happen. My average sleep would be under six hours which I find OK. Its these nights that I only get 2 to 3 hours that drive me batty. Such is life. These things were sent to test us. I shall keep hoping that this along with my other issues improve. 

 



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65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33



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Mikenan,

Glad to meet you (although you have been a member for a while now). I am so glad you got your epclusa, that was a long time coming for you, so I am very glad you are so far along now, and doing very well it sounds.smile

You should post more, and often, we would be all ears biggrin - why not open your own "On Treatment" thread so we can can have longer chats about your journey, and you need a signature line - how about something like this (for a start) just a suggestion, it can be changed radically, anytime, to suit yourself ...

Male, Age ___, HCV probably since 1970, Dx 2002, GT2, Biopsy 2007 - "stage 1", used to take milk thistle. Pre-treatment VL ___, ALT ___, AST ___, (and/or, other test results). Tx Epclusa 12 weeks - SOT April? __, 2018 to EOT _?_, 2018.  Week 4 blood test results ..., EOT blood tests ..., no "on treatment" VL's to be draw ... VL at EOT+12 weeks ...

You are in good company with your fellow epclusians here - all have done SO WELL! Yippee! C.

 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 62 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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STL, 

Beauty labs - those 4 week results (no doubt) please everyone! smile  We all know what they mean. biggrin

Sorry I did not celebrate these good numbers with you sooner - about the time your numbers were returning, I was on my "away". But I did a little happy  dance for you as soon as I saw them. Lovely to have those "numbers" under your belt, isn't it - are you feeling more and more confident now, going forward, seeing how well the magically powerful VEL is?! Wonderful drugs Gilead has created, just for us! An early crashed ALT heralds only good news. All your numbers are just excellent.

BTW - I didn't go into your links re: GGT, but we have discussed GGT's on the site and read about a lot of these other tests before. They are all interesting to learn about. GGT's can just simply be elevated right along with other labs being elevated when one has hepatitis. But as an aside, one thing I learned about GGT's, is that for those with a real problem with drinking, and their liver is already compromized/suffering and the pt and doc are both hoping the pt. can sustain abstaining, GGT's can also be a handy rough guide to show when someone has "fallen off the wagon", as GGT's can rise when alcohol is added as fuel to the liver fire. Just an interesting general tidbit. 

You, in the "down under" and our other commonwealth buddy "mikenan" from Canada, who we have now met on your thread, both are not being offered VL's until EOT+12 weeks - which just goes to show you it is not a country thing, nor a regulatory thing, just those docs deciding not to test, and that can be taken as a positive, that they are positive and confident in the already-proven powerful epclusa and your good predictable (telling) early response to them, as shown and clearly indicated by your good "crashed" 4 weeks labs. You will have the luxury of comparing your pre-treatment VL to your EOT+12 week SVR VL of ZERO! 

Some people cannot be patient enough to wait to know (ahem ,,, that would be me! wink) but I was lucky and had frequent bloodletting and VL's done during my trial, because it WAS a trial.

Others with more self-directed treatments paid to get VL's done when they decided they wanted them.

I am a believer in expensive, frequent, repeat testing - (the L'oreal syndrome) - nothing too good for the pt., I was glad to know everyone of my many labs and my VL's,  the feedback gave me comfort and interesting info.

I am still surprised when they do this (no 4 week VL nor an EOT VL') but it IS true, they can base your good response your 4 week and other on-treatment lab results, but still, I (personally) would want a 4 week and an EOT VL -  just me - I am NOT a patient person!

Gee whiz, I am lamenting for you with the insomnia issue - man, I hope you can get more zzzz's than that (somehow)!, a body and mind NEEDS rest and real sleep, complete with REM and recoup/healing time - ummm, are you sposed to have TV in bedroom if one is an insomniac - jes sayin! (ya.ya, I know, I'm a party pooper), and, easy for me to say, someone who can count her lifetime insomnia days prolly on both hands! Just tell me to button it. 

I will just use my strongest levels of telepathic hypnosis on you, over the pond, and simply insist on willing to you "a few extra deep irresistable ZZZ's tonight"! Sleep, lovely sleep I wish for you.  smile C. 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 62 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

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Also thx to you 5-1-18

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66 yr male stage 1 GT 2 contracted early 70s diagnosed 2002 SOT Apr 18/18 Epclusa start bil 20 ast 28 alt 25 after 8 wks bil 8 alt 17 ast 23



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Thx Tig and Stl. Its good to be able to relate to others going through this. Gid bless.

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66 yr male stage 1 GT 2 contracted early 70s diagnosed 2002 SOT Apr 18/18 Epclusa start bil 20 ast 28 alt 25 after 8 wks bil 8 alt 17 ast 23



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Hi Mike,

Pleased to meet you. Sounds like you are doing great. I am now 5 1/2 weeks into treatment and everything is going pretty well with me. I have another test like this one at end of treatment. Like you, my tests will not include viral load until October but they were very pleased with the bloods I had taken at 4 weeks. Seems our wonder drug is doing its stuff so that is great for us all. We are so fortunate with our treatment to have the wonderful new DAA's that's for sure. Success rates are so high its just amazing.

Thanks for joining us. Look forward to hearing more



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65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33



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yay mike



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GT1a for 36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off.

3.6.18:Alpha 2-Macroglobulins, Qn=400/high. A1 activity.  f3@60: fibrosur bloodtst. TumrMrk=norm. enz=mostly norm.VL=3,933,000 

.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. 

Tig


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Hey Mike,

Glad to hear all of your tests came back good! Normally they are checking your pancreas enzymes when running a Lipase test. We often see fluctuations in various lab values during treatment. If your doc says things are okay, then take note of it for future reference and don’t worry about it. 



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61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Just found this post so thought i would add.  Just finished my 7th week.  Haven't had any side effects and had blood work done after my 4th week.  My Doc only did the Hematology, creatinine, eGFR, bilirubin and ALT test.  They all showed normal range.  ALT was down to 16 from last year test.  He also had me do a Lipase test which came back 2.5 times the norm but told me things were ok.  Don't know if anyone else had this test done.  Well next week i go for the same tests then no tests until end of Oct when i will have been finished the pills for 3 months, that is when i get the Hep C RNA test done.  Hope it works out for everyone on this treatment because it really is a godsend.



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66 yr male stage 1 GT 2 contracted early 70s diagnosed 2002 SOT Apr 18/18 Epclusa start bil 20 ast 28 alt 25 after 8 wks bil 8 alt 17 ast 23



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Yes I do feel I'm doing pretty good with the water consumption. The glass I keep refilling is quite large so three is over a litre in 3 (prob holds around 400ml) It is now 10.15 am and I am on my 6th glass along with 2 cups of tea and my smoothie. Seem to have quite a thirst this morning. I normally would drink at least 2 litres of water a day....now Ive done that by this time of day to allow me to double up. I like to know Ive hit the half way mark early, while I'm just doing a few chores. I slow down in the afternoon but want to hit the half way mark at least by mid morning if I can, so I have a little leeway in the afternoon/evening if I go out. I manage to hit the 4 litres now easily enough so that is good.



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65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33

Tig


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Here’s a friendly guide!  

26EE709A-AEA0-423A-8F21-6C2071AAFE12.jpeg



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61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Absolutely fill a gallon jug with water and make sure you drink all of it between 8 AM or whenever you get up and about 10 PM.



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Male, 65, Dx 1990, GT 2a/2c. Pre-treatment VL 11,500,000, ALT 10, AST 18, Fibroscan F3, 12.4 kPa. Rx 12 weeks Epclusa, SOT Mar 8, 2018, EOT May 30, 2018. Week 2 VL 50, ALT 12, AST 21. Week 10 VL not detected, ALT 12, AST 18.



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i get the mix of insomnia and energy and fatigue too.... so weird ; but overall not as bad as i worried about. yea, that doey woozy feeling is so weird, i feel like i'm on auto-pilot so much of the time.

we're doing so good with this tho

over here on the westcoast usa they do the first qualitative viral load at 4 weeks. i just did that today so will know in a few days.

funny about the cake, could be cos i'm always talking about it

but it won't be funny if my blood sugar shows up high on this test

are you getting all the water down ok? i'm trying to drink more earlier in the day so i'm not up all nite going pee.



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GT1a for 36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off.

3.6.18:Alpha 2-Macroglobulins, Qn=400/high. A1 activity.  f3@60: fibrosur bloodtst. TumrMrk=norm. enz=mostly norm.VL=3,933,000 

.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. 



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Hi Lamassu,

They don't check that until SVR 12. Its not a test they focus on. They know I have it and the genotype so find the number of bugs running around to be not a factor in treatment. They don't check until they hope we are cured.

I have not suffered fatigue, more the opposite actually. Insomnia although I must admit I have had more nights when I fall asleep quite early this last week. This week I seem to be having only one 3/4 hour sleep(if im lucky) a night in three, which has been good. Most afternoons I do feel a little peculiar with the doey woozy feeling and a terrible afternoon craving for cake. I take my bomb at 7.30 am

 



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65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33



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SeeTheLight hope you do not experience the fatique I did while on Epclusa. Seems to affect 25% of patients. Do you know what your viral load was before starting treatment, and will you have a four week Hep C RNA PCR (viral load)? Glad your fibrosis score was low very good news. Waiting to hear about your four week labs at this juncture seeing a reduced viral load is more important than liver enzymes. The three months will pass quickly.



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Male, 65, Dx 1990, GT 2a/2c. Pre-treatment VL 11,500,000, ALT 10, AST 18, Fibroscan F3, 12.4 kPa. Rx 12 weeks Epclusa, SOT Mar 8, 2018, EOT May 30, 2018. Week 2 VL 50, ALT 12, AST 21. Week 10 VL not detected, ALT 12, AST 18.



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cool, thnx tig & STL



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GT1a for 36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off.

3.6.18:Alpha 2-Macroglobulins, Qn=400/high. A1 activity.  f3@60: fibrosur bloodtst. TumrMrk=norm. enz=mostly norm.VL=3,933,000 

.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. 



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Oops I should have looked. Very handy resource thank you Tig



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65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33

Tig


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We have a good reference section in our Knowledge thread. Here’s a link...

Lab Values and Definitions



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Tig

61 yo GT1A - 5 Mil - A2/F3 - (1996) Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Not a lot only that it is a Liver Enzyme, along with ALT and AST. It is the three figures that they usually  point at when they tell me My Enzymes are elevated.

https://en.wikipedia.org/wiki/Gamma-glutamyltransferase

this is a nice simple one of the different liver function tests

http://www.mydr.com.au/tests-investigations/liver-function-testing



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65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33



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awesome STL  biggrin

what is a ggt?, do you know?



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GT1a for 36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off.

3.6.18:Alpha 2-Macroglobulins, Qn=400/high. A1 activity.  f3@60: fibrosur bloodtst. TumrMrk=norm. enz=mostly norm.VL=3,933,000 

.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. 



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Good news here   biggrin

Seems my bug bombs are working

My ALT was 72 before treatments now 4 weeks later its 16

My AST was 67 now 23

GGT is 33

Good luck with yours 5.



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65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33



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oh my, what mess you had on your hands with the bleach solution.

enjoy your day of visit and shopping.

i got my lab request via the internet today, so i'll print it out and just go wednesday afternoon.

i didn't want to go but logically it makes sense to have a base lab report after the first month where by all progress can be seen from now till 12 weeks svr.

oh yea, not sure what will be if i move onto a longer treatment with having to go to work.



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GT1a for 36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off.

3.6.18:Alpha 2-Macroglobulins, Qn=400/high. A1 activity.  f3@60: fibrosur bloodtst. TumrMrk=norm. enz=mostly norm.VL=3,933,000 

.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. 



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Onya 5! ...... Lucky you its your last, Ive still got one more to go. You're better than half way through it now. You'll be a "been there done that" while i'm still "work in progress". I keep thinking how wonderful it will be when these yukky woozies are behind us, but guess its not going to be quite that good until the the three month post treatment and hopefully cured.

Its funny how some days are good and some not so good. I don't feel I am doing anything different. I would think if I was having side effects it would be constant rather than good day bad day scenario. Hopefully today will be good, I'm off to a neighbouring town for a bit of shopping and visiting a friend. Have to get some more wormers for my little one. Yes she was very concerned for me when I fell over. She couldnt stay off me so I could get my wet, bleachy clothes off - because when I went down so did the mop bucket. Hohum.... Dear little thing, she was so worried about her mumma.

Hope you are having a good day.



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65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33



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hi STLbiggrin

i cracked my new bottle too.yay for us

our docs make us wait till they send us the lab request via the internet or snail mail, wish they did the way you guys do. i even have to see him at 6 weeks so they can look at me and collect the $45., no

i'm so glad you have your doggy there, and how much she loved on you after you fell, wondering what's happening to mom.

and great that you could get outside together for an easy walk into the no trip zones.

i figure we are getting laid out from both ends... the bugbombs doing their job ,so those ingredients cos some side effests,....... but also our immune system is working overtime now that they have a chance to beat the lil' varmits. our meds give the immune system a chance to win the fight instead of the varmits always winning..... yay for the immune system team, and that consumes a lot of our body's energy. 

i too missed you while you were recovering from your trip; i figured you were resting. i post something just to blog it down for myself later and for anyone needing to read someone's journey.

happy 2nd bottle.....

 



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GT1a for 36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off.

3.6.18:Alpha 2-Macroglobulins, Qn=400/high. A1 activity.  f3@60: fibrosur bloodtst. TumrMrk=norm. enz=mostly norm.VL=3,933,000 

.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. 



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Sorry Canuck, I didn't realise I was MIA, I was still reading, just didn't really have anything to report lol.

Yes cracked the new bottle earlier this morn, going well, apart from these random things that hit, nothing to lay me out, apart from falling, which I guess is just one of those unfortunate things. Wasn't like I passed out or anything, I'm just a clumsy clux. Tell you what when I finally got myself up and back inside the dog was very pleased, she knew something was wrong but couldn't see me through the door, just hear my ouches so she just licked/loved me to death when i got in. Haven't taken her for a walk since. The sun is out at mo so think I will do a small one, just no creeks or uneven ground at mo since I can easily go ouch again if I move it wrong. Don't know if shell go for my slower, more careful pace this morn but at least it will be something....lol. I could use a bit out outdoors too.



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65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33



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Well how would you be 5! So I'm not the only idjut who can fall down over nothing. We must both try harder. Glad you were OK. Saturday I could barely get off the bed, very tricky situation when you are drinking so much and the beds at one end of the house and the toilet at the other. I think I jinxed myself actually. My new bedroom teli is a smart, my first one so I couldn't resist Friday finally signing up for netflix, had been resisting, but Friday I did it, set it up on the teli, gave myself a little chuckle as I walked out hanging for my Friday night testrun. (goes to show what an interesting life I lead these days - ROFL) Prob an hour or two later I have a fall. Omen or what.

Not sure what you mean about order your labs. Guess you mean the paperwork. Clearly different here. When my nurse gave me my pack, the  bloodtest forms with dates they wanted them done (end of week four, EOT end of week twelve, then 12 weeks after EOT for the big SVR) one were in it along with my script.



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65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33



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Hey STL,

Yes, good to hear from you. We fret when folk go stealth, heehee, or at least we go a bit lonely. Good info and update and re-iterate on your thread here BTW, you are a clear conveyor of info - a pleasure to read.

(911!) Why is everyone falling down at the same tme! I'll say you two May 1 ladies are lucky to be picking yourselves up off the floor, not in pieces. Everybody, please try to stay upright!, no 2 or 3 point landings, unless you can aim it for a bed. Nice your nails got harder! I don't know why ... but i am also glad your bones are hard (apparently) heehee. I think you should be relieved from mop duty for now. 

I was and got VERY doe-headed during treatment (but I was that way before tretamentas well) - just worse on, it was a relief when treatment was over, and it slowly subsided, a big chunk of it subsided one night and kind took me by pleasant surprize. They say within hours and days of stopping the drugs, the blood drug levels dissapate quickly, any lingering residual should be gone from your body in days or weeks - but keep flushing with lots of water even after EOT. But, I am getting ahead of myself here - I still hope you and the drugs are going to start to get along better, any day now, that can and DOES happen. Congrats on cracking open bottle number 2 tomorrow! smile

Can't wait to hear results of your 4 weeks bloods, it will help you feel better about your sore banged up bits, great you found and posted some of your old labs, it will be good to see the improvements from those. Oh the excitement, waiting for those first 4 week results! 

Hope your knee, feet, ankles will get over that fall OK. C.  

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 62 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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stl, so good to hear from you after your vacation.

i fell down too, went to sit on the rolling chair and it kept going behind me

i managed to land square on my behind and lifted my arms for balance so didn't really get hurt , my hip ached the next day but heating pad and magnets calmed it down.

so that was odd that we both fell under the influence of the DAA's.

so we can concentrate ourselves to stay on all 2's now .

cool that they ordered your tests already, i still await that lab order for me.

we are doing so well



__________________

GT1a for 36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off.

3.6.18:Alpha 2-Macroglobulins, Qn=400/high. A1 activity.  f3@60: fibrosur bloodtst. TumrMrk=norm. enz=mostly norm.VL=3,933,000 

.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. 



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So far side effects haven"t been too bad, I am pleased to report. Most I can't really be sure are the result of my "Bug Bombs" as I think of them. - These bugs have been running rampant me for close to 40 years so it will take some pretty potent bombs to get rid of them I realise, so am aware I might have a little discomfort.

Most things I have had before such as feeling a  bit achey in general, a bit headachey, feeling a little nauseous, bit of constipated etc. The one I am confident is related is this funny feeling in my head. I feel a bit dohy, a bit headachey, sometimes front of head sometimes back and sometimes i feel like there is pressure round my head particularly my ears. Sometimes it feels as if something is running around my head doing circle work around my eyes and ears. I see it as by bugs trying trying to escape the bombing they are subjected to, and like to tell them - you can run  but you can't hide! Have had a few not too great days, but since I no longer work it really is a minor inconvenience. I just have to keep my eyes on the prize. I have hopes that when I have beaten this thing a lot of other things re my health will hopefully improve.

Friday and Saturday were not great for me. I fell over emptying the mop bucket Friday morning, pulled something in back of knee and hurt both feet and ankles a little, shook me up a bit because with the state of my bones I usually break something so falls aint good. This time I knew it wasnt broke anyway- thank goodness....lol. Felt shaky and sick but think more from the scare in falling than the treatment. Anyway while I laid about all weekend I did notice something amazing! My fingernails are hard! My nails are always quite soft and split and rip very easily. Never grow because they just bend and rip off. I learnt many years ago that I don't absorb calcium and now they are rock hard. I have to wonder if the Epclusa may be doing this. I wonder if anyone has noticed anything like this. Maybe the virus was causing it. Just never considered that one! Anyway interesting me thinks!



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65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33



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Hi all, thought it about time I started my own thread rather than hijacking 5's all the time, so here goes. lol

I have had the virus since early 80's although I didn't know it as I was diagnosed with hep b at the time. I thought I had ridded myself of that but about 20 years later learnt that I was hep c pos and had never had hep b at all. At the time there was nothing much going treatment wise so was just advised to eat healthy and not drink much and that was that.

Last year when as usual my liver enzymes were up a bit in a blood test, and I told the locum i was hep c pos he told me about the new treatments and suggested I get referred. My referral was sent in and I got a letter informing me I was on the waiting list.  Well my name came up in late Feb and after seeing the specialist, having bloods taken fibroscan and ultrasound throughout March I was placed on Epclusa for 12 weeks beginning May 1. I was not given my results and didn't think to ask at time. Silly me! An old result I have from last year and 3 years previously list

2014 GGT 24 2017 GGT 86 (-50)

2014 AST 68 2017 ALT 46 (-41)

2014 ALT 51 2017 ALT 36 (-41)

so doesnt look too bad considering how long I've been carrying this around.

The latest tests provided my gen type as 3A, and I was told I don't have Cirrhosis. I do hope to access my results when I speak with them next.

Anyway back to the present. Today was day 28, so I finished my first bottle of Epclusa this morning and had my 4 week bloods so here I sit waiting to hear how successful the treatment is! Here's hoping.



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65 Years Old Female Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment

Gen 3a Fibrosis Stage F1-F2  Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 69

4 weeks of treatment ALT 16 AST 23 GGT 33

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