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Post Info TOPIC: Started Epclusa 1 May 2018


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RE: Started Epclusa 1 May 2018
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gee i didn't think about pipes bursting

yep, i'd have jugs of water everywhere.

i'm a bit worn out today too, no beans but coming back from all that and plus allergy sinus woes; i've always had those blankstare

it's def a good day to rest



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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STL,

I almost live in the bush (sticks, timbuctoo, rural, country)  "out there" and WILL travel - (well, ... it's really just a small town ... so I HAVE to travel actually) when I'm needing something from the big city that is!

Funny the parallels we have STL, I was out of town on an "away" too (U/S). I too left my "pet" behind (as he is a downright liability when his shop til ya drop gene is lacking and I have to seriously restrain my shopping time/quota, mind you ... James IS the better driver!). 

That water freezing thing ... sounds not only inconvenient, but a bit worrisome, depending on the water system you sport where you live. Hope the pipes/well/supply (whatever) is going to be alright. I live in a place, where at the extremes, we can get to 40 above in summer and 40 below in winter, know all about pipes freezing, about it being too hot, and the goldilocks paradox! heehee

Don't run out of water - stock pile if you think you are going to have another freeze, boil it up and drink liberally (hot and cold), try that for your aches and pains AND for that post-nasal drip thing you mentioned - another weirdness we share I guess (I've never really have that before, post-nasal drip) but i have been having that weirdness of late too! Maybe a hot salt water gargles for your post-nasal? Stay warm. Amazing how many things water cures! Hot water,  salt water, cold water, soaks, drinks, teas, gargles, compresses, ice, etc ... it's one of my all-time fav medicines and treatments. 

And speaking of water, we live across the big pond from one another but we step in each other footprints - I'd follow you anywhere, you and your world sound nice. winksmile C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Yes 5 it was a good easy day. Just vegged in front of teli when I got back. Had a good nights sleep. Water consumption is becoming a bit of a problem these cold days, particularly mornings. I had only had a half my big glass earlier when I have to take my magic bomb. Must admit I wasn't keen on getting out of bed this morn. Its now nearly 9 and I have only had 1 and a bit glasses and a cuppa. Feeling a bit achy this morn too...wonder if that's why.



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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awesome STL, it sounds like you made a very fun day of it and that all the alarms went off for the magic bean

i took my easy 20 min. walk today and we made a small dinner. it's so nice to have the tummy back to normal.

then i parked in front of the tv for some mindless movies.

i hope you and doggo get to sleep in on your next morning yawn

5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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Yeah 5, wasn't sure if the alarm would sound when ph connected to car stereo since music just pauses briefly when text comes in, so had my eye on the clock on dash just to be sure, but it alarmed me too so alls good. Quick easy trip really. Got straight through xray and down to specialist sector 1/2 hour or so early and amazingly got straight in to see him too. Sometimes you sit for hours. I was out of hospital in a bit over an hour. Fueled up, did a bit of shopping and back here just after one. Never expected that. Some days are diamonds...lol...Feeling bit tired but understandable given the early start and road trip. Guess us country folk are used to doing the miles....lol

Sun is shining and doggo pleased I'm home.

 



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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wow stl, taking the magic bean on the roadtrip.hahaha

i hope it got warmer for you today and that little doggo found the wam bed to sleep while you and magic bean went on the road trip.

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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Well 6.15AM and I'm out of bed, (have been for over an hour) its freezing - no water coming out taps, so good job I showered last night. All of me is dressed already - case of have to. Big day - off to town again. Xrays at 8.45 then specialist (Hand not liver) Expecting I will be cleared today, so sure it will be one of those why did I bother type days. God knows why the give someone who lives so far away such an early appointment. Was going to go down yesterday and stay, but decided to just make it a day trip - silly me - already regretting it. Doggo wont be at all happy when she twigs I'm off and shes not. She doesn't think we should be up this early. Thinks mummas crazy. Might leave her ladder up to bed so she can go back to bed if she gets too cold - if she realises Ive left her ladder there....lol. Set the alarm just in case I slept in but woke up way too early anyway. Typical. Will have to take my magic bean with so I can take on road. Bit out of order, just had breaky and cuppa but not time for my pill. Have had a bit of the mucous running down back of throat lately. Heard peeps talk about flu like symptoms as a side so think that is what it is as I'm sure I don't actually have a cold. Only odd thing I've noticed of late. Been making sleep a little difficult last few nights. Have a good day/night everybody. Ive got my road cuppa and a few water bots for trip.



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND

Tig


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SeeTheLight wrote:

You wont be too far ahead then for the SVR. I just checked my paperwork and the note says this test is done no earlier than 15 Oct. Hope you feel a bit better in a few days.  clap.gifooohhh aaahhhhh got it never been able to get those extra emo's you often use as they not clickable....just tried c&p and he's clapping right here......now there will no stopping me... nana.gif

Looks like the sun.gifis thinking of sticking his head out. - 0C - 32F earlier, might even consider dressing my top half soon ready for a walk. Very hard to motivate taking warm dressing gown and jammy top off too early these cold mornings, so I spend first few hours in the land of half dressed. (5 to 9 am now)


If you copy and paste the text version of the emoji you want, they will post to your message. There is a link to “more emoticons” under the emoji list when you post a reply. Here’s the list if you want to print it. I did that so I had a quick reference. 

Emoji List



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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yay for the emoji's ...they do add fun to a post.biggrin

oh yea, i'm a jammy person... got all sorts for all sorts of weather , cute so i can run about the house feeling like i'm already dressed.hahaha

in a case to walk the doggie, pulling a sweatshirt over the jammies would work too..... the undress to dress always gets me too

yea, i'll prob wait till you do your labs to do mine, sounds about the right timing to know.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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You wont be too far ahead then for the SVR. I just checked my paperwork and the note says this test is done no earlier than 15 Oct. Hope you feel a bit better in a few days.  clap.gifooohhh aaahhhhh got it never been able to get those extra emo's you often use as they not clickable....just tried c&p and he's clapping right here......now there will no stopping me... nana.gif

Looks like the sun.gifis thinking of sticking his head out. - 0C - 32F earlier, might even consider dressing my top half soon ready for a walk. Very hard to motivate taking warm dressing gown and jammy top off too early these cold mornings, so I spend first few hours in the land of half dressed. (5 to 9 am now)



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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i agree stl, reading tig's story and some others def gave me strength for the journey

i test early october rather than now and that works for me

have a wonderful evening , i'll chat with you soon 5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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Tig wrote:

2/3rds down, one to go!   smile   Exciting times for sure and youve been doing a marvelous job of handling all things treatment! It has been fun to have this nice group of Warriors from all corners of the planet. It really makes it easier and helps to know exactly how its going for all on the journey. Doing it together makes a positive difference! Im happy for you. 

Keep doing what youre doing and start planning your own EOT party. I know from multiple experiences, the time passes quickly. Youre almost there!  


 Why thank You Tig, number 1 of the new batch down the hatch along with a slice of avocado on toast and a cuppa. 2 glasses of water already down the hatch.

The journey so far really has been pretty easy. I am very fortunate for sure. I read your profile again yesterday more knowledgeable than last time I read it and oh wow. What an amazing man you are, going through such an awful treatment for so long and still able to come through it with so much gratitude and willingness to do it all over again if you had to.



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND

Tig


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2/3rd’s down, one to go!   smile   Exciting times for sure and you’ve been doing a marvelous job of handling all things “treatment”! It has been fun to have this nice group of Warriors from all corners of the planet. It really makes it easier and helps to know exactly how it‘s going for all on the journey. Doing it together makes a positive difference! I’m happy for you. 

Keep doing what you’re doing and start planning your own EOT party. I know from multiple experiences, the time passes quickly. You’re almost there!  



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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how wonderful a time you had. i'm so glad you are doing so well on epclusa.

i like to stay in as much as possible in the winter also; but i can do a long stretch of tv any time of year

i hope you get a few more sunny days as a nice surprise for you.

5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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Yes its been lovely having someone else going through it all at the same time, for sure.

I really don't have much to post since the journey has not been a difficult one.

Have been a little lax this morning, had a big day yesterday. Went to a big function in town. Didn't get home till after 1 this morn and still on a high, so only had 4 hours sleep. (not that 4 hours is unusual in itself for me...lol) But add in the long drive to town and back (bout 5 hours on the road) and a big noisy function, with oodles of laughing and clapping in the middle......Picture me between 1 and 2 am trying to get a good pic of my last magic bean, in poor light....eventually I gave up and went to bed but still too much of a high to get to sleep for ages.

Doggo and me haven't been for a walk yet, the sun is shining so we should just do it.... Wont be too many sunny days for a while so hate to miss one.....I vegetate in front of teli in winter. Late season this year. The ground is just starting to go a little green from the rainy week last week when we didnt venture far, so this bit of sunshine wont last long.



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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 biggrinbiggrinbiggrinbiggrin 

yes, they must use the same mold for the gold [golden ticket magic beans]

i've enjoyed sharing our journey together and i will continue to be on your thread with you till eot also

are you going for a walk today? i haven't decided yet; i did a few things in the kitchen but resting feels so good today

i will work one day after my medical days and then have my regular 3 days off so will walk then [also, or instead]

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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well here i Sit. Bottle number 2 is empty. New bottle cracked.....first 7 in pillbox.......1 month to go and counting!



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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canuck, i am so rotflmao..... tears are streaming from laughing .hahahahaahhahahahahahahahahahahaha.. i love the pictures 

 

we need a jumping for joy emoticon



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND

Tig


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Okay, I have to be clear, I’ll wear the boots, but the thong is out of the question! 

I’m glad things are going good, STL, woot! It helps to have a nice nurse in which you can confide in. There are many folks out there that won’t give you the time of day. They’re coming around regarding the ins and outs of this disease. It took a concerted effort for a lot of circles to even care about learning the small nuances of it or the treatments to destroy it. I still think there’s a lot to learn, for everyone involved, but we’re getting there.

One more month will go by fast. I remember when you were just getting ready to start. Hard to believe you’re nearly finished. You go girl!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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STL, 

Oh good, happy for your updates. biggrin Almost 2/3 of the way home! Down to the last stretch - coasting, all easier downhill now. smile 

I have to say ... as a GT3 you WILL be successful, (you ARE already being successful, right now) - nothing will stop you now! 3's (on epclusa) get cured left, right and centre, there is no doubt about it. Gilead came along with epclusa and vosvei and has taken good care of us 3's now.

Nice your nurse is nice! I didn't always have a pleasant or relaxed visit with all of the staff at my facility during the trial and/or after. It's good when the people are people you can really "click" with and like, and importantly if they are kind and helpful.

Speaking of GT's and VL's, IF you had been... say .... a GT1 (not a 3), and they were trying to decide if they would give you 8 weeks or 12 weeks of Harvoni, then you probably would have had a pre-treatment VL drawn, to see if you were over 6 million IU/mL, that (over 6 mil, or being black) is still in some regulatory books as being a no-go for doing 8 weeks of Harvoni. Some docs, some places still rely on VL's for feedback in addition to other markers, but you are right, the regs and thinking can be ever-changing, evolving.

You are right about the load(s) changing (something I was completely ignorant about when I first got here!), I soon got it figured out, with amazement, learning about the viral war phenomenom (fluctuations while on treatment, or, when not on treatment)! The VL blood draw simply being a pinprick point in time. What "trend" we have seen with the new DAA treatments, quite consistently tho, are the "early LFT crashes", and where the LFT's go, so often does the VL follow. Your VL load likely plummeted along with your falling LFT's.

It IS a valid argument, the "uselessness" of, or "the stress" caused by watching every tweek, blip, fluctuation/movement of a lab or VL while on treatment (as your nurse pointed out), so too is it a valid argument to do VL's for certain cirmcumstances tho, if not just based on compassionate feedback grounds, to know (show) the treatment is working (by using both VL in addition to LFT's). Waiting until SVR12, if it is hard for a patient, can be stressful too. C.

Hey, I'm tellin ya, I have learned more from this site and from you guys than from the whole wide world!!! ... had to look up "uggs", as you said you might have to wear them instead of tongs to the party?? I thought uggs was some kinda underwear. hahahhah 

Tongs .... or?, "uggs" , um, why not wear both for this party, more coverage! wink heehee wheeeeeeeeee

Image result for wearing a thong bikini and australian boots

 Image result for wearing a thong bikini and australian boots

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Hardly any sides so alls good here.

hi STL, it's good to read your update of hardly any sides and just a few more pills till the last bottle

it's hard to believe that 8 weeks is nearly up isn't it?

it was nice to read your post and i'm glad all is well your way



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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Nothing much to report here. Still hanging in there doing fine. Hardly any sides so alls good here. Havent spoken on my thread for a while so thought I probs should. Currently halfway through week 7, ready to crack my last bottle of magic beans next week. Have still had no tiredness, and doing everything I need to do without issue, so can't ask for more.

Spoke with my nurse yesterday. Had a good chat. Lovely Lady. They don't deem Viral Load to have any bearing on the treatment plan here. Not prior to treatment nor during, so will never know what I was or what I am during treatment. Liver Function tests gives a good indication of likely standing. They will leave it till SVR and then check it. She tells me VL has no bearing on treatment these days. (did with the older treatments but irrelevant with these new DAA's) It doesn't matter if I have 50 of the little blighters or 5,000,000. What is relevant is that I have the virus, my genotype and fibrosis/cirrhosis levels. That is what is used to  determine my treatment. It doesn't matter how many bugs are roaming around in me, I have the virus and its being treated and that is the important thing. The load changes constantly and they don't want to give any false negatives during treatment but leave it the 12 weeks after to be sure treatment has been successful. Imagine I will have a little nail biting as the time goes on and SVR is nearing, but shall try to contain all of my what ifs.  I have to believe I will be successful, even gen 3's have a good success rate these days.

Anyway my friends thanks for caring and sharing.



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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LOL,

Yep they say we talk bit diffrent in "Staya" I recall mentioning to some English Folk one day that i'd been mia cas I was in bed with with a wog. Think I nearly got banned - who would have known it didn't mean Iv'e been layed up with the flu...rofl.

As to the CBE that is what the test series was called but as Canuck says it is the same thing by many different names. Dunno why.

I wasn't concerned bout those results either. I think if everything was within normal range they would be no reason to issue your "come back pills" - when they call and wish to see you about your results hence they get another $37 bucks.

Sorry Yeah it was folate as in folic acid. thought I spelt it wrong when your spell check didnt like it [says she who can't spell] The lead one I was asked if I had been removing lead based paint but I hadnt and next test it was fine again but my Iron was very high....Told her Inhadn't been chewing on Iron droppers either......who nose!



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND

Tig


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But don't ya wish the labs would have one universal language eh? FBC,CBC,FBP, CBP, FBE, CBE! All the same ting”

Huh, what? Don't start confusing my already fossilized hippocampus... 

 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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STL,

We could figure what CBE and MBA were, but I definitely had to look up some of these other things (kippy, arvo, a tired roll) heehee,  I love the terms you use ... tea time, heaps of things, sleepers. smile

But don't ya wish the labs would have one universal language eh? FBC,CBC,FBP, CBP, FBE, CBE! All the same ting!

Thanks for sharing the rest of your labs, they don't seem too far out of wack. Your doc is not too overly-concerned about any particular one, right? Then, you should not be either, they will likely improve all on their own as you cure and after your cure. They and you will be sure to keep following them until they are within normal limits again. I too had lab oddities pre-treatment, some quite marked, and they ALL miraculously normalized post-treatment and over time - I am betting the same will happen for you - and, as well, that's a good sign, maybe, (the slight improvement in sleep of late) maybe it IS just heralding the sleep improvements to come for you, or ... maybe it was just our sleepytime wishes for both you and 5, but regardless, I do believe you WILL see changes for the good in many areas once you are finished being cured up. I did. And the things that did improve first or fastest kind of surprised me (in the nicest ways). 

Back to the old VL importance topic ... it is quite correct, what they say about VL being of less (or little-r) consequence nowadays with the likes of our tried and true new powerful DAA's, whether you or I are packing a 100,000 load or have a 10 million count, it is all the same as far as epclusa is concerned. Any VL "detected" is "infected", period, and treatment is required. As it stands in the books, anyone, including treatment-naive (TN) 3's, when we get epclusa, we will always get 12 weeks, period. There are only a few caveats (as long as they remain in practise) affecting "length of treatment", if we need to "add drugs or time", or if a certain double or triple be best to choose instead. Caveats, such as for Harvoni - if you are TN and black - then it is suggested you get 12 weeks of harvoni, not 8 weeks, and that would be regardless to the VL. Another Harvoni caveat they have been going by is the 6 million VL cut-off (under 6 million 8 weeks can be considered, over 6 million 12 weeks should be considered), but this then DOES require that a pre-treatment VL assessment be done to chose the right regime for you. For all the DAA's there are caveats regarding being treatment experienced, RAV testing, levels of cirrhosis, kidney disease ... but as far as I can recall it is only for harvoni who would require this pre-treatment VL testing, to see if you are over or under the 6 million cut-off.

Um, I am not up on "lead" levels. I didn't even think it was an "usual" thing they would be looking for in screening. Still, it's good to know all blips you own, so you can watch them resolve again through following and re-testing. 

This "foliate" being high that you mention .... I am not sure if perhaps you speak of folate or folic acid, "foliate" I don't know. Maybe if it was high folates, then that screening would have likely been in part to rule in or out certain kinds of anemias, B/iron, did they do "ferritin" levels on you?  Some people (like me) accumulated iron (probably in part because my body was just not being able to funtion properly having HCV), I obviously had been accumulating iron, for maybe quite some time (unbeknownst to me or anyone) pre-treatment - my pre-treatment ferritin was high, (and some of my other related labs were as well) and they ALL resolved to be normal again, post-treatment. My ferritin level and iron saturation improved after my HCV was gone, and just kept improving, until it was normal again.

How is recovery going from your bleach tumble of late? Too old for break dancing, but can do a mean bleach twist? Hope the joints and parts heal up quick from that fall. wink C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

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Tig


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CBE huh? I looked for something like that and kept coming up blank. Thanks for the explanation, I'll never forget now. If I struggle with something, it seems to store in a part of my brain rarely accessed lately. I think it's called memory, lol! I struggle with that, too!

It's hard to figure out the way some of these docs think. One will freak out over the smallest thing and the next says ”big deal”. I say as long as they’re close and the Big one's are accurate, then we're good. Call it my simplistic approach to blood test results. It seems to work for me though. Some call it ball park figuring....

I do believe you'll experience some increased energy once your liver is on a glide path to normality. When it can't filter the toxins properly, they just stay in us for a longer period of time. It affects everything adversely, especially muscle tissue. Fatigue follows and so does discomfort. I have lingering joint pain and that's chocked up to age and two rounds of Interferon. There are many benefits to SVR and we get some and hopefully all of them. Took time but I firmly believe SVR gives us more time to discover them. Your ”One Day” will happen. Believe! wink



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62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Yeah Tig,

Thats what I figured, when that didn't even work, I just took the attitude -  Don't worry about it - nothing works .....Just try to grab some sleep when I get a tired roll. Def one thing I pray improves when I am cured, and actually for me its been a good week so who knows.

Thats the same thing CBE "Complete Blood Examination"

One of these days I might have one where all readings are normal. As I have said before - every blood test I have as well as the Liver ones being high there is always something weird shows up as well Calcium, Urea, phosphate, Lead. High Rheumatoid factor but Rheumatologist deems I don't have Rheumatoid Arthritis but I have fibromialgia.  Foliate extremely high "you don't need to take supplements" I don't but I eat a lot of greens. Yet next test no change in eating habits but no mention of Foliate but we are now concerned about lead.....Always something odd shows up. One Day !!!!



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND

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I don't think you've got anything to be concerned about with the very slight abnormal results listed. These things fluctuate often during treatment and yours aren't off by much. I think the one test you listed as CBE to likely be a CBC. I haven't heard of a CBE before. I described the two tests below.

You mentioned being prescribed Temazepam for sleep and it didn't work for you. Wow! That's a benzodiazepine and usually knocks most people out! I took it for awhile and it blasted me! I now have 50mg of Trazadone that works nicely without the next day woozies, when needed. I try and avoid anything if possible. Benadryl OTC works okay, too.

MBA20-Another common analysis is the MBA20 which tests for 20 different chemicals or compounds in your blood including cholesterol, glucose, urea, creatinine, electrolytes and liver function.

CBC-Complete Blood Count which tests several items like red blood cells (RBC), white blood cells (WBC), platelets (PLT) and about a dozen other things as ordered. It primarily tests the blood cell makeup and shows anemia, possible infection, etc.



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62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Hi 5,

Been good for nearly a week now - worst night was 5 hours so all is looking up. My prob is I am either awake or asleep and I go instantly between. There is no waking up. I open my eyes and its instant wide awake whether its been 10 mins or 5 hours. I do hope my cure will help in this department as well as making my liver happy.

I am certainly doing well feeling pretty normal most of the time now, so thats great. I am blessed.



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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Hey Canuck,

Guess my sleep is just **** lol. I am a light sleeper, very little deep or rem. Been getting worse for years. Restless legs too. I have to go to sleep when the tired roll hits or I just dont sleep. Many nights I have no sleep at all or maybe a quick 1/2 hour or so. (In saying that I don't feel tired after a quick kippy. Even a little 1/2 hour shut eye in the arvo will prob mean I wont get to sleep till 3 am or so and then only another little shut eye is any at all. Seems to work in  cycles. when I nearly fall asleep tea time or earlier and manage to fight it it may take a few hours to fight it off so come 9 or 10 pm I am wide eyed and bushy tailed and nothing will make me sleep (although I could not keep my eyes open at 6) now I will not get another tired roll till maybe 5 or 6 am when I am thinking of getting up if at all. Tried heaps of natural things years ago to no avail. The doc even gave me some sleepers once Temazapan and they did ab nothing - not even make me a little tired. I'm a weirdo. My friend says 1/4 tab will knock him out....Think I could take the whole darn packet.  lol. So I just don't bother. The most annoying thing is when I get a really bad tired roll late arvo. I hate that.

Bloods were I guess most of the general stuff. The series were called CBE and MBA20 if that means anything to you.

The five that were out of normal range were

Chloride 94 Low <95-110>

Anion Gap 20 High <7-17>

RDW 11.4 Low <<12-15>

Mean Platelet Volume 9.30 Low <9.50-13>

Lymphocytes 4.39 High <1.50-3.50>



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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SeeTheLight wrote:

Thank you 5. All is going well here. I have even had a few very good nights sleep in a row. (around 6 hours or so)  Hope that continues. I have had the young grandson (8) for the long weekend, so the days were quite full. I am suffering next to none sides so am very pleased indeed. Took the youngun back yesterday and wasn't even tired so all is good. My halfway mark yesterday - couldn't help but think The $37,500 worth of Magic Beans I have consumed so far only cost me under 10 Bucks. That is the thing that most amazes me with this treatment. I believe they are doing their thing. Guess it will be a long wait to October to know for sure, but I shall have to be patient.



 

i hope you are getting some good rest after the youngun, how awesome that you were able to enjoy that time
i love "magic beans" so much......that's exactly what they are.
i'm so happy we got our magic beans for free, after all we got the virus for free too blankstare
i won't know my finals till about October also, and i agree....those enzymes tell a good story about how the liver is doing under the beans.
there are times i can't believe how good i feel  , and other times how awful i feel..... thankfully it's not constant; and when it's over i'll be saying it really wasn't that bad for a cure.


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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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STL, 

Halfway done! Yay! How time flys. The uphill part is all done now, it's easy-coasting downhill to EOT for you. We will be cheering 5 on to her soon EOT and another UND for her. BTW, I bet ya a million bucks you've been sitting on an UND (for quite some time yourself). biggrin 

I feel for both you and 5 about the added sleep difficulites - good 5 found the valium and unisom as a way to help - what kind of things have you tried?

I got my partner (who is of that sleepless breed too) to experiment with melatonin, so he has been for quite a while now, it HAS worked to a fairly good degree for him, he IS better (on it) than he used to be, but as well, he has had some past physical afflictions become less troublesome at the same time, so, credit for less disturbed sleep may lie there (in part) as well.

Currently, after being on melatonin for quite some time now, and it working for him, he is experimenting in being "off" of it for a while, to see if old patterns re-emerge. I think he will always have a natural tendency and inclination to have eyes pop open and stay open way too early in the AM just cause a thought passed through his brain, no rolling over for him - gotta get up!, but that's just what A personalities go through (I think), have to answer the phone, ya know? But ... being that he noticed sleep improvement being on melatonin, have you tried that? Being that he noticed improvement just by having a lessening of his other afflication, perhaps then after the miracle of your HCV's cures, maybe that will also help in your sleep department? - ya never know!

We know your listed LFT's are good, and that we won't look for a VL until EOT+12 weeks, but what were some of the other kinds of bloods they drew on you, or will draw on you, until then?

Here's hoping the sleeping cupid cradles your noggins in a dreamy pillow all night. zzzzzzzzzzz. winksmile C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

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Tig


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Hey, as long as that ALT stays like that, you’re golden! The liver profile is always a key indicator of how things are doing. I consider it my favorite cheat sheet!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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i hear ya about the cost... cost me nothing for the cure. neither did the interferon on the short testing period.

it's all so worth it knowing my liver is getting some relief right now



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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Thank you 5. All is going well here. I have even had a few very good nights sleep in a row. (around 6 hours or so)  Hope that continues. I have had the young grandson (8) for the long weekend, so the days were quite full. I am suffering next to none sides so am very pleased indeed. Took the youngun back yesterday and wasn't even tired so all is good. My halfway mark yesterday - couldn't help but think The $37,500 worth of Magic Beans I have consumed so far only cost me under 10 Bucks. That is the thing that most amazes me with this treatment. I believe they are doing their thing. Guess it will be a long wait to October to know for sure, but I shall have to be patient.



__________________

66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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i'm glad you are hanging in there and doing well on the path to svr, happy half way to you



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND



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STL, i've also had insomnia at least 15 yrs.

i have a hard time falling asleep, but once i do i usually sleep ok [ taking 1mg. valium for a long time now, sometimes up to 2mg if needed] But only when i need to work the next day; and  half a mg. if i have an early appoinment every few months or so.

7-8 deep sleep seems to be enough for me now; but i still need lots of rest no matter how much i sleep. plus having to get up to pee wakes me up, but better than wetting the bed

i too can lay still in bed if i don't fall asleep, i know that at least my body is resting. if i get up and do something then even my body will be worn out.

i do chk the laptop if i go a cpl hrs without falling asleep, also i eat a half piece of bread-that seems to help me.

i have enough energy to match my body's stamina, it's all so weird. i guess age also plays a big role in this. I rather give my body a break before it starts to hurt

i kinda wish i didn't have another blood test till eot+3months. not much we can do about what's going on except believe that it's working....... and why not? it works for most ppl. we are most ppl biggrinbiggrinbiggrin

but, i think they use the results in some way for research and a heads up to us as far as the liver panel [enzymes etc], when those tests are good or bad it indicates something about the treatments effectiveness. so a good lab is def pointing toward good results

ok, back to resting now , today i am holding back so i have energy , stamina and a good mood for work this weekend



-- Edited by 5-1-18 on Friday 8th of June 2018 04:54:26 AM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND

Tig


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Hi STL,

We have a similar service here in the US, one where you can pre pay for certain tests without a doctor’s order. I see HCV testing available through this CA company, but may be the antibody test. Give them a call and see if they offer the HCV RNA PCR or knows where it can be done. 

Blood Tests Canada



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Hi Canuck,

Nice to see you back. Its been a bit rather quiet around here. LOL

I don't know if its even possible to request the VL test and pay. It seems they don't find it a necessary test at all. Not even pre treatments. As they said to me = the number of the bugs is not a factor. I have the virus and it is being treated. My blood test form just says on Hep C treatment. Monitoring Bloods. I did get a copy of the results from my GP as it was sent to her as well as my treatment provider so now know there were a few slight abnormalities in my bloods in general, but my liver ones were all good so that's the main thing I guess. Guess I will just go with the flow and see where it takes me come Oct.

As to sleep, I was really hoping that would improve but alas....nope. Although I do have a teli in bedroom I only use it to watch my programs of an evening sometimes, particularly when it is cold, but I turn it off when I think Im feeling tired and do no turn it back on overnight. I lay in bed all night whether I sleep or not. The trouble is wake up so often, sometimes even as often as half hourly, sometimes I go straight back to sleep but often I dont. last night I had a big gap between 1am and 3.30. From 3.30 I slept well till after 7 which is a little later than normal. From 10 - 1 I only slept in little breaks. I've been like this for prob 20 years. It so annoys me. I would love to shut my eyes at 10 and open them at 6 but it don't happen. My average sleep would be under six hours which I find OK. Its these nights that I only get 2 to 3 hours that drive me batty. Such is life. These things were sent to test us. I shall keep hoping that this along with my other issues improve. 

 



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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Mikenan,

Glad to meet you (although you have been a member for a while now). I am so glad you got your epclusa, that was a long time coming for you, so I am very glad you are so far along now, and doing very well it sounds.smile

You should post more, and often, we would be all ears biggrin - why not open your own "On Treatment" thread so we can can have longer chats about your journey, and you need a signature line - how about something like this (for a start) just a suggestion, it can be changed radically, anytime, to suit yourself ...

Male, Age ___, HCV probably since 1970, Dx 2002, GT2, Biopsy 2007 - "stage 1", used to take milk thistle. Pre-treatment VL ___, ALT ___, AST ___, (and/or, other test results). Tx Epclusa 12 weeks - SOT April? __, 2018 to EOT _?_, 2018.  Week 4 blood test results ..., EOT blood tests ..., no "on treatment" VL's to be draw ... VL at EOT+12 weeks ...

You are in good company with your fellow epclusians here - all have done SO WELL! Yippee! C.

 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

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STL, 

Beauty labs - those 4 week results (no doubt) please everyone! smile  We all know what they mean. biggrin

Sorry I did not celebrate these good numbers with you sooner - about the time your numbers were returning, I was on my "away". But I did a little happy  dance for you as soon as I saw them. Lovely to have those "numbers" under your belt, isn't it - are you feeling more and more confident now, going forward, seeing how well the magically powerful VEL is?! Wonderful drugs Gilead has created, just for us! An early crashed ALT heralds only good news. All your numbers are just excellent.

BTW - I didn't go into your links re: GGT, but we have discussed GGT's on the site and read about a lot of these other tests before. They are all interesting to learn about. GGT's can just simply be elevated right along with other labs being elevated when one has hepatitis. But as an aside, one thing I learned about GGT's, is that for those with a real problem with drinking, and their liver is already compromized/suffering and the pt and doc are both hoping the pt. can sustain abstaining, GGT's can also be a handy rough guide to show when someone has "fallen off the wagon", as GGT's can rise when alcohol is added as fuel to the liver fire. Just an interesting general tidbit. 

You, in the "down under" and our other commonwealth buddy "mikenan" from Canada, who we have now met on your thread, both are not being offered VL's until EOT+12 weeks - which just goes to show you it is not a country thing, nor a regulatory thing, just those docs deciding not to test, and that can be taken as a positive, that they are positive and confident in the already-proven powerful epclusa and your good predictable (telling) early response to them, as shown and clearly indicated by your good "crashed" 4 weeks labs. You will have the luxury of comparing your pre-treatment VL to your EOT+12 week SVR VL of ZERO! 

Some people cannot be patient enough to wait to know (ahem ,,, that would be me! wink) but I was lucky and had frequent bloodletting and VL's done during my trial, because it WAS a trial.

Others with more self-directed treatments paid to get VL's done when they decided they wanted them.

I am a believer in expensive, frequent, repeat testing - (the L'oreal syndrome) - nothing too good for the pt., I was glad to know everyone of my many labs and my VL's,  the feedback gave me comfort and interesting info.

I am still surprised when they do this (no 4 week VL nor an EOT VL') but it IS true, they can base your good response your 4 week and other on-treatment lab results, but still, I (personally) would want a 4 week and an EOT VL -  just me - I am NOT a patient person!

Gee whiz, I am lamenting for you with the insomnia issue - man, I hope you can get more zzzz's than that (somehow)!, a body and mind NEEDS rest and real sleep, complete with REM and recoup/healing time - ummm, are you sposed to have TV in bedroom if one is an insomniac - jes sayin! (ya.ya, I know, I'm a party pooper), and, easy for me to say, someone who can count her lifetime insomnia days prolly on both hands! Just tell me to button it. 

I will just use my strongest levels of telepathic hypnosis on you, over the pond, and simply insist on willing to you "a few extra deep irresistable ZZZ's tonight"! Sleep, lovely sleep I wish for you.  smile C. 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Also thx to you 5-1-18

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Thx Tig and Stl. Its good to be able to relate to others going through this. Gid bless.

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66 yr male stage 1 GT 2 contracted early 70s diagnosed 2002 SOT Apr 18/18 Epclusa start bil 20 ast 28 alt 25 after 8 wks bil 8 alt 17 ast 23



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Hi Mike,

Pleased to meet you. Sounds like you are doing great. I am now 5 1/2 weeks into treatment and everything is going pretty well with me. I have another test like this one at end of treatment. Like you, my tests will not include viral load until October but they were very pleased with the bloods I had taken at 4 weeks. Seems our wonder drug is doing its stuff so that is great for us all. We are so fortunate with our treatment to have the wonderful new DAA's that's for sure. Success rates are so high its just amazing.

Thanks for joining us. Look forward to hearing more



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND



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yay mike



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=Waiting for 3mo.VL.July=norm liverpanel.13weeks=UND

Tig


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Hey Mike,

Glad to hear all of your tests came back good! Normally they are checking your pancreas enzymes when running a Lipase test. We often see fluctuations in various lab values during treatment. If your doc says things are okay, then take note of it for future reference and don’t worry about it. 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Just found this post so thought i would add.  Just finished my 7th week.  Haven't had any side effects and had blood work done after my 4th week.  My Doc only did the Hematology, creatinine, eGFR, bilirubin and ALT test.  They all showed normal range.  ALT was down to 16 from last year test.  He also had me do a Lipase test which came back 2.5 times the norm but told me things were ok.  Don't know if anyone else had this test done.  Well next week i go for the same tests then no tests until end of Oct when i will have been finished the pills for 3 months, that is when i get the Hep C RNA test done.  Hope it works out for everyone on this treatment because it really is a godsend.



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66 yr male stage 1 GT 2 contracted early 70s diagnosed 2002 SOT Apr 18/18 Epclusa start bil 20 ast 28 alt 25 after 8 wks bil 8 alt 17 ast 23



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Yes I do feel I'm doing pretty good with the water consumption. The glass I keep refilling is quite large so three is over a litre in 3 (prob holds around 400ml) It is now 10.15 am and I am on my 6th glass along with 2 cups of tea and my smoothie. Seem to have quite a thirst this morning. I normally would drink at least 2 litres of water a day....now Ive done that by this time of day to allow me to double up. I like to know Ive hit the half way mark early, while I'm just doing a few chores. I slow down in the afternoon but want to hit the half way mark at least by mid morning if I can, so I have a little leeway in the afternoon/evening if I go out. I manage to hit the 4 litres now easily enough so that is good.



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66/F Contracted Early 80's First Diagnosed Early 2000's 2017 re diagnosis and referral for treatment Gen 3a Fibroscan 8.7

Epclusa 12 weeks commenced 1 May 2018 ALT 72 AST 67

28 May 2018 4 weeks ALT 16 AST 23 ...... 23 July 2018 EOT ALT 23 AST 30 .....Oct 16 2018 SVR12 UND

Tig


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Here’s a friendly guide!  

26EE709A-AEA0-423A-8F21-6C2071AAFE12.jpeg



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 1-4 years!

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Absolutely fill a gallon jug with water and make sure you drink all of it between 8 AM or whenever you get up and about 10 PM.



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Male, 65, Dx 1990, GT 2a/2c. Pre-tx VL 11,500,000, ALT 10, AST 18, F3, 12.4 kPa. Rx: 12 weeks Epclusa, SOT 3/8/18, EOT 5/30/18. Week 2 VL 50, ALT 12, AST 21. Week 10 VL not detected, ALT 12, AST 18. EOT + 12 weeks: VL not detected, ALT 11, AST 19. EOT + 24 weeks VL not detected, ALT 9, AST 24.

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