Hep C Discussion Forum

Jaded · Jaded

After giving me written instructions with my 1st bottle of Harvoni not to remove from original container...the pharmacy removed the pills from the bottle and put them into a another pill box. The PDF states... 16: HOW SUPPLIED/STORAGE AND HANDLING HARVONI tablets are orange, diamond-shaped, fil...

coolheat · coolheat

Picked up some of labs @ Dr.s office today, to understand some of my #'s better with the wealth of info. here. Says that I tested positive for cryoglobulin with no damage to kidneys. It was positive after 24 hrs. negative after 72 hrs.. Also says that I am 1a, which I thought I was 1b. Also says trace a...

Femapples · Femapples

Hi all, I'm starting my 11th week on Viekira Pak and Ribaviron. As you can see by my signature line, my kidneys are involved. The other day, I had a urinalysis which showed my protein level to be 2+. This seems to be down from 3 which was measured in June 2014. On June 24th, the day after I end this drug re...

coolheat · coolheat

Hi All, the rocket ride is leveling off now. Am aware of the antiviral headache verses a tension headache. Antiviral headache is at the base of the back of my head. My Dr. said it was ok to take a 325 Tylenol 4 times spread out over 24 hrs.. Am according to what I have read here, must be F 3 or 4, prior to, but j...

Bills · Bills

Evey day is another adventure 13 days After EOT I get my VL result said " Unable to calculate result" Since non-numeric number result was obtained. The good news is I was told by Labcore this " Unable to calculate result" means the PCR/NIG test couldn't read any numbers " l...

rufus56 · rufus56

feeling blessed! After 25 years of the dragon, it will be slayed. Continue to use 50 mg of tramadol for pain daily, also helps with insomnia. Some would be R on here chastized me, but hey, my Doc says its okay. OTC are ineffective and mess with my digestive system. I use an far infrared sauna @115 degrees...

coolheat · coolheat

Like many who haven't had many, if any side effects, I did not eat as well as have been yesterday, did not drink as much water, had a small amt. of sugar, paid for it last night. Through the night I experienced nausea, insomnia, acid stomach, muscle discomfort. I will correct this today and pray the calm...

S1jiujitsu · S1jiujitsu

Hi. I have genotype 1. I had a vl of 247,000 and was a F1. I started an 8 week course of harvoni. At just 2 weeks I was undetectable. My alt went from 198 to 29. I am so grateful for this wonder drug. I have experienced extreme fatigue while on treatment. I was wondering is this normal? And when treatment is ove...

Dickey · Dickey

I am on my 39th day of 12 week Harvoni & my doctor did not request blood work even after calling before the first 4 weeks. The pharmacy told me that some insurance companies were refusing to pay the remainder of scripts if your blood work came back clear. Now I understand why my doctor wants to wait 3 m...

Michaele · Michaele

Has any one else lost weight on Harvoni ? Tomorrow will begin 3rd week and Im down about 8 - 10 lbs. Its one of the grade 2 side effects and took me forever to find a page confirming it. Michaele -- Edited by Michaele on Saturday 20th of December 2014 12:31:52 PM

KPB · KPB

I have been taking Harvoni for 5 days now, it seems that the first couple days the side effects were very mild. But this morning I was feeling pretty bad, headache, nausea, and fatigue even though I just woke up from a 9 hour sleep. I have been drinking 80 to 90 ozs of fluids each day. Do Harvoni side...

KPB · KPB

I haven't begun Harvoni treatment as yet, but I will be soon. I am concerned about the side effects of coarse, and weather they will effect my job duties. I spend 4 to 6 hours a day in my car, on a freeway. Stopping two or three time along the way. Do I need to take some time off work to get use to the effects of Ha...

JLynch30 · JLynch30

ALT<=63 U/L47ALKALINE PHOSPHATASE<=125 U/L90BILIRUBIN, TOTAL<=1.0 mg/dL1.0

Gracie · Gracie

Well, got the call from the pharmacy today. And spoke to my hepologists nurse. My viral load is just over 6,000,000. My platelets are 82 and ALTs are 43. And he put the claim through on both my insurance plans while,I was on the phone with him, and it seems I'm covered 100%. I asked him the cost to just know f...

Lock · Lock

hi, I belonged to this forum a few years ago when I was on triple therapy. It didn't go to well, had to stop at 8 weeks because of rash. I'm still feeling the effects of that treatment, I hope Harvoni has better results. Anyway I will read what others are going through and know what to expect. Thanks in a...

Femapples · Femapples

(Sung to the tune of "Unforgettable") Undetectable, that's what I am....... I am positively thrilled. However, my hemoglobin appears to be dropping so I'm being retested next week and may have to reduce the Ribaviron. I saw some posts about that in another section and the posters tal...

Brian1412 · Brian1412

My Dr and I have a date Monday morning, and I am trying to use this opportunity to clear a lot of things for ME as I get to eot here shortly. 1) Why does my Healthcare system tell me they are not allowed by law to say undetected on my undetected viral test? Probably more BS from them, but they still said it...

KPB · KPB

I stopped drinking alcohol 25 years ago, that's probably the reason I am still here to write this today. Now at the age of 60, I would like to stick around another 20 or 30 years or more. Are there any ideas out there on how to reverse and regenerate my liver ? thanks ,

JLynch30 · JLynch30

Okay - I am going in tomorrow for my 4 week eot bloods May I adapt to what is. -- Edited by JLynch30 on Tuesday 2nd of June 2015 06:14:06 AM

Jaded · Jaded

Won't have my 1st VL test until week 4...but after 2 weeks on Harvoni of the 24 weeks treatment all other indicators came in with the normal ranges except blood platelets @ 131 (normal being 150-400)...previously before treatment they were 95. AST 29/ALT 34 from 70 & 77. Direct Bilirubinm 6 down f...

TazKat · TazKat

I can't find the post where after tx someone wondered would it be ok to perhaps have a glass of wine.. i think (not sure) that someone responded that it could mazke the hep c come back?? that puzzles me because i got hep c from a dirty needle in the 70's.. infected blood.. guess i am misssing something? i...

hepCFREEwanab · hepCFREEwanab

It is my understanding that the only way to relapse after clearing the virus, would be if that person were to be "Reinfected again"! Am I wrong? Mena

Roey · Roey

good p.m. my harvonian family, I have such awful heartburn like I have never felt before. It feel like the dragon jumped inside my digestive system and throat. I wanted to take Prilosec but didn't take it until I know if it's okay to take. I feel really under the weather. I have no every even to get ou...

Shiraz20 · Shiraz20

Hello guys, New to the forum. I just need to ask that my father was on sovaldi treatment for 4 days when his (serum) creatinine level shot up to 2.53 which later came down to 1.96 and now at 1.43. He has no renal impairment and his kidney ultrasound and detailed urine report is perfectly normal. He is cirr...

bubble · bubble

Hi All....Saw my Doc yesterday. He said my MCH level is normal for Ribavirin. No anemia, but wants an EOT blood test. He said a 40 score above a 32 max. would concern him. Riba does tend to kick up your hemaglobin stats. He is concerned about my glucose/serum level which was never elevated and will w...

Mugsy · Mugsy

It's official 12 weeks post treatment UND !

darkstar · darkstar

I have been following the literature. Eighteen months ago, ribavirin was essentially dead as a part of HCV therapy. In the fall, it was back in the armamentarium in addition to combos like Harvoni. Today, the role is increasingly clear for cirrhotics with genotype 1. If you fit this category, as...

bubble · bubble

I have my 8 week lab test showing great news. "NOT DETECTED" My Glucose /Serum is still 122 or high. ACH is now up 33.2 The limit is 33. Maybe anemia is starting. I see the Doc Tuesday. Everyone have a great holiday! This will make it sweeter for me. I just saw a few EOT signs out the window o...

Brian1412 · Brian1412

RBC 4.16 _X10^6 (Low)DateMay 21, 2015 01:57 p.m. EDTReference Range4.30 _X10^6 - 5.80 _X10^6ALT 13 units/L (Normal)DateMay 21, 2015 01:57 p.m. EDTReference Rangeunits/L - 55 units/L AST 23 units/L (Normal)DateMay 21, 2015 01:57 p.m. EDTReference Range5 units/L - 34 units/LAlbumin Lvl 3.4...

JLynch30 · JLynch30

I can't seem to find anyone who has had their 4 month EOT treatment after 24 week of Harvoni. I got for my week 4 eot blood in two weeks.

Topic		Started By	Replies	Views	Last Post
	My 2 bottle of Harvoni was opened by the pharmacy (Preview) After giving me written instructions with my 1st bottle of Harvoni not to remove from original container...the pharmacy removed the pills from the bottle and put them into a another pill box. The PDF states... 16: HOW SUPPLIED/STORAGE AND HANDLING HARVONI tablets are orange, diamond-shaped, fil...	Jaded	8	1847	Jun 13, 2015 by Jaded
	Cryoglobulin (Preview) Picked up some of labs @ Dr.s office today, to understand some of my #'s better with the wealth of info. here. Says that I tested positive for cryoglobulin with no damage to kidneys. It was positive after 24 hrs. negative after 72 hrs.. Also says that I am 1a, which I thought I was 1b. Also says trace a...	coolheat	4	1097	Jun 12, 2015 by mallani
	Two Questions: Kidneys and Hot Flashes (and not necessarily related) (Preview) Hi all, I'm starting my 11th week on Viekira Pak and Ribaviron. As you can see by my signature line, my kidneys are involved. The other day, I had a urinalysis which showed my protein level to be 2+. This seems to be down from 3 which was measured in June 2014. On June 24th, the day after I end this drug re...	Femapples	4	1301	Jun 11, 2015 by Femapples
	10th day on Harvoni (Preview) Hi All, the rocket ride is leveling off now. Am aware of the antiviral headache verses a tension headache. Antiviral headache is at the base of the back of my head. My Dr. said it was ok to take a 325 Tylenol 4 times spread out over 24 hrs.. Am according to what I have read here, must be F 3 or 4, prior to, but j...	coolheat	2	1259	Jun 11, 2015 by Tig
	Unable to calculate VL ( is this a new one ?) (Preview) Evey day is another adventure 13 days After EOT I get my VL result said " Unable to calculate result" Since non-numeric number result was obtained. The good news is I was told by Labcore this " Unable to calculate result" means the PCR/NIG test couldn't read any numbers " l...	Bills	6	1741	Jun 10, 2015 by dharmabum
	4 week blood test -UNDETECTABLE (Preview) feeling blessed! After 25 years of the dragon, it will be slayed. Continue to use 50 mg of tramadol for pain daily, also helps with insomnia. Some would be R on here chastized me, but hey, my Doc says its okay. OTC are ineffective and mess with my digestive system. I use an far infrared sauna @115 degrees...	rufus56	1	855	Jun 10, 2015 by Tig
	Diet is really important (Preview) Like many who haven't had many, if any side effects, I did not eat as well as have been yesterday, did not drink as much water, had a small amt. of sugar, paid for it last night. Through the night I experienced nausea, insomnia, acid stomach, muscle discomfort. I will correct this today and pray the calm...	coolheat	12	1530	Jun 9, 2015 by Tig
	Harvoni treatment related fatigue (Preview) Hi. I have genotype 1. I had a vl of 247,000 and was a F1. I started an 8 week course of harvoni. At just 2 weeks I was undetectable. My alt went from 198 to 29. I am so grateful for this wonder drug. I have experienced extreme fatigue while on treatment. I was wondering is this normal? And when treatment is ove...	S1jiujitsu	13	2530	Jun 8, 2015 by S1jiujitsu
	Harvoni & Insurance (Preview) I am on my 39th day of 12 week Harvoni & my doctor did not request blood work even after calling before the first 4 weeks. The pharmacy told me that some insurance companies were refusing to pay the remainder of scripts if your blood work came back clear. Now I understand why my doctor wants to wait 3 m...	Dickey	3	1007	Jun 8, 2015 by Bills
	wt loss on Harvoni (Preview) Has any one else lost weight on Harvoni ? Tomorrow will begin 3rd week and Im down about 8 - 10 lbs. Its one of the grade 2 side effects and took me forever to find a page confirming it. Michaele -- Edited by Michaele on Saturday 20th of December 2014 12:31:52 PM	Michaele	38	5389	Jun 7, 2015 by Cinnamon Girl
	5 days on Harvoni (Preview) I have been taking Harvoni for 5 days now, it seems that the first couple days the side effects were very mild. But this morning I was feeling pretty bad, headache, nausea, and fatigue even though I just woke up from a 9 hour sleep. I have been drinking 80 to 90 ozs of fluids each day. Do Harvoni side...	KPB	4	1276	Jun 6, 2015 by B161
	Have not begun treatment yet (Preview) I haven't begun Harvoni treatment as yet, but I will be soon. I am concerned about the side effects of coarse, and weather they will effect my job duties. I spend 4 to 6 hours a day in my car, on a freeway. Stopping two or three time along the way. Do I need to take some time off work to get use to the effects of Ha...	KPB	11	2290	Jun 6, 2015 by Cinnamon Girl
	My 4 week EOT liver panel - thoughts? (Preview) ALT<=63 U/L47ALKALINE PHOSPHATASE<=125 U/L90BILIRUBIN, TOTAL<=1.0 mg/dL1.0	JLynch30	2	1111	Jun 5, 2015 by Tig
	Pre Train questions. (Preview) Well, got the call from the pharmacy today. And spoke to my hepologists nurse. My viral load is just over 6,000,000. My platelets are 82 and ALTs are 43. And he put the claim through on both my insurance plans while,I was on the phone with him, and it seems I'm covered 100%. I asked him the cost to just know f...	Gracie	1	818	Jun 5, 2015 by Brian1412
	Starting treatment with harvoni (Preview) hi, I belonged to this forum a few years ago when I was on triple therapy. It didn't go to well, had to stop at 8 weeks because of rash. I'm still feeling the effects of that treatment, I hope Harvoni has better results. Anyway I will read what others are going through and know what to expect. Thanks in a...	Lock	2	873	Jun 4, 2015 by Tig
	The Four Week Mark: Whoopie!!! (Preview) (Sung to the tune of "Unforgettable") Undetectable, that's what I am....... I am positively thrilled. However, my hemoglobin appears to be dropping so I'm being retested next week and may have to reduce the Ribaviron. I saw some posts about that in another section and the posters tal...	Femapples	42	4322	Jun 3, 2015 by Cinnamon Girl
	Questions questions questions (Preview) My Dr and I have a date Monday morning, and I am trying to use this opportunity to clear a lot of things for ME as I get to eot here shortly. 1) Why does my Healthcare system tell me they are not allowed by law to say undetected on my undetected viral test? Probably more BS from them, but they still said it...	Brian1412	19	2360	Jun 3, 2015 by Cinnamon Girl
	F3 Fibrosis (Preview) I stopped drinking alcohol 25 years ago, that's probably the reason I am still here to write this today. Now at the age of 60, I would like to stick around another 20 or 30 years or more. Are there any ideas out there on how to reverse and regenerate my liver ? thanks ,	KPB	16	3753	Jun 3, 2015 by Cinnamon Girl
	tomorrow is my week 4 eot labs (Preview) Okay - I am going in tomorrow for my 4 week eot bloods May I adapt to what is. -- Edited by JLynch30 on Tuesday 2nd of June 2015 06:14:06 AM	JLynch30	4	954	Jun 2, 2015 by Tig
	2 week Blood test results (Preview) Won't have my 1st VL test until week 4...but after 2 weeks on Harvoni of the 24 weeks treatment all other indicators came in with the normal ranges except blood platelets @ 131 (normal being 150-400)...previously before treatment they were 95. AST 29/ALT 34 from 70 & 77. Direct Bilirubinm 6 down f...	Jaded	2	931	Jun 2, 2015 by Jaded
	got a ?!!!!! bout alcohol (Preview) I can't find the post where after tx someone wondered would it be ok to perhaps have a glass of wine.. i think (not sure) that someone responded that it could mazke the hep c come back?? that puzzles me because i got hep c from a dirty needle in the 70's.. infected blood.. guess i am misssing something? i...	TazKat	33	2405	May 31, 2015 by Brian1412
	Can someone please "Clarify what would cause a RELAPSE after clearing the virus?" (Preview) It is my understanding that the only way to relapse after clearing the virus, would be if that person were to be "Reinfected again"! Am I wrong? Mena	hepCFREEwanab	6	1376	May 31, 2015 by Femapples
	What to do with horrible heartburn. (Preview) good p.m. my harvonian family, I have such awful heartburn like I have never felt before. It feel like the dragon jumped inside my digestive system and throat. I wanted to take Prilosec but didn't take it until I know if it's okay to take. I feel really under the weather. I have no every even to get ou...	Roey	22	4611	May 30, 2015 by Tess1971
	[Urgent] Cirhosis, Elevated creatinine and sovaldi+ribavirin (Preview) Hello guys, New to the forum. I just need to ask that my father was on sovaldi treatment for 4 days when his (serum) creatinine level shot up to 2.53 which later came down to 1.96 and now at 1.43. He has no renal impairment and his kidney ultrasound and detailed urine report is perfectly normal. He is cirr...	Shiraz20	7	1927	May 29, 2015 by Cinnamon Girl
	My 8 week Hepatologist's review. (Preview) Hi All....Saw my Doc yesterday. He said my MCH level is normal for Ribavirin. No anemia, but wants an EOT blood test. He said a 40 score above a 32 max. would concern him. Riba does tend to kick up your hemaglobin stats. He is concerned about my glucose/serum level which was never elevated and will w...	bubble	6	1359	May 28, 2015 by bubble
	Another Dragon Bites the Dust!! (Preview) It's official 12 weeks post treatment UND !	Mugsy	7	888	May 28, 2015 by Rickk
	Ribavirin (Preview) I have been following the literature. Eighteen months ago, ribavirin was essentially dead as a part of HCV therapy. In the fall, it was back in the armamentarium in addition to combos like Harvoni. Today, the role is increasingly clear for cirrhotics with genotype 1. If you fit this category, as...	darkstar	2	960	May 27, 2015 by Cinnamon Girl
	8 weeks still "Not Detected" (Preview) I have my 8 week lab test showing great news. "NOT DETECTED" My Glucose /Serum is still 122 or high. ACH is now up 33.2 The limit is 33. Maybe anemia is starting. I see the Doc Tuesday. Everyone have a great holiday! This will make it sweeter for me. I just saw a few EOT signs out the window o...	bubble	5	1106	May 26, 2015 by Ro
	Labs starting to come in (Preview) RBC 4.16 _X10^6 (Low)DateMay 21, 2015 01:57 p.m. EDTReference Range4.30 _X10^6 - 5.80 _X10^6ALT 13 units/L (Normal)DateMay 21, 2015 01:57 p.m. EDTReference Rangeunits/L - 55 units/L AST 23 units/L (Normal)DateMay 21, 2015 01:57 p.m. EDTReference Range5 units/L - 34 units/LAlbumin Lvl 3.4...	Brian1412	26	2124	May 24, 2015 by Brian1412
	Any news on relapse after 24 weeks of harvoni? (Preview) I can't seem to find anyone who has had their 4 month EOT treatment after 24 week of Harvoni. I got for my week 4 eot blood in two weeks.	JLynch30	10	2234	May 24, 2015 by malekula man
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