Hep C Discussion Forum

hepCFREEwanab · hepCFREEwanab

UND, UND, UND! Oh I wish My husband did NOT have HCC!!!!! Praying to GOD that everything will go well with the Radioembolisation At least now the virus is no longer there to hurt the Liver! The doctor extended his treatment to 24 weeks and the Insurance promptly approved the request. Mena

Mugsy · Mugsy

My A1C has risen since I started Harvoni. Anyone else have this happen to them, too?

bauhaus76 · bauhaus76

does anybody has the same?

Lowrider · Lowrider

Below are test results that seem to me out of whack, but who am I to judge? Trying to determine if there is cirrhosis along with the high score for fibrosis. I am 7 weeks into 24 weeks of Harvoni, prior relapse a couple years ago Victrelis/Int/Rib 28 weeks. HCV1A. No biopsy in over 15 years. That biopsy did...

dragonfly · dragonfly

I don't know about anyone else but I think that there is so little info on these new and much welcomed drugs that maybe we should compile some kind of list of sides. Some physicians know about these but most don't and you feel that you can't keep going to see them for hand cramps, itching etc. Anyone who h...

Matt Chris · Matt Chris

Have you ever wondered where the HCV replicates within your body? I have asked multiple Doctors, read books that have made statements and heard other strange answers. What do you think? Where is the Virus Hiding? It seems very important to recognized that the replication process takes place some...

maddie · maddie

Thought it would be helpful to have all those taking the off-label treatment to be grouped together in some way. If you are on Sovaldi/Olysio either with or without Riba, would you mind posting here so that we can get a better idea of how many are on these protocols, the side effects, if any, with and wit...

steelfire453 · steelfire453

Just got blood test back after 8 weeks . Undetectable 3 weeks left now Treated a few years ago Incivek Riba and interferon cleared but came back crazy ride Hope this time it sticks. This drug seems to be the real deal

hepCFREEwanab · hepCFREEwanab

Hello everyone, just wanted to update on what has been going on with my husband Angelo. I had posted that during an MRI 3 tumors were found on his liver meausuring 5cm, 2.1cm, 1.9cm. Of the 3, the 1.9cm seems to be a nodule. The other two will be treated with RADIOEMBOLIZATION at Mt. Sinai Hospital in NY...

Rc · Rc

I have been approved and begin 3 month treatment of Harvoni today. I am geno type 1b and did the Interferon nightmare bout 15 years ago. Very eager to get into this and a little scared at the same time. So begins the journey......

Lawmatt · Lawmatt

hi all hope everyone is tamming this toxic invader. at 24 weeks and half way through triple x im managing fairly well and most servere sides have settled or im becoming more in control and dealing with it easier. if anything which i am struggling with at times is a cloud of depression hovers over me round...

Ro · Ro

Just got my 8 week results: ALT and AST - remain normal MCV , INR - now normal ALK PHOSPHATASE 174 (high) PT 14.5 (high) PLATELETS 103(low) SEGS 42 (low) ALBUMIN 3.1 (low) Feeling good, just aches and pains especially my left shoulder Cannot wait to be done.. 15 weeks t...

mikeinco · mikeinco

I finally received my lab results from just prior to starting on Harvoni, came back with a viral load of 3.4 million IU/ml and a Log IU/ml of 6.5. All of my other lab including LFT's were well within normal. The only thing out of whack was my Hgb/Hct of 17.6/51.8 and even though I live at 9000' my PCP seems to...

Rderouen · Rderouen

While on board the Harvoni Train yesterday an emergency stop was made at my doctors office. The doctors nurse wanted to tell me something and this is what she had to say "Congratulations! You virus is undetectable!" I wanted to cry so bad. I have been on Harvoni for just a little over a month a...

basser · basser

hi. 4 got to ask.has anybody been on the same meds as me sofboscavir dactasivir and ribavirin.would really like to know how they fared.thanks

RudiRoo · RudiRoo

I was going to skip the EOT viral load test and just do the 12 week post treatment to save $$. My Yoda-like reasoning - it is, or is not. My family wants me to get it and suggested since I'm in the states already, to just get it now, 19 days prior to EOT as it might cost less here. I thought I was fine skipping it, b...

pl1952 · pl1952

Hey guys, I've been forewarned that I'm in for a battle to get approved for Harvoni for 8 weeks. Mr. Dr. suggested Abbvie's Viekira Pak, which I would take for 12 weeks, no ribavirin. He said its 99% effective for gt 1b's. At first I was disappointed because I had been waiting a long time for Harvoni, k...

Mugsy · Mugsy

Hepatitis C RNA, Quant, NAAT - Final result (12/22/2014 1024 PST) " HCV RNA, Quant PCR Result: <15 international units/ml Comment: This test is performed using the FDA-cleared COBAS AmpliPrep/COBAS TaqMan HCV Test, v2.0. HCV RNA linear range of detection is 15 to 100,000,000 IU/mL. The C...

angelseven · angelseven

My viral load was 1.8 million... on week two virus was barely detected... waiting for week 4 results... all blood tests normal.. at two weeks alt and ast in normal range.. first time in 18 years... so I am a little worried about only doing 8 weeks, that is all my insurance will pay for.. I could push it and g...

Sierrajen · Sierrajen

I thought i should be getting a VL at 8 weeks and really wanted to see because i wasn't UND at 4 weeks but then I found this. I think i fulfilled the criteria for the 4 week draw but Its all greek to me so I started around 13 million and then got to Hepatitis C Qnt by PCR IntUnit/mL 50 IntUnit/mL I guess that mean...

Tess · Tess

Hi all, What is the best way to change the time of day for taking Harvoni? I want to take it about 5 hours later than I take it now. Is it better to change gradually, like an hour later each day, or to just do it in one change? Thanks! - Tess

RudiRoo · RudiRoo

I was in a plane crash when I was two, remember very little and had no idea I had a fear of flying until I was an adult and had a massive panic attack on take off. For years, a glass of wine prior to take off and one half an hour before landing has kept the terrors at bay. After learning I had Hep C I tried meditati...

fourlocos · fourlocos

I am on day 13 of my treatment. Was an unlucky number for me I guess because I started out fine when I headed into work today. Within a half an hour I started getting chills and then a sore throat. I could barely drive home I was so messed up. Not being able to really take anything but maybe a couple Tyleno...

RudiRoo · RudiRoo

Hi all, up in South Carolina, went out briefly (15 min) and skipped the sun screen as it's so cold here and the winter sun seems so weak compared to home. And now, I'm Rudolph's doppelgänger. Very sensitive, and oh how sorry for the transgression, poor nose! Seems like I'm one of the last on the S/O Train b...

hepCFREEwanab · hepCFREEwanab

To all that celebrate this joyious Holiday, we want to wish most of all HEALTH for EVERYONE in 2015! MENA & ANGELO

JLynch30 · JLynch30

I got the report from my MRI and it says Lesion demonstrates peripheal enhancement with subsequent filling." i get that is good news after it has not changed in a year but what about: small areas of early enhancement in the right dome of the liver are most likely perfusion irregularities. The...

Harvoninme · Harvoninme

7 week VL test = undetectable! On to SVR!

The biggest side effect has been the positive change in my attitude about life. I have a future now. I'm going back to school. I'm ready to take on the world. Now I'm crying. Dammit. Happy te...

shadow10cats · shadow10cats

I haven't started treatment yet but the one thing with Harvoni, unless I missed something is that everyone is dosed at the same level. I'm just curious if weight plays into whether or not you have any side effects. I'm 100# right now give or take depending on how much gelato I ate that week (carmel yummmm...

Lon · Lon

Hi, Yes, I'm vain. I admit it. Not proud of it, but I admit it. I'm hoping to start Harvoni next month. Can anyone who is currently on it, tell me if it makes you look sickly while you're taking it? By sickly I mean, pale, circles under your eyes, splotchy skin, blood shot eyes, weird skin blisters, hai...

angelseven · angelseven

Is there anyone else on 8 weeks of treatment that is worried about treating such a short amount of time??

Topic		Started By	Replies	Views	Last Post
	8 week results! (Preview) UND, UND, UND! Oh I wish My husband did NOT have HCC!!!!! Praying to GOD that everything will go well with the Radioembolisation At least now the virus is no longer there to hurt the Liver! The doctor extended his treatment to 24 weeks and the Insurance promptly approved the request. Mena	hepCFREEwanab	6	1021	Jan 28, 2015 by Ro
	Higher A1C with Harvoni? (Preview) My A1C has risen since I started Harvoni. Anyone else have this happen to them, too?	Mugsy	3	1160	Jan 27, 2015 by hepCFREEwanab
	this constant bip in my ear is making me crazy :( (Preview) does anybody has the same?	bauhaus76	7	1686	Jan 27, 2015 by shadow10cats
	Do these tests add up? (Preview) Below are test results that seem to me out of whack, but who am I to judge? Trying to determine if there is cirrhosis along with the high score for fibrosis. I am 7 weeks into 24 weeks of Harvoni, prior relapse a couple years ago Victrelis/Int/Rib 28 weeks. HCV1A. No biopsy in over 15 years. That biopsy did...	Lowrider	3	1728	Jan 26, 2015 by Lowrider
	Sides (Preview) I don't know about anyone else but I think that there is so little info on these new and much welcomed drugs that maybe we should compile some kind of list of sides. Some physicians know about these but most don't and you feel that you can't keep going to see them for hand cramps, itching etc. Anyone who h...	dragonfly	10	1880	Jan 26, 2015 by rblood
	Where is the Virus hiding in our Body? (Preview) Have you ever wondered where the HCV replicates within your body? I have asked multiple Doctors, read books that have made statements and heard other strange answers. What do you think? Where is the Virus Hiding? It seems very important to recognized that the replication process takes place some...	Matt Chris	25	2457	Jan 25, 2015 by RudiRoo
	Would those taking off-label Sovaldi/Olysio with or without Riba mind posting here? ( First … Last » ) (Preview) Thought it would be helpful to have all those taking the off-label treatment to be grouped together in some way. If you are on Sovaldi/Olysio either with or without Riba, would you mind posting here so that we can get a better idea of how many are on these protocols, the side effects, if any, with and wit...	maddie	823	65339	Jan 22, 2015 by Gator Man
	Harvoni results after 8 weeks (Preview) Just got blood test back after 8 weeks . Undetectable 3 weeks left now Treated a few years ago Incivek Riba and interferon cleared but came back crazy ride Hope this time it sticks. This drug seems to be the real deal	steelfire453	2	1402	Jan 21, 2015 by Groupergetter
	I don't know where to start! (Preview) Hello everyone, just wanted to update on what has been going on with my husband Angelo. I had posted that during an MRI 3 tumors were found on his liver meausuring 5cm, 2.1cm, 1.9cm. Of the 3, the 1.9cm seems to be a nodule. The other two will be treated with RADIOEMBOLIZATION at Mt. Sinai Hospital in NY...	hepCFREEwanab	7	1413	Jan 19, 2015 by Gator Man
	start harvoni today (Preview) I have been approved and begin 3 month treatment of Harvoni today. I am geno type 1b and did the Interferon nightmare bout 15 years ago. Very eager to get into this and a little scared at the same time. So begins the journey......	Rc	11	1716	Jan 17, 2015 by Rc
	Half way today :)) (Preview) hi all hope everyone is tamming this toxic invader. at 24 weeks and half way through triple x im managing fairly well and most servere sides have settled or im becoming more in control and dealing with it easier. if anything which i am struggling with at times is a cloud of depression hovers over me round...	Lawmatt	6	1470	Jan 15, 2015 by TazKat
	8 week labs (Preview) Just got my 8 week results: ALT and AST - remain normal MCV , INR - now normal ALK PHOSPHATASE 174 (high) PT 14.5 (high) PLATELETS 103(low) SEGS 42 (low) ALBUMIN 3.1 (low) Feeling good, just aches and pains especially my left shoulder Cannot wait to be done.. 15 weeks t...	Ro	6	1173	Jan 10, 2015 by Ro
	Finally got some lab results! (Preview) I finally received my lab results from just prior to starting on Harvoni, came back with a viral load of 3.4 million IU/ml and a Log IU/ml of 6.5. All of my other lab including LFT's were well within normal. The only thing out of whack was my Hgb/Hct of 17.6/51.8 and even though I live at 9000' my PCP seems to...	mikeinco	3	1074	Jan 8, 2015 by Groupergetter
	Emergency stop on the Harvoni Train (Preview) While on board the Harvoni Train yesterday an emergency stop was made at my doctors office. The doctors nurse wanted to tell me something and this is what she had to say "Congratulations! You virus is undetectable!" I wanted to cry so bad. I have been on Harvoni for just a little over a month a...	Rderouen	12	1845	Jan 7, 2015 by mallani
	treatment (Preview) hi. 4 got to ask.has anybody been on the same meds as me sofboscavir dactasivir and ribavirin.would really like to know how they fared.thanks	basser	1	887	Jan 2, 2015 by Cinnamon Girl
	VL test? (Preview) I was going to skip the EOT viral load test and just do the 12 week post treatment to save $$. My Yoda-like reasoning - it is, or is not. My family wants me to get it and suggested since I'm in the states already, to just get it now, 19 days prior to EOT as it might cost less here. I thought I was fine skipping it, b...	RudiRoo	2	992	Jan 2, 2015 by RudiRoo
	Abbvie's Viekira Pak (Preview) Hey guys, I've been forewarned that I'm in for a battle to get approved for Harvoni for 8 weeks. Mr. Dr. suggested Abbvie's Viekira Pak, which I would take for 12 weeks, no ribavirin. He said its 99% effective for gt 1b's. At first I was disappointed because I had been waiting a long time for Harvoni, k...	pl1952	6	2051	Jan 1, 2015 by Tess
	Best Christmas present! (Preview) Hepatitis C RNA, Quant, NAAT - Final result (12/22/2014 1024 PST) " HCV RNA, Quant PCR Result: <15 international units/ml Comment: This test is performed using the FDA-cleared COBAS AmpliPrep/COBAS TaqMan HCV Test, v2.0. HCV RNA linear range of detection is 15 to 100,000,000 IU/mL. The C...	Mugsy	12	1668	Jan 1, 2015 by Mugsy
	8 weeks of Harvoni (Preview) My viral load was 1.8 million... on week two virus was barely detected... waiting for week 4 results... all blood tests normal.. at two weeks alt and ast in normal range.. first time in 18 years... so I am a little worried about only doing 8 weeks, that is all my insurance will pay for.. I could push it and g...	angelseven	11	3963	Jan 1, 2015 by angelseven
	no 8 week lab tests. bummer. (Preview) I thought i should be getting a VL at 8 weeks and really wanted to see because i wasn't UND at 4 weeks but then I found this. I think i fulfilled the criteria for the 4 week draw but Its all greek to me so I started around 13 million and then got to Hepatitis C Qnt by PCR IntUnit/mL 50 IntUnit/mL I guess that mean...	Sierrajen	2	1187	Dec 31, 2014 by Sierrajen
	Changing the time of dosage (Preview) Hi all, What is the best way to change the time of day for taking Harvoni? I want to take it about 5 hours later than I take it now. Is it better to change gradually, like an hour later each day, or to just do it in one change? Thanks! - Tess	Tess	2	925	Dec 29, 2014 by Tess
	Fear of Flying (Preview) I was in a plane crash when I was two, remember very little and had no idea I had a fear of flying until I was an adult and had a massive panic attack on take off. For years, a glass of wine prior to take off and one half an hour before landing has kept the terrors at bay. After learning I had Hep C I tried meditati...	RudiRoo	4	1305	Dec 29, 2014 by RudiRoo
	Getting a bad virus or the flu while on Harvoni (Preview) I am on day 13 of my treatment. Was an unlucky number for me I guess because I started out fine when I headed into work today. Within a half an hour I started getting chills and then a sore throat. I could barely drive home I was so messed up. Not being able to really take anything but maybe a couple Tyleno...	fourlocos	14	3460	Dec 27, 2014 by Groupergetter
	Whoops Rudolph! (Preview) Hi all, up in South Carolina, went out briefly (15 min) and skipped the sun screen as it's so cold here and the winter sun seems so weak compared to home. And now, I'm Rudolph's doppelgänger. Very sensitive, and oh how sorry for the transgression, poor nose! Seems like I'm one of the last on the S/O Train b...	RudiRoo	1	769	Dec 27, 2014 by skewedButNotBroken
	MERRY CHRISTMAS EVERYONE!!!! (Preview) To all that celebrate this joyious Holiday, we want to wish most of all HEALTH for EVERYONE in 2015! MENA & ANGELO	hepCFREEwanab	0	739	Dec 25, 2014 by hepCFREEwanab
	MRI results (Preview) I got the report from my MRI and it says Lesion demonstrates peripheal enhancement with subsequent filling." i get that is good news after it has not changed in a year but what about: small areas of early enhancement in the right dome of the liver are most likely perfusion irregularities. The...	JLynch30	1	867	Dec 24, 2014 by mallani
	Undetectablenme (Preview) 7 week VL test = undetectable! On to SVR! The biggest side effect has been the positive change in my attitude about life. I have a future now. I'm going back to school. I'm ready to take on the world. Now I'm crying. Dammit. Happy te...	Harvoninme	17	1660	Dec 24, 2014 by RonH
	Harvoni - Does Weight make a Difference? (Preview) I haven't started treatment yet but the one thing with Harvoni, unless I missed something is that everyone is dosed at the same level. I'm just curious if weight plays into whether or not you have any side effects. I'm 100# right now give or take depending on how much gelato I ate that week (carmel yummmm...	shadow10cats	1	1282	Dec 23, 2014 by skewedButNotBroken
	Okay, I'm vain. (Preview) Hi, Yes, I'm vain. I admit it. Not proud of it, but I admit it. I'm hoping to start Harvoni next month. Can anyone who is currently on it, tell me if it makes you look sickly while you're taking it? By sickly I mean, pale, circles under your eyes, splotchy skin, blood shot eyes, weird skin blisters, hai...	Lon	5	984	Dec 21, 2014 by fourlocos
	8 weeks treatment on harvoni (Preview) Is there anyone else on 8 weeks of treatment that is worried about treating such a short amount of time??	angelseven	3	1423	Dec 21, 2014 by angelseven
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