Hep C Discussion Forum

Sierrajen · Sierrajen

just confused. can you help me, please. I was hoping for undetected but now I just don't know how to read the test before the doctors appt. in 3 weeks.

pauliep · pauliep

I just received word from my doctor's office that for the first time in my adult life, my liver enzymes are all normal, and there is no detectable hep-C in my blood. I will be taking the medication for the full 12 weeks, and I am confident that I will have SVR at post 12 week reevaluation. Harvoni is truly a m...

Harvoninme · Harvoninme

Below is a list of some simple things that I found helpful through Tx. This is by no mean complete or official. It's just things I found helpful. Please feel free to add your own suggestions. OTC Stuff: Heating Pad Analgesic Creme/Ointment (painbusters, bengay, tiger balm etc) for soreness & cr...

hepCFREEwanab · hepCFREEwanab

My husband Angelo had an MRI and complete blood work done before starting Harvoni. His blood test was pretty good, his tumor level marker went from 55.6 to 31.6. His MRI however showed three tumors that did not show six months earlier. His doctor was very surprised so he had the CD read by two more ra...

Matt Chris · Matt Chris

I am somewhat apprehensive to reveal my personal approach to HCV treatment,, but if sharing this can aid even just one person to achieve SVR I will consider it worthy. After 60 years of living as a human being and 7 years with the knowledge of living with HCV and trying to figure out how to remedy a cure for...

JLynch30 · JLynch30

For the first time since I was diagnosed in 91 my alt is normal and ast is only 10 points away. Also my MRI came back: After one year her email was: It just came back now actually. Unchanged 1.7 cm liver lesion Is the fact that it has not changed in a year mean I am out of the HCC scare? Anyone?

Ro · Ro

I am undetected! First time in forever that I can remember that! Feeling fine! AST - 34 ALT - 29 BILI - 0.80 ALK PHOS -159. (High normal) Labs were drawn at 4 weeks Dec 5. I am on the 24 week ride... Positive thoughts go out to all! Ro

BobK · BobK

Hi all, it's been a little while since I have posted last. I wanted to see if anyone else has had any similar pains that I am experiencing while on treatment or post. I am post treatment of a 24 week Sovaldi/Olysio protocol. I am at around week 6 EOT and since I have been off the medication, I have noticed tha...

gerewolf · gerewolf

Hi, Julia has started Harvoni treatment! We found a nice physician, Dr. Li, who speaks Mandarin, in New York. She got her first month's medication. Our insurance is paying for it completely. It's $3,000 a pill. I feel as if she's swallowing gold. The doctor thinks the treatment will be 12 weeks...

Lawmatt · Lawmatt

im at approx 17 weeks of treatment and finally feel i am in control . it was a struggle to get to here but as my specialist said today it is certanly well worth it We had a phone interview today she sounded very excited with my latest as liver enzyms were 270 about 2 years back and today we have 15 not real sure...

JLynch30 · JLynch30

Had my MRI to check the lesion they found a year ago. It had not grown after 6 months so I am not too worried. No results yet!!!!!! Besides that I am speedy but good!

darkstar · darkstar

At age 63 it is often hard to know what is age related vs drug related. I have developed muscle and joint aches and pains that I do not consider "typical" for me. Has anyone else had this with Harvoni?

Mugsy · Mugsy

12/8/14 10/14/2014 AST 35 178 ALT 49 175 Alk Phos 113 159 My ALT and AST levels have been over 100 since 2000 I cannot believe this inflammation has dropped this much in just two weeks! No wonder i...

fourlocos · fourlocos

I started at dinner time yesterday and I pray I won't be the first to fail this. I am not feeling well at all. I had a very rough night. My head is way fuzzy and dizzy. I don't like to feel disorientation of any kind, it makes me anxious. And sure enough I got up to use the bathroom at 2:00am and freaked out...

JLynch30 · JLynch30

Once a prescription goes in for 24 weeks is it in stone or can the doctor rip the rug out after 12 and say it is enough? Just curious and paranoid seeing I am undetected at week 2.

Rubye · Rubye

Any suggestions? One of the medical assistants just called me and said my doctor will not give me an extra 12 weeks of Sovaldi and Olysio. I complete my original 12 weeks on December 17 but was not undetected until week 8. They are saying that my chances at SVR are 93% and when I told the MA that's not correc...

ss · ss

HOME with a bad cold do you know if i can take any of these cillins

JLynch30 · JLynch30

Bilirubin up everything else down in a good way. Platelests at 4.6! On third week - racy mind but getting alot done - manic anyone? Still waiting for virus count - started at 2.8 million so hoping it is undetectable - - how is everyone on the train?

Lowrider · Lowrider

So far no side effects with Harvoni. I have had fatigue, muscle and joint pain, etc. but this is "normal" over the years of Hep C and possibly aging. I do feel good mostly and re-started working out this morning without much trouble. Take the med at 9 or so in the evening. Being a light sleeper I...

Bob54 · Bob54

I recently recieved a prescription for Sovaldi and Ribapak. Since receiving them my treatment has been changed to the new drug Harvoni so the others are excess to me. Any one need or know where I can donate these drugs? The Sovaldi is 400 MG, 28 Tabs. The Ribapak is 3, 28 day 2 a day dosepaks 600 MG e...

Michaele · Michaele

Hi everyone, hope your all as happy as I am at this monent. My Harvoni is being delivered tomorrow by FedX overnite shipping . I requested a signature requirement . As soon as I have meds in hand, I can call for appt to start meds. So hopefully I'll be aboard next week. Michaele I can hardly believe its...

JLynch30 · JLynch30

I have the most energy I have had in years - a little racy in the head but I will take that over the interferon couch dive. Labs tomorrow.

rltan · rltan

Anyone know if its ok to use.

Lon · Lon

Hello, Is the group finding that most good health insurance companies are willing to cover the cost of 12 weeks on Harvoni? Best Regards, Lon

johnsshutts · johnsshutts

HARVINI: Day 3, All and all, feeling pretty darn good. Only a little bit of a slight headache. only a few times. Just a slight achy, not much. A little tired here and there. A little brain foggy. The only other meds I have taken in three days are a multivitamin +50 and a baby aspirin. I had indigestion almos...

gerewolf · gerewolf

My new doctor, Dr Li in New York wants to start me on a 12-week Harvoni medication. I hope my insurance give authorization. What I want to ask is information of getting copays covered by the drug company. Is there such a fund by the drug company that one can apply for. Wish me luck!

zavr · zavr

Hi all, I'm finally nearing the date of my gastroenterology appointment - at the end of this week (the doctor was booked solid even before Harvoni was approved). I am really excited to ask for Harvoni, but I am worried that I will be denied, because I am not sick enough. I guess there is not much use in worr...

Lon · Lon

Hi Everyone, My Gastro was waiting for Daclatasvir to be approved this month so he could get insurance approval for the Sovaldi and Daclatasvir combo treatment. I read that U.S. regulators have declined to approve Bristol-Myers Squibb's daclatasvir as part of a combination hepatitis C treat...

RudiRoo · RudiRoo

I read so many happy accounts prior to starting treatment even though I was nervous, I thought it would be easier. I've been trying to stay positive but I'm kinda crumbling a little here. Not riba/peg crumbling but it's not easy either. Wondering now if my small stature is accounting for the unrelenti...

Angel67 · Angel67

It seems so many HCV sufferers are getting tunnel vision about Gilead and their wonderful(yet elusive)wares. They really are not the only player in the race for efficient HCV treatment. Aside from the other big names there are other companies doing good things. I stumbled across one such place call...

Topic		Started By	Replies	Views	Last Post
	whats this test mean please (Preview) just confused. can you help me, please. I was hoping for undetected but now I just don't know how to read the test before the doctors appt. in 3 weeks.	Sierrajen	9	1367	Dec 20, 2014 by Sierrajen
	HARVONI DAY 33 AND HEP-C FREE (Preview) I just received word from my doctor's office that for the first time in my adult life, my liver enzymes are all normal, and there is no detectable hep-C in my blood. I will be taking the medication for the full 12 weeks, and I am confident that I will have SVR at post 12 week reevaluation. Harvoni is truly a m...	pauliep	11	2017	Dec 20, 2014 by RonH
	The Tx Shopping List (Preview) Below is a list of some simple things that I found helpful through Tx. This is by no mean complete or official. It's just things I found helpful. Please feel free to add your own suggestions. OTC Stuff: Heating Pad Analgesic Creme/Ointment (painbusters, bengay, tiger balm etc) for soreness & cr...	Harvoninme	0	801	Dec 19, 2014 by Harvoninme
	MRI NOT TOO GOOD!!!! (Preview) My husband Angelo had an MRI and complete blood work done before starting Harvoni. His blood test was pretty good, his tumor level marker went from 55.6 to 31.6. His MRI however showed three tumors that did not show six months earlier. His doctor was very surprised so he had the CD read by two more ra...	hepCFREEwanab	5	1275	Dec 19, 2014 by Dzdayscomin
	Manifesto of my approach to HCV Treatment with Harvoni (Preview) I am somewhat apprehensive to reveal my personal approach to HCV treatment,, but if sharing this can aid even just one person to achieve SVR I will consider it worthy. After 60 years of living as a human being and 7 years with the knowledge of living with HCV and trying to figure out how to remedy a cure for...	Matt Chris	1	980	Dec 19, 2014 by Rubye
	Week 4 (Preview) For the first time since I was diagnosed in 91 my alt is normal and ast is only 10 points away. Also my MRI came back: After one year her email was: It just came back now actually. Unchanged 1.7 cm liver lesion Is the fact that it has not changed in a year mean I am out of the HCC scare? Anyone?	JLynch30	2	814	Dec 19, 2014 by mallani
	WOOHOO! (Preview) I am undetected! First time in forever that I can remember that! Feeling fine! AST - 34 ALT - 29 BILI - 0.80 ALK PHOS -159. (High normal) Labs were drawn at 4 weeks Dec 5. I am on the 24 week ride... Positive thoughts go out to all! Ro	Ro	22	1855	Dec 18, 2014 by TazKat
	Pain in Kidney or Gallbladder - Sovaldi/Olysio (Preview) Hi all, it's been a little while since I have posted last. I wanted to see if anyone else has had any similar pains that I am experiencing while on treatment or post. I am post treatment of a 24 week Sovaldi/Olysio protocol. I am at around week 6 EOT and since I have been off the medication, I have noticed tha...	BobK	7	1437	Dec 17, 2014 by Fireman Rob
	Started Harvoni (Preview) Hi, Julia has started Harvoni treatment! We found a nice physician, Dr. Li, who speaks Mandarin, in New York. She got her first month's medication. Our insurance is paying for it completely. It's $3,000 a pill. I feel as if she's swallowing gold. The doctor thinks the treatment will be 12 weeks...	gerewolf	5	1381	Dec 15, 2014 by Beacon
	All over this treatment (Preview) im at approx 17 weeks of treatment and finally feel i am in control . it was a struggle to get to here but as my specialist said today it is certanly well worth it We had a phone interview today she sounded very excited with my latest as liver enzyms were 270 about 2 years back and today we have 15 not real sure...	Lawmatt	3	852	Dec 13, 2014 by Lawmatt
	Week three in the books (Preview) Had my MRI to check the lesion they found a year ago. It had not grown after 6 months so I am not too worried. No results yet!!!!!! Besides that I am speedy but good!	JLynch30	3	781	Dec 13, 2014 by JLynch30
	Harmony side effect question ( 1 2 ) (Preview) At age 63 it is often hard to know what is age related vs drug related. I have developed muscle and joint aches and pains that I do not consider "typical" for me. Has anyone else had this with Harvoni?	darkstar	54	8054	Dec 12, 2014 by Ro
	Amazed at drop in AST and ALT (Preview) 12/8/14 10/14/2014 AST 35 178 ALT 49 175 Alk Phos 113 159 My ALT and AST levels have been over 100 since 2000 I cannot believe this inflammation has dropped this much in just two weeks! No wonder i...	Mugsy	9	1455	Dec 11, 2014 by Mugsy
	Started Harvoni yesterday (Preview) I started at dinner time yesterday and I pray I won't be the first to fail this. I am not feeling well at all. I had a very rough night. My head is way fuzzy and dizzy. I don't like to feel disorientation of any kind, it makes me anxious. And sure enough I got up to use the bathroom at 2:00am and freaked out...	fourlocos	15	2814	Dec 11, 2014 by Harvoninme
	Two weeks undetected - can doctor cut weeks back? (Preview) Once a prescription goes in for 24 weeks is it in stone or can the doctor rip the rug out after 12 and say it is enough? Just curious and paranoid seeing I am undetected at week 2.	JLynch30	3	875	Dec 10, 2014 by Matt Chris
	My doctor will not prescribe another 12 weeks of Sovaldi and Olysio (Preview) Any suggestions? One of the medical assistants just called me and said my doctor will not give me an extra 12 weeks of Sovaldi and Olysio. I complete my original 12 weeks on December 17 but was not undetected until week 8. They are saying that my chances at SVR are 93% and when I told the MA that's not correc...	Rubye	12	1469	Dec 9, 2014 by JLynch30
	AMOXICILLIN OR ANTIBIOTIC (Preview) HOME with a bad cold do you know if i can take any of these cillins	ss	3	1541	Dec 8, 2014 by ss
	2 week blood work (Preview) Bilirubin up everything else down in a good way. Platelests at 4.6! On third week - racy mind but getting alot done - manic anyone? Still waiting for virus count - started at 2.8 million so hoping it is undetectable - - how is everyone on the train?	JLynch30	0	729	Dec 7, 2014 by JLynch30
	6 days on Harvoni (Preview) So far no side effects with Harvoni. I have had fatigue, muscle and joint pain, etc. but this is "normal" over the years of Hep C and possibly aging. I do feel good mostly and re-started working out this morning without much trouble. Take the med at 9 or so in the evening. Being a light sleeper I...	Lowrider	6	3850	Dec 6, 2014 by Lowrider
	Excess Medication (closed) (Preview) I recently recieved a prescription for Sovaldi and Ribapak. Since receiving them my treatment has been changed to the new drug Harvoni so the others are excess to me. Any one need or know where I can donate these drugs? The Sovaldi is 400 MG, 28 Tabs. The Ribapak is 3, 28 day 2 a day dosepaks 600 MG e...	Bob54	10	1683	Dec 6, 2014 by Cinnamon Girl
	Fed X overnight meds (Preview) Hi everyone, hope your all as happy as I am at this monent. My Harvoni is being delivered tomorrow by FedX overnite shipping . I requested a signature requirement . As soon as I have meds in hand, I can call for appt to start meds. So hopefully I'll be aboard next week. Michaele I can hardly believe its...	Michaele	13	1226	Dec 5, 2014 by Cinnamon Girl
	2 week labs tomorrw (Preview) I have the most energy I have had in years - a little racy in the head but I will take that over the interferon couch dive. Labs tomorrow.	JLynch30	7	1941	Dec 4, 2014 by Tig
	Tobacco use with treatment? (Preview) Anyone know if its ok to use.	rltan	8	1576	Dec 4, 2014 by Josh Haynie
	Harvoni Coverage Question ( 1 2 ) (Preview) Hello, Is the group finding that most good health insurance companies are willing to cover the cost of 12 weeks on Harvoni? Best Regards, Lon	Lon	50	3395	Dec 3, 2014 by Michaele
	ON HARVONI (Preview) HARVINI: Day 3, All and all, feeling pretty darn good. Only a little bit of a slight headache. only a few times. Just a slight achy, not much. A little tired here and there. A little brain foggy. The only other meds I have taken in three days are a multivitamin +50 and a baby aspirin. I had indigestion almos...	johnsshutts	9	2804	Dec 2, 2014 by RonH
	Harvoni (Preview) My new doctor, Dr Li in New York wants to start me on a 12-week Harvoni medication. I hope my insurance give authorization. What I want to ask is information of getting copays covered by the drug company. Is there such a fund by the drug company that one can apply for. Wish me luck!	gerewolf	4	1254	Dec 1, 2014 by Tig
	Doctor's appointment coming up (Preview) Hi all, I'm finally nearing the date of my gastroenterology appointment - at the end of this week (the doctor was booked solid even before Harvoni was approved). I am really excited to ask for Harvoni, but I am worried that I will be denied, because I am not sick enough. I guess there is not much use in worr...	zavr	13	1424	Dec 1, 2014 by Isiscat2011
	Daclatasvir Question (Preview) Hi Everyone, My Gastro was waiting for Daclatasvir to be approved this month so he could get insurance approval for the Sovaldi and Daclatasvir combo treatment. I read that U.S. regulators have declined to approve Bristol-Myers Squibb's daclatasvir as part of a combination hepatitis C treat...	Lon	8	1334	Nov 30, 2014 by Isiscat2011
	Surprised by rough time with sides. (Preview) I read so many happy accounts prior to starting treatment even though I was nervous, I thought it would be easier. I've been trying to stay positive but I'm kinda crumbling a little here. Not riba/peg crumbling but it's not easy either. Wondering now if my small stature is accounting for the unrelenti...	RudiRoo	27	4039	Nov 29, 2014 by Harvoninme
	Gilead is not the only hope. (Preview) It seems so many HCV sufferers are getting tunnel vision about Gilead and their wonderful(yet elusive)wares. They really are not the only player in the race for efficient HCV treatment. Aside from the other big names there are other companies doing good things. I stumbled across one such place call...	Angel67	7	1495	Nov 28, 2014 by Angel67
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