|
Liver lesion still 1.7 after 6 months.
(Preview)
They are going to do a full report at the tumor meeting next Tuesday - but they were not worried about it - does anyone know if the lesion hasn't changed size in 6 months that is good or bad?
|
JLynch30
|
2
|
700
|
|
|
|
|
2 weeks into sovaldi and olysio with a side effect question.
(Preview)
I started experiencing terrible side stickers in my liver.....they just about knock me to my knees....I get the extreme pain when I change positions ....when I stand and lie down or roll on my side.....I also have an ache in my liver and sometimes I find my self walking bent over from the ache.... I fee...
|
Marypetrecz
|
34
|
3527
|
|
|
|
|
Totally got sick sick sick at stomach.
(Preview)
i did the sovaldi dosage at 5:30 am along with the riba so i know i did not lose them. this is the first time that i threw my guts up at work. so sick. did my so called co worker friend who is right next to bathroom ask if i were ok? hell no.. god please give me lottery money so i can go home & do the many things i c...
|
TazKat
|
9
|
1409
|
|
|
|
|
started treatment today sovaldi and ribavirin
(Preview)
Today I am starting sovaldi and ribavirin and I am also doing a chewable b12 and Garden of life blood vitamin. I am a geno type 1a and have had HEP C for over 25 years and many of those years I was a heavy drinker. I have read about side affects and will keep you all informed on my progress .....GOD IS MY ROCK
|
Lighthouse
|
2
|
845
|
|
|
|
|
My GI Group
(Preview)
Yet another reason my GI people are worthless: Lying in bed this a.m.because fatigue and apathy have hit me especially hard this week. Phone rings, it's my GI nurse. Says she got urgent call from CuraScrip stating I haven't reordered meds for next month. Although they called me twice, I forgot to retu...
|
jimbob
|
9
|
1265
|
|
|
|
|
Dosage Question about Sovoldi
(Preview)
You take a ribavirin 2x a day, and once, am or pm a Sovoldi . What would happen if you broke the Sovoldi in half and took it 2x like the ribavirin? With the rivavirin. Does anyone know what kind of affect this will have? just wondering I haven't tyred it. .
|
Huey
|
9
|
1685
|
|
|
|
|
Lab Frequency and Ins. Coverage?
(Preview)
Hi All, Just wondering what everyone's experience has been with labs while taking the Sovaldi/Olysio combo and if insurance is covering them at regular intervals once Tx begins? I'm curious about what's considered excessive labs as I'm trying to learn about all the newest protocols with the new...
|
Fireman Rob
|
7
|
1614
|
|
|
|
|
PhRMA tears into insurers complaints about drug costs
(Preview)
http://www.pharmatimes.com/Article/14-05-29/PhRMA_chief_tears_into_insurers_over_Sovaldi_cost_moans.aspx
|
longld
|
0
|
564
|
|
|
|
|
Received Meds today and have question
(Preview)
I received my Meds today (Solvadi/Riba) and the Solvadi was packed on ice. My pharmacy said to store at room temp. Has anyone else received their Solvadi on ice. Should I be refrigerating? Should start TX within the week. Gulp
|
annabanana
|
3
|
728
|
|
|
|
|
Side effects worsening
(Preview)
Well I have one week left and I notice the fatigue, nausea and insomnia are getting worse pretty much daily. I take sovaldi and ribavirin. I eat mainly heathy but with some processed foods. I drinks lots of water and get daily exercise. But the past week I've been having a worsening of side effects. I had...
|
beingsassy
|
13
|
2006
|
|
|
|
|
Doc won't give me lab results over the phone... is this normal?
(Preview)
I'm not about to get into any sort of conflict with my doctor (who seems to have a large ego when he says, "I've cured 100 patients...etc" - I just want to heal but I'm wondering if it's normal that he's making me come into his office to find out my lab results instead of letting me know over the ph...
|
Omnamahshivaya
|
13
|
2177
|
|
|
|
|
anyone hear of longer than 12 weeks
(Preview)
I was wondering if anyone heard of going longer than 12 weeks for triple therapy geno type 1a non responders with interferon/ribravirin/solvaldi
|
JLynch30
|
1
|
735
|
|
|
|
|
Insurance
(Preview)
Hello, I was wondering, are people generally being approved for the new interferon free combo therapies by their insurance companies? I will be starting treatment in September and was wondering if I was going to have to come up with enormous co-pays for the drugs. What are you folks seeing? Thank...
|
Lon
|
2
|
681
|
|
|
|
|
Sovaldi/Olysio week 5
(Preview)
Hello everyone ! I was wondering if anyone has had a constant side ache (liver area).. I've been on Sovaldi/Olysio for 33 days and the only side effect I've had is insomnia and a little nausea. My liver function tests are all in the normal range and I get my viral load results tomorrow (HOLY COW) !! I've...
|
Hackdad7725
|
3
|
996
|
|
|
|
|
Just thought I'd share.. Comments welcome
(Preview)
Alcohol Use Alcohol blunts immune responses to hepatitis C, which may be why heavy drinkers generally have higher hepatitis C viral loads than non-drinkers. Regular alcohol intake is known to increase the rate and severity of liver damage in people with hepatitis C; it also increases the risk for l...
|
Dee Dee
|
4
|
947
|
|
|
|
|
Taking Supplements While on Treatment
(Preview)
I have responded to several people on another thread about taking supplements while on treatment. I have contacted a couple of people (on other forums) that did trials with the new meds. They, like me, were required to stop all supplements before treatment. I had to stop supplements 30 days bef...
|
suziq
|
3
|
1053
|
|
|
|
|
Moving Forward
(Preview)
Well, after much back and forth and conversations with hubby, Dr. and nurses, I have decided to move forward with Solvaid/Riba treatment. 24 weeks and I am scared as h***. I didn't think this disease had affected me very much except for the silent havoc it wreaked on my body, but after copious read...
|
annabanana
|
4
|
852
|
|
|
|
|
Viral Load 12 at 4 weeks Sovaldi/Olysio!!!!
(Preview)
Just got a call from a nurse at UW Harborview !!!! I started to be snappy because I've been waiting 8 days for my first viral load update ... I went from over 6,000,000 to 12 in 4 weeks ! I'm in a pretty grateful mood finally.... wish I would of found this site along time ago, hope everyone is doing well !! ...
|
Hackdad7725
|
5
|
988
|
|
|
|
|
finished 12 week solvadi and oyliso
(Preview)
I am undetected. at 12 weeks. finished, I get retested in 3 months , all my liver profile is within normal limits, even lower than at 4 weeks. But my platletts is a little low at 87
|
Tornado
|
12
|
1517
|
|
|
|
|
Latest Labs/UND
(Preview)
Since my blood work was off (1,3,5 week labs) I was showing UND at week 5. I was at 40 at week 3. My doctor said that there is no reason for me to extend treatment or even be concerned since I had such a massive drop from 39,000,000 on Feb 14th. There was no specific reason I was off on the blood work. The nurse...
|
Caryn
|
11
|
1028
|
|
|
|
|
Interferon Free Treatment Side Effects
(Preview)
Hello, I met with my Gastro yesterday for my blood work and he mentioned that they recently approved the interferon free Hep C treatment. I'm scheduled to start the 12 week treatment this fall. I'm thinking about taking sick leave from work so I can focus on the treatment and to deal with any side effe...
|
Lon
|
5
|
1100
|
|
|
|
|
very upset.. ya'll are my safe haven
(Preview)
I think this is the first full day of being off from work since I started the treatment 4/25. I took off early last week to go to my granddaughters kindergarten graduation. one of my co workers texted me to tell me there were some talking that I was playing sick today cuz I am off on Fridays.i try to work 10 h...
|
TazKat
|
14
|
1011
|
|
|
|
|
Fasting HOW LONG before take blood panel work?
(Preview)
Hello Everyone; I had terrible insomnia last night and ended up finally falling asleep after eating some food around 3:30am. I'm supposed to take my bloodwork today (it's close to the four week mark) at 8:00 am. Just wondering if that's enough time to fast for the tests to be effective? Please let me kn...
|
Omnamahshivaya
|
5
|
1144
|
|
|
|
|
Finally after week 8 UND
(Preview)
Just got home from doctor visit and my 8 week labs show UND. I have 2 more weeks on meds. So happy, it took awhile but it finally arrived. gigi
|
beingsassy
|
4
|
808
|
|
|
|
|
new cbc - dropping again with three weeks left.
(Preview)
NEUTROPHILS %, AUTOMATED COUNT42.0 - 75.0 %29.1LYMPHOCYTES %, AUTOMATED COUNT20.0 - 51.0 %50.7MONOS %, AUTO1.0 - 12.0 %18.3EOSINOPHILS %, AUTOMATED COUNT0.0 - 10.0 %1.6BASOPHILS %, AUTOMATED COUNT0.0 - 1.0 %0.3RBC NUCLEATED AUTO COUNT, BLD<=0.0 %0.0NEUTROPHILS, ABSOLUTE, AUTOMATED CO...
|
JLynch30
|
1
|
814
|
|
|
|
|
week 8
(Preview)
AST went up one from 60 to 61 normal is ledss than 35 (man I wanted ast and alt to be normal)ALT<=63 U/L76 from 81ALKALINE PHOSPHATASE<=125 U/L128 from 135BILIRUBIN, TOTAL<=1.0 mg/dL0.9 from 1.0
|
JLynch30
|
1
|
632
|
|
|
|
|
High Neutrophils
(Preview)
I had my 8 week draw done on week 9. Got a copy of test and letter from doc stating platelets low but still in safe range. I did notice my neutrophils count was high. Range. Mine Neutrophils. ( 7-39) 47 RBC. (4.4-13.1) 2.5 Platelets. (152-599) 97 Monocytes. (4-12) 20...
|
jimbob
|
4
|
1343
|
|
|
|
|
Done with TX!
(Preview)
JUST TOOK MY LAST PILL. I'm free !!! Looking forward to better days now. Thanks for everyone's support through everything. You have all helped me more than you know. I got my blood work done today and my next labs will be in August for the final hcv test. I hope this Sovaldi mix worked it's magic on me. It...
|
AngieV123
|
12
|
1117
|
|
|
|
|
Olysio/solvaldi panicking over INSURANCE SUDDEN CHANGE
(Preview)
Hi; I was approved for the Olysio/Solvaldi treatment for three months. My insurance agreed to pay, the pharmacy my doctor found had coupons to cover $2,500.00 for the rest and my co-pay each month is only $30. That's why I jumped on it and say yes. I'm now almost a month through and just contacted my pha...
|
Omnamahshivaya
|
18
|
3371
|
|
|
|
|
Dazed & Confused
(Preview)
I've been on this tx 9 weeks now. I just can't imagine you early warriors did this for 24-48 weeks. Physically, it's been better than I imagined as I was expecting to almost be bed-ridden based on previous reports. However, mentally a different story. I am extremely antsy. I feel I need to be doing somet...
|
jimbob
|
22
|
1431
|
|
|
