Hep C Discussion Forum

Enavigo3891 · Enavigo3891

Hi all, I went to lab yesterday for my 2 week (day 15) blood draw - CBC only, no VL and my doc called me at 8:20am this morning with the results. He stated that the good news is my Hemoglobin did not drop, it actually went from 13.2 to 13.5. (I questioned of course if this is actually good news). I asked if that m...

AngieV123 · AngieV123

What does the rash look like? I have some type of rash on my arms and lower legs it seems..little pin dots. I just want to make sure that it's normal. It's not really itchy, though I do feel itchy in general. I have been keeping an eye on it and it hasn't gotten any worse throughout the day. On day 5 of tx.

LTChaos · LTChaos

After wrestling a bit with my insurance company (BSNENY w Express Scripts), I believe my Sovaldi & Riba are on the way. It did take a little coaxing & 3 weeks for it to finally go through. I think that was more due to the specialty pharmacy not understanding how to work with my insurance compan...

TimS44 · TimS44

Dr just called after first labs on Friday. He wants me to drop my riba down to 1000 mg. so asked was my rbc's dropping? The nurse said not too bad. Your at 13.0 from 14.0 seems early to drop, no?

zavr · zavr

Hi guys, So, I just talked to Express Scripts, who, apparently, changed their minds and approved the Sovaldi+Ribavirin+INF treatment. The agent said that Sovaldi has been approved through end of May, and that it is a 90 day prescription (thus, all meds should mailed at once, not monthly). If anyone...

LTChaos · LTChaos

I am on day 2 of the 12 week treatment plan. So far I did feel some fatigue & a little dizziness. I have been grumpy, but that seems a little better today than yesterday. It really is not that bad... Week 12 will start on Easter, which seems kind of symbolic in a way. I didn't plan it out that way. I'm...

kristi6 · kristi6

Hi everyone, My 24 wk VL results are finally in: UNDETECTED!!! Yay!!!..... I got 20 more wks left on triple treatment (victrelis,peg&interferon).48 wk total treatment. My regular blood work results as of yesterday have been pretty low. Hemoglobin 110, Red Blood Cell 3.16, White Blood Cell 2...

Barnacle · Barnacle

So first off let me say how valuable this forum has been to me. I just left my specialist who had the report from my fibroscan (F-3) . I have also done a CT scan, and had so many blood samples over the last couple of years. Anyway lots of jargon and numbers flying around but this time I had them print out all my l...

Dee738 · Dee738

Hi everyone, Tomorrow begins my 4th week of treatment. Insomnia is increasing (it's 2:30 AM), and I've had daily morning diarrhea, but generally all is well. My hemoglobin count dropped from baseline 13 to 12 at 2.5 weeks, but that's not a significant drop or low number, so my MD is fine with keeping me...

Michaele · Michaele

Today for the first time; in North Carolina, I have seen commercials for people with Hep C . Warning of the dangers and severity of the disease, and advising people to get treatment. No drugs or types of treatment mentioned , I have see this commerical twice in the past 2 hours. Something great is comin...

globetrotter · globetrotter

To add to my triple therapy I have now got an abcess on my jaw bone. Im still in the USA visiting my son and had to go to an emergency drop in clinic who have prescribed ABX's and Vicodin...the Dr assured me they would be ok to take for pain whilst on treatment.....the pain is immense...grrrrr not wearing m...

lonewolf · lonewolf

I was going to start the Sovaldi+Riba+Peg treatment soon for my Hep C, Genotype 1a. But my Dr. at the VA said that because I only have stage 1 fibrosis it would be wise to wait for the newest combo to come out at the end of the year. He said its all but sure to be approved. I'm talking about sofosbuvir/ledip...

AngieV123 · AngieV123

Finally, everything is sorted out and I got all my meds. First dose of riba and sovaldi down..I am officially on tx. I am trying to keep my anxiety under control and let me tell you that is a chore for me! Lol. Tonight I take the interferon.

suziq · suziq

This is the link to a new video I saw on TV tonight by Gilead. It is beautifully done and has NO stereotypes--but features baby boomers. It is called Forget Me Not by Gilead. Check it out. vimeo.com/87138447 I was very impressed.

Greg D · Greg D

Greetings, As I have four more weeks left in tx I intend to try and get a jump on recovery. I can't stand all this sitting around waiting, besides I want to start golfing once the 3 meter snow banks melt away. Not to mention getting back to work. The plan is to get a membership in our public pool which offers...

mindovermatter · mindovermatter

I don't know why but I have started feeling low these days. There is no definite reason. As, I have shared with you all, my family is super supportive. Things are okay at the work front too. Infact, yesterday was my birthday, and we went out for a team lunch. We also had cake cutting in the office. Even, whe...

Gracie · Gracie

Two things to be thankful for. I've been feeling good for three days now. And this is Sunday after my shot and I still feel good. And it's not even my counts as my platelets were 51 Friday, hemogloben 101, WBC 1.6 and ANC .79 so they all still suck...lol. God must have felt sorry for me and is giving me a repri...

aprileee · aprileee

Just found out that I am undetected after 2 weeks of Sovaldi and Ribaviran. Did not realize that it would work that fast!! So excited, I'm basically freaking out right now!! :)))

jenjen · jenjen

Wanted to give an update. Midway through my 5th week of Treatment! Side Effects have been minimal, the most noticeable has been needing a nap almost every day around 3-4 and going to bed by 9 pm! So I guess naps aren't that bad of a thing :) I am learning to slow down anyway so it's gotta be good for me. Had a...

Enavigo3891 · Enavigo3891

Hi Everyone, I was just sitting here reading up on everyone's progress and upcoming treatment regimes; I figured I'd drop in with an update on my status. I am only 6 days in so I understand my body is getting used to the meds still. So far no insomnia issues, sleeping pretty well actually. Mild intermitt...

AngieV123 · AngieV123

My appointment to start meds Friday was canceled due to a snow storm....but today I have a definite appointment to get started. She has had my meds since the 5th and it's been driving me nuts waiting lol. I am trying to not think about It too hard because I am of course worried about side effects but I am al...

Gracie · Gracie

Since there are so many of us in this weekend pj club, perhaps we should start a topic on how we cope, what are good movies to watch, or just to hang out. I just watched "Two Weeks Notice" with Sandra Bullock and Hugh Grant. A funny older romantic comedy. And I am doing laundry all day two. I got a f...

Rybronco · Rybronco

Sorry for the etiquette viiolation on my first post in the chatbox. New to this forum. I am starting Olysio and Sovaldi without riba today for 12 weeks. A little apprehensive due to the PTSD I think I still have from the last treatment of Inf and riba years ago. My body did not do well with it. I'm G1a Dx 200...

TimS44 · TimS44

Hi All, I'm about 10 days into therapy. My first injection site (from 10 days ago) is still pretty bruised red. It's down to about 1 inch by 3 inch. My second site is starting to grow as well. I wasn't surprised that there was some site irritation, but was a little surprised it was that size 10 days later....

hepcsurvivor · hepcsurvivor

Hi, I asked my Doc ( a while ago) why Hep C comes back sometimes, and I believe she said something about "pockets" where the virus hides out. If I recall correctly she may have mentioned the brain, and for men the testes as sites that are harder to penetrate. Has anyone any links or more knowle...

Gracie · Gracie

Well, I had a great visit with my hepologist. He cleared some things up for me. Apparently the Sofosbuvir won't be available in my province until 2 or 3 years which is why I'm on the incevik. And he has had over 90% success rate with incevik. He also said my viral load was 15,000,000 to start and not 1,500,0...

Tornado · Tornado

I was under the impression few side effects meant no side effects, I was wrong. Day one nothing, day two, body aches headache and at night fever, weakness. Also notice a little nausea, which was no big deal, no vomiting, and the nausea was very slight. I did noticied stomach acid/heartburn, I was afrai...

mindovermatter · mindovermatter

Dear All, I was in bad shape last week. I was extremely fatigued, my stomach was upset and I had cough Now I have recovered. I am feeling much better. There are two things that I would want the experts here to chime in on. I get my cbc done every week before the day of the injection. I am on Peg, Riba combinatio...

longld · longld

In first week of treatment with Sovaldi/Riba and got all of my lab orders today - Dr. is doing labs once weekly due to wanting to watch my kidney transplant closely. Question is around viral load (HCA RNA Quant.) test which is scheduled at twelve weeks. I note that numerous people on the forum report t...

globetrotter · globetrotter

Took jab 14 last night but seemed to have lost my way over the last few days...feel quite low and tearful...sort of numb in my head.....Ive been out but still feel so c**p....any suggestions gratefully received

Topic		Started By	Replies	Views	Last Post
	Good and Bad news on 2 week labs (Sovaldi/Riba) (Preview) Hi all, I went to lab yesterday for my 2 week (day 15) blood draw - CBC only, no VL and my doc called me at 8:20am this morning with the results. He stated that the good news is my Hemoglobin did not drop, it actually went from 13.2 to 13.5. (I questioned of course if this is actually good news). I asked if that m...	Enavigo3891	8	3657	Mar 4, 2014 by Enavigo3891
	Question on riba rash (Preview) What does the rash look like? I have some type of rash on my arms and lower legs it seems..little pin dots. I just want to make sure that it's normal. It's not really itchy, though I do feel itchy in general. I have been keeping an eye on it and it hasn't gotten any worse throughout the day. On day 5 of tx.	AngieV123	13	2929	Mar 3, 2014 by Tig
	My Prescriptions Are on the way (almost) ( 1 2 ) (Preview) After wrestling a bit with my insurance company (BSNENY w Express Scripts), I believe my Sovaldi & Riba are on the way. It did take a little coaxing & 3 weeks for it to finally go through. I think that was more due to the specialty pharmacy not understanding how to work with my insurance compan...	LTChaos	72	7116	Mar 2, 2014 by Tig
	Anyone hear of dropping Riba @ (Preview) Dr just called after first labs on Friday. He wants me to drop my riba down to 1000 mg. so asked was my rbc's dropping? The nurse said not too bad. Your at 13.0 from 14.0 seems early to drop, no?	TimS44	27	3440	Mar 2, 2014 by TimS44
	Insurance (Express Scripts) question... (Preview) Hi guys, So, I just talked to Express Scripts, who, apparently, changed their minds and approved the Sovaldi+Ribavirin+INF treatment. The agent said that Sovaldi has been approved through end of May, and that it is a 90 day prescription (thus, all meds should mailed at once, not monthly). If anyone...	zavr	6	1508	Mar 1, 2014 by OldenSlow
	Started Tx with Sovaldi & Ribavirin (Preview) I am on day 2 of the 12 week treatment plan. So far I did feel some fatigue & a little dizziness. I have been grumpy, but that seems a little better today than yesterday. It really is not that bad... Week 12 will start on Easter, which seems kind of symbolic in a way. I didn't plan it out that way. I'm...	LTChaos	28	4347	Mar 1, 2014 by Larry2384
	24 wk results on tx in!!! (Preview) Hi everyone, My 24 wk VL results are finally in: UNDETECTED!!! Yay!!!..... I got 20 more wks left on triple treatment (victrelis,peg&interferon).48 wk total treatment. My regular blood work results as of yesterday have been pretty low. Hemoglobin 110, Red Blood Cell 3.16, White Blood Cell 2...	kristi6	13	1440	Mar 1, 2014 by Gracie
	starting treatment (maybe) (Preview) So first off let me say how valuable this forum has been to me. I just left my specialist who had the report from my fibroscan (F-3) . I have also done a CT scan, and had so many blood samples over the last couple of years. Anyway lots of jargon and numbers flying around but this time I had them print out all my l...	Barnacle	4	862	Feb 28, 2014 by OldenSlow
	Update: Week 4 Sovaldi + RIBA and brain fog link (Preview) Hi everyone, Tomorrow begins my 4th week of treatment. Insomnia is increasing (it's 2:30 AM), and I've had daily morning diarrhea, but generally all is well. My hemoglobin count dropped from baseline 13 to 12 at 2.5 weeks, but that's not a significant drop or low number, so my MD is fine with keeping me...	Dee738	5	1636	Feb 28, 2014 by robertsamx
	Hep C commercials on TV (Preview) Today for the first time; in North Carolina, I have seen commercials for people with Hep C . Warning of the dangers and severity of the disease, and advising people to get treatment. No drugs or types of treatment mentioned , I have see this commerical twice in the past 2 hours. Something great is comin...	Michaele	16	3310	Feb 28, 2014 by Dee738
	on top of everything! (Preview) To add to my triple therapy I have now got an abcess on my jaw bone. Im still in the USA visiting my son and had to go to an emergency drop in clinic who have prescribed ABX's and Vicodin...the Dr assured me they would be ok to take for pain whilst on treatment.....the pain is immense...grrrrr not wearing m...	globetrotter	8	1203	Feb 27, 2014 by Gracie
	Waiting for Sofosbuvir + Ledipasvir (Preview) I was going to start the Sovaldi+Riba+Peg treatment soon for my Hep C, Genotype 1a. But my Dr. at the VA said that because I only have stage 1 fibrosis it would be wise to wait for the newest combo to come out at the end of the year. He said its all but sure to be approved. I'm talking about sofosbuvir/ledip...	lonewolf	1	795	Feb 27, 2014 by Rybronco
	Got my med (Preview) Finally, everything is sorted out and I got all my meds. First dose of riba and sovaldi down..I am officially on tx. I am trying to keep my anxiety under control and let me tell you that is a chore for me! Lol. Tonight I take the interferon.	AngieV123	7	944	Feb 27, 2014 by TimS44
	New video on TV from Gilead (Preview) This is the link to a new video I saw on TV tonight by Gilead. It is beautifully done and has NO stereotypes--but features baby boomers. It is called Forget Me Not by Gilead. Check it out. vimeo.com/87138447 I was very impressed.	suziq	8	1124	Feb 27, 2014 by OldenSlow
	preparing for post treatment- saunas, hot tubs, public pool and gym ok? (Preview) Greetings, As I have four more weeks left in tx I intend to try and get a jump on recovery. I can't stand all this sitting around waiting, besides I want to start golfing once the 3 meter snow banks melt away. Not to mention getting back to work. The plan is to get a membership in our public pool which offers...	Greg D	4	1161	Feb 25, 2014 by Greg D
	Depression (Preview) I don't know why but I have started feeling low these days. There is no definite reason. As, I have shared with you all, my family is super supportive. Things are okay at the work front too. Infact, yesterday was my birthday, and we went out for a team lunch. We also had cake cutting in the office. Even, whe...	mindovermatter	11	1486	Feb 23, 2014 by mindovermatter
	Feeling Great and Canada GOLD (Preview) Two things to be thankful for. I've been feeling good for three days now. And this is Sunday after my shot and I still feel good. And it's not even my counts as my platelets were 51 Friday, hemogloben 101, WBC 1.6 and ANC .79 so they all still suck...lol. God must have felt sorry for me and is giving me a repri...	Gracie	7	853	Feb 23, 2014 by Gracie
	Undetected at 2 weeks?! (Preview) Just found out that I am undetected after 2 weeks of Sovaldi and Ribaviran. Did not realize that it would work that fast!! So excited, I'm basically freaking out right now!! :)))	aprileee	27	2342	Feb 23, 2014 by Matt Chris
	Sovaldi/Riba/Interferon- Week 4 UND! (Preview) Wanted to give an update. Midway through my 5th week of Treatment! Side Effects have been minimal, the most noticeable has been needing a nap almost every day around 3-4 and going to bed by 9 pm! So I guess naps aren't that bad of a thing :) I am learning to slow down anyway so it's gotta be good for me. Had a...	jenjen	5	1373	Feb 23, 2014 by AngieV123
	update - day 6 of Sovaldi + Riba (Preview) Hi Everyone, I was just sitting here reading up on everyone's progress and upcoming treatment regimes; I figured I'd drop in with an update on my status. I am only 6 days in so I understand my body is getting used to the meds still. So far no insomnia issues, sleeping pretty well actually. Mild intermitt...	Enavigo3891	17	2488	Feb 22, 2014 by OldenSlow
	Today is the day! (Preview) My appointment to start meds Friday was canceled due to a snow storm....but today I have a definite appointment to get started. She has had my meds since the 5th and it's been driving me nuts waiting lol. I am trying to not think about It too hard because I am of course worried about side effects but I am al...	AngieV123	19	2741	Feb 21, 2014 by AngieV123
	Sunday Movie And PJ Club (Preview) Since there are so many of us in this weekend pj club, perhaps we should start a topic on how we cope, what are good movies to watch, or just to hang out. I just watched "Two Weeks Notice" with Sandra Bullock and Hugh Grant. A funny older romantic comedy. And I am doing laundry all day two. I got a f...	Gracie	33	3636	Feb 21, 2014 by Gracie
	Starting sim/sof tx today (Preview) Sorry for the etiquette viiolation on my first post in the chatbox. New to this forum. I am starting Olysio and Sovaldi without riba today for 12 weeks. A little apprehensive due to the PTSD I think I still have from the last treatment of Inf and riba years ago. My body did not do well with it. I'm G1a Dx 200...	Rybronco	4	1531	Feb 21, 2014 by Matt Chris
	injection site irritation (Preview) Hi All, I'm about 10 days into therapy. My first injection site (from 10 days ago) is still pretty bruised red. It's down to about 1 inch by 3 inch. My second site is starting to grow as well. I wasn't surprised that there was some site irritation, but was a little surprised it was that size 10 days later....	TimS44	8	1699	Feb 20, 2014 by TimS44
	Staying Undetected - "pockets" of Hep C in the body (Preview) Hi, I asked my Doc ( a while ago) why Hep C comes back sometimes, and I believe she said something about "pockets" where the virus hides out. If I recall correctly she may have mentioned the brain, and for men the testes as sites that are harder to penetrate. Has anyone any links or more knowle...	hepcsurvivor	5	1372	Feb 20, 2014 by hepcsurvivor
	Paxil vs Elavel to take or not to take (Preview) Well, I had a great visit with my hepologist. He cleared some things up for me. Apparently the Sofosbuvir won't be available in my province until 2 or 3 years which is why I'm on the incevik. And he has had over 90% success rate with incevik. He also said my viral load was 15,000,000 to start and not 1,500,0...	Gracie	12	1203	Feb 19, 2014 by Gracie
	Day 3 sovaldi &olysio only (Preview) I was under the impression few side effects meant no side effects, I was wrong. Day one nothing, day two, body aches headache and at night fever, weakness. Also notice a little nausea, which was no big deal, no vomiting, and the nausea was very slight. I did noticied stomach acid/heartburn, I was afrai...	Tornado	2	996	Feb 18, 2014 by Mark Y
	Rising monocytes: cause for concern or am I panicking unnecessarily? (Preview) Dear All, I was in bad shape last week. I was extremely fatigued, my stomach was upset and I had cough Now I have recovered. I am feeling much better. There are two things that I would want the experts here to chime in on. I get my cbc done every week before the day of the injection. I am on Peg, Riba combinatio...	mindovermatter	5	1828	Feb 17, 2014 by Tig
	What is std length of treatment before Viral Load test? (Preview) In first week of treatment with Sovaldi/Riba and got all of my lab orders today - Dr. is doing labs once weekly due to wanting to watch my kidney transplant closely. Question is around viral load (HCA RNA Quant.) test which is scheduled at twelve weeks. I note that numerous people on the forum report t...	longld	12	1366	Feb 15, 2014 by Mila
	Lost my mojo (Preview) Took jab 14 last night but seemed to have lost my way over the last few days...feel quite low and tearful...sort of numb in my head.....Ive been out but still feel so c**p....any suggestions gratefully received	globetrotter	20	2257	Feb 13, 2014 by globetrotter
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