Hep C Discussion Forum

Gracie · Gracie

Just wondering if anybody has done any research on foods, drinks etc. That can help with hemoglobin levels. Since this is something most of us deal with, would be great to help it along as much as possible with diet.

mindovermatter · mindovermatter

My Vitamin D levels a re very low (10). Normal is above 40. I have pushed my Dr. into giving me a Vitamin D supplement. It is 60000 IU of Vitamin D per sachet to be taken for 8 weeks. The Dr. had advised me not to take Vitamin D supplement for longer that the period that he has prescribed. On the other hand, a...

restat · restat

Hello All, I just discovered that a family member has Hepatitis C. She does not like her current doctor and is reaching out for help. She is in the Northeastern U.S., and wants to find the best doctor she can. I don't know where to start looking, but The Cleveland Clinic, Johns Hopkins, and various Ne...

bmhartwd · bmhartwd

Only 4 weeks left of treatment!!! I'm ready to reach the finish line!!!

mindovermatter · mindovermatter

Dear All, I am on treatment on Peg Interferon and Ribavarin. My doctor ha asked me to to get weekly cbc and bilrubin tests. My bilrubin level was above normal before treatment. After the first week, it dipped to 0.77 (total) After the second week, it has risen to 1.24 - direct 0.97, indirect 0.27. Does t...

newmex · newmex

When I began treatment, I was to start on Bocep. but after 4 week lead in doc decided I would do better on Incivic., so I started it at end of 4 week. Got my vl results today for 2nd week of Incivic, it showed undetected. Woo-hoo,lol. Question is, ... Is this a RVR,? Cant really find any info of any one else do...

Greg D · Greg D

Greetings, Not sure what alt's are but can't be good if doc and nurse are concerned? Any reader's digest on what may be going on? I know it's tough given no back ground but I haven't been drinking alcohol and could have slackened off on my water intake. Definitely not exercising enough but plan to start a...

Barnacle · Barnacle

I have been reading lots of the threads on here regarding treatment and it seems that often poor post treatment health gets discussed more than good health. I will be discussing treatment options with my specialist in a couple of weeks and was hoping to hear from post treatment people how long before y...

Gracie · Gracie

I have had this smoothie every morning and am really becoming quite attached to it. It's yummy and has the required 20 grams of fat. Try if you like peanut butter. Peanut Butter Banana Smoothie 1 cup milk 1/3 cup Rocotta Cheese 1 TBSP Peanut Butter (natural preferably) 1 banana About 3 ice cubes You ca...

Milliganus · Milliganus

Hi all, I got a call from a trial center in Florida that I might be able to get into for a triple combo of IDX719, sofobusvir & ribavirin. It is a 12 week trial. I'm excited, but trying to hold back cause I haven't been accepted yet. Do any of you know what the IDX719 is? How can I get more information?...

smccune · smccune

I do have a question.....I am at dart 11 of 24 on Friday. My hair has thinned out some and have been losing more hair than usual, but I had a thyroid issue before tx so I am use to shedding. Do most people lose all their hair on Inter/Rib tx? I guess I have always figured that if it gets to thin and if I am showing b...

dustbear · dustbear

I just had 2 units of blood 4 weeks ago. My hemoglobin has already dropped from 96 to 84 inside of 2 weeks, & my platelets are at an all-time low of 60. Blood pressure is 100/58 and I am having flashes of dizzyness. The hepa just returned my call and ordered more blood and to reduce my ribavirin to 1 pill t...

Gracie · Gracie

If you are still detected at week 4, do you automatically stop treatment? I'm noticing some have detected at week 4 and yet go on to SVR. How do they decide who stops and who continues?

Mila · Mila

Hi, everybody! I'm new. I was diagnosed with Genotype 3a in 1994 and have always had just slightly elevated labs...but occasionally even normal. However, extreme fatigue and other symptoms are what led to my diagnosis. In 1995 I went through a year of pure hell of daily Interferon injections; even t...

brokenwing57 · brokenwing57

I am about to start treatment of nterferon, ribavirin and sofosbuvir. Can someone explain to me what to expect on my first treatment day.

hepcat60 · hepcat60

Because I am done! At least with Interferon. Six more days of riba and I am in the waiting mode. I must say as difficult as it was, it feels like it went by quickly. I will miss having a readily handy excuse available, but am looking forward to exercise, working in the yard this spring, and reconnect...

Larry2384 · Larry2384

I started my treatment of sovaldi and ribavirin last Saturday and had no side effects until the past 24 hours. My skin has been crawling since yesterday and feels really prickly as if someone rolled me in fiberglass dust or something. Is this a known side effect of ribavirin? My dentist gave me a prescr...

jani · jani

I had my treatment last year and it was succesfull. My friend had also treatment, he was going to be in medication some months, so it was easy genotype. He had something wrong with his hearth and blood. He died an hour ago because of side effects about his treatment. I am just cryin for him. Why him?

newmex · newmex

I am 2 weeks into the lead in phase of 4 weeks for Victrelis. The plan was 4 weeks lead in then 44 weeks of peg/riba/victrelis.. Went to doc today and nurse told me doc got a report from VA saying Incivic has higher rates of response in VA treatment (for cirrhotic)and they are going to continue the 4 weeks l...

newmex · newmex

I am about 9 days into Incivic and am experiencing the common butt burn, OUCH. Have found that using gummi fiber helps considerably but read on I-net that it slows absorbtion with some drugs. It lists several drugs but cant seem to find any thing specific to Teleprevir. So I am wondering if any one ha...

Scruffy · Scruffy

I started out on the dbl drug tx 48 weeks. After 4 weeks my VL went from 3m to 280k. They told me to take a break while they see if they could get me the third med. Judging by the amount of med left on the script looks like it was 6 weeks. With the third med I was undetectable at 4 weeks and again at 12 weeks <5. To...

ucbgal · ucbgal

tomorrow is my EOT and last 4 ribo pills!!!!! yippee. have consumed 100% of the inciveck and pegasys,but only 83% of the anemia causing ribo. my hemo is holding at 7.8 w/ 2 procrits/week !!!! am still und and will march onward to the coveted SVR. ast/alt/ggt are 33/40/40,while ferretin is still in 160...

hepcat60 · hepcat60

Has anyone else noticed a depression in the fatty injection site. I'm rather thin but have a little more belly fat than I would like. I use two areas on my tummy and alternate weeks. I have noticed a depression in the site area on each side. It is an area about the size of a baseball and slightly depress...

hepcat60 · hepcat60

I spent most of Thanksgiving week sleeping. I mean literally 18 hours plus per night and day. I remember Joannah talking about an excessive need for sleep toward the end of treatment. I am working full time at the moment and really crash on weekends, however, there are week nights that I can't sleep...

newmex · newmex

Was origionally going to start on Victrelis, and after I started my 4 week lead in my dr decided the Incivic would be better. So am starting it next week, which will be end of 4 week lead in. She is VA doc and said they have been using Victrelis until now and has limited experience with Incivic. Had high AFP...

ucbgal · ucbgal

just took my 23rd injection along w/ the precious procrit. am now taking 2 vials of the magic drug/wk to prevent hemo dipping any lower. i'm so thankful to have the support & wisdom of everyone on this forum and to still be UND!!!!!!! what a joyous thanksgiving this will be for many of us. sandy,ucbg...

DeRanger · DeRanger

Just curious. I work in the schools and so does my wife. Needless to say we are especially exposed to colds/flu viruses and lots of sick kids. (Esp my wife who works with preschoolers) During my treatment - 47 weeks now - I have not gotten sick with any colds or flu. Despite feeling lousy on most days...

Ginny · Ginny

The PA at my doctors office has told me that the side effects of PEGINF/RIB/VICTRELLIS tend to lessen after about week 25. Has anyone else experienced this?

HilLaryOus · HilLaryOus

So, since we all have to get regular bloodwork I wondered if anyone had a similar issue? I get bloodwork on Sundays, usually- and most labs are closed so the one I go to the woman is always so horrible! Always bruise and she has the move the needle in my arm to hit the vein. It always hurts and I mean other tech...

greenqueen · greenqueen

http://www.hcvadvocate.org/hepatitis/factsheets_pdf/Treatment_Side_effect_Guide.pdf

Topic		Started By	Replies	Views	Last Post
	What to eat to increase hemoglobin? (Preview) Just wondering if anybody has done any research on foods, drinks etc. That can help with hemoglobin levels. Since this is something most of us deal with, would be great to help it along as much as possible with diet.	Gracie	6	1624	Jan 18, 2014 by Gracie
	Vitamin D and SVR rates (Preview) My Vitamin D levels a re very low (10). Normal is above 40. I have pushed my Dr. into giving me a Vitamin D supplement. It is 60000 IU of Vitamin D per sachet to be taken for 8 weeks. The Dr. had advised me not to take Vitamin D supplement for longer that the period that he has prescribed. On the other hand, a...	mindovermatter	2	831	Jan 14, 2014 by Cinnamon Girl
	Best Places for Treatment? (Preview) Hello All, I just discovered that a family member has Hepatitis C. She does not like her current doctor and is reaching out for help. She is in the Northeastern U.S., and wants to find the best doctor she can. I don't know where to start looking, but The Cleveland Clinic, Johns Hopkins, and various Ne...	restat	2	941	Jan 13, 2014 by ucbgal
	Just did shot 20 of 24 (Preview) Only 4 weeks left of treatment!!! I'm ready to reach the finish line!!!	bmhartwd	10	1001	Jan 12, 2014 by Tig
	on tx - Bilrubin increased (Preview) Dear All, I am on treatment on Peg Interferon and Ribavarin. My doctor ha asked me to to get weekly cbc and bilrubin tests. My bilrubin level was above normal before treatment. After the first week, it dipped to 0.77 (total) After the second week, it has risen to 1.24 - direct 0.97, indirect 0.27. Does t...	mindovermatter	4	744	Jan 11, 2014 by mindovermatter
	rvr or superfabulous outstanding response? lol (Preview) When I began treatment, I was to start on Bocep. but after 4 week lead in doc decided I would do better on Incivic., so I started it at end of 4 week. Got my vl results today for 2nd week of Incivic, it showed undetected. Woo-hoo,lol. Question is, ... Is this a RVR,? Cant really find any info of any one else do...	newmex	13	1224	Jan 10, 2014 by newmex
	elevated alt's over last month- not sure why (Preview) Greetings, Not sure what alt's are but can't be good if doc and nurse are concerned? Any reader's digest on what may be going on? I know it's tough given no back ground but I haven't been drinking alcohol and could have slackened off on my water intake. Definitely not exercising enough but plan to start a...	Greg D	3	930	Jan 8, 2014 by mallani
	Feeling well after treatment (Preview) I have been reading lots of the threads on here regarding treatment and it seems that often poor post treatment health gets discussed more than good health. I will be discussing treatment options with my specialist in a couple of weeks and was hoping to hear from post treatment people how long before y...	Barnacle	13	1499	Jan 8, 2014 by Kellie
	Yummy over 20 gram smoothy (Preview) I have had this smoothie every morning and am really becoming quite attached to it. It's yummy and has the required 20 grams of fat. Try if you like peanut butter. Peanut Butter Banana Smoothie 1 cup milk 1/3 cup Rocotta Cheese 1 TBSP Peanut Butter (natural preferably) 1 banana About 3 ice cubes You ca...	Gracie	6	812	Jan 7, 2014 by Tig
	IDX719 anyone know what this new med is? (Preview) Hi all, I got a call from a trial center in Florida that I might be able to get into for a triple combo of IDX719, sofobusvir & ribavirin. It is a 12 week trial. I'm excited, but trying to hold back cause I haven't been accepted yet. Do any of you know what the IDX719 is? How can I get more information?...	Milliganus	13	1639	Jan 7, 2014 by mallani
	Hair lossI do have a question.....I am at dart 11 of 24 on Friday. My hair has thinned out some and have been losing mor (Preview) I do have a question.....I am at dart 11 of 24 on Friday. My hair has thinned out some and have been losing more hair than usual, but I had a thyroid issue before tx so I am use to shedding. Do most people lose all their hair on Inter/Rib tx? I guess I have always figured that if it gets to thin and if I am showing b...	smccune	13	2111	Jan 7, 2014 by Kellie
	Hemoglobin and platelets dropping faster than normal (Preview) I just had 2 units of blood 4 weeks ago. My hemoglobin has already dropped from 96 to 84 inside of 2 weeks, & my platelets are at an all-time low of 60. Blood pressure is 100/58 and I am having flashes of dizzyness. The hepa just returned my call and ordered more blood and to reduce my ribavirin to 1 pill t...	dustbear	13	2248	Jan 6, 2014 by CodeNameBleu
	Detected vs undetected question (Preview) If you are still detected at week 4, do you automatically stop treatment? I'm noticing some have detected at week 4 and yet go on to SVR. How do they decide who stops and who continues?	Gracie	4	909	Jan 2, 2014 by Scruffy
	Beginning Sovaldi (sofosbuvir) & Ribaviron, Genotype 3a (Preview) Hi, everybody! I'm new. I was diagnosed with Genotype 3a in 1994 and have always had just slightly elevated labs...but occasionally even normal. However, extreme fatigue and other symptoms are what led to my diagnosis. In 1995 I went through a year of pure hell of daily Interferon injections; even t...	Mila	10	4064	Dec 30, 2013 by Matt Chris
	HCV 1b due to start treatment in a month or so. (Preview) I am about to start treatment of nterferon, ribavirin and sofosbuvir. Can someone explain to me what to expect on my first treatment day.	brokenwing57	2	806	Dec 23, 2013 by Cinnamon Girl
	Stick a fork in me..... (Preview) Because I am done! At least with Interferon. Six more days of riba and I am in the waiting mode. I must say as difficult as it was, it feels like it went by quickly. I will miss having a readily handy excuse available, but am looking forward to exercise, working in the yard this spring, and reconnect...	hepcat60	19	1409	Dec 23, 2013 by DJ
	Question about Ribavirin side effects (Preview) I started my treatment of sovaldi and ribavirin last Saturday and had no side effects until the past 24 hours. My skin has been crawling since yesterday and feels really prickly as if someone rolled me in fiberglass dust or something. Is this a known side effect of ribavirin? My dentist gave me a prescr...	Larry2384	11	3417	Dec 23, 2013 by Tig
	My friend (Preview) I had my treatment last year and it was succesfull. My friend had also treatment, he was going to be in medication some months, so it was easy genotype. He had something wrong with his hearth and blood. He died an hour ago because of side effects about his treatment. I am just cryin for him. Why him?	jani	14	1276	Dec 22, 2013 by hepcat60
	why no lead in time on Incivic? (Preview) I am 2 weeks into the lead in phase of 4 weeks for Victrelis. The plan was 4 weeks lead in then 44 weeks of peg/riba/victrelis.. Went to doc today and nurse told me doc got a report from VA saying Incivic has higher rates of response in VA treatment (for cirrhotic)and they are going to continue the 4 weeks l...	newmex	2	886	Dec 22, 2013 by hepcat60
	Adding fiber to diet? (Preview) I am about 9 days into Incivic and am experiencing the common butt burn, OUCH. Have found that using gummi fiber helps considerably but read on I-net that it slows absorbtion with some drugs. It lists several drugs but cant seem to find any thing specific to Teleprevir. So I am wondering if any one ha...	newmex	6	956	Dec 20, 2013 by hepcat60
	TX so far 16 weeks (Preview) I started out on the dbl drug tx 48 weeks. After 4 weeks my VL went from 3m to 280k. They told me to take a break while they see if they could get me the third med. Judging by the amount of med left on the script looks like it was 6 weeks. With the third med I was undetectable at 4 weeks and again at 12 weeks <5. To...	Scruffy	7	1217	Dec 13, 2013 by Scruffy
	EOT and THALASSEMIA MINOR (Preview) tomorrow is my EOT and last 4 ribo pills!!!!! yippee. have consumed 100% of the inciveck and pegasys,but only 83% of the anemia causing ribo. my hemo is holding at 7.8 w/ 2 procrits/week !!!! am still und and will march onward to the coveted SVR. ast/alt/ggt are 33/40/40,while ferretin is still in 160...	ucbgal	10	1155	Dec 12, 2013 by Kellie
	Has anyone else noticed... (Preview) Has anyone else noticed a depression in the fatty injection site. I'm rather thin but have a little more belly fat than I would like. I use two areas on my tummy and alternate weeks. I have noticed a depression in the site area on each side. It is an area about the size of a baseball and slightly depress...	hepcat60	10	1410	Dec 7, 2013 by Tig
	Anyone experiencing a need for excessive sleep? (Preview) I spent most of Thanksgiving week sleeping. I mean literally 18 hours plus per night and day. I remember Joannah talking about an excessive need for sleep toward the end of treatment. I am working full time at the moment and really crash on weekends, however, there are week nights that I can't sleep...	hepcat60	8	1074	Dec 6, 2013 by ucbgal
	curious about blood tests (Preview) Was origionally going to start on Victrelis, and after I started my 4 week lead in my dr decided the Incivic would be better. So am starting it next week, which will be end of 4 week lead in. She is VA doc and said they have been using Victrelis until now and has limited experience with Incivic. Had high AFP...	newmex	8	1044	Dec 2, 2013 by Biggyb
	dart23out of24!!!!! (Preview) just took my 23rd injection along w/ the precious procrit. am now taking 2 vials of the magic drug/wk to prevent hemo dipping any lower. i'm so thankful to have the support & wisdom of everyone on this forum and to still be UND!!!!!!! what a joyous thanksgiving this will be for many of us. sandy,ucbg...	ucbgal	14	981	Nov 30, 2013 by ucbgal
	TX and colds/flu and other viral infections (Preview) Just curious. I work in the schools and so does my wife. Needless to say we are especially exposed to colds/flu viruses and lots of sick kids. (Esp my wife who works with preschoolers) During my treatment - 47 weeks now - I have not gotten sick with any colds or flu. Despite feeling lousy on most days...	DeRanger	9	1066	Nov 23, 2013 by Shep
	Side effects lessen over time? (Preview) The PA at my doctors office has told me that the side effects of PEGINF/RIB/VICTRELLIS tend to lessen after about week 25. Has anyone else experienced this?	Ginny	8	1712	Nov 23, 2013 by Shep
	Blood draw caused pain?! (Preview) So, since we all have to get regular bloodwork I wondered if anyone had a similar issue? I get bloodwork on Sundays, usually- and most labs are closed so the one I go to the woman is always so horrible! Always bruise and she has the move the needle in my arm to hit the vein. It always hurts and I mean other tech...	HilLaryOus	5	918	Nov 21, 2013 by Tig
	Side Effect Management (Preview) http://www.hcvadvocate.org/hepatitis/factsheets_pdf/Treatment_Side_effect_Guide.pdf	greenqueen	48	16221	Nov 19, 2013 by Cinnamon Girl
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