Hep C Discussion Forum

GodsGrl · GodsGrl

I started treatment on 2-1-13, took my first shot at 10:30PM took 2 ES tylenol 2 hours prior. Went immediately to bed, has high anxiety so it took me several hours to fall asleep. I work up about 2:30 with a high fever 101.5, drank some water and eventually fell back asleep. Woke with the chills teeth chat...

GodsGrl · GodsGrl

We had a death in the family and I was not able to start on Wed. as planned. However I am starting tonight. I have already taken 600MG of Ribovirin. I will take 600 more this evening, then my first shot about 10PM. Any last minute advice? I am ready to start fighting the dragon! I'm actually excited to get th...

libgirl07 · libgirl07

Can someone post a link to studies that svr means no more damage to your liver. I can't find anything. And also I know this has been asked before but I'd like to know the most recent info. After svr do you have to disclose your diagnosis anymore? I read somewhere that there is still very small amounts of vir...

Sue Anne · Sue Anne

Hi, I'm new to this forum I started treatment 10/19/12. I'm in week 8 of triple therapy and my hair color is lightening significantly at my roots. Has anyone else experienced this? Thank you! Sue Anne -- Edited by Sue Anne on Sunday 9th of December 2012 11:31:48 PM

Northern · Northern

Developed cellulitis on the abdomen / pannus and was admitted 1/24. Very painful and uncomfortable situation. It was also discovered my H/H went down to 7.5 and 24

My last dose of Invicek was on 1/20. I received 2 units of PRBC on 1/25 which brought up my H/H to 8.2 and 25. On 1/26 my H/H went back down...

libgirl07 · libgirl07

I finally am starting my triple tx with bocep tomorrow. I was supposed to start in october but couldnt afford it and now just found out i wont have to pay at all.. I feel so lucky right now. At the same time I'm extremely nervous. I cant remember how bad the first interferon injection is. I'm off work ti...

12Step Guy · 12Step Guy

Is anyone able to exercise while on treatment? Since I started 30 weeks ago, I can hardly go up a flight of stairs without getting winded. The lack of exercise seems to be taking a toll on me. Im gaining weight and transformed myself into a championship contender for the Couch Potato Olympics. Part of i...

Caryn · Caryn

Can anyone help explain the difference between riba rash and incivek rash? I have a few spots that have popped up and are itchy. I don't scratch and so far, cortizone cream has been okay. They usually flair after my shower.

52baddog · 52baddog

Does anybody know the relation between HEP C and Lichen Planus?

Caryn · Caryn

Any good suggestions for shampoo? I don't need thickening shampoo (yet), but my head itches. I am trying to wash my hair every other day to see if that helps.

greenqueen · greenqueen

If you're using Paracetamol (Tylenol) or similar, the best time to take it is 2 hours before your shot, thus preventing the symptoms rather than waiting for them to kick in Steff xx

Caryn · Caryn

Well, I woke up at 5:45 to get my day going. I have choked down my 20 g's of fat, 2 incivek and 3 riba. I have begun sipping water. I hope I can maintain this and I hope I can tolerate this treatment. My heart is pounding through my chest right now with anticipation. I want this virus gone! I will be an off...

Caryn · Caryn

I recently reviewed my blood work and in Aug 2012 my viral load was 5 mil. Then in dec 2012 it was 8 mil. That seems like quite a huge jump. Has anyone else experienced jumps like that in a short period of time? Same lab, same office, but different doctor. I am not very familiar with sensitivity tests.

Michaele · Michaele

Hi all, just saw the real hepatologist; a consult. not my usual GI. Im more confused in some ways. He said that the biopsy stages stage 2-3 but Im probaly cirrhotic . He stated my liver felt slightly enlarged, my platelets and WBC are low but not low enough to do anything about; platelets point to ci...

DJ · DJ

My side effects to treatment have not been what I have been expecting from reading other's experiences. I know I only started Friday and so things may be changing quite a bit. But I can only describe my reaction/side effects of the Ribavirin as "intoxicated' or 'tipsy'. I feel no stress; in fac...

TeddyTrout · TeddyTrout

Just got the news about my first PCR into the treatment. After 4 weeks of Interferon and riba I only had a 1/2 log drop. I'm into my 2 week of Victrelis Boceprvir and will have my second PCR in January, It's not looking good. I was a slow responder last time and had break through in a 72 week trial the last try i...

libgirl07 · libgirl07

I keep coming across people saying if you have no side effects from TX that that means it's not working. Is there any truth to this? Damn Google messing with my positivity

libgirl07 · libgirl07

Does it matter what time today I stab myself as long as it is the same day?

libgirl07 · libgirl07

Does it matter what time today I stab myself as long as it is the same day?

2willy · 2willy

Survieved trip into see doctor and it was cold -43 with windchill, because I had to stop for a week of treatment and because I did 9 weeks of just peg and rib before starting vict, no more testing for viral load until March 1 then wait two weeks for results, was told I would be either Und or off treatment if no...

Zlikster · Zlikster

I got call from hospital yesterday. My therapy (PegInt+Riba) has been approved and it starts this week. my case: HCV GT 3, diagnosed 6 months ago, VL 91k, FibroScan 5 kPa, FibroTest F1, biopsy avoided, 35 year old male, never been IV drugs user nor had any blood transfusion (dentist possibly), HCV inf...

Redraider · Redraider

I took my last 4 victrelis pills last night. I was on the 28 week treatment and have showed und since 4 wk. I want to say thank you to everyone here for all the answers I've found here. I hope each and everyone of you sucess. I'll be sure to ck in every once in a while. -- Edited by Redraider on Thursday 24th of Ja...

greenqueen · greenqueen

Hi Everyone, The comments about drinking water on tx are usually along the lines of "drink water.. then more water", but I was wondering if anyone had stopped to think if it's possible to drink too much water.... the answer is YES. It can be very dangerous to drink too much water as it interferes with the...

2willy · 2willy

Never got a straight answere on this when taking meds is grapefruit juice or eating a grapefruit ok with medications. seen news where some medications have a bad time with grapefruit. Will have to ask also about Meforin to Diabetic Association Bill and Family

Caryn · Caryn

I was just wondering if anyone on triple with Incivek takes the Incivek and riba together or do you spread it out? Seems like it would be much easier to take both in the AM and in the afternoon, then incevik alone for the last dose of the night. Any thoughts? I know the second dose of riba needs to be taken...

Northern · Northern

Took my last pills today. I can't wait for the pain to go away now. I had to go to the ER a couple of days ago because of the pain. Per the MD, I'm pretty tore up down and I may need a surgical intervention to fix things. I didn't get the rash but I guess I'm one of the 10% that has a extreme Rx to anal area.

onabugeisha · onabugeisha

14 weeks into treatment. Still und. blood counts low. Will see oncologist again for this. My sx include headaches, skin rash (sores), joint pain. Nausea, food taste wrong. Lack of energy. Itching. Things I have learned. Water taste good and is satisfying. Fruit and fruit smoothies tas...

Caryn · Caryn

Has anyone quit smoking as a result of treatment? Just curious.

LanaiSurferGirl · LanaiSurferGirl

It seems like the longer I am on treatment the more problems I have! I just made an appointment to see the opthamologist. I had a screening before treatment because my doc told me treatment can cause eye problems. I am expierencing burning and fuzzy spots sometimes. Anyone else deal with this? Wh...

Bloomster · Bloomster

Hubby got the VL results last week for Week 24 - Undetected. Very happy to go into the New Year with a great result.

Topic		Started By	Replies	Views	Last Post
	Side effect update (Preview) I started treatment on 2-1-13, took my first shot at 10:30PM took 2 ES tylenol 2 hours prior. Went immediately to bed, has high anxiety so it took me several hours to fall asleep. I work up about 2:30 with a high fever 101.5, drank some water and eventually fell back asleep. Woke with the chills teeth chat...	GodsGrl	1	718	Feb 4, 2013 by turtles
	Today Is the Day! Fighting the dragon! (Preview) We had a death in the family and I was not able to start on Wed. as planned. However I am starting tonight. I have already taken 600MG of Ribovirin. I will take 600 more this evening, then my first shot about 10PM. Any last minute advice? I am ready to start fighting the dragon! I'm actually excited to get th...	GodsGrl	7	967	Feb 3, 2013 by DJ
	Svr means your liver heals? (Preview) Can someone post a link to studies that svr means no more damage to your liver. I can't find anything. And also I know this has been asked before but I'd like to know the most recent info. After svr do you have to disclose your diagnosis anymore? I read somewhere that there is still very small amounts of vir...	libgirl07	0	596	Feb 2, 2013 by libgirl07
	Has your hair color lightened? (Preview) Hi, I'm new to this forum I started treatment 10/19/12. I'm in week 8 of triple therapy and my hair color is lightening significantly at my roots. Has anyone else experienced this? Thank you! Sue Anne -- Edited by Sue Anne on Sunday 9th of December 2012 11:31:48 PM	Sue Anne	22	1565	Feb 3, 2013 by Margo
	Back in the Hospital. 1/24/13 (Preview) Developed cellulitis on the abdomen / pannus and was admitted 1/24. Very painful and uncomfortable situation. It was also discovered my H/H went down to 7.5 and 24 My last dose of Invicek was on 1/20. I received 2 units of PRBC on 1/25 which brought up my H/H to 8.2 and 25. On 1/26 my H/H went back down...	Northern	7	881	Feb 2, 2013 by Cinnamon Girl
	Triple with bocep finally.. I'm a little scared (Preview) I finally am starting my triple tx with bocep tomorrow. I was supposed to start in october but couldnt afford it and now just found out i wont have to pay at all.. I feel so lucky right now. At the same time I'm extremely nervous. I cant remember how bad the first interferon injection is. I'm off work ti...	libgirl07	34	1611	Feb 2, 2013 by libgirl07
	Exercising? (Preview) Is anyone able to exercise while on treatment? Since I started 30 weeks ago, I can hardly go up a flight of stairs without getting winded. The lack of exercise seems to be taking a toll on me. Im gaining weight and transformed myself into a championship contender for the Couch Potato Olympics. Part of i...	12Step Guy	21	1561	Feb 1, 2013 by libgirl07
	Difference in Rash (Preview) Can anyone help explain the difference between riba rash and incivek rash? I have a few spots that have popped up and are itchy. I don't scratch and so far, cortizone cream has been okay. They usually flair after my shower.	Caryn	0	640	Jan 31, 2013 by Caryn
	Lichen Planus and HEP C (Preview) Does anybody know the relation between HEP C and Lichen Planus?	52baddog	5	1042	Jan 31, 2013 by Northern
	Shampoo (Preview) Any good suggestions for shampoo? I don't need thickening shampoo (yet), but my head itches. I am trying to wash my hair every other day to see if that helps.	Caryn	1	782	Jan 29, 2013 by GodsGrl
	Timing of Painkillers (Preview) If you're using Paracetamol (Tylenol) or similar, the best time to take it is 2 hours before your shot, thus preventing the symptoms rather than waiting for them to kick in Steff xx	greenqueen	0	620	Jan 28, 2013 by greenqueen
	First Day Begins (Preview) Well, I woke up at 5:45 to get my day going. I have choked down my 20 g's of fat, 2 incivek and 3 riba. I have begun sipping water. I hope I can maintain this and I hope I can tolerate this treatment. My heart is pounding through my chest right now with anticipation. I want this virus gone! I will be an off...	Caryn	47	1483	Jan 28, 2013 by Zlikster
	Viral load (Preview) I recently reviewed my blood work and in Aug 2012 my viral load was 5 mil. Then in dec 2012 it was 8 mil. That seems like quite a huge jump. Has anyone else experienced jumps like that in a short period of time? Same lab, same office, but different doctor. I am not very familiar with sensitivity tests.	Caryn	3	798	Jan 28, 2013 by jrc
	Real hepatologist (Preview) Hi all, just saw the real hepatologist; a consult. not my usual GI. Im more confused in some ways. He said that the biopsy stages stage 2-3 but Im probaly cirrhotic . He stated my liver felt slightly enlarged, my platelets and WBC are low but not low enough to do anything about; platelets point to ci...	Michaele	23	1373	Jan 26, 2013 by Judy S
	Intoxicated? (Preview) My side effects to treatment have not been what I have been expecting from reading other's experiences. I know I only started Friday and so things may be changing quite a bit. But I can only describe my reaction/side effects of the Ribavirin as "intoxicated' or 'tipsy'. I feel no stress; in fac...	DJ	12	1115	Jan 26, 2013 by Zlikster
	Week 4 only 1/2 log drop (Preview) Just got the news about my first PCR into the treatment. After 4 weeks of Interferon and riba I only had a 1/2 log drop. I'm into my 2 week of Victrelis Boceprvir and will have my second PCR in January, It's not looking good. I was a slow responder last time and had break through in a 72 week trial the last try i...	TeddyTrout	11	1500	Jan 26, 2013 by TeddyTrout
	No side effects a bad thing? (Preview) I keep coming across people saying if you have no side effects from TX that that means it's not working. Is there any truth to this? Damn Google messing with my positivity	libgirl07	13	1524	Jan 26, 2013 by Mary Jane
	Pegasys anytime or same time (Preview) Does it matter what time today I stab myself as long as it is the same day?	libgirl07	6	1024	Jan 26, 2013 by JoAnneh
	Pegasys anytime or same time (Preview) Does it matter what time today I stab myself as long as it is the same day?	libgirl07	2	624	Jan 26, 2013 by JoAnneh
	Back to Odd Ball again (Preview) Survieved trip into see doctor and it was cold -43 with windchill, because I had to stop for a week of treatment and because I did 9 weeks of just peg and rib before starting vict, no more testing for viral load until March 1 then wait two weeks for results, was told I would be either Und or off treatment if no...	2willy	3	709	Jan 25, 2013 by Mary Jane
	Starting therapy this week! (Preview) I got call from hospital yesterday. My therapy (PegInt+Riba) has been approved and it starts this week. my case: HCV GT 3, diagnosed 6 months ago, VL 91k, FibroScan 5 kPa, FibroTest F1, biopsy avoided, 35 year old male, never been IV drugs user nor had any blood transfusion (dentist possibly), HCV inf...	Zlikster	5	975	Jan 25, 2013 by Zlikster
	Finished (Preview) I took my last 4 victrelis pills last night. I was on the 28 week treatment and have showed und since 4 wk. I want to say thank you to everyone here for all the answers I've found here. I hope each and everyone of you sucess. I'll be sure to ck in every once in a while. -- Edited by Redraider on Thursday 24th of Ja...	Redraider	6	822	Jan 25, 2013 by davesf
	WATER - Yes you can drink too much! (closed) (Preview) Hi Everyone, The comments about drinking water on tx are usually along the lines of "drink water.. then more water", but I was wondering if anyone had stopped to think if it's possible to drink too much water.... the answer is YES. It can be very dangerous to drink too much water as it interferes with the...	greenqueen	6	4111	Jan 25, 2013 by GodsGrl
	is grapefruit and juice compatible with 3x therapy Vict (Preview) Never got a straight answere on this when taking meds is grapefruit juice or eating a grapefruit ok with medications. seen news where some medications have a bad time with grapefruit. Will have to ask also about Meforin to Diabetic Association Bill and Family	2willy	4	791	Jan 24, 2013 by mallani
	Taking Meds (Preview) I was just wondering if anyone on triple with Incivek takes the Incivek and riba together or do you spread it out? Seems like it would be much easier to take both in the AM and in the afternoon, then incevik alone for the last dose of the night. Any thoughts? I know the second dose of riba needs to be taken...	Caryn	3	682	Jan 23, 2013 by joe oil
	Completed Incviek! (Preview) Took my last pills today. I can't wait for the pain to go away now. I had to go to the ER a couple of days ago because of the pain. Per the MD, I'm pretty tore up down and I may need a surgical intervention to fix things. I didn't get the rash but I guess I'm one of the 10% that has a extreme Rx to anal area.	Northern	6	810	Jan 23, 2013 by gatekeep
	14 week blood draw results (Preview) 14 weeks into treatment. Still und. blood counts low. Will see oncologist again for this. My sx include headaches, skin rash (sores), joint pain. Nausea, food taste wrong. Lack of energy. Itching. Things I have learned. Water taste good and is satisfying. Fruit and fruit smoothies tas...	onabugeisha	4	925	Jan 23, 2013 by Bills
	Anyone quit smoking? (Preview) Has anyone quit smoking as a result of treatment? Just curious.	Caryn	7	924	Jan 22, 2013 by TeddyTrout
	eye problems (Preview) It seems like the longer I am on treatment the more problems I have! I just made an appointment to see the opthamologist. I had a screening before treatment because my doc told me treatment can cause eye problems. I am expierencing burning and fuzzy spots sometimes. Anyone else deal with this? Wh...	LanaiSurferGirl	15	2370	Jan 22, 2013 by jonpeeter
	Week 24 - UND (Preview) Hubby got the VL results last week for Week 24 - Undetected. Very happy to go into the New Year with a great result.	Bloomster	9	934	Jan 22, 2013 by Bloomster
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