Hep C Discussion Forum

libgirl07 · libgirl07

I was all excited to start my tx and found out just got peg and rib it'd be 1300 a month co pay not including victrelis. Thats over half of what I make and I'm a single mother. How the heck do people afford this? I thought i had good insurance too! I can't do it now because there is no way I can afford that....

2willy · 2willy

The Hemoglobin level that they use here for normal range is 139 to 179. Does anyone know at what reading is it necessary for a blood transfussion. If it drops to 80, 60 etc. no need for other information about reduceing pill, eprex etc just if anybody has needed a transfussion and what was their level a...

Sed3 · Sed3

Hi - I accidentally stored my Ribasphere tablets in the refrigerator for a week. The box says it should be between 59-86 F for "excursions", and normally at 77 F. No pharmacist at the mail order pharmacy today. Anyone to assuage my fear until tomorrow? Thanks!

Michael H · Michael H

Good morning! New here, hoping someone has an experience with this Redipen similar to mine, I can't get any info from the manufacturer. A little background, diagnosed in 1995 with Hep C, Genotype 1A. Back then, they tried straight Interferon... I believe I was the first case this particular docto...

CC · CC

Hi, I got the labs for the first two weeks today. I noticed that bilirubin has been rising. Pre tx 10, after first shot 23, after second shot 31. Does anyone know if this is normal? And what does this indicate? ALT and AST had gone down. CC

denise b · denise b

This may be a silly question but...I received all my meds (triple therapy) and was wondering if I can put the Incivek and Ribaviran tablets in the same pill box container? This is my first time on the treatment and am a little overwhelmed with it all. I take alot of other meds so trying to get oranized is tu...

JoAnneh · JoAnneh

My stomach is hurting and having nausea. I haven't had these symptoms in 24 weeks on tx. Stomach bothering me and feeling extra tired. Any one had this happen after months on medicine? I have to go 48 weeks and small rashes on stomach too. JoAnne

2willy · 2willy

still on one shot per week and 4 rib even though weight 240. Hemo is at 84 and doctor said not to start Victnelis until Hemo is at at least 90... normal range 139-189. Waiting for approval of injections of Eprex 2 per week on my own doing drops for Veggie's and B12. Sent me also for ECG as type 2 diabetic a...

2ndTimeAround · 2ndTimeAround

hey all, i am a non responder who finished my first round of treatment over 10 years ago. it didn't "take" and my latest liver biopsy, puts me at high stage 3 - stage 4. i am now waiting to start peg-interferon-telaprevir-ribavirin regimen. i am 53 now, in good shape and wondering how much...

DJ · DJ

I am honestly almost to the point of wanting to just give up. I found out I had this in July, and mentally ready to get started. Month after month my doctor finds a reason for me to have to wait another month. Right now it is my iron levels. I have been taking iron for a month and they are higher, but not goo...

packerfan24 · packerfan24

I am two weeeks done with incivek and starting to feel better. Alan you were right the butt is feeling much better and the irching is starting to go away. it feels goood to able to sleep through the nigt without scratching myself to death. I am not dizzy as i was. I still have a little dizziness but not as bad...

DJ · DJ

I told my daughter I am sick and have the beginnings of liver cancer and will be on chemo. I wasn't ready to say out loud I have Hep C. I also asked my daughter (who is college age) not to tell anyone.....well she did tell and now my friends and church knows. I was just planning to deal with this quietly, and...

Bloomster · Bloomster

Hi everyone, got the news this morning that my husband's 12 week viral load has come back as undetected! Am so pleased for him. We are going away for the weekend to Canberra, so it's just going to be that bit more enjoyable. It feels like a milestone has been passed, even though we've got a way to go. C...

gatekeep · gatekeep

I have been having severe rectal pressure and pain. I drink the water, use medicated wipes, soft fatty diet. And a hydro cortizon insertable ointment My question is does anyone take pain meds. for this? I'm seriously thinking about getting a script of something strong. I can't take it anymore!... Br...

12Step Guy · 12Step Guy

For all my fellow travelers, brothers and sisters, we are all trying to offer each other tips about getting through Hep_C treatment and living with the virus if that becomes the case. To further these endeavors I like to add another tool to your toolbox: Mindlessness ! What is Mindlessness? It is a...

opie · opie

My white blood cells were low, (around 1.2) for the last 8 weeks or so, but 12 days ago they were high at 13.8. so we stopped the two neupogen shots each week and raised the pegassus up to 135 from 90. While my count was low my nurse kept telling me to let her know if I get a fever. Her office is closed for the...

Uval951 · Uval951

Silly question - why are prednisolon and similar hormones contraindicated for allergy treatment?

libgirl07 · libgirl07

I'm 28 was diagnosed at 18. Tried SOC for I think 9 months and my mothers insurance dropped me because I turned 19. My doctors cant find any viral load labs after i started .. So any who.. My viral load is 1.5 mil and log pcr is 6.18. I'm starting as soon as I get my meds and can get into an education clas...

jwmaher · jwmaher

Hi, I'm about to do my last shot on Sunday 10/27/12. I'vae been undetected for some time but just last week I was told I still had the virus but the numbers were to low to quantify. I'm glad I'm coming off the drugs; my doctor feels that it was good that I did it because we'll be able to keep close track and ss...

gatekeep · gatekeep

I just had a draw for my viral load and other stuff done. I hope To report good news Weds. This is no fun. But from what I've been reading here I'm not alone.

LaBajista · LaBajista

show UND!! I just hope it stays that way, long after treatment has completed. I keep reading about people who've relapsed and it freaks me the f**k out! Trying to be happy about this but everything else in my life is making it difficult to enjoy the good news. And I'm having trouble feeling like eating...

innerview · innerview

It started a couple of nights ago. Last night didn't get a lot of sleep and today still feeling pain and irritation in the legs. Can't sit still and don't have the energy to move around. Any help or guidence appreciated. Mark

iggle · iggle

So it turns out that I have folliculitis, or an ingrown hair under my right arm. I noticed it on Friday, when moving my arm hurt like heck. I went to the ER to get it checked out, and they prescribed me an antibiotic called bactrim. The bactrim has been making me nauseous to the point that I can't take it a...

mallani · mallani

Two months ago I had episodes of severe R eye pain. I saw my Opthalmologist who checked my eyes, pressures etc and said they all looked normal. I'm worried about optic nerve neuritis which may be an interferon Sx. He said it could be a wierd migraine and to come back. Sure enough, for the last two nights, s...

Mary Jane · Mary Jane

Phone call from Doc office late yesterday afternoon... 4 week labs < 5 ! so I assume and that's makes it under a 1000 , thus this would be considered UND? My brain is not firing all on all cylinders.. God I hope so because this has been a rocky road.. peace and love MJ May we all slay this beast once a...

Alleysun · Alleysun

Hi everyone! I haven't been on here in a while. I'm 5 weeks post treatment!! And I'm feeling better and better every week... getting a little more energy every day!! It's so amazing to feel good again. Did anyone have any withdrawls after treatment? Or know of anyone that went through that?? Hope every...

packerfan24 · packerfan24

Just finished week 12 and I am happier than a witch in a broom factory. I have a question, will there be any withdrawl symtems from finishing incrvik? Ken

willardt71 · willardt71

I have been on treatment for 4 weeks now.. triple therapy with Incivek. I have noticed this rash ..i think its a rash... on my upper thighs. Doesn't itch but it does hurt some what. Any one else have this while on therapy??

Margo · Margo

Hey guys, this is almost it for me. Even though I felt pretty good throughout my treatment( except the Incivek months) I do look pale and sick. People comment on my appearance daily, it is noticeable. I try to cover up with with bronzers daily. Lost 80% of my hair, the most upsetting part. Lost weight, fr...

gonnabhepcfree · gonnabhepcfree

I am in 17th week of tx, felt great after Incivek finished. Now I am experiencing a great deal of anxiety, that is becoming almost unbearable. Just wondering if anyone else has experienced this. I know depression is common with the tx, I am irritable,short tempered, and emotional just to name a few. Is...

Topic		Started By	Replies	Views	Last Post
	Affording tx (Preview) I was all excited to start my tx and found out just got peg and rib it'd be 1300 a month co pay not including victrelis. Thats over half of what I make and I'm a single mother. How the heck do people afford this? I thought i had good insurance too! I can't do it now because there is no way I can afford that....	libgirl07	11	1260	Nov 9, 2012 by country1960
	Blood Transfussion Hemoglobin level (Preview) The Hemoglobin level that they use here for normal range is 139 to 179. Does anyone know at what reading is it necessary for a blood transfussion. If it drops to 80, 60 etc. no need for other information about reduceing pill, eprex etc just if anybody has needed a transfussion and what was their level a...	2willy	3	1015	Nov 8, 2012 by 2willy
	Ribasphere tablets in refrigerator? (Preview) Hi - I accidentally stored my Ribasphere tablets in the refrigerator for a week. The box says it should be between 59-86 F for "excursions", and normally at 77 F. No pharmacist at the mail order pharmacy today. Anyone to assuage my fear until tomorrow? Thanks!	Sed3	14	2497	Nov 8, 2012 by Sed3
	Pegintron Redipen (Preview) Good morning! New here, hoping someone has an experience with this Redipen similar to mine, I can't get any info from the manufacturer. A little background, diagnosed in 1995 with Hep C, Genotype 1A. Back then, they tried straight Interferon... I believe I was the first case this particular docto...	Michael H	9	1155	Nov 7, 2012 by Michael H
	Bilirubin rising (Preview) Hi, I got the labs for the first two weeks today. I noticed that bilirubin has been rising. Pre tx 10, after first shot 23, after second shot 31. Does anyone know if this is normal? And what does this indicate? ALT and AST had gone down. CC	CC	9	1877	Nov 6, 2012 by Bouba
	setting up my pills box (Preview) This may be a silly question but...I received all my meds (triple therapy) and was wondering if I can put the Incivek and Ribaviran tablets in the same pill box container? This is my first time on the treatment and am a little overwhelmed with it all. I take alot of other meds so trying to get oranized is tu...	denise b	10	1305	Nov 4, 2012 by mallani
	Stomach pain (Preview) My stomach is hurting and having nausea. I haven't had these symptoms in 24 weeks on tx. Stomach bothering me and feeling extra tired. Any one had this happen after months on medicine? I have to go 48 weeks and small rashes on stomach too. JoAnne	JoAnneh	5	1341	Nov 3, 2012 by JoAnneh
	Week 5 no tripple yet (Preview) still on one shot per week and 4 rib even though weight 240. Hemo is at 84 and doctor said not to start Victnelis until Hemo is at at least 90... normal range 139-189. Waiting for approval of injections of Eprex 2 per week on my own doing drops for Veggie's and B12. Sent me also for ECG as type 2 diabetic a...	2willy	9	3047	Nov 3, 2012 by 2willy
	non-Responder going for round 2 (Preview) hey all, i am a non responder who finished my first round of treatment over 10 years ago. it didn't "take" and my latest liver biopsy, puts me at high stage 3 - stage 4. i am now waiting to start peg-interferon-telaprevir-ribavirin regimen. i am 53 now, in good shape and wondering how much...	2ndTimeAround	4	1118	Nov 1, 2012 by 2ndTimeAround
	How do you find out info about trials? (Preview) I am honestly almost to the point of wanting to just give up. I found out I had this in July, and mentally ready to get started. Month after month my doctor finds a reason for me to have to wait another month. Right now it is my iron levels. I have been taking iron for a month and they are higher, but not goo...	DJ	5	1221	Oct 31, 2012 by DJ
	Incivek (Preview) I am two weeeks done with incivek and starting to feel better. Alan you were right the butt is feeling much better and the irching is starting to go away. it feels goood to able to sleep through the nigt without scratching myself to death. I am not dizzy as i was. I still have a little dizziness but not as bad...	packerfan24	2	900	Oct 30, 2012 by news
	Did you tell people you have Hep C? (Preview) I told my daughter I am sick and have the beginnings of liver cancer and will be on chemo. I wasn't ready to say out loud I have Hep C. I also asked my daughter (who is college age) not to tell anyone.....well she did tell and now my friends and church knows. I was just planning to deal with this quietly, and...	DJ	30	3697	Oct 29, 2012 by Raven7446
	Husband 12 week undetected (Preview) Hi everyone, got the news this morning that my husband's 12 week viral load has come back as undetected! Am so pleased for him. We are going away for the weekend to Canberra, so it's just going to be that bit more enjoyable. It feels like a milestone has been passed, even though we've got a way to go. C...	Bloomster	5	1083	Oct 29, 2012 by Bloomster
	Pain management (Preview) I have been having severe rectal pressure and pain. I drink the water, use medicated wipes, soft fatty diet. And a hydro cortizon insertable ointment My question is does anyone take pain meds. for this? I'm seriously thinking about getting a script of something strong. I can't take it anymore!... Br...	gatekeep	17	1861	Oct 29, 2012 by krowdog
	Mindlessness (Preview) For all my fellow travelers, brothers and sisters, we are all trying to offer each other tips about getting through Hep_C treatment and living with the virus if that becomes the case. To further these endeavors I like to add another tool to your toolbox: Mindlessness ! What is Mindlessness? It is a...	12Step Guy	6	1108	Oct 28, 2012 by hrsetrdr
	how high a fever before I should go to ER? (Preview) My white blood cells were low, (around 1.2) for the last 8 weeks or so, but 12 days ago they were high at 13.8. so we stopped the two neupogen shots each week and raised the pegassus up to 135 from 90. While my count was low my nurse kept telling me to let her know if I get a fever. Her office is closed for the...	opie	2	831	Oct 26, 2012 by opie
	Allergy - why no prednisolon? (Preview) Silly question - why are prednisolon and similar hormones contraindicated for allergy treatment?	Uval951	2	882	Oct 25, 2012 by Uval951
	About to start triple therapy with boceprevir aka victrelis.. Had to tell someone! (Preview) I'm 28 was diagnosed at 18. Tried SOC for I think 9 months and my mothers insurance dropped me because I turned 19. My doctors cant find any viral load labs after i started .. So any who.. My viral load is 1.5 mil and log pcr is 6.18. I'm starting as soon as I get my meds and can get into an education clas...	libgirl07	7	1509	Oct 26, 2012 by mallani
	good news with reservation (Preview) Hi, I'm about to do my last shot on Sunday 10/27/12. I'vae been undetected for some time but just last week I was told I still had the virus but the numbers were to low to quantify. I'm glad I'm coming off the drugs; my doctor feels that it was good that I did it because we'll be able to keep close track and ss...	jwmaher	3	818	Oct 25, 2012 by Cinnamon Girl
	4 wk results this Weds. (Preview) I just had a draw for my viral load and other stuff done. I hope To report good news Weds. This is no fun. But from what I've been reading here I'm not alone.	gatekeep	7	1028	Oct 25, 2012 by gatekeep
	labs 10 days after starting treatment... (Preview) show UND!! I just hope it stays that way, long after treatment has completed. I keep reading about people who've relapsed and it freaks me the f**k out! Trying to be happy about this but everything else in my life is making it difficult to enjoy the good news. And I'm having trouble feeling like eating...	LaBajista	3	777	Oct 25, 2012 by onabugeisha
	Help with Restless Leg Syndrome (RLS) (Preview) It started a couple of nights ago. Last night didn't get a lot of sleep and today still feeling pain and irritation in the legs. Can't sit still and don't have the energy to move around. Any help or guidence appreciated. Mark	innerview	17	3052	Oct 25, 2012 by K2
	I'm getting frustrated (Preview) So it turns out that I have folliculitis, or an ingrown hair under my right arm. I noticed it on Friday, when moving my arm hurt like heck. I went to the ER to get it checked out, and they prescribed me an antibiotic called bactrim. The bactrim has been making me nauseous to the point that I can't take it a...	iggle	10	1166	Oct 24, 2012 by Biggyb
	Eye pain- again (Preview) Two months ago I had episodes of severe R eye pain. I saw my Opthalmologist who checked my eyes, pressures etc and said they all looked normal. I'm worried about optic nerve neuritis which may be an interferon Sx. He said it could be a wierd migraine and to come back. Sure enough, for the last two nights, s...	mallani	24	1540	Oct 24, 2012 by Cinnamon Girl
	4 week labs (Preview) Phone call from Doc office late yesterday afternoon... 4 week labs < 5 ! so I assume and that's makes it under a 1000 , thus this would be considered UND? My brain is not firing all on all cylinders.. God I hope so because this has been a rocky road.. peace and love MJ May we all slay this beast once a...	Mary Jane	33	2852	Oct 24, 2012 by Mary Jane
	withdrawl (Preview) Hi everyone! I haven't been on here in a while. I'm 5 weeks post treatment!! And I'm feeling better and better every week... getting a little more energy every day!! It's so amazing to feel good again. Did anyone have any withdrawls after treatment? Or know of anyone that went through that?? Hope every...	Alleysun	5	1046	Oct 23, 2012 by Alleysun
	week 12 (Preview) Just finished week 12 and I am happier than a witch in a broom factory. I have a question, will there be any withdrawl symtems from finishing incrvik? Ken	packerfan24	4	902	Oct 23, 2012 by iggle
	rash? (Preview) I have been on treatment for 4 weeks now.. triple therapy with Incivek. I have noticed this rash ..i think its a rash... on my upper thighs. Doesn't itch but it does hurt some what. Any one else have this while on therapy??	willardt71	3	860	Oct 22, 2012 by Butcheeyboy
	Last shot, last week of RIBA , looking back. (Preview) Hey guys, this is almost it for me. Even though I felt pretty good throughout my treatment( except the Incivek months) I do look pale and sick. People comment on my appearance daily, it is noticeable. I try to cover up with with bronzers daily. Lost 80% of my hair, the most upsetting part. Lost weight, fr...	Margo	22	1608	Oct 21, 2012 by Margo
	ANXIETY (Preview) I am in 17th week of tx, felt great after Incivek finished. Now I am experiencing a great deal of anxiety, that is becoming almost unbearable. Just wondering if anyone else has experienced this. I know depression is common with the tx, I am irritable,short tempered, and emotional just to name a few. Is...	gonnabhepcfree	14	2275	Oct 20, 2012 by gonnabhepcfree
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