Hep C Discussion Forum

kirkroad · kirkroad

What can I expect for side effects? Has anyone managed to go with no ill effects? -- Edited by kirkroad on Sunday 22nd of July 2012 09:25:41 PM

Tattoo Bear · Tattoo Bear

After three days of Tx I have begun to itch. I was aware this would happen and have trimmed my nails. It seems that the areas that itch most are my tattoos. Has this happened to anyone else? When getting tattoos they itch real bad during the healing process. Is it possible that being the immune system is in...

urespa2 · urespa2

Took my second shot Friday and from the start it knocked me on my rear. Stayed in bed all day Saturday dizzy, lightheaded, weak and tired. Wow! not what I expected since last week I hardly noticed any difference in how I felt. Its worth noting and this could be the reason why such a noticeable difference,...

Margo · Margo

Incivek (Telaprevir) Fact Sheet From Treatment Action Group April 2012What Is Incivek? Incivek is a hepatitis C virus (HCV)-fighting protease inhibitor that works for people with genotype 1. Incivek blocks an important step in the hepatitis C virus life cycle. The HCV protease enzyme wor...

js2012 · js2012

Hello,I take Victrelis @ 6:30AM, 3:30PM and 10:30 PM (this is my 4th week)I also take Riba @6:30 AM together with Victrelis and @6:30 PM by itself.This is 4 pill-taking times a day. Each time I have to take it with food or snack (according to directions. Thankfully does not have to be high in fat)....

Alleysun · Alleysun

Hi everyone! I just joined this forum... wish I knew about it from day 1! I'm on my 21st week and going strong! With the Victrelis I only have 7 weeks left :) YAY!! My question for you all - do you know anyone around my age (25) who also has Hep C or is also going through treatment?!? My mom has it also and we are...

cayohueso1 · cayohueso1

Hi there, this is the always positive cayohueso1, and I had my first shot at 5 this evening. First dose of Riba at midnight. By 1am, I had on long johns and a heavy tshirt, with the ac off,(I am in Fla) and I could not stop shaking with the chills uncontrolably. Now its 3 I am up with a pounding head stiff neck...

js2012 · js2012

Hello :) I would like to share something with you. This is my second treatment. First treatment was in 2002 of int and reb and did not work. I am a type a1 non responder. In 2002 I did not have any side effects. None. This time I am on tipple (added victrelis 2 weeks ago) and the itch is KILLING me. Especially i...

innerview · innerview

Hi. My Hemoglobin level is still dropping. I am feeling so wiped out! I go for labs on Monday but as I am feeling worse by the day/hour, I just wonder if I should go in this weekend for blood test... ??? Or am I being over worried? At what level would it be considered dangerously low? And what can occur whe...

xtreme · xtreme

So just like the title states, I am on week 5 post incivik treament. I ended it on Jun 22. The fire-rehea for the most part stopped when I got off of it, but recently a bout of painful bathroom movements has come up. I have had hemorroids since the incivik. They have never fully gone away. I have been using pr...

mallani · mallani

Happy to report UNDET. at 24 weeks. That gives me my sRVR

Margo · Margo

I've been off incivek for a month, but I've notice a rash on my forearms. Looks like tiny, whitish bumps all over. Doesn't itch thank gd, just looks kinda gross. Anyone had that? Now I see how toxic this crap we are on, I thought incivek was bad. I will post a photo tomorrow from my computer.

Redraider · Redraider

Dr office called and said the virus was undetectable in my 4 week labs. Man I'm so happy right now.

ob1canoli · ob1canoli

I've seen the charts and general rule for best result to stay und........and like myself i have cirrossiss 3 to 4.....andi know theres a chance it still mite not clear for good...Its a battle.....incieviek is some mean stuff......if it clears up ill be very grateful......if not i won't go thru the m...

urespa2 · urespa2

Oh-kay...now I understand the flu like symptons that comes from the Pegysas. I woke up last night with the chills. My body was weak, and I tossed and turned for about two hours until I finaly went back to sleep. I got up this morning feeling fine as if nothing happened. Looking back it wasn't that bad and n...

lyle · lyle

4 more weeks of triple to go, then i'm suppose to go the long run, 11 month total on the other 2 meds. can anyone tell me it will get much easier on just the peg and riboviren?

bison · bison

I work in the medical profession (which is likely where i contracted this disease), but had fits trying to get my insurance to pay for treatment. They said I would be responsible for approx. $6,440/month of therapy. Thank God my husband is a coal miner with wonderful insurance which pays all but $15...

Bloomster · Bloomster

Hi guys, whilst reading many of the posts I've noticed there is a great variation in people's viral load. Prior to treatment, some have had viral loads of 1.5 million and then I've seen others will massive viral loads of 22 million. My husband had 14+million prior to his treatment also. My question i...

Bloomster · Bloomster

Hubby's just started treatment last week. Will be doing the triple therapy (victrelis) so is on peg/rib at the moment. He is having pain behind the eyes and constant shooting pains at the base of his skull, along with the usual fatigue. Has anyone else experienced this? Thanks in advance.

Margo · Margo

This is my week 17 and for the past 2 weeks I've been really nauseas, especially in the morning and after consuming food( can't eat meat at all!) indigestion, had to throw up a few times, food doesn't digest after 4 hours and brings nausea and heartburn. Sorry for graphic details... I am experiencing so...

scotu · scotu

Shot my last dart last Friday, Aug. 17th and last Ribavirin today. Had my 48 week labs drawn today too, can't wait for results. Undectable at 4, 12, 24 and 36 weeks, and it's going to be Undectable at 48, 52 and 60. Still have cirrhosis but I'm going to live w/ that. Geno 1a, First detected in 1984 but the...

suey · suey

I've been done with Incivek since end of July and still can't taste food properly. Have sweet and sour, but salt and just normal (like meat, lettuce, bread) just aren't there. Has anyone else out there in our world experienced this? Is this an interfering symptom? Will it get better? Thanks to anyone w...

Bloomster · Bloomster

I was just reading something about the times of taking the dosages or Rib. I know the Victrelis has a strict regime. My husband's doctor has said he can take it at: 7.30am, 2.30pm and 9.30pm. My question is about the Ribavirin - when he did the 4 week lead in, his doctor just said 3 tabs in the morning and 4 t...

marktrux · marktrux

In about 3 hours I'll take my last Incivek. I just sat down and disabled all of my "8 hour forced feeding" alarms and nothing could ever have felt better. Going UND @ 8 weeks was very exciting, but I've never felt such releif in my life as when I shut-down the alarms. I can sleep till past 6A.M. an...

innerview · innerview

Although requiring further investigation, a study has demonstrated Vitamin B12 as capable of boosting the success of Hepatitis C treatment.By Nicole Cutler, L.Ac.The recent addition of a third medication to the standard Hepatitis C drug ****tail has dramatically improved the cure rate, but th...

bstanga · bstanga

Well I've made it to my last week. I took my last shot on friday 8-17-12. the rash on my hands and arms is really bad, it to the point of people noticing it. I just say "bad case of poison ivy", any way I hope I'll get my energy back soon. That by far has been the worst sx, just walking and pulling or ca...

52baddog · 52baddog

Hep C Trial with Sovaprevir Has 85% Success RateAugust 20, 2012 In a mid-stage trial, Achillion's experimental drug, sovaprevir, demonstrated an excellent efficacy rate and safety profile. Achillion hepatitis C drug shows promise in mid-stage study Tue Aug 7, 2012 8:37pm EDT (Reporting by Zeb...

Vectorwoman · Vectorwoman

I have been researching the nutritional values of foods (trying to get as healthy as possible). One thing that keeps popping up is there is new research showing that Onion juice applied to the scalp promotes hair growth. I know that interfeuron can cause some hair loss so this could be some great news f...

HEPC Fighter · HEPC Fighter

I am on my 3rd day of triple tx - yesterday started the burning - what foods should I stay clear of in order to harden my soft stool - any one experiencing the same? I just got Balneol cream to cleanse myself & I'm using PrepH - I wanted to try Lopermaide any experience with this as far as hardening sto...

Bloomster · Bloomster

Hi there, hubby has just started Victrelis yesterday and it has floored him in under 24hrs. He is so lethargic, sickly and freezing cold. Just looking for some reassurance here - is being freezing cold normal? It's 21 degrees in Sydney today and so it's not cold. Any feedback would be helpful.

Topic		Started By	Replies	Views	Last Post
	Starting 3x in Aug (Preview) What can I expect for side effects? Has anyone managed to go with no ill effects? -- Edited by kirkroad on Sunday 22nd of July 2012 09:25:41 PM	kirkroad	14	2270	Sep 4, 2012 by kirkroad
	Itching: When and Where, and itching and tattoos. (Preview) After three days of Tx I have begun to itch. I was aware this would happen and have trimmed my nails. It seems that the areas that itch most are my tattoos. Has this happened to anyone else? When getting tattoos they itch real bad during the healing process. Is it possible that being the immune system is in...	Tattoo Bear	10	1150	Sep 4, 2012 by Tattoo Bear
	2nd shot (Preview) Took my second shot Friday and from the start it knocked me on my rear. Stayed in bed all day Saturday dizzy, lightheaded, weak and tired. Wow! not what I expected since last week I hardly noticed any difference in how I felt. Its worth noting and this could be the reason why such a noticeable difference,...	urespa2	3	815	Sep 3, 2012 by Tattoo Bear
	Incivek (Telaprevir) Fact Sheet- Interesting Information (Preview) Incivek (Telaprevir) Fact Sheet From Treatment Action Group April 2012What Is Incivek? Incivek is a hepatitis C virus (HCV)-fighting protease inhibitor that works for people with genotype 1. Incivek blocks an important step in the hepatitis C virus life cycle. The HCV protease enzyme wor...	Margo	4	6198	Sep 3, 2012 by cmerduran
	Snack or Food Ideas to take with pills (Preview) Hello,I take Victrelis @ 6:30AM, 3:30PM and 10:30 PM (this is my 4th week)I also take Riba @6:30 AM together with Victrelis and @6:30 PM by itself.This is 4 pill-taking times a day. Each time I have to take it with food or snack (according to directions. Thankfully does not have to be high in fat)....	js2012	8	1546	Sep 2, 2012 by Michaele
	Anyone my age going through this?!? age 25 (Preview) Hi everyone! I just joined this forum... wish I knew about it from day 1! I'm on my 21st week and going strong! With the Victrelis I only have 7 weeks left :) YAY!! My question for you all - do you know anyone around my age (25) who also has Hep C or is also going through treatment?!? My mom has it also and we are...	Alleysun	9	1206	Sep 1, 2012 by libgirl07
	First shot (Preview) Hi there, this is the always positive cayohueso1, and I had my first shot at 5 this evening. First dose of Riba at midnight. By 1am, I had on long johns and a heavy tshirt, with the ac off,(I am in Fla) and I could not stop shaking with the chills uncontrolably. Now its 3 I am up with a pounding head stiff neck...	cayohueso1	16	1207	Sep 1, 2012 by Tattoo Bear
	The Itch is killing me (Preview) Hello :) I would like to share something with you. This is my second treatment. First treatment was in 2002 of int and reb and did not work. I am a type a1 non responder. In 2002 I did not have any side effects. None. This time I am on tipple (added victrelis 2 weeks ago) and the itch is KILLING me. Especially i...	js2012	22	2658	Sep 1, 2012 by js2012
	Low Hemoglobin... when is it dangerously low? (Preview) Hi. My Hemoglobin level is still dropping. I am feeling so wiped out! I go for labs on Monday but as I am feeling worse by the day/hour, I just wonder if I should go in this weekend for blood test... ??? Or am I being over worried? At what level would it be considered dangerously low? And what can occur whe...	innerview	12	19221	Sep 1, 2012 by mallani
	Going on 5 weeks post Incivik and still have burning issues and hemorroids? (Preview) So just like the title states, I am on week 5 post incivik treament. I ended it on Jun 22. The fire-rehea for the most part stopped when I got off of it, but recently a bout of painful bathroom movements has come up. I have had hemorroids since the incivik. They have never fully gone away. I have been using pr...	xtreme	6	952	Sep 1, 2012 by news
	24 week VL (Preview) Happy to report UNDET. at 24 weeks. That gives me my sRVR	mallani	14	1017	Aug 31, 2012 by davesf
	RIBA rash??? (Preview) I've been off incivek for a month, but I've notice a rash on my forearms. Looks like tiny, whitish bumps all over. Doesn't itch thank gd, just looks kinda gross. Anyone had that? Now I see how toxic this crap we are on, I thought incivek was bad. I will post a photo tomorrow from my computer.	Margo	4	1487	Aug 31, 2012 by marktrux
	Got some good news today (Preview) Dr office called and said the virus was undetectable in my 4 week labs. Man I'm so happy right now.	Redraider	13	1116	Aug 30, 2012 by Bills
	48 wks seems to be general rule if you have cirrosis (Preview) I've seen the charts and general rule for best result to stay und........and like myself i have cirrossiss 3 to 4.....andi know theres a chance it still mite not clear for good...Its a battle.....incieviek is some mean stuff......if it clears up ill be very grateful......if not i won't go thru the m...	ob1canoli	7	1193	Aug 30, 2012 by LanaiSurferGirl
	Symptons (Preview) Oh-kay...now I understand the flu like symptons that comes from the Pegysas. I woke up last night with the chills. My body was weak, and I tossed and turned for about two hours until I finaly went back to sleep. I got up this morning feeling fine as if nothing happened. Looking back it wasn't that bad and n...	urespa2	12	1195	Aug 30, 2012 by Bills
	finishing week 8 of incevek (Preview) 4 more weeks of triple to go, then i'm suppose to go the long run, 11 month total on the other 2 meds. can anyone tell me it will get much easier on just the peg and riboviren?	lyle	9	1256	Aug 29, 2012 by Margo
	Anyone having trouble getting insurance companies to pay for treatment? (Preview) I work in the medical profession (which is likely where i contracted this disease), but had fits trying to get my insurance to pay for treatment. They said I would be responsible for approx. $6,440/month of therapy. Thank God my husband is a coal miner with wonderful insurance which pays all but $15...	bison	6	953	Aug 29, 2012 by iggle
	Viral Load (Preview) Hi guys, whilst reading many of the posts I've noticed there is a great variation in people's viral load. Prior to treatment, some have had viral loads of 1.5 million and then I've seen others will massive viral loads of 22 million. My husband had 14+million prior to his treatment also. My question i...	Bloomster	11	1361	Aug 29, 2012 by nohcvforme
	Is this normal? (Preview) Hubby's just started treatment last week. Will be doing the triple therapy (victrelis) so is on peg/rib at the moment. He is having pain behind the eyes and constant shooting pains at the base of his skull, along with the usual fatigue. Has anyone else experienced this? Thanks in advance.	Bloomster	5	965	Aug 28, 2012 by Cinnamon Girl
	Liver pain? Nausea and indigestion. (Preview) This is my week 17 and for the past 2 weeks I've been really nauseas, especially in the morning and after consuming food( can't eat meat at all!) indigestion, had to throw up a few times, food doesn't digest after 4 hours and brings nausea and heartburn. Sorry for graphic details... I am experiencing so...	Margo	3	1128	Aug 26, 2012 by 52baddog
	My last week TOO! (Preview) Shot my last dart last Friday, Aug. 17th and last Ribavirin today. Had my 48 week labs drawn today too, can't wait for results. Undectable at 4, 12, 24 and 36 weeks, and it's going to be Undectable at 48, 52 and 60. Still have cirrhosis but I'm going to live w/ that. Geno 1a, First detected in 1984 but the...	scotu	9	985	Aug 26, 2012 by Kellyw
	Taste not tasty (Preview) I've been done with Incivek since end of July and still can't taste food properly. Have sweet and sour, but salt and just normal (like meat, lettuce, bread) just aren't there. Has anyone else out there in our world experienced this? Is this an interfering symptom? Will it get better? Thanks to anyone w...	suey	0	649	Aug 25, 2012 by suey
	Dosage Times (Preview) I was just reading something about the times of taking the dosages or Rib. I know the Victrelis has a strict regime. My husband's doctor has said he can take it at: 7.30am, 2.30pm and 9.30pm. My question is about the Ribavirin - when he did the 4 week lead in, his doctor just said 3 tabs in the morning and 4 t...	Bloomster	3	888	Aug 25, 2012 by Bloomster
	last incivek (Preview) In about 3 hours I'll take my last Incivek. I just sat down and disabled all of my "8 hour forced feeding" alarms and nothing could ever have felt better. Going UND @ 8 weeks was very exciting, but I've never felt such releif in my life as when I shut-down the alarms. I can sleep till past 6A.M. an...	marktrux	8	1187	Aug 25, 2012 by Scout
	Vitamin B12 During Hepatitis C Treatment (Preview) Although requiring further investigation, a study has demonstrated Vitamin B12 as capable of boosting the success of Hepatitis C treatment.By Nicole Cutler, L.Ac.The recent addition of a third medication to the standard Hepatitis C drug ****tail has dramatically improved the cure rate, but th...	innerview	13	2158	Aug 23, 2012 by urespa2
	My last week (Preview) Well I've made it to my last week. I took my last shot on friday 8-17-12. the rash on my hands and arms is really bad, it to the point of people noticing it. I just say "bad case of poison ivy", any way I hope I'll get my energy back soon. That by far has been the worst sx, just walking and pulling or ca...	bstanga	20	1284	Aug 24, 2012 by Sed3
	HEP C NEWS---NEW DRUG (Preview) Hep C Trial with Sovaprevir Has 85% Success RateAugust 20, 2012 In a mid-stage trial, Achillion's experimental drug, sovaprevir, demonstrated an excellent efficacy rate and safety profile. Achillion hepatitis C drug shows promise in mid-stage study Tue Aug 7, 2012 8:37pm EDT (Reporting by Zeb...	52baddog	0	731	Aug 23, 2012 by 52baddog
	A cheap natural remedy for hair loss (Preview) I have been researching the nutritional values of foods (trying to get as healthy as possible). One thing that keeps popping up is there is new research showing that Onion juice applied to the scalp promotes hair growth. I know that interfeuron can cause some hair loss so this could be some great news f...	Vectorwoman	4	1775	Aug 23, 2012 by annice
	anal burning (Preview) I am on my 3rd day of triple tx - yesterday started the burning - what foods should I stay clear of in order to harden my soft stool - any one experiencing the same? I just got Balneol cream to cleanse myself & I'm using PrepH - I wanted to try Lopermaide any experience with this as far as hardening sto...	HEPC Fighter	18	1953	Aug 22, 2012 by Shaun
	Just started Victrelis (Preview) Hi there, hubby has just started Victrelis yesterday and it has floored him in under 24hrs. He is so lethargic, sickly and freezing cold. Just looking for some reassurance here - is being freezing cold normal? It's 21 degrees in Sydney today and so it's not cold. Any feedback would be helpful.	Bloomster	6	1160	Aug 22, 2012 by Bloomster
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