Hep C Discussion Forum

bauhaus76 · bauhaus76

i guys! tomorow my 2de shot! i have a bit iching down there,and my heart feels to be working very hard after i eat,,,strange feeling is that i must say..until now no skin alergies or pains,but the nausea its geeting stronger,i stil have apetite but because of the nausea im eating less.

Judy S · Judy S

What is going on? I went to UND somewhere between Weeks 4 and 8. I happened to call my dr office today and found out they did Quantitative tests both on May 9th and 16th, along with the CBC, enzymes, etc. I didn't know they did that; thought I was just getting Viral Load testing every 4 weeks. Well.........

mallani · mallani

Happy to report another undetected at 12 weeks. Platelets down to 60,000 but who cares. Can my US friends help? How many have access to Heptimax? We do not have it in Australia. My Lab uses the Roche PCR Quantitative test that goes down to 15 copies. So my report reads' <15, Target Not Detected. When I...

news · news

I have been interviewed by two newspapers in the past week about Hep C testing and treatment. There is a tentative schedule for Friday afternoon for an in-studio interview on camera for a TV station. My doctor will be there with me for that one. All this attention feels very strange, but the interviews...

Phil G · Phil G

Came in the mail today (8 days), and it is UNDETECTED. Thanks for all the reassurances. Wish I could listen better. Last 7 weeks on reduced riba (1000 mg to 600 mg). HGB up to 11.3 from low of 9.4. Two more shots to go! Labs say the following: HCV RNA, Quantitative Real Time PCR <43 Not Detected

Margo · Margo

Found myself not be able to keep food in the stomach due to indigestion. Nausea brings vomiting and I feel better. I'm just hoping I will not get used to that. Everything tastes bad, I have no appetite and when I do eat I ended up twice throwing up. Im sure whoevers on Incivek is literally attached to the to...

JoAnneh · JoAnneh

I moved my shot day up a day and doctor told meto be Prepared for worse side effects. I have felt ran over all Day and experiencing slight pain in liver area and in back, Has this happen to anyone else? Thank you Margo for teaching me how to post properly:) JoAnneh

jwmaher · jwmaher

Hi It's Mike and I've been undetected for aabout a month now and I'm still experiencing side effects from the drugs; unfortunately I have to be on them until November but very grateful for being und. I'm assuming that when the virus becomes undetected your body is just dealing with the side effects wi...

elizabeth · elizabeth

My husband's weekly labs are still going lower on all counts so they called this morning to tell him to stop the ribavirin "for now". He's been on procrit for 3 weeks and that will continue. On top of everything else, he now has the full-body rash.Has anyone had their riba stopped "te...

bauhaus76 · bauhaus76

hi guys!! what is going on? i have started treatment yesterday my shot was at 15.00, at night i was feeling pretty feverish with some haches on my muscules but the next day its just gonne i just feel a bit headache,i dont have any allergic reaction not even on the place where a shot it.Whats going on?? i was...

Margo · Margo

I've noticed I'm covered in bruises on my arms and legs. Dont recall hitting anything hard. I've read that interferon and incivek may reduce platelets. Has anyone experienced anything like that and if yes what was done for it? This is my week 5 and I took a blood test Thursday, I hope for good results. Th...

Sunrise747 · Sunrise747

http://www.hcvadvocate.org/hepatitis/factsheets_pdf/Incivek_20%20Grams.pdf

je · je

Had my 12 week visit with my Dr. today and he told me I'm still undetectable. Actually, have been undetectable since week 3. He is not sure if I'm going to remain on the ribaviron and peg for 12 or 24 weeks. I had my last dose of incivick last week and have been itching like crazy. Dr. perscribed some hyd...

TazKat · TazKat

had to quit at 32 weeks. the tooth that i broke off into the gum has been hurting like hell. along with whole side of right face & head hurting. doc not pleased. so.... i did do 32 weeks. so keep fingers crossed that i stay undetectable.. Taz~ __________________TazKat

Kellyw · Kellyw

I'm getting towards the end of treatment (3 weeks,2 shots) . I've been very compliant, only forgot maybe 2 RIBA doses total. All shots, neupergin , procrit etc. went for all blood tests. But for some reason I am not wanting to take the neupergin 2 x a week. I've been taking that shot twice a week for months...

elizabeth · elizabeth

First, my apologies for seeming to show up daily with a new question but y'all have probably saved me from insanity. My husband is on week 8 and I literally can't beg, plead, whine, wheedle or cajole food down him. He just can't do it. Almost gagged just now eating a little ice cream to take the nightly...

ss · ss

Its my 30th week been off incivek since january . This is my 7th month and all tests came back undectable. Went to dr today and viral load was reported as Detected even though the viral count was under 12. Has anyone had experiences like this

Judy S · Judy S

Hi guys, I had labs today and exactly 2 hours after the blood draw, I got a call from my dr's nurse that my WBCs have fallen really low and I have to go immediately to pick up my Neupogen from pharmacy and inject right away. The call came in Just as I was reading my labs online, looking at my WBCs. 10 mins late...

kbobhud · kbobhud

So last thur I did shot 19 of 24. This is worse than shot 1 because it is lasting longer and max temp is higher. I am starting to think dr needs to change dosage because I have lost 20 pound since I started. Anyone go through something like this and wanted yells opinion.

mallani · mallani

Hi all, has anyone kept a track of their liver enzymes during treatment? I would have assumed that the ALT in particular should drop, particularly after getting an undetected. I am now at week 10 on SOC + Victrelis, and got an undet. at Week 8. My ALT has been elevated since 1983. During SOC in 2000, my ALT...

Margo · Margo

One more thIng I've noticed... I decided to gO on antidepressants for my family's sake. Primarily due to anxiety and some phobias I developed in the first weeks of treatment. My doc prescribed Citalopram, I developed headaches and it took me a week to realize something was wrong with me. Change in b...

hrsetrdr · hrsetrdr

Are there any over-the-counter sleep aids that are actually effective? I would like "something" to help me drift off to sleep, and [hopefully] stay asleep for the better part of the night.

Scout · Scout

Last incevik dose today!! I went for my 12 week blood work oday as well so It's a day to celebrate. Prune juice all around!!

xtreme · xtreme

So I did a round 3 years ago of just the Pegasys with Ribaviran. I cleared my Hep C but in the very end after treament was over, it came back. This past saturday I started treatment with Telaprevir. Compared to last time...this is kicking my butt...literally! Everyday side effects. Last time I had some b...

Sunrise747 · Sunrise747

My online pharmacy sent me a "sharps container" to use for the safe disposal of my used syringes. But what do I do with that container when I'm done with it?

kiwi · kiwi

just got call from my gp nurse, i asked yesterday if the viral load had come back... she said, ya got all your results last week. i said, NOOOO, i got all the blood count but was waiting to see if its still UNDETECTED... IT IS AND IM BLOODY STOKED.... scuse the pun about blood lol... happy kiwi today :) this c...

news · news

Just left the doctor's office after a nice visit with the nurse practitoner. She had this to say: Viral Load - UND AST - 38 ALT - 37 Hematocrit - 37.7 Neutrophils (abs) - 1.3 So basically, I have to stop complaining now . Also, the liver ultrasound came back as completely normal. All of this make...

teri2 · teri2

I have just been advised to stop taking ribavarin ( but keep on Telaprevir and interferon shot. Hemo count is 7. Anyone else had to stop for this reason? Thanks

Shep · Shep

Just wondering if anyone has advice or experience with air travel and the meds. My doctor said that maybe --probably--I can visit my daughter & granddaughter in AZ which means flying half way cross country. He wants to check next batch of labs in a couple of weeks before saying for sure. My WBC has d...

bauhaus76 · bauhaus76

as i have mentioned before i will start treatment end of May and i will get support and help from family but still i will be great part of the week by my self,i was wondering if theres more people on my situation is it possible to manage on your own..? -- Edited by bauhaus76 on Monday 14th of May 2012 04:31:1...

Topic		Started By	Replies	Views	Last Post
	one week further... (Preview) i guys! tomorow my 2de shot! i have a bit iching down there,and my heart feels to be working very hard after i eat,,,strange feeling is that i must say..until now no skin alergies or pains,but the nausea its geeting stronger,i stil have apetite but because of the nausea im eating less.	bauhaus76	1	799	Jun 7, 2012 by Margo
	UND to DETECTED to UND! ??? (Preview) What is going on? I went to UND somewhere between Weeks 4 and 8. I happened to call my dr office today and found out they did Quantitative tests both on May 9th and 16th, along with the CBC, enzymes, etc. I didn't know they did that; thought I was just getting Viral Load testing every 4 weeks. Well.........	Judy S	26	2478	Jun 7, 2012 by Sunrise747
	12 week undetected (Preview) Happy to report another undetected at 12 weeks. Platelets down to 60,000 but who cares. Can my US friends help? How many have access to Heptimax? We do not have it in Australia. My Lab uses the Roche PCR Quantitative test that goes down to 15 copies. So my report reads' <15, Target Not Detected. When I...	mallani	1	792	Jun 7, 2012 by kr
	New CDC Interest in Hep-C Testing Affecting Me (Preview) I have been interviewed by two newspapers in the past week about Hep C testing and treatment. There is a tentative schedule for Friday afternoon for an in-studio interview on camera for a TV station. My doctor will be there with me for that one. All this attention feels very strange, but the interviews...	news	27	1309	Jun 6, 2012 by alohaKim
	Week 24 Labs Arrived - UNDETECTED (Preview) Came in the mail today (8 days), and it is UNDETECTED. Thanks for all the reassurances. Wish I could listen better. Last 7 weeks on reduced riba (1000 mg to 600 mg). HGB up to 11.3 from low of 9.4. Two more shots to go! Labs say the following: HCV RNA, Quantitative Real Time PCR <43 Not Detected	Phil G	25	1768	Jun 6, 2012 by alohaKim
	Week 5, gastrointestinal problems (Preview) Found myself not be able to keep food in the stomach due to indigestion. Nausea brings vomiting and I feel better. I'm just hoping I will not get used to that. Everything tastes bad, I have no appetite and when I do eat I ended up twice throwing up. Im sure whoevers on Incivek is literally attached to the to...	Margo	10	1423	Jun 5, 2012 by Margo
	Pain around liver area (Preview) I moved my shot day up a day and doctor told meto be Prepared for worse side effects. I have felt ran over all Day and experiencing slight pain in liver area and in back, Has this happen to anyone else? Thank you Margo for teaching me how to post properly:) JoAnneh	JoAnneh	6	1649	Jun 4, 2012 by kiwi
	Energy level? (Preview) Hi It's Mike and I've been undetected for aabout a month now and I'm still experiencing side effects from the drugs; unfortunately I have to be on them until November but very grateful for being und. I'm assuming that when the virus becomes undetected your body is just dealing with the side effects wi...	jwmaher	14	1532	Jun 3, 2012 by chatterbox
	Have you been taken off of Riba during treatment? (Preview) My husband's weekly labs are still going lower on all counts so they called this morning to tell him to stop the ribavirin "for now". He's been on procrit for 3 weeks and that will continue. On top of everything else, he now has the full-body rash.Has anyone had their riba stopped "te...	elizabeth	12	1153	Jun 3, 2012 by nohcvforme
	not many sx (Preview) hi guys!! what is going on? i have started treatment yesterday my shot was at 15.00, at night i was feeling pretty feverish with some haches on my muscules but the next day its just gonne i just feel a bit headache,i dont have any allergic reaction not even on the place where a shot it.Whats going on?? i was...	bauhaus76	5	888	Jun 2, 2012 by Shep
	Easy bruising! Battle with the uknown. (Preview) I've noticed I'm covered in bruises on my arms and legs. Dont recall hitting anything hard. I've read that interferon and incivek may reduce platelets. Has anyone experienced anything like that and if yes what was done for it? This is my week 5 and I took a blood test Thursday, I hope for good results. Th...	Margo	13	1651	Jun 2, 2012 by Margo
	Let there be 20 Grams of Fat! (Preview) http://www.hcvadvocate.org/hepatitis/factsheets_pdf/Incivek_20%20Grams.pdf	Sunrise747	1	696	Jun 1, 2012 by news
	Lab Results (Preview) Had my 12 week visit with my Dr. today and he told me I'm still undetectable. Actually, have been undetectable since week 3. He is not sure if I'm going to remain on the ribaviron and peg for 12 or 24 weeks. I had my last dose of incivick last week and have been itching like crazy. Dr. perscribed some hyd...	je	3	713	Jun 1, 2012 by davesf
	had to quit treatment.. any thoughts? (Preview) had to quit at 32 weeks. the tooth that i broke off into the gum has been hurting like hell. along with whole side of right face & head hurting. doc not pleased. so.... i did do 32 weeks. so keep fingers crossed that i stay undetectable.. Taz~ __________________TazKat	TazKat	12	1193	May 31, 2012 by greenqueen
	How bad is this? Really (Preview) I'm getting towards the end of treatment (3 weeks,2 shots) . I've been very compliant, only forgot maybe 2 RIBA doses total. All shots, neupergin , procrit etc. went for all blood tests. But for some reason I am not wanting to take the neupergin 2 x a week. I've been taking that shot twice a week for months...	Kellyw	12	1274	May 31, 2012 by kiwi
	What if you just can't force food down? (Preview) First, my apologies for seeming to show up daily with a new question but y'all have probably saved me from insanity. My husband is on week 8 and I literally can't beg, plead, whine, wheedle or cajole food down him. He just can't do it. Almost gagged just now eating a little ice cream to take the nightly...	elizabeth	14	1247	May 30, 2012 by elizabeth
	Shocked confused need answers ! (Preview) Its my 30th week been off incivek since january . This is my 7th month and all tests came back undectable. Went to dr today and viral load was reported as Detected even though the viral count was under 12. Has anyone had experiences like this	ss	37	1543	May 30, 2012 by ss
	Starting Neupogen now...getting up the nerve (Preview) Hi guys, I had labs today and exactly 2 hours after the blood draw, I got a call from my dr's nurse that my WBCs have fallen really low and I have to go immediately to pick up my Neupogen from pharmacy and inject right away. The call came in Just as I was reading my labs online, looking at my WBCs. 10 mins late...	Judy S	18	2252	May 29, 2012 by Margo
	Fever (Preview) So last thur I did shot 19 of 24. This is worse than shot 1 because it is lasting longer and max temp is higher. I am starting to think dr needs to change dosage because I have lost 20 pound since I started. Anyone go through something like this and wanted yells opinion.	kbobhud	3	769	May 28, 2012 by Margo
	liver enzymes during treatment (Preview) Hi all, has anyone kept a track of their liver enzymes during treatment? I would have assumed that the ALT in particular should drop, particularly after getting an undetected. I am now at week 10 on SOC + Victrelis, and got an undet. at Week 8. My ALT has been elevated since 1983. During SOC in 2000, my ALT...	mallani	6	1631	May 28, 2012 by Judy S
	Antidepressants gave me depression! (Preview) One more thIng I've noticed... I decided to gO on antidepressants for my family's sake. Primarily due to anxiety and some phobias I developed in the first weeks of treatment. My doc prescribed Citalopram, I developed headaches and it took me a week to realize something was wrong with me. Change in b...	Margo	5	809	May 28, 2012 by Shep
	OTC sleep meds (Preview) Are there any over-the-counter sleep aids that are actually effective? I would like "something" to help me drift off to sleep, and [hopefully] stay asleep for the better part of the night.	hrsetrdr	14	1190	May 26, 2012 by innerview
	Last Incevik dose!! (Preview) Last incevik dose today!! I went for my 12 week blood work oday as well so It's a day to celebrate. Prune juice all around!!	Scout	7	1066	May 25, 2012 by Scout
	Just Started 2nd Treatment go around with Telaprevir (Incevik) (Preview) So I did a round 3 years ago of just the Pegasys with Ribaviran. I cleared my Hep C but in the very end after treament was over, it came back. This past saturday I started treatment with Telaprevir. Compared to last time...this is kicking my butt...literally! Everyday side effects. Last time I had some b...	xtreme	44	4765	May 25, 2012 by TazKat
	Needle Disposal (Preview) My online pharmacy sent me a "sharps container" to use for the safe disposal of my used syringes. But what do I do with that container when I'm done with it?	Sunrise747	12	910	May 25, 2012 by LUV2RYDE
	me too. still undetected (Preview) just got call from my gp nurse, i asked yesterday if the viral load had come back... she said, ya got all your results last week. i said, NOOOO, i got all the blood count but was waiting to see if its still UNDETECTED... IT IS AND IM BLOODY STOKED.... scuse the pun about blood lol... happy kiwi today :) this c...	kiwi	7	888	May 23, 2012 by innerview
	At Last...... 24 Week Labs! (Preview) Just left the doctor's office after a nice visit with the nurse practitoner. She had this to say: Viral Load - UND AST - 38 ALT - 37 Hematocrit - 37.7 Neutrophils (abs) - 1.3 So basically, I have to stop complaining now . Also, the liver ultrasound came back as completely normal. All of this make...	news	32	1369	May 23, 2012 by news
	high hemoglobin count (Preview) I have just been advised to stop taking ribavarin ( but keep on Telaprevir and interferon shot. Hemo count is 7. Anyone else had to stop for this reason? Thanks	teri2	1	1069	May 23, 2012 by news
	Flying with Pegasys--don't mean the winged stallion (Preview) Just wondering if anyone has advice or experience with air travel and the meds. My doctor said that maybe --probably--I can visit my daughter & granddaughter in AZ which means flying half way cross country. He wants to check next batch of labs in a couple of weeks before saying for sure. My WBC has d...	Shep	10	1648	May 23, 2012 by LanaiSurferGirl
	living by myself on treatment (Preview) as i have mentioned before i will start treatment end of May and i will get support and help from family but still i will be great part of the week by my self,i was wondering if theres more people on my situation is it possible to manage on your own..? -- Edited by bauhaus76 on Monday 14th of May 2012 04:31:1...	bauhaus76	11	1411	May 22, 2012 by Judy S
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