Hep C Discussion Forum

Liamc · Liamc

Just finished 6 months RIBA/solvaldi and am having troubles sleeping due to tingling and restless feet when I go to bed, is there anyone else having or had similar symptoms. cheers liam

WarriorWolf · WarriorWolf

I received my first lab results. I've been quite emotional all day. So surreal. I'm so grateful and humbled.ComponentStandard RangeYour ValueHEP C RNA PCR QNUndetected IU/mL<15Result in log IU/mL is <1.18.HCV RNA level detected is <15 IU/mL (<1.18 log IU/mL). Thisassay cannot acc...

bubble · bubble

Fierce Pharma has an article for the Vets. to be concerned. Looks like the VA. cant afford Tx for it's vets. Out of money. A Vermont Senator wants to have Gilead's patent broken and have generic forms made available under some wartime act (?). It seems like the cost is eating up everyone's budget. If y...

Matt Chris · Matt Chris

I signed up for a HCV webinar sponsored by Clinical Care Options with Mark S. Sulkowski, Professor of Medicine from Johns Hopkins University School of Medicine Baltimore, Maryland One of the topics was · Role of Resistance Testing in HCV Re-treatment During the program Dr. Sulkowski said a statem...

Loopy Lisa · Loopy Lisa

Hi everyone, It has been a while since I posted. Well first IVF attempt failed. I am OK about it, no drama, due the second attempt mid this month. I can't help but feel cheesed off today. I was reading about what is happening in regards to genotype 3, and not a lot! The best outcome to date is 12 weeks of Inter...

glenqualhealth · glenqualhealth

Dear all I do hope that this email will find you well. I would like to invite Genotype 1 patients that are untreated to take part in a study. Participants would be required to complete a 15 minute self completion questionnaire. This is a booster study to A larger physician-patient linked project. Thi...

obsessing · obsessing

Can someone tell me if these are symptoms? I can't google anymore! My withdrawals from H went away about two weeks ago so I don't know what's what if that makes sense. My doc says that I might have acute symptoms having just been diagnosed with transmission likely 2-3 months ago. I've been feeling fine e...

miniestate · miniestate

I got HEP C sometime between 1982 and 1984 working as a Paramedic in Florida. When I started as an EMT in 1974 or so in W VA. We did not even use a protective barrier for mouth to mouth resuscitation. Gloves, mask did not arrive until late 80's or early 90's. The fire department contacted me in 1999 to say...

mallani · mallani

Hi all, At the recent EASL Meeting, Lawitz presented a paper on 24 weeks of Harvoni for previous treatment failures. The following comment caught my attention: ' Patients with no baseline NS-5A RAV's experienced 100% SVR12. Those with baseline RAV's reached SVR12 at 60%' . Also, it was found that 25...

mallani · mallani

Hi all, In a recent thread, retreating with Harvoni was mentioned for any treatment failures on Viekira Pak. There is a question mark over this. At the recent EASL Meeting, a paper was presented dealing with the persistence of RAV's after failed Viekira Pak treatment. This is of particular interest...

Josh Haynie · Josh Haynie

took me awhile to read all the other threads ... been working alot i got another Job takeing care of Developmental Disabled people ... so now im working instead 17hours a week on average to around 60 ... so ya its feast or famine ... to little to much .... bet 1 of these days iLL find a medium somewhere but f...

wmlj1960 · wmlj1960

I've been having MRI'S done every 3 months for the past ~1 year looking for possible HCC. The latest MRI done 0n 4-15 mentions gallstones as opposed to all other MRI final reports that I've had which do not mention this (see attachments). I'm wondering if this find is a newly acquired issue or is it just...

bubble · bubble

Hi, I think this is what is going on. For the past 5 years my feet and ankles have looked terrible. Black and blue blood vessals and some numbness. Maybe even jaundice. Varicose viens run in my family and just let it go. Thanks to this site I have read of other complications with having Hep C. Well, I am not...

Iris Dragonfly · Iris Dragonfly

Hi folks, At a recent Dr. visit, I saw a bulletin on the wall that recommends all baby boomers...those born between 1945 and 1965 be tested for "C". Since blood products were unsafe until about 1992, why stop at 1965? The question that plagues me is...could we have been exposed at birth, bu...

Scruffy · Scruffy

http://news.yahoo.com/allergy-drug-could-cheap-option-hepatitis-c-study-151128171.html

Tig · Tig

I was asked recently about the risk of infection from tattoo work and found several articles on the Hepmag.com website that might be of interest to those of you "inked" members and those considering it. It may have been one of the ways I was originally infected, so pay particular attention...

canythingbutaverage · canythingbutaverage

The other day i came across a jarring issue, i noticed that when a person googles Hep C, it has breakdown of the disease. I did some more research and found that they've done it with lots of different diseases, and have consulted with doctors in making it...which would be fine if the data were accurate. W...

bubble · bubble

Can someone plese tell me what a test report that shows AST and ALT with "Sgot" next to both. Is this a specialized test for specifics? Thank-you.

Relentless · Relentless

I am nervous I have Bx in ten days. ..

suziq · suziq

I read an article today about cost effectiveness of treatment for Hep C It was titled "New Hepatitis C Are Cost Effective , but Only for Selected Patients. Can't find the address For it. This was my reply (comment) sent to the writer about the article: I am 80 years old and had Hep C for probably 50...

shadow10cats · shadow10cats

After being denied - twice by my insurance company, CDPHP in New York - I applied to Gilead's Support Path to see if I could obtain Harvoni thru them. I completed the Intake form & attached all the documents they wanted: Proof of Citizenship (driver lic & Utility bill), Proof of income (2 pay c...

MechanicMike · MechanicMike

Hi All, Just got my fibrosure results in but haven't talked to my GI yet (he's off on Fridays, I pulled the results from my medical file online). I only know, from reading here, that these tests are fairly accurate at the low/high ends of the spectrum--the middle is iffy. That being said, I still can't...

Josh Haynie · Josh Haynie

I talk to an intermediary from Minnesota 1nce a week ..... Vikera ... we 3 way call an actual Rep.. on the East Coast Abbie V... Viekira in Maryland i think..... i have already faxed my 2nd denial of Vikera... yes that 3 or 4 Denial 2Harv ..and 2 Vikera.. deny plus appeal ... also faxed pay stubs :) i mak...

MechanicMike · MechanicMike

Hi all, I just got off the phone with my insurance company. I've been approved for tx! Called my doc and left a message so that he can write the prescriptions and send them to one of my two choices of specialty pharmacy, Accredo or Walgreen's. I've read some nightmare stories on here about Accredo, so I&q...

Jaded · Jaded

(Bloomberg) -- A $10 version of Sovaldi, the Gilead Sciences Inc. hepatitis C treatment that sells for $1,000 a pill in the U.S., is now available in Bangladesh and could make its way to other parts of the world where the U.S. company doesnt have patents. Incepta Pharmaceuticals Ltd. doesnt have a li...

Josh Haynie · Josh Haynie

thats what i was told yesterday :) mad or worried .. haha ya right... at F-2 that means your insurance more then likely wont cover cough up 80 grand i kinda knew that all along... so now iLL go Vikira Proceed or Harvoni support path... haha but wait theres more if say they fall through iLL just mos...

Loopy Lisa · Loopy Lisa

Hi everyone, I have been hiding in the real world, but busy with the hospital. Today I was implanted with two embyros, I wont know if they took for a couple of weeks. but either way, its wonderful to get the chance. What was even better is they bought a new freezer so my other potential babies, that gives me...

Bills · Bills

Just when you think you can sit back and rest easy, It all comes down to money ( GILEAD S GREED #1 ) and the insurance co's and the Pharmacy. I'm told I have to pay $5,000.00 copay for month 5 and $6500 for month 6. I'm not so much angry that may have have to pay. but that Nobody flagged it before or even as I star...

rblood · rblood

Medicare Extra Help: Just in case there are people on this forum that are not aware of this Medicare program that helps pay for your prescriptions (copay) If you qualify for the program they will help pay for part B and no prescription will be over $6.60. They also will help pay for Senior Advantage Prog...

bubble · bubble

Has anyone had any problems with their heart medication while on Vikera-pac w/ riba. Or any other? This Harvoni scare is not favorable. Anyone advised to change medication? My Doc said he was going to do a check.

Topic		Started By	Replies	Views	Last Post
	Restless feet (Preview) Just finished 6 months RIBA/solvaldi and am having troubles sleeping due to tingling and restless feet when I go to bed, is there anyone else having or had similar symptoms. cheers liam	Liamc	4	804	May 21, 2015 by Liamc
	My first lab results (Preview) I received my first lab results. I've been quite emotional all day. So surreal. I'm so grateful and humbled.ComponentStandard RangeYour ValueHEP C RNA PCR QNUndetected IU/mL<15Result in log IU/mL is <1.18.HCV RNA level detected is <15 IU/mL (<1.18 log IU/mL). Thisassay cannot acc...	WarriorWolf	9	1257	May 19, 2015 by WarriorWolf
	This is Interesting. (Preview) Fierce Pharma has an article for the Vets. to be concerned. Looks like the VA. cant afford Tx for it's vets. Out of money. A Vermont Senator wants to have Gilead's patent broken and have generic forms made available under some wartime act (?). It seems like the cost is eating up everyone's budget. If y...	bubble	3	729	May 18, 2015 by Rubye
	Ribavirin's impact on Polymorphisms / RAV's during Treatment (Preview) I signed up for a HCV webinar sponsored by Clinical Care Options with Mark S. Sulkowski, Professor of Medicine from Johns Hopkins University School of Medicine Baltimore, Maryland One of the topics was · Role of Resistance Testing in HCV Re-treatment During the program Dr. Sulkowski said a statem...	Matt Chris	2	898	May 15, 2015 by mallani
	Cheesed off (Preview) Hi everyone, It has been a while since I posted. Well first IVF attempt failed. I am OK about it, no drama, due the second attempt mid this month. I can't help but feel cheesed off today. I was reading about what is happening in regards to genotype 3, and not a lot! The best outcome to date is 12 weeks of Inter...	Loopy Lisa	6	1107	May 9, 2015 by Loopy Lisa
	Hepatitis C Confidential Study (Preview) Dear all I do hope that this email will find you well. I would like to invite Genotype 1 patients that are untreated to take part in a study. Participants would be required to complete a 15 minute self completion questionnaire. This is a booster study to A larger physician-patient linked project. Thi...	glenqualhealth	10	1642	May 7, 2015 by bubble
	Acute symptoms? Legs cramping and sleep paralysis (Preview) Can someone tell me if these are symptoms? I can't google anymore! My withdrawals from H went away about two weeks ago so I don't know what's what if that makes sense. My doc says that I might have acute symptoms having just been diagnosed with transmission likely 2-3 months ago. I've been feeling fine e...	obsessing	3	925	Apr 29, 2015 by Cinnamon Girl
	Not sure if this is allowed but here it is? (Preview) I got HEP C sometime between 1982 and 1984 working as a Paramedic in Florida. When I started as an EMT in 1974 or so in W VA. We did not even use a protective barrier for mouth to mouth resuscitation. Gloves, mask did not arrive until late 80's or early 90's. The fire department contacted me in 1999 to say...	miniestate	10	1597	Apr 27, 2015 by ljwva
	Should we screen for NS-5A RAV's? (Preview) Hi all, At the recent EASL Meeting, Lawitz presented a paper on 24 weeks of Harvoni for previous treatment failures. The following comment caught my attention: ' Patients with no baseline NS-5A RAV's experienced 100% SVR12. Those with baseline RAV's reached SVR12 at 60%' . Also, it was found that 25...	mallani	1	798	Apr 25, 2015 by maddie
	Persistent RAV's after Viekira Pak (Preview) Hi all, In a recent thread, retreating with Harvoni was mentioned for any treatment failures on Viekira Pak. There is a question mark over this. At the recent EASL Meeting, a paper was presented dealing with the persistence of RAV's after failed Viekira Pak treatment. This is of particular interest...	mallani	0	1014	Apr 25, 2015 by mallani
	Updated Projection (Preview) took me awhile to read all the other threads ... been working alot i got another Job takeing care of Developmental Disabled people ... so now im working instead 17hours a week on average to around 60 ... so ya its feast or famine ... to little to much .... bet 1 of these days iLL find a medium somewhere but f...	Josh Haynie	3	1008	Apr 25, 2015 by Rubye
	Are gallstones related to cirrhosis / HCV ? (Preview) I've been having MRI'S done every 3 months for the past ~1 year looking for possible HCC. The latest MRI done 0n 4-15 mentions gallstones as opposed to all other MRI final reports that I've had which do not mention this (see attachments). I'm wondering if this find is a newly acquired issue or is it just...	wmlj1960	3	957	Apr 23, 2015 by JoAnneh
	Cryoglobulinemia? (Preview) Hi, I think this is what is going on. For the past 5 years my feet and ankles have looked terrible. Black and blue blood vessals and some numbness. Maybe even jaundice. Varicose viens run in my family and just let it go. Thanks to this site I have read of other complications with having Hep C. Well, I am not...	bubble	2	871	Apr 20, 2015 by bubble
	About baby boomers (Preview) Hi folks, At a recent Dr. visit, I saw a bulletin on the wall that recommends all baby boomers...those born between 1945 and 1965 be tested for "C". Since blood products were unsafe until about 1992, why stop at 1965? The question that plagues me is...could we have been exposed at birth, bu...	Iris Dragonfly	10	1565	Apr 18, 2015 by Enavigo3891
	anybody else see this? (Preview) http://news.yahoo.com/allergy-drug-could-cheap-option-hepatitis-c-study-151128171.html	Scruffy	2	1057	Apr 18, 2015 by Enavigo3891
	Tattoos, Past and Present (Preview) I was asked recently about the risk of infection from tattoo work and found several articles on the Hepmag.com website that might be of interest to those of you "inked" members and those considering it. It may have been one of the ways I was originally infected, so pay particular attention...	Tig	2	987	Apr 18, 2015 by Tig
	Help Correct Google (Preview) The other day i came across a jarring issue, i noticed that when a person googles Hep C, it has breakdown of the disease. I did some more research and found that they've done it with lots of different diseases, and have consulted with doctors in making it...which would be fine if the data were accurate. W...	canythingbutaverage	10	1198	Apr 18, 2015 by nurschic
	AST, ALT Questiones (Preview) Can someone plese tell me what a test report that shows AST and ALT with "Sgot" next to both. Is this a specialized test for specifics? Thank-you.	bubble	4	1004	Apr 14, 2015 by Rubye
	New and Nervous (Preview) I am nervous I have Bx in ten days. ..	Relentless	3	1258	Apr 13, 2015 by lonewolf
	Hep C Treatment Cost Effective ?? (Preview) I read an article today about cost effectiveness of treatment for Hep C It was titled "New Hepatitis C Are Cost Effective , but Only for Selected Patients. Can't find the address For it. This was my reply (comment) sent to the writer about the article: I am 80 years old and had Hep C for probably 50...	suziq	3	1127	Apr 6, 2015 by Tig
	GILEAD SUPPORT PATH - IT WORKS!! ( 1 2 ) (Preview) After being denied - twice by my insurance company, CDPHP in New York - I applied to Gilead's Support Path to see if I could obtain Harvoni thru them. I completed the Intake form & attached all the documents they wanted: Proof of Citizenship (driver lic & Utility bill), Proof of income (2 pay c...	shadow10cats	68	16561	Apr 6, 2015 by MechanicMike
	Fibrosure Test Results-Where do I stand? (Preview) Hi All, Just got my fibrosure results in but haven't talked to my GI yet (he's off on Fridays, I pulled the results from my medical file online). I only know, from reading here, that these tests are fairly accurate at the low/high ends of the spectrum--the middle is iffy. That being said, I still can't...	MechanicMike	16	3369	Apr 4, 2015 by lonewolf
	Well Things might be lookin up.... (Preview) I talk to an intermediary from Minnesota 1nce a week ..... Vikera ... we 3 way call an actual Rep.. on the East Coast Abbie V... Viekira in Maryland i think..... i have already faxed my 2nd denial of Vikera... yes that 3 or 4 Denial 2Harv ..and 2 Vikera.. deny plus appeal ... also faxed pay stubs :) i mak...	Josh Haynie	5	1498	Apr 3, 2015 by Josh Haynie
	Just got approved for Sovaldi! (Preview) Hi all, I just got off the phone with my insurance company. I've been approved for tx! Called my doc and left a message so that he can write the prescriptions and send them to one of my two choices of specialty pharmacy, Accredo or Walgreen's. I've read some nightmare stories on here about Accredo, so I&q...	MechanicMike	7	1437	Mar 31, 2015 by Cinnamon Girl
	$10 Copy of Gilead Blockbuster Sovaldi Appears in Bangladesh (Preview) (Bloomberg) -- A $10 version of Sovaldi, the Gilead Sciences Inc. hepatitis C treatment that sells for $1,000 a pill in the U.S., is now available in Bangladesh and could make its way to other parts of the world where the U.S. company doesnt have patents. Incepta Pharmaceuticals Ltd. doesnt have a li...	Jaded	4	1474	Mar 29, 2015 by Jaded
	Next step is now clear ...2nd confirmed denial after appeal (Preview) thats what i was told yesterday :) mad or worried .. haha ya right... at F-2 that means your insurance more then likely wont cover cough up 80 grand i kinda knew that all along... so now iLL go Vikira Proceed or Harvoni support path... haha but wait theres more if say they fall through iLL just mos...	Josh Haynie	3	902	Mar 29, 2015 by Josh Haynie
	Yipppeeeeeeeee a very nice update. (Preview) Hi everyone, I have been hiding in the real world, but busy with the hospital. Today I was implanted with two embyros, I wont know if they took for a couple of weeks. but either way, its wonderful to get the chance. What was even better is they bought a new freezer so my other potential babies, that gives me...	Loopy Lisa	11	1446	Mar 28, 2015 by tomyboy
	Isn't Cronic Hep C Enough? Will Gilead? My Insurance ? the Pharmacy relly kick me off the train ????? (Preview) Just when you think you can sit back and rest easy, It all comes down to money ( GILEAD S GREED #1 ) and the insurance co's and the Pharmacy. I'm told I have to pay $5,000.00 copay for month 5 and $6500 for month 6. I'm not so much angry that may have have to pay. but that Nobody flagged it before or even as I star...	Bills	45	3207	Mar 27, 2015 by dharmabum
	Medicare Extra Help (Preview) Medicare Extra Help: Just in case there are people on this forum that are not aware of this Medicare program that helps pay for your prescriptions (copay) If you qualify for the program they will help pay for part B and no prescription will be over $6.60. They also will help pay for Senior Advantage Prog...	rblood	1	943	Mar 26, 2015 by KeepingTheFaith
	Drug Interaction-Heart Medication (Preview) Has anyone had any problems with their heart medication while on Vikera-pac w/ riba. Or any other? This Harvoni scare is not favorable. Anyone advised to change medication? My Doc said he was going to do a check.	bubble	1	1118	Mar 26, 2015 by Tig
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