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STICKY:
Can I be cured of Hepatitis C?
(Preview)
Hi all, This is prompted by another thread, 'Liver damage and repair'. We are all aware that SVR is as good as we can get. The tiny risk of relapse is enough for some to say 'We are not cured- just successfully treated'. We tend to concentrate on the liver. We look at blood tests and are happy to see normal li...
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mallani
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8
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STICKY:
LIVERTOX DATABASE: MEDICATIONS & SUPPLEMENTS
(closed)
(Preview)
Hi Everyone, We so often discuss the impact medications and/or supplements have on our liver health. This searchable website, courtesy of Livertox and the NIH, is very comprehensive and if I may say so myself, a great find and excellent resource for all of us dealing with HCV and the ongoing concerns...
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Tig
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2
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STICKY:
RAV's at the NS-5A site
(Preview)
Hi all, I'm sitting on the boat, it's 36C, steamy, with not a breath of wind. For once, I wish I was in the Northern Hemisphere.<1% of Forum members will be interested in this, so be warned. I've been wondering about retreatment options after relapse after previous NS-5A treatment (Daclatasvir, L...
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mallani
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18
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8506
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STICKY:
Where are you from? What Genotype?
(
1 2 3 4
)
(Preview)
On my last visit to the doctor we discussed the regional significance of genotype and the area we live in the world. For example North America is a lot of genotype 1, etc. So where are you from what is your genotype? I'm in the US and have genotype 1 A.
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Scout
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182
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STICKY:
Why are cirrhotics difficult to treat?
(Preview)
I have had a few PM's about the difficulty in treating cirrhotics. This has been discussed before, but I'll make this a 'Sticky'. Firstly, only 20-30% of HCV patients will develop cirrhosis, and it usually takes 20-40 years. There are some predisposing factors, such as Genotype 3, obesity, diabete...
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mallani
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13
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STICKY:
Understanding RAV's- effect on treatment and re-treatment selection
(Preview)
Hi all, RAV= Resistance Associated Variant. Also called mutations, treatment-induced variants or viral polymorphisms. When infected by HCV, we know there is a dominant viral structure called the 'Wild-Type', and it has a family of very similar viruses, with substitutions of an amino acid or two...
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mallani
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6
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9221
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STICKY:
Understanding Sovaldi
(Preview)
Hi all, I haven't done a technical post for a while, and for some this may be of interest. I have been fascinated by Sovaldi (or PSI-7977, then GS-7977) for the last 2 years . Initial claims about it's action (subsequently often repeated by Gilead Sciences) made me question why it could not be used as mon...
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mallani
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38
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STICKY:
Cirrhosis in HepC. Do we need a better Grading system?
(closed)
(Preview)
Hi all, I've been meaning to do a post on this for some time, and was even going to send it to a Journal, but couldn't be bothered with all the Bibliography, rewriting, references etc. I've been through that before. Cirrhosis ( from the Greek- 'yellow condition') has long been regarded as the end stage o...
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mallani
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0
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6230
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Just a quick drive-by
(Preview)
Still HepC free, no Covid, so far, life has been different, going to be 70 years old next month. Life is good! Hope everyone is getting well, or staying that way. Lamont
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LamontCranston
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8
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342
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CURED!!
(Preview)
Hi all...
I haven't been to this site for a long time, in fact I just spotted it in my bookmarks and thought I would leave a message.
So about 3 years ago I was lucky enough to get the "newest" treatment - the one in which if I still tested negative 3 months after the treatment finished - then boom, that's...
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david1806
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4
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1189
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Liver Fibrosis and Coffee
(Preview)
I found an interesting article on the benefits of coffee in fibrosis reduction. Drink up! A Cup of Joe
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Tig
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4
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389
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Does treatment alter your genes?
(Preview)
Ever since about 2 or so months after my treatment I started getting a itchy scalp. It has progressed and gotten worse since then, and I'm coming up on my 3 year blood draw so it has been going on for nearly 3 years now. It has made my hair fall out to the point you can see my scalp a few inches beyond my hairline...
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Iris Dragonfly
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45
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986
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NOhep wants your personal HCV story
(Preview)
Hi Everyone, I received this message today from NOhep. They're a big voice and advocate for all Heppers. I know several of you have some real hair splitting stories, so I thought you might like to share it and maybe win a door prize, lol! The World Hepatitis Alliance, NOhep and the London School of Hygi...
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Tig
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6
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Innate Immune system after DAA treatment (Oct 2020)
(Preview)
Our Innate Immune system after DAA treatments has been an area of concern. I've been trying to keep my finger on the pulse on this topic - not much has been put out. The links below obviously didn't work so you will have to paste them into your browser. The MAIT cells in relation to COVID19 is an area of co...
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sleestak
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1
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Affordable Medicine's
(Preview)
Hi Everyone, Hope you and your family are doing well in this pandemic. Just messaged to check about your health and well being. It's been a long time since we haven't been in contact. Times are tough here in india and specially in Mumbai. Hope the situation is under control in your country. I have...
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Nirav
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3
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717
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Remember me!
(Preview)
Yes, I am still ding well after successful treatment! A 5 time loser on Interferon finally beat the dragon on Harvoni! I am wondering if anyone heard anything on liver fibrosis reduction after successful treatment? Are there any cirrhosis studies going in with new treatments? Thanks and I am gl...
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JLynch30
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5
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832
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United Kingdom - specific issues
(Preview)
HI Just diagnosed, haven't had the live-virus result yet, I'm still pretty ignorant .... New words to learn: cryoglobulinemia I knew about, but not membranoproliferative glomerulonephritis. Q1 ) I read that Sovaldi was too expensive for the NHS. Does anyone know if that's still the case? Q2a)...
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Beetree
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13
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One year after The Cure
(Preview)
I am still alive, and other than the fact that my appetite for vast quantities of food has continued unabated, my health has been generally good, no surprises. The chronic gut issues I had that I think were HepC related are nearly resolved, not totally, but I have only the occasional icky gut day, so I am...
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LamontCranston
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6
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1711
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Just diagnosed - what can I expect?
(Preview)
HI everyone. I'm 63, male, overweight. In the UK. No risky behaviors. Little alcohol Mild blood condition (Von Willebrands) so evidently contracted HCV in 1980 from blood products. (Cryoprecipitate) 1981, HCV test "inconclusive" (uh?) 1982. HCV test negative. Someone new at the hospital wher...
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Beetree
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Health Updates - Among Friends
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1 2 3 4 5 … 10
)
(Preview)
Hi Gang, I thought I would start a new thread for health updates. We have a lot of posts here about flu, bronchitis, and other ailments that plague us. How lovely to have the care we feel for one another. I truly appreciate the support and suggestions. But, I can't tell the topics from the treatment ti...
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Cheddy
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473
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Peripheral neuropathy and Hep C
(Preview)
Have been HCV+ for over 30 years now but only diagnosed 2008. Can't remember how long I have been 'clumsy' (catching my foot on the pavement, kicking objects rather than moving around them) but have only very recently been made aware of Perpheral Neuropathy and its relationship with Hep C. Recent yea...
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NickE
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3
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962
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Class action law suit
(Preview)
Hey folks, I got a notice a few weeks back about being a part of a class action law suit. It is for patients who were denied treatment because they did not have a high enough firbro score. I'm not sure I can find the notice at this point, the chaos of X-mas all the people and having to move stuff around to accom...
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Iris Dragonfly
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8
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989
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People I look up to
(Preview)
To my wife Linda for her love and support. https://www.youtube.com/watch?v=EImVucJO7Ok
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Greg D
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1
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970
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Can I still infect someone if I have cleared the virus on my own?
(Preview)
I was infected with hepatitis c when i was a child, but successfully cleared the virus. Now my blood tests show antibody positive but persistently PCR undetectable. My doctor told me that i have no risk of developing liver disease in the long term and can be reassured. In this situation, is it possibl...
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Verylucky7
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1262
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NVHR Patient Summit - Atlanta GA
(Preview)
Hey all - anyone invited to the NVHR Patient Summit in Atlanta GA at the end of July?
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Enavigo3891
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14
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Tanner's Trek with Epclusa
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1 2 3
)
(Preview)
I sure hope this is starting a new topic wherever I'm supposed to start one, but hopefully this is it. Started Epclusa this weekend. Happy to be on this trek with all of you. Throwin' on my hiking boots, going up that mountain and coming back down on the other side, C free! -- Edited by tanner on Monday 11t...
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tanner
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116
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Let's talk about fatigue
(Preview)
Hi folks, When ill with the virus I felt like I was always getting almost sick and all the time tired. Since treatment I haven't experienced that as much but when it does hit me I feel as though I have the virus again, my throat gets sore, I'm achy, low grade fever, headache, stomach ache and general blaaaa...
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Iris Dragonfly
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4
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1493
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Hep B Updates
(Preview)
Good news on the HBV front! Novel vaccine with Viread induces T cell immune response in chronic HBV Boni C, et al. Gastroenterol. 2019;doi:10.1053/j.gastro.2019.03.044.May 31, 2019Researchers found that treatment with a combination of Viread and GS-4774, a yeast-based therapeutic vacc...
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Tig
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1
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1274
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Cirrhosis and Hepatic Encephalopathy
(Preview)
I received this article today and while it might be hard to swallow, it sounds like it has merit. The study size was small, I wonder why... HE is a terrible condition, let’s hope this is the beginning of better control. Let me know if you have trouble opening it. VIENNA – Patients who swallowed fecal micr...
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Tig
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2
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Story behind user name?
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1 2
)
(Preview)
What is the story behind your user name? Mine is- my Jamaican friends pronunciation of my nick name "The Hook". :)
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Daook
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68
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