Hep C Discussion Forum

Tig · Tig

Hi Everyone, We so often discuss the impact medications and/or supplements have on our liver health. This searchable website, courtesy of Livertox and the NIH, is very comprehensive and if I may say so myself, a great find and excellent resource for all of us dealing with HCV and the ongoing concerns...

mallani · mallani

Hi all, I'm sitting on the boat, it's 36C, steamy, with not a breath of wind. For once, I wish I was in the Northern Hemisphere.<1% of Forum members will be interested in this, so be warned. I've been wondering about retreatment options after relapse after previous NS-5A treatment (Daclatasvir, L...

Scout · Scout

On my last visit to the doctor we discussed the regional significance of genotype and the area we live in the world. For example North America is a lot of genotype 1, etc. So where are you from what is your genotype? I'm in the US and have genotype 1 A.

mallani · mallani

I have had a few PM's about the difficulty in treating cirrhotics. This has been discussed before, but I'll make this a 'Sticky'. Firstly, only 20-30% of HCV patients will develop cirrhosis, and it usually takes 20-40 years. There are some predisposing factors, such as Genotype 3, obesity, diabete...

mallani · mallani

Hi all, RAV= Resistance Associated Variant. Also called mutations, treatment-induced variants or viral polymorphisms. When infected by HCV, we know there is a dominant viral structure called the 'Wild-Type', and it has a family of very similar viruses, with substitutions of an amino acid or two...

mallani · mallani

Hi all, I haven't done a technical post for a while, and for some this may be of interest. I have been fascinated by Sovaldi (or PSI-7977, then GS-7977) for the last 2 years . Initial claims about it's action (subsequently often repeated by Gilead Sciences) made me question why it could not be used as mon...

mallani · mallani

Hi all, This is prompted by another thread, 'Liver damage and repair'. We are all aware that SVR is as good as we can get. The tiny risk of relapse is enough for some to say 'We are not cured- just successfully treated'. We tend to concentrate on the liver. We look at blood tests and are happy to see normal li...

mallani · mallani

Hi all, I've been meaning to do a post on this for some time, and was even going to send it to a Journal, but couldn't be bothered with all the Bibliography, rewriting, references etc. I've been through that before. Cirrhosis ( from the Greek- 'yellow condition') has long been regarded as the end stage o...

Cheddy · Cheddy

Hi Gang, I thought I would start a new thread for health updates. We have a lot of posts here about flu, bronchitis, and other ailments that plague us. How lovely to have the care we feel for one another. I truly appreciate the support and suggestions. But, I can't tell the topics from the treatment ti...

NickE · NickE

Have been HCV+ for over 30 years now but only diagnosed 2008. Can't remember how long I have been 'clumsy' (catching my foot on the pavement, kicking objects rather than moving around them) but have only very recently been made aware of Perpheral Neuropathy and its relationship with Hep C. Recent yea...

Iris Dragonfly · Iris Dragonfly

Hey folks, I got a notice a few weeks back about being a part of a class action law suit. It is for patients who were denied treatment because they did not have a high enough firbro score. I'm not sure I can find the notice at this point, the chaos of X-mas all the people and having to move stuff around to accom...

david1806 · david1806

Hi all... I haven't been to this site for a long time, in fact I just spotted it in my bookmarks and thought I would leave a message. So about 3 years ago I was lucky enough to get the "newest" treatment - the one in which if I still tested negative 3 months after the treatment finished - then boom, that's...

Greg D · Greg D

To my wife Linda for her love and support. https://www.youtube.com/watch?v=EImVucJO7Ok

Verylucky7 · Verylucky7

I was infected with hepatitis c when i was a child, but successfully cleared the virus. Now my blood tests show antibody positive but persistently PCR undetectable. My doctor told me that i have no risk of developing liver disease in the long term and can be reassured. In this situation, is it possibl...

Enavigo3891 · Enavigo3891

Hey all - anyone invited to the NVHR Patient Summit in Atlanta GA at the end of July?

tanner · tanner

I sure hope this is starting a new topic wherever I'm supposed to start one, but hopefully this is it. Started Epclusa this weekend. Happy to be on this trek with all of you. Throwin' on my hiking boots, going up that mountain and coming back down on the other side, C free! -- Edited by tanner on Monday 11t...

Iris Dragonfly · Iris Dragonfly

Hi folks, When ill with the virus I felt like I was always getting almost sick and all the time tired. Since treatment I haven't experienced that as much but when it does hit me I feel as though I have the virus again, my throat gets sore, I'm achy, low grade fever, headache, stomach ache and general blaaaa...

Tig · Tig

Good news on the HBV front! Novel vaccine with Viread induces T cell immune response in chronic HBV Boni C, et al. Gastroenterol. 2019;doi:10.1053/j.gastro.2019.03.044.May 31, 2019Researchers found that treatment with a combination of Viread and GS-4774, a yeast-based therapeutic vacc...

Tig · Tig

I received this article today and while it might be hard to swallow, it sounds like it has merit. The study size was small, I wonder why... HE is a terrible condition, let’s hope this is the beginning of better control. Let me know if you have trouble opening it. VIENNA – Patients who swallowed fecal micr...

Story behind user name? · Daook

What is the story behind your user name? Mine is- my Jamaican friends pronunciation of my nick name "The Hook". :)

Michaele · Michaele

HI , Once again I come home to the group for help. I used to have a list of meds safe for use by those with Hep C and/or liver disease . Im trying to find a blood pressure meds that is safe for folks like us , and would like to hear from anyone on HBP meds approved for use by people with our conditions . I have to wo...

tanner · tanner

Yo. Just read this last night. Generics for Epclusa and Narvoni. Gilead dropped prices down to around $24,000 beginning last month. (1/19). Anyone else hear about this? Yesterday, my Anthem concierge rep reversed the Acreedo claim because of the entire mess with Acreedo/Express/old Medical Mut...

tanner · tanner

Trying to catch up with all the posts over the weekend. One from Tig about herbal supplements just caught my eye. I know about St. John's Wort, but hadn't heard about any others. And the supplements altogether: my liver specialist said none of my medications or supplements would impact or interfere t...

Canuck · Canuck

As I am a GT3a, I have been doing much reading (in many areas) about many aspects pertaining to the difficult of having and treating GT3's.GT3a "distinctions/idiosyncrasies" if you will. As some better drug treatments are now coming along for us 3's, who may have felt something like a minority or...

Cheddy · Cheddy

Please join me if you can. I just made a donation to the forum. It's sort of a year end gift to one another, a way of tipping my hat to us all. I have so much gratitude for this "place". Nobody else got me through my HepC ordeal better than the generous people here. I suppose it's not the best time to suggest m...

LamontCranston · LamontCranston

I am still alive, and other than the fact that my appetite for vast quantities of food has continued unabated, my health has been generally good, no surprises. The chronic gut issues I had that I think were HepC related are nearly resolved, not totally, but I have only the occasional icky gut day, so I am...

Carolinca · Carolinca

I read that SVR patients still cannot donate blood? If someone is HCV negative after treatment and SVR, why can't they donate blood? Also, if someone is HCV negative after treatment and SVR, can they still give the virus to others through blood to blood contact? If so, why is this if someone is negati...

nathanW · nathanW

ok ive done my 3 months on epclusa .... now i have to wait for my 6 month bloods too see if it worked . my 4 week one came back fine so lets see the long term one ... ok anyways . during the meds i got a horriable itch ... like discussed during my time taking the meds . now i have finished i have found i shake in my han...

Iris Dragonfly · Iris Dragonfly

If the DAA's are as I understand "direct antiviral agent" are there treatments for other viruses like Epstein-Barr syndrome or West Nile virus? Or rhino virus? Etc...etc... Can they be applied the same way as they have been to hep C? Bb, Iris

LamontCranston · LamontCranston

I seem to be continuing to improve, little by little, my 3 year battle with icky-gut-constipation-abdominal-liver-pain has nearly gone. All that's left is the expected aches and pains of being a 66 year old. I like it better. We went to Idaho, Montana, Wyoming for our usual Summer trout scaring tr...

Topic		Started By	Replies	Views	Last Post
	STICKY: LIVERTOX DATABASE: MEDICATIONS & SUPPLEMENTS (closed) (Preview) Hi Everyone, We so often discuss the impact medications and/or supplements have on our liver health. This searchable website, courtesy of Livertox and the NIH, is very comprehensive and if I may say so myself, a great find and excellent resource for all of us dealing with HCV and the ongoing concerns...	Tig	2	4603	Nov 16, 2018 by Tig
	STICKY: RAV's at the NS-5A site (Preview) Hi all, I'm sitting on the boat, it's 36C, steamy, with not a breath of wind. For once, I wish I was in the Northern Hemisphere.<1% of Forum members will be interested in this, so be warned. I've been wondering about retreatment options after relapse after previous NS-5A treatment (Daclatasvir, L...	mallani	18	7367	Sep 9, 2018 by Tig
	STICKY: Where are you from? What Genotype? ( 1 2 3 4 ) (Preview) On my last visit to the doctor we discussed the regional significance of genotype and the area we live in the world. For example North America is a lot of genotype 1, etc. So where are you from what is your genotype? I'm in the US and have genotype 1 A.	Scout	182	50249	Apr 10, 2018 by Ziggy65
	STICKY: Why are cirrhotics difficult to treat? (Preview) I have had a few PM's about the difficulty in treating cirrhotics. This has been discussed before, but I'll make this a 'Sticky'. Firstly, only 20-30% of HCV patients will develop cirrhosis, and it usually takes 20-40 years. There are some predisposing factors, such as Genotype 3, obesity, diabete...	mallani	13	9646	Oct 13, 2016 by dmoceri31
	STICKY: Understanding RAV's- effect on treatment and re-treatment selection (Preview) Hi all, RAV= Resistance Associated Variant. Also called mutations, treatment-induced variants or viral polymorphisms. When infected by HCV, we know there is a dominant viral structure called the 'Wild-Type', and it has a family of very similar viruses, with substitutions of an amino acid or two...	mallani	6	7787	Jan 28, 2016 by Tig
	STICKY: Understanding Sovaldi (Preview) Hi all, I haven't done a technical post for a while, and for some this may be of interest. I have been fascinated by Sovaldi (or PSI-7977, then GS-7977) for the last 2 years . Initial claims about it's action (subsequently often repeated by Gilead Sciences) made me question why it could not be used as mon...	mallani	38	12594	Jan 10, 2016 by Tig
	STICKY: Can I be cured of Hepatitis C? (Preview) Hi all, This is prompted by another thread, 'Liver damage and repair'. We are all aware that SVR is as good as we can get. The tiny risk of relapse is enough for some to say 'We are not cured- just successfully treated'. We tend to concentrate on the liver. We look at blood tests and are happy to see normal li...	mallani	5	6221	May 9, 2015 by dragonfly
	STICKY: Cirrhosis in HepC. Do we need a better Grading system? (closed) (Preview) Hi all, I've been meaning to do a post on this for some time, and was even going to send it to a Journal, but couldn't be bothered with all the Bibliography, rewriting, references etc. I've been through that before. Cirrhosis ( from the Greek- 'yellow condition') has long been regarded as the end stage o...	mallani	0	5433	Mar 1, 2015 by mallani
	Health Updates - Among Friends ( 1 2 3 4 5 … 10 ) (Preview) Hi Gang, I thought I would start a new thread for health updates. We have a lot of posts here about flu, bronchitis, and other ailments that plague us. How lovely to have the care we feel for one another. I truly appreciate the support and suggestions. But, I can't tell the topics from the treatment ti...	Cheddy	473	7167	6 days ago by Harry
	Peripheral neuropathy and Hep C (Preview) Have been HCV+ for over 30 years now but only diagnosed 2008. Can't remember how long I have been 'clumsy' (catching my foot on the pavement, kicking objects rather than moving around them) but have only very recently been made aware of Perpheral Neuropathy and its relationship with Hep C. Recent yea...	NickE	3	94	January 31st by Harry
	Class action law suit (Preview) Hey folks, I got a notice a few weeks back about being a part of a class action law suit. It is for patients who were denied treatment because they did not have a high enough firbro score. I'm not sure I can find the notice at this point, the chaos of X-mas all the people and having to move stuff around to accom...	Iris Dragonfly	8	162	January 15th by Tig
	CURED!! (Preview) Hi all... I haven't been to this site for a long time, in fact I just spotted it in my bookmarks and thought I would leave a message. So about 3 years ago I was lucky enough to get the "newest" treatment - the one in which if I still tested negative 3 months after the treatment finished - then boom, that's...	david1806	2	155	October 20th by 5-1-18
	People I look up to (Preview) To my wife Linda for her love and support. https://www.youtube.com/watch?v=EImVucJO7Ok	Greg D	1	159	October 12th by Tig
	Can I still infect someone if I have cleared the virus on my own? (Preview) I was infected with hepatitis c when i was a child, but successfully cleared the virus. Now my blood tests show antibody positive but persistently PCR undetectable. My doctor told me that i have no risk of developing liver disease in the long term and can be reassured. In this situation, is it possibl...	Verylucky7	4	214	September 29th by Observer
	NVHR Patient Summit - Atlanta GA (Preview) Hey all - anyone invited to the NVHR Patient Summit in Atlanta GA at the end of July?	Enavigo3891	14	723	September 6th by Love22
	Tanner's Trek with Epclusa ( 1 2 3 ) (Preview) I sure hope this is starting a new topic wherever I'm supposed to start one, but hopefully this is it. Started Epclusa this weekend. Happy to be on this trek with all of you. Throwin' on my hiking boots, going up that mountain and coming back down on the other side, C free! -- Edited by tanner on Monday 11t...	tanner	116	2316	Aug 10, 2019 by Cheddy
	Let's talk about fatigue (Preview) Hi folks, When ill with the virus I felt like I was always getting almost sick and all the time tired. Since treatment I haven't experienced that as much but when it does hit me I feel as though I have the virus again, my throat gets sore, I'm achy, low grade fever, headache, stomach ache and general blaaaa...	Iris Dragonfly	4	409	Jun 22, 2019 by 5-1-18
	Hep B Updates (Preview) Good news on the HBV front! Novel vaccine with Viread induces T cell immune response in chronic HBV Boni C, et al. Gastroenterol. 2019;doi:10.1053/j.gastro.2019.03.044.May 31, 2019Researchers found that treatment with a combination of Viread and GS-4774, a yeast-based therapeutic vacc...	Tig	1	348	Jun 2, 2019 by Canuck
	Cirrhosis and Hepatic Encephalopathy (Preview) I received this article today and while it might be hard to swallow, it sounds like it has merit. The study size was small, I wonder why... HE is a terrible condition, let’s hope this is the beginning of better control. Let me know if you have trouble opening it. VIENNA – Patients who swallowed fecal micr...	Tig	2	428	Apr 18, 2019 by Observer
	Story behind user name? ( 1 2 ) (Preview) What is the story behind your user name? Mine is- my Jamaican friends pronunciation of my nick name "The Hook". :)	Daook	68	3408	Apr 3, 2019 by LamontCranston
	HBP Rx and other meds safe for use with liver disease (Preview) HI , Once again I come home to the group for help. I used to have a list of meds safe for use by those with Hep C and/or liver disease . Im trying to find a blood pressure meds that is safe for folks like us , and would like to hear from anyone on HBP meds approved for use by people with our conditions . I have to wo...	Michaele	4	424	Mar 28, 2019 by Michaele
	Generics (Preview) Yo. Just read this last night. Generics for Epclusa and Narvoni. Gilead dropped prices down to around $24,000 beginning last month. (1/19). Anyone else hear about this? Yesterday, my Anthem concierge rep reversed the Acreedo claim because of the entire mess with Acreedo/Express/old Medical Mut...	tanner	10	704	Mar 7, 2019 by Tig
	Supplements (Preview) Trying to catch up with all the posts over the weekend. One from Tig about herbal supplements just caught my eye. I know about St. John's Wort, but hadn't heard about any others. And the supplements altogether: my liver specialist said none of my medications or supplements would impact or interfere t...	tanner	3	589	Feb 11, 2019 by 5-1-18
	SOF/VEL and SOF/VEL/VOX ( 1 2 3 ) (Preview) As I am a GT3a, I have been doing much reading (in many areas) about many aspects pertaining to the difficult of having and treating GT3's.GT3a "distinctions/idiosyncrasies" if you will. As some better drug treatments are now coming along for us 3's, who may have felt something like a minority or...	Canuck	130	31571	Jan 5, 2019 by Canuck
	Let's help each other out (Preview) Please join me if you can. I just made a donation to the forum. It's sort of a year end gift to one another, a way of tipping my hat to us all. I have so much gratitude for this "place". Nobody else got me through my HepC ordeal better than the generous people here. I suppose it's not the best time to suggest m...	Cheddy	4	750	Jan 1, 2019 by Cheddy
	One year after The Cure (Preview) I am still alive, and other than the fact that my appetite for vast quantities of food has continued unabated, my health has been generally good, no surprises. The chronic gut issues I had that I think were HepC related are nearly resolved, not totally, but I have only the occasional icky gut day, so I am...	LamontCranston	5	704	Dec 16, 2018 by Canuck
	Donating Blood after Achieving SVR (Preview) I read that SVR patients still cannot donate blood? If someone is HCV negative after treatment and SVR, why can't they donate blood? Also, if someone is HCV negative after treatment and SVR, can they still give the virus to others through blood to blood contact? If so, why is this if someone is negati...	Carolinca	11	2665	Dec 12, 2018 by Tig
	epclusa program finished ...strange after effects now . (Preview) ok ive done my 3 months on epclusa .... now i have to wait for my 6 month bloods too see if it worked . my 4 week one came back fine so lets see the long term one ... ok anyways . during the meds i got a horriable itch ... like discussed during my time taking the meds . now i have finished i have found i shake in my han...	nathanW	9	1072	Dec 12, 2018 by LamontCranston
	What about other viruses? (Preview) If the DAA's are as I understand "direct antiviral agent" are there treatments for other viruses like Epstein-Barr syndrome or West Nile virus? Or rhino virus? Etc...etc... Can they be applied the same way as they have been to hep C? Bb, Iris	Iris Dragonfly	2	930	Oct 18, 2018 by LamontCranston
	Still alive! (Preview) I seem to be continuing to improve, little by little, my 3 year battle with icky-gut-constipation-abdominal-liver-pain has nearly gone. All that's left is the expected aches and pains of being a 66 year old. I like it better. We went to Idaho, Montana, Wyoming for our usual Summer trout scaring tr...	LamontCranston	13	1061	Oct 18, 2018 by LamontCranston
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