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Post Info TOPIC: Health Updates - Among Friends


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annie, i agree..... keep moving, and i use magnetic braclets and wraps and magnetic dots that stick on [amazon]. i live life with my magnets on



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Wow!  Those were some big spills, Harry and Obs.  Painful just thinking about it.  No wonder you have pain now.  Harry, I hope this new doctor has some good answers for you.  And 5, arthritis is an awful thing.  Glad you've found something to at least help with the pain and numbness.  My chiropractor keeps telling me I just have to keep moving, even just gentle moving :)



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age 65
gender F
genotype 2
fibrosis stage f0
HCV diagnosis date Oct/18
SOT May 10, 2019
HCV medication Epclusa
HCV lab results (viral load 2,950,000, AST unknown, ALT 10
No prior treatment



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This fone is not very good often types wrong words sorry about that Observer.

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Yes observer about 5 weeks before I see specialist I think,I think my horse riding Deys were great , didn't really start riding horses until I was about 25,as I lived in Sydney when young not much riding there ,I had a great mate watched her get born, she ended up more like a dog then horse I think,my daughter started riding.her when mate was just broken in.i don't think I was a great rider but I cud usually stay on,till one day she started chasing some other horses ,too fast for me iended uprolling off her as she went through creek landed on my back couldn't move for a minute I was wondering plus landing about 9 inches from large.rpck, when I opened my eyes she was standing next to me I think she was in more shock then me , unfortunately had to get.her put down couple yrs ago feet were infected tried everything sad day.sorry for raving on,yes I'm looking forward to seeing specialist, IV had so many diagnosis over the yrs,now that dam virus has gone for good I hope things might get clearer,this new Dr does seem heaps better,I often see your part of the world on TV ,an think how great it would be,IV never even seen snow..lol.takecare have nice weekend thanks for your reply.Harry

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I loved that horse...we used to go for great long trail rides in the forests and farmlands in  Quebec...no matter the weather...it was a badge of pride for all the girls to do a 3 hour ride in 15 or 20 below...

my horse got snowballs clumping in her feet..she was excited to get through the tunnel because that was a homeward bound landmark... I was dawdling due to her snowballs, we were behind the others...they started to trot up the forest path outside the tunnel..she got excited and took off... well tried to..

Harry...You get it! Of course I still loved her and her big brown eyes...and rode her as soon as I could...but the injury certainly plagued me for decades.

5...thats great that ice and heat help you! I use those alternating on fresh muscle/nerve injures but never thought to use them on old injuries.

Harry, how long until you see the specialist? It is so great that you have found a caring Dr.

 

 

 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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I meant to say observer what a scary experience with the horse !!sorry 5 ,it's just my head getting mixed up.

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i can attest to the neck trouble blues.

i've had arthritis in my neck for years so am a big fan of ice and heat; when i do that regularly i have fewer numb hands and toes. lucky my numbness goes quickly when i change my position or ice my neck.

this maintenance is for the birds! but i'm def happier since being cured of HCV

i look forward to hearing what your new doc says too harry,

and Obs! wow, that sounds like an awful thing to go thru cry



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Cheddy ,sure will ,yep it's a change having a new Dr who seems interested instead of a Dr who is just waiting to retire.take care keep you informed on what specialist has got to say.5 ,sounds like you were so lucky to survive your horse accident must have been so painful for you ,horses can be so dangerous but how can you not appreciate those big brow n eyes ,!!!take care , Harry

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Harry, you got a new Doc!!!  Glad to hear it.  I'm eager to hear what the specialist has to say.  Hang in there keep an eye out for silver linings.

 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Oh harry, 

I sure hope the specialist can help you get some relief. 

Physios and Cairos are a bit of a crap shoot...Ive had good and bad...

I had a horse slip on ice in a tunnel under the highway when I was a teen and landed right on me and broke my shoulder quite badly(just above the wing bone)...   I had to ride her home being led while I held my shoulder..anyhoo it healed kinda but is a real weak spot ... for 25 years I had headaches that came from that spot and the chiropractors and physios all said they could fix it...they didnt. So I do know just what you mean about old injuries that flavour our whole life.cry

The nervous system sure does play a big part in digestion etc. 

Is there any way you could get massage? I find regular massage is very good for overall nervous system, lymphatic system and arthritis too.  

My husband and I trade acupressure foot massages at least once every month...and more often if the other person is in a grumpy or weepy mood... 

 

Our weather here is crazy...no rain in March, then a couple of weeks of ferocious rain/wind then a summer like heat wave for a week now cool and rainy (which is actually my favourite) 

my garden is very confused..



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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Observer , just got back from my new drs,she had results from recent imaging I had done ,I thought my main problem was pinched nerve in C5 _c6 well it's still same but report mentioned degenerative changes going on loss of disc height causing significant canal narrowing causing nerve root compression in c4_c5plus few other new problems I won't bore you with, my Dr seems to think the pinching of nerves could cause numbness,so she has booked me into specialist apparently can also cause shortness of breath ,this new Dr seems to be a bit more careing so just got to wait till I can see specialist now,think the cooler weather doesn't help nor the hot weather lol.Hope Cheddy and 5 are going ok I really think it's worth getting vertabraes an nerves checked out , guess it's warming up over your way now ! weather s going crazy down here,I really think the liver ppl over here could have explained things that might happen to some ppl,anyway take care everyone .ps I really didn't think nerves in neck controlled so many things shoulders arms feet ect.

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Hi , everyone got results back from my Dr yesterday ,I fell off my daughter s horse 20 or so years ago, lucky not much damage done, few MTHS later my shoulder had ceased up very painful,went to different drs I was told it was tennis elbow arthritis old football injury ect no one could really tell me,except load me up with codein ect few yrs later went to a Dr in Thailand who went strait to my neck and told me I had nerve damage in neck,he was also blind,!! Had steroid injection s when I got back to Oz ,a local Dr has been treating me,and it does seem lot better these days,I'm in mid 60s so got to expect few pains,well after finishing Epclusa IV noticed numbness in 4 fingers on r hand plus a few toes,I know this is mild compared to other friends on this forum,well my results came through showing pinched nerve in C5 c6 plus build up of arthritis in neck area with severe nerve damage,my new Dr was concerned and has made appointment for me to see neurologist up in Queensland 200 miles away closest one to where I live ,bugger ,my Dr also told me that if nerves are getting plnched it can cause digestive issues ,constipation,bad moods head aches ect,,she also told me something should have been done years ago about it,she admitted she was confused to what to do that's why she made app for me to see specialist hopefully soon,she even said it can make breathing harder when you have emphasemia as. I have.so I guess I will keep taking my meds this cooler weather doesn't help ,she even said the Liver Dr I saw pre treatment instead of spending 7min with me should have checked out my previous med history, as sometimes these new D.A.A can have an effect in nervous system.sorry for this long rave,but I think nerves in neck can make condition bit complicated also the phisios IV been sent to over the years have done more harm then good.. ps ,5,larger socks seem better cheers Harry.



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Thanks 5,great advice,I was really getting impatient for the hot summer to finish ,but now it's starting to get cold ,I don't know what suits me best maybe somewhere in between lol,glad you're starting to improve guess it's just another waiting game.take care of yourself ,from Harry



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Harry, 

I rarely wear socks ....they make my feet feel like they are going to explode.... I have some comfy wide slippers I wear at home in the winter and when I have to (like in my boots) I also wear large socks.. spring summer and autumn Im usually barefoot or in slip on shoes..

I am convinced that the DAAs affected my neuropathy ... I had had one or two minor minor episodes of pain in the last 5 years before treatment

but during and after treatment the stabbing burning in my feet (or on the tops of them) was almost constant very debilitating and frustrating.  The neurologist I saw said diseases and or some medications can affect the peripheral nerves. I didnt really follow up with her so Im sorry I have no other info to share with you. 

In my case the pain has mostly subsided, and only happens when Im not feeling well...like when I get a little flu bug or a cold or something..

I work on keeping my whole nervous system as balanced as I can...diet,exercise and sleep 

take care Harry 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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Thanks 5 will give large socks a try !take care.Harry



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socks are the worst harry!

try plus size socks for men.. big and tall? and thin socks



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Observer,I can relate, I'm finding it really hard to buy socks that don't cut off circulation,I don't know if the DAA s have anything to do with neuropathic problems, I'm trying to find out, without much luck ,I feel sorry for Canuck driving all that way ,then having to talk with a retired neuro surgeon, I can relate know one IV spoken to over here has been much help, at least VL has gone so far ,my Dr rang me yesterday wants to talk to me on Friday about recent imaging I had done on my pinched nerves hopefully may have some clues regarding my numbness in hands feet,sick of dropping my coffee, try stay well



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good to hear you made it back C

what a journey; i hope this leads to something helpful for you.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Well, I just got back home again from my visit to the neuro guy.

Hey, ya, i kinda live in the middle of nowhere (not really, but sorta) I am a good 4 hours++ from the big city of Vancouver (depending on route and weather/time of year - but even on a really GOOD day, I (personally) have NEVER got myself to vancouver in under 4 hours!) - some folk can seem to do it - not me tho!) The trek to the next city centre to us (with fuller hospital and imaging services) is a 2 hour drive away. So, unless it is just a family GP you need or a simple xray, we travel for just about everything else.

Turns out the fellow I got referred to today is a retired neuro"surgeon", NOT a "neurologist" (I thought it WAS a neurologist I was supposed to be seeing today - but no - oh well). This neuro-surgeon has been retired from surgery for some time, he just assesses people now and (if required) he then refers them out again to a surgeon OR to a neurologist. 

We go over my not so good looking lumbar xrays, and my complaints - he is a bit hard to understand, both accent-wise and in his explanations - I come away with not a lot of understanding - I have a req. for a MRI (might take a couple months to get it done), and a referral to a neurologist, no idea how long that wait will be. I left his office today with the feeling that I have no good reason or explainable reason for the icy/cold/numbness sensation - so ... it must just be my imagination I guess! God I hope it just goes away. It had been consistently there but fluctuating some. We'll see where this goes - like BEGONE I hope!

If it has anything to do with the degenerative disc disease noted thus far on my xray, I just blame it on the wear and tear over some 60+years (not HCV), but I wondered and asked about the wisdom of what to do and what not to do - continue some anti-inflammatories?, take some gaba?, increase the gaba?, take nothing? GP gave me scripts, this fellow today said I did not need to take anti-inflammatories or anything or do anything or avoid anything! Boy this thing better get better, fast. I'll keep going to yoga classes, i guess, but cripes that's where it started one day!

He did leave me confused - but, hopefully, this problem will just completely disappear,quick, and/or, if not, then maybe the MRI will spell out something more clearly for me? 

Cheddy (on your topic of digestion) my very long standing/very chronic constipation slowly has cleared up (really quite dramatically) since cure, much to my relief! And 5 (on your topic of swollen ankles) my swollen ankle problem has virtually all but disappeared since cure, also a dramatic improvement and a change (almost exclusively) to the good.

I'll keep ya's posted on my shiver-me-timbers syndrome! confuse C.

 

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Our GI docs have divorced themselves from guessing or theorizing about anything that might be connected to the HCV or the treatments.

we only have ourselves to work it out. blankstare

so.... we play it by ear and see other doctors who can help us with symptoms and support.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Do you think the nerve stuff is related to HepC?  

I don't know how long I had it, but the aches and pains I had went away after treatment and my digestive stuff has returned to normal - finally!

I'd like to know more about this.



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Be safe canuck

our GI dr say they have nothing to do with the side effects cry

my new allergy spray seems to be working out so far AZELASTIZINE. or something like that. i use less than a spray most days, just dab some in with a qtip.

but the good news for me was my hearing is normal and nothing serious is going on in ears.

still my feet swell and hurt like many of us....but i have old feet and they started hurting about 6 yrs. ago

be well friends

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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It really gets on my nerves how much fallout we all have to deal with from incubating HCV for a few decades. I mean bad enough with the liver damage, fatigue and digestive issues but why do we all seem to have on going nerve issues? 

Anyhoo Canuck, hope your drive is beautiful...them BC mountains are gorgeous...watch out for wildlife...I saw a video someone took of a grizzly balancing and sauntering along on a concrete highway barrier so have your phone camera out and ready in case. smile

I also hope the Dr has some solutions for you.  



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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I sure do hope everybody gets their nerve issues worked out.  I'm so glad you are looking into it to see what can be done. 

C, where the heck do you live that requires these treks to the docs?  Are your nearest neighbors Osos Canuckiosos?  Safe travel, dear.

 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


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We do seem to experience more than our fair share of nerve dysfunction. Certainly more than enough arthritis and joint pain to go around, too. Safe travels, Chuck and tell your driver, H, to keep it under 100 mph (that‘s a lot of those kilometer thingies)! We want you back, safe and sound! 

I hope all is going well...  wink



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Canuck,best of luck with your Neurologist visit ,really hope your conditions improves ,don't know what part of the world you are but drive safe and will keep fingers toes crossed for you ,at least with this forum you get to connect with people who understand.

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Harry, I am glad you are getting some imaging done. These things should be looked in to. Me too, I (having things looked in to) I am off tomorrow, a 2 hour drive away, over to the next bigger little city to see a neurologist for his opinion on my back xray which said my lumbar discs looked not so good, I would like it if there were NOT icy, shivery numb areas down my leg and into my foot - I think of you and Iris (and some others) of late, when it comes to unwanted symptoms of nerve things! I'll let yas all know how I make out - fingers crossed for all of us. :)  C. 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Thanks Canuck,that really helps I appreciate your knowledge.take care.

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Hey Harry, I wanted to chat with you but not over on Tanners thread. You were asking about your (prior) high VL? We have had others around here who have had high VL's, I recall one fellow I can think of right off the bat, who was up around 20 million as well. Lots of people get high viral loads, lots of people get low to middling VL's., and VERY often one's own VL can and WILL fluctuate, both up AND down, often fluctuating up and down many times when you have had hep c for a long time. This was something I never knew when i found out i had hep c, it wasn't until i came here to this website that i found out about fluctuating VL's. Your body is in a constant battle, trying to fight off and down the viral foe when you have chronic hep c and sometimes you win a bit, then the virus re-gains ground and replicates again for a while, then your immune system tries to beat the virus back again - the war can go back and forth, on and on like this and your VL can potentially go up and down for as long as long as you have the hep c - for some people who have had hep c for a long time AND know about it and get VL's drawn all along, they can see do not fluctuate much, others see that they do get back and forth higher and then lower loads - it just depends. Some people see-saw, others seem to hold a pretty steady load all along. A high load really doesn't mean too much nowadays with the likes of most of these new powerful DAA's - the new drugs seem to be having no problem killing off the virus whether the VL was 20 million or 20,000. Nor does a high VL necessarily qualify you to be considered "sicker" than a person with a lower VL, if you are chronically infected with the virus (no matter how high or low your VL is), you are equally ill and infected (period) as the next person who also has chronic hep c. Now, that is not to say that the longer people carry the virus, the sicker they are, that can very well happen - being chronically infected for years/decades can harm your liver longer of course and set you up for increased fibrosis/cirrhosis and other long term effects can make you sicker than the next guy with chronic hep c. Chronic hep c is a seriously bad disease to have, no matter how high or low your VL is. Good you are rid of it.

You are now free of that HUGE burden that the chronic infection was having on your poor liver and body - you now have a chance to heal up your liver and recover from a long period of infection. Even though you are still not feeling 100% improved, believe me, your liver and body is very happy and thanking you for relieving them of this work of fighting this chronic infection all the time. I hope you will start to feel better and better pretty soon. Meanwhile, celebrate, that you are no longer packing this chronic health robbing hitchhiking virus around anymore. One less HUGE thing.  : )  C.

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Harry, 

I have quite a low voice and a very old bluetooth earpiece, and between those things, my phone simply cant understand me at all, when I am out walking or sometimes driving and want to send a text message to my kids or my sister, the autocorrects are astoundingly funny and occasionally inappropriate....one time I was saying Jon doesnt have time and the phone sent John doesnt have balls  and once I told my sister something about a pregnant car.  Its a family joke trying to decipher what I actually was saying  

anyhoo...you certainly dont have to apologize to me for spelling mixups. 

And I think its awesome that you were such a good support looking after your wife while she recovered . 

 

 



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tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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Observer suppose to be a month not math,,,sorry I'm a dinasaur bad typer



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Observer re my wife's hip op ,think it was about a math apart maybe bit longer ,whatever it was it wasn't much fun ,all seems ok now ,modern medicine pretty awesome ,take care.



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Oh my friends that nasty virus was mutating inside of us for decades..changing and damaging our cells nonstop. The fact that we are alive and virus free is such a blessing despite our continued health issues. 

After many years of terrible, crippling arthritis, it turned out I have developed an allergy to beef and pork...I nearly slapped the Dr when he told me...beef is my favourite (and I have sooooooo many good recipes) but..i stopped eating them both and guess what? My arthritis is only about 20% of what it was... some days I dont even have any.

I know we are all different but if you are still suffering from arthritis after UND, it might be worth it to try to get tested for allergies and see if that could be contributing to your arthritis.

Gall bladders...poor 5...they can cause some terribly painful pain when they go bad like that. 

Cheddy...you are living the dream girl and I am so delighted for you..you deserve every healthy moment.

Canuck...your poor back poor you  what do they do to ease your discomfort? 

Tig, are they re-doing 8 vials worth of tests?

harry... glad your wife is gb free and has new hips...i cant believe she only had a month between surgeries...quite astounding really.

 

 

 



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Yep 1   was enough we have to go up 15 steps ,must have look pretty strange trying to get up down stairs.lol



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good to know harry, glad she didn't have both hips done at once



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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C, , the suitcase stayed home!! at least you had your house coat , i'm glad you are safe at home and that your suitcase was there and not out on the road somewhere.

i only had gallstones for over a year but something is going on in there with the chronic inflamation.... not sure how they found that out since there was no word of it last time except for the stones.

i'll see the doc in june, till then i'll just be real careful. i suppose an endoscopy is in my near future blankstarecry , then decisions.

i've had  way too many stomach probs so maybe the gb doesn't want to live with me anymore

if i have another actual attack likei did on monday i will call for help to the doc; or meet him at the hospital., the attack lasted about 4 hrs and i did have too much to eat at once the nite b4; so here's hoping my carefulness will help .



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Hi Harry here, 5,gall op wife was getting around a bit after few days,hip ops were about a mth apart ,took few weeks with walking stick , still has to take bit easy with hips ,been over a year.so we had to put hoola hoops away lol. Anyway we are ok glad virus is gone..got a craving for Easter egg dam shops 10miles away .take care all.



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Hey everybody,

I'll have some of what Cheddy is having please! Sounds good.

Weird Tig that your lab disappeared like that, one time i looked and looked and looked and waited and waited and waited for a test result to return, and until i really pressed the situ - i did not find out that the result was NOT lost, but rather, that they had simply neglected to draw the dam tube in the first place, (they had drawn the rest of what was ordered, which were LOTS of tubes, but missed one important one!) I had to go back and sit down again in lab for another stick, to draw the tube they had missed!

Harry, DDD = degenerative disc disease. Wow, i thought they only did one hip replacement at a time, your wife actually had both hips done at the same time? Glad to hear your gal felt better after her GB was out - there is hope for 5 too then, if she too ends up having to get hers yanked out. 

5, Were there no other details about your GB?, if it is inflamed with stones, how long has it been like that?? Did you say any of your prior imagings showed the same thing? Does not a image of a GB like that automatically prompt/cause the doc to call you in for a consult?

Brain fog/gas or just farts? I packed all my undies, socks, PJ's, housecoat and bathing suit in one bag, in the second bag was my arsenal of soaps, creams, body wash, a billion necessary toiletry articles, in a third bag i neatly folded several very nice dressier clean pant outfits/tops (lovely basic blacks) for my Alberta visit, I got to Alberta wearing my oldest thread-bare soft and loose and comfortable jeans (garden work clothes really) - I get to Alberta and realize my neatly packed good clothes are right where i left them, suitcase at home inside the door! I did have lots of clean socks and underwear to wear throughout my visit though.

Later, C.  ; )



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GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

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thanks harry, i was thinking about mick jagger too.hahahahahha

that's good news that your wife is feeling better after gb op. was she in the hospital long for that one? and how soon did she get up and moving after they removed it?

i'm sure the hip replacements took awhile to get moving....wow,, what a trooper she is. And you had to care for her during all of this. That had to be wearing on your stress and your stamina. 

yes, i hope you have a wonderful easter with the grands; just don't try to keep up with them

i'm now thinking it would be nice to be rid of this chronic stomach trouble; i was hoping once i was cured it would go but i guess the gallbladder is mad as hell cry now.

so you only have about 6 months eot then? yep it takes awhile for every gear to shift into betterment for us... patience is our middle name now. But look how patient we were with the virus, as you said

we can enjoy life easier knowing that HEPC isn't in there killing us anymore



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Hi ,5 , really hope your feeling bit better, my wife recently had the gall bladder op plus double hip replacement ,she is feeling heaps better now the gall bladder is gone ,bit slower since hips done but that's ok there's really no hurry ,hope to see grandkids over Easter (fingers crossed ) try not to stress too much about gall bladder it's hard I guess but you sound pretty tough , especially after that dam virus.try stay positive if they can keep Mick Jagger bouncing you will be ok my wife feels heaps better after the op.happy Easter mate

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i mostly get around pretty good myself, moderation for me

i got my ultrasound report.

gallbladder is chronically inflamed w/stones. but no mention of my liver

i have an appt witn the real Doc in june to discuss anything and everything...... till then i hope my litle gallblader calms down. 

labs next week.

5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Please don't hate me, but I feel great!

I'm breaking out my bicycle. I'm riding horses. I painted my living room, made some picture frames, and did some updates around the home front.  I still adore my husband.  I love my friends.  I'm feeding my brain with an online language course.

None of this comes easily.  I just know I can't get what I want without discipline and it all takes work. Guess that makes me a grown up, and a silly one at that.  I do suffer the call of inertia. I do get my feelings hurt, and at times, I do feel like no good deed goes unpunished - but I'm not going to live there.  It's also hard to keep the diet a a healthy level, but I love the rewards, and I just feel old when I let myself get weak. I will not be beat...unless I get hit by a truck tomorrow.

This is not a lack of sympathy or any form of blame.  I'm in awe of all who have to overcome chronic pain or/or illness.  I'm just lucky to have some good DNA.  Add to that, that I got stronger and more appreciative through by my HepC journey (that I thought was stranglings all hope of happiness out of me).  

I just wanted to share some blessings and add to the hope that we all get better and better in any of the ways we can.

Yep, we are Troopers.  We heal.  We win.  We get well.

Lovingly,

Cheddy



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12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

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Hi Friends,

Geez, this getting old stuff is for the birds! Numb toes, numb fingers, busted noses and arthritis, isn’t how we should be enjoying our retirement years. The good news is we beat a virus that likely was responsible for a lot of it and now we have to give it time to heal. We packed around a killer for decades and during that time, it had full reign over our mind and body. What was damaged over the course of years and decades, doesn’t repair itself quickly. I’m as aggravated as the next person when something flares up, but have seen some very positive improvements since SVR and you will too!

They looked for my VL results again and nothing could be found. They drew about 8 tubes of blood for what? They don’t need that much for a liver panel and a CBC! They just shrug their shoulders. That’s unsatisfactory! Oh well, the LFT’s were great, so that’ll do until they repeat it in 6 months. 

Thanks for all the blessed Easter wishes! The fire at Notre Dame Cathedral was so sad, especially this time of the year. Hopefully it brings people together and things calm down in France. They’ve had a time of it lately. We need calm... 



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Hi 5, I think it must be about 5_6 MTHS since I finished ,IV got my Dr confused with my health issues , lucky for Dr Google. My wife and I are in shock often wondering how we ever got to this age ,time has gone really fast ,we blame it on the 70s..Have nice Easter.

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HAPPY EASTER FRIENDS

sorry to hear about the coffee harry, there was a time that both hubs & i dropped everything.

when was your end of tx harry?



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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5 good luck with your stomach issues try stay strong. I was gonna say something else but brain fog has got me atm.

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Hi Canuck, really hope your feeling bit better, and 5 hope you are improving ,also Tig great news about loosing VL, sometimes I think I'm getting few side effects is I had virus for so long plus my VL seemed way.too high (over 20 mill ) don't know how it got that high ! anyway suppose d to be gone now also what does DDD stand for ?IV spilled 2 coffee s today numb fingers are a pain , really hope Easter is enjoyable for all , not too many eggs. Try keep chins up all, happy Easter.

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exactly C, there's no place like home.

i'm glad you had an easy trip and got some good visiting in

my nose is healing, i can wear glasses again unless they hit the spot of impact.... but i am happy

had my liver/spleen/gallbladder scan today.. labs next week, didn't want to do that while dehydrated from so many hours of only sipping water

i've had a lot of stomach sadness so i hope it's not the gb, or maybe i do... if i get it yanked maybe i won't have such gi distress! we'll see.

mainly i don't want any emergency operations

will let ya all now in a few days how the scan turns out.

how about tig losing his VL? both from the labconfusecry and from his liver



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Hey yall,

I'm ba-aack! One day overnight to get to my visit destination, a few nights visiting, and then one more night in motel on the road to get me back home again - haven't been over the rockies in quite a while, was a little rain-spitty and cloudy and some snow bits and a snow squall getting there, but only saw a hint of flurry, mostly sun and a bit of cloud coming home - so got a much better view the the grand mountains on our return. Gas prices are outrageous filling up in BC! Cheaper in Alberta fer sure.

Nice to have the visit with my relatives, but nice to be home in BC again. 

Poor Obs, what are they doing to you! Sure wish you felt a little better Harry. I seem to be a copy-cat at times with no originality, I too have a numb spot similar to what Iris and Harry have had - i have a numb patch on the bottom of my foot Iris, and my recent xray also shows irritating news, severe DDD they say! We shall see, like 5, with her poor "nose" to the grindstone, I remain optimistic we WILL all get a handle on these afflictions/events that are plaguing us!

Hey hoodie! How many hours of sleep, per day, do you require nowadays?? Less than before I am betting.  ; )

Later, C.

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

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Yep old troopers sounds about right, that connective tissue thing your hub has sounds interesting,I wonder if I mentioned it to my Dr she would know what it is lol,yes I agree great to get rid of this virus,as I said before I'm 65 and not too many old friends have made it this long ,I wish these cures were around yrs ago , I just wish some of these other symptoms would go away, hope you and hub are going ok. Thanks for your message ,I guess these new D AA are so new we are kinda like pioneers or old troopers , maybe if we wait bit longer things may improve ,just getting over really hot summer here in Australia but now it's starting to get cold!!I don't know what's easier to handle hot or cold weather iknow arthritic numb type pain not much fun when cold but summer heat is exhausting, old age what a drag,but being a baby boomer was fun at times.stay well guys ,Harry



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