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Post Info TOPIC: Health Updates - Among Friends


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Tig,

With a jump like that in 3 months, is it possible that it can jump the other way in 3 months? Have you repeated any labs? What is your next step? This is terribly disturbing news.  We want a healthy Tig.

5,

Gall bladder be gone. You don't need that malfunctioning unit. Good luck with your operation. I hope you feel better very soon.  Do let us know.

Harry,

Good luck with quitting smoking. It's hard to believe that something so unhealthy can be pleasing, too.  Old habits do die hard.  I hope you find some new ones that make you proud.  Stay cool down there.  Last year was a tough one.

Iris,

How sad it is to lose a kitty.  I'm very sorry for your loss. 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


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Hey 5,

Ask your doc to save your GB in formaldehyde. Then we can start a new “Show n Tell” section, with pictures!

You will feel much better after that unruly thing is gone. It was like night and day for me. No more sharp pains, diet conflicts or worries about keeping it happy on a daily basis.

We’ll be here waiting for the good news! 



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63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Oh my, my friends. I remember my doc telling me that after 50, taking care of your body is a full time job. But look at us. We face each challenge one step at a time. I'm going to change my Happy Dance to a Healthy Dance for a while. Let's get to the bottom of these issues and keep on moving.  More on all of this when I have more time.

Love, from Cheddy



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Harry wrote:

Hi 5, good luck with the op,my wife says she feels so much better after getting hers done , you will be looked after.


 thanks harry , this feels so soothing to read

 

Yes OBs, i got the house over prepared , but it's the transition to the colder weather so it will be easier to bag the clothes up in a few weeks anyway , and i'll have lots of broth and frozen cooked chicken so don't have to think about that for a few weeks either



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Tig,thanks for your reply ,I find it really helps getting info from someone who understands ,instead of trying to talk to my Dr ,who looks like just walked out of med school and doesn't really understand our situations or really cares that much ,I'm sure my Dr would be lost if he didn't have a computer in front of him!IV usually got to remind him what's going on and who I am in fact kinda reminds me of a robot ,I remember when I was a kid how drs use to do house calls and seemed to be a bit Careing ,oh well times a Changing as Bob said, anyway take care Tig ,good luck with everything ,you sound like a tough ol' bugger ,best thoughts from down under,

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Awww Tig 

sorry to hear about your blood tests...I sure hope it can be managed with food/diet.  

 

hurray for still being SVR

Let us know what Dr says when you have your follow up visit.

 

Harry..more power to you and yes avoid the news

5_ sounds like youre all ready and set and soon will feel ticketyboo 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
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3 years...post tx... successful dragon slayer 



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tig, sorry to hear about your sad labs :( . i hope they normalize without meds..

i watch my sugar and fats and salt; this high maintenance lifestyle is nOt fun



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

Tig


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Hello Friends,

Just got my latest viral load results back. Still undetected, after 6 years! AST: 14 ALT: 15

The rest isn’t so good. Something caused my Triglycerides to jump waaay up, Cholesterol way up, Glucose, too. All in 3 months. Looking at the bright side, at least I’m still SVR! I’ll get the word next week, yikes.

Stay tuned for more drugs and diet restrictions...  eyeroll



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Tig


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Hey Harry,

You need to bring that question to your doctor before undertaking any new drug regimen. The incidence of immune system failures being responsible for HCV relapses isn‘t high, or we’d heard about it, a lot.

There are many things out there that are hard on your liver. Some of the biologics prescribed now are stressful on the immune system. Whatever it is, always discuss it with a liver specialist that’s aware of your history.

Continued luck on the cigs!

Cheers



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Hi Observer, yes quitting cigs is probley hardest thing IV tried to quit,I find it relaxing ,IV nearly succeeded but still not completely given up,whenever I have slightest stress I start thinking cigs, still trying.gotta not watch the news I think.

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Hi 5, good luck with the op,my wife says she feels so much better after getting hers done , you will be looked after.

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good luck quitting the cigs harry; you got this!

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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in todays news for me is .... my gallbladder gets removed next monday the 7th.

i saw the surgeon today again and i sure do like him. he's also a vascular surgeon so that's a plus

of course i have things all planned out and set up around my house to make it all easier. home made plane chicken broth in the freezer, easy to eat foods, clothes washed and bagged for both sun & mon after the special soap. 

moved other stuff around to make it easier to get to .

i do have to change my sheets on sunday so i can jammie up after the hibiclens and slide into bed [their instructions.... they are serious about keeping risk low for infections at the hospital].

and i have my list of yes/no antibiotics for the anesthesiologist. [recommended by the good doctor]

i'll be his first patient of the day an it will be in ithe hospital since he has other surgeries in there that day; the hospital has valet parking so that's also a plus. it is planned to be an outpatient surgery; if the liver fibrosis causes drama i'll be right in the hospital already. but i'm seeing this as a simple operation to set me free from that little bloated uncooperative bag.

i got all my preop done . on sunday nite and monday morning before surgery i have to use Hibiclens which helps to cut down infections.  i show up at 6am for a 7:30 surgery.... i'm so glad this will be done.

the 2 gals who did my paper work both had their gallbladders out too so that was fun to discuss it.

for the rest of the week i will try not to think about it too much except to stay organized.... i'm keeping busy but healthy .

so glad i caught that uti via that yearly exam

of course i am already wondering when i can get on the laptop after surgery

preparation for this will be like thanksgiving dinner i think.... all that prep and then it's all over in a few hours , but i can then recover in peace and harmony in front of the tv with pain meds for the first cpl days..... and walking off the gas also.

one of the gals that did my paper work had part of her colon removed so this doesn't seem so dramatic, still special but easier.

so, i will udate everyone on the morning of, and then as soon as i can afterwards

 

 



-- Edited by 5-1-18 on Wednesday 2nd of October 2019 05:49:17 AM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Wow youre quitting smoking...Im impressed.  I have always rolled my own ciggies and bought organic tobacco..they go out (so I have to relight them and they last a long time) when Im painting and at most I smoke 6 a day...none of my Drs have hassled me about it...

I figure with all The things Ive had to sacrifice because of food allergies Ill be damned if Im going to give up ciggies as well... I know our Canuck quit ...

my husband occasionally uses ventalin  for mild asthma but I dont know about all the other ones...

Im surprised you dont notice a difference after 3 weeks of that inhaler with the steroid..did the Dr say how long before you should notice any improvement? 

glad youre still doing some qigong  its good for all your organs including your lungs

 



-- Edited by Observer on Wednesday 2nd of October 2019 04:29:48 AM

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3 years...post tx... successful dragon slayer 



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Sorry don't know what happened with message I was doing ,will try remember in this, observer yep been attempting the qui,gong it does seem relaxing try to do few times a week ,I'm trying to quit the cigs atm so it helps,in the message that I was sending I mentioned that I think Australia has most expensive cigs roughly 50.00 dollars a packet of ready rolled or 50.00 for roll your own 25 gram pack sure makes it easier giving up, wow those tornadoes you people get are wild , luckily that's one thing we don't get here so far, great reading your messages everyone ! I'm not sure if I mentioned that I have atouch emphasemia also asthma overlap some people get when get older apparently,my Dr has just realized that he has been prescribing a inhaler to take for emphasemia ,with ventolin when needed smoke from fires ah sprays ect but he forgot asthma medication to take when needed ( great)anyway he has prescribed a inhaler called pulmicort turbuhaler steroid inhaler twice a day, can't say I feel much difference yet it's been 3 weeks, Tig maybe you have heard of this med?I was reading on line about it says can cause infections an weakens immune system,I just don't know if it would be a good thing to take after doing the Epclusa treatment ,if anyone has any experience please let me know I'm so sick of meds,my Dr has gone on another Holliday so I can't ask him,sorry if IV gone off topic ,take care all. No one seems to know much about liver treatment here and I don't want to take something that causes infections ,haven't much faith in my Dr. Take care

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When we were little kids our mom would send us to the store to buy her cigarettes...hmm     there was no such thing as a nonsmoking section of a restaurant, people smoked in movie theatres, hospitals, and even airplanes (except during takeoff and landing) 

harry, keep yourself hydrated and do your exercise indoors...have you been able to do anymore qigong? I try to do at least 5-10 minutes on the days when I dont feel like doing it, and 20 minutes or more on a good day.

Im proud of the youth leading the world wake up call..two of my children went to the Vancouver strike/march yesterday...100,000 people were there  

 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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that is so right harry, i laugh when i see an old show where everyone is smoking in hospitals

now the vapers are getting a clue, i'm glad they will at least have some regulations eventually.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Hi 5, obs ,Tig ,Ched ect,sorry if forgotten anybody else's name maybe bit of brain fog going on ,it's early Sunday morning and no I'm not coming down,(like they say in the song I think ) sounds like you people understand the fire smoke situation ,think spring time is usually good ,but seems to be getting shorter each year unfortunately, I think it's great the younger generation is concerned about global warming ,our politicians should learn from them ,anyway just a short hello ,hope everyone going ok , hopefully we will have mild summer ,air con is expensive here,we have 2 fans that help a bit, still getting tingly numb fingers and aching joints plus tired a lot,but no virus anymore so far, I forget sometimes that getting older usually means aches and pains as well, guess that's normal,we were brought up with cigarette adds and movie stars smoking remember a guy riding a horse with a cigarette ,they Evan sold cigs at hospitals lol like what chance did we have?? Anyway take everyone ,try an stay well , still haven't Hoodie mentioned hope she is well ! Stay cool !!

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harry, i hope you are able to manage well with all of this



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Hi Harry 

3am? 

Nice to hear from you, I miss Hoodie too

After 2 horrid summers of wild fires that made for beautiful sunsets but kept me hiding inside and hovering beside my air purifier ...this summer BC didnt get any thank gawd.. and now we are starting our lovely rain forest rainy season..smile yay 

so sorry youre dealing with smokiness ..its scary and can be so bad for health.

 

 

 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
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3 years...post tx... successful dragon slayer 

Tig


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Hi Harry,

Good to hear from you Brother! How's life treating you these days? I hope you're getting some relief down there. You've gone through enough. We've got yearly problems with smoke and wild fires here, too. Stay inside and avoid the smoke at all costs. Lots of carcinogens in it, not to mention the chance of severe lung irritation.

Crap on TV, you say? 600 channels and there is either nothing on or they want to charge you extra to "stream" it. Give me a break...  I feel your pain!



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Tig

63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Greetings all it's 3am Saturday morning here,hope things. are going good for all the survivers out there ,I was thinking about Hoodie how she was going ,hope all ok,warming up here smokes been bad plus dust storms ,time for another coffee then might see what crap is on TV,so sick of reality programs.

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that's about right obs , whack a mole ahhahahahaha 

i too am thankful that i don't have hepc anymore and i can juggle all this other stuff just fine, ; everybody has stuff 

 

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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I often refer to the ongoing changing health issues Ive had thanks to 32 years of living with hep C as wack a mole....my knee stops hurting then I get bruises everywhere then then I dont ,  then I get diarrhea but just for a day then I get sciatica, pn and tinnitus and on and on.... oh well.............

much better the alternative and so much less drastic then pre-treatment/pre-cure.smile

sure hope the gb surgery fixes you up a bunch 5

 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
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3 years...post tx... successful dragon slayer 



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hi tig and cheddy,

i agree, the GB should be easy compared to all this.

at least i am prepared to sleep on the wedge pillow when i get home from that , it will be outpatient, half an hour then recovery from anesthesia, then home to my bed.

cheddy, i don't think the back is related to anything except moving wrong for too long... cleaning out closets and house work and then sitting up in the wrong position :(  , once i got o. n the therapy of heat/ice , using the wedge pillow long ways to recline rather than sit it started to heal slowly enough where i could start stretching the muscle around the vertebrae

i've had this before but it;s been awhile since it was this bad... last week my neck went out from sleeping wrong, now this....it could all be from compensating one position for another....but the neckk is nearly well and the back has about a week to go i think

all the nerve pain seems to have calmed down too....and for sure, these bodies are sensitive sometimes.

i've got all my magnets on as well as having used ibuprophen and the ibuprophen gel, heating pad and cold paks..... and mainly taking it easy, puttering around is ok and i can go to work tonite.

 

and i feel i got a practice run on how it might be with the GB recovery.

i'm thankful i don't have many obligations so i can always take time to recover.....still wish the body was a bit less fragile



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Hi 5.  Well, you got one problem solved. Glad to hear. How is your pain level now? Low back pain and pain down to the toes could be a lumbar issue?  Is it related to the GB?  These bodies are so complex.  I never understood why I had such hip pain when I had HCV.  I'm just glad it went away after treatment.

I hope you are feeling well and being extra healthy in preparation for Oct. 5.



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


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I’m glad that’s all in the rear view mirror, 5. You were down with that irritation (to put it mildly) for too long. The GB will be the easiest and shortest procedure of them all! They’ve got that down to an art now. I spent one night in the hospital. What have they told you? I wouldn’t be surprised if they do them on an outpatient basis now. Whatever it takes to save their money! 



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63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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thanks C,

yep , all done with that segment , time to get some things done before the gallbladder goes bye bye.... pre op and another dr's appt, then oct 7th GB moves out.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Ya, was wondering how it was goin.

Glad you got that bout of treatment finished and that uti wiped out. : )  C. 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

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SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

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all tests came back normal.....nothing more to see here

i'm glad i survived the macrobid pill and went on to use the bactrim DS easliy.

thanks all for listening .



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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oh, i actually did not sleep much last nite... 

i have been sitting watching tv or sleeping and my hips were hurting cry, so much that i had that weird nerve pain down to the toes on my left foot

so.... i took advil and used the ibuprophen gel on my lower back. i never know if it's my back or neck, but all i have to do is move a little and the tingling toes go away.

i was gonna try to work but after all that and all the other i felt crappy so took the extra day the doc gave me.

i dozed lightly for a cpl hours then got up and around cos i had to move the bod, not much, just puttering , folding laundry, doing a few things in the kitchen

don't like taking the advil [ibuprophen] cos it adds to bloatedness along with the antibios.... omg, these bodys are not kidding around....

but i dont' seem to feel as bad as i did, gonna make sure i sleep tonite even if i have to take a 2mg. valium; i can't go thru that when i have to work.

i hope to feel good at work cos some money would be nice too , if not i'll get out early



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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found some good probiotics, slow digesting so it all gets to where it's supposed to go... yay, they'll be her sunday



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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hi C,

they are DS , double strength and i'm tolerating them well.

i'm still peeing alot and it doesn't smell pretty most of the time

most pain is gone now,  i had tenderness on the sides and middle of my pelvis so it was bothering everything. 

now i'm searching for probiotics, nothing too strong or it will be a problem for me 

i hope the new herbs work. st johns wort and valerian are not good for liver disease , so chk for that, ok? 

oh, i didn't get a call from the doc today even tho i know they got the lab report [my labcorp account said so]

so i presume i have infection and they had nothing to add.

no matter, i'm happy to get cleared of anything before the GB goes.... and any antibiotic makes my sinus happy



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Good, I like the sounds of that, getting a 10 day course of the Bactrim. It might be the regular strength Bactrim (versus DS double strength) if she said to take 2 tablets a day.

Getting a course duration of 10 to 14 days of bactrim should cover a uti with or without kidney infection involvement. 

Macrobid, i read, was not the best choice should kidney infection be involved.

Anymore funny UTI-kind of symptoms still happening? abdominal/back/bladder symptoms? or has everything gone quiet now, bladder wise? Hope it's gone quiet now. Hope you are getting some better zzzz's too.

I just tried a couple nights of something called "u-dream" - some heapin pile of herbal stuff in a capsule, jury is out, I'll let ya know. ; )  C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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yes, 10 days, 2 pills a day.... the bottole is way over there and i'm way over here on the laptop. i'll post that later



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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5,

Good things are a bit more settled.

So, the prescribed course length is 10 days?

How many mg's per tablet and how many tablets per day?  : )  C.

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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hi C, yep started wed , so 3 pills done and 1 more in 3hrs. 

still waiting on the latest c&s

they might call me friday; that's how it was last week. 

i'm just tired but am home relaxing....drinking water and watching tv

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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5,

So, after the nurse phoned on Weds, and she and doc encouraged you to go ahead and start taking the bactrim ... did you? You DID start taking it on Weds then?, and, is the prescribed course supposed to be taken for a total of 10 days (or, for how long)? (Sounds like you started the bactrim, but, I'm just wanting that clarification, as before, you thought you might wait until Friday when you were to get results back from a urine C&S).  C. 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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hi polo and cheddy,

and thanks all you friends for listening and responding

yep , it's good to have these little pills that know just what to do when we take them

so far i just feel better rather than worse; not sure why i balked at this. i think it's cos the whole uti/kidney thing is new to me...so used to the liver blues and the quiet kidneys haven't ever given me a peep.

polo , that is so cool you've gone so long without antibios! wow

i took them a lot for sinus infection but finally found that azilastine that keeps things good up in there, so i was looking forward to being antibio free....

oh yea, eurthro wrecks my stomach, but the Azithromycin doesn't.

rest, good food and water are def on my menu.

i def put the dr thru her paces but i don't see her too much during the year....except the last 2 weeks.

and for sure will work on get on the probiotics soon too. my gallbladder hates yogurt, but maybe when they remove it i can eat yogurt again, that would be awesome.



-- Edited by 5-1-18 on Thursday 29th of August 2019 12:58:51 AM

__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Hey 5erator.  I've taken cipro without issue.  I did pay attention to upping the friendly flora.  I'm not sure if it helped at the time as the antibiotics kill off so many flora, but I reloaded after with yogurt and kombucha types of things.  I once had a negative reaction to erythromycin so I avoid that.  Really, though, instead of fearing these treatments, I feel pretty darn lucky that we live in a day and age where we have them to overwhelm the "bad guys".

Ever onward!



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Hi 5 --- Plenty of water and rest along with your prescribed treatment should do you good. Lay low and take it easy. 

BTW, I took cipro several years ago back in the 90's and it worked well for me, and no side effects. That's last time I look a pill form of antibiotics. I've taken eye drop antibiotic too that I was told was like cipro and it cleared up an infection in my eye about 10 years ago. 

Wish you the best and keep us updated.

ps

--sending good vibes!biggrinbiggrin



-- Edited by polosilver on Wednesday 28th of August 2019 09:43:34 PM

__________________

 

New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 



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tnx obs, yes the sulfa drugs? thankfully i can take them. did you ever take cipro?

 

well the nurse called and dr said go ahead and start , it's ok. that's all i wanted, to know it's a good idea to start.

this way i'll have 3 days down before i go to work and i'll know how it's going by then. then work a 2days and be off for 4 again.  or 3 to 3 of each, either way i can go home if i feel sick and just get thru the 10 days  

i plan to get thru the 10 days easily

 

slept-ish about 5hrs

i'm def drinking  a lot water of with this tx, harvoni def taught me that , and only one small cup of cranberry during the 10 days. i'm using my harvoni pill reminder

AND my favorite gallbladder helper, tums, is allowed anytime

i guess i was more worried about how the GB was gonna handle this, maybe it will like it - i know my sinus always likes antibiotcs

 

 



-- Edited by 5-1-18 on Wednesday 28th of August 2019 08:51:32 PM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Hey 5. 

The one I am allergic to is called Sulamethoxazole-Trimel.

cheers



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tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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i just got home from the doc and pharm. i signed in at 7:30 and saw her about an hour later.

we went over my labs, she wasn't concerned about the high alubin, she said it means i have been eating nutritious food.

all the other labs were just a little over and the one under so she decided to get the urine c&s before i have to commit to the antibiotics. i hope to know by friday.

she mainly thot i could wait since i have such a hard time with the antibiotics, but i'm concerned that i'm just putting off the inevitable. i told her i rather get started and she said ok, but now i'm thinking again...blankstare

blankstareblankstare and if they don't call friday with a detailed message it's the holiday over here 

i don't like having to make this decision. i know i want to feel better , sleep betteor and be well.  

and yes, it was a c&s test and she offered bactrim last monday. ,gonna try to nap now and decide tomorrow.

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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hi obs,

i usually do easy, low impact movements. i suppose becos my uti was bloating me out i was doing more vigorous exercise blankstare ; of course i didnt realize i had it at the time. 

so...from now on it's back to my easy,gentle movements. i do have a ti chi dvd i can use as i get better with the bactrim

i slept 14 hrs monday nite into tuesday but no sleep tues into today , it is just too early for my biorythms to try to go to sleep before 5am, and having to get up by 6.....well.

hey, do you remember that antibio that did that to you? i write them all down, i'm even thinking of getting a bracelet to warn off about macrobid , but at least i know and i had the time to experiment-now i can say NO if offered.

i was wishing i had gone straight to the bactrim, but like i said, i know for sure and what if they were perfect for me?

as long as we have a dr's note when we miss work for illness they don't care, and there is usually more help on the weekend so i'll be ok there. i need to rest after all these up all niters.

it is a shame that i have to stay up all nite to see my dr, but she fills up fast and going past noon i'll get turned away.

i do hope this dr. day is shorter than monday tho

 



-- Edited by 5-1-18 on Wednesday 28th of August 2019 09:38:27 AM

__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Ah yes good old ecoli hmm 

im glad youve been able to rest and that your job is flexible enough that you can lighten your schedule while you adjust/heal from this. 

And Im really glad those nasty symptoms from the antibiotics are gone... I had a similar reaction to an antibiotic once ....thought I was having the warning signs of a heart attack.

i hope the bactrim works quickly and efficiently for you 

take care 5...

btw have you looked at chi gong for your light exercise? Im a big believer in it as it was developed for healing and its super easy. Even just 5 -10 minutes a day makes a huge difference in my life... I even do some of the arm/breathing exercises lying in bed on the odd occasion that I get insomnia...wink



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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hi C,

 the doc must have got more info on her copy than i did , cos no where did it say ecoli

i took bactrim well enough for years then it bothered my stomach so i only took azith ,zpak

i understand this needs something stronger so i tried the killer macrobid, at least i know for sure i can't take it and i'm thankful those sides didn't last.

so yea, just get the prescription for bactrim, maybe an extra day off to get used to the bactrim and have a shorter work week while on it. , and maybe lab requisition for when i'm done with the bactrim.

then i can keep the liver doctor outta all of this :rolfl:

this is my first known uti or kidney anything..... gee , now i'm knowing almost as much about this as HCV and gallbladders. blankstare

i'm ready for bed so hope i fall asleep easily



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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5,

Glad you got 40 winks in.

So, somewhere in the reports you are mentioning, you must be reading a lab report (from a urine culture and sensitivity test - C&S test) if you are telling me that you know you are growing ecoli, then it must be the urine C&S report that is telling you that. You also mention wbc's, rbc's and "few" as a number of bacteria? All this info is from the C&S report (I am guessing), or, from the R&M report as well - regardless, just assuming some of this  info came from your general urine tests, you would still be highly suspect of being symptomatic of having a uti (obviously your doc thought this was the case, when she first gave you the macrobid).

The urine C&S report should also indicate (not just what organisms were there - what was "cultured") but what the organism is resistant to and/or sensitive to ... did you read anything like that on your urine C&S report, what your ecoli was sensitive to (aside from that they could see you were growing ecoli)?

Ecoli is a very common culprit/finding in uti's, bactrim is also a very common antibiotic rx for uti's. That would be good IF your urine C&S report says your ecoli IS sensitive to bactrim (as you have taken bactrim OK before).

I will be glad when you can get started on the course of bactrim, as long as your ecoli is sensitive to it and your doc gives you a long enough course of it (in case your kidneys are involved), some docs give fairly short courses of certain antibiotics for simple uti's, if kidneys might be involved it is wise to make sure the course is adequately long - either way, the course has to be adequately long.

Don't sweat the other stuff, other labs/other appointments, that will all happen when it needs to happen, just concentrate on getting this uti issue taken care of. (I think you said you were going back to the GP tomorrow?) - so, get on the bactrim IF that's what the doc says to take. First things first. If you feel you need some extra days off work while you have to be going through all this stuff, then ya, just arrange that.

Rude, these uti things are eh?! I'll say so! I am so glad I have rarely had uti's now in my "adulthood".  : ) C.

 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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how soon is too soon for labs?

i have in my possession the lab request from the liver doc ,  i took my other labs a week ago .

i could go get those labs and have results by friday and they i would only need my fam.doc to do follow up labs post batrim.

i will still see her and maybe even get a note for a cpl xtra days off from work

i could still see her but i would see the liver doc's labs way sooner



-- Edited by 5-1-18 on Tuesday 27th of August 2019 09:42:04 PM

__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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my albumin was slightly high, 5.1 rather than 3.6-4.8

the bacteria says "few"

rbc 3-10 -rather than 0-2

wbc esterase  1+ abnormal

carbon dioxide low 19 - normal is  20-29

creatine was half a point high [hmmm, that is what went so high on hubby]

egfr was 1 point high [also kidney'

 

so i guess the albumin might have to do with the kindney? 

and who knows what the gallbladder is causing. 

i do have low back pain, but very slight, and very slight lower belly fullness, but i just had water, coffee and cranberry and have always had ibs.... 

what a juggle.

i had also been exercising again, light arobics, but maybe my body hates any kind of impact now blankstareconfuse






-- Edited by 5-1-18 on Tuesday 27th of August 2019 06:52:54 PM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

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