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Post Info TOPIC: Health Updates - Among Friends


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Harry, 

I rarely wear socks ....they make my feet feel like they are going to explode.... I have some comfy wide slippers I wear at home in the winter and when I have to (like in my boots) I also wear large socks.. spring summer and autumn Im usually barefoot or in slip on shoes..

I am convinced that the DAAs affected my neuropathy ... I had had one or two minor minor episodes of pain in the last 5 years before treatment

but during and after treatment the stabbing burning in my feet (or on the tops of them) was almost constant very debilitating and frustrating.  The neurologist I saw said diseases and or some medications can affect the peripheral nerves. I didnt really follow up with her so Im sorry I have no other info to share with you. 

In my case the pain has mostly subsided, and only happens when Im not feeling well...like when I get a little flu bug or a cold or something..

I work on keeping my whole nervous system as balanced as I can...diet,exercise and sleep 

take care Harry 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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Thanks 5 will give large socks a try !take care.Harry



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socks are the worst harry!

try plus size socks for men.. big and tall? and thin socks



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Observer,I can relate, I'm finding it really hard to buy socks that don't cut off circulation,I don't know if the DAA s have anything to do with neuropathic problems, I'm trying to find out, without much luck ,I feel sorry for Canuck driving all that way ,then having to talk with a retired neuro surgeon, I can relate know one IV spoken to over here has been much help, at least VL has gone so far ,my Dr rang me yesterday wants to talk to me on Friday about recent imaging I had done on my pinched nerves hopefully may have some clues regarding my numbness in hands feet,sick of dropping my coffee, try stay well



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good to hear you made it back C

what a journey; i hope this leads to something helpful for you.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Well, I just got back home again from my visit to the neuro guy.

Hey, ya, i kinda live in the middle of nowhere (not really, but sorta) I am a good 4 hours++ from the big city of Vancouver (depending on route and weather/time of year - but even on a really GOOD day, I (personally) have NEVER got myself to vancouver in under 4 hours!) - some folk can seem to do it - not me tho!) The trek to the next city centre to us (with fuller hospital and imaging services) is a 2 hour drive away. So, unless it is just a family GP you need or a simple xray, we travel for just about everything else.

Turns out the fellow I got referred to today is a retired neuro"surgeon", NOT a "neurologist" (I thought it WAS a neurologist I was supposed to be seeing today - but no - oh well). This neuro-surgeon has been retired from surgery for some time, he just assesses people now and (if required) he then refers them out again to a surgeon OR to a neurologist. 

We go over my not so good looking lumbar xrays, and my complaints - he is a bit hard to understand, both accent-wise and in his explanations - I come away with not a lot of understanding - I have a req. for a MRI (might take a couple months to get it done), and a referral to a neurologist, no idea how long that wait will be. I left his office today with the feeling that I have no good reason or explainable reason for the icy/cold/numbness sensation - so ... it must just be my imagination I guess! God I hope it just goes away. It had been consistently there but fluctuating some. We'll see where this goes - like BEGONE I hope!

If it has anything to do with the degenerative disc disease noted thus far on my xray, I just blame it on the wear and tear over some 60+years (not HCV), but I wondered and asked about the wisdom of what to do and what not to do - continue some anti-inflammatories?, take some gaba?, increase the gaba?, take nothing? GP gave me scripts, this fellow today said I did not need to take anti-inflammatories or anything or do anything or avoid anything! Boy this thing better get better, fast. I'll keep going to yoga classes, i guess, but cripes that's where it started one day!

He did leave me confused - but, hopefully, this problem will just completely disappear,quick, and/or, if not, then maybe the MRI will spell out something more clearly for me? 

Cheddy (on your topic of digestion) my very long standing/very chronic constipation slowly has cleared up (really quite dramatically) since cure, much to my relief! And 5 (on your topic of swollen ankles) my swollen ankle problem has virtually all but disappeared since cure, also a dramatic improvement and a change (almost exclusively) to the good.

I'll keep ya's posted on my shiver-me-timbers syndrome! confuse C.

 

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Our GI docs have divorced themselves from guessing or theorizing about anything that might be connected to the HCV or the treatments.

we only have ourselves to work it out. blankstare

so.... we play it by ear and see other doctors who can help us with symptoms and support.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Do you think the nerve stuff is related to HepC?  

I don't know how long I had it, but the aches and pains I had went away after treatment and my digestive stuff has returned to normal - finally!

I'd like to know more about this.



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Be safe canuck

our GI dr say they have nothing to do with the side effects cry

my new allergy spray seems to be working out so far AZELASTIZINE. or something like that. i use less than a spray most days, just dab some in with a qtip.

but the good news for me was my hearing is normal and nothing serious is going on in ears.

still my feet swell and hurt like many of us....but i have old feet and they started hurting about 6 yrs. ago

be well friends

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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It really gets on my nerves how much fallout we all have to deal with from incubating HCV for a few decades. I mean bad enough with the liver damage, fatigue and digestive issues but why do we all seem to have on going nerve issues? 

Anyhoo Canuck, hope your drive is beautiful...them BC mountains are gorgeous...watch out for wildlife...I saw a video someone took of a grizzly balancing and sauntering along on a concrete highway barrier so have your phone camera out and ready in case. smile

I also hope the Dr has some solutions for you.  



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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I sure do hope everybody gets their nerve issues worked out.  I'm so glad you are looking into it to see what can be done. 

C, where the heck do you live that requires these treks to the docs?  Are your nearest neighbors Osos Canuckiosos?  Safe travel, dear.

 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


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We do seem to experience more than our fair share of nerve dysfunction. Certainly more than enough arthritis and joint pain to go around, too. Safe travels, Chuck and tell your driver, H, to keep it under 100 mph (that‘s a lot of those kilometer thingies)! We want you back, safe and sound! 

I hope all is going well...  wink



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62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Canuck,best of luck with your Neurologist visit ,really hope your conditions improves ,don't know what part of the world you are but drive safe and will keep fingers toes crossed for you ,at least with this forum you get to connect with people who understand.

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Harry, I am glad you are getting some imaging done. These things should be looked in to. Me too, I (having things looked in to) I am off tomorrow, a 2 hour drive away, over to the next bigger little city to see a neurologist for his opinion on my back xray which said my lumbar discs looked not so good, I would like it if there were NOT icy, shivery numb areas down my leg and into my foot - I think of you and Iris (and some others) of late, when it comes to unwanted symptoms of nerve things! I'll let yas all know how I make out - fingers crossed for all of us. :)  C. 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Thanks Canuck,that really helps I appreciate your knowledge.take care.

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Hey Harry, I wanted to chat with you but not over on Tanners thread. You were asking about your (prior) high VL? We have had others around here who have had high VL's, I recall one fellow I can think of right off the bat, who was up around 20 million as well. Lots of people get high viral loads, lots of people get low to middling VL's., and VERY often one's own VL can and WILL fluctuate, both up AND down, often fluctuating up and down many times when you have had hep c for a long time. This was something I never knew when i found out i had hep c, it wasn't until i came here to this website that i found out about fluctuating VL's. Your body is in a constant battle, trying to fight off and down the viral foe when you have chronic hep c and sometimes you win a bit, then the virus re-gains ground and replicates again for a while, then your immune system tries to beat the virus back again - the war can go back and forth, on and on like this and your VL can potentially go up and down for as long as long as you have the hep c - for some people who have had hep c for a long time AND know about it and get VL's drawn all along, they can see do not fluctuate much, others see that they do get back and forth higher and then lower loads - it just depends. Some people see-saw, others seem to hold a pretty steady load all along. A high load really doesn't mean too much nowadays with the likes of most of these new powerful DAA's - the new drugs seem to be having no problem killing off the virus whether the VL was 20 million or 20,000. Nor does a high VL necessarily qualify you to be considered "sicker" than a person with a lower VL, if you are chronically infected with the virus (no matter how high or low your VL is), you are equally ill and infected (period) as the next person who also has chronic hep c. Now, that is not to say that the longer people carry the virus, the sicker they are, that can very well happen - being chronically infected for years/decades can harm your liver longer of course and set you up for increased fibrosis/cirrhosis and other long term effects can make you sicker than the next guy with chronic hep c. Chronic hep c is a seriously bad disease to have, no matter how high or low your VL is. Good you are rid of it.

You are now free of that HUGE burden that the chronic infection was having on your poor liver and body - you now have a chance to heal up your liver and recover from a long period of infection. Even though you are still not feeling 100% improved, believe me, your liver and body is very happy and thanking you for relieving them of this work of fighting this chronic infection all the time. I hope you will start to feel better and better pretty soon. Meanwhile, celebrate, that you are no longer packing this chronic health robbing hitchhiking virus around anymore. One less HUGE thing.  : )  C.

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Harry, 

I have quite a low voice and a very old bluetooth earpiece, and between those things, my phone simply cant understand me at all, when I am out walking or sometimes driving and want to send a text message to my kids or my sister, the autocorrects are astoundingly funny and occasionally inappropriate....one time I was saying Jon doesnt have time and the phone sent John doesnt have balls  and once I told my sister something about a pregnant car.  Its a family joke trying to decipher what I actually was saying  

anyhoo...you certainly dont have to apologize to me for spelling mixups. 

And I think its awesome that you were such a good support looking after your wife while she recovered . 

 

 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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Observer suppose to be a month not math,,,sorry I'm a dinasaur bad typer



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Observer re my wife's hip op ,think it was about a math apart maybe bit longer ,whatever it was it wasn't much fun ,all seems ok now ,modern medicine pretty awesome ,take care.



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Oh my friends that nasty virus was mutating inside of us for decades..changing and damaging our cells nonstop. The fact that we are alive and virus free is such a blessing despite our continued health issues. 

After many years of terrible, crippling arthritis, it turned out I have developed an allergy to beef and pork...I nearly slapped the Dr when he told me...beef is my favourite (and I have sooooooo many good recipes) but..i stopped eating them both and guess what? My arthritis is only about 20% of what it was... some days I dont even have any.

I know we are all different but if you are still suffering from arthritis after UND, it might be worth it to try to get tested for allergies and see if that could be contributing to your arthritis.

Gall bladders...poor 5...they can cause some terribly painful pain when they go bad like that. 

Cheddy...you are living the dream girl and I am so delighted for you..you deserve every healthy moment.

Canuck...your poor back poor you  what do they do to ease your discomfort? 

Tig, are they re-doing 8 vials worth of tests?

harry... glad your wife is gb free and has new hips...i cant believe she only had a month between surgeries...quite astounding really.

 

 

 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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Yep 1   was enough we have to go up 15 steps ,must have look pretty strange trying to get up down stairs.lol



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good to know harry, glad she didn't have both hips done at once



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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C, , the suitcase stayed home!! at least you had your house coat , i'm glad you are safe at home and that your suitcase was there and not out on the road somewhere.

i only had gallstones for over a year but something is going on in there with the chronic inflamation.... not sure how they found that out since there was no word of it last time except for the stones.

i'll see the doc in june, till then i'll just be real careful. i suppose an endoscopy is in my near future blankstarecry , then decisions.

i've had  way too many stomach probs so maybe the gb doesn't want to live with me anymore

if i have another actual attack likei did on monday i will call for help to the doc; or meet him at the hospital., the attack lasted about 4 hrs and i did have too much to eat at once the nite b4; so here's hoping my carefulness will help .



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Hi Harry here, 5,gall op wife was getting around a bit after few days,hip ops were about a mth apart ,took few weeks with walking stick , still has to take bit easy with hips ,been over a year.so we had to put hoola hoops away lol. Anyway we are ok glad virus is gone..got a craving for Easter egg dam shops 10miles away .take care all.



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Hey everybody,

I'll have some of what Cheddy is having please! Sounds good.

Weird Tig that your lab disappeared like that, one time i looked and looked and looked and waited and waited and waited for a test result to return, and until i really pressed the situ - i did not find out that the result was NOT lost, but rather, that they had simply neglected to draw the dam tube in the first place, (they had drawn the rest of what was ordered, which were LOTS of tubes, but missed one important one!) I had to go back and sit down again in lab for another stick, to draw the tube they had missed!

Harry, DDD = degenerative disc disease. Wow, i thought they only did one hip replacement at a time, your wife actually had both hips done at the same time? Glad to hear your gal felt better after her GB was out - there is hope for 5 too then, if she too ends up having to get hers yanked out. 

5, Were there no other details about your GB?, if it is inflamed with stones, how long has it been like that?? Did you say any of your prior imagings showed the same thing? Does not a image of a GB like that automatically prompt/cause the doc to call you in for a consult?

Brain fog/gas or just farts? I packed all my undies, socks, PJ's, housecoat and bathing suit in one bag, in the second bag was my arsenal of soaps, creams, body wash, a billion necessary toiletry articles, in a third bag i neatly folded several very nice dressier clean pant outfits/tops (lovely basic blacks) for my Alberta visit, I got to Alberta wearing my oldest thread-bare soft and loose and comfortable jeans (garden work clothes really) - I get to Alberta and realize my neatly packed good clothes are right where i left them, suitcase at home inside the door! I did have lots of clean socks and underwear to wear throughout my visit though.

Later, C.  ; )



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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thanks harry, i was thinking about mick jagger too.hahahahahha

that's good news that your wife is feeling better after gb op. was she in the hospital long for that one? and how soon did she get up and moving after they removed it?

i'm sure the hip replacements took awhile to get moving....wow,, what a trooper she is. And you had to care for her during all of this. That had to be wearing on your stress and your stamina. 

yes, i hope you have a wonderful easter with the grands; just don't try to keep up with them

i'm now thinking it would be nice to be rid of this chronic stomach trouble; i was hoping once i was cured it would go but i guess the gallbladder is mad as hell cry now.

so you only have about 6 months eot then? yep it takes awhile for every gear to shift into betterment for us... patience is our middle name now. But look how patient we were with the virus, as you said

we can enjoy life easier knowing that HEPC isn't in there killing us anymore



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Hi ,5 , really hope your feeling bit better, my wife recently had the gall bladder op plus double hip replacement ,she is feeling heaps better now the gall bladder is gone ,bit slower since hips done but that's ok there's really no hurry ,hope to see grandkids over Easter (fingers crossed ) try not to stress too much about gall bladder it's hard I guess but you sound pretty tough , especially after that dam virus.try stay positive if they can keep Mick Jagger bouncing you will be ok my wife feels heaps better after the op.happy Easter mate

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i mostly get around pretty good myself, moderation for me

i got my ultrasound report.

gallbladder is chronically inflamed w/stones. but no mention of my liver

i have an appt witn the real Doc in june to discuss anything and everything...... till then i hope my litle gallblader calms down. 

labs next week.

5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Please don't hate me, but I feel great!

I'm breaking out my bicycle. I'm riding horses. I painted my living room, made some picture frames, and did some updates around the home front.  I still adore my husband.  I love my friends.  I'm feeding my brain with an online language course.

None of this comes easily.  I just know I can't get what I want without discipline and it all takes work. Guess that makes me a grown up, and a silly one at that.  I do suffer the call of inertia. I do get my feelings hurt, and at times, I do feel like no good deed goes unpunished - but I'm not going to live there.  It's also hard to keep the diet a a healthy level, but I love the rewards, and I just feel old when I let myself get weak. I will not be beat...unless I get hit by a truck tomorrow.

This is not a lack of sympathy or any form of blame.  I'm in awe of all who have to overcome chronic pain or/or illness.  I'm just lucky to have some good DNA.  Add to that, that I got stronger and more appreciative through by my HepC journey (that I thought was stranglings all hope of happiness out of me).  

I just wanted to share some blessings and add to the hope that we all get better and better in any of the ways we can.

Yep, we are Troopers.  We heal.  We win.  We get well.

Lovingly,

Cheddy



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

Tig


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Hi Friends,

Geez, this getting old stuff is for the birds! Numb toes, numb fingers, busted noses and arthritis, isn’t how we should be enjoying our retirement years. The good news is we beat a virus that likely was responsible for a lot of it and now we have to give it time to heal. We packed around a killer for decades and during that time, it had full reign over our mind and body. What was damaged over the course of years and decades, doesn’t repair itself quickly. I’m as aggravated as the next person when something flares up, but have seen some very positive improvements since SVR and you will too!

They looked for my VL results again and nothing could be found. They drew about 8 tubes of blood for what? They don’t need that much for a liver panel and a CBC! They just shrug their shoulders. That’s unsatisfactory! Oh well, the LFT’s were great, so that’ll do until they repeat it in 6 months. 

Thanks for all the blessed Easter wishes! The fire at Notre Dame Cathedral was so sad, especially this time of the year. Hopefully it brings people together and things calm down in France. They’ve had a time of it lately. We need calm... 



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62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Hi 5, I think it must be about 5_6 MTHS since I finished ,IV got my Dr confused with my health issues , lucky for Dr Google. My wife and I are in shock often wondering how we ever got to this age ,time has gone really fast ,we blame it on the 70s..Have nice Easter.

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HAPPY EASTER FRIENDS

sorry to hear about the coffee harry, there was a time that both hubs & i dropped everything.

when was your end of tx harry?



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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5 good luck with your stomach issues try stay strong. I was gonna say something else but brain fog has got me atm.

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Hi Canuck, really hope your feeling bit better, and 5 hope you are improving ,also Tig great news about loosing VL, sometimes I think I'm getting few side effects is I had virus for so long plus my VL seemed way.too high (over 20 mill ) don't know how it got that high ! anyway suppose d to be gone now also what does DDD stand for ?IV spilled 2 coffee s today numb fingers are a pain , really hope Easter is enjoyable for all , not too many eggs. Try keep chins up all, happy Easter.

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exactly C, there's no place like home.

i'm glad you had an easy trip and got some good visiting in

my nose is healing, i can wear glasses again unless they hit the spot of impact.... but i am happy

had my liver/spleen/gallbladder scan today.. labs next week, didn't want to do that while dehydrated from so many hours of only sipping water

i've had a lot of stomach sadness so i hope it's not the gb, or maybe i do... if i get it yanked maybe i won't have such gi distress! we'll see.

mainly i don't want any emergency operations

will let ya all now in a few days how the scan turns out.

how about tig losing his VL? both from the labconfusecry and from his liver



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Hey yall,

I'm ba-aack! One day overnight to get to my visit destination, a few nights visiting, and then one more night in motel on the road to get me back home again - haven't been over the rockies in quite a while, was a little rain-spitty and cloudy and some snow bits and a snow squall getting there, but only saw a hint of flurry, mostly sun and a bit of cloud coming home - so got a much better view the the grand mountains on our return. Gas prices are outrageous filling up in BC! Cheaper in Alberta fer sure.

Nice to have the visit with my relatives, but nice to be home in BC again. 

Poor Obs, what are they doing to you! Sure wish you felt a little better Harry. I seem to be a copy-cat at times with no originality, I too have a numb spot similar to what Iris and Harry have had - i have a numb patch on the bottom of my foot Iris, and my recent xray also shows irritating news, severe DDD they say! We shall see, like 5, with her poor "nose" to the grindstone, I remain optimistic we WILL all get a handle on these afflictions/events that are plaguing us!

Hey hoodie! How many hours of sleep, per day, do you require nowadays?? Less than before I am betting.  ; )

Later, C.

 



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Yep old troopers sounds about right, that connective tissue thing your hub has sounds interesting,I wonder if I mentioned it to my Dr she would know what it is lol,yes I agree great to get rid of this virus,as I said before I'm 65 and not too many old friends have made it this long ,I wish these cures were around yrs ago , I just wish some of these other symptoms would go away, hope you and hub are going ok. Thanks for your message ,I guess these new D AA are so new we are kinda like pioneers or old troopers , maybe if we wait bit longer things may improve ,just getting over really hot summer here in Australia but now it's starting to get cold!!I don't know what's easier to handle hot or cold weather iknow arthritic numb type pain not much fun when cold but summer heat is exhausting, old age what a drag,but being a baby boomer was fun at times.stay well guys ,Harry



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obs, harry, iris ,

wow... we are def troopers.

being older doesn't help things, but without the cure we wouldn't get much older i fear.

some of this is our old body, some may have been aggravated by the meds , or at least they may have added to the inflamation of our mukleoskeltal problems. 

my hubs has connective tissue disease, he only noticed it during and after tx, and the flare ups leave him sad and sore.

i get flare ups too but i just take it easy till they pass.

my skin has been sad since shortly after eot.

i have high hopes that we will all make it ok.

hugs to all of us



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Thanks for the sympathy about my toxic paradise... it seems because the grow ops are on ALR land (agricultural reserve land).... it is under the jurisdiction of the Federal government rather than my local government so...guess Ill be writing letters to Ottawa .

 

5...the drops i am taking are an European standard homeopathic called Detox Forte HD..they are for inhaled toxicity of pesticides heavy metals etc..

I also have a Chemical detox for if I ingest or touch something toxic .

In Germany there are strict standards for the alternative medicines (unlike the U.S. and Canada where you can blend herbs in a bathtub and claim its magic medicine) and I am blessed enough to have a medical Dr who practices integrative medicine...so if Western meds will help a situation, thats what I get and if German homeopathic tinctures will help, thats what I get.  Hes kept me alive for 25 years. 

He discovered my allergies and helped me manage them (three different allergy specialists just wasted my time and didnt find anything with their scratch tests, despite soy causing analphalaxis and digestiveg upsets)

He helped me manage and eventually control the horrid oozing, bleeding hives I had all over my back, chest, arms, head and neck for two or three years) one specialist told me to soak in bleach baths, the other to take reactin for a yearno) his detoxing and hives drops reduced the severity and eventually fixed em up.

Iris.. that fabreeze crap (and dryer sheets) are very very not good for your nervous system and you should not allow your brother to spray it. I know 2vpeople who had pet birds die from being exposed to it...like the old canary in the coal mine eh? 

There are essential oil sprays that will eliminate that eau de poo and smell like lemon or peppermint or just about anything that are a lot less harmful than fabreeze  

you are still suffering from numb toes...your nervous system really doesnt need to get inundated with harmful chemicals....

tig...oh my, I can relate..this is the first year of my life that I dont have a cat but I know all about the eye watering wake up only a cat can give ya...

 

 



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Hi Iris, hope you are improving, I don't know what s going on with the numb toes, IV got 2 numb toes 3numb fingers ,sic of dropping my coffee, my Dr s seems to be guessing and the liver clinic said maybe won't go away maybe it will ,so I just don't know, when did you finish treatment? I know I'm getting older but I really didn't feel like this before, my Dr says maybe pinched nerve in neck or age or treatment ,feel exhausted a lot guess will try be patient mmm.take care Iris

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Hi guys! so sorry to be out of the loop for so long,

everyone is having some sort of issue it would seem. That's a bummer I think I felt like Observer was, waiting to feel better and it just wasn't happening. Glad you found out what was boggin you down and are feeling better now.  Harry too, what is going on? aren't things supposed to improve? Like, I feel a bit better but not enough to write home about. I wake up still unrefreshed but at least not exhausted like before.

So this is my other health update, saw the orthopedic guy today about my numb toes, who wants to refer me to a neurologist and put me on drugs, which I don't think I will get filled. One is called Mobic, an anti-inflammatory, the other Gabapentin which I don't know what it does, but I'll go look it up now. I don't want to take drugs... I guess these things are metabolized thru the kidneys? I just don't want any more stuff for my liver to have to deal with.

The other thing is, I have developed a horrible case of seborrheic dermatitis on the back of my neck and now on my eyelids and eyebrows. I'm beginning to suspect that course of Acyclovir to have maybe contributed to this. I had never had this problem before. Dermatologist gave me Rx shampoo and cream but it doesn't seem to help much. Itches like crazy. It's making my hair fall out too cry

bye for now, Iris

Ps, I wanted to say, Those scented masking agents are pretty toxic, the weed smell would be better...my brother bombs the bathroom with fabreeze, rendering the whole house toxic.I have to open all the doors, it's horrible, sheeze just light a match. 



-- Edited by Iris Dragonfly on Saturday 13th of April 2019 01:19:49 AM

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Hi friends!!

Observer, Im sorry youre dealing with odor masking chemicals. That is OUTRAGEOUS. Again, sorry for my bad language but that is FRACKING STUPID of them to do that and should be illegal. I grew up in an agricultural area and we got the smell of garlic when the wind came in from the South. When it blew in from the West though we got the smell of the mushroom farms. Mushrooms grow in cow poop. So they had big barns filled with cow poop! You can imagine the stench! But Im very grateful they didnt try to mask it. Those chemicals would surely cause asthma or worse. Contact your local officials and please keep us posted. What idiots!!



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That‘s the first time I have ever heard of them using odor bombs in the grow houses. I could’ve used one of them in the middle of the night, last night. My cat must’ve eaten something rotten and then left some memories in her cat box! P-U!! All kidding aside, that odor masking chemical would be awful for a large portion of the populace. Lots of people are sensitive to that garbage. Do they set them off inside the grow house or outside? I wonder if they’re exposing all the plants to it, too? That could cause trouble with the end user of the “product” (cough-cough)... You and 5 and your noses! Get well soon, Sisters!

Saw my doc this week. Said they failed to produce the PCR results and figured it to be a lab error. My response was, “Duh”. He asked me if I wanted to repeat it, I said next time, which is in six months. I have to go back for repeat draws on my CBC and LFT’s. My ALT/AST were good and we all know, if you relapse, they are the first to elevate. My doc includes a PCR every time I go in. He makes money that way, I’m sure. He said I’ve got six months to drop my cholesterol or he’ll start me on a Statin. He doesn’t want to, because they are hard on the liver. So now I have to start watching that. They dropped the upper limit for cholesterol to 170, without my permission. Do you wonder if that’s because they weren’t making enough money on Statins? People were meeting the old standard, so what the hell, lets drop the standard... Hmmmm?



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62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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 hi harry, how are you doing?

my hubs is taking his complaints to one of the senior doctors at the GI clinic in may, i hope he gets some satisfaction with all of it. 

good luck



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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obs, you know my heart and nose go out to you.

odors and odor maskers are so bad.... how stupid are ppl that they flood the environment with toxic odors... it's just so sad.crycrycry

what drops did they give you? can you take them without side effects.

my prayers are def with you... nose to nose.

i go back to work friday nite and hope my head does well.... i'm feeling much better but go to ent on 5.1, my harvoni aniversary. i hope for the best in that too.

good luck obs



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Hi observer ,I know how you feel, some people just don't want to listen or care about harm they do, here in Australia it's the same, no one listens to what the weed killer s are doing,to people s health no wonder people are cracking up,I can fully understand how you feel,try take care.

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I have been having some pretty nasty allergic reactions to something...choking , coughing and dripping.....figured it was pollen...went to my guy and guess what...

Im reacting to the odour masking chemical bombs they are releasing at some of the Cannabis commercial grow operations that have been taking over all the greenhouses in the neighbouring farmlands ....they want to grow pot but dont want to offend anyone with the pot smell hmm

Its like they are blasting that fabreeze crap into the air.  Im going to have to find out who regulates crap like that (local, provincial or federal) and see if I can stop it.

I now have drops to help my symptoms but if Im always going to be exposed I will have to take them all year.no Or move bleh

 

 



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good nose report. my nose is not broken , but.... i get a week off to let the swelling go down so it doesn't get aggravated and me along with it. 

no advil still to keep any nose bleeds from happening so ice it is

and! it's a good thing i went in at 8am cos by 11 they weren't allowing anymore patient sign ups..

ok, gonna rest now, it's been a busy morning; but i did just eat a small piece of white cake with the top frosting wiped off...it did have a little filling between two layers so i got that part

Obs, that's quite a journey you had...wow. thank you for sharing it here with us

harry, my hubs is having a rough time post tx so just hang in there , that is what he is doing.

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Thanks Observer ,great hearing from you an Cheddy ,bit of positive thoughts go a long way ,the attitude of some of these drs an nurses don't help much ,seems once you sign up that's it.no support . anyway thanks for your concern best of luck to you.

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Harry, 

I was expecting miraculousness. My first year after treatment I did not feel better. hmm

 I did not feel worse but I really did not feel a whole lot better. There were so many expectations on me feeling better and I just didnt. It was rather worrying. I still had quite a lot of annoying symptoms (and a few new ones that had developed during treatment) 

But..... My blood tests were fine except my AFP which was only slightly elevated and not of concern to Dr. Liver. 

Finally, Dr. Liver ordered a CT scan...turns out I had a liver tumour. 

So a year (almost to the day) after I finished treatment I had the little bugger ablated into oblivion and then I finally started to feel improvements in my health and energy. Then my energy started to improve...(slowly mindyou) and the thin, fragile skin, random bruising and many other annoying issues..kinda faded from being constant and all of a sudden I realized I felt better  I swear it was at least 3-4 months or possibly more.

I hope for you its just a matter of time, and as Cheddy said...keep drinking water and eating well and I really hope you will notice improvements soon...

 



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