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Post Info TOPIC: Health Updates - Among Friends


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RE: Health Updates - Among Friends
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Thanks heaps Cheddy ,you really made my day heaps betterthanks mate,take care .

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No kidding, Harry.  That's one of the main drives behind this forum.  There's nothing like real experience.  My doc was great, but the info was limited.  I had the impression that they didn't want to suggest any side effects unless I had them.  Oh, I had them. This forum saved me.  Really.

I'm sorry to hear you are feeling so tired.  There is another phase of treatment that often goes unsaid.  It's post EOT.  Your body has to readjust.  It's been living with disease, and then with some really powerful drugs that act systemically.  Keep drinking lots of water.

You definitely did the right thing by getting treatment.  HCV is progressive.  We don't even want to get into the possibilities of leaving it untreated.

It's not uncommon to feel this fatigue after treatment.  Everybody is different.  So are treatments.  I began feeling better gradually and bumped up in about three months.  Then,  I went back to feeling like my old self and then even better.  

If you are not satisfied with your progress, get a doc who listens, and tests.  If you can't get a new one, persist with the dweeb who isn't listening until he/she does.  Your entitled to your good health despite being misjudged.  I guess that's another phase: getting your dumb ass doctor to listen to you.  Rats!

All the best, Harry.  Keep in touch and get to feeling better soon.

Cheddy

 



-- Edited by Cheddy on Thursday 4th of April 2019 10:18:59 PM

__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Hi 5 ,hope you are going ok,sounds as if you be been having your own battles ,hope you continue to improve ,I think the main thing that annoys me about liver drs is the ones I've dealt with tend to look down there noses ,as if to say you caught the virus ,I know best and if you are lucky you will get a 5 Min appointment, and seem to refuse that the side effects you have could have been caused by d,a,a , but was caused by the life style you may have lived many yrs ago ,does seem bit of a coincidence that I felt fine pre treatment except for my age 65, now I can't even cut grass ( don't really care )but being exhausted continually is bit of a pain, I'm really glad it's making people better, but I think drs should try being bit more understanding especially for old buggers like myself instead of the old guinea pig thing!! Best of luck everyone please take care.

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yep, battle scarred and still moving forward

the doc was backed up today so i'll have to go in the morning if i want time off from work. i'll have her take a look at my ears too since they never got all the way better; then i can call in for ear&nose disease

gonna take it easy again today.

hubs is have a go-round with the liver docs cos they can't get the right lab orders to him; they finally did so i hope they are nicer to him. I'm sure they are busy but blaming the patient is never a good idea when there is a paper trail.

of course this stresses me out and i have an easy time with them cos i accept the after tx troubles and pray they just go away someday soon , he is still suffering some troubles from tx cry

ok, tv and ice time over here. everyone be well. 5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Well 5, we are a some fearsome foursome then - me and my hubs also sport back scars in the same general vicinity as your hubs, for cyst removals, my nose remained virtually unscathed, but my hubs has a shnoz that goes completely left then right from a broken nose (the rugged look crafted by another rugged human being) - nice you have only a dainty bruise (I hope), but still even that, you definitely don't need - you have enough nose trouble without a bashing. Who knew we would end up look like such warriors just from living.   :@ )



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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omg C, we have twin noses? cry

i have bruising about the size of a quarter on the bridge [hardest part ] of my nose, i thank God it didn't hit softer more sensitive areas. 

it hurts and yes, time off from work will help since bending forward brings pressure to an already pressured sensitive area on the inside what with sinuses and all. I just have to get up and go to the doctor thursday and get that sweet dr's note to excuse my absence Plus she can check it to make sure it's not worse than i think.

i'm glad you didn't get hurt to much, but yea bending over to get something can be dangerous... my immoveable object was a short dresser.

hubby had a lymphoma excised from his left back just below the shoulder area. he is stitched up extra well since he is an active guy who forgets he's got stitches.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Good grief 5!

Bending over to get your slippers? - what thing did you bend into that wacked your nose, edge of a table or something?? Funny, I did something similar just the other day, bent over too quickly reaching for something near the floor (in a multi-shelved kitchen "pantry" closet) and almost wacked the bridge of my nose hard on the edge of the lowest shelf. Lucky for me I only did a small knock to my nose - your nose sounds not so lucky - but that was very good you iced.

I guess you did not break anything? Just bashed it good? That's a good sign that you have no black eyes and no nose-bleeds, and/or it was your good first aid and icing that prevented you from black eyes or getting more swelling.

So, we know what part of your anatomy got wacked and is painful and swollen, but what part of you hubbies body did he have to have cut? Has he got some sutures? I am so glad you did not break your nose. No one needs that! I think I prefer you with not a blue nose dear, nor nasal packing. I think you should take a sick day just for sleep and rest and let the nose heal up a little more from it's knock about.   :+ |

 

Hey Harry,

I sure do wish you felt a little better, it must feel like a long haul indeed, but 5 is correct, time IS our friend, but like you I found it hard to be patient waiting to feel better after treatment as well. Some parts of me were very slow to feel better after cure. Thank your lucky stars you have at least succeeded in stopping that virus from doing anymore harm to your liver - that in itself is a HUGE improvement, even if you don't feel it exactly.  : )  C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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my nose is not worse upon waking up

it's banged up a bit , bruised and a little swollen, nothing around the eys so that's a relief.

hubby is doing better today too.... we are just gonna restt today.

tomorrow the dr if i decide i don't want to work with this discomfort and more not being able to sleep well. 

be well friends.

Harry, yes.... we went thru a lot b4 tx, during and after.....time is our friend

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Oh no - 5-1. Just saw this. How is your nose today? And how is your husband? Is he feeling okay?



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Gail Tanner

65

Female

Genotype 2

Fibrosis stage: F1-F2 (minimal fibrosis/scarring)

Diagnosis date: 10/30/18

Treatment started: 2/9/19

HCV medication: Epclusa

Viral load: 3,292,271 Iu/ml 

AST: 25 (normal)

ALT: 26 (normal)

ALP: 81

CAP: 226 <10% fat

ANA: 12.8 

No prior HCV treatment.

5/14/19: NO HCV DETECTED!!



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Hi Harry here hope everyone is going ok,I'm about 4mths poste treatment, still getting exhausted really easy plus joint pain kinda like arthritis ,I really hope this goes away soon ,kinda like expecting some other symptom each week besides nerves being shot sorry to complain, but the so called experts over here said tx would be a breeze I felt better pre treatment,probley just me as soon as I mention anxiety drs think ,he must be after drugs.so over it .

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2hrs later, no headache, no more swelling and bruising. just at the bridge. barely any pain to notice, some but not much.

i can't wait to see what tomorrow will bring, hope all the icing kept the swelling and bruising isolated

it was a rough day overall and i was too tired and trying to do too much.

i look forward to taking sick days off work tho  , everything really does happen for a reason i guess. 

mainly i'm thankful it wasn't worse and that i could get into a good mood soon rather than worry about it too long....  my nose isnt too bad and i thank God for that.

5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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my poor nose

i was bending down to pick up a slipper and whacked myself on the bridge of my nose....below my the eye area and square on the nose.

i'm icing and hoping it doesn't develop worse than this... it's starting to hurt after an our now.

my vision is normal.

i feel so stupid. hubby is asleep after having minor surgery to remove a lymphoma , but i don't go to sleep early so can run over to the emergency ortho in the morning if it gets worse.

i doubt the emergency room will do anything any sooner since their is only a small scratch on it and no nose bleed.

did i say i feel stupid?



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Woohoodioo, Tigeroo! You can handle these numbers and I'm sure the HCV info will be good!

C, I know what our mean.  No cavities is an A+.

Good health is the bottom line, right?

I'm counting blessings, now.  We have conquered a lot.

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Hey,

Well! Not too shabby lab results my friend! Bits and pieces of you are ideal and picture perfect! A collection of impressive numerals. Always reminds me of getting school report cards. Regardless of your specific health statistics/fractions/numerals/ratios, I will always grade you and give you a great big triple AAA+++ rating, just because you merit it! : )  C. 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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Still waiting for all of my labs to return, but I've got most of them back, sans the PCR, which I'm sure will still be undetected, but it's still nice to see it in writing! Most of the results are within normal limits or close wink. My cholesterol could be better, but it's not terrible. Total is 204, LDL is 125, Non HDL is 150. I believe my diet and activity level is to blame for that. I've had all of my parts and pieces ultrasounded and there's no evidence of plaque anywhere, so I think I've just got to lay off the cheese smothered french fries and chicken wings, damn it...

My glucose is 110, but my A1C is 5, so I'm not worried about that either. Not yet anyway, again diet. The good news is, the ALT is 13 and the AST is 14. WOOHOO! They alone tell me that the viral load remains undetected. So, I'm still running like a Timex, thank God! I'm still ticking after all that licking, lol!

My appt with the Doc is on the 9th. I'll fill you in as I hear more. In the meantime, I'm working on my diet and exercise excuse... no



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Hey, Thanks Enavigo for making me laugh (about some things that were NOT making me laugh much prior)! You write well and funny (by funny, I mean ... you write "with good humour"!). ie. your dentists love affair with your teeth, his smart children, and your wildebeast impressions, you get me giggling! I agree with some of your negative sentiments about teeth - they can be mostly be a necessary nuisance, and their troubles and demises obviously quite a consternation/curiosity to me.

Good grief - when they had suggested to me that one crown might cost me around $1500.00!! I was floored at the costs nowadays, I had no idea, I had just never looked into these things before. Unlike many folk who have to work around restrictive deductibles/dental plans, I have none of those problems! - not only do i have NO deductible, I don't have a dental plan either. It's so simple for me, all I need is a lot of money, or little work done.

Aside from you making me giggle and feel better about things, i do learn a lot from the sharing. It's good info, to be able to compare notes on this site (on just about any topic!).

We have a local storekeeper who is like your dentist ... where it takes a community to raise a child apparently, as here we too have paid through the nose for his store products, in the communal effort to clothe and educate his children it seems, found out just lately that we actually put one of them through MD school!

Nice to see you posting here again - or should i have said ... "look what the wind blew in", given your avatar. heehee  C.  ; =

PS - I just picked up 3 different kinds of cheap(er) drug store variety night guards to try, as it was going to be hundreds of dollars for the dentist to make me a new one - i actually had a night guard custom-made for me once (decades ago) wore it for a little while back then, but I am sure i would snap my teeth off now, if I could manage to force it in! Me and my buckies outgrew the old guard fer sure, so that sure was a waste of cash - i thought the night guard was expensive to buy back then! Why is everything getting so much more expensive these days!



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Hey Canuck - hope your teeth hold up! LOL I say that with love. I hate teeth. I have terrible teeth. I'm short two molars on my left side (the last 1 on top and bottom) and down the bottom right last molar now too.  Many years ago my lower left cracked and I needed a root canal but I was on medicaid at the time and they only covered fillings and extractions so out it went. Then apparently gravity is a thing in your mouth and if your upper tooth doesn't have a lower friend your upper will start to fall down - it takes time but its a real thing. My upper molar just started getting lower and lower until I had to get it yanked.  Then about 2 years ago I fractured the lower right last molar (it had a prior crown on it) and the tooth was dead so they pulled it. They wanted to do a $1400 root canal that wasn't covered by my measly $2000/year dental coverage that may or may not work and may or may not result in me getting it pulled anyway. So I had them yank it. Then they gave me the speech about my upper needing a friend and tried to sell me on an implant, blah blah. I told them I've been doing fine for 15 years short two on the left I'd make it work! So now I'm letting my upper right stay at the party until it decides it's ready to take the leap. One of my front lowers also decided to start raising up, like it wanted to stand tall and snaggle tooth like front and center and start a rebellion. One day 2 years ago I was eating a ham sandwich and literally caught that proud son of a gun on my top rabbit tooth and made the little one loose. My dentist decided it was trying to escape because of crowding and that I should see an orthodontist. So in 2016 I took the bait and agreed to let the Orthodontist try and straighten things out and maybe the rebellious one would tighten up again - no luck. I begged the dentist to just pull it out - i swear the dentist is far more emotionally attached to my teeth than I am and refused. So instead he shaved it's head down so it was about as tall as it's neighbors and added a lingual fixed retainer - so my bottom teeth from fang to fang are connected by a wire. Plus side - I can again bite into sandwiches and chicken fingers like a real person and no longer resemble a wildebeest when I eat. So at this point I'm down 3 teeth, have 3 crowns and every single other tooth in my mouth has at least one filling.  After reading that back to myself i feel the need to interject here that I really do brush my teeth, twice per day, and i floss like I'm paid to do it. Life just decided I should be the one to put my dentist's first 3 kids through college. Who am I to argue? I go back to the dentist tomorrow to pick up my new night guard. Did i mention I grind my teeth more ferociously than a beaver constructing his new house?  Best of luck on that front!    #professionaldentalpatient



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Born HepC + in 1983 ... diagnosed @ age 13 ... GT2 ... 12 wks of Sovaldi/Riba from 2/11/14 to 5/5/14  #ribazombie

1/30/14 - Starting VL 1,922,967 * 3/11/14 - UND @ 4 wks * 7/29/14 - SVR12 * 11/6/14 - SVR24 * May 2015 - SVR52 * MAY 2016 - STILL UND * FEB 2018 - STILL UND

 



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tig ,that 80 degrees looks real nice

tanner, i wouldn't be skiing now anymore for any reason , and i'm not even on treatment right now -just got old bones n' skin. i'm glad you are finding a way to embrace the moments in time



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO

Tig


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What’s all this talk about cold weather! We have set some records over the last few weeks for high temperatures. I don’t think my old(ish) bones could take that cold weather again. When I lived in Washington State, I used to love hitting the slopes. I don’t think I would get out of the ski lodge now, without freezing solid, as I put on the skis! Brrrrr!

Cheddo, there’s nothing prettier than a snowy Mt. Rainier from Seattle on a sunny day!

 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Tanner,  you always find the best in things.  

I'm glad your treatment is going smoothly.  You'll be fine without skiing.  So many choices, and I'm sure your family is celebrating your many successes as well.  

Nobody can say you don't give it your best.

We are having cold, sunny days in the Pacific Northwest.  The mountains across the water look so much bigger when they are covered with snow. I see better when I know spring is on the way.  



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Hahaha, Tig.  Do you mean frozen in place like Jack Nicholson in the Shining?  Yes its very very cold but very very beautiful in the mountains.  I am feeling pretty well. Tired because of the time change still and the altitude. And I am being very good by drinking water all day. As we have all discussed, I can notice the difference if I havent drank enough. 

5-1,  I used to ski a lot when I was younger: high school and college. But Im having a very rough time over here. I had not even tried since the AVM rupture;  so Im not doing very well. Its been a real discouragement for me and my family but Im still really enjoying being here with them and in all this beauty.   









-- Edited by tanner on Tuesday 5th of March 2019 09:44:02 AM

__________________

Gail Tanner

65

Female

Genotype 2

Fibrosis stage: F1-F2 (minimal fibrosis/scarring)

Diagnosis date: 10/30/18

Treatment started: 2/9/19

HCV medication: Epclusa

Viral load: 3,292,271 Iu/ml 

AST: 25 (normal)

ALT: 26 (normal)

ALP: 81

CAP: 226 <10% fat

ANA: 12.8 

No prior HCV treatment.

5/14/19: NO HCV DETECTED!!



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C, ya, weird the valium doesn't work when i'm sick.... so i don't sleep good on work nites. the thing is, i don't want to take more than 3mg tops, so if 2 deosn't touch me i give up and don't use it again until i'm somewhat better. it was about 12 days this time around. 

i figured i was sooooooooo tired that i would chance it last nite. 2mg valium and 100mg iubuprohen and i fell asleep some how.... it's always fun to wake up and know i was alseep w00t:

when i'm having trouble sleeping, i love to wake up from a dream and think "yay , i must have been asleep if i was dreaming" :

i'll start the antibios tues or wed depending on my progress, i'll know by then if my immune system has given up on it.

 

obs, me too on the fragrance, gotta hold my breath as i reach for free and clear items in all products 

and i feel the same about mexican dental, it's a real gamble

 

and yep, dec,jan,feb all seem to go up my nose :sad:cry

 

 

 



-- Edited by 5-1-18 on Tuesday 5th of March 2019 05:43:25 AM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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My sister had Mexican dental..... you get what you pay for...she got to pay twiceno

 

My sweetie and I seem to have avoided/been spared from a nasty cold thingy going around locally...people seem to be sick for 2-3 weeks with a cold. I really do not want that. 

5, my sinus issues get triggered from chemicals..... dryer sheets are one of the worst and most common things I am exposed to in public. I wish those things and scented laundry soap didnt exist.



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
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3 years...post tx... successful dragon slayer 



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5,

Nice for you to get a solid 8 hr sleep!

Funny that, how the valium does not seem to be working as good as it used to for you.

I hope the antibiotics will work good and quick.

I hope these irksome things start to resolve good when you are having your time off. Car included. 

I am bumping into quite a few people with sinus and throat and coldy things lately - I am so grateful me and my partner managed to fight off whatever was trying to get us. 

Winter, blech - it can be so pretty (for a day or two), and it makes skiers happy, but with it comes colds and other wintery stuff!, no wonder there are so many snowbirds! ; ) C.

PS - BTW, I was looking up Mexican dentistry - OMG - an all-inclusive medical (dental) vacation can be had (at about 1/2 or 1/3 the cost of some of these Canadian dental procedure prices)!



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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i slept a good solid 8+ hours.... sweet! still going on the antibios [zpak] to knock this out.. Some day this too shall be less with m liver improving every day.... i'm sure of it.

we have a few ppl at work that suffer this sinusitis crapoola. but i am able to work tonite so i like that , it was up to me if i wanted to and since i'll be off for a week after that i decided to.

5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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I feel GREAT! 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Related image



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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hi tanner, good to hear from you.

this sinusitis has been a normal thing for me over the years, so i manage it well enough to still live well enough.

yea, there you are in the frozen north ,yikes. i used to ski almost everyday when i was younger, then even went to work after a day of skiing, or hiking a few hrs a day during the not ski season.

oh how things have changed

have fun, stay warm, love your meds



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO

Tig


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Hey Gail,

I feared, after watching the weather reports, that you may have fallen down and we’re frozen in place! It has been so cold up in that part of the country. I hope you have found a nice mountain chalet, with a hot tub and big wood stove! Brrrrrr!

How are you feeling? We need an update when the squirrels running that 3G wheel can find a signal! Have some good, relaxed fun and keep drinking that water!



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Im reading through all these posts and everyone is sick. Sinusitis, bronchitis, etc. I really hope you all feel better soon. Sorry I havent been able to keep up with everyone for the last couple of days. Be well, get rest, and drink water.

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Gail Tanner

65

Female

Genotype 2

Fibrosis stage: F1-F2 (minimal fibrosis/scarring)

Diagnosis date: 10/30/18

Treatment started: 2/9/19

HCV medication: Epclusa

Viral load: 3,292,271 Iu/ml 

AST: 25 (normal)

ALT: 26 (normal)

ALP: 81

CAP: 226 <10% fat

ANA: 12.8 

No prior HCV treatment.

5/14/19: NO HCV DETECTED!!



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Oh, 5-1, just now saw your post. Sounds like youve been having car trouble but worse that youre still not feeling well. Having trouble where we are trying to get wireless here in the Grand Tetons so everything is 3G right now; Ill check back to see how youre doing. I hope you feel better soon.

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Gail Tanner

65

Female

Genotype 2

Fibrosis stage: F1-F2 (minimal fibrosis/scarring)

Diagnosis date: 10/30/18

Treatment started: 2/9/19

HCV medication: Epclusa

Viral load: 3,292,271 Iu/ml 

AST: 25 (normal)

ALT: 26 (normal)

ALP: 81

CAP: 226 <10% fat

ANA: 12.8 

No prior HCV treatment.

5/14/19: NO HCV DETECTED!!



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good news for me.

we didn't need the radiator so he paid us for it and now i have a new free radiator. 

it was the water pump so had to buy that.. i have a heater and defrosters so i'm happy. we are still on leak check to see if we need a thermostat.  for some reason the mechanic thinks it's related... if its still leaking he'll be back on sunday. 

guess i'll google that and see what he's talking about.

i'm using decongestant when i wake up and ibuprophen before bed to manage the sinusitis. i made it thru the work nite well enough.

and... valium doesn't work on me anymore for awhile now. it perks me up rather than relaxes me.haha

it must be from belonging to club zero, and that's fine with me; i seem to be sleeping enough.

5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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i still have this sinus/allergy/ear thing. will go to doctor next week if it doesn't clear up. We have cold windy weather so that doesn't help. but i'm not as sick as i was last sat/sun.

and... i'm stll waiting for my car to be repaired right. was told i needed a new radiator and there's still a leak, plus the old radiator was filled with water and there is no leak confusecryblankstareblankstareblankstareevileye.

the mobile mechanic will be back friday morning and we have plans to ask for all money back if he cant fix it.....and rides to and from the car repair shop.

but at least he has to come to us and not us go to him



-- Edited by 5-1-18 on Thursday 28th of February 2019 08:55:38 PM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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awe cheddy, sorry to hear you suffer with bouts of bronchitis and upper respiratory drama too cry

i am glad you are feeling well these days



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Harry, glad its cooling down for you, Im so not a fan of heat..so I really felt for you with your extremely hot summer.

I have had those irritating restless legs...my sweetie gives me an acupressure foot/calf massage when my legs get too ...scrunchy...

If it continues perhaps ask your Dr to send you to a neurologist for the tingling in your fingers and toes. I think the DAAs are tough on our nervous system.

Fatigue...it does take a while. I noticed it randomly....all of a sudden I realized I had done more or walked further and wasnt exhausted. As Cheddy suggested..keep up with the water.

 



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3 years...post tx... successful dragon slayer 



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Canuck,  I'm glad the tooth fairy got you patched up.  That was stressful, which is something you don't need more of.  Glad to hear you are feeling better.

 

5,  So good to hear you are getting better too.  I had bronchitis twice last year, on top of asthma so I know how awful is is to have your breathing challenged. Pretty basic need.  It's a very good sign that you got out but I hope you can get all the rest you need. 

 

Iris,  What about your recent bout of blood? What did you doctor say about that?

 

I hope everyone is on the mend.  I'm sure ready for springtime.

 

 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Harry,

I'm so glad it's cooling down there.  That's got to be a big relief.

Sorry to hear about your hands and feet but I am glad you are staying in touch with your doctor.  Of course everybody is different in recovery and so are the treatments.  It took a while for me to bounce back.  At 3 months I had a good turn and got better quickly.  Your body has been through a lot and there is a recovery period from the treatment alone.  Remember, too, that your whole body is readjusting and your immune system is rebooting.  

Fatigue is tough, isn't it?  It's hard to accept doing nothing, but it's like the tide; it goes out and it comes in. Give it time and take it easy on yourself.  It will change.  And stay on top of that pinched nerve.

Keep drinking plenty of water! Keep moving as much as you can.  And please keep us posted.

Cheddy



-- Edited by Cheddy on Wednesday 27th of February 2019 03:08:58 AM

__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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hi harry, good to hear from you.

yep , our bods put up with that virus for quite awhile and probably has a lot of repairs to make.

it took about 6 months eot for me to get some vitality back, but i still need a lot of rest.....but i love tv so that's easy for me. i work 2 or 3 days right now but will be going back to working 3 or sometimes 4 days mid march. still i can rest a lot at work and of course at home.

rest ,water and wait , so true tho, the docs are often clueless about what we go thru.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Hi all Harry here,,hope everyone going ok,I'm now 3 myths poste treatment ,end of summer over here which is a relief, heats been extreme this year , looking forward to cooler weather ,I'm still virus free ,only thing that bothers me is the numb fingers (tingly)and a couple of toes, my Dr just says "wait an see what happens"said it could be a few different things from age related pinched nerve in neck , diabetes side effect from treatment, ,who knows ,plus I get so tired from doing nothing ,does anyone know anything or experience similar feelings or have any idea how long this lasts or is it just from d.a.a. in epclusa ,and these symptoms are from having the virus ? I realize it's a small price to pay for getting rid of the virus but I really thought I'd be starting to have bit more energy, drs over here don't really know much about treatment or what happens.,one more thing anybody ever get the restless leg or body jerks when sitting around or relaxing ? Probably just me,,stay well an safe everyone.

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i actually got out of the house for a cpl hours today canuck.

i took a bit of decongestant and it is working good.

the worse day was sat; the not sleeping and GI probs made it all worse. ; got the gi back to normal again so i'm happy about that.

that happened like that a month ago too. 

but yea, coming out of the worst of it and getting a few things done now.

will have the ears checked next month, maybe being back on the decon's will help. i only hear the ears when i sit still so that is good.

i never have hot coffee, more like luke warm, my skin can't take hot foods or beverages as well as certain foods. but there are many things i can eat that i enjoy

i'm still taking it easy today after doing errands. hubs made us steak and potatoes and that was nice.

the car is still leaking antifreeze so the mobile car repair guy will come over and survey the damage. if he can't fix it then it's off to the repair place. wish me luck that the old beast want's to live a longer life.

5

yes, laughter is the best medicine, i'm glad you enjoyed my words



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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So, how goes the sinus day today 5?

My, as bad as you must be feeling, you can still make me laugh what with your sad description of your poor wrinkly deflated balloon vaselined head/face! heehee I know very well this is NOT a fun or funny state for you to be going through - but ... it's just the way you describe things, with humour and pokin fun at yourself that gets me giggling. I bet you do not look bad, nor scare yourself OR anyone else either. We can be feeling just awful and sometimes people around us can never know by looking at us. That's a very good trick, the hot cuppa coffee mug held to between your eyes/forehead - I never thought of that one before - would work quite well! Doubly well actually, a wee heat treatment and fluid intake all at the same go! With your face slathered in vaseline tho, be careful with that hot cuppa on your forehead, don't want 1st degree burns on top of sinus trouble!

Hope you got some sleep or good rest, will soon turn the corner on feeling better. C.   



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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canuck, i  did just that. i called her and she said some bug was going around. ahhhhh , and i still have my scheduled days off. she understands sick ppl , i am def blessed to have her as a boss.

also, i had been home for 4 days not feeling very well then of course the work air made it worse. and not being able to sleep becos of it is the worse, that adds more symptoms.

yes, drinking lots of water. decongestant every so often. no more antihistamine, they make me feel awful . irrigate sinus with distilled and nasalcrom mix with the pump. i never know when one of these things will make it worse or better. , the decon can dry it out too much...reminds me to go get something up my nose now.

ibuprophen right now to ease the pain and inflamation in the sinus. also i put the warm coffee cup between my eyes, or use cold packs. use polysporin or petroleum jelly up into the nose. and cover my face with petro jelly too too keep it from dehydrating. i forgot that and at one point i looked like a deflated balloon. hahaha.. petro jel to the rescue so i could at least not scare myself.

i don't work again till friday so that is so nice. then work 3 days and get vacation time..yay.

yes, i have great expectation that one day things will simply not show up again, thanks for the reminder about your sad sores you had to endurecry

hope you are enjoying your new happy teeth.

one thing i notice is i do have a bit of tinnitis in my ears since eot. this used to only happen during sinus but it seems to mainly be there. i can unplug it for awhile with putting my finger over the the little bit of cartlidge at the opening and make a little suction cup out of it.. haha. it's not as bad then

got to get an appt with a ent doc this spring for the ear noise.



-- Edited by 5-1-18 on Sunday 24th of February 2019 06:11:29 AM



-- Edited by 5-1-18 on Sunday 24th of February 2019 06:13:34 AM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Oh darn-it! Your sinuses must be one of your worst weak spots at the best of times. If something is going to go awry, your sinuses get picked on i think. Really too bad, it is disappointing and discouraging when these maladies occur/re-appear. But, it will clear up, because you know what to do, how to treat yourself to minimize it. I recall my first while after cure I thought the weird horrid little abscesses that occurred on and off again on my forehead, face and inside my ears was never going to end. I felt so unlucky. But it finally did become quiet again, something got back into control. Nothing really helps in the interim, when you are in the midst of being plagued by something - but you have my heartfelt sympathy, and I wish I had some good treatment advice, but you already know waaay more than i ever will about how to deal with wayward sinuses to make them behave.

I wonder if your workplace air, winter air (or any kind of air you are subjected to) sets you up for more frequent sinus troubles?

I am convinced your work must understand completely, they know you just finished a heavy duty treatment (and all the while you dutifully worked, devoted-like, for them all throughout your treatment!) - they of course should and likely do allow you time off as required - you must be one of their best gems (I am sure) - they should treasure you appropriately.

Me and my buddy beat off a cold (we think it was a cold trying to gang up on us) just by gargling a LOT with hot salt water for a few days - sure seemed to work - neither of us succumbed fully to the cold, and what we did experience was very, very mild - I am always amazed just how how much plain ole water can cure in us, all forms of water - whether it be what we drink, an IV, applications/compresses (hot or cold), baths/soaks, ice, salt water, etc. etc, 

I wonder what you do for your sinuses at home, I think you said (prior) you flush your sinuses, do you also have humidifiers/steamers? 

Just give up on any idea of dwelling in guilt about not working - YOU KNOW dang well you HAVE to stay home and get better, and not just one night of getting more sleep either! - STAY OFF work for darn sake and rest better. Phone your boss and just tell him/her you HAVE to book off until further notice - that you will call again when you think you are better - and then just do what you need to do to get better - and DO NOT go back to work too early out of devotion and duty. 

You NEED more time off and rest and self-attention when you have these things awry with you.

At what stage(s) do you or will you decide to do any decongestants or allergy pills or antibiotics?

I asked the good sleep fairy to get over to your house tonight. C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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well, here i am again with the sinus etc. ; i've felt tired all week and then it hit me. not much i can do but ride it out. not being able to sleep is the worse becos then i'm sick dizzy and shaky. 

had to call in again... hope they bear with me

it can take 6months to a year, more for some ppl to actually feel better more consistently after tx.; so i always remind my bosses that this could be that too.



-- Edited by 5-1-18 on Saturday 23rd of February 2019 07:23:31 PM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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So glad your tooth ordeal is done and dusted. I suggest you eat something outrageouslay yummy to celebrate...peacan pie perhaps biggrin (I was going to recommend cinnamon buns but thought you might need crunchy to use them chompers



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yay canuck ,

it sounds like a great explanation you got; and some happy teeth too. enjoy your happy teeth 

how long of a journey is it to get to your dentist?

i always take other ppl into the dentist with me.. all in my head of course cos who can make that journey? but it does make it easier on me. i'm sure you will be with me on my next visit in may.

i guess this is the price we pay for being cured and now living longer

the same with my complexion, my poor little thin skinned red face is only here cos i lived long enough to get into my late 60's.  i thank my lucky stars i found a makeup foundation that helps how i look and does not make it worse. i don't like the tomato look when i'm out in public

still if they can cure HCV they can cure these other things that come along. or maybe as my liver gets better so will my skin. i still drink a lot of water.

it seems that both hubs and i have a little more anxiety than before tx. maybe cos we know we will live longer and have more to take care of hence... blankstareblankstarebiggrin



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Hey Hi all!

I am feeling MUCH better! 

I hate being in the "state of flux" with a pressing dental issue hangin there waiting to be resolved.

I still can't believe my bad fortune with fracturing 2 of my teeth, one at a time, in such short order.

Ya, Iris, it WAS just like your nightmare, spitting out a sharp crunchy chunk of tooth from that first back molar i broke, like a fractured piece of glass in your mouth! The second one i didn't even know it had split, I couldn't really recall a crunch or discomfort to speak of, and no shards of it to spit out, stayed intact.

I thought i did OK and was so relieved when I got through getting the first one fixed, then only to turn around and have another go! Lucky me, for the first one, they kindly fixed it the very next day.

I worked myself up into quite a little self-pity/worry frenzy waiting to get tooth number 2 fixed! Knew about the second one cracking last Weds (13th), but earliest  could get it fixed was today (21st).

But all is well now, I think many people arrive at the dentist's office with an assortment of negatives around them, but most leave relieved.

Thnaks everybody for babysitting me, it helped. i considered ALL the advice/info I was offered, that was good and appreciated. So I did end up having another long chat with staff (2 of them no less), this morning before I got in the chair, and that helped with clarifying things, and in mulling everything over, by the time the dentist got to me, we went just about full circle back to the original plan again, going with the cost-saving giant filling and silver flouride goo in the small cavity. I can (and hm, might have to some day) always do a crown and have the other small cavity filled.

She said as she got into exposing the tooth, getting down to the bottom of it being all drilled/ground out, that it was not any more surprising/or not anything worse than what  she had thought there was there, that she thinks the big filling will hold the crack (as much as she can predict).

Among many other things I asked before and during (when I could mouth a question) I asked if she has to put something in the drilled out area to "sterilize it" before she fills it up again with new filling. At first, she did not seem to "git" my question, thought I was asking about when they apply acid inside the tooth (acid etching) that makes the drilled area bond well to the filling material, but then she added that "nothing can survive the acid application", so I guess that answered my ques/worry about flora/bacteria being inside the hole as they are covering it up again.

Dentistry, I will never figure all their stuff out! But I guess with this big filling I just had, should it end up that I need a crown there in future that some of this existing filling material actually becomes part of the "core" needed for the crown? She said if it turns out that i do need a crown there, then in that case she would be discounting the "core" cost a small amount? - something like $80, considering I already have this filling? Something like that anyway. 

My teeth, back in commision for the moment.biggrin Yay.  C.

 

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

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canuck, are you numb from one end of your mouth to the other? rest and recover



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Canuck,

As far as I know using the silver nitrate (or silver diamine fluoride) does not preclude placing a bonded composite later on, of course going ahead and doing the gumline plastic filling is the better option if affordable. Same as using a big plastic filling acts as a solid base for a crown. The concern is the large plastic filling does not provide fracture protection for the tooth like a crown does. Your dentist could do a quick crown prep and place a hard plastic temporary crown in about an hour, you would have to inquire what the cost would be.

You could probably get about 6-12 months use out of the temporary crown, time enough to find out if the tooth needs a root canal also. Like Tig said cementing the temporary crown with permanent cement will prevent it from coming off but it will wear down eventually. My dentist told me he is using a much harder, longer wearing plastic for temporary crowns now. Hope this helps. I don't know about Canada but in the US most dentists no longer use silver amalgam fillings. In fact the EPA requires dental offices to place a separator on the office waste line to keep any silver amalgam drilled out from polluting water with mercury.



-- Edited by lamassu on Thursday 21st of February 2019 05:23:16 PM

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Male, 66, Dx 1990, GT 2a/2c. Pre-tx VL 11,500,000, ALT 10, AST 18, F3, 12.4 kPa. Rx: 12 weeks Epclusa, SOT 3/8/18, EOT 5/30/18. Week 2 VL 50, ALT 12, AST 21. Week 10 VL not detected, ALT 12, AST 18. EOT + 12 weeks: VL not detected, ALT 11, AST 19. EOT + 24 weeks VL not detected, ALT 9, AST 24.

Tig


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The temporary crown seems to be of better quality than some I’ve seen. They secured it using the regular cement, versus the short term glue. He did that hoping it would stay in place until we want it removed. So far so good, it’ll be a year in July. I just went in last week for my 6 month cleaning and it’s still holding strong. The repair works pretty good, too. I’ve got so many problems with my teeth, I feel like I’m just putting out fires. The cost makes it almost impossible to do right. :(

The cost to fix the teeth and place the temp, was around $600. He said as long as it works and I have no difficulty, it can stay until I decide to finish it. Of course that means a lot more money, so I’m waiting for the money fairy to dump on me... 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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