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To Our Visiting Non Members
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Greetings, Let us start by saying you are more than welcome here. Welcome to read anything that may interest you. Some of you perhaps just found out you were infected and you are scouring the Internet for information. A bit in shock perhaps and not ready to jump into a discussion. That is quite understa...
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JimmyK
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1125
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Coffee Anyone?
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This is yet just another repeat confirmation that coffee may be good for our livers, BUT, (as noted in the many other articles/cpnversations we have had, scattered throughout this site, about coffee possibly being good for you) ... it is supposed to be ground "fresh brewed"/ dripped/or percolated...
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Canuck
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16
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2070
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cirrhosis or no?
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When I had my fibroscan the reading was 14 k/pa and I was graded in the 3-4 range. The doc evaluating the scan said I don't have cirrhosis but do have advanced fibrosis. My treatment nurse has several times mentioned things relating to my cirrhosis. I don't know if it even matters or not but when does fibr...
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Barnacle
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20
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2712
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What does fatty infiltration in the hepatic parenchyma adjacent to falciform ligament mean
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This information in subject line was posted in my chart after CT liver scan and ask what it means and will Harvoni treatment correct it?
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polosilver
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1
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1031
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Cirrhosis in HepC - ( more, on grading) "testing"
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Published in Gastroenterology - Journal Scan / Research · August 21, 2017 A Combined Blood Marker and Elastography Test Found to Be More Accurate Than Other Tests for Fibrosis TAKE-HOME MESSAGE· Because of a recent recommendation to combine a blood test and liver stiffness measuremen...
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Canuck
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4
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1221
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Kidneys, Renal Function
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My kidney function has been "all over the place" at least in terms of Creatinine and Potassium for a couple of years, several times my lab results have strayed outside of normal ranges. There seems to be some relationship to various types of kidney malfunction and disease, and of course infection via...
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LamontCranston
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6
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1110
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Viekira Pak XR and Ribavirin vs Epclusa
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I may have posted this question in the wrong spot, so will post it here as well. Please forgive me if I am not following the correct protocol! Still learning the ins and outs of this forum. Can someone please explain the necessity of the Viekira Pak and Ribavirin over another medication? My doctor r...
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Lindsmatt52
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5
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1342
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Help for cryoglobulinemia symptoms?
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Hopefully, I'm posting this in the right section. In cold weather (half the time where I live), I have symptoms my primary care physician calls vasculitis. Purpura starting in the feet and working up the legs (has been everywhere except my head, face, and hands at one time or another), fluid retentio...
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SwimmerChic
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4
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1462
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Forum Fund Raising - Contributions
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Forum Fund Raising This post was getting quickly buried! I had to dig to find it again, even though it is recent! I'm glad you had posted it Tig. Man, it's been a LONG time! that I can remember any fundraising being done - what, does this site just live on air? (hot air maybe, hee hee). I think Linux was the la...
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Canuck
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723
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Cochrane report
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Hi People, Has anyone else read the new reports on the Cochrane report? I'm not sure what to think: http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD012143.pub2/full
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Loopy Lisa
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8
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1091
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Zepatier pros and cons
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Hi there folks, I saw the Hepatologust about a month ago and since my insurance wont approve Harvoni he suggested this Zepatier which I had not heard of. What are the risks and has anyone tried this and been successful? How did you do on it? Thanks, Iris
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Iris Dragonfly
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697
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2 Weeks to go, then 3 months of Epclusa
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Posting from Yellowstone MT that I am enjoying the last few days before I start treatment. I have to admit I am anxious to just get started and on the road to a cure. Ever since my DX I have been noticing the little, but significant signs that my body is under attack, the bruising under my skin, dull ache in u...
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LamontCranston
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8
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1169
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Should I tell my dentist?
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I have a checkup next week at the dentist. Does he need to know about my diagnosis, or is it not any of his business? I remember there was a dentist who transmitted HIV to a lot of his patients, but they weren't practicing good hygiene and sterilization in the office, as far as I recall anyway. I'd hate for h...
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LamontCranston
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20
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1423
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URGENT WARNING to those seeking Treatment for Hep C
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Greetings, When I say I know of what I speak, I know of what I speak. I would say "trust me" but the fact is, you don't know me. To PROVE that you don't know me I ask you to take pause... ... think to yourself and ask the question; "Do I know this guy?". In fact; "Do I know anyone living in Texas?" OH and if so, "Do I...
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JimmyK
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13
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1593
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World Hepatitis Day - July 28th 2017 - The Hepatitis C Trust (UK)
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The Hepatitis C Trust will be celebrating World Hepatitis Day on July 28th 2017, with a free conference for everyone affected by or interested in hepatitis C. The programme for the day and details for registering your place are available here http://www.hepctrust.org.uk/blog/jun-2017/hep...
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Sam1962
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1
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614
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Looks like I have bigger problems than Hep C
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Dr. told me today. Cancer, right lobe. Rest of the liver looks actually very good and my bloodwork looks good. cholangiocarcinoma as opposed to hepatocellular. Talked to me about interventional radiology/targeted radiation or targeted chemo.
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kozanne
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6
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690
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RIP Gregg
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Well theres not much to say. Complications due to hep c claim another. RIP Gregg Allman.
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Scruffy
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1
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650
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Article I liked (Boston Meeting) - on Access to Treatment - USA
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Call to Action: Physicians Needed to Alleviate HCV Treatment RestrictionsHCV Next, May/June Robert Greenwald, JDIn conducting our national review of Medicaid restrictions for hepatitis C virus treatments, it became obvious that people living with HCV and the broader HCV advocacy community n...
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Canuck
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0
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561
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Hello Rick here with a question !!!!
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I just got a call from the doctor saying that the Insurance will not pay for Harvoni but will pay for Zepatiar any thoughts ???????
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Rick
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11
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819
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The waiting is the hardest part
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I arranged to start my Epclusa treatment in July, to accommodate some travel we had planned for May and June. My HMO wants to keep me on a short leash during treatment so running off to Europe, then Idaho-Wyoming-Montana to scare trout with my Epclusa in hand was not going to happen. The Europe trip was F...
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LamontCranston
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2
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559
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Post treatment effects?
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I just got approved for treatment last week with Epclusa. I received the first months supply yesterday and I'm planning on taking my first dose tomorrow. I remembered reading some stores about people having some post treatment effects so I started looking into it a bit more and I am seeing quite a few p...
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CodeNinja
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3
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656
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Snubbed!
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Is anyone else dealing with this kind of thing? I've told very few people that I have Hep C: my husband, my children, my sister, and my ex-husband's wife (perhaps surprisingly, we are friends and I think she is a wonderful person). More recently, I've sent private messages in FaceBook to 4 people who ar...
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Juliet17
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7
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1299
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Vietnam Vet added to the Wall
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This is an article Cheddy brought to my attention. I recommend it. It tells the story of a Soldier that acquired HCV as a result of battlefield injuries while serving in Vietnam. RIP Warrior.... Vietnam Memorial
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Tig
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5
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915
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IBS-D and cirrhosis
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Not a fun thing to experience or share, but I was wondering if any others out there have similar experiences? My bowels have always been on the loose side, but manageable with psyllium to slow things down. It has been just a nuisance going on for decades, but cleared up to almost constipation for a coupl...
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VetwithC
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17
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2016
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Well, got my news from the doctor
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Had the Fibroscan and an ultrasound on Tuesday. Doc called just a bit ago. Said the Fibroscan said I was scarred, the ultrasound said the liver was smooth. Ultrasound found a 2cm mass on the right lobe, so now I'm going to be scheduled for a CT next week. Doc said he did not know what the mass is and cou...
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kozanne
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4
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510
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I'm looking to learn more about the biggest pain point individuals with Hep C face when it comes to overall management a
(closed)
(Preview)
I am currently in the process of developing a product to help individuals with Hepatitis C manage their condition on a day to day basis and communicate with caregivers and care professionals in their circle. I have currently partnered with an NHS Hospital as well as an HCV non-profit to pilot a produc...
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digit
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430
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I would love your help on my student directed study!
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Hi! I know this may seem obstructive, but I am doing a student directed study on Hepatitis C. I live in a small town so it's hard to gather a lot of personal stories and information on Hepatitis C. If any of you, would be willing to provide your email or chat on here to answer some of my questions, it would be r...
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Girlwithastudy
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0
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467
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Tom and Laura
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Hi all. Just stopping in to say hello to all and pray everyone is doing well. Tom is still hep c free thanks to harvoni. We continue our trips to Mt Sinai every three months for his liver MRIs. His last two showed to new spots but his surgeon doesn't want to do anything to them until he knows for sure its cance...
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tomyboy
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2
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476
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The U.S. Government Should Buy Gilead For $156 Billion To Save Money On Hepatitis C
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The U.S. government could cure most Americans suffering from hepatitis C infections if it simply bought drug maker Gilead Sciences on the stock market rather than purchasing its products in the drug market. http://www.forbes.com/sites/sciencebiz/2017/01/17/the-u-s-government-should-...
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Jaded
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674
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2016 Your year in review readers digest form.
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I thought it might be a good idea to open a thread for the members to give a summary of 2016 and what happened during this past year now that we approach the end of it. Since I started this, I will go first. Feb 9th, start of 12 weeks on Harvoni with starting numbers of ALT 187, AST 114, VL 2.3 M May 2nd, End of...
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Shadowfax
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1556
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