Hep C Discussion Forum

Iris Dragonfly · Iris Dragonfly

Hi guys, hope you are are doing well, been so busy busy. Then my cousin who was like my big brother died of mesothelioma in 4 months, still grieving that pretty hard. I've been so short of breath but figured I was just working too hard, then after my cousin died so quickly I steped up some doctor visits , go...

marjim48 · marjim48

Hi-- My brother was just given diagnosis "hepatitis C without hepatic coma". I know what hepatitis C is but what does without hepatic coma mean? My brother lives by himself in another city. Nobody to go with him to doc. They just gave him diagnosis and told him he has to go on meds. I don't think they expl...

belladaisy2018 · belladaisy2018

Talk to your specialist about it as there are meds out there to help with this side effect. treatment is tough and with little ones at home dealing with them, situations/stresses can certainly be heightened. Thanks Bella

LamontCranston · LamontCranston

Just checking in with 2nd good lab result at 2 months: ----------- Greetings-On September 18, 2017 there was no Hepatitis C virus detected. We will check again for the virus on October 16, 2017.NameOfNP NPGastroenterology ------------- One little hitch, I developed a ocular herpes infection in m...

Tig · Tig

People with hepatitis C virus (HCV) very rarely experience a relapse of the virus following acheiving a sustained virologic response 12 weeks after completing treatment (SVR12, considered a cure), Reuters Health reports. However, certain populations of those treated for the virus are at high r...

Canuck · Canuck

Need for better screening and capture (and treatment) of boomers who are HCV positive.With just some simple measures they have improved screening, perhaps as much as from 28% to 72% (in some circumstances). Without testing, without capture, there is no cure, and certainly no eradication of the ep...

Finleartor · Finleartor

hello need help with tire advices and Tire size specification for my car Chevrolet Impala 2012??

LamontCranston · LamontCranston

Pictured, the Final Dose. All things considered, it was a piece of cake. I took my pill at 9:00 PM every day for the 12 weeks, at 4 weeks I had a "Virus Not Detected" lab result, my ALT , AST results were in the 16-17 at 4 weeks and at 8 weeks. The results for today's labs will hopefully be as good. Most wonderfu...

RLS · RLS

Newbie here and catching up. In week 14 of 16 of Mavyret treatment. This is my third attempt at eradication. So far so good as my tests show the virus is undetected. Now it's a waiting game for SVR. Had nasty headaches around week 8 that lasted 2 weeks. Luckily they went away. I also now have high blood pres...

mallani · mallani

Hi guys, The Australian HepC Forum has just closed, due to lack of new members. Over here, all the new antivirals are available to all on our PBS system. ~$50 for most people, $12 for the pensioners and free to others. It was a very busy Forum for the last 10 years, but HepC is now regarded as ' .....a minor,...

Josh Haynie · Josh Haynie

Mavyret

Greg D · Greg D

Hi Everyone, A friend in Alberta Canada has hep c, stage 2 fibrosis, and has been told by her doctor that AAHB (Alberta Adult Health Benefits) will not cover treatment for her. The doctor added that she would have to pay the 60k out of pocket, which she cannot afford. She is not on social assistance (welf...

Canuck · Canuck

Dr. Feld's comments: about re-treatment, with Mavyret (glec/pib) versus Vosevi (sof/vel/vox) - similar to info found about re-treatment in the larger link (2017 Resource - Treatment Options ) and also covered in (2017 Resource - AASLD HCV Treatment Guidelines) - P. 38 of 247 - click on "re-treat...

Canuck · Canuck

From Clinical Care Options - Clinical Thoughts TMFrom Clinical Care Options TM - Clinical Thoughts How New Data From the 2017 DC Hepatology Meeting Shed Light on the Clinical Benefits of HCV DAAsJordan J. Feld, MD, MPH - 11/14/2017 More from this authorFor the first time in several years, we di...

Canuck · Canuck

Here is a series of articles about drug costs, HCV or otherwise - low cost deals, generics, name brands, availabilty and the powers that be - what's wrong with this picture?HCV treatments valued under $100 per patientHelio - December 12, 2016Researchers estimated that a generic direct-acting an...

Canuck · Canuck

Lasker Award winner Michael Sofia created a pill to fight an incurable virus. Now he is setting his sights on another · By Dina Fine Maron on September 13, 2016 - Scientific America Inventor of Hepatitis C Wins a Major Prize -- and Turns to the Next Battle· · · ...

Tig · Tig

California health officials have announced an emergency situation in San Diego, CA. Widespread Hepatitis A outbreaks have been announced in the area. This is particularly dangerous for anyone that may be infected with Hepatitis C or B. Be certain to avoid exposure whenever possible and assure yo...

casher · casher

I have had Hep C for at least 8 years and known about it for about 4. I have yearly blood work done and every year everything comes back normal except for the fact that I have hep c. My VL is always relatively low (last test put it at 245,000). Liver function is and always has been normal and everything is with...

Tig · Tig

Universal HCV screening is a pathway to eradication Infectious Disease News, August 2017Michael S Saag, MDWhen we think about the possibility of universal screening, we can dance around, trying to dig out baby boomers or injection drug users, we can look at different risk factors or select popu...

To Our Visiting Non Members · JimmyK

Greetings, Let us start by saying you are more than welcome here. Welcome to read anything that may interest you. Some of you perhaps just found out you were infected and you are scouring the Internet for information. A bit in shock perhaps and not ready to jump into a discussion. That is quite understa...

Canuck · Canuck

This is yet just another repeat confirmation that coffee may be good for our livers, BUT, (as noted in the many other articles/cpnversations we have had, scattered throughout this site, about coffee possibly being good for you) ... it is supposed to be ground "fresh brewed"/ dripped/or percolated...

Barnacle · Barnacle

When I had my fibroscan the reading was 14 k/pa and I was graded in the 3-4 range. The doc evaluating the scan said I don't have cirrhosis but do have advanced fibrosis. My treatment nurse has several times mentioned things relating to my cirrhosis. I don't know if it even matters or not but when does fibr...

polosilver · polosilver

This information in subject line was posted in my chart after CT liver scan and ask what it means and will Harvoni treatment correct it?

Canuck · Canuck

Published in Gastroenterology - Journal Scan / Research · August 21, 2017 A Combined Blood Marker and Elastography Test Found to Be More Accurate Than Other Tests for Fibrosis TAKE-HOME MESSAGE· Because of a recent recommendation to combine a blood test and liver stiffness measuremen...

LamontCranston · LamontCranston

My kidney function has been "all over the place" at least in terms of Creatinine and Potassium for a couple of years, several times my lab results have strayed outside of normal ranges. There seems to be some relationship to various types of kidney malfunction and disease, and of course infection via...

Lindsmatt52 · Lindsmatt52

I may have posted this question in the wrong spot, so will post it here as well. Please forgive me if I am not following the correct protocol! Still learning the ins and outs of this forum. Can someone please explain the necessity of the Viekira Pak and Ribavirin over another medication? My doctor r...

SwimmerChic · SwimmerChic

Hopefully, I'm posting this in the right section. In cold weather (half the time where I live), I have symptoms my primary care physician calls vasculitis. Purpura starting in the feet and working up the legs (has been everywhere except my head, face, and hands at one time or another), fluid retentio...

Canuck · Canuck

Forum Fund Raising This post was getting quickly buried! I had to dig to find it again, even though it is recent! I'm glad you had posted it Tig. Man, it's been a LONG time! that I can remember any fundraising being done - what, does this site just live on air? (hot air maybe, hee hee). I think Linux was the la...

Loopy Lisa · Loopy Lisa

http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD012143.pub2/full

Iris Dragonfly · Iris Dragonfly

Hi there folks, I saw the Hepatologust about a month ago and since my insurance wont approve Harvoni he suggested this Zepatier which I had not heard of. What are the risks and has anyone tried this and been successful? How did you do on it? Thanks, Iris

Topic		Started By	Replies	Views	Last Post
	More tests (Preview) Hi guys, hope you are are doing well, been so busy busy. Then my cousin who was like my big brother died of mesothelioma in 4 months, still grieving that pretty hard. I've been so short of breath but figured I was just working too hard, then after my cousin died so quickly I steped up some doctor visits , go...	Iris Dragonfly	9	1498	May 2, 2018 by Canuck
	what does this mean? (Preview) Hi-- My brother was just given diagnosis "hepatitis C without hepatic coma". I know what hepatitis C is but what does without hepatic coma mean? My brother lives by himself in another city. Nobody to go with him to doc. They just gave him diagnosis and told him he has to go on meds. I don't think they expl...	marjim48	1	855	Apr 26, 2018 by Canuck
	Help me, please (Preview) Talk to your specialist about it as there are meds out there to help with this side effect. treatment is tough and with little ones at home dealing with them, situations/stresses can certainly be heightened. Thanks Bella	belladaisy2018	3	890	Apr 26, 2018 by Tig
	2 months down, 1 to go...and what? (Preview) Just checking in with 2nd good lab result at 2 months: ----------- Greetings-On September 18, 2017 there was no Hepatitis C virus detected. We will check again for the virus on October 16, 2017.NameOfNP NPGastroenterology ------------- One little hitch, I developed a ocular herpes infection in m...	LamontCranston	40	5787	Apr 21, 2018 by Canuck
	Relapse uncommon & Reinfection concern (Preview) People with hepatitis C virus (HCV) very rarely experience a relapse of the virus following acheiving a sustained virologic response 12 weeks after completing treatment (SVR12, considered a cure), Reuters Health reports. However, certain populations of those treated for the virus are at high r...	Tig	1	1718	Apr 20, 2018 by Tig
	Screening for Boomers (Preview) Need for better screening and capture (and treatment) of boomers who are HCV positive.With just some simple measures they have improved screening, perhaps as much as from 28% to 72% (in some circumstances). Without testing, without capture, there is no cure, and certainly no eradication of the ep...	Canuck	4	1653	Apr 7, 2018 by Canuck
	Need help with tire advices and Tire size specification (closed) (Preview) hello need help with tire advices and Tire size specification for my car Chevrolet Impala 2012??	Finleartor	1	1047	Mar 29, 2018 by Tig
	Down to it. (Preview) Pictured, the Final Dose. All things considered, it was a piece of cake. I took my pill at 9:00 PM every day for the 12 weeks, at 4 weeks I had a "Virus Not Detected" lab result, my ALT , AST results were in the 16-17 at 4 weeks and at 8 weeks. The results for today's labs will hopefully be as good. Most wonderfu...	LamontCranston	9	1944	Mar 24, 2018 by LamontCranston
	Mavyret: Side effects and High BP? (Preview) Newbie here and catching up. In week 14 of 16 of Mavyret treatment. This is my third attempt at eradication. So far so good as my tests show the virus is undetected. Now it's a waiting game for SVR. Had nasty headaches around week 8 that lasted 2 weeks. Luckily they went away. I also now have high blood pres...	RLS	7	2045	Feb 24, 2018 by Tig
	Closure of Australia's Forum (Preview) Hi guys, The Australian HepC Forum has just closed, due to lack of new members. Over here, all the new antivirals are available to all on our PBS system. ~$50 for most people, $12 for the pensioners and free to others. It was a very busy Forum for the last 10 years, but HepC is now regarded as ' .....a minor,...	mallani	11	1983	Feb 15, 2018 by Tig
	JhosT (Preview) Mavyret	Josh Haynie	2	1029	Jan 19, 2018 by Tig
	Refused treatment in Alberta Canada (Preview) Hi Everyone, A friend in Alberta Canada has hep c, stage 2 fibrosis, and has been told by her doctor that AAHB (Alberta Adult Health Benefits) will not cover treatment for her. The doctor added that she would have to pay the 60k out of pocket, which she cannot afford. She is not on social assistance (welf...	Greg D	5	1877	Dec 11, 2017 by Canuck
	Feld's comments - Retreatment - Mavyret VS Vosevi (Preview) Dr. Feld's comments: about re-treatment, with Mavyret (glec/pib) versus Vosevi (sof/vel/vox) - similar to info found about re-treatment in the larger link (2017 Resource - Treatment Options ) and also covered in (2017 Resource - AASLD HCV Treatment Guidelines) - P. 38 of 247 - click on "re-treat...	Canuck	0	1325	Dec 5, 2017 by Canuck
	Feld's comments on no new DAA's and Ca incidence studies (Preview) From Clinical Care Options - Clinical Thoughts TMFrom Clinical Care Options TM - Clinical Thoughts How New Data From the 2017 DC Hepatology Meeting Shed Light on the Clinical Benefits of HCV DAAsJordan J. Feld, MD, MPH - 11/14/2017 More from this authorFor the first time in several years, we di...	Canuck	1	1215	Nov 28, 2017 by Canuck
	About HCV Drug Costs (Preview) Here is a series of articles about drug costs, HCV or otherwise - low cost deals, generics, name brands, availabilty and the powers that be - what's wrong with this picture?HCV treatments valued under $100 per patientHelio - December 12, 2016Researchers estimated that a generic direct-acting an...	Canuck	1	1838	Nov 22, 2017 by LamontCranston
	Sofa and Dr. Sofia X (Preview) Lasker Award winner Michael Sofia created a pill to fight an incurable virus. Now he is setting his sights on another · By Dina Fine Maron on September 13, 2016 - Scientific America Inventor of Hepatitis C Wins a Major Prize -- and Turns to the Next Battle· · · ...	Canuck	0	1323	Oct 27, 2017 by Canuck
	San Diego, California Hepatitis A Emergency (Preview) California health officials have announced an emergency situation in San Diego, CA. Widespread Hepatitis A outbreaks have been announced in the area. This is particularly dangerous for anyone that may be infected with Hepatitis C or B. Be certain to avoid exposure whenever possible and assure yo...	Tig	7	1956	Oct 18, 2017 by Canuck
	Smooth Muscle AB Screen Positive/Titer 1:40 AIH? (Preview) I have had Hep C for at least 8 years and known about it for about 4. I have yearly blood work done and every year everything comes back normal except for the fact that I have hep c. My VL is always relatively low (last test put it at 245,000). Liver function is and always has been normal and everything is with...	casher	16	2547	Sep 28, 2017 by Canuck
	HCV Screening (Preview) Universal HCV screening is a pathway to eradication Infectious Disease News, August 2017Michael S Saag, MDWhen we think about the possibility of universal screening, we can dance around, trying to dig out baby boomers or injection drug users, we can look at different risk factors or select popu...	Tig	3	1872	Sep 8, 2017 by LamontCranston
	To Our Visiting Non Members (Preview) Greetings, Let us start by saying you are more than welcome here. Welcome to read anything that may interest you. Some of you perhaps just found out you were infected and you are scouring the Internet for information. A bit in shock perhaps and not ready to jump into a discussion. That is quite understa...	JimmyK	1	1377	Sep 5, 2017 by LamontCranston
	Coffee Anyone? (Preview) This is yet just another repeat confirmation that coffee may be good for our livers, BUT, (as noted in the many other articles/cpnversations we have had, scattered throughout this site, about coffee possibly being good for you) ... it is supposed to be ground "fresh brewed"/ dripped/or percolated...	Canuck	16	3063	Sep 3, 2017 by LamontCranston
	cirrhosis or no? (Preview) When I had my fibroscan the reading was 14 k/pa and I was graded in the 3-4 range. The doc evaluating the scan said I don't have cirrhosis but do have advanced fibrosis. My treatment nurse has several times mentioned things relating to my cirrhosis. I don't know if it even matters or not but when does fibr...	Barnacle	20	3809	Sep 1, 2017 by Canuck
	What does fatty infiltration in the hepatic parenchyma adjacent to falciform ligament mean (Preview) This information in subject line was posted in my chart after CT liver scan and ask what it means and will Harvoni treatment correct it?	polosilver	1	1450	Aug 26, 2017 by Tig
	Cirrhosis in HepC - ( more, on grading) "testing" (Preview) Published in Gastroenterology - Journal Scan / Research · August 21, 2017 A Combined Blood Marker and Elastography Test Found to Be More Accurate Than Other Tests for Fibrosis TAKE-HOME MESSAGE· Because of a recent recommendation to combine a blood test and liver stiffness measuremen...	Canuck	4	1827	Aug 25, 2017 by Canuck
	Kidneys, Renal Function (Preview) My kidney function has been "all over the place" at least in terms of Creatinine and Potassium for a couple of years, several times my lab results have strayed outside of normal ranges. There seems to be some relationship to various types of kidney malfunction and disease, and of course infection via...	LamontCranston	6	1678	Aug 10, 2017 by LamontCranston
	Viekira Pak XR and Ribavirin vs Epclusa (Preview) I may have posted this question in the wrong spot, so will post it here as well. Please forgive me if I am not following the correct protocol! Still learning the ins and outs of this forum. Can someone please explain the necessity of the Viekira Pak and Ribavirin over another medication? My doctor r...	Lindsmatt52	5	2013	Aug 6, 2017 by Lindsmatt52
	Help for cryoglobulinemia symptoms? (Preview) Hopefully, I'm posting this in the right section. In cold weather (half the time where I live), I have symptoms my primary care physician calls vasculitis. Purpura starting in the feet and working up the legs (has been everywhere except my head, face, and hands at one time or another), fluid retentio...	SwimmerChic	4	1977	Aug 1, 2017 by Tig
	Forum Fund Raising - Contributions (Preview) Forum Fund Raising This post was getting quickly buried! I had to dig to find it again, even though it is recent! I'm glad you had posted it Tig. Man, it's been a LONG time! that I can remember any fundraising being done - what, does this site just live on air? (hot air maybe, hee hee). I think Linux was the la...	Canuck	1	1066	Jul 29, 2017 by Tig
	Cochrane report (Preview) http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD012143.pub2/full	Loopy Lisa	8	1636	Jul 29, 2017 by Loopy Lisa
	Zepatier pros and cons (Preview) Hi there folks, I saw the Hepatologust about a month ago and since my insurance wont approve Harvoni he suggested this Zepatier which I had not heard of. What are the risks and has anyone tried this and been successful? How did you do on it? Thanks, Iris	Iris Dragonfly	1	976	Jul 28, 2017 by Canuck
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