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Undetectable for over a year, but Liver Enzymes remain elevated
(Preview)
Hello Everyone, I ended Harvoni on September 28, 2015 and complete treatment successfully. I have had 3,6, and 9-month blood test and all have come back hepc negative. However, from reading the forms, my liver enzymes should have come down during treatment and remained. When I asked my doctor h...
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dtre30319
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7
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867
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AFP keeps playing on my mind
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Hello all at the start of tx my afp was 40,they scanned for HCC nothing showing. they have told me its not a reliable blood test and are no longer checking it.Only 12 days to go. abbvie 3d no virus since week four so looking good -- Edited by Tiger on Monday 3rd of October 2016 06:57:16 PM -- Edited by Tiger on...
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Tiger
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8
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725
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HCV and Surrogacy Please help !!
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Hi ! Am new to this forum. Am female and Have HCV, was wondering if it is OK to implant the embryos from my IVF cycle in a surrogate ? I make excellent embryos, but implantation is not working for me, can I use surrogate, in this case is there any risk to the surrogate PLEASE HELP !! Thanks a lot
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Roy
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5
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763
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Common and Less Common Symptoms
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Found a short article with a poll on HCV symptoms. Might help you realize you're not alone! Click the link below. Symptoms Poll
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Tig
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6
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1395
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Getting Ready for a Re-Match
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Hi Everyone, It's been a number of years since I last posted, and a lot of great and wonderful things have happened to me since then. Now it's time for a re-match with my particular Dragon I am a non-responder finished TX back in 2011. I have a new Doctor the last one retired, (no great loss....a long story...
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Greg
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26
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1080
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Congrats Tig !
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Post Hog of the year! 6000 while under water! LOL
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JimmyK
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2
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561
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Fatigue and fog already
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Although I've had the virus for only a year or so, I am already noticing that I float through my days and get nothing done. I know about brain fog with HCV, but it seems it is generally only with long-term infection or during tx. And many people never have it at all. I have a long-term prescription for a low d...
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Juliet17
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7
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856
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A challange for all here
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Greetings, I am absolutely known for saying what is on my mind. I believe the folks here understand that is simply who I am and from time to time as a result, I may have stepped on a toe or ten. As we watch collectively the success of so many here we have traveled with, be it our sisters to the North, our brothe...
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JimmyK
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15
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997
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Hepatitis C medicine suppliers exporters from Delhi India
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My name is Naresh Gupta, CEO of Medivac InternationalIndia located in the capital of the countryNew Delhi. We are a specialized government authorised world wide wholesaler, distributor, supplier, trader & exporter of Hepatitis C medicine in. I would like to explain my gratitude and regard...
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medivac
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1
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746
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Ongoing RAV research with GS-9190
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Gilead's exploration is ongoing re: RAVS and development of using of other possible alternate NS5B drugs like SOF and GS-9190 in combo therapies.Early trials on GS-9190, comparing classes of a "non-nucleoside inhibitor" (NNI) and "nucleoside inhibitors" (NI's) in newer DAA double and triple...
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Canuck
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0
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527
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HepC in Australia
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Hi all, When the Molecular Pathologist rang me with my VL results last week, we had a chat about the VL testing. In March 2016, Australia gave access to Sovaldi, Harvoni and Daclatasvir to all HepC patients for a few dollars a course. My Lab is a private one, but does half of the VL testing for Queensland....
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mallani
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2
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690
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I forgot my meds this mourning
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Man I'm in a fog today. I forgot my ribavarin and sovaldi at 7 am. I take my second dose of ribv at 7pm. Since I forgot this mourning do I need to take both now? -- Edited by Ivery on Tuesday 9th of August 2016 08:00:14 PM
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Ivery
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5
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686
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Lose or gain weight ?
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Will riba / sov tx cause weight gain or loss?
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Ivery
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21
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1674
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LIVER TRANSPLANT
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hi all .havant been on line for awhile.i got rid or the virus 18months ago.my liver was to badly damaged and i went on transplant list 2 months ago.amazingly i got the phone call two and a half wks ago that they had a liver for me.im now bk home recovering from op.at last after 9yrs of tx i am finally free to ho...
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basser
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18
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970
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Portal Hypertension, TIPS Shunt - what next?
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Ok friends, I just returned from the hospital with my husband after his 3rd round of esophageal banding, which did not go well. The doctor says things look worse although 4 weeks ago she said things look better. She now wants us to consider a TIPS shunt. So again, no Harvoni for the next 2 weeks while on th...
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Susie1
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9
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847
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Curcumin plus acupuncture ?
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I got a link showing a study extolling the benefit of the correct(liver focused) acupuncture combined with Curcumin. I have started both. Loved the acupuncture; as for the Curcumin- I am feeling rapid relief for my chronic pain. I am using Doctor's Best (brand) Best Curcumin C3 Complex. Just becaus...
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keesotom
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42
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4019
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Need Help Deciphering Lab Test Numbers
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Had bloodwork done before going on Harvoni- 6/2016 Alpha-FE 9.3 NecroInflammat ACT Score 0.18 HCV RNA 5.37 Fibrosis Score 0.48 HCV RNA 23400...
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marjim48
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1
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653
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Can hep c live in the liver, macrophages or lymphocytes after SVR?
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paper:http://onlinelibrary.wiley.com/doi/10.1002/hep.20518/pdf
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skewedButNotBroken
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17
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949
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ACCESS TO TRIAL DRUGS IN A COMPASSIONATE PROGRAM
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Hi All-- Lets say you have a liver in pretty bad shape, and you have been on two treatments that failed you.Now let's say a new combo drug was just approved yesterday (sof-Vel) but you felt like you needed to hit the virus in three spots instead of just two, and the third drug was in trials and was proven in...
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robertsamx
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8
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726
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Need your advice
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1 2
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Hello everyone, I'm in Canada, I don't know how it works in US, so here's the story. I need an advice. I have a friend in Maryland near DC. He was undergoing Harvony therapy (likely EOT and +16wks still UND ) when he got TIPS, since he already had a decompensated cirrhosis, a strong ascites and started...
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malekula man
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81
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4365
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Media Software Window Enables Easy viewing and Timing Adjust
(Preview)
BannedForum Guidelines - Required reading for all members -- Edited by wmlj1960 on Thursday 23rd of June 2016 08:13:20 AM
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Ratheesh
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0
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518
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Buyers Club for New Hepatitis C drugs?
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Hello all, we're all aware of the high prices of Hep C drugs. I've just watched a movie 'Dallas Buyers Club' where they had the same problem with HIV drugs in 70s and they created a so called buyers club where you could get all HIV drugs. Is there some similar thing for Hepatitis C? I don't really have $100...
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Bob Sage
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3
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785
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Harvoni
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Hi All! This is Cayohueso 1 and I have been hanging in there for the last several years with my failed 6 month attempt with Peg/Victrellis ****tail. Heavy side effects including relapse after 8 years of being clean and sober. I stayed out there for 2 years and happy to say that Im 2 and a half years clean...
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cayohueso1
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16
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1588
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Drink your coffee
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Many studies have been done showing coffee is beneficial to the liver. Helps the ant-viral response, lowers risk of HCC and more. Reading through below link ( and my eyes spinning in my head from the medical terminology), it appears 3 or more cups per day (8 oz being 1 cup) can only be good. Tea and caf...
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singsong
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11
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1096
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Help with being so tired
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So heres my story.. I tested positive for the antibody a couple weeks ago and i kno you say i may not have it but now i finally have my anwser to why im so tired(i know when and where i got it)... It was about a year ago and now i finaly have the anwser to to why im so tired... From the time i wake up untill about 3-4 p...
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Logan21
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16
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896
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Regarding two possible symptoms: Vitiligo and tinnitus
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I have had vitiligo for about 25 years and tinnitus for a long time, too. I would like to know if anyone with either condition who had successful treatment experienced any change in said conditions after SVR. There are documented correlations but no definite cause/effect (yet) evidence with the vi...
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Sherri
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3
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873
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Jimmy's Pill Counter
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OK I admit it, I am kind of bored. Some folks here swear by the little plastic pill counters and they are great for people who have a hard time remembering. Myself, I use the ever annoying 5:55a Alarm from which there is no escape. Some folks, like myself, like to track where they are at and where they have b...
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JimmyK
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8
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743
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Would like to hear feedback on drugs other than Harvoni
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I am scheduled to see a hepatologist at the VA later this month, so would like to be well informed before the appointment. I have read many, many reports of the neural side effects of Harvoni (on other sites besides this one). I have decided against going that route, especially after learning that it w...
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Sherri
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18
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1427
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General Discussion
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Hi all my Hep C Discussion Forum brothers and sisters. The Misses and I are getting on a big ol' jet aero liner tomorrow, destination Philippine Islands to do business, and visit some family, and pleasure. I still will be able to keep up with ya'all because this trip I am bringing my laptop for sure. So,...
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Mike
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4
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495
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Test Results
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Hi, I was able to get phone results of my husband's test. First of all, he was tested last summer for Hep C reactive, and it was positive. It took a long time to get him to agree to go back for more testing. The results of this test was "Undetected with a Quantitative number of 4770000". Can an...
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CandaceV
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44
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3011
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