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Spreading the word....WOOHOOO
(Preview)
My (attached) post made it onto this Facebook site with over 3,000,000 members! Doing my part to spread Hep C awareness. But PLEASE, let's not talk about politics or election results in this thread. Emotions are too high right now.
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Juliet17
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6
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1092
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Hep C medication videos for new patients
(closed)
(Preview)
The moderators of the forum have given me permission to post these videos. They have been produced by GP2U, an Australian online medical practice with experience treating Hep C patients. The first video is a 90 second overview of how to access the Hep C medication, what to expect during treatment an...
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brettdc
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2
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1862
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Bad Blood Donation Practice Worries
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I had a blood donation yesterday, the nurse who drew my blood wore gloves but while in the process of collecting blood she went off doing other things like packaging test tube boxes and input stuff on her computer. At the end of the blood draw she folded my gauze pad before withdrew the needle, my worry is...
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winkawak
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5
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1197
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thread hijack
(Preview)
ooops on that hijack... Thank you for catching me Tig. Im not to savy with chatting. Matter of fact, this is my first time as well as Cuddys in any Chat type situation. We have alot to learn, lol. Cuddy did speak to an attorney, or might I say the attorney spoke at him. Cuddy said he couldnt get a wo...
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MaxiePoo3
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1
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939
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Cutaneous vasculitis/cryoglobulinemia (Warning: graphic)
(Preview)
Although it's a bit embarrasing to post these horrific photos of the ulcers on my face, this condition is not an uncommon complication of HCV. Yet there's not much info on the Internet about it. It's more common to see ulcers like this on the legs, but they can occur anywhere. If you see any "moon craters...
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Juliet17
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3
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1222
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Fibroscan today
(Preview)
Hi guys I just got back from the fibro scan. The girl said she couldn't read the results but I saw a number coming up on the screen, near the bottom of the machine that changed slightly from 1.25 to about 1.67 ...I presume that was the score, and if so looks to be near similar to the blood test. Which was betwe...
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Iris Dragonfly
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10
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1264
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Got my meds (yay!) but hit a snag, possible cryoglobulinemia
(Preview)
I hope I spelled it right! The first of the good news is that I had my fibroscan, and I am at stage 0. Yay! Next good news: I was approved for treatment and got my first month of Sovaldi/Daklinza. Because of my CIGNA coverage and the copay coupon my pharmacy arranged, here is the grand total of my out-of-poc...
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Juliet17
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11
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1251
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Canuck
(Preview)
Greetings my sister to The North. I want to take a moment to say you are my true idea of someone who cares. Cares for the folks that are setting out on the path we have traveled side by side. To be UND and here to help speaks volumes of the fantastic woman you are. There may here be no such thing, but if there wer...
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JimmyK
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11
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1013
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Canadians having trouble getting DAA's
(Preview)
It takes some Australians (who are now wisely spending a billion dollars for good accessible HCV treatment for their population), to point out, that Canadians "aren't doing it right" - and, those nice wise Australians were being VERY polite about it too, imho, in their assessments and suggestio...
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Canuck
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0
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832
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For the Florida Friends
(Preview)
A rough night is at your door. Please keep us updated and know you are in our thoughts and prayers. JimmyK -- Edited by JimmyK on Wednesday 5th of October 2016 09:09:55 PM
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JimmyK
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34
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1353
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Undetectable for over a year, but Liver Enzymes remain elevated
(Preview)
Hello Everyone, I ended Harvoni on September 28, 2015 and complete treatment successfully. I have had 3,6, and 9-month blood test and all have come back hepc negative. However, from reading the forms, my liver enzymes should have come down during treatment and remained. When I asked my doctor h...
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dtre30319
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7
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1155
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AFP keeps playing on my mind
(Preview)
Hello all at the start of tx my afp was 40,they scanned for HCC nothing showing. they have told me its not a reliable blood test and are no longer checking it.Only 12 days to go. abbvie 3d no virus since week four so looking good -- Edited by Tiger on Monday 3rd of October 2016 06:57:16 PM -- Edited by Tiger on...
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Tiger
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8
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969
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HCV and Surrogacy Please help !!
(Preview)
Hi ! Am new to this forum. Am female and Have HCV, was wondering if it is OK to implant the embryos from my IVF cycle in a surrogate ? I make excellent embryos, but implantation is not working for me, can I use surrogate, in this case is there any risk to the surrogate PLEASE HELP !! Thanks a lot
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Roy
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5
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1020
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Common and Less Common Symptoms
(Preview)
Found a short article with a poll on HCV symptoms. Might help you realize you're not alone! Click the link below. Symptoms Poll
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Tig
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6
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1975
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Getting Ready for a Re-Match
(Preview)
Hi Everyone, It's been a number of years since I last posted, and a lot of great and wonderful things have happened to me since then. Now it's time for a re-match with my particular Dragon I am a non-responder finished TX back in 2011. I have a new Doctor the last one retired, (no great loss....a long story...
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Greg
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26
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1304
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Congrats Tig !
(Preview)
Post Hog of the year! 6000 while under water! LOL
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JimmyK
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2
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808
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Fatigue and fog already
(Preview)
Although I've had the virus for only a year or so, I am already noticing that I float through my days and get nothing done. I know about brain fog with HCV, but it seems it is generally only with long-term infection or during tx. And many people never have it at all. I have a long-term prescription for a low d...
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Juliet17
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7
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1110
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A challange for all here
(Preview)
Greetings, I am absolutely known for saying what is on my mind. I believe the folks here understand that is simply who I am and from time to time as a result, I may have stepped on a toe or ten. As we watch collectively the success of so many here we have traveled with, be it our sisters to the North, our brothe...
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JimmyK
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15
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1221
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Hepatitis C medicine suppliers exporters from Delhi India
(Preview)
My name is Naresh Gupta, CEO of Medivac InternationalIndia located in the capital of the countryNew Delhi. We are a specialized government authorised world wide wholesaler, distributor, supplier, trader & exporter of Hepatitis C medicine in. I would like to explain my gratitude and regard...
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medivac
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1
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948
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Ongoing RAV research with GS-9190
(Preview)
Gilead's exploration is ongoing re: RAVS and development of using of other possible alternate NS5B drugs like SOF and GS-9190 in combo therapies.Early trials on GS-9190, comparing classes of a "non-nucleoside inhibitor" (NNI) and "nucleoside inhibitors" (NI's) in newer DAA double and triple...
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Canuck
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0
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739
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HepC in Australia
(Preview)
Hi all, When the Molecular Pathologist rang me with my VL results last week, we had a chat about the VL testing. In March 2016, Australia gave access to Sovaldi, Harvoni and Daclatasvir to all HepC patients for a few dollars a course. My Lab is a private one, but does half of the VL testing for Queensland....
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mallani
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2
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888
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I forgot my meds this mourning
(Preview)
Man I'm in a fog today. I forgot my ribavarin and sovaldi at 7 am. I take my second dose of ribv at 7pm. Since I forgot this mourning do I need to take both now? -- Edited by Ivery on Tuesday 9th of August 2016 08:00:14 PM
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Ivery
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5
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895
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Lose or gain weight ?
(Preview)
Will riba / sov tx cause weight gain or loss?
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Ivery
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21
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2034
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LIVER TRANSPLANT
(Preview)
hi all .havant been on line for awhile.i got rid or the virus 18months ago.my liver was to badly damaged and i went on transplant list 2 months ago.amazingly i got the phone call two and a half wks ago that they had a liver for me.im now bk home recovering from op.at last after 9yrs of tx i am finally free to ho...
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basser
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18
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1185
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Portal Hypertension, TIPS Shunt - what next?
(Preview)
Ok friends, I just returned from the hospital with my husband after his 3rd round of esophageal banding, which did not go well. The doctor says things look worse although 4 weeks ago she said things look better. She now wants us to consider a TIPS shunt. So again, no Harvoni for the next 2 weeks while on th...
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Susie1
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9
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1119
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Curcumin plus acupuncture ?
(Preview)
I got a link showing a study extolling the benefit of the correct(liver focused) acupuncture combined with Curcumin. I have started both. Loved the acupuncture; as for the Curcumin- I am feeling rapid relief for my chronic pain. I am using Doctor's Best (brand) Best Curcumin C3 Complex. Just becaus...
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keesotom
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42
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4406
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Need Help Deciphering Lab Test Numbers
(Preview)
Had bloodwork done before going on Harvoni- 6/2016 Alpha-FE 9.3 NecroInflammat ACT Score 0.18 HCV RNA 5.37 Fibrosis Score 0.48 HCV RNA 23400...
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marjim48
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1
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1040
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Can hep c live in the liver, macrophages or lymphocytes after SVR?
(Preview)
http://onlinelibrary.wiley.com/doi/10.1002/hep.20518/pdf
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skewedButNotBroken
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17
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1169
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ACCESS TO TRIAL DRUGS IN A COMPASSIONATE PROGRAM
(Preview)
Hi All-- Lets say you have a liver in pretty bad shape, and you have been on two treatments that failed you.Now let's say a new combo drug was just approved yesterday (sof-Vel) but you felt like you needed to hit the virus in three spots instead of just two, and the third drug was in trials and was proven in...
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robertsamx
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8
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921
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Need your advice
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1 2
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(Preview)
Hello everyone, I'm in Canada, I don't know how it works in US, so here's the story. I need an advice. I have a friend in Maryland near DC. He was undergoing Harvony therapy (likely EOT and +16wks still UND ) when he got TIPS, since he already had a decompensated cirrhosis, a strong ascites and started...
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malekula man
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81
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4985
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