Hep C Discussion Forum

SwimmerChic · SwimmerChic

Hopefully, I'm posting this in the right section. In cold weather (half the time where I live), I have symptoms my primary care physician calls vasculitis. Purpura starting in the feet and working up the legs (has been everywhere except my head, face, and hands at one time or another), fluid retentio...

Canuck · Canuck

Forum Fund Raising This post was getting quickly buried! I had to dig to find it again, even though it is recent! I'm glad you had posted it Tig. Man, it's been a LONG time! that I can remember any fundraising being done - what, does this site just live on air? (hot air maybe, hee hee). I think Linux was the la...

Loopy Lisa · Loopy Lisa

http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD012143.pub2/full

Iris Dragonfly · Iris Dragonfly

Hi there folks, I saw the Hepatologust about a month ago and since my insurance wont approve Harvoni he suggested this Zepatier which I had not heard of. What are the risks and has anyone tried this and been successful? How did you do on it? Thanks, Iris

LamontCranston · LamontCranston

Posting from Yellowstone MT that I am enjoying the last few days before I start treatment. I have to admit I am anxious to just get started and on the road to a cure. Ever since my DX I have been noticing the little, but significant signs that my body is under attack, the bruising under my skin, dull ache in u...

LamontCranston · LamontCranston

I have a checkup next week at the dentist. Does he need to know about my diagnosis, or is it not any of his business? I remember there was a dentist who transmitted HIV to a lot of his patients, but they weren't practicing good hygiene and sterilization in the office, as far as I recall anyway. I'd hate for h...

JimmyK · JimmyK

Greetings, When I say I know of what I speak, I know of what I speak. I would say "trust me" but the fact is, you don't know me. To PROVE that you don't know me I ask you to take pause... ... think to yourself and ask the question; "Do I know this guy?". In fact; "Do I know anyone living in Texas?" OH and if so, "Do I...

Sam1962 · Sam1962

The Hepatitis C Trust will be celebrating World Hepatitis Day on July 28th 2017, with a free conference for everyone affected by or interested in hepatitis C. The programme for the day and details for registering your place are available here http://www.hepctrust.org.uk/blog/jun-2017/hep...

kozanne · kozanne

Dr. told me today. Cancer, right lobe. Rest of the liver looks actually very good and my bloodwork looks good. cholangiocarcinoma as opposed to hepatocellular. Talked to me about interventional radiology/targeted radiation or targeted chemo.

Scruffy · Scruffy

Well theres not much to say. Complications due to hep c claim another. RIP Gregg Allman.

Canuck · Canuck

Call to Action: Physicians Needed to Alleviate HCV Treatment RestrictionsHCV Next, May/June Robert Greenwald, JDIn conducting our national review of Medicaid restrictions for hepatitis C virus treatments, it became obvious that people living with HCV and the broader HCV advocacy community n...

Rick · Rick

I just got a call from the doctor saying that the Insurance will not pay for Harvoni but will pay for Zepatiar any thoughts ???????

LamontCranston · LamontCranston

I arranged to start my Epclusa treatment in July, to accommodate some travel we had planned for May and June. My HMO wants to keep me on a short leash during treatment so running off to Europe, then Idaho-Wyoming-Montana to scare trout with my Epclusa in hand was not going to happen. The Europe trip was F...

CodeNinja · CodeNinja

I just got approved for treatment last week with Epclusa. I received the first months supply yesterday and I'm planning on taking my first dose tomorrow. I remembered reading some stores about people having some post treatment effects so I started looking into it a bit more and I am seeing quite a few p...

Juliet17 · Juliet17

Is anyone else dealing with this kind of thing? I've told very few people that I have Hep C: my husband, my children, my sister, and my ex-husband's wife (perhaps surprisingly, we are friends and I think she is a wonderful person). More recently, I've sent private messages in FaceBook to 4 people who ar...

Tig · Tig

This is an article Cheddy brought to my attention. I recommend it. It tells the story of a Soldier that acquired HCV as a result of battlefield injuries while serving in Vietnam. RIP Warrior.... Vietnam Memorial

VetwithC · VetwithC

Not a fun thing to experience or share, but I was wondering if any others out there have similar experiences? My bowels have always been on the loose side, but manageable with psyllium to slow things down. It has been just a nuisance going on for decades, but cleared up to almost constipation for a coupl...

kozanne · kozanne

Had the Fibroscan and an ultrasound on Tuesday. Doc called just a bit ago. Said the Fibroscan said I was scarred, the ultrasound said the liver was smooth. Ultrasound found a 2cm mass on the right lobe, so now I'm going to be scheduled for a CT next week. Doc said he did not know what the mass is and cou...

digit · digit

I am currently in the process of developing a product to help individuals with Hepatitis C manage their condition on a day to day basis and communicate with caregivers and care professionals in their circle. I have currently partnered with an NHS Hospital as well as an HCV non-profit to pilot a produc...

Girlwithastudy · Girlwithastudy

Hi! I know this may seem obstructive, but I am doing a student directed study on Hepatitis C. I live in a small town so it's hard to gather a lot of personal stories and information on Hepatitis C. If any of you, would be willing to provide your email or chat on here to answer some of my questions, it would be r...

tomyboy · tomyboy

Hi all. Just stopping in to say hello to all and pray everyone is doing well. Tom is still hep c free thanks to harvoni. We continue our trips to Mt Sinai every three months for his liver MRIs. His last two showed to new spots but his surgeon doesn't want to do anything to them until he knows for sure its cance...

Jaded · Jaded

http://www.forbes.com/sites/sciencebiz/2017/01/17/the-u-s-government-should-...

Shadowfax · Shadowfax

I thought it might be a good idea to open a thread for the members to give a summary of 2016 and what happened during this past year now that we approach the end of it. Since I started this, I will go first. Feb 9th, start of 12 weeks on Harvoni with starting numbers of ALT 187, AST 114, VL 2.3 M May 2nd, End of...

Canuck · Canuck

Just a non-HCV "general interest" article I came across, regarding a small, rare, but nasty disease outbreak in Wisconsin area, mostly in the average 77 year old age bracket (earlier this year). But serious outcomes for a high percentage of infected. Probably 63 cases. Possibly a 29% death rate. T...

momo3 · momo3

Hello all, I am fairly young but reaching the end of my fertile years. I am about to start Harvoni for 8 weeks. I am a little nervous because although the dr said there would be no problems with getting pregnant even right after treatment, I would like to hear some stories of people who have gotten pregnan...

HR · HR

Hey guys Haven't been on here in forever and decided to stop back by. Any new treatments out there for Harvoni relapser's? Thanks

mcmaklin · mcmaklin

Hello, I have been offered re-treatment from NHS Elbasvir/Grazoprevir. I know I should add Sofosbuvir and Ribavirin. As I have L31M would you recommend me to wait for other drugs form Abbvie or Gilled? I know nothing about ZEPATIER, and is it a good solution for me? thank you ------I am 41 y....

JimmyK · JimmyK

Healio: Merck Wins Vs Gilead $2.54 Billion

Shortened the link, JK. -- Edited by Tig56 on Tuesday 20th of December 2016 10:35:22 PM

JimmyK · JimmyK

,,, and at the same time l kind of feel like slapping any so called clinician who would while, no doubt be overtly infected with dickeydoo disease, but regardless of his disadvantage, there seems to me to be little excuse for such a statement; "The question of whether and when to treat patients with hep...

Scruffy · Scruffy

http://medicalxpress.com/news/2016-11-virus-liver-cancer-cells-hepatitis.html?ref=yfp

Topic		Started By	Replies	Views	Last Post
	Help for cryoglobulinemia symptoms? (Preview) Hopefully, I'm posting this in the right section. In cold weather (half the time where I live), I have symptoms my primary care physician calls vasculitis. Purpura starting in the feet and working up the legs (has been everywhere except my head, face, and hands at one time or another), fluid retentio...	SwimmerChic	4	2182	Aug 1, 2017 by Tig
	Forum Fund Raising - Contributions (Preview) Forum Fund Raising This post was getting quickly buried! I had to dig to find it again, even though it is recent! I'm glad you had posted it Tig. Man, it's been a LONG time! that I can remember any fundraising being done - what, does this site just live on air? (hot air maybe, hee hee). I think Linux was the la...	Canuck	1	1228	Jul 29, 2017 by Tig
	Cochrane report (Preview) http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD012143.pub2/full	Loopy Lisa	8	1957	Jul 29, 2017 by Loopy Lisa
	Zepatier pros and cons (Preview) Hi there folks, I saw the Hepatologust about a month ago and since my insurance wont approve Harvoni he suggested this Zepatier which I had not heard of. What are the risks and has anyone tried this and been successful? How did you do on it? Thanks, Iris	Iris Dragonfly	1	1107	Jul 28, 2017 by Canuck
	2 Weeks to go, then 3 months of Epclusa (Preview) Posting from Yellowstone MT that I am enjoying the last few days before I start treatment. I have to admit I am anxious to just get started and on the road to a cure. Ever since my DX I have been noticing the little, but significant signs that my body is under attack, the bruising under my skin, dull ache in u...	LamontCranston	8	1981	Jul 25, 2017 by LamontCranston
	Should I tell my dentist? (Preview) I have a checkup next week at the dentist. Does he need to know about my diagnosis, or is it not any of his business? I remember there was a dentist who transmitted HIV to a lot of his patients, but they weren't practicing good hygiene and sterilization in the office, as far as I recall anyway. I'd hate for h...	LamontCranston	20	2597	Jul 25, 2017 by bbomb
	URGENT WARNING to those seeking Treatment for Hep C (Preview) Greetings, When I say I know of what I speak, I know of what I speak. I would say "trust me" but the fact is, you don't know me. To PROVE that you don't know me I ask you to take pause... ... think to yourself and ask the question; "Do I know this guy?". In fact; "Do I know anyone living in Texas?" OH and if so, "Do I...	JimmyK	13	2431	Jul 23, 2017 by LamontCranston
	World Hepatitis Day - July 28th 2017 - The Hepatitis C Trust (UK) (Preview) The Hepatitis C Trust will be celebrating World Hepatitis Day on July 28th 2017, with a free conference for everyone affected by or interested in hepatitis C. The programme for the day and details for registering your place are available here http://www.hepctrust.org.uk/blog/jun-2017/hep...	Sam1962	1	1225	Jun 23, 2017 by Tig
	Looks like I have bigger problems than Hep C (Preview) Dr. told me today. Cancer, right lobe. Rest of the liver looks actually very good and my bloodwork looks good. cholangiocarcinoma as opposed to hepatocellular. Talked to me about interventional radiology/targeted radiation or targeted chemo.	kozanne	6	1111	Jun 17, 2017 by Canuck
	RIP Gregg (Preview) Well theres not much to say. Complications due to hep c claim another. RIP Gregg Allman.	Scruffy	1	1350	May 27, 2017 by Tig
	Article I liked (Boston Meeting) - on Access to Treatment - USA (Preview) Call to Action: Physicians Needed to Alleviate HCV Treatment RestrictionsHCV Next, May/June Robert Greenwald, JDIn conducting our national review of Medicaid restrictions for hepatitis C virus treatments, it became obvious that people living with HCV and the broader HCV advocacy community n...	Canuck	0	874	May 24, 2017 by Canuck
	Hello Rick here with a question !!!! (Preview) I just got a call from the doctor saying that the Insurance will not pay for Harvoni but will pay for Zepatiar any thoughts ???????	Rick	11	1385	May 20, 2017 by Canuck
	The waiting is the hardest part (Preview) I arranged to start my Epclusa treatment in July, to accommodate some travel we had planned for May and June. My HMO wants to keep me on a short leash during treatment so running off to Europe, then Idaho-Wyoming-Montana to scare trout with my Epclusa in hand was not going to happen. The Europe trip was F...	LamontCranston	2	1201	May 18, 2017 by LamontCranston
	Post treatment effects? (Preview) I just got approved for treatment last week with Epclusa. I received the first months supply yesterday and I'm planning on taking my first dose tomorrow. I remembered reading some stores about people having some post treatment effects so I started looking into it a bit more and I am seeing quite a few p...	CodeNinja	3	1500	May 12, 2017 by Tig
	Snubbed! (Preview) Is anyone else dealing with this kind of thing? I've told very few people that I have Hep C: my husband, my children, my sister, and my ex-husband's wife (perhaps surprisingly, we are friends and I think she is a wonderful person). More recently, I've sent private messages in FaceBook to 4 people who ar...	Juliet17	7	1986	Apr 25, 2017 by kozanne
	Vietnam Vet added to the Wall (Preview) This is an article Cheddy brought to my attention. I recommend it. It tells the story of a Soldier that acquired HCV as a result of battlefield injuries while serving in Vietnam. RIP Warrior.... Vietnam Memorial	Tig	5	1335	Apr 24, 2017 by marcos828
	IBS-D and cirrhosis (Preview) Not a fun thing to experience or share, but I was wondering if any others out there have similar experiences? My bowels have always been on the loose side, but manageable with psyllium to slow things down. It has been just a nuisance going on for decades, but cleared up to almost constipation for a coupl...	VetwithC	17	4108	Apr 23, 2017 by LamontCranston
	Well, got my news from the doctor (Preview) Had the Fibroscan and an ultrasound on Tuesday. Doc called just a bit ago. Said the Fibroscan said I was scarred, the ultrasound said the liver was smooth. Ultrasound found a 2cm mass on the right lobe, so now I'm going to be scheduled for a CT next week. Doc said he did not know what the mass is and cou...	kozanne	4	828	Apr 21, 2017 by Canuck
	I'm looking to learn more about the biggest pain point individuals with Hep C face when it comes to overall management a (closed) (Preview) I am currently in the process of developing a product to help individuals with Hepatitis C manage their condition on a day to day basis and communicate with caregivers and care professionals in their circle. I have currently partnered with an NHS Hospital as well as an HCV non-profit to pilot a produc...	digit	1	833	Apr 10, 2017 by Tig
	I would love your help on my student directed study! (Preview) Hi! I know this may seem obstructive, but I am doing a student directed study on Hepatitis C. I live in a small town so it's hard to gather a lot of personal stories and information on Hepatitis C. If any of you, would be willing to provide your email or chat on here to answer some of my questions, it would be r...	Girlwithastudy	0	746	Mar 28, 2017 by Girlwithastudy
	Tom and Laura (Preview) Hi all. Just stopping in to say hello to all and pray everyone is doing well. Tom is still hep c free thanks to harvoni. We continue our trips to Mt Sinai every three months for his liver MRIs. His last two showed to new spots but his surgeon doesn't want to do anything to them until he knows for sure its cance...	tomyboy	2	756	Mar 23, 2017 by Tig
	The U.S. Government Should Buy Gilead For $156 Billion To Save Money On Hepatitis C (Preview) http://www.forbes.com/sites/sciencebiz/2017/01/17/the-u-s-government-should-...	Jaded	2	992	Mar 22, 2017 by LamontCranston
	2016 Your year in review readers digest form. (Preview) I thought it might be a good idea to open a thread for the members to give a summary of 2016 and what happened during this past year now that we approach the end of it. Since I started this, I will go first. Feb 9th, start of 12 weeks on Harvoni with starting numbers of ALT 187, AST 114, VL 2.3 M May 2nd, End of...	Shadowfax	20	2635	Feb 3, 2017 by Shadowfax
	Just a non-HCV "general interest" article re: Wisconsin area infection (Preview) Just a non-HCV "general interest" article I came across, regarding a small, rare, but nasty disease outbreak in Wisconsin area, mostly in the average 77 year old age bracket (earlier this year). But serious outcomes for a high percentage of infected. Probably 63 cases. Possibly a 29% death rate. T...	Canuck	6	1435	Jan 31, 2017 by Tig
	Pregnancy after Harvoni? (Preview) Hello all, I am fairly young but reaching the end of my fertile years. I am about to start Harvoni for 8 weeks. I am a little nervous because although the dr said there would be no problems with getting pregnant even right after treatment, I would like to hear some stories of people who have gotten pregnan...	momo3	2	1318	Jan 25, 2017 by momo3
	Checking in (Preview) Hey guys Haven't been on here in forever and decided to stop back by. Any new treatments out there for Harvoni relapser's? Thanks	HR	8	1252	Jan 24, 2017 by Canuck
	Very Urgent- treatment for me who (as you know failed viekira+Exviera 1b) (Preview) Hello, I have been offered re-treatment from NHS Elbasvir/Grazoprevir. I know I should add Sofosbuvir and Ribavirin. As I have L31M would you recommend me to wait for other drugs form Abbvie or Gilled? I know nothing about ZEPATIER, and is it a good solution for me? thank you ------I am 41 y....	mcmaklin	12	2152	Jan 3, 2017 by Canuck
	That's 2.5 BILLION folks (Preview) Healio: Merck Wins Vs Gilead $2.54 Billion Shortened the link, JK. -- Edited by Tig56 on Tuesday 20th of December 2016 10:35:22 PM	JimmyK	4	1032	Dec 22, 2016 by dharmabum
	I find this facinating... (Preview) ,,, and at the same time l kind of feel like slapping any so called clinician who would while, no doubt be overtly infected with dickeydoo disease, but regardless of his disadvantage, there seems to me to be little excuse for such a statement; "The question of whether and when to treat patients with hep...	JimmyK	9	1553	Nov 24, 2016 by JimmyK
	Interesting (Preview) http://medicalxpress.com/news/2016-11-virus-liver-cancer-cells-hepatitis.html?ref=yfp	Scruffy	6	1104	Nov 16, 2016 by dharmabum
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