Hep C Discussion Forum

Canuck · Canuck

Call to Action: Physicians Needed to Alleviate HCV Treatment RestrictionsHCV Next, May/June Robert Greenwald, JDIn conducting our national review of Medicaid restrictions for hepatitis C virus treatments, it became obvious that people living with HCV and the broader HCV advocacy community n...

Rick · Rick

I just got a call from the doctor saying that the Insurance will not pay for Harvoni but will pay for Zepatiar any thoughts ???????

LamontCranston · LamontCranston

I arranged to start my Epclusa treatment in July, to accommodate some travel we had planned for May and June. My HMO wants to keep me on a short leash during treatment so running off to Europe, then Idaho-Wyoming-Montana to scare trout with my Epclusa in hand was not going to happen. The Europe trip was F...

CodeNinja · CodeNinja

I just got approved for treatment last week with Epclusa. I received the first months supply yesterday and I'm planning on taking my first dose tomorrow. I remembered reading some stores about people having some post treatment effects so I started looking into it a bit more and I am seeing quite a few p...

Juliet17 · Juliet17

Is anyone else dealing with this kind of thing? I've told very few people that I have Hep C: my husband, my children, my sister, and my ex-husband's wife (perhaps surprisingly, we are friends and I think she is a wonderful person). More recently, I've sent private messages in FaceBook to 4 people who ar...

Tig · Tig

This is an article Cheddy brought to my attention. I recommend it. It tells the story of a Soldier that acquired HCV as a result of battlefield injuries while serving in Vietnam. RIP Warrior.... Vietnam Memorial

VetwithC · VetwithC

Not a fun thing to experience or share, but I was wondering if any others out there have similar experiences? My bowels have always been on the loose side, but manageable with psyllium to slow things down. It has been just a nuisance going on for decades, but cleared up to almost constipation for a coupl...

kozanne · kozanne

Had the Fibroscan and an ultrasound on Tuesday. Doc called just a bit ago. Said the Fibroscan said I was scarred, the ultrasound said the liver was smooth. Ultrasound found a 2cm mass on the right lobe, so now I'm going to be scheduled for a CT next week. Doc said he did not know what the mass is and cou...

digit · digit

I am currently in the process of developing a product to help individuals with Hepatitis C manage their condition on a day to day basis and communicate with caregivers and care professionals in their circle. I have currently partnered with an NHS Hospital as well as an HCV non-profit to pilot a produc...

Girlwithastudy · Girlwithastudy

Hi! I know this may seem obstructive, but I am doing a student directed study on Hepatitis C. I live in a small town so it's hard to gather a lot of personal stories and information on Hepatitis C. If any of you, would be willing to provide your email or chat on here to answer some of my questions, it would be r...

tomyboy · tomyboy

Hi all. Just stopping in to say hello to all and pray everyone is doing well. Tom is still hep c free thanks to harvoni. We continue our trips to Mt Sinai every three months for his liver MRIs. His last two showed to new spots but his surgeon doesn't want to do anything to them until he knows for sure its cance...

Jaded · Jaded

http://www.forbes.com/sites/sciencebiz/2017/01/17/the-u-s-government-should-...

Shadowfax · Shadowfax

I thought it might be a good idea to open a thread for the members to give a summary of 2016 and what happened during this past year now that we approach the end of it. Since I started this, I will go first. Feb 9th, start of 12 weeks on Harvoni with starting numbers of ALT 187, AST 114, VL 2.3 M May 2nd, End of...

Canuck · Canuck

Just a non-HCV "general interest" article I came across, regarding a small, rare, but nasty disease outbreak in Wisconsin area, mostly in the average 77 year old age bracket (earlier this year). But serious outcomes for a high percentage of infected. Probably 63 cases. Possibly a 29% death rate. T...

momo3 · momo3

Hello all, I am fairly young but reaching the end of my fertile years. I am about to start Harvoni for 8 weeks. I am a little nervous because although the dr said there would be no problems with getting pregnant even right after treatment, I would like to hear some stories of people who have gotten pregnan...

HR · HR

Hey guys Haven't been on here in forever and decided to stop back by. Any new treatments out there for Harvoni relapser's? Thanks

mcmaklin · mcmaklin

Hello, I have been offered re-treatment from NHS Elbasvir/Grazoprevir. I know I should add Sofosbuvir and Ribavirin. As I have L31M would you recommend me to wait for other drugs form Abbvie or Gilled? I know nothing about ZEPATIER, and is it a good solution for me? thank you ------I am 41 y....

JimmyK · JimmyK

Healio: Merck Wins Vs Gilead $2.54 Billion

Shortened the link, JK. -- Edited by Tig56 on Tuesday 20th of December 2016 10:35:22 PM

JimmyK · JimmyK

,,, and at the same time l kind of feel like slapping any so called clinician who would while, no doubt be overtly infected with dickeydoo disease, but regardless of his disadvantage, there seems to me to be little excuse for such a statement; "The question of whether and when to treat patients with hep...

Scruffy · Scruffy

http://medicalxpress.com/news/2016-11-virus-liver-cancer-cells-hepatitis.html?ref=yfp

Juliet17 · Juliet17

My (attached) post made it onto this Facebook site with over 3,000,000 members! Doing my part to spread Hep C awareness. But PLEASE, let's not talk about politics or election results in this thread. Emotions are too high right now.

brettdc · brettdc

The moderators of the forum have given me permission to post these videos. They have been produced by GP2U, an Australian online medical practice with experience treating Hep C patients. The first video is a 90 second overview of how to access the Hep C medication, what to expect during treatment an...

winkawak · winkawak

I had a blood donation yesterday, the nurse who drew my blood wore gloves but while in the process of collecting blood she went off doing other things like packaging test tube boxes and input stuff on her computer. At the end of the blood draw she folded my gauze pad before withdrew the needle, my worry is...

MaxiePoo3 · MaxiePoo3

ooops on that hijack... Thank you for catching me Tig. Im not to savy with chatting. Matter of fact, this is my first time as well as Cuddys in any Chat type situation. We have alot to learn, lol. Cuddy did speak to an attorney, or might I say the attorney spoke at him. Cuddy said he couldnt get a wo...

Juliet17 · Juliet17

Although it's a bit embarrasing to post these horrific photos of the ulcers on my face, this condition is not an uncommon complication of HCV. Yet there's not much info on the Internet about it. It's more common to see ulcers like this on the legs, but they can occur anywhere. If you see any "moon craters...

Iris Dragonfly · Iris Dragonfly

Hi guys I just got back from the fibro scan. The girl said she couldn't read the results but I saw a number coming up on the screen, near the bottom of the machine that changed slightly from 1.25 to about 1.67 ...I presume that was the score, and if so looks to be near similar to the blood test. Which was betwe...

Juliet17 · Juliet17

I hope I spelled it right! The first of the good news is that I had my fibroscan, and I am at stage 0. Yay! Next good news: I was approved for treatment and got my first month of Sovaldi/Daklinza. Because of my CIGNA coverage and the copay coupon my pharmacy arranged, here is the grand total of my out-of-poc...

JimmyK · JimmyK

Greetings my sister to The North. I want to take a moment to say you are my true idea of someone who cares. Cares for the folks that are setting out on the path we have traveled side by side. To be UND and here to help speaks volumes of the fantastic woman you are. There may here be no such thing, but if there wer...

Canuck · Canuck

It takes some Australians (who are now wisely spending a billion dollars for good accessible HCV treatment for their population), to point out, that Canadians "aren't doing it right" - and, those nice wise Australians were being VERY polite about it too, imho, in their assessments and suggestio...

JimmyK · JimmyK

A rough night is at your door. Please keep us updated and know you are in our thoughts and prayers. JimmyK -- Edited by JimmyK on Wednesday 5th of October 2016 09:09:55 PM

Topic		Started By	Replies	Views	Last Post
	Article I liked (Boston Meeting) - on Access to Treatment - USA (Preview) Call to Action: Physicians Needed to Alleviate HCV Treatment RestrictionsHCV Next, May/June Robert Greenwald, JDIn conducting our national review of Medicaid restrictions for hepatitis C virus treatments, it became obvious that people living with HCV and the broader HCV advocacy community n...	Canuck	0	637	May 24, 2017 by Canuck
	Hello Rick here with a question !!!! (Preview) I just got a call from the doctor saying that the Insurance will not pay for Harvoni but will pay for Zepatiar any thoughts ???????	Rick	11	1049	May 20, 2017 by Canuck
	The waiting is the hardest part (Preview) I arranged to start my Epclusa treatment in July, to accommodate some travel we had planned for May and June. My HMO wants to keep me on a short leash during treatment so running off to Europe, then Idaho-Wyoming-Montana to scare trout with my Epclusa in hand was not going to happen. The Europe trip was F...	LamontCranston	2	751	May 18, 2017 by LamontCranston
	Post treatment effects? (Preview) I just got approved for treatment last week with Epclusa. I received the first months supply yesterday and I'm planning on taking my first dose tomorrow. I remembered reading some stores about people having some post treatment effects so I started looking into it a bit more and I am seeing quite a few p...	CodeNinja	3	888	May 12, 2017 by Tig
	Snubbed! (Preview) Is anyone else dealing with this kind of thing? I've told very few people that I have Hep C: my husband, my children, my sister, and my ex-husband's wife (perhaps surprisingly, we are friends and I think she is a wonderful person). More recently, I've sent private messages in FaceBook to 4 people who ar...	Juliet17	7	1541	Apr 25, 2017 by kozanne
	Vietnam Vet added to the Wall (Preview) This is an article Cheddy brought to my attention. I recommend it. It tells the story of a Soldier that acquired HCV as a result of battlefield injuries while serving in Vietnam. RIP Warrior.... Vietnam Memorial	Tig	5	1008	Apr 24, 2017 by marcos828
	IBS-D and cirrhosis (Preview) Not a fun thing to experience or share, but I was wondering if any others out there have similar experiences? My bowels have always been on the loose side, but manageable with psyllium to slow things down. It has been just a nuisance going on for decades, but cleared up to almost constipation for a coupl...	VetwithC	17	3146	Apr 23, 2017 by LamontCranston
	Well, got my news from the doctor (Preview) Had the Fibroscan and an ultrasound on Tuesday. Doc called just a bit ago. Said the Fibroscan said I was scarred, the ultrasound said the liver was smooth. Ultrasound found a 2cm mass on the right lobe, so now I'm going to be scheduled for a CT next week. Doc said he did not know what the mass is and cou...	kozanne	4	601	Apr 21, 2017 by Canuck
	I'm looking to learn more about the biggest pain point individuals with Hep C face when it comes to overall management a (closed) (Preview) I am currently in the process of developing a product to help individuals with Hepatitis C manage their condition on a day to day basis and communicate with caregivers and care professionals in their circle. I have currently partnered with an NHS Hospital as well as an HCV non-profit to pilot a produc...	digit	1	489	Apr 10, 2017 by Tig
	I would love your help on my student directed study! (Preview) Hi! I know this may seem obstructive, but I am doing a student directed study on Hepatitis C. I live in a small town so it's hard to gather a lot of personal stories and information on Hepatitis C. If any of you, would be willing to provide your email or chat on here to answer some of my questions, it would be r...	Girlwithastudy	0	530	Mar 28, 2017 by Girlwithastudy
	Tom and Laura (Preview) Hi all. Just stopping in to say hello to all and pray everyone is doing well. Tom is still hep c free thanks to harvoni. We continue our trips to Mt Sinai every three months for his liver MRIs. His last two showed to new spots but his surgeon doesn't want to do anything to them until he knows for sure its cance...	tomyboy	2	539	Mar 23, 2017 by Tig
	The U.S. Government Should Buy Gilead For $156 Billion To Save Money On Hepatitis C (Preview) http://www.forbes.com/sites/sciencebiz/2017/01/17/the-u-s-government-should-...	Jaded	2	768	Mar 22, 2017 by LamontCranston
	2016 Your year in review readers digest form. (Preview) I thought it might be a good idea to open a thread for the members to give a summary of 2016 and what happened during this past year now that we approach the end of it. Since I started this, I will go first. Feb 9th, start of 12 weeks on Harvoni with starting numbers of ALT 187, AST 114, VL 2.3 M May 2nd, End of...	Shadowfax	20	2272	Feb 3, 2017 by Shadowfax
	Just a non-HCV "general interest" article re: Wisconsin area infection (Preview) Just a non-HCV "general interest" article I came across, regarding a small, rare, but nasty disease outbreak in Wisconsin area, mostly in the average 77 year old age bracket (earlier this year). But serious outcomes for a high percentage of infected. Probably 63 cases. Possibly a 29% death rate. T...	Canuck	6	1076	Jan 31, 2017 by Tig
	Pregnancy after Harvoni? (Preview) Hello all, I am fairly young but reaching the end of my fertile years. I am about to start Harvoni for 8 weeks. I am a little nervous because although the dr said there would be no problems with getting pregnant even right after treatment, I would like to hear some stories of people who have gotten pregnan...	momo3	2	971	Jan 25, 2017 by momo3
	Checking in (Preview) Hey guys Haven't been on here in forever and decided to stop back by. Any new treatments out there for Harvoni relapser's? Thanks	HR	8	1001	Jan 24, 2017 by Canuck
	Very Urgent- treatment for me who (as you know failed viekira+Exviera 1b) (Preview) Hello, I have been offered re-treatment from NHS Elbasvir/Grazoprevir. I know I should add Sofosbuvir and Ribavirin. As I have L31M would you recommend me to wait for other drugs form Abbvie or Gilled? I know nothing about ZEPATIER, and is it a good solution for me? thank you ------I am 41 y....	mcmaklin	12	1816	Jan 3, 2017 by Canuck
	That's 2.5 BILLION folks (Preview) Healio: Merck Wins Vs Gilead $2.54 Billion Shortened the link, JK. -- Edited by Tig56 on Tuesday 20th of December 2016 10:35:22 PM	JimmyK	4	810	Dec 22, 2016 by dharmabum
	I find this facinating... (Preview) ,,, and at the same time l kind of feel like slapping any so called clinician who would while, no doubt be overtly infected with dickeydoo disease, but regardless of his disadvantage, there seems to me to be little excuse for such a statement; "The question of whether and when to treat patients with hep...	JimmyK	9	1155	Nov 24, 2016 by JimmyK
	Interesting (Preview) http://medicalxpress.com/news/2016-11-virus-liver-cancer-cells-hepatitis.html?ref=yfp	Scruffy	6	868	Nov 16, 2016 by dharmabum
	Spreading the word....WOOHOOO (Preview) My (attached) post made it onto this Facebook site with over 3,000,000 members! Doing my part to spread Hep C awareness. But PLEASE, let's not talk about politics or election results in this thread. Emotions are too high right now.	Juliet17	6	878	Nov 10, 2016 by Ruby Red
	Hep C medication videos for new patients (closed) (Preview) The moderators of the forum have given me permission to post these videos. They have been produced by GP2U, an Australian online medical practice with experience treating Hep C patients. The first video is a 90 second overview of how to access the Hep C medication, what to expect during treatment an...	brettdc	2	1459	Nov 8, 2016 by Tig
	Bad Blood Donation Practice Worries (Preview) I had a blood donation yesterday, the nurse who drew my blood wore gloves but while in the process of collecting blood she went off doing other things like packaging test tube boxes and input stuff on her computer. At the end of the blood draw she folded my gauze pad before withdrew the needle, my worry is...	winkawak	5	940	Nov 6, 2016 by Tig
	thread hijack (Preview) ooops on that hijack... Thank you for catching me Tig. Im not to savy with chatting. Matter of fact, this is my first time as well as Cuddys in any Chat type situation. We have alot to learn, lol. Cuddy did speak to an attorney, or might I say the attorney spoke at him. Cuddy said he couldnt get a wo...	MaxiePoo3	1	718	Nov 2, 2016 by Tig
	Cutaneous vasculitis/cryoglobulinemia (Warning: graphic) (Preview) Although it's a bit embarrasing to post these horrific photos of the ulcers on my face, this condition is not an uncommon complication of HCV. Yet there's not much info on the Internet about it. It's more common to see ulcers like this on the legs, but they can occur anywhere. If you see any "moon craters...	Juliet17	3	991	Oct 31, 2016 by Phoenix17
	Fibroscan today (Preview) Hi guys I just got back from the fibro scan. The girl said she couldn't read the results but I saw a number coming up on the screen, near the bottom of the machine that changed slightly from 1.25 to about 1.67 ...I presume that was the score, and if so looks to be near similar to the blood test. Which was betwe...	Iris Dragonfly	10	958	Oct 31, 2016 by Juliet17
	Got my meds (yay!) but hit a snag, possible cryoglobulinemia (Preview) I hope I spelled it right! The first of the good news is that I had my fibroscan, and I am at stage 0. Yay! Next good news: I was approved for treatment and got my first month of Sovaldi/Daklinza. Because of my CIGNA coverage and the copay coupon my pharmacy arranged, here is the grand total of my out-of-poc...	Juliet17	11	1003	Oct 31, 2016 by Juliet17
	Canuck (Preview) Greetings my sister to The North. I want to take a moment to say you are my true idea of someone who cares. Cares for the folks that are setting out on the path we have traveled side by side. To be UND and here to help speaks volumes of the fantastic woman you are. There may here be no such thing, but if there wer...	JimmyK	11	810	Oct 25, 2016 by Sydhanrahan
	Canadians having trouble getting DAA's (Preview) It takes some Australians (who are now wisely spending a billion dollars for good accessible HCV treatment for their population), to point out, that Canadians "aren't doing it right" - and, those nice wise Australians were being VERY polite about it too, imho, in their assessments and suggestio...	Canuck	0	612	Oct 24, 2016 by Canuck
	For the Florida Friends (Preview) A rough night is at your door. Please keep us updated and know you are in our thoughts and prayers. JimmyK -- Edited by JimmyK on Wednesday 5th of October 2016 09:09:55 PM	JimmyK	34	1113	Oct 19, 2016 by Cheddy
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