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Forum Fund Raising - Contributions
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Forum Fund Raising This post was getting quickly buried! I had to dig to find it again, even though it is recent! I'm glad you had posted it Tig. Man, it's been a LONG time! that I can remember any fundraising being done - what, does this site just live on air? (hot air maybe, hee hee). I think Linux was the la...
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Canuck
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1
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Cochrane report
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http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD012143.pub2/full
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Loopy Lisa
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8
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1814
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Zepatier pros and cons
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Hi there folks, I saw the Hepatologust about a month ago and since my insurance wont approve Harvoni he suggested this Zepatier which I had not heard of. What are the risks and has anyone tried this and been successful? How did you do on it? Thanks, Iris
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Iris Dragonfly
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1086
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2 Weeks to go, then 3 months of Epclusa
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Posting from Yellowstone MT that I am enjoying the last few days before I start treatment. I have to admit I am anxious to just get started and on the road to a cure. Ever since my DX I have been noticing the little, but significant signs that my body is under attack, the bruising under my skin, dull ache in u...
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LamontCranston
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8
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1945
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Should I tell my dentist?
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I have a checkup next week at the dentist. Does he need to know about my diagnosis, or is it not any of his business? I remember there was a dentist who transmitted HIV to a lot of his patients, but they weren't practicing good hygiene and sterilization in the office, as far as I recall anyway. I'd hate for h...
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LamontCranston
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20
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2568
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URGENT WARNING to those seeking Treatment for Hep C
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Greetings, When I say I know of what I speak, I know of what I speak. I would say "trust me" but the fact is, you don't know me. To PROVE that you don't know me I ask you to take pause... ... think to yourself and ask the question; "Do I know this guy?". In fact; "Do I know anyone living in Texas?" OH and if so, "Do I...
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JimmyK
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13
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2399
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World Hepatitis Day - July 28th 2017 - The Hepatitis C Trust (UK)
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The Hepatitis C Trust will be celebrating World Hepatitis Day on July 28th 2017, with a free conference for everyone affected by or interested in hepatitis C. The programme for the day and details for registering your place are available here http://www.hepctrust.org.uk/blog/jun-2017/hep...
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Sam1962
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1
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1131
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Looks like I have bigger problems than Hep C
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Dr. told me today. Cancer, right lobe. Rest of the liver looks actually very good and my bloodwork looks good. cholangiocarcinoma as opposed to hepatocellular. Talked to me about interventional radiology/targeted radiation or targeted chemo.
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kozanne
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6
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1092
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RIP Gregg
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Well theres not much to say. Complications due to hep c claim another. RIP Gregg Allman.
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Scruffy
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1
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1333
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Article I liked (Boston Meeting) - on Access to Treatment - USA
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Call to Action: Physicians Needed to Alleviate HCV Treatment RestrictionsHCV Next, May/June Robert Greenwald, JDIn conducting our national review of Medicaid restrictions for hepatitis C virus treatments, it became obvious that people living with HCV and the broader HCV advocacy community n...
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Canuck
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0
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854
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Hello Rick here with a question !!!!
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I just got a call from the doctor saying that the Insurance will not pay for Harvoni but will pay for Zepatiar any thoughts ???????
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Rick
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11
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1356
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The waiting is the hardest part
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I arranged to start my Epclusa treatment in July, to accommodate some travel we had planned for May and June. My HMO wants to keep me on a short leash during treatment so running off to Europe, then Idaho-Wyoming-Montana to scare trout with my Epclusa in hand was not going to happen. The Europe trip was F...
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LamontCranston
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2
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1097
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Post treatment effects?
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I just got approved for treatment last week with Epclusa. I received the first months supply yesterday and I'm planning on taking my first dose tomorrow. I remembered reading some stores about people having some post treatment effects so I started looking into it a bit more and I am seeing quite a few p...
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CodeNinja
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3
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1325
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Snubbed!
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Is anyone else dealing with this kind of thing? I've told very few people that I have Hep C: my husband, my children, my sister, and my ex-husband's wife (perhaps surprisingly, we are friends and I think she is a wonderful person). More recently, I've sent private messages in FaceBook to 4 people who ar...
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Juliet17
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7
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1949
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Vietnam Vet added to the Wall
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This is an article Cheddy brought to my attention. I recommend it. It tells the story of a Soldier that acquired HCV as a result of battlefield injuries while serving in Vietnam. RIP Warrior.... Vietnam Memorial
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Tig
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5
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1316
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IBS-D and cirrhosis
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Not a fun thing to experience or share, but I was wondering if any others out there have similar experiences? My bowels have always been on the loose side, but manageable with psyllium to slow things down. It has been just a nuisance going on for decades, but cleared up to almost constipation for a coupl...
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VetwithC
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17
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Well, got my news from the doctor
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Had the Fibroscan and an ultrasound on Tuesday. Doc called just a bit ago. Said the Fibroscan said I was scarred, the ultrasound said the liver was smooth. Ultrasound found a 2cm mass on the right lobe, so now I'm going to be scheduled for a CT next week. Doc said he did not know what the mass is and cou...
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kozanne
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4
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I'm looking to learn more about the biggest pain point individuals with Hep C face when it comes to overall management a
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I am currently in the process of developing a product to help individuals with Hepatitis C manage their condition on a day to day basis and communicate with caregivers and care professionals in their circle. I have currently partnered with an NHS Hospital as well as an HCV non-profit to pilot a produc...
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digit
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I would love your help on my student directed study!
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Hi! I know this may seem obstructive, but I am doing a student directed study on Hepatitis C. I live in a small town so it's hard to gather a lot of personal stories and information on Hepatitis C. If any of you, would be willing to provide your email or chat on here to answer some of my questions, it would be r...
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Girlwithastudy
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0
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Tom and Laura
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Hi all. Just stopping in to say hello to all and pray everyone is doing well. Tom is still hep c free thanks to harvoni. We continue our trips to Mt Sinai every three months for his liver MRIs. His last two showed to new spots but his surgeon doesn't want to do anything to them until he knows for sure its cance...
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tomyboy
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The U.S. Government Should Buy Gilead For $156 Billion To Save Money On Hepatitis C
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http://www.forbes.com/sites/sciencebiz/2017/01/17/the-u-s-government-should-...
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Jaded
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2
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2016 Your year in review readers digest form.
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I thought it might be a good idea to open a thread for the members to give a summary of 2016 and what happened during this past year now that we approach the end of it. Since I started this, I will go first. Feb 9th, start of 12 weeks on Harvoni with starting numbers of ALT 187, AST 114, VL 2.3 M May 2nd, End of...
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Shadowfax
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20
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2599
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Just a non-HCV "general interest" article re: Wisconsin area infection
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Just a non-HCV "general interest" article I came across, regarding a small, rare, but nasty disease outbreak in Wisconsin area, mostly in the average 77 year old age bracket (earlier this year). But serious outcomes for a high percentage of infected. Probably 63 cases. Possibly a 29% death rate. T...
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Canuck
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1409
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Pregnancy after Harvoni?
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Hello all, I am fairly young but reaching the end of my fertile years. I am about to start Harvoni for 8 weeks. I am a little nervous because although the dr said there would be no problems with getting pregnant even right after treatment, I would like to hear some stories of people who have gotten pregnan...
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momo3
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1299
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Checking in
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Hey guys Haven't been on here in forever and decided to stop back by. Any new treatments out there for Harvoni relapser's? Thanks
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HR
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Very Urgent- treatment for me who (as you know failed viekira+Exviera 1b)
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Hello, I have been offered re-treatment from NHS Elbasvir/Grazoprevir. I know I should add Sofosbuvir and Ribavirin. As I have L31M would you recommend me to wait for other drugs form Abbvie or Gilled? I know nothing about ZEPATIER, and is it a good solution for me? thank you ------I am 41 y....
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mcmaklin
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That's 2.5 BILLION folks
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Healio: Merck Wins Vs Gilead $2.54 Billion  Shortened the link, JK. -- Edited by Tig56 on Tuesday 20th of December 2016 10:35:22 PM
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JimmyK
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I find this facinating...
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,,, and at the same time l kind of feel like slapping any so called clinician who would while, no doubt be overtly infected with dickeydoo disease, but regardless of his disadvantage, there seems to me to be little excuse for such a statement; "The question of whether and when to treat patients with hep...
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JimmyK
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Interesting
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http://medicalxpress.com/news/2016-11-virus-liver-cancer-cells-hepatitis.html?ref=yfp
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Scruffy
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Spreading the word....WOOHOOO
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My (attached) post made it onto this Facebook site with over 3,000,000 members! Doing my part to spread Hep C awareness. But PLEASE, let's not talk about politics or election results in this thread. Emotions are too high right now.
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Juliet17
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