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Post Info TOPIC: Health Updates - Among Friends


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RE: Health Updates - Among Friends
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hi C,

they are DS , double strength and i'm tolerating them well.

i'm still peeing alot and it doesn't smell pretty most of the time

most pain is gone now,  i had tenderness on the sides and middle of my pelvis so it was bothering everything. 

now i'm searching for probiotics, nothing too strong or it will be a problem for me 

i hope the new herbs work. st johns wort and valerian are not good for liver disease , so chk for that, ok? 

oh, i didn't get a call from the doc today even tho i know they got the lab report [my labcorp account said so]

so i presume i have infection and they had nothing to add.

no matter, i'm happy to get cleared of anything before the GB goes.... and any antibiotic makes my sinus happy



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



Guru

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Good, I like the sounds of that, getting a 10 day course of the Bactrim. It might be the regular strength Bactrim (versus DS double strength) if she said to take 2 tablets a day.

Getting a course duration of 10 to 14 days of bactrim should cover a uti with or without kidney infection involvement. 

Macrobid, i read, was not the best choice should kidney infection be involved.

Anymore funny UTI-kind of symptoms still happening? abdominal/back/bladder symptoms? or has everything gone quiet now, bladder wise? Hope it's gone quiet now. Hope you are getting some better zzzz's too.

I just tried a couple nights of something called "u-dream" - some heapin pile of herbal stuff in a capsule, jury is out, I'll let ya know. ; )  C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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yes, 10 days, 2 pills a day.... the bottole is way over there and i'm way over here on the laptop. i'll post that later



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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5,

Good things are a bit more settled.

So, the prescribed course length is 10 days?

How many mg's per tablet and how many tablets per day?  : )  C.

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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hi C, yep started wed , so 3 pills done and 1 more in 3hrs. 

still waiting on the latest c&s

they might call me friday; that's how it was last week. 

i'm just tired but am home relaxing....drinking water and watching tv

 



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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5,

So, after the nurse phoned on Weds, and she and doc encouraged you to go ahead and start taking the bactrim ... did you? You DID start taking it on Weds then?, and, is the prescribed course supposed to be taken for a total of 10 days (or, for how long)? (Sounds like you started the bactrim, but, I'm just wanting that clarification, as before, you thought you might wait until Friday when you were to get results back from a urine C&S).  C. 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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hi polo and cheddy,

and thanks all you friends for listening and responding

yep , it's good to have these little pills that know just what to do when we take them

so far i just feel better rather than worse; not sure why i balked at this. i think it's cos the whole uti/kidney thing is new to me...so used to the liver blues and the quiet kidneys haven't ever given me a peep.

polo , that is so cool you've gone so long without antibios! wow

i took them a lot for sinus infection but finally found that azilastine that keeps things good up in there, so i was looking forward to being antibio free....

oh yea, eurthro wrecks my stomach, but the Azithromycin doesn't.

rest, good food and water are def on my menu.

i def put the dr thru her paces but i don't see her too much during the year....except the last 2 weeks.

and for sure will work on get on the probiotics soon too. my gallbladder hates yogurt, but maybe when they remove it i can eat yogurt again, that would be awesome.



-- Edited by 5-1-18 on Thursday 29th of August 2019 12:58:51 AM

__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Hey 5erator.  I've taken cipro without issue.  I did pay attention to upping the friendly flora.  I'm not sure if it helped at the time as the antibiotics kill off so many flora, but I reloaded after with yogurt and kombucha types of things.  I once had a negative reaction to erythromycin so I avoid that.  Really, though, instead of fearing these treatments, I feel pretty darn lucky that we live in a day and age where we have them to overwhelm the "bad guys".

Ever onward!



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Hi 5 --- Plenty of water and rest along with your prescribed treatment should do you good. Lay low and take it easy. 

BTW, I took cipro several years ago back in the 90's and it worked well for me, and no side effects. That's last time I look a pill form of antibiotics. I've taken eye drop antibiotic too that I was told was like cipro and it cleared up an infection in my eye about 10 years ago. 

Wish you the best and keep us updated.

ps

--sending good vibes!biggrinbiggrin



-- Edited by polosilver on Wednesday 28th of August 2019 09:43:34 PM

__________________

 

New: Hepatomegaly 07/30/2019, AST 29 & ALT 15

Female,1a,F2 mod fibrosis,HCV 06/2017,SOT 08/04/2017, Harvoni

HCV VL 414,000, AST 54, ALT 74.  4 weeks AST 34 and ALT 31, SVR, Jan 2018. 

12 week EOT, AST 20 & ALT 23 and still VL UND.

Club Zero Member.

 



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tnx obs, yes the sulfa drugs? thankfully i can take them. did you ever take cipro?

 

well the nurse called and dr said go ahead and start , it's ok. that's all i wanted, to know it's a good idea to start.

this way i'll have 3 days down before i go to work and i'll know how it's going by then. then work a 2days and be off for 4 again.  or 3 to 3 of each, either way i can go home if i feel sick and just get thru the 10 days  

i plan to get thru the 10 days easily

 

slept-ish about 5hrs

i'm def drinking  a lot water of with this tx, harvoni def taught me that , and only one small cup of cranberry during the 10 days. i'm using my harvoni pill reminder

AND my favorite gallbladder helper, tums, is allowed anytime

i guess i was more worried about how the GB was gonna handle this, maybe it will like it - i know my sinus always likes antibiotcs

 

 



-- Edited by 5-1-18 on Wednesday 28th of August 2019 08:51:32 PM

__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Hey 5. 

The one I am allergic to is called Sulamethoxazole-Trimel.

cheers



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 



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i just got home from the doc and pharm. i signed in at 7:30 and saw her about an hour later.

we went over my labs, she wasn't concerned about the high alubin, she said it means i have been eating nutritious food.

all the other labs were just a little over and the one under so she decided to get the urine c&s before i have to commit to the antibiotics. i hope to know by friday.

she mainly thot i could wait since i have such a hard time with the antibiotics, but i'm concerned that i'm just putting off the inevitable. i told her i rather get started and she said ok, but now i'm thinking again...blankstare

blankstareblankstare and if they don't call friday with a detailed message it's the holiday over here 

i don't like having to make this decision. i know i want to feel better , sleep betteor and be well.  

and yes, it was a c&s test and she offered bactrim last monday. ,gonna try to nap now and decide tomorrow.

 



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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hi obs,

i usually do easy, low impact movements. i suppose becos my uti was bloating me out i was doing more vigorous exercise blankstare ; of course i didnt realize i had it at the time. 

so...from now on it's back to my easy,gentle movements. i do have a ti chi dvd i can use as i get better with the bactrim

i slept 14 hrs monday nite into tuesday but no sleep tues into today , it is just too early for my biorythms to try to go to sleep before 5am, and having to get up by 6.....well.

hey, do you remember that antibio that did that to you? i write them all down, i'm even thinking of getting a bracelet to warn off about macrobid , but at least i know and i had the time to experiment-now i can say NO if offered.

i was wishing i had gone straight to the bactrim, but like i said, i know for sure and what if they were perfect for me?

as long as we have a dr's note when we miss work for illness they don't care, and there is usually more help on the weekend so i'll be ok there. i need to rest after all these up all niters.

it is a shame that i have to stay up all nite to see my dr, but she fills up fast and going past noon i'll get turned away.

i do hope this dr. day is shorter than monday tho

 



-- Edited by 5-1-18 on Wednesday 28th of August 2019 09:38:27 AM

__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Ah yes good old ecoli hmm 

im glad youve been able to rest and that your job is flexible enough that you can lighten your schedule while you adjust/heal from this. 

And Im really glad those nasty symptoms from the antibiotics are gone... I had a similar reaction to an antibiotic once ....thought I was having the warning signs of a heart attack.

i hope the bactrim works quickly and efficiently for you 

take care 5...

btw have you looked at chi gong for your light exercise? Im a big believer in it as it was developed for healing and its super easy. Even just 5 -10 minutes a day makes a huge difference in my life... I even do some of the arm/breathing exercises lying in bed on the odd occasion that I get insomnia...wink



__________________

61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 



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hi C,

 the doc must have got more info on her copy than i did , cos no where did it say ecoli

i took bactrim well enough for years then it bothered my stomach so i only took azith ,zpak

i understand this needs something stronger so i tried the killer macrobid, at least i know for sure i can't take it and i'm thankful those sides didn't last.

so yea, just get the prescription for bactrim, maybe an extra day off to get used to the bactrim and have a shorter work week while on it. , and maybe lab requisition for when i'm done with the bactrim.

then i can keep the liver doctor outta all of this :rolfl:

this is my first known uti or kidney anything..... gee , now i'm knowing almost as much about this as HCV and gallbladders. blankstare

i'm ready for bed so hope i fall asleep easily



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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5,

Glad you got 40 winks in.

So, somewhere in the reports you are mentioning, you must be reading a lab report (from a urine culture and sensitivity test - C&S test) if you are telling me that you know you are growing ecoli, then it must be the urine C&S report that is telling you that. You also mention wbc's, rbc's and "few" as a number of bacteria? All this info is from the C&S report (I am guessing), or, from the R&M report as well - regardless, just assuming some of this  info came from your general urine tests, you would still be highly suspect of being symptomatic of having a uti (obviously your doc thought this was the case, when she first gave you the macrobid).

The urine C&S report should also indicate (not just what organisms were there - what was "cultured") but what the organism is resistant to and/or sensitive to ... did you read anything like that on your urine C&S report, what your ecoli was sensitive to (aside from that they could see you were growing ecoli)?

Ecoli is a very common culprit/finding in uti's, bactrim is also a very common antibiotic rx for uti's. That would be good IF your urine C&S report says your ecoli IS sensitive to bactrim (as you have taken bactrim OK before).

I will be glad when you can get started on the course of bactrim, as long as your ecoli is sensitive to it and your doc gives you a long enough course of it (in case your kidneys are involved), some docs give fairly short courses of certain antibiotics for simple uti's, if kidneys might be involved it is wise to make sure the course is adequately long - either way, the course has to be adequately long.

Don't sweat the other stuff, other labs/other appointments, that will all happen when it needs to happen, just concentrate on getting this uti issue taken care of. (I think you said you were going back to the GP tomorrow?) - so, get on the bactrim IF that's what the doc says to take. First things first. If you feel you need some extra days off work while you have to be going through all this stuff, then ya, just arrange that.

Rude, these uti things are eh?! I'll say so! I am so glad I have rarely had uti's now in my "adulthood".  : ) C.

 

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



Guru

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how soon is too soon for labs?

i have in my possession the lab request from the liver doc ,  i took my other labs a week ago .

i could go get those labs and have results by friday and they i would only need my fam.doc to do follow up labs post batrim.

i will still see her and maybe even get a note for a cpl xtra days off from work

i could still see her but i would see the liver doc's labs way sooner



-- Edited by 5-1-18 on Tuesday 27th of August 2019 09:42:04 PM

__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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my albumin was slightly high, 5.1 rather than 3.6-4.8

the bacteria says "few"

rbc 3-10 -rather than 0-2

wbc esterase  1+ abnormal

carbon dioxide low 19 - normal is  20-29

creatine was half a point high [hmmm, that is what went so high on hubby]

egfr was 1 point high [also kidney'

 

so i guess the albumin might have to do with the kindney? 

and who knows what the gallbladder is causing. 

i do have low back pain, but very slight, and very slight lower belly fullness, but i just had water, coffee and cranberry and have always had ibs.... 

what a juggle.

i had also been exercising again, light arobics, but maybe my body hates any kind of impact now blankstareconfuse






-- Edited by 5-1-18 on Tuesday 27th of August 2019 06:52:54 PM

__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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thanks cheddy.

i'll still do follow up wth the doc tomorrow.... 



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Yay!!!!!  No pain. Good sleep. Questions answered. Solution enacted.  Way to go, 5.



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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hi c & obs,

well i feel fine now after some sleep.

those pills also cleared out every inch of my GI tract... and nothing at all hurts.

that's what's weird, my symptoms didn't show except for the frequent urination for a little over a week.... that is gone now and no pain.

my blood showd rbc in the kidney labs.

it was ecoli baccteria , prob from when i had all that diarea with the gallbladder so many times cry

cipro just sounds dangerous with tendons breaking and other such stuff.

i will call today and ask to have bactrim sent to the pharmacy and another round of labs...but the doc won't be there till wed so i might go back.

mainly my arms are ok now and i can take bactrim and azith ok.... yes obs i have lots of weird reactions to antibios.

so now i'm on some weird sleep schedule but i'm sure it will all work itself out.

nothing was as weird as the neuro symptoms my arms had tho....wow, scary. tingling, pins and needles, numb

thanks friends.






-- Edited by 5-1-18 on Tuesday 27th of August 2019 08:52:00 AM



-- Edited by 5-1-18 on Tuesday 27th of August 2019 08:53:19 AM

__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Oooo 5, thats a scary reaction to the antibiotics...you poor thing so so sorry that happened to you, it sounds like an allergic reaction? Have you had bad issues with antibiotics before...(sorry if youve talked about it before, I have a ****ty memory  ...which is nice when re-reading a book but not nice when caring about a friend)

take care and let us know when you know.

Glad youve got the cranberry pills ...the unsweetened juice is mouth puckering..

 

 



__________________

61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

4 years.... successful dragon slayer 



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My goodness 5!

So many posts here now, since yesterday! What a dif a day makes!

Well, this has not worked out so smoothly eh?

BTW, I was glad to read that bit more "background" info on your original symptoms you added today, it went just a little further to what we we had already covered a day ago. The more info the better.

But ... I still wish I knew if they have just been going by R&M's (and symptoms), or, if they have done C&S's as well? That C&S info would be really good info to know, especially being that you and the doc decided to "try" to start antibiotics. 

Even today, with the repeat visit back to the doc, where you say the urine was "clear", but the blood test showed "something" regarding kidney?? I really wonder how to interpret both those bits of info. confuse

Wish i knew if that means your R&M showed nothing wrong, and whether they still have not done a C&S, and what the blood test was and what it showed in regard to your kidney!  More questions than answers (for me)!

Too bad you found you could not do the macrobid antibiotic, it would have been nice if taking that, had just gone tickety-boo, instead, it was a scary fail for you. Regardless (of not knowing whether we see organisms in your urine today, or not), it did "sound" probable that you had something uti (bladder/probably cystitis) going on. Macrobid (I believe i read this) is OK for lower uti (simple bladder infections/cystitis) but not as effective as some of the other antibiotic choices for kidney infections. So, this is why I am interested if they have determined if you have a simple uti, or, if you could have a kidney infection - that can influence the docs choice and length of an antibiotic course. Mild cystitis can often be treated with a shorter course of antibiotics than a kidney infection might need. Lots of folk can have additional symptoms if they have a kidney infection (back/flank pain and such), your doc is the one who has to decide whether you likely have only bladder involvement or if kidneys might be involved as well. It is curious what they said about your blood test showing "something" about your kidney - i can't imagine what test that was/what it showed - we can only guess about that until you get the results!

Either way, whether one has a simple bladder infection, or, has a kidney infection, organism's should be showing up in both the R&M and C&S.

A urine C&S should be guiding you and the doc as to what the organism is, what the organism is sensitive to or resistant to, and therefore what the best antibiotic choices are for it. If both your R&M's and C&S's keep repeatedly coming back negative, and, you have NO urinary symptoms, then i guess your doc would not be wanting you to take antibiotics.

Did you have a prior bad experience with cipro? Just wondering why you were so abhorrent of the thought of it.

What family of antibiotics have you taken in the past successfully?

Get caught up on some sleep, get further head bumping with the doc done, as to your R&M/C&S's and other labs results, and keep drinking that lots of water until you guys decide what you are going to do (or take) next. 

Poor dear - what a lot of trouble for you! - you will get through this tho, I swear!  : /  C.

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

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MissusB wrote:

Oh no!!!!  Sounds like side effects are scary!  Hope you are better soon.  My mom has 2-3 UTIs a year and the doc always gives her Rocephin. 


 i will look that up MB, thankyou.

it feels better knowing my arms are ok, that's for sure. 

i'll call the nurse tomorrow and leave a message.

for now i'm just trying to unwind , watching tv and eating light with lots of water. i don't have a fever so that's a plus



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Oh no!!!!  Sounds like side effects are scary!  Hope you are better soon.  My mom has 2-3 UTIs a year and the doc always gives her Rocephin. 



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oh my, this isn't gonna work. i had numb arms and now tingling .... the phrarmacy is clueless and the doc is gone till wed.,  the web says this drug can cause this

guess who's not taking pill #2?

i couldn't even sleep due to my arms....but i seem to be doing better now.. all that stress for this. omg.

she ordered the ultrasound to chek out kidney,bladder etc tho so for now i'm back on the cranberry.... well later when my stomach calms down.

remember that name folks. macrobid

more later friends. 

harvoni was easy compared to this



-- Edited by 5-1-18 on Monday 26th of August 2019 08:14:28 PM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

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Well, it sounds like a lot of running back and forth, but at least you got some answers and direction forward. That’s good news! I do hope things start flowing as designed soon. 

You should fill the Cipro and put it in your survival kit. It’s good if you’re ever attacked with Anthrax, lol! You never know these days wink  I’m glad you had the first script to fall back on. The relief typically follows fairly quickly, but you need to stay real hydrated and if you can, take a pro-biotic to keep your gut bacteria in balance while you take them. It really helps.

Give up sugar? OMG, that would kill me faster than eating it! I honestly need an intervention. I’m a snacking wreck... no



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thanks cheddy,

yep, it will be nice when the pee time goes back to normal.

and yes, the terror of "what if" is gone

i have cut way back on sugar, i joke about white cake but only get a 3 x 3 inch square of it a cpl times a month; and don't eat candy or cookies or pastry etc.

 i think i was eating too much bread, that is my comfort food.... even if it is low sodium, i am only over by 7 points on the sugar but i will be even more careful. 

i never add sugar or honey or etc to anything and eat just the slightest smear of no sugar fruit spread ..... it has to be the bread

and that fake sugar ice cream i had a few weeks ago ended up giving me the worst gas so no more of that...i don't do fake sugar either.

my skin seems to have become hardier but i still can't eat most veggies or cheese......anyway..... as the diet turns 

and i took my pill almost 2 hours ago and no weird sides, i'm always happy when the first 2 hrs are over.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Good work, 5. I'm glad you are taking the pills just so that you can get this over with. If something else comes up with that, you'll solve it, too. That's what you do!

Getting off of the sugar might be good anyway.  It's kind of hard at first, but it really does get easier, and better too.  

I'm so glad you are on the right track. No "tinkle terror" for you!



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holy cow, i feel like i was on  the mr. toad ride at disneyland.

saw the doc and pee test was neg but my blood work showed something in the kindneys etc; i will get my own report tomorrow so i didn't see them today. they had misplaced my labs so had to wait some more while they found them.

i asked for the shortest time pills and she gave me cipro for 3 days, i drove to the pharmacy and panicked.... i don't want no stinkin' cipro... flouroquinines. wth , so i drove back to the docs and said i'd be happy to take the medawhattever.  

 

it's about 5min to the doc from my house, and 5min from doc to pharm, and 5 min from my house to the pharm. so it wasn't like C's long trips

the good thing is i was more than happy to try the new meds by the time it was all over

for now i have the pill down, feet up, ate something and watching tv; too wound up to go to sleep right now.

i was so happy when the pee test was good, then she went over the labs.cry

i had lots to laugh about on my weird trip today and now i just want the pills to work. 

i doubt this is harvoni related

thanks for all the support friends, this was scary for me.

i'm glad i got up and went cos i absolutely needed to.



-- Edited by 5-1-18 on Monday 26th of August 2019 02:34:36 PM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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thnx tig, 

i go and sign in then sit for a cpl hrs, maybe i'll be one of the first today



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Good luck, 5! 



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yay, i made it to get up time cry



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only one more hour to go till i can get up and start getting ready yawn



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tig, it's cranberry tablets i think.. and i have those but just started the cranberry a cpl days ago and not sure if i caught it in time

i will talk to the doc and pick up the meds, if the sample comes back that i def need them then i will start the antibios. 

the worst part is staying up all nite to get in to see the doc. of course i couldn't fall asleep so here i am trying to entertain myself while i wait. only  2.5 hrs till i have to be there....

oh well, had a 5 day weekend this week so i can just veg out aftewards, and i normally go to bed around this time , so it's only gonna be 4 hrs past my bedtime when i'm done with it all and back home.

still, when the clock reads bedtime ..... oh well, health is wealth.

i need to tell the doc about my GB and refill my antihistamine so it will be good for me.



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Have you ever tried that OTC medication for bladder woes called AZO? It has helped my wife and daughter in times of tinkle terror.



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thank you so much obs.

i guess i just needed to hear from someone who took antibiotics for this , now i can move forward and start taking them as soon as i pick them up from the pharmacy.

drinking the cranberry at work helped me to get thru the 2 nites feeling good, but that sugar hangover today was no fun.  i did get the organic , unsweetened make your mouth pucker stuff after work last nite. hahaha

and i have the pills now too , i will just keep them in my diet now in case this uti wants to move back in after the antibios do there thing.

can i keep drinking the cranberry while on the meds?

i'm lucky to not be in much pain, but for sure that groin area is tender to the touch and my bladder always feels full, and was hurting a few days ago, i thot it was muscle strain from working out lightly.[ at the crease where the thigh meets the pelvic area ].....and omg , peeing so much! wow



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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The women in my family have been plagued by cystitis all our lives.doh I got my first one at 9.

Sugar is a big no no. Cranberry can help (unsweetened) and Vit C can help extra water can help, a heating pad can help but personally, I would do the antibiotics if I were you. You just feel so awful with a uti and the pain...yuck! poor you

I dont know anything about macrobid , sorry, I just always do whatever meds the tests recommend for that uti. I would just do anything to stop the pain.

Hope you feel better soon



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well i'm planning on going in the morning.....ugh. have to get there at 8:30 to be seen but it will put my mind at ease.

mainly i have to pee all the time and it's weird.

how in the world is harvoni easier to take than antibiotics? blankstareblankstareblankstare



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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thanks c,

the nurse said bladder and asked me if i had symptoms so i guess even they aren't sure; left it up to me to take the meds if i feel i need them.

being new to all of this i was sure iwas gonna die if i didn't take that awful stuff.hahaha

so yep, wed will be a week and i'll do a repeat, starting the meds if i have to. 

did you take antibiotics for yours?

how do they know it's kidneys"?

i do feel a bit crappy today after so much cran and sugar [from work], now i have the no sugar stuff and cran. pills so i don't od on sugar; i was running high on the glucose test too so i'm sure this didn't help.....but i am back on the healthier path now. no more cake for awhile

 

and not sure if the GB likes the cran either :hahhahahaaha:no:



-- Edited by 5-1-18 on Sunday 25th of August 2019 11:39:41 PM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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5,

So, sounds like maybe you only had a R&M (routine and microscopic) lab test of your urine, a R&M is capable of indicating a high likelihood of a uti, but not necessarily indicate whether you had infected kidneys as well. If the kidneys were involved (along with the bladder) then you would likely be having some other more kidney-infection-like symptoms as well as bladder symptoms. But people can get all sorts of differing uti symptoms, some can have fairly "silent"infections or for some the symptoms are very noticable/clear - that's the way it was with me back in the old, old days when i had SO many uti's. Your doc would be asking you what all of your symptoms were. 

Often, they can (or will) do a further urine test, a  urine C&S (culture and sensitivity) if your R&M is indicating a uti.

I do not think one can count on "symptoms" (alone) to figure out whether the overpopulation of an organism has left your urine (or not) without further (repeat urine tests), if I get a positive R&M then I prefer to know exactly what i am growing and what antibiotics the organism might be resistant to by having a C&S done (as well as having the R&M).

Maybe if all your symptoms have come to a "complete dead stop" and you "feel perfect" again, AND a repeat R&M shows absolutely nothing, then maybe your body has cured itself - but maybe not. (In my book) the repeat R&M is a necessary minimum even if you think you are self-cured, (1) because you had indicative symptoms and (2) because your first R&M showed "something".

At minimum, it's good you planned on having another urine test, and I would talk all of it over with your doc. Good you are dousing yourself with cran.  : ) C.

PS - I read macrobid is not the first choice, if you have a kidney infection (macrobid is better for when one only has a bladder infection) - that's what the write-up said anywho.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

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hi c&mb,

i've been drinking cranberry juice for 2 days now and any symptoms i did have seem to be going away.

i had some lower ab discomfort and had to pee frequently, but seems like that is all easing up.

the urine showed something but not if it was in the kidney or bladder or tubes.

so.... i'm gonna keep on the juice a few days and go get another pee test and see if it cleared outta there on it's own; and i can talk to the doc about antibiotics.

i thin macrobid goes right thru the urinary tract, but i never had a uti before and this is a new med.

i'll go to the doc on wed. to give it a full week to change if it's going to.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Well 5,

It's hard to say or guess how good macrobiD may work for you (as opposed to how it works for anyone else) - all i know is that when i looked it up it seems to be for simple uti's and is supposed to work fairly well and in short order - but they often say that about quite a few antibiotics for simple uti's, that there are quite a few antibiotics that will work quite quickly to subdue and kill a simple uti. All i read was that macrobid would NOT be the choice if one also had a further kidney infection involvement (not a just a simple uti/cystitis).

If you are reluctant to take the macrobid, for your varied reasons (and are not in uti distress), then i suppose you could delay and go back tomorrow and discuss any other available antibiotic choices with your doc - go over what antibiotics you have ever taken in the past that did work for you (go over which ones you have "reacted" badly to in the past, find out (if they did a urine C&S) what likely uti organism you have and what it would be sensitive to, and weigh whether you have kidney involvement symptoms or not, and come up with the same or a different antibiotic choice. If they did a urine C&S the report it should list all the antibiotics the organisms will be sensitive to or resistant to. But maybe you have been through all of this drill before with prior uti experience? I did read macrobid is excreted mostly via liver. I think sulfa's (that I have been known t to have trouble stomaching - just me) have more of a urinary excretion?

If you have never taken any macrobid family drug before then how do we know how you will react to it - (in theory) it should kill the bladder organisms quickly. But they say the same for sulfa drugs and quite a few other certain antibiotics!

Logic rules, that C&S results and any hx of a complete intolerance of some certain antibiotic in the past can have some say here.  Boo on uti's - hope those symptoms get treated easily and go away fast. C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Good Morning 5....like you, Im pretty sensitive to antibiotics and avoid them unless absolutely necessary.  Have never heard of the one they prescribed for youbit did a little research...lots of info on drugs.com.



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hi friends, 

does anybody had experience or knowledge of the antibiotic Macrobid?

it was prescribed to me for a uti and it sounds just awful.

i've never had this problem before and i'm so sensitive to antibios ... yikes.

thanks for any info or input with this . 5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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update on hubby's medical news.

he was diagnosed with a high ck ..creatine kinise? that means muscle disease... prob not brought on by the harvoni is my guess, but a lifetime of athletics. 

but the ck factor is a good test to define more muscle disease.... now he'll be off to another rhumatologist soon  for further testing and advice



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Hi 5!

This is good news, that you have a plan 5.  This health business is a full time job.  Hopefully evicting the GB will make you feel better.  It's remarkable that we actually give up a body part.  Our livers wouldn't put up with that!  

Now, if you can quit smacking stuff, you veins will thank you.  Weird one.  I'll have to look at the link Iris shared.

 

Lam,

Do you have any test reports?



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SVR12 8/13/2016!!!!!!!!!  I WON!!

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thnx obs and harry



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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All the very best wishes 5 , I'm sure a lot of people are on this ride with you, everything will be ok ,sounds like your in good hands .

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What a relief to have a plan 5! Hope that naughty GB behaves itself until October. I also hope the fibres havent interfered with getting it laperoscopied out. smile



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