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Post Info TOPIC: Health Updates - Among Friends


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obs, harry, iris ,

wow... we are def troopers.

being older doesn't help things, but without the cure we wouldn't get much older i fear.

some of this is our old body, some may have been aggravated by the meds , or at least they may have added to the inflamation of our mukleoskeltal problems. 

my hubs has connective tissue disease, he only noticed it during and after tx, and the flare ups leave him sad and sore.

i get flare ups too but i just take it easy till they pass.

my skin has been sad since shortly after eot.

i have high hopes that we will all make it ok.

hugs to all of us



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Thanks for the sympathy about my toxic paradise... it seems because the grow ops are on ALR land (agricultural reserve land).... it is under the jurisdiction of the Federal government rather than my local government so...guess Ill be writing letters to Ottawa .

 

5...the drops i am taking are an European standard homeopathic called Detox Forte HD..they are for inhaled toxicity of pesticides heavy metals etc..

I also have a Chemical detox for if I ingest or touch something toxic .

In Germany there are strict standards for the alternative medicines (unlike the U.S. and Canada where you can blend herbs in a bathtub and claim its magic medicine) and I am blessed enough to have a medical Dr who practices integrative medicine...so if Western meds will help a situation, thats what I get and if German homeopathic tinctures will help, thats what I get.  Hes kept me alive for 25 years. 

He discovered my allergies and helped me manage them (three different allergy specialists just wasted my time and didnt find anything with their scratch tests, despite soy causing analphalaxis and digestiveg upsets)

He helped me manage and eventually control the horrid oozing, bleeding hives I had all over my back, chest, arms, head and neck for two or three years) one specialist told me to soak in bleach baths, the other to take reactin for a yearno) his detoxing and hives drops reduced the severity and eventually fixed em up.

Iris.. that fabreeze crap (and dryer sheets) are very very not good for your nervous system and you should not allow your brother to spray it. I know 2vpeople who had pet birds die from being exposed to it...like the old canary in the coal mine eh? 

There are essential oil sprays that will eliminate that eau de poo and smell like lemon or peppermint or just about anything that are a lot less harmful than fabreeze  

you are still suffering from numb toes...your nervous system really doesnt need to get inundated with harmful chemicals....

tig...oh my, I can relate..this is the first year of my life that I dont have a cat but I know all about the eye watering wake up only a cat can give ya...

 

 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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Hi Iris, hope you are improving, I don't know what s going on with the numb toes, IV got 2 numb toes 3numb fingers ,sic of dropping my coffee, my Dr s seems to be guessing and the liver clinic said maybe won't go away maybe it will ,so I just don't know, when did you finish treatment? I know I'm getting older but I really didn't feel like this before, my Dr says maybe pinched nerve in neck or age or treatment ,feel exhausted a lot guess will try be patient mmm.take care Iris

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Hi guys! so sorry to be out of the loop for so long,

everyone is having some sort of issue it would seem. That's a bummer I think I felt like Observer was, waiting to feel better and it just wasn't happening. Glad you found out what was boggin you down and are feeling better now.  Harry too, what is going on? aren't things supposed to improve? Like, I feel a bit better but not enough to write home about. I wake up still unrefreshed but at least not exhausted like before.

So this is my other health update, saw the orthopedic guy today about my numb toes, who wants to refer me to a neurologist and put me on drugs, which I don't think I will get filled. One is called Mobic, an anti-inflammatory, the other Gabapentin which I don't know what it does, but I'll go look it up now. I don't want to take drugs... I guess these things are metabolized thru the kidneys? I just don't want any more stuff for my liver to have to deal with.

The other thing is, I have developed a horrible case of seborrheic dermatitis on the back of my neck and now on my eyelids and eyebrows. I'm beginning to suspect that course of Acyclovir to have maybe contributed to this. I had never had this problem before. Dermatologist gave me Rx shampoo and cream but it doesn't seem to help much. Itches like crazy. It's making my hair fall out too cry

bye for now, Iris

Ps, I wanted to say, Those scented masking agents are pretty toxic, the weed smell would be better...my brother bombs the bathroom with fabreeze, rendering the whole house toxic.I have to open all the doors, it's horrible, sheeze just light a match. 



-- Edited by Iris Dragonfly on Saturday 13th of April 2019 01:19:49 AM

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60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)



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Hi friends!!

Observer, Im sorry youre dealing with odor masking chemicals. That is OUTRAGEOUS. Again, sorry for my bad language but that is FRACKING STUPID of them to do that and should be illegal. I grew up in an agricultural area and we got the smell of garlic when the wind came in from the South. When it blew in from the West though we got the smell of the mushroom farms. Mushrooms grow in cow poop. So they had big barns filled with cow poop! You can imagine the stench! But Im very grateful they didnt try to mask it. Those chemicals would surely cause asthma or worse. Contact your local officials and please keep us posted. What idiots!!



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F, 51, GT3, HCV since 1989, no alcohol since 1999, Fibrosis score F0-1 (.36), VL 216,000, ALT 23, AST 26, Epclusa SOT 7/26/18 EOT 10/18/18. Thank you God. 

Tig


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That‘s the first time I have ever heard of them using odor bombs in the grow houses. I could’ve used one of them in the middle of the night, last night. My cat must’ve eaten something rotten and then left some memories in her cat box! P-U!! All kidding aside, that odor masking chemical would be awful for a large portion of the populace. Lots of people are sensitive to that garbage. Do they set them off inside the grow house or outside? I wonder if they’re exposing all the plants to it, too? That could cause trouble with the end user of the “product” (cough-cough)... You and 5 and your noses! Get well soon, Sisters!

Saw my doc this week. Said they failed to produce the PCR results and figured it to be a lab error. My response was, “Duh”. He asked me if I wanted to repeat it, I said next time, which is in six months. I have to go back for repeat draws on my CBC and LFT’s. My ALT/AST were good and we all know, if you relapse, they are the first to elevate. My doc includes a PCR every time I go in. He makes money that way, I’m sure. He said I’ve got six months to drop my cholesterol or he’ll start me on a Statin. He doesn’t want to, because they are hard on the liver. So now I have to start watching that. They dropped the upper limit for cholesterol to 170, without my permission. Do you wonder if that’s because they weren’t making enough money on Statins? People were meeting the old standard, so what the hell, lets drop the standard... Hmmmm?



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62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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 hi harry, how are you doing?

my hubs is taking his complaints to one of the senior doctors at the GI clinic in may, i hope he gets some satisfaction with all of it. 

good luck



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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obs, you know my heart and nose go out to you.

odors and odor maskers are so bad.... how stupid are ppl that they flood the environment with toxic odors... it's just so sad.crycrycry

what drops did they give you? can you take them without side effects.

my prayers are def with you... nose to nose.

i go back to work friday nite and hope my head does well.... i'm feeling much better but go to ent on 5.1, my harvoni aniversary. i hope for the best in that too.

good luck obs



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Hi observer ,I know how you feel, some people just don't want to listen or care about harm they do, here in Australia it's the same, no one listens to what the weed killer s are doing,to people s health no wonder people are cracking up,I can fully understand how you feel,try take care.

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I have been having some pretty nasty allergic reactions to something...choking , coughing and dripping.....figured it was pollen...went to my guy and guess what...

Im reacting to the odour masking chemical bombs they are releasing at some of the Cannabis commercial grow operations that have been taking over all the greenhouses in the neighbouring farmlands ....they want to grow pot but dont want to offend anyone with the pot smell hmm

Its like they are blasting that fabreeze crap into the air.  Im going to have to find out who regulates crap like that (local, provincial or federal) and see if I can stop it.

I now have drops to help my symptoms but if Im always going to be exposed I will have to take them all year.no Or move bleh

 

 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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good nose report. my nose is not broken , but.... i get a week off to let the swelling go down so it doesn't get aggravated and me along with it. 

no advil still to keep any nose bleeds from happening so ice it is

and! it's a good thing i went in at 8am cos by 11 they weren't allowing anymore patient sign ups..

ok, gonna rest now, it's been a busy morning; but i did just eat a small piece of white cake with the top frosting wiped off...it did have a little filling between two layers so i got that part

Obs, that's quite a journey you had...wow. thank you for sharing it here with us

harry, my hubs is having a rough time post tx so just hang in there , that is what he is doing.

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Thanks Observer ,great hearing from you an Cheddy ,bit of positive thoughts go a long way ,the attitude of some of these drs an nurses don't help much ,seems once you sign up that's it.no support . anyway thanks for your concern best of luck to you.

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Harry, 

I was expecting miraculousness. My first year after treatment I did not feel better. hmm

 I did not feel worse but I really did not feel a whole lot better. There were so many expectations on me feeling better and I just didnt. It was rather worrying. I still had quite a lot of annoying symptoms (and a few new ones that had developed during treatment) 

But..... My blood tests were fine except my AFP which was only slightly elevated and not of concern to Dr. Liver. 

Finally, Dr. Liver ordered a CT scan...turns out I had a liver tumour. 

So a year (almost to the day) after I finished treatment I had the little bugger ablated into oblivion and then I finally started to feel improvements in my health and energy. Then my energy started to improve...(slowly mindyou) and the thin, fragile skin, random bruising and many other annoying issues..kinda faded from being constant and all of a sudden I realized I felt better  I swear it was at least 3-4 months or possibly more.

I hope for you its just a matter of time, and as Cheddy said...keep drinking water and eating well and I really hope you will notice improvements soon...

 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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Thanks heaps Cheddy ,you really made my day heaps betterthanks mate,take care .

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No kidding, Harry.  That's one of the main drives behind this forum.  There's nothing like real experience.  My doc was great, but the info was limited.  I had the impression that they didn't want to suggest any side effects unless I had them.  Oh, I had them. This forum saved me.  Really.

I'm sorry to hear you are feeling so tired.  There is another phase of treatment that often goes unsaid.  It's post EOT.  Your body has to readjust.  It's been living with disease, and then with some really powerful drugs that act systemically.  Keep drinking lots of water.

You definitely did the right thing by getting treatment.  HCV is progressive.  We don't even want to get into the possibilities of leaving it untreated.

It's not uncommon to feel this fatigue after treatment.  Everybody is different.  So are treatments.  I began feeling better gradually and bumped up in about three months.  Then,  I went back to feeling like my old self and then even better.  

If you are not satisfied with your progress, get a doc who listens, and tests.  If you can't get a new one, persist with the dweeb who isn't listening until he/she does.  Your entitled to your good health despite being misjudged.  I guess that's another phase: getting your dumb ass doctor to listen to you.  Rats!

All the best, Harry.  Keep in touch and get to feeling better soon.

Cheddy

 



-- Edited by Cheddy on Thursday 4th of April 2019 10:18:59 PM

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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Hi 5 ,hope you are going ok,sounds as if you be been having your own battles ,hope you continue to improve ,I think the main thing that annoys me about liver drs is the ones I've dealt with tend to look down there noses ,as if to say you caught the virus ,I know best and if you are lucky you will get a 5 Min appointment, and seem to refuse that the side effects you have could have been caused by d,a,a , but was caused by the life style you may have lived many yrs ago ,does seem bit of a coincidence that I felt fine pre treatment except for my age 65, now I can't even cut grass ( don't really care )but being exhausted continually is bit of a pain, I'm really glad it's making people better, but I think drs should try being bit more understanding especially for old buggers like myself instead of the old guinea pig thing!! Best of luck everyone please take care.

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yep, battle scarred and still moving forward

the doc was backed up today so i'll have to go in the morning if i want time off from work. i'll have her take a look at my ears too since they never got all the way better; then i can call in for ear&nose disease

gonna take it easy again today.

hubs is have a go-round with the liver docs cos they can't get the right lab orders to him; they finally did so i hope they are nicer to him. I'm sure they are busy but blaming the patient is never a good idea when there is a paper trail.

of course this stresses me out and i have an easy time with them cos i accept the after tx troubles and pray they just go away someday soon , he is still suffering some troubles from tx cry

ok, tv and ice time over here. everyone be well. 5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Well 5, we are a some fearsome foursome then - me and my hubs also sport back scars in the same general vicinity as your hubs, for cyst removals, my nose remained virtually unscathed, but my hubs has a shnoz that goes completely left then right from a broken nose (the rugged look crafted by another rugged human being) - nice you have only a dainty bruise (I hope), but still even that, you definitely don't need - you have enough nose trouble without a bashing. Who knew we would end up look like such warriors just from living.   :@ )



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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omg C, we have twin noses? cry

i have bruising about the size of a quarter on the bridge [hardest part ] of my nose, i thank God it didn't hit softer more sensitive areas. 

it hurts and yes, time off from work will help since bending forward brings pressure to an already pressured sensitive area on the inside what with sinuses and all. I just have to get up and go to the doctor thursday and get that sweet dr's note to excuse my absence Plus she can check it to make sure it's not worse than i think.

i'm glad you didn't get hurt to much, but yea bending over to get something can be dangerous... my immoveable object was a short dresser.

hubby had a lymphoma excised from his left back just below the shoulder area. he is stitched up extra well since he is an active guy who forgets he's got stitches.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Good grief 5!

Bending over to get your slippers? - what thing did you bend into that wacked your nose, edge of a table or something?? Funny, I did something similar just the other day, bent over too quickly reaching for something near the floor (in a multi-shelved kitchen "pantry" closet) and almost wacked the bridge of my nose hard on the edge of the lowest shelf. Lucky for me I only did a small knock to my nose - your nose sounds not so lucky - but that was very good you iced.

I guess you did not break anything? Just bashed it good? That's a good sign that you have no black eyes and no nose-bleeds, and/or it was your good first aid and icing that prevented you from black eyes or getting more swelling.

So, we know what part of your anatomy got wacked and is painful and swollen, but what part of you hubbies body did he have to have cut? Has he got some sutures? I am so glad you did not break your nose. No one needs that! I think I prefer you with not a blue nose dear, nor nasal packing. I think you should take a sick day just for sleep and rest and let the nose heal up a little more from it's knock about.   :+ |

 

Hey Harry,

I sure do wish you felt a little better, it must feel like a long haul indeed, but 5 is correct, time IS our friend, but like you I found it hard to be patient waiting to feel better after treatment as well. Some parts of me were very slow to feel better after cure. Thank your lucky stars you have at least succeeded in stopping that virus from doing anymore harm to your liver - that in itself is a HUGE improvement, even if you don't feel it exactly.  : )  C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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my nose is not worse upon waking up

it's banged up a bit , bruised and a little swollen, nothing around the eys so that's a relief.

hubby is doing better today too.... we are just gonna restt today.

tomorrow the dr if i decide i don't want to work with this discomfort and more not being able to sleep well. 

be well friends.

Harry, yes.... we went thru a lot b4 tx, during and after.....time is our friend

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Oh no - 5-1. Just saw this. How is your nose today? And how is your husband? Is he feeling okay?



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Gail Tanner

65

Female

Genotype 2

Fibrosis stage: F1-F2 (minimal fibrosis/scarring)

Diagnosis date: 10/30/18

Treatment started: 2/9/19

HCV medication: Epclusa

Viral load: 3,292,271 Iu/ml 

AST: 25 (normal)

ALT: 26 (normal)

ALP: 81

CAP: 226 <10% fat

ANA: 12.8 

No prior HCV treatment.

5/14/19: NO HCV DETECTED!!



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Hi Harry here hope everyone is going ok,I'm about 4mths poste treatment, still getting exhausted really easy plus joint pain kinda like arthritis ,I really hope this goes away soon ,kinda like expecting some other symptom each week besides nerves being shot sorry to complain, but the so called experts over here said tx would be a breeze I felt better pre treatment,probley just me as soon as I mention anxiety drs think ,he must be after drugs.so over it .

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2hrs later, no headache, no more swelling and bruising. just at the bridge. barely any pain to notice, some but not much.

i can't wait to see what tomorrow will bring, hope all the icing kept the swelling and bruising isolated

it was a rough day overall and i was too tired and trying to do too much.

i look forward to taking sick days off work tho  , everything really does happen for a reason i guess. 

mainly i'm thankful it wasn't worse and that i could get into a good mood soon rather than worry about it too long....  my nose isnt too bad and i thank God for that.

5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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my poor nose

i was bending down to pick up a slipper and whacked myself on the bridge of my nose....below my the eye area and square on the nose.

i'm icing and hoping it doesn't develop worse than this... it's starting to hurt after an our now.

my vision is normal.

i feel so stupid. hubby is asleep after having minor surgery to remove a lymphoma , but i don't go to sleep early so can run over to the emergency ortho in the morning if it gets worse.

i doubt the emergency room will do anything any sooner since their is only a small scratch on it and no nose bleed.

did i say i feel stupid?



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Woohoodioo, Tigeroo! You can handle these numbers and I'm sure the HCV info will be good!

C, I know what our mean.  No cavities is an A+.

Good health is the bottom line, right?

I'm counting blessings, now.  We have conquered a lot.

 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Hey,

Well! Not too shabby lab results my friend! Bits and pieces of you are ideal and picture perfect! A collection of impressive numerals. Always reminds me of getting school report cards. Regardless of your specific health statistics/fractions/numerals/ratios, I will always grade you and give you a great big triple AAA+++ rating, just because you merit it! : )  C. 

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)

Tig


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Still waiting for all of my labs to return, but I've got most of them back, sans the PCR, which I'm sure will still be undetected, but it's still nice to see it in writing! Most of the results are within normal limits or close wink. My cholesterol could be better, but it's not terrible. Total is 204, LDL is 125, Non HDL is 150. I believe my diet and activity level is to blame for that. I've had all of my parts and pieces ultrasounded and there's no evidence of plaque anywhere, so I think I've just got to lay off the cheese smothered french fries and chicken wings, damn it...

My glucose is 110, but my A1C is 5, so I'm not worried about that either. Not yet anyway, again diet. The good news is, the ALT is 13 and the AST is 14. WOOHOO! They alone tell me that the viral load remains undetected. So, I'm still running like a Timex, thank God! I'm still ticking after all that licking, lol!

My appt with the Doc is on the 9th. I'll fill you in as I hear more. In the meantime, I'm working on my diet and exercise excuse... no



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Hey, Thanks Enavigo for making me laugh (about some things that were NOT making me laugh much prior)! You write well and funny (by funny, I mean ... you write "with good humour"!). ie. your dentists love affair with your teeth, his smart children, and your wildebeast impressions, you get me giggling! I agree with some of your negative sentiments about teeth - they can be mostly be a necessary nuisance, and their troubles and demises obviously quite a consternation/curiosity to me.

Good grief - when they had suggested to me that one crown might cost me around $1500.00!! I was floored at the costs nowadays, I had no idea, I had just never looked into these things before. Unlike many folk who have to work around restrictive deductibles/dental plans, I have none of those problems! - not only do i have NO deductible, I don't have a dental plan either. It's so simple for me, all I need is a lot of money, or little work done.

Aside from you making me giggle and feel better about things, i do learn a lot from the sharing. It's good info, to be able to compare notes on this site (on just about any topic!).

We have a local storekeeper who is like your dentist ... where it takes a community to raise a child apparently, as here we too have paid through the nose for his store products, in the communal effort to clothe and educate his children it seems, found out just lately that we actually put one of them through MD school!

Nice to see you posting here again - or should i have said ... "look what the wind blew in", given your avatar. heehee  C.  ; =

PS - I just picked up 3 different kinds of cheap(er) drug store variety night guards to try, as it was going to be hundreds of dollars for the dentist to make me a new one - i actually had a night guard custom-made for me once (decades ago) wore it for a little while back then, but I am sure i would snap my teeth off now, if I could manage to force it in! Me and my buckies outgrew the old guard fer sure, so that sure was a waste of cash - i thought the night guard was expensive to buy back then! Why is everything getting so much more expensive these days!



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Hey Canuck - hope your teeth hold up! LOL I say that with love. I hate teeth. I have terrible teeth. I'm short two molars on my left side (the last 1 on top and bottom) and down the bottom right last molar now too.  Many years ago my lower left cracked and I needed a root canal but I was on medicaid at the time and they only covered fillings and extractions so out it went. Then apparently gravity is a thing in your mouth and if your upper tooth doesn't have a lower friend your upper will start to fall down - it takes time but its a real thing. My upper molar just started getting lower and lower until I had to get it yanked.  Then about 2 years ago I fractured the lower right last molar (it had a prior crown on it) and the tooth was dead so they pulled it. They wanted to do a $1400 root canal that wasn't covered by my measly $2000/year dental coverage that may or may not work and may or may not result in me getting it pulled anyway. So I had them yank it. Then they gave me the speech about my upper needing a friend and tried to sell me on an implant, blah blah. I told them I've been doing fine for 15 years short two on the left I'd make it work! So now I'm letting my upper right stay at the party until it decides it's ready to take the leap. One of my front lowers also decided to start raising up, like it wanted to stand tall and snaggle tooth like front and center and start a rebellion. One day 2 years ago I was eating a ham sandwich and literally caught that proud son of a gun on my top rabbit tooth and made the little one loose. My dentist decided it was trying to escape because of crowding and that I should see an orthodontist. So in 2016 I took the bait and agreed to let the Orthodontist try and straighten things out and maybe the rebellious one would tighten up again - no luck. I begged the dentist to just pull it out - i swear the dentist is far more emotionally attached to my teeth than I am and refused. So instead he shaved it's head down so it was about as tall as it's neighbors and added a lingual fixed retainer - so my bottom teeth from fang to fang are connected by a wire. Plus side - I can again bite into sandwiches and chicken fingers like a real person and no longer resemble a wildebeest when I eat. So at this point I'm down 3 teeth, have 3 crowns and every single other tooth in my mouth has at least one filling.  After reading that back to myself i feel the need to interject here that I really do brush my teeth, twice per day, and i floss like I'm paid to do it. Life just decided I should be the one to put my dentist's first 3 kids through college. Who am I to argue? I go back to the dentist tomorrow to pick up my new night guard. Did i mention I grind my teeth more ferociously than a beaver constructing his new house?  Best of luck on that front!    #professionaldentalpatient



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Born HepC + in 1983 ... diagnosed @ age 13 ... GT2 ... 12 wks of Sovaldi/Riba from 2/11/14 to 5/5/14  #ribazombie

1/30/14 - Starting VL 1,922,967 * 3/11/14 - UND @ 4 wks * 7/29/14 - SVR12 * 11/6/14 - SVR24 * May 2015 - SVR52 * MAY 2016 - STILL UND * FEB 2018 - STILL UND

 



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tig ,that 80 degrees looks real nice

tanner, i wouldn't be skiing now anymore for any reason , and i'm not even on treatment right now -just got old bones n' skin. i'm glad you are finding a way to embrace the moments in time



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO

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What’s all this talk about cold weather! We have set some records over the last few weeks for high temperatures. I don’t think my old(ish) bones could take that cold weather again. When I lived in Washington State, I used to love hitting the slopes. I don’t think I would get out of the ski lodge now, without freezing solid, as I put on the skis! Brrrrr!

Cheddo, there’s nothing prettier than a snowy Mt. Rainier from Seattle on a sunny day!

 



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Tanner,  you always find the best in things.  

I'm glad your treatment is going smoothly.  You'll be fine without skiing.  So many choices, and I'm sure your family is celebrating your many successes as well.  

Nobody can say you don't give it your best.

We are having cold, sunny days in the Pacific Northwest.  The mountains across the water look so much bigger when they are covered with snow. I see better when I know spring is on the way.  



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Hahaha, Tig.  Do you mean frozen in place like Jack Nicholson in the Shining?  Yes its very very cold but very very beautiful in the mountains.  I am feeling pretty well. Tired because of the time change still and the altitude. And I am being very good by drinking water all day. As we have all discussed, I can notice the difference if I havent drank enough. 

5-1,  I used to ski a lot when I was younger: high school and college. But Im having a very rough time over here. I had not even tried since the AVM rupture;  so Im not doing very well. Its been a real discouragement for me and my family but Im still really enjoying being here with them and in all this beauty.   









-- Edited by tanner on Tuesday 5th of March 2019 09:44:02 AM

__________________

Gail Tanner

65

Female

Genotype 2

Fibrosis stage: F1-F2 (minimal fibrosis/scarring)

Diagnosis date: 10/30/18

Treatment started: 2/9/19

HCV medication: Epclusa

Viral load: 3,292,271 Iu/ml 

AST: 25 (normal)

ALT: 26 (normal)

ALP: 81

CAP: 226 <10% fat

ANA: 12.8 

No prior HCV treatment.

5/14/19: NO HCV DETECTED!!



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C, ya, weird the valium doesn't work when i'm sick.... so i don't sleep good on work nites. the thing is, i don't want to take more than 3mg tops, so if 2 deosn't touch me i give up and don't use it again until i'm somewhat better. it was about 12 days this time around. 

i figured i was sooooooooo tired that i would chance it last nite. 2mg valium and 100mg iubuprohen and i fell asleep some how.... it's always fun to wake up and know i was alseep w00t:

when i'm having trouble sleeping, i love to wake up from a dream and think "yay , i must have been asleep if i was dreaming" :

i'll start the antibios tues or wed depending on my progress, i'll know by then if my immune system has given up on it.

 

obs, me too on the fragrance, gotta hold my breath as i reach for free and clear items in all products 

and i feel the same about mexican dental, it's a real gamble

 

and yep, dec,jan,feb all seem to go up my nose :sad:cry

 

 

 



-- Edited by 5-1-18 on Tuesday 5th of March 2019 05:43:25 AM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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My sister had Mexican dental..... you get what you pay for...she got to pay twiceno

 

My sweetie and I seem to have avoided/been spared from a nasty cold thingy going around locally...people seem to be sick for 2-3 weeks with a cold. I really do not want that. 

5, my sinus issues get triggered from chemicals..... dryer sheets are one of the worst and most common things I am exposed to in public. I wish those things and scented laundry soap didnt exist.



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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5,

Nice for you to get a solid 8 hr sleep!

Funny that, how the valium does not seem to be working as good as it used to for you.

I hope the antibiotics will work good and quick.

I hope these irksome things start to resolve good when you are having your time off. Car included. 

I am bumping into quite a few people with sinus and throat and coldy things lately - I am so grateful me and my partner managed to fight off whatever was trying to get us. 

Winter, blech - it can be so pretty (for a day or two), and it makes skiers happy, but with it comes colds and other wintery stuff!, no wonder there are so many snowbirds! ; ) C.

PS - BTW, I was looking up Mexican dentistry - OMG - an all-inclusive medical (dental) vacation can be had (at about 1/2 or 1/3 the cost of some of these Canadian dental procedure prices)!



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 63 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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i slept a good solid 8+ hours.... sweet! still going on the antibios [zpak] to knock this out.. Some day this too shall be less with m liver improving every day.... i'm sure of it.

we have a few ppl at work that suffer this sinusitis crapoola. but i am able to work tonite so i like that , it was up to me if i wanted to and since i'll be off for a week after that i decided to.

5



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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I feel GREAT! 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Related image



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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hi tanner, good to hear from you.

this sinusitis has been a normal thing for me over the years, so i manage it well enough to still live well enough.

yea, there you are in the frozen north ,yikes. i used to ski almost everyday when i was younger, then even went to work after a day of skiing, or hiking a few hrs a day during the not ski season.

oh how things have changed

have fun, stay warm, love your meds



__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO

Tig


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Hey Gail,

I feared, after watching the weather reports, that you may have fallen down and we’re frozen in place! It has been so cold up in that part of the country. I hope you have found a nice mountain chalet, with a hot tub and big wood stove! Brrrrrr!

How are you feeling? We need an update when the squirrels running that 3G wheel can find a signal! Have some good, relaxed fun and keep drinking that water!



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Tig

62 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Im reading through all these posts and everyone is sick. Sinusitis, bronchitis, etc. I really hope you all feel better soon. Sorry I havent been able to keep up with everyone for the last couple of days. Be well, get rest, and drink water.

__________________

Gail Tanner

65

Female

Genotype 2

Fibrosis stage: F1-F2 (minimal fibrosis/scarring)

Diagnosis date: 10/30/18

Treatment started: 2/9/19

HCV medication: Epclusa

Viral load: 3,292,271 Iu/ml 

AST: 25 (normal)

ALT: 26 (normal)

ALP: 81

CAP: 226 <10% fat

ANA: 12.8 

No prior HCV treatment.

5/14/19: NO HCV DETECTED!!



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Oh, 5-1, just now saw your post. Sounds like youve been having car trouble but worse that youre still not feeling well. Having trouble where we are trying to get wireless here in the Grand Tetons so everything is 3G right now; Ill check back to see how youre doing. I hope you feel better soon.

__________________

Gail Tanner

65

Female

Genotype 2

Fibrosis stage: F1-F2 (minimal fibrosis/scarring)

Diagnosis date: 10/30/18

Treatment started: 2/9/19

HCV medication: Epclusa

Viral load: 3,292,271 Iu/ml 

AST: 25 (normal)

ALT: 26 (normal)

ALP: 81

CAP: 226 <10% fat

ANA: 12.8 

No prior HCV treatment.

5/14/19: NO HCV DETECTED!!



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good news for me.

we didn't need the radiator so he paid us for it and now i have a new free radiator. 

it was the water pump so had to buy that.. i have a heater and defrosters so i'm happy. we are still on leak check to see if we need a thermostat.  for some reason the mechanic thinks it's related... if its still leaking he'll be back on sunday. 

guess i'll google that and see what he's talking about.

i'm using decongestant when i wake up and ibuprophen before bed to manage the sinusitis. i made it thru the work nite well enough.

and... valium doesn't work on me anymore for awhile now. it perks me up rather than relaxes me.haha

it must be from belonging to club zero, and that's fine with me; i seem to be sleeping enough.

5



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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i still have this sinus/allergy/ear thing. will go to doctor next week if it doesn't clear up. We have cold windy weather so that doesn't help. but i'm not as sick as i was last sat/sun.

and... i'm stll waiting for my car to be repaired right. was told i needed a new radiator and there's still a leak, plus the old radiator was filled with water and there is no leak confusecryblankstareblankstareblankstareevileye.

the mobile mechanic will be back friday morning and we have plans to ask for all money back if he cant fix it.....and rides to and from the car repair shop.

but at least he has to come to us and not us go to him



-- Edited by 5-1-18 on Thursday 28th of February 2019 08:55:38 PM

__________________

Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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awe cheddy, sorry to hear you suffer with bouts of bronchitis and upper respiratory drama too cry

i am glad you are feeling well these days



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.July=norm liverpanel.*13weeks=UND * 6 months =UND: CLUB ZERO



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Harry, glad its cooling down for you, Im so not a fan of heat..so I really felt for you with your extremely hot summer.

I have had those irritating restless legs...my sweetie gives me an acupressure foot/calf massage when my legs get too ...scrunchy...

If it continues perhaps ask your Dr to send you to a neurologist for the tingling in your fingers and toes. I think the DAAs are tough on our nervous system.

Fatigue...it does take a while. I noticed it randomly....all of a sudden I realized I had done more or walked further and wasnt exhausted. As Cheddy suggested..keep up with the water.

 



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61 y/o, Infected via transfusion Oct'83, GT-1a, F-4 cirrhotic,
tx Holkira pak/moderiba 12 weeks

3 years...post tx... successful dragon slayer 



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Canuck,  I'm glad the tooth fairy got you patched up.  That was stressful, which is something you don't need more of.  Glad to hear you are feeling better.

 

5,  So good to hear you are getting better too.  I had bronchitis twice last year, on top of asthma so I know how awful is is to have your breathing challenged. Pretty basic need.  It's a very good sign that you got out but I hope you can get all the rest you need. 

 

Iris,  What about your recent bout of blood? What did you doctor say about that?

 

I hope everyone is on the mend.  I'm sure ready for springtime.

 

 



__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Harry,

I'm so glad it's cooling down there.  That's got to be a big relief.

Sorry to hear about your hands and feet but I am glad you are staying in touch with your doctor.  Of course everybody is different in recovery and so are the treatments.  It took a while for me to bounce back.  At 3 months I had a good turn and got better quickly.  Your body has been through a lot and there is a recovery period from the treatment alone.  Remember, too, that your whole body is readjusting and your immune system is rebooting.  

Fatigue is tough, isn't it?  It's hard to accept doing nothing, but it's like the tide; it goes out and it comes in. Give it time and take it easy on yourself.  It will change.  And stay on top of that pinched nerve.

Keep drinking plenty of water! Keep moving as much as you can.  And please keep us posted.

Cheddy



-- Edited by Cheddy on Wednesday 27th of February 2019 03:08:58 AM

__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

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