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Awwwww Tig

that is a really crappy day for you  

I lost many teeth because of the HCV, just out of the blue...snap and ooops ...I even swallowed the first one because it broke off while I was eating a baked potatoBetween the breaking teeth the constant infections and abscesses and I finally just had mine remaining teeth all yanked and got dentures.. 

I always thought interferon heightened and accelerated a lot of the HCV symptoms. Like HCV symptoms on steroids or something... It bloody sucks that the effects of that medication are still ongoing even if its why you are HCV free 

 

I sure hope you can get them dealt with quickly (I agree with Canuck,itd  be nice if you could claim  them as part of the rear ending, get that 18 year old to pay) 

  .... Sleep...now thats another tough one...I hope your Dr can give you some help with that.

 

 



-- Edited by Observer on Saturday 8th of June 2019 05:11:59 AM

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Hey 5, 

You were asking Tig ... " any chance your doc will give you something to sleep with? " ... , ummm, maybe his doc can't, but there is high probability that that 18 year old kid who rear-ended Tig, (the one with the big fat bank roll of $100's) can! heehee  Tig, when he rear-ended you, you probably checked your own trunk, it may have been more interesting to have opened his to see what he had in there!

Poor Tig. An oral disaster! Kids (no matter how charming they are) can cause high-stress-karumba, maybe, like me, you have been grinding your teeth with these younguns running around the house? We figure that's how I did two of my teeth in (weellll, maybe not JUST grinding - coulda been my ancient age, gum disease and the bone loss I battle too). My 2 casualty teeth are nowhere as financially scary as what they quoted you! NO WONDER you don't sleep.

I think you should make a new report, take those teeth to the police, and show them to the 18 year old and his Dad and explain how he hit you so hard you lost 2 teeth, and now you need at least 10 grand for some implants.

Dam shame Tig, you've had waay more than your fair share of dental grief this year - I hope you get something figured out. You don't need this, sorry for the troubles. There's always sumpin it seems - why is that!  : (



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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Cheddy,wow what a day, think maybe you should have stayed in bed if only,IV heard some real horror stories regarding interferon ,I'm not sure of your age but I reckon bout my vintage ,I'm really glad we grew up in the olden days 70s lol,,sure we were crazy who wouldn't be growing up with the Doors, Janice, stones ect I could go on for ages but would get bit boring , I don't know if it's cause I'm an old bugger but I find it really hard to communicate with a lot of young people these days ,we use to be happy with a pair of vollies or gym boots not 200dollar sport shoes or if you had a pair of Levi's with no holes in them and a few dollars in your pocket you were going ok lol,over here there's a saying ,,youth is wasted on the young these days, I'm not saying all young people just some ,in fact I find it easier to rave to older people, especially if they did it bit hard depression ect,guess I'm just being whinging old bugger oh well, but I truly believe we were kinda lucky ,it was an experimental time some people were lucky to survive a lot didn't,but I really hope things improve for you ,guess we are lucky to have been around to witness all the changes,sorry bout the long rave, just getting my morning dose of coffee into me an trying to think strait, hang in there mate your a survivor..

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omg tigcrycrycry

what a night and day. 

are your teeth and gums ok for the time being till you can get them fixed? 

so you ended up not getting a police report? that seemed like a scary encounter anyway you look at it.

i hope you can get some rest somehow..... any chance your doc will give you something to sleep with?

my prayers are with you for better days and nights ahead.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

Tig


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Okay, seems like this is the place to update each other on the rest of our story, so here's my latest...

Just before bed last night, it's the place I go to toss and turn, doze and do more tossing and turning. As I was headed to the bathroom to brush the few teeth I have left, I got a mouthful of something hard and uncomfortable. Guess what, the Interferon has continued to destroy my teeth. Two more broke off, for no apparent reason. I guess they had as much as they could take and gave way. My mouth bled profusely all night long. Got into the dentist on an emergency basis and xrays show significant bone loss in my jaw. I've lost count how many teeth have broken or been lost secondary to my Interferon exposure. We've had a lot of people that experienced the same trouble. Most of you didn't get the pleasure of that fine, yet nasty drug and all of the adverse effects accompanied by it. The cost involved in fixing this dental mess, $5200.00 and that's for starters. Talk about discouraged...

If that wasn't enough, on the way home, a kid (presumably texting, because he was still typing as he got out of the car) must've been looking at his phone instead of stopping and rear ended me at a stop sign. Not much damage to the car that I can see, but he nailed me pretty hard. Everything in the car went flying. He jumped out and the first thing he wanted to do was hand me cash and get out of the way, he had things to do! Nope, nope and nope. With my history of spinal problems, I was going to get a police report and that didn't set well with him or his Dad, who spoke to me over his son's phone. Something didn't smell right, so I just waited. That's when the young man, 18 or 19, pulled out a wad of $100 dollar bills and asked me how much it would cost to just forget it! Are you kidding? I declined the tempting offer, but said no and went on to ask him a few questions about his school and whether he was headed to college. He said school was worthless and was a waste of time. So then I asked him what kind of work he was involved in, again, no job and no desire to work in the adult world. Good grief!! I decided I best just change the subject instead of asking him where an 18 year old with no job, no school and no desire to be part of anything, got a roll of $100 dollar bills that I have never carried in my life, let alone in a beater Buick and wearing running clothes. I swear, growing up ain't like it used to be. I don't think he got all that money mowing lawns.

I'll wait through the weekend and see how my back feels. Took some Naproxen to head off any inflammation and will wait and see what happens. This has been a lovely day so far and I believe as I say that, I'm going to find some wood and knock on it, hard.

My grandchildren are still here for another month, as I mentioned recently and that's a story for another episode of "Health Updates - Among Friends". I could use a Valium, if I had one, lol!! Be well my friends wink



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63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Rats!  Harry, you did so well to get a new doc, but it looks like you have to keeping struggling through. As for stigma, it's up to us to dispel that idea. Don't EVEN give it attention.  Even my doc didn't use gloves before 1990.  It is possible that I got HCV from doing first aid in an emergency, good samaritan situation on the side of the road.  Not saying it couldn't have been linked to experimental behavior but that doesn't matter now and we can't let it. So please put that out of your mind and enlighten them when it is in their own minds. Just ask firmly for what you want and ask how to get what you are entitled to.

Seriously, I'm not taking any guff for having contracted a now curable disease. Sometimes it helps to empathize with their lack of knowledge to keep getting what you need.

You have a nice opportunity to show them how it's really working now.

Mostly



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harry, over here in the western usa it's just an epidemic they want to cure.... no real stigma anymore since harvoni started that add with all the baby boomers "letting it go"....... they made us feel like it was just a problem that was associated with the times in which we got it



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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5,I V no idea what happens in your part of world but over here hcv still has a certain stigma to it, kinda like must of had a misprint youth ,plus a lot of specialist are really known for having the best bedside manner not all but some, mine was really friendly the only time I saw him for the whole 6 Mon ,I signed up for treatment, thankfully it has gotten rid of virus so far ,but I find it really hard to find out about neurology nerve issues, like are they just a slight side effect and will soon go away or are they with me for ever ,IV never had this before my local Dr has no idea,and Gilleard have never heard of it,went to see my Dr yesterday about if she had heard of when I can get in to see a neurologist ,only to be told that she has had family problems in England and has left the country and won't be returning in near future, so now I have no idea what is happening, maybe I will be able to find out more on Monday hopefully I thought she may have contacted me before leaving..bit like catch 22, lol.stay well.hope GB isn't giving you to much grief 5.take care.

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Obs, it would be fun to listen to our doctors "self-talk" when we walk in

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Harry,

I used to joke that my liver Dr saw me as a carrier of a damaged liver...rather than as a person. 

I agree with 5, I guess they want to cure as many people as they can.  The Dr I had is the liver transplant Dr and top liver guy in Van...

I once saw him being interviewed on a news story {about people around here accidentally eating poison mushrooms and destroying their liver (or dying) }...... for longer than my office visit with him... but all that mattered is...he had a good team and a wonderful caring nurse was in good contact with me throughout my treatment. And I am cured

 

Harry, the viral loads go up and down a lot... when I first got diagnosed my vl was over 12million... 3 months later it was 3 million...  I was only at stage 2 fibrosis  

(I was offered interferon/ribivaron and declined) 

when I finally decided to try treatment 15 years later....my vl was only 7K but  I was now at stage 4 and have cirrhosis...

so yours could have been elevated by a weakened immune as evidenced by you needing a lot of antibiotics or a whole mysterious host of other triggers. 

He may not have been curious but at least he helped you become HCV free.

 



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4 years.... successful dragon slayer 



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I think you are right 5,I just wish they were as keen to make suggestions about anxiety or even prescribe something, after all they have you on DAAs that I really don't think have round long enough for them to know much about side effects,great talking to ya.

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i hear ya Harry; the docs just want to get as many ppl cured as possible and cant be bothered with the sides or possible sides as long as we are cured.

i just think they want to cure the epidemic of it for now....



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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 I hope to see your GB going back to school for some important life or death lessons in how to behave - some GB re-education/re-training/remediation to happen in it's near future, even it it take some corporal punishment and/or permanent banishment to get your GB not acting badly on you!

 

, hhahaha

 

 

yes, C, i agree..... detention or something.

there is a group of these docs so i should get into them fairly soon; then i will look for one who will do the surgery near my home to make the whole thing easier; but to at least get started yes!



-- Edited by 5-1-18 on Thursday 30th of May 2019 06:41:06 PM

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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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C,I don't.know what it's like in your part of the world,but over here in my case anyway I was a bit disappointed in the amount of time the liver Dr I was to see pre treatment spent looking at my history, I must of been in his office 5min before I was signed up to start the Epclusa ,I'm.glad I did it but I feel like I was kind of rushed thru he assured me that they would always be there for nausea or anxiety or any problems but, I saw him once then he seemed to disappear as for liver nurses at clinic,they.all seem to have read same text book,when I asked about nearly going deaf in r ear and numbness all they could say was ,,oh that was probably going to happen anyway nothing we can do see your Dr,kinda like it was in too hard basket ,when I had the interview with liver Dr,I told him I was a bit concerned about my VL numbers being very high 22mill,his response was don't worry bout that, no suggestions why it had increased ,I thought maybe having heaps of anti biotics for dentures or the influenza vaccine may have had something to do with it,he couldn't really tell me,oh well it's gone now anyway,just hoping doesn't come back,I just really hope the DAAs have had anything to do with my nerves in neck looking forward to finally seeing neurologist,cold weather seems to highlight neck and numbness symptoms ,it's just a waiting game now.dont mean to be whinging but I think maybe a bit more time should be spent on older victims of people who have been carting this dam virus around, probably longer then the Liver Dr has been around.cheers everyone take care.

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Being that you are just such a naturally (incorrigibly) positive person, you, of course, have the gift of understatement! You said ... "it's no joy"... I can only imagine. This on-going stuff can be really hard to take, it wears on you in so many ways, it can be draining, it's not just a matter of the discomfort/distress/pain a GB is capable of causing a person but packing this problem around with little respite/relief no matter all the good things we do to counter, it more than just tough and frustrating (to say the least!). No joy is right tho, far worse than these major disruptions just being inconvenient, it is disappointing when some body part decides to protest/do it's own thing and create hell or havoc for us. I hope to see your GB going back to school for some important life or death lessons in how to behave - some GB re-education/re-training/remediation to happen in it's near future, even it it take some corporal punishment and/or permanent banishment to get your GB not acting badly on you! You so deserve some GI peace. Good you are working on making it happen. Keep pulling. 

Suggestion - get the "name of the surgeon doc" they referred you to, if you don't already have it, look up his phone number, and call his office, track down his nurse or assistant (or just reception if that is all he has), and try to find out (in general) what his appointment wait-list is like, make sure they have opened a file on you, and in consideration of your particular case ask how long your wait to see him will be. If it sounds like it is going to be long time you might have to wait to see him, then perhaps asking the people who referred you to him, to "Re"-prioritize you as "more urgent" (if they will) - that may get you an earlier appointment? Just a thought. In a perfect world complaints of pain and discomfort should/would get you seen/assessed quicker.  

 

: )  C.



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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oh yea C, i'm willing to part ways with the gb if it's gonna just be a toxic relationship

i'm sure it will be awhile before i get in but at least i didn't waste time by seeing the doc just to send me; i'm on my way now.

i'm not sure what they'll do for eval. , but no dye in the veins that's a for sure on my end..... prob another ultrasound to make sure it didn't cure overnite; but the discomfort is not something i want to just go along with till they think i'm sick enough. 

so yea, we'll see what they decide for me blankstareblankstareblankstare, i'm not doubled over since i eat so strictly but this chronic discomfort is no joy



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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5,

Ditto (what everyone else said) - that we all hope it does not take long to get the GB thing figured out. So, you have been having "troubles" for a while, your last U/S images (Apr) confirmed (again - from a year ago) that you were showing stones, and as well, that your GB was "chronically inflamed", and, you were continuing to have more of these what we think are GB "attacks" or at least GB distress episodes as well.

The writing does "seem" on the wall, but ... we all have to wait for the new docs ideas on things ... but in this interim, have any of your docs said you should maybe go have some further (additional) imagings of your GB done? (other than just the U/S imaging - the latest as of Apr) - just an idea. It used to be they would often do GB pictures with dye and stuff i recall? But ... maybe that was in the ole days. Still, it might be worth asking if you should go ahead and have some further imaging (other than just U/S's) done while you are waiting for this new doc assessment. 

I like your cute rendition of "breaking up is hard to do" (in regard to your longstanding but now perhaps tedious/tenuous relationship with your GB!), if it turns out true what you said, that your GB maybe "does not want to live with you" anymore, then it's good to know you are brave enough to part ways if and as required. https://www.youtube.com/watch?v=tbad22CKlB4

: )  C. 

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)



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thanks OBs  and Harry



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Awww 5  

I certainly hope they get your naughty gb sorted for you and dont make you wait too long. Smart getting the liver dr to recommend/refer you.  Your body needs to heal from that bloody virus and the treatment...you so do not need to be suffering anymore! I hope its dealt with quickly  

harry...

i sure do hope that your Dr. gets your nerve /disc damage figured out and you start getting some relief from your symptoms.  (any word on an apt with the specialist?)



-- Edited by Observer on Wednesday 29th of May 2019 05:24:48 AM

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4 years.... successful dragon slayer 



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Hey 5, you must be pretty tough to have survived all the crap we've all been thru, keep your chin up ,you will be fine.try an relax.cheers

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thanks tig and harry, yep i'm on the path to more wellness and for sure i will chk in with you guys for anything you might know when it happens.

harry, i don't read those things very well either ,  took me a long time to even recognize my own gb symptoms... i guess the big fear is them saying our situation isn't bad enough for them to take care of blankstarecry. i do hope someone can figure it out. And yes, cold wet weather makes my feet hurt more too. 

i'll update again when the referral goes thru and i get my evaluation.

 

tig that is great news about how efficient they are now days.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0

Tig


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Hey 5-0,

Not to worry! They are so good at doing these gallbladder removals now, you will be amazed at how well it goes. They do 90+% by a laparoscopic procedure. Three tiny incisions that you won’t even notice once things heal up. The improvement to my health was immediate. I was back to work in no time! You won’t regret it. If you have any questions, I’ll try to fill you in.



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63 yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 5+ years!

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Hi,5, great to hear from you ,just starting to get cold over hear ,big change from the heat, I'm sitting hear in front of heater, can't believe was only few weeks ago I was complaining about how hot it is , really glad you seem to be getting somewhere with your gall problems ,my wife felt so much better after getting treated, this cold weather seems to be making my numbness bit worse, IV got a copy of letter my Dr gave me describing my pinched nerves and narrowing of canal bla, bla,I really don't understand it all,if I wasn't such a dinasaur I wud know how to send it to you maybe you may understand what it all means, still waiting to find out when I can get in to see specialist,I tried Dr Google one day I was reading where if a nerve is getting pinched at certain vertabraes or damage ect it can effect breathing lungs ect shoulder pain leg pain digestive system which could mean constipation also can cause numbness,I'm really surprised that none of the drs or med experts have ever mentioned it to me , starting to wonder if my neck problem s cud be cause of a lot of things IV been diagnosed maybe ,looking forward to seeing specialist I will have to write down questions to ask or I will forget.. anyway all the best to all good luck with gall ,5,

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So! my gallbladder is still causing me enough discomfort that i agree with the liver doc that i need to see the surgeon for evaluation. i asked he liver doc to please recommend me to one to get the ball rolling and he did! , i didn't have to wait to see him in person since i said in my email to him that i didn't want to postpone getting well or have to worry about a medical crisis.

so now i just wait for my referral to go thru and make my appt. i think i'll chk with my primary doc and see who she recommends since they didn't specify a doctor.

here i go.....but i'm so tired of not feeling well and at least i'll have the intake with them and be ready to go in case i need it. 

i'm mentally ready for this now since the discomfort never ends.....



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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annie, i agree..... keep moving, and i use magnetic braclets and wraps and magnetic dots that stick on [amazon]. i live life with my magnets on



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Wow!  Those were some big spills, Harry and Obs.  Painful just thinking about it.  No wonder you have pain now.  Harry, I hope this new doctor has some good answers for you.  And 5, arthritis is an awful thing.  Glad you've found something to at least help with the pain and numbness.  My chiropractor keeps telling me I just have to keep moving, even just gentle moving :)



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age 65
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genotype 2
fibrosis stage f0
HCV diagnosis date Oct/18
SOT May 10, 2019
HCV medication Epclusa
HCV lab results (viral load 2,950,000, AST unknown, ALT 10
No prior treatment



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This fone is not very good often types wrong words sorry about that Observer.

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Yes observer about 5 weeks before I see specialist I think,I think my horse riding Deys were great , didn't really start riding horses until I was about 25,as I lived in Sydney when young not much riding there ,I had a great mate watched her get born, she ended up more like a dog then horse I think,my daughter started riding.her when mate was just broken in.i don't think I was a great rider but I cud usually stay on,till one day she started chasing some other horses ,too fast for me iended uprolling off her as she went through creek landed on my back couldn't move for a minute I was wondering plus landing about 9 inches from large.rpck, when I opened my eyes she was standing next to me I think she was in more shock then me , unfortunately had to get.her put down couple yrs ago feet were infected tried everything sad day.sorry for raving on,yes I'm looking forward to seeing specialist, IV had so many diagnosis over the yrs,now that dam virus has gone for good I hope things might get clearer,this new Dr does seem heaps better,I often see your part of the world on TV ,an think how great it would be,IV never even seen snow..lol.takecare have nice weekend thanks for your reply.Harry

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I loved that horse...we used to go for great long trail rides in the forests and farmlands in  Quebec...no matter the weather...it was a badge of pride for all the girls to do a 3 hour ride in 15 or 20 below...

my horse got snowballs clumping in her feet..she was excited to get through the tunnel because that was a homeward bound landmark... I was dawdling due to her snowballs, we were behind the others...they started to trot up the forest path outside the tunnel..she got excited and took off... well tried to..

Harry...You get it! Of course I still loved her and her big brown eyes...and rode her as soon as I could...but the injury certainly plagued me for decades.

5...thats great that ice and heat help you! I use those alternating on fresh muscle/nerve injures but never thought to use them on old injuries.

Harry, how long until you see the specialist? It is so great that you have found a caring Dr.

 

 

 



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tx Holkira pak/moderiba 12 weeks

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I meant to say observer what a scary experience with the horse !!sorry 5 ,it's just my head getting mixed up.

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i can attest to the neck trouble blues.

i've had arthritis in my neck for years so am a big fan of ice and heat; when i do that regularly i have fewer numb hands and toes. lucky my numbness goes quickly when i change my position or ice my neck.

this maintenance is for the birds! but i'm def happier since being cured of HCV

i look forward to hearing what your new doc says too harry,

and Obs! wow, that sounds like an awful thing to go thru cry



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Cheddy ,sure will ,yep it's a change having a new Dr who seems interested instead of a Dr who is just waiting to retire.take care keep you informed on what specialist has got to say.5 ,sounds like you were so lucky to survive your horse accident must have been so painful for you ,horses can be so dangerous but how can you not appreciate those big brow n eyes ,!!!take care , Harry

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Harry, you got a new Doc!!!  Glad to hear it.  I'm eager to hear what the specialist has to say.  Hang in there keep an eye out for silver linings.

 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Oh harry, 

I sure hope the specialist can help you get some relief. 

Physios and Cairos are a bit of a crap shoot...Ive had good and bad...

I had a horse slip on ice in a tunnel under the highway when I was a teen and landed right on me and broke my shoulder quite badly(just above the wing bone)...   I had to ride her home being led while I held my shoulder..anyhoo it healed kinda but is a real weak spot ... for 25 years I had headaches that came from that spot and the chiropractors and physios all said they could fix it...they didnt. So I do know just what you mean about old injuries that flavour our whole life.cry

The nervous system sure does play a big part in digestion etc. 

Is there any way you could get massage? I find regular massage is very good for overall nervous system, lymphatic system and arthritis too.  

My husband and I trade acupressure foot massages at least once every month...and more often if the other person is in a grumpy or weepy mood... 

 

Our weather here is crazy...no rain in March, then a couple of weeks of ferocious rain/wind then a summer like heat wave for a week now cool and rainy (which is actually my favourite) 

my garden is very confused..



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Observer , just got back from my new drs,she had results from recent imaging I had done ,I thought my main problem was pinched nerve in C5 _c6 well it's still same but report mentioned degenerative changes going on loss of disc height causing significant canal narrowing causing nerve root compression in c4_c5plus few other new problems I won't bore you with, my Dr seems to think the pinching of nerves could cause numbness,so she has booked me into specialist apparently can also cause shortness of breath ,this new Dr seems to be a bit more careing so just got to wait till I can see specialist now,think the cooler weather doesn't help nor the hot weather lol.Hope Cheddy and 5 are going ok I really think it's worth getting vertabraes an nerves checked out , guess it's warming up over your way now ! weather s going crazy down here,I really think the liver ppl over here could have explained things that might happen to some ppl,anyway take care everyone .ps I really didn't think nerves in neck controlled so many things shoulders arms feet ect.

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Hi , everyone got results back from my Dr yesterday ,I fell off my daughter s horse 20 or so years ago, lucky not much damage done, few MTHS later my shoulder had ceased up very painful,went to different drs I was told it was tennis elbow arthritis old football injury ect no one could really tell me,except load me up with codein ect few yrs later went to a Dr in Thailand who went strait to my neck and told me I had nerve damage in neck,he was also blind,!! Had steroid injection s when I got back to Oz ,a local Dr has been treating me,and it does seem lot better these days,I'm in mid 60s so got to expect few pains,well after finishing Epclusa IV noticed numbness in 4 fingers on r hand plus a few toes,I know this is mild compared to other friends on this forum,well my results came through showing pinched nerve in C5 c6 plus build up of arthritis in neck area with severe nerve damage,my new Dr was concerned and has made appointment for me to see neurologist up in Queensland 200 miles away closest one to where I live ,bugger ,my Dr also told me that if nerves are getting plnched it can cause digestive issues ,constipation,bad moods head aches ect,,she also told me something should have been done years ago about it,she admitted she was confused to what to do that's why she made app for me to see specialist hopefully soon,she even said it can make breathing harder when you have emphasemia as. I have.so I guess I will keep taking my meds this cooler weather doesn't help ,she even said the Liver Dr I saw pre treatment instead of spending 7min with me should have checked out my previous med history, as sometimes these new D.A.A can have an effect in nervous system.sorry for this long rave,but I think nerves in neck can make condition bit complicated also the phisios IV been sent to over the years have done more harm then good.. ps ,5,larger socks seem better cheers Harry.



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Thanks 5,great advice,I was really getting impatient for the hot summer to finish ,but now it's starting to get cold ,I don't know what suits me best maybe somewhere in between lol,glad you're starting to improve guess it's just another waiting game.take care of yourself ,from Harry



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Harry, 

I rarely wear socks ....they make my feet feel like they are going to explode.... I have some comfy wide slippers I wear at home in the winter and when I have to (like in my boots) I also wear large socks.. spring summer and autumn Im usually barefoot or in slip on shoes..

I am convinced that the DAAs affected my neuropathy ... I had had one or two minor minor episodes of pain in the last 5 years before treatment

but during and after treatment the stabbing burning in my feet (or on the tops of them) was almost constant very debilitating and frustrating.  The neurologist I saw said diseases and or some medications can affect the peripheral nerves. I didnt really follow up with her so Im sorry I have no other info to share with you. 

In my case the pain has mostly subsided, and only happens when Im not feeling well...like when I get a little flu bug or a cold or something..

I work on keeping my whole nervous system as balanced as I can...diet,exercise and sleep 

take care Harry 



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Thanks 5 will give large socks a try !take care.Harry



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socks are the worst harry!

try plus size socks for men.. big and tall? and thin socks



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Observer,I can relate, I'm finding it really hard to buy socks that don't cut off circulation,I don't know if the DAA s have anything to do with neuropathic problems, I'm trying to find out, without much luck ,I feel sorry for Canuck driving all that way ,then having to talk with a retired neuro surgeon, I can relate know one IV spoken to over here has been much help, at least VL has gone so far ,my Dr rang me yesterday wants to talk to me on Friday about recent imaging I had done on my pinched nerves hopefully may have some clues regarding my numbness in hands feet,sick of dropping my coffee, try stay well



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good to hear you made it back C

what a journey; i hope this leads to something helpful for you.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Well, I just got back home again from my visit to the neuro guy.

Hey, ya, i kinda live in the middle of nowhere (not really, but sorta) I am a good 4 hours++ from the big city of Vancouver (depending on route and weather/time of year - but even on a really GOOD day, I (personally) have NEVER got myself to vancouver in under 4 hours!) - some folk can seem to do it - not me tho!) The trek to the next city centre to us (with fuller hospital and imaging services) is a 2 hour drive away. So, unless it is just a family GP you need or a simple xray, we travel for just about everything else.

Turns out the fellow I got referred to today is a retired neuro"surgeon", NOT a "neurologist" (I thought it WAS a neurologist I was supposed to be seeing today - but no - oh well). This neuro-surgeon has been retired from surgery for some time, he just assesses people now and (if required) he then refers them out again to a surgeon OR to a neurologist. 

We go over my not so good looking lumbar xrays, and my complaints - he is a bit hard to understand, both accent-wise and in his explanations - I come away with not a lot of understanding - I have a req. for a MRI (might take a couple months to get it done), and a referral to a neurologist, no idea how long that wait will be. I left his office today with the feeling that I have no good reason or explainable reason for the icy/cold/numbness sensation - so ... it must just be my imagination I guess! God I hope it just goes away. It had been consistently there but fluctuating some. We'll see where this goes - like BEGONE I hope!

If it has anything to do with the degenerative disc disease noted thus far on my xray, I just blame it on the wear and tear over some 60+years (not HCV), but I wondered and asked about the wisdom of what to do and what not to do - continue some anti-inflammatories?, take some gaba?, increase the gaba?, take nothing? GP gave me scripts, this fellow today said I did not need to take anti-inflammatories or anything or do anything or avoid anything! Boy this thing better get better, fast. I'll keep going to yoga classes, i guess, but cripes that's where it started one day!

He did leave me confused - but, hopefully, this problem will just completely disappear,quick, and/or, if not, then maybe the MRI will spell out something more clearly for me? 

Cheddy (on your topic of digestion) my very long standing/very chronic constipation slowly has cleared up (really quite dramatically) since cure, much to my relief! And 5 (on your topic of swollen ankles) my swollen ankle problem has virtually all but disappeared since cure, also a dramatic improvement and a change (almost exclusively) to the good.

I'll keep ya's posted on my shiver-me-timbers syndrome! confuse C.

 

 



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HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

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Our GI docs have divorced themselves from guessing or theorizing about anything that might be connected to the HCV or the treatments.

we only have ourselves to work it out. blankstare

so.... we play it by ear and see other doctors who can help us with symptoms and support.



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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Do you think the nerve stuff is related to HepC?  

I don't know how long I had it, but the aches and pains I had went away after treatment and my digestive stuff has returned to normal - finally!

I'd like to know more about this.



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 



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Be safe canuck

our GI dr say they have nothing to do with the side effects cry

my new allergy spray seems to be working out so far AZELASTIZINE. or something like that. i use less than a spray most days, just dab some in with a qtip.

but the good news for me was my hearing is normal and nothing serious is going on in ears.

still my feet swell and hurt like many of us....but i have old feet and they started hurting about 6 yrs. ago

be well friends

 



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Gt:1a-36yrs .Started Intron-A in 96' for 2.5mo-VL still too high.taken off. Labs on 3.6.18:. A1 activity.  f3@60: fibrosur bloodtst. AFP=norm. enz=mostly norm.VL=3.9 million.sot=5.1.18>Harvoni>[8wks]: 4WEEKS=UND. Eot 6/25=L.J*13weeks=UND * 6 m =UND: CLUB ZERO.1yr.=0



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It really gets on my nerves how much fallout we all have to deal with from incubating HCV for a few decades. I mean bad enough with the liver damage, fatigue and digestive issues but why do we all seem to have on going nerve issues? 

Anyhoo Canuck, hope your drive is beautiful...them BC mountains are gorgeous...watch out for wildlife...I saw a video someone took of a grizzly balancing and sauntering along on a concrete highway barrier so have your phone camera out and ready in case. smile

I also hope the Dr has some solutions for you.  



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I sure do hope everybody gets their nerve issues worked out.  I'm so glad you are looking into it to see what can be done. 

C, where the heck do you live that requires these treks to the docs?  Are your nearest neighbors Osos Canuckiosos?  Safe travel, dear.

 



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 

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We do seem to experience more than our fair share of nerve dysfunction. Certainly more than enough arthritis and joint pain to go around, too. Safe travels, Chuck and tell your driver, H, to keep it under 100 mph (that‘s a lot of those kilometer thingies)! We want you back, safe and sound! 

I hope all is going well...  wink



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Canuck,best of luck with your Neurologist visit ,really hope your conditions improves ,don't know what part of the world you are but drive safe and will keep fingers toes crossed for you ,at least with this forum you get to connect with people who understand.

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