Hep C Discussion Forum

CandaceV · CandaceV

Hi again, my husband has Hep C, and it not getting treatment because his only liver enzyme anomaly is an ALT of 54. Medicare won't pay. His two gastros have recently stopped using Sovaldi due to too many relapses. So he waits for something else or liver failure. He's 60 y.o. In the meantime, he had a t...

Josh Haynie · Josh Haynie

hope everyone is well.... :) im doing ok still healing from the residuals from the VATS had 1 infection at a surgical site I noticed it quickly and got amoxiclin... and i got a mucus head cold about the same time ...right after surgery.... so ya not good i seem to be getting better as the wound site grows...

Trip2 · Trip2

http://www.bloomberg.com/news/articles/2015-03-21/gilead-warns-after-hepatitis-patient-on-heart-drug-dies

Michaele · Michaele

Hi my friend who is a 70 yr old cancer surviver was just notified by the health dept that she has Hep B . It must be chronic , as they told her they can treat her with meds. One yr after being cured of lung cancer/non smoker , she developed lesions on the brain which are common with lung cancer survivers . She...

Tig · Tig

Hi Libgirl, I hadn't heard much on the subject but found the information I read on it enlightening. It really indicates the need for proper nutrition at any time, but especially when the liver is comrprimised. The need for a high or adequate intake of fiber is explained in many of the articles I read. In...

bubble · bubble

Can some one please explain what "tumor markers" are and what the range means? THX !

Matt Chris · Matt Chris

Pharmacokinetics - of Harvoni Sometimes described as what the body does to a drug, refers to the movement of drug into, through, and out of the body the time course of its absorption, bioavailability, distribution to tissues, and metabolism. Why it can be important. Working in harmony with the HC...

skewedButNotBroken · skewedButNotBroken

It would be quite naive to believe that the hep c virus is the only biological function to use the NS3/4A and NS5B pathways. In fact, I will postulate that billions of biological processes use these pathways. When they are inhibited with drugs such as Olysio and Sofosbuvir, the body must immediately...

Josh Haynie · Josh Haynie

wellll.s*** where to start its 1030pm 3-4-15 i just got done reading posts everything from new people who have arrived here yes i see that you guys greet every new person :) which more then i do :) applauds you on your kindness.... Mallani Dog story was cute at the beach.... i hear you can relapse o...

mallani · mallani

Hi all, I've just spent some time talking to a Virologist at the PA Hospital Liver Unit. I've cancelled a lot of my on-line subscriptions and wanted to be sure I haven't missed anything. The whole topic of RAVs (Resistant Mutations) is still poorly understood. The antiprotease RAVs have been discuss...

BornAgainSinner · BornAgainSinner

Let's hear your worst incivek foods! New guy here, about to start Harvoni. I made it 12 weeks on the incivek triple therapy before I had to quit due to inadequate response, what a terribly difficult 12 weeks that was! I was devastated to have made it through the incivek pills only to have to stop 12 weeks...

MechanicMike · MechanicMike

Hi folks, Mike here (a.k.a. MechanicMike). I'll be seeing my GI for my first visit one week from tomorrow. My wife and I are obviously concerned that she is possibly infected with hep c 3a (my new little friend). She's going to have her antibody test tomorrow. Hopefully, this will be a moot point and sh...

MechanicMike · MechanicMike

Hi All, Just got off the phone with a PAN representative. I filled out an application online over the weekend and they called me today. I've been approved for $15,000.00 assistance (which is a Godsend, even though I haven't begun the battle with BCBS yet). I won't see my GI for my first visit until ne...

tomyboy · tomyboy

Hi all, Tom went to his doctor here Thursday and the Pharmacy network called him yesterday to say he got the approval. He called the nurse this morning and will have the doctor fax the script for harvoni on Wednesday. Hopefully he will start his 24 week treatment this weekend and the sixth time will be...

mallani · mallani

Hi all, Sovaldi seems like an old friend, yet Clinical Trials only started in 2010. It has an interesting history which may help explain it's high price. The first molecular cloning of the HCV genome occurred in 1989. By 1999, full-length selectable replicons were available and researchers began t...

Scruffy · Scruffy

I was looking in my storage when I cam across this. I must have just stuffed it in a box and forgot about it after they told me it wasn't working. Back then I was on a study. That was maybe in 2002-4 I didn't look at the date and I don't remember LOL!!! How far treatment has come.

suziq · suziq

Got this info from another forum. The trial is at Univ New Mexico. Just thought someone in the area might be interested. I did a phase 2 Merck trial and it was very successful at my trial center. Haven't checked this contact out --just passing it on. Since Merck is responsible for my SVR the notic...

Michaele · Michaele

Hi , Does anyone remember when, in late November, I had a biopsy of a pancreatic cyst? Well , Im sure I complained about the chills, fever, pain and weight loss. S&S lasted about a month. While ill , I went to the Dr. and to the emergency room and they never did cultures for infection . My WBC...

Jaded · Jaded

Does anyone have any experience with this drug?http://www.medicalnewstoday.com/articles/52735.phpSulphasalazine Can Reverse Liver Disease Even For Heavy Drinkers Sulphasalazine, a cheap drug currently used for arthritis and IBD (inflammatory bowel disease) can reverse the scarrin...

mallani · mallani

Hi all, I don't scour the Medical literature the way I used to, but I must be missing something. There are many unanswered questions about the Viekira Pak from AbbVie. Usually the FDA gives a detailed profile of drugs it has approved. I can't find any new information about the AbbVie drugs. AbbVie has s...

bubble · bubble

Hi, I am new to this site. 10yrs. diagnosed. F3 Fibrosis. My genotype went from 1b to 1a (?). Would like to know if any member has started Abbvie's coctail yet. Any side effects? Doc wants me to do the Ribavirin. Yuck. Relapsed on Pegasys treatment 8 yrs. ago. Here I go again. Express Scripts dropped the...

Miss B · Miss B

http://www.hcvguidelines.org/news/community-representative-nominations-hcv-guidance-panel-needed

Josh Haynie · Josh Haynie

well..yes im always around even if i dont post ... i seriuosly check out what going on.... or how people are doing ... dont mistake my silence for me actualy not being here :) anyway i as still awaiting Tx as the nurse is on vacation till next week ... glad she is on holiday she deserves it .... thats the nu...

Omar · Omar

Dear All I finally got the first bottle of Sovaldi (alongwith Riba) from Pakistan at the discounted rate. I visited a Gastro Doctor yesterday here in UAE and told him that I want to start the treatment with Sovaldi+ Riba. He told me the treatment protocols for GT-3 should be: - Sovladi + Olysio + Riba -...

Trip2 · Trip2

I read somewhere that the ingredients in Harvoni have yet to undergo testing as Carcinogens, i have been looking for that article again but cannot find it. Sorry for letting my neuroticism kick in but i would hate to think that i will be cured of Hep C and get something worse from the treatment...Anybod...

Peter M · Peter M

http://www.nature.com/nrgastro/journal/v10/n10/slides/nrgastro.2013.106-pt1.ppt

Josh Haynie · Josh Haynie

I got a call on my phone from a specialty pharmacy by the name of BioPlus out of Florida ... they are the ones who will push my Oregon medicaid for Harvoni .... i give credit to my gastro who never talks to me but who made good on her word to get it up and running after the beginning of January..... im 90 perce...

Josh Haynie · Josh Haynie

tookm less then 5 days to Deny me :) awesome >JUST SAY NO speed there< specialty Farm and Gastro are running the bootleg option.... appeal.... gastro nurse said Brie said if by sum miracle after being denied the 2nd time.,.... you can apply for Support path... Which sounds pretty solid.... on t...

Matt Chris · Matt Chris

Hey All Thought it might be worhty to gain some insight on what previously relapsed members strategy has been on retreatment or what they currently are doing to enhance there odds for SVR. Its something that anyone who ever relapsed has thought about, some of our members have had multiple relapses an...

maddie · maddie

http://depts.washington.edu/hepstudy/presentations/uploads/141/harvoini_with_audio_by_bob_gi...

Topic		Started By	Replies	Views	Last Post
	Knee replacement surgery with Hep C (Preview) Hi again, my husband has Hep C, and it not getting treatment because his only liver enzyme anomaly is an ALT of 54. Medicare won't pay. His two gastros have recently stopped using Sovaldi due to too many relapses. So he waits for something else or liver failure. He's 60 y.o. In the meantime, he had a t...	CandaceV	2	1722	Mar 24, 2015 by rblood
	Checkin In (Preview) hope everyone is well.... :) im doing ok still healing from the residuals from the VATS had 1 infection at a surgical site I noticed it quickly and got amoxiclin... and i got a mucus head cold about the same time ...right after surgery.... so ya not good i seem to be getting better as the wound site grows...	Josh Haynie	4	1088	Mar 22, 2015 by Greg D
	Gilead Warns After Hepatitis Patient on Heart Drug Dies (Preview) http://www.bloomberg.com/news/articles/2015-03-21/gilead-warns-after-hepatitis-patient-on-heart-drug-dies	Trip2	3	814	Mar 22, 2015 by Josh Haynie
	My BFF has HepB (Preview) Hi my friend who is a 70 yr old cancer surviver was just notified by the health dept that she has Hep B . It must be chronic , as they told her they can treat her with meds. One yr after being cured of lung cancer/non smoker , she developed lesions on the brain which are common with lung cancer survivers . She...	Michaele	4	1109	Mar 22, 2015 by Michaele
	Liver Roll (Preview) Hi Libgirl, I hadn't heard much on the subject but found the information I read on it enlightening. It really indicates the need for proper nutrition at any time, but especially when the liver is comrprimised. The need for a high or adequate intake of fiber is explained in many of the articles I read. In...	Tig	1	1257	Mar 22, 2015 by Josh Haynie
	Test Catagories. (Preview) Can some one please explain what "tumor markers" are and what the range means? THX !	bubble	2	999	Mar 20, 2015 by Dzdayscomin
	Pharmacokinetics - of Harvoni What is it & Why we should care (Preview) Pharmacokinetics - of Harvoni Sometimes described as what the body does to a drug, refers to the movement of drug into, through, and out of the body the time course of its absorption, bioavailability, distribution to tissues, and metabolism. Why it can be important. Working in harmony with the HC...	Matt Chris	1	2022	Mar 9, 2015 by Matt Chris
	Musings (Preview) It would be quite naive to believe that the hep c virus is the only biological function to use the NS3/4A and NS5B pathways. In fact, I will postulate that billions of biological processes use these pathways. When they are inhibited with drugs such as Olysio and Sofosbuvir, the body must immediately...	skewedButNotBroken	6	1608	Mar 9, 2015 by mallani
	Checking In...wagons..Lungs...watching cancer... 2nd denial...sounds normal to me :) (Preview) wellll.s*** where to start its 1030pm 3-4-15 i just got done reading posts everything from new people who have arrived here yes i see that you guys greet every new person :) which more then i do :) applauds you on your kindness.... Mallani Dog story was cute at the beach.... i hear you can relapse o...	Josh Haynie	4	1220	Mar 5, 2015 by Josh Haynie
	Yet another post about RAVs! (Preview) Hi all, I've just spent some time talking to a Virologist at the PA Hospital Liver Unit. I've cancelled a lot of my on-line subscriptions and wanted to be sure I haven't missed anything. The whole topic of RAVs (Resistant Mutations) is still poorly understood. The antiprotease RAVs have been discuss...	mallani	6	1312	Feb 28, 2015 by Zlikster
	Worst thing you did for 20 grams of fat? (Preview) Let's hear your worst incivek foods! New guy here, about to start Harvoni. I made it 12 weeks on the incivek triple therapy before I had to quit due to inadequate response, what a terribly difficult 12 weeks that was! I was devastated to have made it through the incivek pills only to have to stop 12 weeks...	BornAgainSinner	13	1511	Feb 27, 2015 by tomyboy
	Question about hep a as a child, getting hep c years later (Preview) Hi folks, Mike here (a.k.a. MechanicMike). I'll be seeing my GI for my first visit one week from tomorrow. My wife and I are obviously concerned that she is possibly infected with hep c 3a (my new little friend). She's going to have her antibody test tomorrow. Hopefully, this will be a moot point and sh...	MechanicMike	2	821	Feb 25, 2015 by Tig
	PAN Foundation-Approved for $15K assistance! (Preview) Hi All, Just got off the phone with a PAN representative. I filled out an application online over the weekend and they called me today. I've been approved for $15,000.00 assistance (which is a Godsend, even though I haven't begun the battle with BCBS yet). I won't see my GI for my first visit until ne...	MechanicMike	0	725	Feb 25, 2015 by MechanicMike
	Mt Sinai (Preview) Hi all, Tom went to his doctor here Thursday and the Pharmacy network called him yesterday to say he got the approval. He called the nurse this morning and will have the doctor fax the script for harvoni on Wednesday. Hopefully he will start his 24 week treatment this weekend and the sixth time will be...	tomyboy	6	1405	Feb 24, 2015 by tomyboy
	The history of Sovaldi (Preview) Hi all, Sovaldi seems like an old friend, yet Clinical Trials only started in 2010. It has an interesting history which may help explain it's high price. The first molecular cloning of the HCV genome occurred in 1989. By 1999, full-length selectable replicons were available and researchers began t...	mallani	7	3176	Feb 22, 2015 by mariatom
	hvc 1a storage find (Preview) I was looking in my storage when I cam across this. I must have just stuffed it in a box and forgot about it after they told me it wasn't working. Back then I was on a study. That was maybe in 2002-4 I didn't look at the date and I don't remember LOL!!! How far treatment has come.	Scruffy	2	1183	Feb 22, 2015 by pamigo
	Merck Clinical Albuquerque New Mexico Recuiting (Preview) Got this info from another forum. The trial is at Univ New Mexico. Just thought someone in the area might be interested. I did a phase 2 Merck trial and it was very successful at my trial center. Haven't checked this contact out --just passing it on. Since Merck is responsible for my SVR the notic...	suziq	2	803	Feb 21, 2015 by Matt Chris
	Surgical Probe (Preview) Hi , Does anyone remember when, in late November, I had a biopsy of a pancreatic cyst? Well , Im sure I complained about the chills, fever, pain and weight loss. S&S lasted about a month. While ill , I went to the Dr. and to the emergency room and they never did cultures for infection . My WBC...	Michaele	0	716	Feb 20, 2015 by Michaele
	Sulphasalazine Can Reverse Liver Disease Even For Heavy Drinkers (Preview) Does anyone have any experience with this drug?http://www.medicalnewstoday.com/articles/52735.phpSulphasalazine Can Reverse Liver Disease Even For Heavy Drinkers Sulphasalazine, a cheap drug currently used for arthritis and IBD (inflammatory bowel disease) can reverse the scarrin...	Jaded	1	1195	Feb 17, 2015 by mallani
	Some thoughts on Viekira (Preview) Hi all, I don't scour the Medical literature the way I used to, but I must be missing something. There are many unanswered questions about the Viekira Pak from AbbVie. Usually the FDA gives a detailed profile of drugs it has approved. I can't find any new information about the AbbVie drugs. AbbVie has s...	mallani	19	4800	Feb 13, 2015 by zavr
	Vikera Pack (Preview) Hi, I am new to this site. 10yrs. diagnosed. F3 Fibrosis. My genotype went from 1b to 1a (?). Would like to know if any member has started Abbvie's coctail yet. Any side effects? Doc wants me to do the Ribavirin. Yuck. Relapsed on Pegasys treatment 8 yrs. ago. Here I go again. Express Scripts dropped the...	bubble	5	3110	Feb 13, 2015 by Tig
	AASLD seeking a community representative to serve on HCV Guidance Panel (Preview) http://www.hcvguidelines.org/news/community-representative-nominations-hcv-guidance-panel-needed	Miss B	1	1031	Feb 5, 2015 by Tig
	Update (Preview) well..yes im always around even if i dont post ... i seriuosly check out what going on.... or how people are doing ... dont mistake my silence for me actualy not being here :) anyway i as still awaiting Tx as the nurse is on vacation till next week ... glad she is on holiday she deserves it .... thats the nu...	Josh Haynie	4	994	Feb 4, 2015 by Josh Haynie
	Treatment Protocols (Preview) Dear All I finally got the first bottle of Sovaldi (alongwith Riba) from Pakistan at the discounted rate. I visited a Gastro Doctor yesterday here in UAE and told him that I want to start the treatment with Sovaldi+ Riba. He told me the treatment protocols for GT-3 should be: - Sovladi + Olysio + Riba -...	Omar	6	1836	Feb 3, 2015 by ASDF
	Harvoni Carcinogenic Testing (Preview) I read somewhere that the ingredients in Harvoni have yet to undergo testing as Carcinogens, i have been looking for that article again but cannot find it. Sorry for letting my neuroticism kick in but i would hate to think that i will be cured of Hep C and get something worse from the treatment...Anybod...	Trip2	7	2336	Jan 30, 2015 by Rubye
	Chart of drug drug interaction potentials for DAAs (Preview) http://www.nature.com/nrgastro/journal/v10/n10/slides/nrgastro.2013.106-pt1.ppt	Peter M	1	1178	Jan 19, 2015 by Cinnamon Girl
	The ball is in motion ... #$%$% finaly (Preview) I got a call on my phone from a specialty pharmacy by the name of BioPlus out of Florida ... they are the ones who will push my Oregon medicaid for Harvoni .... i give credit to my gastro who never talks to me but who made good on her word to get it up and running after the beginning of January..... im 90 perce...	Josh Haynie	5	1243	Jan 17, 2015 by shadow10cats
	Strike 1 ... that didnt take long (Preview) tookm less then 5 days to Deny me :) awesome >JUST SAY NO speed there< specialty Farm and Gastro are running the bootleg option.... appeal.... gastro nurse said Brie said if by sum miracle after being denied the 2nd time.,.... you can apply for Support path... Which sounds pretty solid.... on t...	Josh Haynie	5	1172	Jan 16, 2015 by shadow10cats
	For all relapsers, what will you do / have done, or are currently doing differently to enhance your chances for SVR (Preview) Hey All Thought it might be worhty to gain some insight on what previously relapsed members strategy has been on retreatment or what they currently are doing to enhance there odds for SVR. Its something that anyone who ever relapsed has thought about, some of our members have had multiple relapses an...	Matt Chris	0	5214	Jan 12, 2015 by Matt Chris
	Harvoni PPT (Preview) http://depts.washington.edu/hepstudy/presentations/uploads/141/harvoini_with_audio_by_bob_gi...	maddie	3	1738	Jan 12, 2015 by pl1952
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