Hep C Discussion Forum

shadow10cats · shadow10cats

I am working on my appeal for Harvoni and one of the 3 reasons for denial was: "the requested coverage for Harvoni for a member with hepatitis c is not available" So what the heck does that mean exactly? I'm not sure how to respond to that comment. Any suggestions?

LC · LC

I want to start a thread to talk about this because from what I am reading, there are a lot of people who probably aren't going to qualify for Harvoni (I hope that's wrong), and a lot of insurances are probably going to try to stall to see if they can go with a more affordable option. http://www.medpage...

Michaele · Michaele

Hi All, Had my biopsy 2 day. No varices, 2 reddened areas in stomache, some pancreatis , and the mass is 2.2 at longest part . It is irregular and full of some odd stuff. Necrotic fat and inflammarory cells. 3 passes taken. The DR. believs it is benign. He also did a stain to see if it could be TB. The report i...

pauliep · pauliep

We are all the products of choices made. I assume that most of us contracted hep-C through various methods related to drug use or by close contact with drug users. I used to hide this fact, but have come to terms with it, most particularly with my children and family. I did what I did, and paid the price for...

Loopy Lisa · Loopy Lisa

Hi guys, It's been a while since my last post. I had lost all hope for I.VF as some of you know I failed TX this year and the drugs are available in the Netherlands but the insurance companies are playing the delaying game with the high price - so no one can access them yet. I have been trying to get on trails, a...

Trip2 · Trip2

I have Hep C about 25 years and developed Vitiligo around 10 years age. no one in my family has ever had Vitiligo so my question is, has anyone ever heard of any correlation between the 2 conditions. Thanks

Trainhopper · Trainhopper

SO I just got back from a Dr. appointment, and asked for a lymes disease test.... No such luck. my Dr said tomorrow they are going to draw kidney function and ammonia levels again. I am still upset at this and am having a hard time trying to deal with the elevated ammonia levels... Any thoughts? Could it be...

Isiscat2011 · Isiscat2011

http://www.fiercepharma.com/story/winners-and-losers-aasld-check-out-merck-abbvie-gilead-and-jj-data/2014-11-12 GS-US-337-0121 Study. (Sorry, JLynch, I didn't read tha...

Lowrider · Lowrider

I post here infrequently but have described being turned down for Sovaldi several times by my insurer, the latest was a week ago. I made an appeal to the Calif. State Medical Review Board without success after the second denial. Yesterday I received a letter of authorization for 24 weeks of Harvoni. K...

Isiscat2011 · Isiscat2011

DAA retreatment is a recurring topic here and for those who are interested, in addition to the study results that are slowly surfacing, there is language in the AASLD guidelines that provides support for retreatement. The guidelines clearly state that retreatment should be considered and the de...

Matt Chris · Matt Chris

Hi all I am having a problem with getting my current Hepatologist to return my requests via email and telephone messages. I must admit I never have had a issue of this sort before, but then I never had a serious health issue that required a long term relationship with a doctor, never had a doctor write a pr...

Trainhopper · Trainhopper

So it's all good news and I dont have Hepatic Encephalopathy (still cant spell it right ) my Fibrosis level is 1 I'd say yay but i cant receive treatment now so still on the search for my way elevated ammonia levels but im mass happy i dont have H.E.

Greg D · Greg D

Hello All, Would I be correct in saying that people living with HCV are more susceptible to diabetes? Would it be fair to also say that treatment for HCV, particularly triple therapy (victrelis/ribavirin/peginterferon), elevates blood sugars? Finally, as I am SVR+24, in theory would it then foll...

Omar · Omar

Hi All I haven't posted for a long time since I was busy getting registered for Sovaldi. Thanks fully I am done with the registration and awaiting the medicine to be received. I was asked to re-do certain tests and it showed improvements as follows: PCR test - Viral load decreased to 250k from 1.6 millio...

Isiscat2011 · Isiscat2011

http://www.aasld.org/news/072814/Pages/CongressmanBillCassidy.aspx

Angel67 · Angel67

Maybe when pigs fly! This link shows the names of all the big companies that flat refuse to lower prices on HCV drugs. Personally I think these boys have sorted out a deal between themselves and they are going to keep the prices sky high for as long as possible...this equals zero new treatment for most. I...

Josh Haynie · Josh Haynie

so im visiting with my FPN and i bring up thee fact that people who are F-4 are having difficulty acquiring sovaldi or havroni ... she goes ya you proably wont get it either they will start you on the cheapest TX they can find ... AND i think we all know what that means :) Interferon and Ribavarin ... ive h...

angelseven · angelseven

OK, called cigna today and Harvoni has been added to their formulary with pre-approval, she only said preapproval required degree of fibrosis, liver biopsy, and some other things, you have to meet certain criteria but it did not list the exact criteria or fibrosis level... she had no link for their d...

ss · ss

HOPEFULLY I WILL BE STARTING HORVANI SOON MY INSURANCE IS UHC AND MY DRUG PLAN IS EXPRESS SCRIPTS GOOD LUCK TO YOU ALL -- Edited by ss on Thursday 6th of November 2014 07:03:14 PM

Bashar · Bashar

Hi,This is Bashar from Dhaka, Bangladesh. This is about my wife as she got test results of anti HCV ab sample rate 2.69 & cutoff rate 1.00. It came out when I took her into a doctor for feeling a lump in he breast. The doctor refer her to a prof. of gastroliver. I take the appointment of that prof. I feel v...

Michaele · Michaele

Hi , And now for the cherry on the psycho sundae , drum roll please. The cyst on my pancrea has grown and is now being referred to as a pancreatic mass. Going to referral on the 11th: review ultrasound to see if I need a biopsy again. And also going back to the GI on the12th. I got sort of pissed and asked the d...

mallani · mallani

Hi all, Yesterday, I had my final two implants fitted ( teeth 15 and 16). The older members may know I lost 5 teeth due to my 4 courses of Interferon treatment. These have now been replaced, so I can enjoy my steak again, smiling broadly. The last two were tricky as I needed bone grafts around the titanium s...

Josh Haynie · Josh Haynie

im doing ok took that blasted tape and bandages off... i did take it easy at work on thursady and friday i just sat in the chair in the office down stairs and playd games on my phone and read a book on my phone....... feeling like it never happened but the stitches on a wound with a diameter of your pinky wide...

Trainhopper · Trainhopper

So..... I decided that coffee, whether pretty or not, just isn't for me. That first day..... Seemed like I couldn't fall asleep... Oh that's right it's cause I COULDN'T fall asleep... (lol) I stopped taking the barbiturate that was Rx. I figured if its blood thinning they want.... BAM!!!! You g...

Josh Haynie · Josh Haynie

a pneumothorax is a collapsed lung it happened monday at 9am and i continued to work till 12 pm... then i took a nap from 2-5 then at 5 as i was supposed to clean i went to the hospital insted and they told me i had air in between my chest wall and lung causing wrap around pain from my upper chest and back...

Josh Haynie · Josh Haynie

I have a pnuemothorax in my right lung I'm still recovering from since yesterday feeling better will go into more detail when I get back to the flat/apartment :) hopefull gettin out tommorow or thursday....

Michaele · Michaele

Hi , does anyone else get annoyed when people say ," But you dont look sick." There was a time when strangers would walk up to me and ask are u ok ; I was really sick before I was Dx back in early 2000s. Now after having gotten to the F4 mark, my friends and family all say, but u dont look sick and ex...

ss · ss

ANYBODY HAVE THIS INSURANCE UNITED HEALTH CARE ? WAS IT APPROVED WHEN YOU ARE TREATED ON HORVANI I FOUND AN ARTICLE THAT AS OF OCTOBER 15 2014 UHC HAS APPROVED WITH CERTAIN CRITERIA - ANYBODY KNOW ANYTHING ON THIS?

Cinnamon Girl · Cinnamon Girl

Hi everyone, I`ve been in contact with Duane (Dzdayscomin) and he would like me to let you all know that he is taking a break from the forum and so has deleted his membership account with us. As many of you are aware, Duane is struggling with serious health problems at the moment and although he`s very th...

Isiscat2011 · Isiscat2011

The 65th Annual AASLD meeting will be underway soon. For docs who are unable to attend in person there is webcast option for a 2 hour presentation on HCV tx. Just thought the agenda might be of interest to us patients as well. I especially like the presentation about "Showing Interferon the Do...

Topic		Started By	Replies	Views	Last Post
	Need Input on Meaning of Statement in Denial letter (Preview) I am working on my appeal for Harvoni and one of the 3 reasons for denial was: "the requested coverage for Harvoni for a member with hepatitis c is not available" So what the heck does that mean exactly? I'm not sure how to respond to that comment. Any suggestions?	shadow10cats	35	1742	Nov 26, 2014 by Cinnamon Girl
	Let's talk about non-Harvoni treatments (Preview) I want to start a thread to talk about this because from what I am reading, there are a lot of people who probably aren't going to qualify for Harvoni (I hope that's wrong), and a lot of insurances are probably going to try to stall to see if they can go with a more affordable option. http://www.medpage...	LC	17	2244	Nov 26, 2014 by LC
	EUS with Biopsy done today (Preview) Hi All, Had my biopsy 2 day. No varices, 2 reddened areas in stomache, some pancreatis , and the mass is 2.2 at longest part . It is irregular and full of some odd stuff. Necrotic fat and inflammarory cells. 3 passes taken. The DR. believs it is benign. He also did a stain to see if it could be TB. The report i...	Michaele	5	852	Nov 25, 2014 by mallani
	HOW WE GOT HERE; MY THOUGHTS ON HEP-C: THE GUILT AND THE IRONY (Preview) We are all the products of choices made. I assume that most of us contracted hep-C through various methods related to drug use or by close contact with drug users. I used to hide this fact, but have come to terms with it, most particularly with my children and family. I did what I did, and paid the price for...	pauliep	24	1923	Nov 25, 2014 by Harvoninme
	I.V.F and Hep C (Preview) Hi guys, It's been a while since my last post. I had lost all hope for I.VF as some of you know I failed TX this year and the drugs are available in the Netherlands but the insurance companies are playing the delaying game with the high price - so no one can access them yet. I have been trying to get on trails, a...	Loopy Lisa	4	1496	Nov 25, 2014 by Cinnamon Girl
	Hep C & Vitiligo (Preview) I have Hep C about 25 years and developed Vitiligo around 10 years age. no one in my family has ever had Vitiligo so my question is, has anyone ever heard of any correlation between the 2 conditions. Thanks	Trip2	2	791	Nov 24, 2014 by Trip2
	Now they think it might be my kidneys (Preview) SO I just got back from a Dr. appointment, and asked for a lymes disease test.... No such luck. my Dr said tomorrow they are going to draw kidney function and ammonia levels again. I am still upset at this and am having a hard time trying to deal with the elevated ammonia levels... Any thoughts? Could it be...	Trainhopper	8	1110	Nov 21, 2014 by Trainhopper
	More News from AASLD Meeting (Preview) http://www.fiercepharma.com/story/winners-and-losers-aasld-check-out-merck-abbvie-gilead-and-jj-data/2014-11-12 GS-US-337-0121 Study. (Sorry, JLynch, I didn't read tha...	Isiscat2011	27	2039	Nov 20, 2014 by Isiscat2011
	Harvoni approved for 24 weeks!? (Preview) I post here infrequently but have described being turned down for Sovaldi several times by my insurer, the latest was a week ago. I made an appeal to the Calif. State Medical Review Board without success after the second denial. Yesterday I received a letter of authorization for 24 weeks of Harvoni. K...	Lowrider	7	1345	Nov 17, 2014 by Miss B
	AASLD on Retreatment (Preview) DAA retreatment is a recurring topic here and for those who are interested, in addition to the study results that are slowly surfacing, there is language in the AASLD guidelines that provides support for retreatement. The guidelines clearly state that retreatment should be considered and the de...	Isiscat2011	4	1310	Nov 16, 2014 by Isiscat2011
	Communicating with a Unresponsive Doctor, how is it done? (Preview) Hi all I am having a problem with getting my current Hepatologist to return my requests via email and telephone messages. I must admit I never have had a issue of this sort before, but then I never had a serious health issue that required a long term relationship with a doctor, never had a doctor write a pr...	Matt Chris	11	1324	Nov 15, 2014 by Isiscat2011
	Got my results back from my Biopsy (Preview) So it's all good news and I dont have Hepatic Encephalopathy (still cant spell it right ) my Fibrosis level is 1 I'd say yay but i cant receive treatment now so still on the search for my way elevated ammonia levels but im mass happy i dont have H.E.	Trainhopper	17	1546	Nov 15, 2014 by Trainhopper
	HCV, Tx, SVR and Diabetes (Preview) Hello All, Would I be correct in saying that people living with HCV are more susceptible to diabetes? Would it be fair to also say that treatment for HCV, particularly triple therapy (victrelis/ribavirin/peginterferon), elevates blood sugars? Finally, as I am SVR+24, in theory would it then foll...	Greg D	3	981	Nov 14, 2014 by Mugsy
	Improvement in Numbers (Preview) Hi All I haven't posted for a long time since I was busy getting registered for Sovaldi. Thanks fully I am done with the registration and awaiting the medicine to be received. I was asked to re-do certain tests and it showed improvements as follows: PCR test - Viral load decreased to 250k from 1.6 millio...	Omar	9	1652	Nov 13, 2014 by shadow10cats
	Friends in Congress? (Preview) http://www.aasld.org/news/072814/Pages/CongressmanBillCassidy.aspx	Isiscat2011	0	629	Nov 12, 2014 by Isiscat2011
	Will prices fall? (Preview) Maybe when pigs fly! This link shows the names of all the big companies that flat refuse to lower prices on HCV drugs. Personally I think these boys have sorted out a deal between themselves and they are going to keep the prices sky high for as long as possible...this equals zero new treatment for most. I...	Angel67	0	628	Nov 12, 2014 by Angel67
	SUM CONCERN ? (Preview) so im visiting with my FPN and i bring up thee fact that people who are F-4 are having difficulty acquiring sovaldi or havroni ... she goes ya you proably wont get it either they will start you on the cheapest TX they can find ... AND i think we all know what that means :) Interferon and Ribavarin ... ive h...	Josh Haynie	4	1201	Nov 12, 2014 by Josh Haynie
	Harvoni approved by Cigna, Aetna, BlueCross, United healthcare (Preview) OK, called cigna today and Harvoni has been added to their formulary with pre-approval, she only said preapproval required degree of fibrosis, liver biopsy, and some other things, you have to meet certain criteria but it did not list the exact criteria or fibrosis level... she had no link for their d...	angelseven	15	6864	Nov 10, 2014 by Sierrajen
	ANYBODY HAVE EXPRESS SCRIPTS INSURANCE (Preview) HOPEFULLY I WILL BE STARTING HORVANI SOON MY INSURANCE IS UHC AND MY DRUG PLAN IS EXPRESS SCRIPTS GOOD LUCK TO YOU ALL -- Edited by ss on Thursday 6th of November 2014 07:03:14 PM	ss	5	943	Nov 10, 2014 by Sierrajen
	Anti HCV ab positive. feeling anxious (Preview) Hi,This is Bashar from Dhaka, Bangladesh. This is about my wife as she got test results of anti HCV ab sample rate 2.69 & cutoff rate 1.00. It came out when I took her into a doctor for feeling a lump in he breast. The doctor refer her to a prof. of gastroliver. I take the appointment of that prof. I feel v...	Bashar	29	1735	Nov 9, 2014 by Tig
	what next? (Preview) Hi , And now for the cherry on the psycho sundae , drum roll please. The cyst on my pancrea has grown and is now being referred to as a pancreatic mass. Going to referral on the 11th: review ultrasound to see if I need a biopsy again. And also going back to the GI on the12th. I got sort of pissed and asked the d...	Michaele	16	1130	Nov 8, 2014 by Michaele
	Finally, I can smile again (Preview) Hi all, Yesterday, I had my final two implants fitted ( teeth 15 and 16). The older members may know I lost 5 teeth due to my 4 courses of Interferon treatment. These have now been replaced, so I can enjoy my steak again, smiling broadly. The last two were tricky as I needed bone grafts around the titanium s...	mallani	13	1702	Nov 8, 2014 by Tig
	THANKS FOR YOUR CONCERN :) (Preview) im doing ok took that blasted tape and bandages off... i did take it easy at work on thursady and friday i just sat in the chair in the office down stairs and playd games on my phone and read a book on my phone....... feeling like it never happened but the stitches on a wound with a diameter of your pinky wide...	Josh Haynie	0	737	Nov 8, 2014 by Josh Haynie
	Zooted for days.... (Preview) So..... I decided that coffee, whether pretty or not, just isn't for me. That first day..... Seemed like I couldn't fall asleep... Oh that's right it's cause I COULDN'T fall asleep... (lol) I stopped taking the barbiturate that was Rx. I figured if its blood thinning they want.... BAM!!!! You g...	Trainhopper	4	960	Nov 7, 2014 by Michaele
	pneumothorax UPDATE (Preview) a pneumothorax is a collapsed lung it happened monday at 9am and i continued to work till 12 pm... then i took a nap from 2-5 then at 5 as i was supposed to clean i went to the hospital insted and they told me i had air in between my chest wall and lung causing wrap around pain from my upper chest and back...	Josh Haynie	6	844	Nov 7, 2014 by Milliganus
	in hospital right now (Preview) I have a pnuemothorax in my right lung I'm still recovering from since yesterday feeling better will go into more detail when I get back to the flat/apartment :) hopefull gettin out tommorow or thursday....	Josh Haynie	13	858	Nov 6, 2014 by Trainhopper
	But U look healthy (Preview) Hi , does anyone else get annoyed when people say ," But you dont look sick." There was a time when strangers would walk up to me and ask are u ok ; I was really sick before I was Dx back in early 2000s. Now after having gotten to the F4 mark, my friends and family all say, but u dont look sick and ex...	Michaele	9	911	Nov 6, 2014 by LC
	HARVONI - UNITED HEALTH CARE ANYBODY HAVE THIS INSURANCE (Preview) ANYBODY HAVE THIS INSURANCE UNITED HEALTH CARE ? WAS IT APPROVED WHEN YOU ARE TREATED ON HORVANI I FOUND AN ARTICLE THAT AS OF OCTOBER 15 2014 UHC HAS APPROVED WITH CERTAIN CRITERIA - ANYBODY KNOW ANYTHING ON THIS?	ss	4	1935	Nov 5, 2014 by Michaele
	Duane (Dzdayscomin) is taking a break... (Preview) Hi everyone, I`ve been in contact with Duane (Dzdayscomin) and he would like me to let you all know that he is taking a break from the forum and so has deleted his membership account with us. As many of you are aware, Duane is struggling with serious health problems at the moment and although he`s very th...	Cinnamon Girl	18	1129	Nov 4, 2014 by TazKat
	Showing Interferon the Door (Preview) The 65th Annual AASLD meeting will be underway soon. For docs who are unable to attend in person there is webcast option for a 2 hour presentation on HCV tx. Just thought the agenda might be of interest to us patients as well. I especially like the presentation about "Showing Interferon the Do...	Isiscat2011	9	1186	Nov 4, 2014 by Isiscat2011
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