Hep C Discussion Forum

Loopy Lisa · Loopy Lisa

Hi all, I have been pretty busy lately so I thought I would pop in. Well, I still haven't started treatment. I can't have Solvadi until September. The damn insurance companies are making their "plans" because of costs, so Gilead won't be supplying until then. Since I have been delayed furt...

Huey · Huey

Well It seems this dilemma with my workplace may be worked out, The Federal commissioner from the EEC called and said he was just off the phone with DHL lawyers and They say They are sorry and will give me all my back pay and have ask me back to work, It will take a week for the Fed;s to do paperwork, But I can h...

Isiscat2011 · Isiscat2011

Here is a list of the 5 DAA combos that are coming soon. The drug manufacturer, genotypes each will treat, and the expected FDA approval dates are noted: ledipasvir / sofosbuvir Gilead NS5a inhibitor/nucleotide analog polymerase inhibitor Genotype 1 CHC 10/10/2014 _______________________...

skewedButNotBroken · skewedButNotBroken

I missed a call from Skyemed pharmacy on Friday. When I got home and checked my email from work (we use outllook webmail) so I can download messages from my work phone. I instantly called Skyemed pharmacy (a specialty pharmacy) but they were closed. I'm in the process of trying to get approved for the CO...

rapidly10 · rapidly10

Hi! Two months ago I was hanging out with a friend, and a friend of my friend -which I don't know- offered us some fruit and we ate it. Since he probably washed that fruits with his own hands, is it possible for us to get hepatitis c or hiv ? I know, it may seem stupid to ask such a question but I am really curious...

skewedButNotBroken · skewedButNotBroken

I noticed a lesion on my right lower-arm and went to see a dermatologist and she biopsied it and the lab results were positive for seborrheic keratosis which is a non-cancerous skin growth. I was wondering how many of my fellow heppers have this condition and could there be an increased correlation of...

tgcd78 · tgcd78

I've been hearing about Oil Pulling a lot recently. It is the act of swishing coconut or other oil of choice in your mouth for several minutes and spitting it out. Supposedly the benefits go beyond just oral health. If you've done it or do it can I have some reviews? http://authoritynutrition.com/o...

Huey · Huey

Wile we are on treatment we start to: simply put ," Screw " things up! Nothing can we seem to do just right, we try , as we might but fail, We cut the board twice and measure once, Changing a flat tire and wind up putting the flat tire right back on because it looks just like the spare,. It just sta...

skewedButNotBroken · skewedButNotBroken

Hello Everyone. Two weeks ago my doctor submitted a script to SkyeMed Pharmacy for Sovaldi/Olysio and they are tasked with squeezing the money out of BCBS (a tall order). I was wondering about how long will it take before I get my first denial or if I get really lucky an approval? Thanks

longld · longld

While most would argue that 1000$ per pill SEEMS outrageous, they might not have all of the facts at hand to quickly set the 'fair' price. Most drugs are being developed in the US under the capitalistic system that seems to provide a fertile research ground but a costly regulatory one. A few richer co...

mallani · mallani

It's not a great topic, but some patients are going to relapse on Sovaldi. With all the hype and glowing SVR rates from the Trials, expectations are high. It is natural to feel gutted when relapse occurs. Results from Clinical Trials rarely translate into real world practice. Although the Sovaldi Tr...

Josh Haynie · Josh Haynie

Well.... Excellent posts in the last few days from you guys I read them.....lots of DAA coming out between now and prolly 6 months to year means im hopin and thinkin...Price reductions once competition heats up which should make insurance Reps.. more at ease ... ANYway on with the stuff i got in the m...

Isiscat2011 · Isiscat2011

http://www.ohsu.edu/xd/research/centers-institutes/evidence-based-policy-center/med/upload/Sofosbuvir_for_HepatitisC_FINAL_5_19_...

wmlj1960 · wmlj1960

I went to my infectious disease Dr. yesterday and received an "encounter Form" in order to show I attended my appointment so I can get gas $ reimbursement for 105 miles of gas. On the form it list some of my health issues including 571.5 cirrhosis. But why is the word 'cryptogenic' included?...

maddie · maddie

Read today that Vertex plans on discontinuing production of Incivik in October. Use has dropped significantly according to a wall street journal article. http://m.us.wsj.com/articles/BL-270B-455

Josh Haynie · Josh Haynie

http://www.bizjournals.com/portland/blog/health-care-inc/2014/08/oregon-health-plan-inches-closer...

mallani · mallani

Hi all, There have been some posts regarding the frequency of Viral Load testing while on treatment. Previously, this was well established. With Peg/Riba, a VL at 4, 12 24 and 48 if required) weeks was standard. With Incivek triple, 4, 12 and 24 weeks were standard, and for the Victrelis triple, 4, 8, 1...

tomyboy · tomyboy

Hi All, Just recieved awesome news and had to share. Tom just called me at work to report that his doctor just phoned to say he got the approval from insurance to start the new treatment. We are very excited. He will be taking the solvaldi twice a day along with the ribo 3 pills twice a day as a back up. I t...

Isiscat2011 · Isiscat2011

So, I was just checking on how thing are progressing for the Abbvie combo, and it appears this combo will be approved on December 21st. Abbvie submitted its New Drug Application (NDA) to the FDA on April 21, 2014 and it was granted breakthrough status in May. On June 13,2014 the FDA granted it priorit...

tgcd78 · tgcd78

I have two kids that I conceived with active chronic HepC. Now that I am on the road to SVR I want to see if my family is all clear. My husband never got it but I'm not sure if my kids did. How do I go about getting them tested? My children will never ever sit still for a blood draw. Never.

bassetgirl · bassetgirl

Has anyone on this forum with GT 1a and Cirrhosis, treated with Sovaldi and Olysio only, made it to SVR?

Josh Haynie · Josh Haynie

well I found out today i am a F2... which what i projected ..... she said she was surprised but i think that was just negative hype then she says the bad news they may deny your TX because your livers not damaged enough like F3... I jokingly said i can fix that :) ... she says Will see ... i gota wait till Dec...

Huey · Huey

I got a little book from Sovaldi today,,, I think it is supposed to help me take those pills I just got through taking. There kinda late .

Huey · Huey

This is the last Sovaldi, /riba , take it at 5: that makes me post Tx.

hepcinbama · hepcinbama

ok lets get things straight I did not vote for the man but I am defiantly reeping the rewards of the Obama care ! I signed up the first go round an immediately went to the doctor an got diagnosed with hep c my doc put in for solvaldi ribavirin an peg pen the blue cross blue shield went ahead an paid for it the fi...

a2usmani · a2usmani

I wanna know what is the growth ratio of Hep C. Does anyone knows that? In how many months it grows or it differs from person to person?

Josh Haynie · Josh Haynie

im not even on treatment not untill october or november but a slightly alarming readout is 36.2 L 39-80 Neutrophil count platelet count is 143 out of 140-440 ammonia plasma was 43 H 11-35 thats why i mentioned lactoluse because i hear it sheds ammonia but maybe these numbers arent that are not...

Matt Chris · Matt Chris

Hey all Ran across a small article from the Hepatitis Central web site on Pomegranates, which caused me to dig deeper to find the authors of this study from India and the paper that was published in the Nature.com web site. Here is a small excerpt from the article and to link below to the full article A vas...

mallani · mallani

Hi all, Ribavirin will still be around for a while, and it's an interesting drug. It has a multi-pronged action on the HCV, and this is still poorly understood. The correct dosage has been debated for years, but most agree weight-based Riba is the way to go. That means an average male will have 1,200 mg/...

Josh Haynie · Josh Haynie

Ya I pay attention to what you all say and based on that when i get my results on monday the 11th. 8-11-14 for my biopsy I shall broach these talking points......... at my next Dr. slash Gastro appointment... ya i will tell you my results and anything else of revelance she says...she seems to be in the loo...

Topic		Started By	Replies	Views	Last Post
	Playing the waiting game (Preview) Hi all, I have been pretty busy lately so I thought I would pop in. Well, I still haven't started treatment. I can't have Solvadi until September. The damn insurance companies are making their "plans" because of costs, so Gilead won't be supplying until then. Since I have been delayed furt...	Loopy Lisa	11	1622	Sep 4, 2014 by Loopy Lisa
	FMLA (Preview) Well It seems this dilemma with my workplace may be worked out, The Federal commissioner from the EEC called and said he was just off the phone with DHL lawyers and They say They are sorry and will give me all my back pay and have ask me back to work, It will take a week for the Fed;s to do paperwork, But I can h...	Huey	10	1608	Sep 2, 2014 by Huey
	DAA Combos: FDA Approval Status (Preview) Here is a list of the 5 DAA combos that are coming soon. The drug manufacturer, genotypes each will treat, and the expected FDA approval dates are noted: ledipasvir / sofosbuvir Gilead NS5a inhibitor/nucleotide analog polymerase inhibitor Genotype 1 CHC 10/10/2014 _______________________...	Isiscat2011	7	2265	Sep 1, 2014 by Isiscat2011
	Driving me completely crazy... (Preview) I missed a call from Skyemed pharmacy on Friday. When I got home and checked my email from work (we use outllook webmail) so I can download messages from my work phone. I instantly called Skyemed pharmacy (a specialty pharmacy) but they were closed. I'm in the process of trying to get approved for the CO...	skewedButNotBroken	1	879	Aug 31, 2014 by Huey
	Can I get hepatitis C like that? (Preview) Hi! Two months ago I was hanging out with a friend, and a friend of my friend -which I don't know- offered us some fruit and we ate it. Since he probably washed that fruits with his own hands, is it possible for us to get hepatitis c or hiv ? I know, it may seem stupid to ask such a question but I am really curious...	rapidly10	4	1047	Aug 31, 2014 by Cinnamon Girl
	Seborrheic Keratosis and Hep C --- is there a correlation? (Preview) I noticed a lesion on my right lower-arm and went to see a dermatologist and she biopsied it and the lab results were positive for seborrheic keratosis which is a non-cancerous skin growth. I was wondering how many of my fellow heppers have this condition and could there be an increased correlation of...	skewedButNotBroken	2	1073	Aug 28, 2014 by Tig
	Oil Pulling (Preview) I've been hearing about Oil Pulling a lot recently. It is the act of swishing coconut or other oil of choice in your mouth for several minutes and spitting it out. Supposedly the benefits go beyond just oral health. If you've done it or do it can I have some reviews? http://authoritynutrition.com/o...	tgcd78	7	2524	Aug 26, 2014 by Isiscat2011
	One under-estimated side effect (Preview) Wile we are on treatment we start to: simply put ," Screw " things up! Nothing can we seem to do just right, we try , as we might but fail, We cut the board twice and measure once, Changing a flat tire and wind up putting the flat tire right back on because it looks just like the spare,. It just sta...	Huey	7	1299	Aug 26, 2014 by Huey
	SkyeMed Pharmacy (Preview) Hello Everyone. Two weeks ago my doctor submitted a script to SkyeMed Pharmacy for Sovaldi/Olysio and they are tasked with squeezing the money out of BCBS (a tall order). I was wondering about how long will it take before I get my first denial or if I get really lucky an approval? Thanks	skewedButNotBroken	11	2334	Aug 22, 2014 by Huey
	Cost of Sovaldi (Preview) While most would argue that 1000$ per pill SEEMS outrageous, they might not have all of the facts at hand to quickly set the 'fair' price. Most drugs are being developed in the US under the capitalistic system that seems to provide a fertile research ground but a costly regulatory one. A few richer co...	longld	12	2866	Aug 20, 2014 by Isiscat2011
	Relapse with Sovaldi treatments (Preview) It's not a great topic, but some patients are going to relapse on Sovaldi. With all the hype and glowing SVR rates from the Trials, expectations are high. It is natural to feel gutted when relapse occurs. Results from Clinical Trials rarely translate into real world practice. Although the Sovaldi Tr...	mallani	20	4529	Aug 20, 2014 by Tig
	Detailed Report of my Biopsy (Preview) Well.... Excellent posts in the last few days from you guys I read them.....lots of DAA coming out between now and prolly 6 months to year means im hopin and thinkin...Price reductions once competition heats up which should make insurance Reps.. more at ease ... ANYway on with the stuff i got in the m...	Josh Haynie	3	976	Aug 19, 2014 by Tig
	Sovaldi Study (Preview) http://www.ohsu.edu/xd/research/centers-institutes/evidence-based-policy-center/med/upload/Sofosbuvir_for_HepatitisC_FINAL_5_19_...	Isiscat2011	9	1453	Aug 18, 2014 by Tig
	Cirrhosis - cryptogenic, postnecrotic (Preview) I went to my infectious disease Dr. yesterday and received an "encounter Form" in order to show I attended my appointment so I can get gas $ reimbursement for 105 miles of gas. On the form it list some of my health issues including 571.5 cirrhosis. But why is the word 'cryptogenic' included?...	wmlj1960	8	1690	Aug 16, 2014 by wmlj1960
	Incivik being discontinued (closed) (Preview) Read today that Vertex plans on discontinuing production of Incivik in October. Use has dropped significantly according to a wall street journal article. http://m.us.wsj.com/articles/BL-270B-455	maddie	24	2494	Aug 15, 2014 by mallani
	< ( o ) > C-U here check this out (Preview) http://www.bizjournals.com/portland/blog/health-care-inc/2014/08/oregon-health-plan-inches-closer...	Josh Haynie	5	1112	Aug 15, 2014 by Josh Haynie
	Frquency of VL testing on treatment (Preview) Hi all, There have been some posts regarding the frequency of Viral Load testing while on treatment. Previously, this was well established. With Peg/Riba, a VL at 4, 12 24 and 48 if required) weeks was standard. With Incivek triple, 4, 12 and 24 weeks were standard, and for the Victrelis triple, 4, 8, 1...	mallani	10	966	Aug 15, 2014 by Mugsy
	Mt Sinai reporting in (Preview) Hi All, Just recieved awesome news and had to share. Tom just called me at work to report that his doctor just phoned to say he got the approval from insurance to start the new treatment. We are very excited. He will be taking the solvaldi twice a day along with the ribo 3 pills twice a day as a back up. I t...	tomyboy	15	1427	Aug 14, 2014 by tomyboy
	Abbvie Combo: December 21 (Preview) So, I was just checking on how thing are progressing for the Abbvie combo, and it appears this combo will be approved on December 21st. Abbvie submitted its New Drug Application (NDA) to the FDA on April 21, 2014 and it was granted breakthrough status in May. On June 13,2014 the FDA granted it priorit...	Isiscat2011	4	953	Aug 14, 2014 by hippiechick
	Testing kids for HepC (Preview) I have two kids that I conceived with active chronic HepC. Now that I am on the road to SVR I want to see if my family is all clear. My husband never got it but I'm not sure if my kids did. How do I go about getting them tested? My children will never ever sit still for a blood draw. Never.	tgcd78	4	879	Aug 12, 2014 by Isiscat2011
	Who With Gt 1a/Cirrhosis treated with S/O has SVR? (Preview) Has anyone on this forum with GT 1a and Cirrhosis, treated with Sovaldi and Olysio only, made it to SVR?	bassetgirl	3	810	Aug 12, 2014 by sandypsych
	BIOPSY RESULTS and Future Timetable (Preview) well I found out today i am a F2... which what i projected ..... she said she was surprised but i think that was just negative hype then she says the bad news they may deny your TX because your livers not damaged enough like F3... I jokingly said i can fix that :) ... she says Will see ... i gota wait till Dec...	Josh Haynie	1	859	Aug 12, 2014 by Huey
	Little Book. (Preview) I got a little book from Sovaldi today,,, I think it is supposed to help me take those pills I just got through taking. There kinda late .	Huey	2	730	Aug 12, 2014 by Huey
	The Last pill (Preview) This is the last Sovaldi, /riba , take it at 5: that makes me post Tx.	Huey	7	975	Aug 11, 2014 by Isiscat2011
	obama care! (Preview) ok lets get things straight I did not vote for the man but I am defiantly reeping the rewards of the Obama care ! I signed up the first go round an immediately went to the doctor an got diagnosed with hep c my doc put in for solvaldi ribavirin an peg pen the blue cross blue shield went ahead an paid for it the fi...	hepcinbama	42	2156	Aug 11, 2014 by Isiscat2011
	Groth Ratio of Hep C (Preview) I wanna know what is the growth ratio of Hep C. Does anyone knows that? In how many months it grows or it differs from person to person?	a2usmani	3	924	Aug 10, 2014 by Huey
	Neutrophil and platelet counts (Preview) im not even on treatment not untill october or november but a slightly alarming readout is 36.2 L 39-80 Neutrophil count platelet count is 143 out of 140-440 ammonia plasma was 43 H 11-35 thats why i mentioned lactoluse because i hear it sheds ammonia but maybe these numbers arent that are not...	Josh Haynie	5	1078	Aug 7, 2014 by mallani
	Plant derived dietary components that impede HCV replication (Preview) Hey all Ran across a small article from the Hepatitis Central web site on Pomegranates, which caused me to dig deeper to find the authors of this study from India and the paper that was published in the Nature.com web site. Here is a small excerpt from the article and to link below to the full article A vas...	Matt Chris	5	1002	Aug 7, 2014 by wmlj1960
	Action of Ribavirin (Preview) Hi all, Ribavirin will still be around for a while, and it's an interesting drug. It has a multi-pronged action on the HCV, and this is still poorly understood. The correct dosage has been debated for years, but most agree weight-based Riba is the way to go. That means an average male will have 1,200 mg/...	mallani	7	1344	Aug 7, 2014 by mallani
	Questions for the gastro>>> (Preview) Ya I pay attention to what you all say and based on that when i get my results on monday the 11th. 8-11-14 for my biopsy I shall broach these talking points......... at my next Dr. slash Gastro appointment... ya i will tell you my results and anything else of revelance she says...she seems to be in the loo...	Josh Haynie	4	1220	Aug 6, 2014 by Huey
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