Hep C Discussion Forum

longld · longld

http://www.reuters.com/article/2014/06/16/us-gilead-sciences-britain-idUSKBN0ER0VI20140616LONDON Mon Jun 16, 2014 5:31am EDT COMMENTSShare thisEmailPrint RELATED TOPICSHealth » (Reuters) - Britain'...

Paul B · Paul B

As I have mentioned in a previous post, I had undergone tx twice previously. I lasted 12 weeks in 1995, (non peg Interferon), my ALT had dropped to 30, AST 32, only to climb back up, which I am guessing is why they discontinued at week 12. Fast forward to 1998 and non peg Interferon/Ribavirin and once a...

Marypetrecz · Marypetrecz

My doc told me yesterday as an FYI, that the FDA is approving or has just approved olysio and sovaldi together.... i was surprised, they are from different companies and I thought they'd never even try to have them approved together,,....

Kay · Kay

Havent posted in a while so a quick reintroduction: My name is Carleen/Kay I have had Hep-C for over 20 years. I had a blood transfusion in 1988 but also lived a very wild life so could of gotten it from too much partying. I have 6 kids and have been married for 25 years. James my husband wanted to do somethin...

Isiscat2011 · Isiscat2011

Benitec just dosed its first human with the one shot treatment. This article was in the Wall Street Journal today:SYDNEY, May 29, 2014 /PRNewswire/ -- RNAi-based therapeutics company, Benitec Biopharma Limited (ASX: BLT) is pleased to announce that it has dosed the first patient in its 'first i...

joyce · joyce

Hi everyone, Just lost a huge post I will re-write it but not right now. Joyce -- Edited by joyce on Thursday 12th of June 2014 04:29:54 PM

Mugsy · Mugsy

http://www.oregonlive.com/health/index.ssf/2014/06/facing_a_168-million_price_tag.html

Ro · Ro

Anyone have suggestions for the awful itching? I have tried lotions, creams, cool showers and antihistamines and still scratch myself raw in my sleep:( Willing to try anything at this point Thanks for advice Ro

suziq · suziq

I was reading the many posts today and thinking of how it was just a year ago. I had just gotten my first biopsy since 2000 and was denied a Gilead trial because I had cirrhosis. There were a few posts concerning trials, but not many. Most related to the old SOC. Today, the posts are full of people start...

mallani · mallani

Hi all, Every 6 months I do a post about the effect of HCV on teeth. Chronic HepC causes decreased, acidic saliva. This promotes tooth decay. For those patients who are put on Interferon, the problem gets worse. Interferon has a direct effect on tooth enamel, and further reduces saliva production. A...

Isiscat2011 · Isiscat2011

I sometimes have random pain in the liver region but I've noticed the discomfort can get super bad if I eat the wrong foods or too much food. Here is a youtube video I found helpful if this happens to you too: www.youtube.com/watch?v=lPipZlRVzGc

trudge · trudge

Ok, so this is complicated but, I am in week 19 treatment for hep c genotype 3. The third blood results came back negative, still have the 5 more weeks to go. Last week my roommates father moved here from nova scotia, and i had no idea he was a junky, one night i had extreme anxiety and he was using infront o...

skewedButNotBroken · skewedButNotBroken

I had an appointment with Dr. Paul Martin at the University of Miami Department of Hepatology on the 29th of May. After reviewing my lab work Dr. Martin thinks I might have the beginning stages of cirrhosis. My local doctor in Fort Myers, FL also thought I had cirrhosis based on my lab work. I had a biopsy...

TazKat · TazKat

i did shot 6 last friday, so i almost halfway into this thing. but when putting on my mascara (which is not alot, not feelin it) one of my eyes is yellow. i have always called that eye my sick eye. it would be the tired droopy one. so maybe stressed & tired?

Isiscat2011 · Isiscat2011

There is a So. Cal based company that tracks safety info on new drugs. Its clients are primarily hospitals, docs, insurance providers, and pharma companies. Their website is AdverseEvents.com. They completed a report about Sovaldi's safety for the period ending on April 25, 2014. The report i...

Turnsit · Turnsit

Are there people here on olysio and solvaldi? If so, how much are you able to be in sunlight or ultra violet light? I have not burned because I stay out of both kinds of light, either causes my skin to itch badly, even a little exposure. Otherwise, I cannot even tell I am on treatment. We were told sun exposu...

Paul B · Paul B

Hi, this is my first post here and I have a few questions around treatment. I am genotype 1a and have been treated twice before. First time in 1995 with straight interferon. Second time in 1998 with interferon (This was before peg interferon) and Ribaviron. On this second occasion my ALT dropped to t...

Isiscat2011 · Isiscat2011

The battle between medicaid/insurance companies and Gilead rages on. This article was recently published in MedPage Today. Not only are Gilead's prices being questioned, but efficacy and safety concerns about Sovaldi are beginning to surface: Medicaid Directors Question Need for $1,000 H...

Milliganus · Milliganus

Hi all, Just got my most recent lab work done and my ferritin (iron) count is way high (360). I've NEVER had an out of range reading for this. My liver enzymes all were within range except one which wasn't too bad. Anyone know what this means and what I can do to mitigate it if it's a bad thing? My doctor d...

Liamc · Liamc

Has any one heard anything more about indian drug companies partnering up with Gilead to produce cheap sovaldi? Cheers liam

Huey · Huey

five paragraphs from the bottom, "Comparing the price of a pill or a bottle,, to treating it for life??? So does that mean if the cure is to high we all have to suffer and pay for life a cost for treatment that just sustains, when there is a cure????? What the H LL??

JeanInMaine · JeanInMaine

Denied by insurance company (Blue Cross Blue Shield affiliate in Maine) for dual drug sofosbuvir and simeprevir - not sick enough - fibrosis only at stage 2 - threshold is stage 3. Doctor says slow progression, wait until fall and new drugs - looks like the guidelines from http://www.hcvguideline...

Loopy Lisa · Loopy Lisa

Hi everyone, Just to let you know I'm ok. I battled on a little longer with treatment but the panic attacks wiped the ground with me and I had to quit. This was the only side effect that I couldn't cope with. I will prepare better next time around with some medications to combat it. I am disappointed in my...

mallani · mallani

Hi all, We talk about Sovaldi as if it's an old friend. It really had a turbulent beginning. It was developed by Pharmasset in 2010 as a second-string NS-5B nucleoside inhibitor, to go with it's PSI-938, the first nucleoside inhibitor. For a company with no drug products and only 80 employees, the sha...

Huey · Huey

It is apparent that in order to keep paying the insurance premium to cover the health cost. You need a Treatment that the side effects do not interfere with your ability to work. This is a Non-Interferion treatment. And if you can do away with Ribavirin even better! But now is the time for me to cure thi...

patiently_waiting · patiently_waiting

As of this week I've been chomping at the bit to get started on either Solvadi/Olysio or maybe a Merck trial, but as I read more I'm wondering if I should wait for Ledipasvir. Considering RAVs and the potential of having to take Ribavarin (which I'd really like to avoid), would I be better off waiting? ...

Huey · Huey

ok,, here is what happened. I just finnished off my 12th week of Tx and I had been taking the Sovaldi in the A.M. the the dose of Ribo, and just Ribo in the P.M. But the other day i couldn't find the bottle so i went to work without taking it and took it in the P.M. Now that I think about it this might be better, 12...

JohnHarold · JohnHarold

The Doctor orally told me " I was one of the lucky ones who had it and cured it myself" I lost 20lbs, my wedding ring doesn't fit tight and is loose, and have digestional issues (the doctor is a gastroenterologist) Could it come back in the future as it lays dormant and defeated? Here ar...

Barnacle · Barnacle

I mentioned to my nurse about a thread I saw on here where someone had possibly reinfected themselves after UND from their own razor. She was very interested in a link to that post but I am useless at doing searches. I believe it was in a thread about how log the virus can live out of the body. Can anyone help...

aprileee · aprileee

Apparently it is nurses week? I did not know about that until today and since I have a bunch of nurses that are always there for me when I need them, I decided to send them flowers to their office. I realize not everyone can do this, but I thought it would be nice for people to at least give their own a special t...

Topic		Started By	Replies	Views	Last Post
	UK NICE agency not backing Sovaldi (Preview) http://www.reuters.com/article/2014/06/16/us-gilead-sciences-britain-idUSKBN0ER0VI20140616LONDON Mon Jun 16, 2014 5:31am EDT COMMENTSinShare4Share thisEmailPrint RELATED TOPICSHealth » (Reuters) - Britain'...	longld	3	1086	Jun 17, 2014 by Loopy Lisa
	Relapser or not ? (Preview) As I have mentioned in a previous post, I had undergone tx twice previously. I lasted 12 weeks in 1995, (non peg Interferon), my ALT had dropped to 30, AST 32, only to climb back up, which I am guessing is why they discontinued at week 12. Fast forward to 1998 and non peg Interferon/Ribavirin and once a...	Paul B	10	1142	Jun 17, 2014 by mallani
	Not sure where to post this.....sovaldi and olysio....FDA approved (Preview) My doc told me yesterday as an FYI, that the FDA is approving or has just approved olysio and sovaldi together.... i was surprised, they are from different companies and I thought they'd never even try to have them approved together,,....	Marypetrecz	13	2403	Jun 16, 2014 by Marypetrecz
	My Husbands Climbing a Mountain For Us (Preview) Havent posted in a while so a quick reintroduction: My name is Carleen/Kay I have had Hep-C for over 20 years. I had a blood transfusion in 1988 but also lived a very wild life so could of gotten it from too much partying. I have 6 kids and have been married for 25 years. James my husband wanted to do somethin...	Kay	25	1508	Jun 14, 2014 by Tig
	Benitec One Shot TX (Preview) Benitec just dosed its first human with the one shot treatment. This article was in the Wall Street Journal today:SYDNEY, May 29, 2014 /PRNewswire/ -- RNAi-based therapeutics company, Benitec Biopharma Limited (ASX: BLT) is pleased to announce that it has dosed the first patient in its 'first i...	Isiscat2011	10	1381	Jun 14, 2014 by Loopy Lisa
	Life is good! (Preview) Hi everyone, Just lost a huge post I will re-write it but not right now. Joyce -- Edited by joyce on Thursday 12th of June 2014 04:29:54 PM	joyce	6	950	Jun 14, 2014 by Cinnamon Girl
	Article in the Oregonian today (Preview) http://www.oregonlive.com/health/index.ssf/2014/06/facing_a_168-million_price_tag.html	Mugsy	10	1102	Jun 13, 2014 by Dzdayscomin
	Itching :( (Preview) Anyone have suggestions for the awful itching? I have tried lotions, creams, cool showers and antihistamines and still scratch myself raw in my sleep:( Willing to try anything at this point Thanks for advice Ro	Ro	7	1509	Jun 9, 2014 by Ro
	A Year Ago Things Really Change (Preview) I was reading the many posts today and thinking of how it was just a year ago. I had just gotten my first biopsy since 2000 and was denied a Gilead trial because I had cirrhosis. There were a few posts concerning trials, but not many. Most related to the old SOC. Today, the posts are full of people start...	suziq	18	2657	Jun 9, 2014 by Cinnamon Girl
	HCV and teeth (Preview) Hi all, Every 6 months I do a post about the effect of HCV on teeth. Chronic HepC causes decreased, acidic saliva. This promotes tooth decay. For those patients who are put on Interferon, the problem gets worse. Interferon has a direct effect on tooth enamel, and further reduces saliva production. A...	mallani	7	1370	Jun 6, 2014 by Huey
	Liver pain and eating (Preview) I sometimes have random pain in the liver region but I've noticed the discomfort can get super bad if I eat the wrong foods or too much food. Here is a youtube video I found helpful if this happens to you too: www.youtube.com/watch?v=lPipZlRVzGc	Isiscat2011	7	916	Jun 5, 2014 by Scruffy
	Extremely worried (closed) (Preview) Ok, so this is complicated but, I am in week 19 treatment for hep c genotype 3. The third blood results came back negative, still have the 5 more weeks to go. Last week my roommates father moved here from nova scotia, and i had no idea he was a junky, one night i had extreme anxiety and he was using infront o...	trudge	26	1387	Jun 4, 2014 by hrsetrdr
	I went to see a hepatologist in Miami (Preview) I had an appointment with Dr. Paul Martin at the University of Miami Department of Hepatology on the 29th of May. After reviewing my lab work Dr. Martin thinks I might have the beginning stages of cirrhosis. My local doctor in Fort Myers, FL also thought I had cirrhosis based on my lab work. I had a biopsy...	skewedButNotBroken	9	1425	Jun 2, 2014 by TazKat
	my eyes (Preview) i did shot 6 last friday, so i almost halfway into this thing. but when putting on my mascara (which is not alot, not feelin it) one of my eyes is yellow. i have always called that eye my sick eye. it would be the tired droopy one. so maybe stressed & tired?	TazKat	7	1064	Jun 2, 2014 by TazKat
	Sovaldi First Look at Post Approval Safety (Preview) There is a So. Cal based company that tracks safety info on new drugs. Its clients are primarily hospitals, docs, insurance providers, and pharma companies. Their website is AdverseEvents.com. They completed a report about Sovaldi's safety for the period ending on April 25, 2014. The report i...	Isiscat2011	25	3066	Jun 2, 2014 by Loopy Lisa
	Olysio (Preview) Are there people here on olysio and solvaldi? If so, how much are you able to be in sunlight or ultra violet light? I have not burned because I stay out of both kinds of light, either causes my skin to itch badly, even a little exposure. Otherwise, I cannot even tell I am on treatment. We were told sun exposu...	Turnsit	2	874	Jun 2, 2014 by Barnacle
	About to start treatment... again. (Preview) Hi, this is my first post here and I have a few questions around treatment. I am genotype 1a and have been treated twice before. First time in 1995 with straight interferon. Second time in 1998 with interferon (This was before peg interferon) and Ribaviron. On this second occasion my ALT dropped to t...	Paul B	12	2019	May 31, 2014 by mallani
	Medicaid/Insurance v Gilead (Preview) The battle between medicaid/insurance companies and Gilead rages on. This article was recently published in MedPage Today. Not only are Gilead's prices being questioned, but efficacy and safety concerns about Sovaldi are beginning to surface: Medicaid Directors Question Need for $1,000 H...	Isiscat2011	0	1255	May 31, 2014 by Isiscat2011
	Ferritin high.... (Preview) Hi all, Just got my most recent lab work done and my ferritin (iron) count is way high (360). I've NEVER had an out of range reading for this. My liver enzymes all were within range except one which wasn't too bad. Anyone know what this means and what I can do to mitigate it if it's a bad thing? My doctor d...	Milliganus	4	1736	May 29, 2014 by Tig
	Sovaldii and Indian drug companies (closed) (Preview) Has any one heard anything more about indian drug companies partnering up with Gilead to produce cheap sovaldi? Cheers liam	Liamc	42	1739	May 29, 2014 by Cinnamon Girl
	Yahoo News , Gilead's new Hep C drug too Pricy. (Preview) five paragraphs from the bottom, "Comparing the price of a pill or a bottle,, to treating it for life??? So does that mean if the cure is to high we all have to suffer and pay for life a cost for treatment that just sustains, when there is a cure????? What the H LL??	Huey	11	1325	May 29, 2014 by Matt Chris
	Denied By Insurance - should I appeal? (Preview) Denied by insurance company (Blue Cross Blue Shield affiliate in Maine) for dual drug sofosbuvir and simeprevir - not sick enough - fibrosis only at stage 2 - threshold is stage 3. Doctor says slow progression, wait until fall and new drugs - looks like the guidelines from http://www.hcvguideline...	JeanInMaine	18	3353	May 25, 2014 by Groupergetter
	Checking in (Preview) Hi everyone, Just to let you know I'm ok. I battled on a little longer with treatment but the panic attacks wiped the ground with me and I had to quit. This was the only side effect that I couldn't cope with. I will prepare better next time around with some medications to combat it. I am disappointed in my...	Loopy Lisa	17	2248	May 25, 2014 by globetrotter
	History of Sovaldi (Preview) Hi all, We talk about Sovaldi as if it's an old friend. It really had a turbulent beginning. It was developed by Pharmasset in 2010 as a second-string NS-5B nucleoside inhibitor, to go with it's PSI-938, the first nucleoside inhibitor. For a company with no drug products and only 80 employees, the sha...	mallani	18	2714	May 24, 2014 by Isiscat2011
	Working wile on Tx (Preview) It is apparent that in order to keep paying the insurance premium to cover the health cost. You need a Treatment that the side effects do not interfere with your ability to work. This is a Non-Interferion treatment. And if you can do away with Ribavirin even better! But now is the time for me to cure thi...	Huey	5	962	May 21, 2014 by Barnacle
	Should I wait for Ledipasvir? ( 1 2 ) (Preview) As of this week I've been chomping at the bit to get started on either Solvadi/Olysio or maybe a Merck trial, but as I read more I'm wondering if I should wait for Ledipasvir. Considering RAVs and the potential of having to take Ribavarin (which I'd really like to avoid), would I be better off waiting? ...	patiently_waiting	53	4114	May 21, 2014 by mallani
	Sovaldi A.M. or P.M. (Preview) ok,, here is what happened. I just finnished off my 12th week of Tx and I had been taking the Sovaldi in the A.M. the the dose of Ribo, and just Ribo in the P.M. But the other day i couldn't find the bottle so i went to work without taking it and took it in the P.M. Now that I think about it this might be better, 12...	Huey	1	823	May 14, 2014 by Tig
	Can anyone read these results? and answer a few questions? (Preview) The Doctor orally told me " I was one of the lucky ones who had it and cured it myself" I lost 20lbs, my wedding ring doesn't fit tight and is loose, and have digestional issues (the doctor is a gastroenterologist) Could it come back in the future as it lays dormant and defeated? Here ar...	JohnHarold	6	1588	May 13, 2014 by Cinnamon Girl
	Need a forum guru (Preview) I mentioned to my nurse about a thread I saw on here where someone had possibly reinfected themselves after UND from their own razor. She was very interested in a link to that post but I am useless at doing searches. I believe it was in a thread about how log the virus can live out of the body. Can anyone help...	Barnacle	10	2124	May 13, 2014 by Caryn
	nurses week (Preview) Apparently it is nurses week? I did not know about that until today and since I have a bunch of nurses that are always there for me when I need them, I decided to send them flowers to their office. I realize not everyone can do this, but I thought it would be nice for people to at least give their own a special t...	aprileee	3	726	May 11, 2014 by Cinnamon Girl
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