Hep C Discussion Forum

gerewolf · gerewolf

Julia has been waiting for the new medicines to come out so she won't have to take interferon. Now we read that the new medicines will cost $1000 a pill! Is this really true? Will the new medicines be too expensive? Will insurance not pay for them? thanks.

Michaele · Michaele

Does anyone know if the boomers on Medicare Part D are covered for new non interferon drugs. I thought I read yes , then no , then alot of iffy bits. And also if you have Medicare D you are not eligible for asst with cost from drug companies. All response welcome. Thank you Michaele

Lizzy · Lizzy

When I read that Pharmasset was able to clear the Hepatitis C virus in two weeks (including genotype 1) in 15 out of 16 patients without using interferon, I immediately had a strong suspicion that other pharmaceutical companies were going to start pushing their long and drawn out cures. Within a wee...

suziq · suziq

I got this post (below) from another forum I am on and felt it Could really help with the new FDA approved meds. SuziQ "I was a non-believer. My drugs were approved today by CIGNafter an appeal. The CIgna specialty pharmacy called me and rather embarrassed told me my copay was $3,500. They gav...

Loopy Lisa · Loopy Lisa

Hi everyone, I am considering making a documentary about Hep C. One thing is clear, the information available is poor, hard to research if you don't know what you are looking for, data is hard to decipher, and a lot of information is outdated or miss understood. I checked with Jill if it was Ok to ask the p...

Scruffy · Scruffy

Heres a link to a site I saw in a tv commercial. Click the link "see our tv add" on the right top of page. This was a first for me to see hep c treatment commercial on TV. http://www.hepchope.com/

Matt Chris · Matt Chris

Its quite amazing and great news that this combo (Olysio & Sovaldi) is being prescribed and then approved by insurance companies since its off label from FDA. I guess that the medical machine has more power and influence with the insurance that we thought. With all the patients being prescribed...

LTChaos · LTChaos

Just wanted to share- My husband tested & came back clear. We've been together since 1988, so I was worried for him. I had to pressure him a bit to get tested, because he was avoiding it. His test was negative, which is a great relief. His response, "Thank God, I can still drink!". T...

robertsamx · robertsamx

Are there any type 2 with cirrhosis folks not in treatment out there

Alaska Fred · Alaska Fred

Are any of the folks taking this new combo Telaprevir Null Responders?

Loopy Lisa · Loopy Lisa

Well in March I go to the specialist to give more blood and begin treatment. I am actually a little scared to start these drugs. I know its not really rational, but considering I hate even taking mild pain killers - before I knew I had hep, it is really a big deal for me. I know the new drugs are much easier and...

suziq · suziq

Hi All, Went for my 4 week EOT appointment yesterday. My coordinator mentioned that she has 2 new trials for geno 1 coming up this Spring. Anyone living near the Dallas Ft Worth Texas area can private message me for the contact info--or look up Texas Medical Research Center in Arlington Texas. I do...

JLynch30 · JLynch30

I am taking meloxicam (a NSAID) for back pain - any worries for my liver?

gsx1250fa · gsx1250fa

Hi folks. Been a while and all is good. Coming up on a year post Tx cleared. All is good except libedo is gone and other symptoms of "Low-T" although my total is 445 which is in the lower normal range of the scale. I am 48 yoa. Funny thing is that when the Hep C was active (blood work including T chec...

Asif C · Asif C

Dear All, My anti HCV test Positive with value 2.69 but my PCR test negative (Report says "Not detected"). I have few questions. 1) I am clear from HCV ? 2) Can i transfer HCV to other as Anti HCV test positive. 3) I need the treatment? 4) I need to take any special care regarding relationship w...

Believeinmiracles · Believeinmiracles

Hello, I just joined this forum looking for some help/advice. My husband (25 yrs old) was diagnosed with hep c in September 2013 (traced back to tainted blood scandal and an in utero blood transfusion). We have yet to see a specialist. I have been tested and am hep C negative (we have been in a relationsh...

Liamc · Liamc

Hi, I just got my viral load results back, HCV RNA 207,952 and my HCV log 5.32 iu/ml Is there a link explaining viral loads on the forum?Unfortunately due to my location I have to wait another week to see doctor, just anxious to know. thankyou liam

markymark · markymark

Hello. For over 1 year ago i took some blood tests that showed that I was positive for the antibodies for Hepatitis C but no virus. They then took 2 more blood tests (RIBA included) that showed that i didnt even have the antibodies and the later tests showed no infection (no test has showed any infection...

Enavigo3891 · Enavigo3891

Hey all. It's been a long 11 months since I've posted here... (that doesn't mean I haven't been watching **wink**) My doctor called me at the end of November, over the moon about Sofosbuvir + Ribavirin and so I've got myself an appointment 1/30 to discuss. I have never treated before (+ since birth in 1...

a2usmani · a2usmani

Hi, My mother has been diagnosed with HCV positive. She had some pain in her abdomen. We went to the doctor and then HCV was diagnosed. She also had black stools. The doctor told us that there is internal bleeding. This happened on 4th Jan, 2014. Now the doctor has done endoscopy but they are saying not s...

suziq · suziq

OLYSIO: THERE ARE AFFORDABLE OPTIONS AVAILABLE. There are several options for helping you reduce out-of-pocket costs of treatment, whether you have commercial insurance or government insurance, or you are uninsured. Find the option below that best applies to you.I Have Commercial Insurance...

suziq · suziq

Another Drug Company has posted plans for their new clinical trials for 2014. Just more and more good news!!! SuziQ Achillion 2014 Milestones -- ACH-3422: HCV Nucleotide NS5B Polymerase Inhibitor - To date, all of the Company's preclinical studies support the advancement of ACH-3422 into cl...

suziq · suziq

Found This article today. There will be more clinical trials in the coming year. SuziQ 2014-Daclatasvir Accelerated Review By European RegulatorsSubmission includes EUs first all-oral and ribavirin-free investigational regimen for use in treatment naïve genotype 1, 2, 3 patients and prote...

suziq · suziq

Another announcement about new clinical trials. SuziQ Simeprevir and Samatasvir (IDX719) for the treatment of hepatitis C STOCKHOLM, Sweden--(BUSINESS WIRE)--January 13, 2014-- Regulatory News: Sweden--Medivir AB (STO:MVIR-B), announces that Idenix Pharmaceuticals, Inc. today rele...

Tig · Tig

While looking for information on fibrosis I came across this website/article. It mentions "an increasing number of studies suggesting that the consumption of caffeine may reduce liver inflammation in people with chronic liver disease." Makes me wonder if there was any chance of that...

Gracie · Gracie

Is there any correlation between side effects and treatment results? Does anybody know what the ratios are or if there is any difference between those that get the rash, butt burn, etc against those that don't? I am feeling pretty good today and am worried that means theI treatment isn't working (sho...

rio · rio

Hi Folks, Number 2 of my Hep C / Liver Traansplant Video Diary! Just thought I'd share my morning routine with you, including the medication I'm taking and my progress so far. Plus my plea to ask you to join the organ donation register, follo...

suziq · suziq

Found this video about the COSMOS trial of the two newly FDA approved drugs now available in the US. Good information to share with your doctor and MAYBE you can get this. Of course, there is still insurance to worry about. Very short--just a little over 2 minutes. Eric J. Lawitz, MD: Digestive Dis...

Matt Chris · Matt Chris

Hey all Thought this was a easily understandable article from Liver International ISSN about the current DAA's that will be coming to market in the next year. Remembering all the DAA's and what part of the protein they inhibit (whether they are a NS5a or NS5b , NS3, etc) is always confusing. This art...

Tig · Tig

I was sent this link today from a newsfeed that I occasionally receive information from. I found it interesting and thought it might be informative for some interested in cancer research. As we all fight so hard to rid ourselves of a deadly virus, information like this can serve to both impress and con...

Topic		Started By	Replies	Views	Last Post
	Are the new medications by Gilead too expensive? (Preview) Julia has been waiting for the new medicines to come out so she won't have to take interferon. Now we read that the new medicines will cost $1000 a pill! Is this really true? Will the new medicines be too expensive? Will insurance not pay for them? thanks.	gerewolf	1	984	Mar 11, 2014 by Tig
	is anyone on new non interferon Tx using Medicare Part D (Preview) Does anyone know if the boomers on Medicare Part D are covered for new non interferon drugs. I thought I read yes , then no , then alot of iffy bits. And also if you have Medicare D you are not eligible for asst with cost from drug companies. All response welcome. Thank you Michaele	Michaele	26	1468	Mar 7, 2014 by Michaele
	Is It Ethical for Pharmaceutical Companies to Advertise Agressively (Preview) When I read that Pharmasset was able to clear the Hepatitis C virus in two weeks (including genotype 1) in 15 out of 16 patients without using interferon, I immediately had a strong suspicion that other pharmaceutical companies were going to start pushing their long and drawn out cures. Within a wee...	Lizzy	3	1290	Mar 4, 2014 by Cinnamon Girl
	Gilead CoPay Experience And Information (Preview) I got this post (below) from another forum I am on and felt it Could really help with the new FDA approved meds. SuziQ "I was a non-believer. My drugs were approved today by CIGNafter an appeal. The CIgna specialty pharmacy called me and rather embarrassed told me my copay was $3,500. They gav...	suziq	4	1344	Mar 2, 2014 by Dee738
	Hep C and information (Preview) Hi everyone, I am considering making a documentary about Hep C. One thing is clear, the information available is poor, hard to research if you don't know what you are looking for, data is hard to decipher, and a lot of information is outdated or miss understood. I checked with Jill if it was Ok to ask the p...	Loopy Lisa	2	946	Feb 28, 2014 by Cinnamon Girl
	hep c on tv (Preview) Heres a link to a site I saw in a tv commercial. Click the link "see our tv add" on the right top of page. This was a first for me to see hep c treatment commercial on TV. http://www.hepchope.com/	Scruffy	1	920	Feb 25, 2014 by Tig
	The Amazing new off Label Combo Olysio & Sovaldi (Preview) Its quite amazing and great news that this combo (Olysio & Sovaldi) is being prescribed and then approved by insurance companies since its off label from FDA. I guess that the medical machine has more power and influence with the insurance that we thought. With all the patients being prescribed...	Matt Chris	1	1110	Feb 21, 2014 by Cinnamon Girl
	One less worry! (Preview) Just wanted to share- My husband tested & came back clear. We've been together since 1988, so I was worried for him. I had to pressure him a bit to get tested, because he was avoiding it. His test was negative, which is a great relief. His response, "Thank God, I can still drink!". T...	LTChaos	4	714	Feb 20, 2014 by globetrotter
	wa. state treatment (Preview) Are there any type 2 with cirrhosis folks not in treatment out there	robertsamx	0	657	Feb 16, 2014 by robertsamx
	Telaprevir failure and Sovaldi-Olysio combo (Preview) Are any of the folks taking this new combo Telaprevir Null Responders?	Alaska Fred	0	770	Feb 14, 2014 by Alaska Fred
	Count down to treatment (Preview) Well in March I go to the specialist to give more blood and begin treatment. I am actually a little scared to start these drugs. I know its not really rational, but considering I hate even taking mild pain killers - before I knew I had hep, it is really a big deal for me. I know the new drugs are much easier and...	Loopy Lisa	12	1129	Feb 14, 2014 by rebeca
	Info on New Clinical Trials (Preview) Hi All, Went for my 4 week EOT appointment yesterday. My coordinator mentioned that she has 2 new trials for geno 1 coming up this Spring. Anyone living near the Dallas Ft Worth Texas area can private message me for the contact info--or look up Texas Medical Research Center in Arlington Texas. I do...	suziq	1	636	Feb 14, 2014 by Cinnamon Girl
	Meloxicam (Preview) I am taking meloxicam (a NSAID) for back pain - any worries for my liver?	JLynch30	2	1362	Feb 11, 2014 by mallani
	Testosterone Therapy (Preview) Hi folks. Been a while and all is good. Coming up on a year post Tx cleared. All is good except libedo is gone and other symptoms of "Low-T" although my total is 445 which is in the lower normal range of the scale. I am 48 yoa. Funny thing is that when the Hep C was active (blood work including T chec...	gsx1250fa	2	1143	Feb 9, 2014 by gsx1250fa
	Anti HCV Postive but PCR Negative (Report says "Not detected"). (Preview) Dear All, My anti HCV test Positive with value 2.69 but my PCR test negative (Report says "Not detected"). I have few questions. 1) I am clear from HCV ? 2) Can i transfer HCV to other as Anti HCV test positive. 3) I need the treatment? 4) I need to take any special care regarding relationship w...	Asif C	9	3355	Feb 8, 2014 by Cinnamon Girl
	Help/advice please! (Preview) Hello, I just joined this forum looking for some help/advice. My husband (25 yrs old) was diagnosed with hep c in September 2013 (traced back to tainted blood scandal and an in utero blood transfusion). We have yet to see a specialist. I have been tested and am hep C negative (we have been in a relationsh...	Believeinmiracles	3	1170	Feb 3, 2014 by newmex
	Viral load explained (Preview) Hi, I just got my viral load results back, HCV RNA 207,952 and my HCV log 5.32 iu/ml Is there a link explaining viral loads on the forum?Unfortunately due to my location I have to wait another week to see doctor, just anxious to know. thankyou liam	Liamc	1	654	Feb 2, 2014 by mallani
	Hepatits C antibodies in test (AGAIN) What to do now? (Preview) Hello. For over 1 year ago i took some blood tests that showed that I was positive for the antibodies for Hepatitis C but no virus. They then took 2 more blood tests (RIBA included) that showed that i didnt even have the antibodies and the later tests showed no infection (no test has showed any infection...	markymark	12	1112	Feb 1, 2014 by Cinnamon Girl
	Happy you people exist... (Preview) Hey all. It's been a long 11 months since I've posted here... (that doesn't mean I haven't been watching wink) My doctor called me at the end of November, over the moon about Sofosbuvir + Ribavirin and so I've got myself an appointment 1/30 to discuss. I have never treated before (+ since birth in 1...	Enavigo3891	1	1130	Jan 21, 2014 by Matt Chris
	Help with the following Questions and an endoscopy report (Preview) Hi, My mother has been diagnosed with HCV positive. She had some pain in her abdomen. We went to the doctor and then HCV was diagnosed. She also had black stools. The doctor told us that there is internal bleeding. This happened on 4th Jan, 2014. Now the doctor has done endoscopy but they are saying not s...	a2usmani	2	791	Jan 20, 2014 by Cinnamon Girl
	Olysio Financial Help (Preview) OLYSIO: THERE ARE AFFORDABLE OPTIONS AVAILABLE. There are several options for helping you reduce out-of-pocket costs of treatment, whether you have commercial insurance or government insurance, or you are uninsured. Find the option below that best applies to you.I Have Commercial Insurance...	suziq	0	1209	Jan 19, 2014 by suziq
	Achillion New Clinical Trials for 2014 (Preview) Another Drug Company has posted plans for their new clinical trials for 2014. Just more and more good news!!! SuziQ Achillion 2014 Milestones -- ACH-3422: HCV Nucleotide NS5B Polymerase Inhibitor - To date, all of the Company's preclinical studies support the advancement of ACH-3422 into cl...	suziq	4	817	Jan 17, 2014 by Cinnamon Girl
	Bristol Meyers is back in the race ALL genotypes (Preview) Found This article today. There will be more clinical trials in the coming year. SuziQ 2014-Daclatasvir Accelerated Review By European RegulatorsSubmission includes EUs first all-oral and ribavirin-free investigational regimen for use in treatment naïve genotype 1, 2, 3 patients and prote...	suziq	22	1814	Jan 16, 2014 by Zlikster
	Idenix Clinical Trial Info for 2014 (Preview) Another announcement about new clinical trials. SuziQ Simeprevir and Samatasvir (IDX719) for the treatment of hepatitis C STOCKHOLM, Sweden--(BUSINESS WIRE)--January 13, 2014-- Regulatory News: Sweden--Medivir AB (STO:MVIR-B), announces that Idenix Pharmaceuticals, Inc. today rele...	suziq	0	888	Jan 14, 2014 by suziq
	Caffeine and Liver Disease (Preview) While looking for information on fibrosis I came across this website/article. It mentions "an increasing number of studies suggesting that the consumption of caffeine may reduce liver inflammation in people with chronic liver disease." Makes me wonder if there was any chance of that...	Tig	9	1601	Jan 13, 2014 by Tig
	Side Effects vs SVR (Preview) Is there any correlation between side effects and treatment results? Does anybody know what the ratios are or if there is any difference between those that get the rash, butt burn, etc against those that don't? I am feeling pretty good today and am worried that means theI treatment isn't working (sho...	Gracie	5	955	Jan 12, 2014 by Matt Chris
	My 2nd Hepatitis C & Liver Transplant Video Diary (Preview) Hi Folks, Number 2 of my Hep C / Liver Traansplant Video Diary! Just thought I'd share my morning routine with you, including the medication I'm taking and my progress so far. Plus my plea to ask you to join the organ donation register, follo...	rio	10	2491	Jan 12, 2014 by Cinnamon Girl
	Video on the combo of FDA approved Solvadi and Olysio (Preview) Found this video about the COSMOS trial of the two newly FDA approved drugs now available in the US. Good information to share with your doctor and MAYBE you can get this. Of course, there is still insurance to worry about. Very short--just a little over 2 minutes. Eric J. Lawitz, MD: Digestive Dis...	suziq	0	749	Jan 10, 2014 by suziq
	HCV direct-acting antiviral agents: the best interferon-free combinations (Preview) Hey all Thought this was a easily understandable article from Liver International ISSN about the current DAA's that will be coming to market in the next year. Remembering all the DAA's and what part of the protein they inhibit (whether they are a NS5a or NS5b , NS3, etc) is always confusing. This art...	Matt Chris	4	786	Jan 9, 2014 by Zlikster
	Cancer treatment utilizing viral therapy (Preview) I was sent this link today from a newsfeed that I occasionally receive information from. I found it interesting and thought it might be informative for some interested in cancer research. As we all fight so hard to rid ourselves of a deadly virus, information like this can serve to both impress and con...	Tig	1	660	Jan 9, 2014 by lauralou57
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