Hep C Discussion Forum

ios9 · ios9

Hi all, I have been informed this morning that my vitamine D amount, already low before the treatment (21) has dramatically dropt down to 8 at end of treatment (12 week). Does any one had the same problem, and do you think it's the treatment or else ? Thanks a lot, Do

jerseygrl · jerseygrl

Well other than the first wk I've been moving right along with treatment... I've had almost every side affect that I've read about here:/ Today is wk 8 shot later today and this week I have been dizzy VERY weak and shaky:/ to the point i'm afraid to even stand up! Last visit my bloodwork revealed my thyroi...

jerseygrl · jerseygrl

So I see a lot of people posting there counts, Numbers etc. So I did ask my nurse for a copy of my recent blood work... Well she gave me 2 sets of paperwork i'm guess the first bloodwork and my 6wk bloodwork. The problem is its all Chinese to me:( its 6 pages long and a zillion numbers!!!! Could someone tell me...

Tig · Tig

https://en.wikipedia.org/wiki/Ribavirin I just saw this bit of information on the bioavailability of Ribavirin when taken without food and with a fatty meal. I haven't read this before and wondered if the Guru's might know if this information is valid? It certainly could be and as many of us on tri...

ucbgal · ucbgal

just happenned to notice that coconut oil has 12 grams of saturated fat/serving. tried to google info on it and found out fda recommends no saturated fats in diet. since my triglycerides went from 74 to 155 while on treatment, i'm a bit concerned. any thoughts or comments? sandy,ucbgal

PJ · PJ

I was just wondering if anyone else noticed a problem with their nails? For at least the last 10-15 years, the fingernails on my right hand have not grown correctly. They have dents in the middle, and just grow on the edges, etc. I just keep all of my nails trimmed short. The left hand was always fine...

supportive wife · supportive wife

My husband has hep c and has had it for some what years. We found out 06 he took the horrible meds and didn't finish or didn't respond however, he has not been to the doctor since then. I was just wondering what need meds are available to him today if I could get him to go to the doctor. He was gen 1a the harde...

Matt Chris · Matt Chris

Stress & Depression with HCV Whether you completed or are currently in HCV treatment or living with the disease awaiting treatment or relapsed after treatment, dealing with the Physical, Mental, Emotional and Social issues of HCV can bring stressful events to the fore which can be a catalyst...

Tig · Tig

http://hepc-cured.com/murphy-hepatitis-and-the-pharmacology-of-greed/

mallani · mallani

Hi all, I regularly palpate and percuss my liver, and after 20 years or more, I know my liver pretty well. I am very happy that since EOT, my liver has decreased in size, and is now just palpable. Before Rx, it extended 2 finger-breadths below my costal (rib) margin. I am taking this as a sign of cirrhosis...

Cinnamon Girl · Cinnamon Girl

[url]http://hepcfriends.activeboard.com/t50144056/world-hepatitis-day-july-28-2012-bringing-awareness-to-hep-c/[...

Tig · Tig

I was recently having some discomfort when biting down. I mentioned it here and got some interesting replies. Well, I decided to see my dentist to see what was going on and got some sad news. In just 10 weeks there is significant damage to the enamel on my teeth. XRays also show loss of the material under a...

ivan · ivan

Read from ION 3 forum "erythema nodosum is probably from ribavirin" and also that patients tx with INCIVEK 53% develop BAD rash 3% discontinue due to rash. I'm tx naïve but debilitating Erythromelalgia, most likely from HCV Cyoglobulinemia neuropathy complications. Unabl...

mallani · mallani

Hi all, I did a post on this a year ago, but with the Trials, it seems appropriate to mention it again. I realise that many patients don't have the luxury of being able to choose their Hepatologist, but it is possible to be satisfied that you're going to get the proper level of care. For non-Trialists, you...

symon01 · symon01

Has anyone on treatment had problems with their teeth since starting the program? had toothache when I first started and thought nothing more of it, purchased some clove oil and dabbed onto the sore area. it kind of went away, I have now noticed that the right side of of my lower teeth have lifted and pa...

tomyboy · tomyboy

Hi all, Just checking in to say hello and hope you are all doing staying hep c free or on treatment. Just wanted to let you know the day has arrived for Tom's liver surgery. We are going down to the city tonight and his surgery his scheduled for tomorrow morning. Happy to report at his pre surgical testi...

Iris Dragonfly · Iris Dragonfly

I was wondering if anyone here who has had their gallbladder removed, is experiencing any pain or other side effects form it??? Its been 10 years anyway, since mine is gone, and the pain that was always to the right side of my bellybutton is getting worse, ...almost to the point of when it was first remov...

Roadwarrior · Roadwarrior

I partipated in and put my body on the line in being involved with Interferon based triple therapy..(Alisporvir) Novartis. Is there any one else on the site who was involvef in this Kafkaesque study??

Huffy · Huffy

I got my results back today and no one can explain them to me. Today I got another antibody test done. But these numbers are the ones I got today from last week. Hep c rna realtime pcr <1.6 HCV rna qnt realtime pcr <43 hep c pcr quant interp not detected. I requested a hard copy because I didn't underst...

AngieV123 · AngieV123

As some of you know, I'll be doing the tx soon. I want to get prepared and see what supplements helped you manage the side effects. I hear that probiotics, b12 and vit D are good ones..maybe eye drops and special mouth wash. Any others? Thanks.

nurschic · nurschic

I have come to find out that if it wasnt for my knowledge of my treatment schedule and what labs are needed when and what scripts my Dr had sent to the lab I would have been getting the WRONG labs drawn at the WRONG times... here is what I mean: My two week labs and four week labs were sent to the lab office.... m...

Huffy · Huffy

Friday has come and gone and still no phone call. I was told I'd have the test results by Friday. Aaahh! I'm trying really hard to be patient! I'm waiting on the results from my VL test so that's why this is so important. They said 2-3 days. The lab is open 24/7 so I didn't know if I could just call them or does i...

tonib · tonib

Hello Folks, I am starting my tx therapy in 8 days and I am thinking seriously about starting an antidepressant prior to starting so I will know if I get any symptoms and I won't be confused about if the symptoms are from the HCV meds or the antidepressant. Anyone out there on an antidepressant? What ki...

tonib · tonib

Hello folks, Been doing some homework today, I start my meds in 8 days and I am very anxious and just want to stay busy and I discovered if you google the name of the med you are on with coupon savings after it example " Peginterferon coupon savings" in google you will find a link to sign up for th...

edmed · edmed

Hi all, This tx has been hard for me because i never stop working. Some times i think of taking a leave of absence but life is calling and responsibility are in front of my eyes. The first 12 wk were brutal and now I'm allway tired and aching all over my body. what do you guy deal with this part of this thing ca...

2willy · 2willy

Well getting ready for week 40 shots, blood work and results. the rib sharpness, and brain fog along with an a hole personality resulted in me going out to camp for a few days and coming home to nothing, my wife anita had enough I guess and left. Had to deal with OPP as she was in a shelter and they confisca...

Huffy · Huffy

Hello friends! Well I just got home from seeing a NP and getting blood drawn. The NP ordered a test for VL and also hep a and hep b. I should know the results by Friday! During my exam she said she didn't feel an enlargement of the liver. Yay! She did say the hep Dr wouldn't see me unless it's been at 6 months sin...

12Step Guy · 12Step Guy

Last fall at the height of my Incivek I had my boat out. Smacked a gravel bar and damaged the lower unit on my outboard and planned on having it fixed this Spring. Instead, this Spring I totally blanked out what had happened and took the un-repaired boat out a number of times. Of course it suffered catastr...

Zlikster · Zlikster

interesting! http://jcm.asm.org/content/43/9/4413.full

Grace · Grace

Hi to all I am looking for information. I have applied for disability due to many issues, depression, mood disorders and hep c. I applied in September 2008. It was denied once - then I got an attorney, who filed a "Dire Need" letter. Can some of you write your experiences, if you've appl...

Topic		Started By	Replies	Views	Last Post
	Treatment and lost of vitamine D (Preview) Hi all, I have been informed this morning that my vitamine D amount, already low before the treatment (21) has dramatically dropt down to 8 at end of treatment (12 week). Does any one had the same problem, and do you think it's the treatment or else ? Thanks a lot, Do	ios9	4	809	Aug 15, 2013 by ios9
	Smacked In The Face This Week:( (Preview) Well other than the first wk I've been moving right along with treatment... I've had almost every side affect that I've read about here:/ Today is wk 8 shot later today and this week I have been dizzy VERY weak and shaky:/ to the point i'm afraid to even stand up! Last visit my bloodwork revealed my thyroi...	jerseygrl	7	1157	Aug 15, 2013 by Butcheeyboy
	Ok another NEWBIE QUESTION:/ (Preview) So I see a lot of people posting there counts, Numbers etc. So I did ask my nurse for a copy of my recent blood work... Well she gave me 2 sets of paperwork i'm guess the first bloodwork and my 6wk bloodwork. The problem is its all Chinese to me:( its 6 pages long and a zillion numbers!!!! Could someone tell me...	jerseygrl	3	746	Aug 14, 2013 by mallani
	Ribavirin Bioavailability (Preview) https://en.wikipedia.org/wiki/Ribavirin I just saw this bit of information on the bioavailability of Ribavirin when taken without food and with a fatty meal. I haven't read this before and wondered if the Guru's might know if this information is valid? It certainly could be and as many of us on tri...	Tig	5	1131	Aug 10, 2013 by Tig
	coconut oil question (Preview) just happenned to notice that coconut oil has 12 grams of saturated fat/serving. tried to google info on it and found out fda recommends no saturated fats in diet. since my triglycerides went from 74 to 155 while on treatment, i'm a bit concerned. any thoughts or comments? sandy,ucbgal	ucbgal	13	1482	Aug 9, 2013 by Dillo
	Fingernails? (Preview) I was just wondering if anyone else noticed a problem with their nails? For at least the last 10-15 years, the fingernails on my right hand have not grown correctly. They have dents in the middle, and just grow on the edges, etc. I just keep all of my nails trimmed short. The left hand was always fine...	PJ	9	1309	Aug 8, 2013 by britlitkaren
	Treatment for 2013 (Preview) My husband has hep c and has had it for some what years. We found out 06 he took the horrible meds and didn't finish or didn't respond however, he has not been to the doctor since then. I was just wondering what need meds are available to him today if I could get him to go to the doctor. He was gen 1a the harde...	supportive wife	17	1646	Aug 7, 2013 by robdbird
	How we cope with Stress & Depression (Preview) Stress & Depression with HCV Whether you completed or are currently in HCV treatment or living with the disease awaiting treatment or relapsed after treatment, dealing with the Physical, Mental, Emotional and Social issues of HCV can bring stressful events to the fore which can be a catalyst...	Matt Chris	7	1116	Aug 5, 2013 by Karen
	Patently Offensive (Preview) http://hepc-cured.com/murphy-hepatitis-and-the-pharmacology-of-greed/	Tig	1	686	Aug 5, 2013 by nurschic
	Liver palpation (Preview) Hi all, I regularly palpate and percuss my liver, and after 20 years or more, I know my liver pretty well. I am very happy that since EOT, my liver has decreased in size, and is now just palpable. Before Rx, it extended 2 finger-breadths below my costal (rib) margin. I am taking this as a sign of cirrhosis...	mallani	4	1683	Aug 2, 2013 by Bloomster
	World Hepatitis Day, 28th July (Preview) [url]http://hepcfriends.activeboard.com/t50144056/world-hepatitis-day-july-28-2012-bringing-awareness-to-hep-c/[...	Cinnamon Girl	0	1307	Jul 28, 2013 by Cinnamon Girl
	Teeth are Crying... (Preview) I was recently having some discomfort when biting down. I mentioned it here and got some interesting replies. Well, I decided to see my dentist to see what was going on and got some sad news. In just 10 weeks there is significant damage to the enamel on my teeth. XRays also show loss of the material under a...	Tig	3	775	Jul 27, 2013 by nurschic
	does pre-tx skin rash dictate what tx to avoid (Preview) Read from ION 3 forum "erythema nodosum is probably from ribavirin" and also that patients tx with INCIVEK 53% develop BAD rash 3% discontinue due to rash. I'm tx naïve but debilitating Erythromelalgia, most likely from HCV Cyoglobulinemia neuropathy complications. Unabl...	ivan	6	1344	Jul 24, 2013 by ivan
	Questions to ask your Hepatologist. (Preview) Hi all, I did a post on this a year ago, but with the Trials, it seems appropriate to mention it again. I realise that many patients don't have the luxury of being able to choose their Hepatologist, but it is possible to be satisfied that you're going to get the proper level of care. For non-Trialists, you...	mallani	0	1392	Jul 18, 2013 by mallani
	Teeth Ouch!! (Preview) Has anyone on treatment had problems with their teeth since starting the program? had toothache when I first started and thought nothing more of it, purchased some clove oil and dabbed onto the sore area. it kind of went away, I have now noticed that the right side of of my lower teeth have lifted and pa...	symon01	15	2230	Jul 13, 2013 by ucbgal
	Mt Sinai Surgery Day (Preview) Hi all, Just checking in to say hello and hope you are all doing staying hep c free or on treatment. Just wanted to let you know the day has arrived for Tom's liver surgery. We are going down to the city tonight and his surgery his scheduled for tomorrow morning. Happy to report at his pre surgical testi...	tomyboy	18	1456	Jul 12, 2013 by mallani
	post cholecytectomy problems? (Preview) I was wondering if anyone here who has had their gallbladder removed, is experiencing any pain or other side effects form it??? Its been 10 years anyway, since mine is gone, and the pain that was always to the right side of my bellybutton is getting worse, ...almost to the point of when it was first remov...	Iris Dragonfly	10	1136	Jul 9, 2013 by Tig
	Kafkaesque Clinical Trial (closed) (Preview) I partipated in and put my body on the line in being involved with Interferon based triple therapy..(Alisporvir) Novartis. Is there any one else on the site who was involvef in this Kafkaesque study??	Roadwarrior	4	922	Jul 7, 2013 by Cinnamon Girl
	Please help with these numbers (Preview) I got my results back today and no one can explain them to me. Today I got another antibody test done. But these numbers are the ones I got today from last week. Hep c rna realtime pcr <1.6 HCV rna qnt realtime pcr <43 hep c pcr quant interp not detected. I requested a hard copy because I didn't underst...	Huffy	16	1139	Jul 4, 2013 by Tig
	supplements (Preview) As some of you know, I'll be doing the tx soon. I want to get prepared and see what supplements helped you manage the side effects. I hear that probiotics, b12 and vit D are good ones..maybe eye drops and special mouth wash. Any others? Thanks.	AngieV123	5	837	Jul 3, 2013 by AngieV123
	Knowledge is the KEY to SUCCESS!!! (Preview) I have come to find out that if it wasnt for my knowledge of my treatment schedule and what labs are needed when and what scripts my Dr had sent to the lab I would have been getting the WRONG labs drawn at the WRONG times... here is what I mean: My two week labs and four week labs were sent to the lab office.... m...	nurschic	1	734	Jul 2, 2013 by ivan
	There are ants in my pants (Preview) Friday has come and gone and still no phone call. I was told I'd have the test results by Friday. Aaahh! I'm trying really hard to be patient! I'm waiting on the results from my VL test so that's why this is so important. They said 2-3 days. The lab is open 24/7 so I didn't know if I could just call them or does i...	Huffy	13	1274	Jun 30, 2013 by Ckncali
	Antidepressants/I think I need this (Preview) Hello Folks, I am starting my tx therapy in 8 days and I am thinking seriously about starting an antidepressant prior to starting so I will know if I get any symptoms and I won't be confused about if the symptoms are from the HCV meds or the antidepressant. Anyone out there on an antidepressant? What ki...	tonib	12	1736	Jun 28, 2013 by Dillo
	drug companies offer free or no/lower copay coupons (Preview) Hello folks, Been doing some homework today, I start my meds in 8 days and I am very anxious and just want to stay busy and I discovered if you google the name of the med you are on with coupon savings after it example " Peginterferon coupon savings" in google you will find a link to sign up for th...	tonib	0	664	Jun 27, 2013 by tonib
	keeping a full time job (Preview) Hi all, This tx has been hard for me because i never stop working. Some times i think of taking a leave of absence but life is calling and responsibility are in front of my eyes. The first 12 wk were brutal and now I'm allway tired and aching all over my body. what do you guy deal with this part of this thing ca...	edmed	8	1011	Jun 28, 2013 by Biggyb
	Bad emotional shape (Preview) Well getting ready for week 40 shots, blood work and results. the rib sharpness, and brain fog along with an a hole personality resulted in me going out to camp for a few days and coming home to nothing, my wife anita had enough I guess and left. Had to deal with OPP as she was in a shelter and they confisca...	2willy	11	962	Jun 27, 2013 by 2willy
	My Dr appt today (Preview) Hello friends! Well I just got home from seeing a NP and getting blood drawn. The NP ordered a test for VL and also hep a and hep b. I should know the results by Friday! During my exam she said she didn't feel an enlargement of the liver. Yay! She did say the hep Dr wouldn't see me unless it's been at 6 months sin...	Huffy	5	820	Jun 26, 2013 by tonib
	Brain Fog? Can you top this? (Preview) Last fall at the height of my Incivek I had my boat out. Smacked a gravel bar and damaged the lower unit on my outboard and planned on having it fixed this Spring. Instead, this Spring I totally blanked out what had happened and took the un-repaired boat out a number of times. Of course it suffered catastr...	12Step Guy	3	949	Jun 25, 2013 by hrsetrdr
	HCV RNA in saliva (Preview) interesting! http://jcm.asm.org/content/43/9/4413.full	Zlikster	8	1019	Jun 25, 2013 by Tig
	Disability (Preview) Hi to all I am looking for information. I have applied for disability due to many issues, depression, mood disorders and hep c. I applied in September 2008. It was denied once - then I got an attorney, who filed a "Dire Need" letter. Can some of you write your experiences, if you've appl...	Grace	4	1195	Jun 24, 2013 by 64amazing
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