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Husband Starts Treatment Tomorrow!
(Preview)
Well, the day has finally come! My husband starts his Ribavirin treatment tomorrow and then the shot on Thursday. His treatment will last six months. Keep us in your prayers!
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Carolinca
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10
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1228
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Iron frying pans
(Preview)
I am reading that too much iron is not good for the C-monster. Can iron cookware leach in too much iron? Iron frying pans are like my very favorite cookware in the world!! Please tell me I don't have to ditch them. Thanks, Iris
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Iris Dragonfly
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2
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799
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Best Cereal?
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what would be a good ceral to take with hepatitis C, more than one brand if you know, thanks
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lobo11
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7
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1153
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Copay Assistance
(Preview)
My husband received a $7,000 grant from the PAN Foundation because of his low income, which will cover his Pegasys and Ribavirin for his 6 month treatment. The cost, after insurance, for both of these medications comes to $1500 each month, which will eventually total $9,000. Because he only recei...
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Carolinca
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2
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825
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Cirrhosis stage 4?
(Preview)
Hello evreryone, I was diagnosed with HCV in Sep.genotype 1 and cirrhosis stage 4. I never did have a biopsy, so I asked the doctor how he knew for sure,he said he could tell by my blood work. When I researched cirrhosis stage 4,it seems to be as bad as you can get. 85% of these people need liver transpla...
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turtles
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6
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1328
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What do you call it.
(Preview)
While it's all Hep C treatment. Whether it be Peg or Riba with or without a third drug or one of the trial drug combinations. Were not on Chemo Therapy and Drug Treatment sounds like something I should have found sooner LOL. How do you do you phrase it? Toxic Resurrection, Viral deconstruction therapy...
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12Step Guy
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1
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832
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Still UND
(Preview)
Great news, I am still UND at 40 weeks. So thankful And only 8 more weeks!
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JoAnneh
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14
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1295
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advice needed after tested positive for hep c antibodies
(Preview)
Hi, I am new on this forum and would appreciate guidance. I just had a blood test where I "tested positive for Hep C antibodies." I have looked online but am confused as to which test I need to have next... presumably to diagnose whether or not I actually have Hep C. I'm concerned about the cost...
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Richard92024
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5
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1168
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Purposely in denial? Ignoring? Pretending?
(Preview)
Has anyone here finally reached Hep C overload after several years of non-stop reading, messaging, etc. and then went into a funk and just sort of slipped away into the dark hole of denial? Well, that's where I have been. Maybe because I have been dealing with so many other major issues in my life than we...
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DD
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4
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1008
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New Avatar
(Preview)
Time for a new Avatar. With 12 more weeks left the days are getting longer.
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12Step Guy
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2
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761
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RIBA Rash painful and spreading
(Preview)
Has anyone experienced RIBA rash spread?? I am on week 38! Rash all over back, lower stomach and hip area. The last two shots have taken a toll on my skin. I have my monthly check up tomorrow. It's very important to Make 48 weeks. 10 more to go!!! I am all in!!
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JoAnneh
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10
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1879
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Incivek v Victrelis- final thoughts
(Preview)
Hi all, The old antiproteases will disappear from the US Pharmacies in a few years. However many countries still do not have access to Inciv and Vict. as yet ( except for the rich). For Canada, Europe and UK and Australasia, these drugs will be be the frontline drugs for HCV for another 6-8 years. The ess...
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mallani
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5
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1069
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Happy Valentines Day to All
(Preview)
For those that do not and those who do, lets take some time and be grateful for those around us who put up with us and live with us and espacially since I have hidden the Tide to my Wife and girls Bill and Family
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2willy
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2
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759
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Doctor stopped my treatment
(Preview)
This was round 2 for therapy this time with the Incievk in the mix. I went to the doc yesterday, and she stopped my treatment. She said that the idea is to kill the virus, but not the patient. My ammonia level is at an intolerable level. My skin and eyes are yellow, the brain fog is incredible. I can't remem...
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Slick Rock Red
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15
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1899
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canada- help
(Preview)
So... My partner might have the opportunity to go work in canada. He does not have hep c, nor do our 2 children but i do. I have had it for around 18 years but do not require treatment now as all my results are good. Would i have problems with going , would i have health care there and what are the costs of treatm...
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lola
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2
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708
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Employment Issues due to illness...recourse?
(Preview)
I was diagnosed with hepatitis c in November 2011 after having been hospitalized for a second collapsed lung. The first time resulted in blood transfusions. Sometime after my diagnosis I opened up to my immediate supervisor and told him of my condition. He was very supportive, which is not what I exp...
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FedUp
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2
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960
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Biopsie pain ?
(Preview)
I had a liver biopsie done last sept. and I have had a dull pain there ever since. I went to my MD anEd told him I still felt a dull pain there. I'm going for another ultrasound the 13 th.
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gatekeep
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3
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1048
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Words of Wisdom from my Doctor
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So I had a week check up yesterday at my Doctor, before we even got into the room the MA asks my husband "How is she?" He answered "A bit irritable". She asks "Are you scared to be in the house with her?" Ok you have to know my husband, Hispanic 5'9" 200lbs. stocky and...
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GodsGrl
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0
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802
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May be going to Vanderbilt
(Preview)
Doctor called and is now trying to get me into Vanderbilt in Nashville. That's great since I've been a patient there before when we lived in Nashville and I have a lot of friends there. My spirits are up now. Will continue with updates.
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ArtiesGarden
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3
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835
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Hanging on!
(Preview)
I started triple tx May 2012. I am in week 38 of 48! I am miserable, no tolerance for anything! I actes like a crazy person last night w a temper tantrum. I want to cry often, I itch. I am a Zombie. BUT I WON'T QUIT, I WILL SEE THE FINISH LINE AND I AM VERY GRATEFUL FOR OPPORTUNITY TO SAVE MY LIVER. I just need few d...
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JoAnneh
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14
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1417
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Splitting fingertips?
(Preview)
Has anyone else on treatment had problems with their fingertips splitting open? I drink plenty of water and use moisturizer several times a day, but my fingers keep splitting open. At least 1 new split shows up every day. It looks and feels like a paper cut but its not. i carry a tube of superglue with me...
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marktrux
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3
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844
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Appt at Hep Clinic may be postponed again
(Preview)
Last week a nurse at the Hep Clinic at The University of Alabama called to tell me my appointment may be delayed again. I am so sad, angry, discouraged, angry, just a myriad of negative emotions. I want to know if i have damaged my liver, and I want a liver biopsy. When I told her my VL was 13 million, and my LF...
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ArtiesGarden
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9
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1067
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Decision
(Preview)
Well hello everyone I'm back again!! Ok I went for my appointment with the nurse yesterday and I have been given start dates. Now the problem is when I went in I thought I would be going for triple therapy with boceprivir and not be given a choice, as this is what my consultant had said to me back in July. Bu...
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Dopey
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3
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784
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Incivek in hot climates
(Preview)
Vertex reluctantly made Incivek available to selected Hepatology Practices in Australia last October. My doc is one of 5 Hepatologists in the largest group in Queensland. He has now prescribed Incivek for 22 patients- none are cirrhotic, and all are in the 45- 60 age group. To his surprise, only 3 pa...
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mallani
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6
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1148
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What is considered a high AFP?
(Preview)
Ok,.. so my AFP has been elevated, just slightly... but for a year or so and going up slowly, when do the numbers mean trouble???? Why do they check this?... and then when it is elevated they kinda just say, oh...that's not too bad. I.D.
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Iris Dragonfly
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3
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1072
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Update of Mt Sinai Appt
(Preview)
Hi all, Tom had his appt last Tuesday at Mt Sinai and liver specialist reported local dr here did the right thing by taking him off triple therapy. He recommended that Tom wait for new treatment in the works which has less side effects. He was eligible to possibly be in clinical study trial but Tom didn'...
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tomyboy
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4
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1157
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Please Give Feedback on Bad Doctor Experience
(Preview)
Oh my gosh. So my husband and I are really upset right now. We received a very large bill from his doctor for the initial consultation. At this consultation, the doctor reviewed the blood work we faxed to him in order to tell us what treatment he needed to go on. The doctor may now not treat my husband,...
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Carolinca
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6
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1337
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Mt Sinai
(Preview)
Well this is laura back with my husband Tom. Haven't been lurking on the site lately as I didn't want to add any more stress onto my husband. He was on the triple therapy incivek and couldn't complete the treatment after 8 weeks. His level crashed and his doctor here made an appt at Mt Sinai in the city...
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tomyboy
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6
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1106
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Does blood test show cirrosis? or do you have to do a biopsy???
(Preview)
I need to know if there is a blood test that shows cirrosis, or biopsy is the only way to find out?
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52baddog
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11
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2034
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Do People Miss Work as a Result of Treatment?
(Preview)
One of my biggest fears about my husband's upcoming 6 month treatment of Ribavirin and Interferon is that he will become too sick at times to work his job. Without going into too much detail about his work, it is important that he not miss any days. He works Sunday through Thursday, and has Fridays and...
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Carolinca
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14
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1280
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