Hep C Discussion Forum

ss · ss

HAS ANYBODY EXPERIENCED ANY SIDE EFFECTS ONCE THEY FINISHED HARVONI - I JUST FINISHED 2 WEEKS AGO A 24 WEEK TREATMENT. FEELING SOME TIREDNESS AND JOINT PAIN

Lowrider · Lowrider

I will be finished with 24 weeks of Harvoni in 20 days. Taking Harvoni only, no other drugs. Obviously concerned about the length of time needed to clear the effects of the drug and recover from any discontinuance issues. I have been working out regularly, averaged 4.5 days a week, during treatment in...

Brian1412 · Brian1412

We were doing a run thru all day when at exactly. At 4,00 pm .the lights went out and the begining of space. Oddesy started at full volume. I am like wtf is going on? Not on the sheet! . Then the video screens came on to me with my tupperwear cone counting my pills which became an obsession for me.i always carr...

Ro · Ro

Finally received my 4 week EOT lab results from May 26! Happy to report I remain undetected, but am concerned as I remain with: elevated AFP 18.0 (norm 0.0-8.3), Other labs are only marginally off: slightly low Albimin 3.3 (norm 3.5-5.0) platelets 102 (norm 149/390) Endoscopy showed improvement...

Cinnamon Girl · Cinnamon Girl

Hi everyone, Just to say that as part of our ongoing maintenance of the forum we have decided to integrate all posts from the previous `Non Responders` and `Treatment Intolerant` areas into this one section, which I have now done. No-one`s posts have been lost or deleted, they are just all under this...

Lowrider · Lowrider

I finished 24 weeks of Harvoni about 3 weeks ago. Muscle and joint pain is much improved and the fatigue is beginning to lift. About a week ago I noticed some dizzyness after working out and also at other times during the day. Haven't had this symptom prior to or during treatment. Has anyone experienced...

Dzdayscomin · Dzdayscomin

I was just invited to join a research study thru the Mayo clinic on the study of how our genes determine the susceptibility of getting billary, primary and portal duct liver cancer. At this point I know very little about it but should have more info after next Fridays blood draw which is all it requires,...

pauliep · pauliep

My 26 year nightmare is finally over. I hope others are getting equally good results.

Heidilynn · Heidilynn

feeling nervous. During my 12 week harvoni I was undetected but last day my lab came back as u quantifiable (<20) but not undetected. Doc said that happens sometimes and that many studies count unquantifiable as undetectable. Just freaking out because it sounds like numbers are increasing. Any...

Stormy · Stormy

just finished my 8 weeks of harvoni and had a blood test yesterday. Some results are in, viral load isn't. Some of my numbers are off and wanted some feedback PLT. 135. Low HGB. 14.1. High Auto lymphocyte absolute. .9 low BUN/ creating ratio. 27.4. High of course the doc won't be back till next week an...

Liamc · Liamc

i am having a holiday in Thailand after 6 months of riba/solvaldi, as I was on a trial they will not release my results until after my 12 week EOT bloods (6 more weeks to go). I decided to get some blood work done here and it came back with normal ALT/ASt They seem to use a different range here my ALT was 41 th...

Tess · Tess

Is anyone else waiting for 16 weeks after EOT instead of 12 to test for SVR after treating with Harvoni? My doctor is waiting until 16 weeks for a viral load after I treated for 12 weeks on Harvoni with an UND VL at 4 weeks post-tx. Another forum member has been told to wait 16 weeks also, after they f...

PL · PL

I am wondering if anyone has any info on depression after treatment? I completed my treatment just over a year ago and I'm happy to report that I'm still non detectable and my liver scan earlier this month showed that my liver is the same as that of a person who never had HepC. That was very exciting news...

RudiRoo · RudiRoo

Here was my today - 1. Today was my one month weigh in after completing my Whole30 challenge. I lost 9 lbs and fit back in my favorite jeans. 2. I was offered a job I really wanted. 3. I opened my email and there was one from my friend at the lab ( an unheard of week and a half early) and it said, UNDETECTED!! Thi...

Liamc · Liamc

Just had to post this.So relieved,only 8 more weeks to go.

robert d · robert d

With cirrhosis how does this affect the way medicines work compared to a healthy liver. Lets say when the doctor prescribes pain meds for surgery on my hand how come the meds: didn't seem to work at the dose prescribe.

wmlj1960 · wmlj1960

My Hep C is back. I took my Sovaldi / Ribavirin like clock work for the first 15 weeks then I was hospitalized 11-3-14 due to an accident and went through 5 major surgerys in which time I missed several doses. Also, during this time my already compromised immune system due to HIV was weakened to a CD4 coun...

Lon · Lon

Hello, I finished Harvoni about 3 weeks ago. I wanted to comment on how much energy I have now. I used to take multiple naps everyday, now I go straight through a 16 hour day without needing to stop. Before there was a treatment, doctors used to tell me that Hep C was silent and didn't have an immediate i...

Milliganus · Milliganus

Hi all, I was wondering if anyone has heard of the virus returning post SVR 24+. I have been super tired lately and I guess I'm a bit paranoid. Thanks.

ss · ss

Anybody not feeling well when they got off harvoni

basser · basser

for last 18 months have had very little red meat.during tx and post tx have been on a fish and fruit diet with plenty of high fibre.when i started looking at diets i got a bit down.i loved roast lamb steak etc. strange as it seems after going without red meats when i did try some it didnt do it for me.so am qui...

justme50 · justme50

I am still und after 1 week EOT. I will go this Wed. for my 4 week EOT labs and will get the results May 28. All other blood work is normal.

Enavigo3891 · Enavigo3891

Well halle-frickin-lujah! I just got back from the doctor for my 1 year check up and to get the results of my EOT+1 year labs that I had drawn last Tuesday on the 1 year anniversary of my first post treatment "pill-free" day. IT'S OFFICIAL KIDS - Another success story! "SVR52" ...

libgirl07 · libgirl07

Why am I still having weird pains and aches off and on after svr? I had zero damage 7 years ago when I had a biopsy. Should I call my doctor?

suziq · suziq

Hi All, Kind of scared after my second scan for HCC a couple of weeks ago. There is a lesion on the head of my pancreas that has "minimally enlarged" since my last scan. I also have some gall stones. . I've been having pain on my right side for a while. My clinical trial director called...

Mugsy · Mugsy

Hiccups...hiccoughs However you spell them. Anyone else have them after treatment? I've heard that an enlarged liver can cause the diaphragm to spasm into hiccoughs and I realize just because I may be virusless, I do still have cirrhosis. They aren't too frequent maybe 4 times a week but I didn't g...

Lon · Lon

Hello, I wanted to take a moment and leave a final post on my treatment for anyone just starting Harvoni. My viral load was about 6 million and my length of treatment was 8 weeks. Below is a brief summary of my personal experience with the drug. In January 2015 I applied for the medicine. Between my ins...

steelfire453 · steelfire453

Just got the call from my Doc SVR12. 35 years ,and quite a few tough ones along the way, with various nasty treatments it's finally over . I wish everyone on here that has had to deal with Hep C the same results. GOOD LUCK TO ALL HARVONI is the real deal Sal

JLynch30 · JLynch30

Finishing up 24 weeks Harvoni and Ribravirin Now i am hearing cirrhotics who failed solvaldi are only 70 % cure rates? Did anyone else hear hear this?

fourlocos · fourlocos

I am grateful it worked! Hopefully others on the 8 week plan will see it does work! Checking again in November. Now hoping I will feel better by then. Thanks to everyone who helped me get to this point. -- Edited by fourlocos on Friday 1st of May 2015 06:12:33 PM

Topic		Started By	Replies	Views	Last Post
	HORVANI POST TREATMENT SIDE EFFECTS (Preview) HAS ANYBODY EXPERIENCED ANY SIDE EFFECTS ONCE THEY FINISHED HARVONI - I JUST FINISHED 2 WEEKS AGO A 24 WEEK TREATMENT. FEELING SOME TIREDNESS AND JOINT PAIN	ss	18	4444	Jun 14, 2015 by shadow10cats
	Exercise, metabolism after 24 weeks of Harvoni (Preview) I will be finished with 24 weeks of Harvoni in 20 days. Taking Harvoni only, no other drugs. Obviously concerned about the length of time needed to clear the effects of the drug and recover from any discontinuance issues. I have been working out regularly, averaged 4.5 days a week, during treatment in...	Lowrider	7	2176	Jun 14, 2015 by Brian1412
	6-5-4-3-2-1. Liftoff. Eot Undetected (Preview) We were doing a run thru all day when at exactly. At 4,00 pm .the lights went out and the begining of space. Oddesy started at full volume. I am like wtf is going on? Not on the sheet! . Then the video screens came on to me with my tupperwear cone counting my pills which became an obsession for me.i always carr...	Brian1412	5	1095	Jun 10, 2015 by Brian1412
	Lab results (Preview) Finally received my 4 week EOT lab results from May 26! Happy to report I remain undetected, but am concerned as I remain with: elevated AFP 18.0 (norm 0.0-8.3), Other labs are only marginally off: slightly low Albimin 3.3 (norm 3.5-5.0) platelets 102 (norm 149/390) Endoscopy showed improvement...	Ro	7	1219	Jun 9, 2015 by Ro
	Forum areas merged into `Post Treament` (Preview) Hi everyone, Just to say that as part of our ongoing maintenance of the forum we have decided to integrate all posts from the previous `Non Responders` and `Treatment Intolerant` areas into this one section, which I have now done. No-one`s posts have been lost or deleted, they are just all under this...	Cinnamon Girl	0	4109	Jun 7, 2015 by Cinnamon Girl
	Post Harvoni treatment 3 weeks dizzyness (Preview) I finished 24 weeks of Harvoni about 3 weeks ago. Muscle and joint pain is much improved and the fatigue is beginning to lift. About a week ago I noticed some dizzyness after working out and also at other times during the day. Haven't had this symptom prior to or during treatment. Has anyone experienced...	Lowrider	3	1670	Jun 5, 2015 by Lowrider
	Study on genes that cause liver cancer (Preview) I was just invited to join a research study thru the Mayo clinic on the study of how our genes determine the susceptibility of getting billary, primary and portal duct liver cancer. At this point I know very little about it but should have more info after next Fridays blood draw which is all it requires,...	Dzdayscomin	1	912	May 30, 2015 by mallani
	12 WEEK SVR - SLAYED THAT DRAGON!!!! (Preview) My 26 year nightmare is finally over. I hope others are getting equally good results.	pauliep	15	1862	May 29, 2015 by Greg D
	Und during Harvoni but unquant ( (Preview) feeling nervous. During my 12 week harvoni I was undetected but last day my lab came back as u quantifiable (<20) but not undetected. Doc said that happens sometimes and that many studies count unquantifiable as undetectable. Just freaking out because it sounds like numbers are increasing. Any...	Heidilynn	14	1846	May 28, 2015 by Heidilynn
	Lab test (Preview) just finished my 8 weeks of harvoni and had a blood test yesterday. Some results are in, viral load isn't. Some of my numbers are off and wanted some feedback PLT. 135. Low HGB. 14.1. High Auto lymphocyte absolute. .9 low BUN/ creating ratio. 27.4. High of course the doc won't be back till next week an...	Stormy	14	1663	May 27, 2015 by Matt Chris
	Why different reference ranges? (Preview) i am having a holiday in Thailand after 6 months of riba/solvaldi, as I was on a trial they will not release my results until after my 12 week EOT bloods (6 more weeks to go). I decided to get some blood work done here and it came back with normal ALT/ASt They seem to use a different range here my ALT was 41 th...	Liamc	2	952	May 25, 2015 by Liamc
	SVR16 instead of SVR12? Anyone waiting for 16 Weeks EOT with Harvoni? (Preview) Is anyone else waiting for 16 weeks after EOT instead of 12 to test for SVR after treating with Harvoni? My doctor is waiting until 16 weeks for a viral load after I treated for 12 weeks on Harvoni with an UND VL at 4 weeks post-tx. Another forum member has been told to wait 16 weeks also, after they f...	Tess	8	1332	May 23, 2015 by Cinnamon Girl
	Depression after treatment (Preview) I am wondering if anyone has any info on depression after treatment? I completed my treatment just over a year ago and I'm happy to report that I'm still non detectable and my liver scan earlier this month showed that my liver is the same as that of a person who never had HepC. That was very exciting news...	PL	4	1602	May 22, 2015 by Tig
	Walking on sunshine (Preview) Here was my today - 1. Today was my one month weigh in after completing my Whole30 challenge. I lost 9 lbs and fit back in my favorite jeans. 2. I was offered a job I really wanted. 3. I opened my email and there was one from my friend at the lab ( an unheard of week and a half early) and it said, UNDETECTED!! Thi...	RudiRoo	17	1585	May 21, 2015 by RudiRoo
	EOT+4 undetected! (Preview) Just had to post this.So relieved,only 8 more weeks to go.	Liamc	1	907	May 20, 2015 by Tig
	liver function (Preview) With cirrhosis how does this affect the way medicines work compared to a healthy liver. Lets say when the doctor prescribes pain meds for surgery on my hand how come the meds: didn't seem to work at the dose prescribe.	robert d	1	1021	May 16, 2015 by mallani
	Did 24 wks Sov/Riba. EOT + 16 wks = RELAPSE (Preview) My Hep C is back. I took my Sovaldi / Ribavirin like clock work for the first 15 weeks then I was hospitalized 11-3-14 due to an accident and went through 5 major surgerys in which time I missed several doses. Also, during this time my already compromised immune system due to HIV was weakened to a CD4 coun...	wmlj1960	10	1675	May 15, 2015 by wmlj1960
	Amazing Energy (Preview) Hello, I finished Harvoni about 3 weeks ago. I wanted to comment on how much energy I have now. I used to take multiple naps everyday, now I go straight through a 16 hour day without needing to stop. Before there was a treatment, doctors used to tell me that Hep C was silent and didn't have an immediate i...	Lon	2	1043	May 15, 2015 by Cinnamon Girl
	Odds of relapse after SVR 24 (Preview) Hi all, I was wondering if anyone has heard of the virus returning post SVR 24+. I have been super tired lately and I guess I'm a bit paranoid. Thanks.	Milliganus	2	1157	May 15, 2015 by suziq
	Any side effects when you were done w harvoni (Preview) Anybody not feeling well when they got off harvoni	ss	1	981	May 14, 2015 by Groupergetter
	diet (Preview) for last 18 months have had very little red meat.during tx and post tx have been on a fish and fruit diet with plenty of high fibre.when i started looking at diets i got a bit down.i loved roast lamb steak etc. strange as it seems after going without red meats when i did try some it didnt do it for me.so am qui...	basser	1	1064	May 13, 2015 by Tig
	1 Wk EOT Labs (Preview) I am still und after 1 week EOT. I will go this Wed. for my 4 week EOT labs and will get the results May 28. All other blood work is normal.	justme50	5	1101	May 13, 2015 by justme50
	EOT + 1 year ... dun dun dunnnnnn.... (Preview) Well halle-frickin-lujah! I just got back from the doctor for my 1 year check up and to get the results of my EOT+1 year labs that I had drawn last Tuesday on the 1 year anniversary of my first post treatment "pill-free" day. IT'S OFFICIAL KIDS - Another success story! "SVR52" ...	Enavigo3891	6	1129	May 12, 2015 by Tig
	svr and liver pain (Preview) Why am I still having weird pains and aches off and on after svr? I had zero damage 7 years ago when I had a biopsy. Should I call my doctor?	libgirl07	5	1309	May 11, 2015 by JoAnneh
	Liver pain after SVR Lesion on pancreas (Preview) Hi All, Kind of scared after my second scan for HCC a couple of weeks ago. There is a lesion on the head of my pancreas that has "minimally enlarged" since my last scan. I also have some gall stones. . I've been having pain on my right side for a while. My clinical trial director called...	suziq	3	1226	May 11, 2015 by libgirl07
	Hiccoughs (Preview) Hiccups...hiccoughs However you spell them. Anyone else have them after treatment? I've heard that an enlarged liver can cause the diaphragm to spasm into hiccoughs and I realize just because I may be virusless, I do still have cirrhosis. They aren't too frequent maybe 4 times a week but I didn't g...	Mugsy	0	869	May 10, 2015 by Mugsy
	8 Week's of Harvoni Completed (Preview) Hello, I wanted to take a moment and leave a final post on my treatment for anyone just starting Harvoni. My viral load was about 6 million and my length of treatment was 8 weeks. Below is a brief summary of my personal experience with the drug. In January 2015 I applied for the medicine. Between my ins...	Lon	9	1880	May 10, 2015 by Cinnamon Girl
	Finally over (Preview) Just got the call from my Doc SVR12. 35 years ,and quite a few tough ones along the way, with various nasty treatments it's finally over . I wish everyone on here that has had to deal with Hep C the same results. GOOD LUCK TO ALL HARVONI is the real deal Sal	steelfire453	18	1437	May 9, 2015 by Cinnamon Girl
	Finished on saturday (Preview) Finishing up 24 weeks Harvoni and Ribravirin Now i am hearing cirrhotics who failed solvaldi are only 70 % cure rates? Did anyone else hear hear this?	JLynch30	9	1279	May 8, 2015 by JLynch30
	SVR 12 Reached (Preview) I am grateful it worked! Hopefully others on the 8 week plan will see it does work! Checking again in November. Now hoping I will feel better by then. Thanks to everyone who helped me get to this point. -- Edited by fourlocos on Friday 1st of May 2015 06:12:33 PM	fourlocos	23	1712	May 6, 2015 by RudiRoo
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