Hep C Discussion Forum

dragonfly · dragonfly

I was called in to see my consultant today after the bloods I had last week showed an iron deficiency. STILL UND! He said that this meant a cure! After carrying this vile disease around for 38 or so years and 2 lots of Interferon these new drugs have saved my life even after the first 2 weeks in. I hope e...

bassetgirl · bassetgirl

My hospital doesn't declare HepC cure until EOT + 24: just got the results back, according to them I'm now officially cured! My platelets are slightly down from October EOT + 12 (71 down to 68) and my AST is slightly elevated (49) but I'm not complaining and will just keep eating healthy and try to reve...

wmlj1960 · wmlj1960

Hi everybody. My first 15 wks of Tx were managed like clockwork with little sx's, then an accident put me in the trauma unit for 1 1/2 months where attention to Hep C took a back seat to other more serious issues. But my Sov/Riba regimen was still followed with only a couple of days missed due to surgery'...

pl1952 · pl1952

Hey guys, wanted to ask you all this question...Both my husband and I are experiencing this. For the last 2 years he's been having constant nonstop tingling in several fingers of each hand. I'm coming up on a year of the same thing, but my tingling in concentrated in both feet (I don't have diabetes -...

2willy · 2willy

Been awhile since posted, cleaning up around here and found and disposed my last two empty syringes of Eprex and the Interferon, past is the past, health wise noting to complain about feelin the best I have in 10 years, side effects of treatment over, liver and blood back to where it should be, took a lon...

TazKat · TazKat

so it has been 6 months since treatment. had labs yesterday & everything is normal range.. praise God!!

bassetgirl · bassetgirl

I'm 21 weeks post treatment with Sovaldi/Olysio, reached SVR Oct. 23. My memory, both long and short term, is much worse since I finished treatment. I'm 63 years old and maybe this is age related rather than treatment related, but I wanted to ask if anyone else has experienced memory problems after S...

hippiechick · hippiechick

Just got my results back and I am clear of the Hep C virus 14 weeks after EOT. Happy dance! This was the Abbvie Topaz trial. 9 pills a day, including ribaviran, for 12 weeks. I feel so lucky to have been given this opportunity to be treated and cured. My very best wishes to all who are still fighting. The medi...

mindovermatter · mindovermatter

Dear All, I tested 51 weeks after EOT and HCV is undetectable. Thank you all for your winderful sipport. Would not have been able to complete this journey without your support.

Scruffy · Scruffy

I scrolled and held my breath ast 15 alt 13. HVC <15 not detected. Its been a long wait for this seeing I started treatment back in July of 2013. I'll be going back to look at my labs all day.

hepcinbama · hepcinbama

please be encouraged! I received my blood test results back today after 4 months after treatment with solvaldi ribivirn an peg pen of interferon an im hep c free!all praise to my Heavenly Father! He got me thru it ! to all my friends here when I was new here an scared you were all here for me an I thank you!f...

skewedButNotBroken · skewedButNotBroken

Just got the good news. I feel very, very blessed! Now, I have to change my signature :) -- Edited by skewedButNotBroken on Friday 9th of January 2015 09:50:47 PM

Gator Man · Gator Man

I am new to the forum so I will introduce myself. I am a 53 year old male diagnosed with Hepatitis C (1b) in 2001, almost certainly the result of numerous blood transfusions in 1982. I was a null responder to Interferon/Ribavirin in 2001 and have been waiting for better treatment options.I have compen...

TomF · TomF

UND at EOT + 12 weeks. The doc wants me to retest at EOT + 1 year, but I am counting this as SVR.

beingsassy · beingsassy

just got back from my doctor's and it's official. SVR now just labs and ultrasound every August. Best holiday gift ever. Thank you so much for keeping me sane and on my meds. Feel so awesome and grateful. gigi

Sara · Sara

Had my EGD done this week - esophagus normal - mild portal hypertensive gastropathy in the gastric body - stomach was biopsied - duodenum normal - no visualized esophageal or gastric varices. Considering my F4 cirrhosis dx, I'm very relieved as this is the first EGD I've had in years. A friendly remin...

Barnacle · Barnacle

My clinic nurse just called me. UND 24 weeks post TX! I found this forum because my Dr had suggest it was time for treatment. Things were getting grim and postponing was a bad idea. I started all the testing poking prodding and bloodletting as well as MRIs ultrasounds fibroscans and then somewhere in t...

skewedButNotBroken · skewedButNotBroken

ALT: 19 AST: 23 PLTs: 115 I felt really rotten last week, so I decided to have some labs done and I just talked to the nurse and got the above results. It's not very likely that I have relapsed with an ALT of 19 and AST of 23, but my platelets have dropped from 143 to 115. This concerns me a little, however, this...

RonH · RonH

I am wishing each and every one here a very Merry Christmas and a happy Hep C free New Year!

pl1952 · pl1952

Amazingly good news for my husband and all cirrhotics! My husband's fibroscan scan before treatment was 25. Today, he went for another fibroscan and it was 11.2!! I've read good news before about the reduction when you reach SVR, but I've not seen this much of a reduction in a short period of time. ...

suziq · suziq

Cured Hepatitis C Patients May Have Same Life Expectancy as General PopulationDetailsCategory: HCV Disease ProgressionPublished on Friday, 19 December 2014 00:00Written by Liz HighleymanImage © Russell Kightley Chronic hepatitis C patients with advanced liver fibrosis or cirrhosis who ac...

Northern · Northern

Hi Guys! I have been having a lot of right side upper quad pain. Labs are wnl and CT scan was negative. Been using pain meds to control the pain. Any thoughts as to what could be causing it. I'm at work right now and will give more details later but the pain is not getting any better. Thanks!

Doni · Doni

I started waking up at 3-4 am after I finished my treatment. Interestingly I was very sleepy during treatment snd slept even after lunch. Now the opposite is happening? Is this one of post treatment side effects or should I relate this to something else?

skewedButNotBroken · skewedButNotBroken

As some of you know, I had to stop my Sovaldi/Olysio treatment at 6 weeks due to numerous heart flutters. Now I have been off of treatment for 8 weeks and I'm still UND. I have to believe that this is great news. By the way, the heart flutters and chest pain are slowly going away.

hepcat60 · hepcat60

I had a follow-up appt. with my doc this morning. Due to changing doctors at the end of my treatment I haven't had blood work since just after completion the 48 week triple therapy. Completed therapy 11 months ago. UND! Cured! All liver functions normal and no advancing of the Cirrhosis. He congra...

Tig · Tig

Hi All, Even us old timers have moments of anxiety, and that has been the case with me. I went in last week for my EOT +1 year viral load and chem profile. The odds are well in our favor that once we achieve SVR at EOT +12 weeks, it will stay that way. But, we're human and the anxiety builds while waiting for th...

Fireman Rob · Fireman Rob

Hi All, I just checked to see if my HCV RNA Results from Friday were in and guess what..? The results are in and I'm on Cloud 9 as I'm now SVR 12! I had to look multiple times to make sure the (HCV RNA Not Detected, <15) was really there on MY medical records. This is the best day I've had in many months....

libgirl07 · libgirl07

I can't explain it really. I just feel different. Like clear. Not tired or foggy all the time. I felt confident at the 4 week mark I was und and at the 8 week mark. I hope it stays und. When I relapse w victrelis. I felt like I wasn't surprised. Like I could tell I still didn't feel good.

Gator Man · Gator Man

A recent article in JAMA concludes that life expectancy for patients with cirrhosis from HCV who attained SVR is comparable to the general population. I don't have the article, but I have attached a link to a press release about the November 12th publication. http://www.eurekalert.org/pub_rel...

Barnacle · Barnacle

It's been 5 months since completing S/O/Rib Tx and for the most part I feel great. At least most of the Hep C symptoms have gone away. I started getting joint and muscle stiffness about 1 month after Tx and it hasn't gone away. I mentioned it to hep c clinic nurse and she said it is common with interferon tre...

Topic		Started By	Replies	Views	Last Post
	3 months EOT (Preview) I was called in to see my consultant today after the bloods I had last week showed an iron deficiency. STILL UND! He said that this meant a cure! After carrying this vile disease around for 38 or so years and 2 lots of Interferon these new drugs have saved my life even after the first 2 weeks in. I hope e...	dragonfly	9	1424	Jan 31, 2015 by bassetgirl
	EOT + 24 Results (Preview) My hospital doesn't declare HepC cure until EOT + 24: just got the results back, according to them I'm now officially cured! My platelets are slightly down from October EOT + 12 (71 down to 68) and my AST is slightly elevated (49) but I'm not complaining and will just keep eating healthy and try to reve...	bassetgirl	5	1205	Jan 31, 2015 by Tig
	EOT 1-3-15 = UND after 24 wks Sovaldi/Ribavirin. (Preview) Hi everybody. My first 15 wks of Tx were managed like clockwork with little sx's, then an accident put me in the trauma unit for 1 1/2 months where attention to Hep C took a back seat to other more serious issues. But my Sov/Riba regimen was still followed with only a couple of days missed due to surgery'...	wmlj1960	2	883	Jan 31, 2015 by bassetgirl
	Tingling in feet/fingers of hands (Preview) Hey guys, wanted to ask you all this question...Both my husband and I are experiencing this. For the last 2 years he's been having constant nonstop tingling in several fingers of each hand. I'm coming up on a year of the same thing, but my tingling in concentrated in both feet (I don't have diabetes -...	pl1952	17	5678	Jan 27, 2015 by rblood
	Hello from cold Canada (Preview) Been awhile since posted, cleaning up around here and found and disposed my last two empty syringes of Eprex and the Interferon, past is the past, health wise noting to complain about feelin the best I have in 10 years, side effects of treatment over, liver and blood back to where it should be, took a lon...	2willy	4	1417	Jan 26, 2015 by Cinnamon Girl
	Still SVR Yay!! (Preview) so it has been 6 months since treatment. had labs yesterday & everything is normal range.. praise God!!	TazKat	17	1813	Jan 22, 2015 by TazKat
	Question: Memory Issues Post S/O treatment? (Preview) I'm 21 weeks post treatment with Sovaldi/Olysio, reached SVR Oct. 23. My memory, both long and short term, is much worse since I finished treatment. I'm 63 years old and maybe this is age related rather than treatment related, but I wanted to ask if anyone else has experienced memory problems after S...	bassetgirl	27	2744	Jan 20, 2015 by Tess1971
	EOT +14 weeks...clear! (Preview) Just got my results back and I am clear of the Hep C virus 14 weeks after EOT. Happy dance! This was the Abbvie Topaz trial. 9 pills a day, including ribaviran, for 12 weeks. I feel so lucky to have been given this opportunity to be treated and cured. My very best wishes to all who are still fighting. The medi...	hippiechick	9	1232	Jan 20, 2015 by Scruffy
	SVR (Preview) Dear All, I tested 51 weeks after EOT and HCV is undetectable. Thank you all for your winderful sipport. Would not have been able to complete this journey without your support.	mindovermatter	7	1320	Jan 19, 2015 by Gator Man
	EOT+24 long time commin (Preview) I scrolled and held my breath ast 15 alt 13. HVC <15 not detected. Its been a long wait for this seeing I started treatment back in July of 2013. I'll be going back to look at my labs all day.	Scruffy	13	1616	Jan 17, 2015 by Rubye
	srv (Preview) please be encouraged! I received my blood test results back today after 4 months after treatment with solvaldi ribivirn an peg pen of interferon an im hep c free!all praise to my Heavenly Father! He got me thru it ! to all my friends here when I was new here an scared you were all here for me an I thank you!f...	hepcinbama	6	1538	Jan 16, 2015 by Michaele
	----> EOT+12 SVR (Preview) Just got the good news. I feel very, very blessed! Now, I have to change my signature :) -- Edited by skewedButNotBroken on Friday 9th of January 2015 09:50:47 PM	skewedButNotBroken	16	2488	Jan 11, 2015 by Tess1971
	One year anniversary (Preview) I am new to the forum so I will introduce myself. I am a 53 year old male diagnosed with Hepatitis C (1b) in 2001, almost certainly the result of numerous blood transfusions in 1982. I was a null responder to Interferon/Ribavirin in 2001 and have been waiting for better treatment options.I have compen...	Gator Man	6	1493	Jan 8, 2015 by Cinnamon Girl
	EOT + 12 weeks (Preview) UND at EOT + 12 weeks. The doc wants me to retest at EOT + 1 year, but I am counting this as SVR.	TomF	9	1261	Jan 7, 2015 by mallani
	It's official (Preview) just got back from my doctor's and it's official. SVR now just labs and ultrasound every August. Best holiday gift ever. Thank you so much for keeping me sane and on my meds. Feel so awesome and grateful. gigi	beingsassy	16	1775	Jan 5, 2015 by Michaele
	EOT + 24 SVR! (Preview) Had my EGD done this week - esophagus normal - mild portal hypertensive gastropathy in the gastric body - stomach was biopsied - duodenum normal - no visualized esophageal or gastric varices. Considering my F4 cirrhosis dx, I'm very relieved as this is the first EGD I've had in years. A friendly remin...	Sara	14	2042	Jan 4, 2015 by Cinnamon Girl
	SVR 24 weeks. (Preview) My clinic nurse just called me. UND 24 weeks post TX! I found this forum because my Dr had suggest it was time for treatment. Things were getting grim and postponing was a bad idea. I started all the testing poking prodding and bloodletting as well as MRIs ultrasounds fibroscans and then somewhere in t...	Barnacle	18	2099	Jan 3, 2015 by Barnacle
	Post treatment labs (EOT + 10.7 weeks) (Preview) ALT: 19 AST: 23 PLTs: 115 I felt really rotten last week, so I decided to have some labs done and I just talked to the nurse and got the above results. It's not very likely that I have relapsed with an ALT of 19 and AST of 23, but my platelets have dropped from 143 to 115. This concerns me a little, however, this...	skewedButNotBroken	1	1354	Dec 30, 2014 by mallani
	Merry Christmas (Preview) I am wishing each and every one here a very Merry Christmas and a happy Hep C free New Year!	RonH	6	1179	Dec 25, 2014 by lilbit
	Fibroscan score reduced drastically (Preview) Amazingly good news for my husband and all cirrhotics! My husband's fibroscan scan before treatment was 25. Today, he went for another fibroscan and it was 11.2!! I've read good news before about the reduction when you reach SVR, but I've not seen this much of a reduction in a short period of time. ...	pl1952	1	1158	Dec 23, 2014 by Michaele
	Life Expectancy after SVR (Preview) Cured Hepatitis C Patients May Have Same Life Expectancy as General PopulationDetailsCategory: HCV Disease ProgressionPublished on Friday, 19 December 2014 00:00Written by Liz HighleymanImage © Russell Kightley Chronic hepatitis C patients with advanced liver fibrosis or cirrhosis who ac...	suziq	1	1342	Dec 23, 2014 by tojo
	Right sided pain. (Preview) Hi Guys! I have been having a lot of right side upper quad pain. Labs are wnl and CT scan was negative. Been using pain meds to control the pain. Any thoughts as to what could be causing it. I'm at work right now and will give more details later but the pain is not getting any better. Thanks!	Northern	14	2558	Dec 20, 2014 by Paul B
	Insomnia post treatment? (Preview) I started waking up at 3-4 am after I finished my treatment. Interestingly I was very sleepy during treatment snd slept even after lunch. Now the opposite is happening? Is this one of post treatment side effects or should I relate this to something else?	Doni	2	1002	Dec 20, 2014 by RonH
	EOT + 8 weeks UND! (Preview) As some of you know, I had to stop my Sovaldi/Olysio treatment at 6 weeks due to numerous heart flutters. Now I have been off of treatment for 8 weeks and I'm still UND. I have to believe that this is great news. By the way, the heart flutters and chest pain are slowly going away.	skewedButNotBroken	8	1381	Dec 18, 2014 by Fireman Rob
	It all over now (Preview) I had a follow-up appt. with my doc this morning. Due to changing doctors at the end of my treatment I haven't had blood work since just after completion the 48 week triple therapy. Completed therapy 11 months ago. UND! Cured! All liver functions normal and no advancing of the Cirrhosis. He congra...	hepcat60	16	1927	Dec 11, 2014 by Ro
	EOT +1 Year (Preview) Hi All, Even us old timers have moments of anxiety, and that has been the case with me. I went in last week for my EOT +1 year viral load and chem profile. The odds are well in our favor that once we achieve SVR at EOT +12 weeks, it will stay that way. But, we're human and the anxiety builds while waiting for th...	Tig	19	1659	Dec 10, 2014 by Tig
	I'm SVR 12 Friends!!! (Preview) Hi All, I just checked to see if my HCV RNA Results from Friday were in and guess what..? The results are in and I'm on Cloud 9 as I'm now SVR 12! I had to look multiple times to make sure the (HCV RNA Not Detected, <15) was really there on MY medical records. This is the best day I've had in many months....	Fireman Rob	26	1848	Dec 5, 2014 by beingsassy
	8 weeks eot still und (Preview) I can't explain it really. I just feel different. Like clear. Not tired or foggy all the time. I felt confident at the 4 week mark I was und and at the 8 week mark. I hope it stays und. When I relapse w victrelis. I felt like I wasn't surprised. Like I could tell I still didn't feel good.	libgirl07	12	1608	Dec 4, 2014 by Cinnamon Girl
	Good news after SVR! (Preview) A recent article in JAMA concludes that life expectancy for patients with cirrhosis from HCV who attained SVR is comparable to the general population. I don't have the article, but I have attached a link to a press release about the November 12th publication. http://www.eurekalert.org/pub_rel...	Gator Man	13	1637	Dec 2, 2014 by Gator Man
	Post TX muscle and joint stiffness (Preview) It's been 5 months since completing S/O/Rib Tx and for the most part I feel great. At least most of the Hep C symptoms have gone away. I started getting joint and muscle stiffness about 1 month after Tx and it hasn't gone away. I mentioned it to hep c clinic nurse and she said it is common with interferon tre...	Barnacle	21	2379	Nov 30, 2014 by RudiRoo
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