Hep C Discussion Forum

dustbear · dustbear

It took a while to get the results but my doctor made a special phone call to me at home to say I'm UND! What a relief as my ALT-AST were high. Deep down I knew I would be, but I had some doubts. The waiting was killing me; they aren't supposed to tell you over the phone. I screamed with joy! (after I hung up!) No...

joe oil · joe oil

Just got the good news 6 months post TX..SVR ALT 40 ALT 40 Platelets 174 Treatment was tough but certainly worth it, hang in there all and thanks again to this forum.

Adamos40 · Adamos40

Hi everyone, and a happy new year to all. Its been a while since I was on the forum. Many thanks to everyone who helped me through. Just had my 6 months post treatment viral load bloods done. UND!! Going through the triple therapy was worth every 20g of fat, headache, itchy and scratchy, sleepless night,...

rotting to the core · rotting to the core

To my friends this a very sad subject, one of which if I could I would remove from the world but I can not. I only post this because MJ sent it to me as she is sitting next to me. We are tiring to understand why this happens to those we truly love, and try not to blame everybody including ourselves. As many have m...

Adamos40 · Adamos40

Hi, Just spoke to a friend of mine who is geno type 1 who started triple therapy this week- peg interferon, ribavarin and incivo (incivec). His nurse has told him he only needs to take the Incivo twice a day(3 tablets). I was wondering if anyone else has come across this new regimen for incivo? Cheers, Ad...

Dillo · Dillo

I know I haven't been around in a while. Just wanted to thank everyone here for all your support and wish a Merry Christmas. My insurance runs out the 31st of December and it will be a couple of months at the least before the insurance picks up on my new job so I called my Hepatologist and asked for testing be...

Kellie · Kellie

hi kids, it seems i had insurance all the way up until yesterday, so i took the opportunity to have one more vl test at the official 12 week eot mark. this is the email I got last night from my NP: "Kellie, HCV RNA undetectable. Congratulations! Cured! Happy New Year! Andi" I just wanted to shar...

drtminor · drtminor

I am new to the forum and have been off Hep C triple therapy for close to 10 months. I am experiencing severe pain in my left hip, left thigh and lower back. The worse pain is that sharp pain in the middle of my left thigh. The doc says it is arthritis in my hip. I went to physical therapy and that helps some....

Kathleen933 · Kathleen933

Hello all. My name is Kathleen and I just turned 24. When I was 22 I was diagnosed with Hep C and started the triple drug therapy a few months later. I had a really rough time with treatment, as I'm sure most of you did. My red and white blood cells bottomed out very early in treatment and I was bed bound for mos...

greenqueen · greenqueen

Between April 2006 and September 2007 just over 500 respondents completed the survey. All of these respondents were more than 6 months post treatment.http://www.hepctrust.org.uk/treatment/Post+Treatment+Survey+Report.htm#headingAnchor1

GodsGrl · GodsGrl

I have been way too long since I have checked in on the forum. My life has been a bit nutso but all in all I am doing pretty well. My husband and I are still separated and have filed for divorceL. This is very hard on both of us. I am now over 120 days post treatment, happy to say my energy level has returned to nor...

MandeAndi · MandeAndi

Hi everyone, Andi here, SVR ten years following 48 weeks of interferon/ribavarin for 1A. First of all, while tx was Hell, I would definitely do it again. And yes, while I do have significant post-tx issues, I live a good life. It's not the life I thought I would be living but I am useful. My dr has downpla...

Kellie · Kellie

i found out the other day i am losing my medical insurance tonight at midnight so i asked my np if we could do my 12 week eot labs a little early. i'll have my vl results in a few days. i asked her to throw a thyroid panel in there too, along with the other tests.i think if it's going to come back, it will show up no...

Neil_Canuck · Neil_Canuck

Returned home from shopping today to get voice message from specialist that 6 month psst treatment blood tests showed virus still active. Guess my battle not over yet.

mallani · mallani

Hi all, My post-Rx story is getting like a soap opera. Since returning to golf, I've had R. forefoot pain after walking, usually starting after 6-10 holes. The pain is quite severe, and is relieved by taking off my shoe and walking without a shoe for 5 minutes. The pain usually returned after a few hole...

Kellie · Kellie

Hi everybody, well the labs are back and it's official - UND! my blood work is splended - WBC 4.3; RBC 4.18; HGB 14.0; ALT 26; AST 22; platelets 234 mcv is still high at 99. breathing easier and oh so very grateful for the blessings in my life.

52baddog · 52baddog

Is anybody on the triple oral treatment of IDX719, Simeprevir and Ribavirin??

mallani · mallani

Hi all, Most of you have normal enzymes, but for me this has never been the case. I've just had some blood work done, and my ALT is 'just' within the normal range, for the first time since I started keeping records, in 1988. It's hard to predict how cirrhotics will respond to SVR, but I'm fairly happ...

rotting to the core · rotting to the core

I have not been posting much. Really have not felt well during treatment. Then 5 days after my last pill, 10/31/2013 another tragedy. My girl friends 22 year old passed on, unexpectedly. So I really don't no how much is from tx or how much discomfort is related to Travis's death. I just know now I have PH...

Tig · Tig

Over the last day and a half I've noticed the increasing discomfort in my right ear. Actually it's quite painful inside, outside and the eustachian tube is bubbling, popping and beginning to close I suspect. I had problems years ago with terrible external ear infections primarily but the occasiona...

Carolinca · Carolinca

Just got the result today, and we both are really happy about it. Only 3 more months until he achieves SVR. Plus, he is not having any side effects post treatment and is back to his pretreatment self! ~ Carol

Tig · Tig

>>>EOT<<< The day has arrived! Last night at 11PM I ate the last 4 capsules of Victrelis. That ends my 28 week course of Triple Treatment. At midnight I had a small personal celebration and turned off all of those damn alarms I had set on my smartphone as medication reminders. I look...

mallani · mallani

Hi all, Continuing my post-Rx saga, today I saw a Rheumatologist about my post-Rx aches and pains. It took 2.5 months to get an appointment and he looks after liver patients from most of the Hepatologists in Brisbane. After checking my Xrays, blood tests and physical examination he concluded I had r...

newill · newill

Hi, I'm new at this site, but would like y'alls opinion. Used to belong to Janis & Friends, but couldn't get there today. My hubby went through the long treatment 4 years ago for the stubborn type C. He was undetectable at the 6 month post treatment. We finally got insurance that had no pre-exis...

mallani · mallani

Hi all, Had my post SVR followup MRI today. My old practice has just installed the latest Siemans 3T machine, and the results are breathtaking. The same Radiologist has reported my liver imaging with Ultrasound, CT and MRI for the last 10 years. I was able to sit in a room with a bank of monitors, and re...

DJ · DJ

I just completed my 6 months test and they called to say the results came back UND and I am now considered cured :) (and I do realize that the word cured isn't usually used, but she said it, and I loved hearing, so I am going with that). They said they don't need to see me for another year at which time they wi...

Carolinca · Carolinca

As my husband and I were awaiting his viral load test for his 3 month post treatment, we soon found out today that the blood lab put the wrong code and did an HIV test instead! I was so upset. We had to drive to the blood lab and repeat the viral load test today. So, I did call his primary doctor and asked her w...

12Step Guy · 12Step Guy

I did it, with all your help and support. I made it. Hep C Free

Kellie · Kellie

Whew! 6 more to go.

Kellie · Kellie

So last Friday night I start getting this really severe abdominal cramping. I mean this is a 10 on the scale of 1-10 for pain. I wait for it to pass. Nope - it just sits there. Finally at 0330 I wake my husband and we go to the er. After 8 hours, an abdominal, contrast CT scan, and heavy pain meds, they tell me...

Topic		Started By	Replies	Views	Last Post
	UND 4 weeks after EOT! (Preview) It took a while to get the results but my doctor made a special phone call to me at home to say I'm UND! What a relief as my ALT-AST were high. Deep down I knew I would be, but I had some doubts. The waiting was killing me; they aren't supposed to tell you over the phone. I screamed with joy! (after I hung up!) No...	dustbear	12	1064	Jan 14, 2014 by KLG
	SVR (Preview) Just got the good news 6 months post TX..SVR ALT 40 ALT 40 Platelets 174 Treatment was tough but certainly worth it, hang in there all and thanks again to this forum.	joe oil	13	1084	Jan 13, 2014 by joe oil
	UND 6 months post treatment (Preview) Hi everyone, and a happy new year to all. Its been a while since I was on the forum. Many thanks to everyone who helped me through. Just had my 6 months post treatment viral load bloods done. UND!! Going through the triple therapy was worth every 20g of fat, headache, itchy and scratchy, sleepless night,...	Adamos40	16	1270	Jan 12, 2014 by dustbear
	Please beware of those you love. (Preview) To my friends this a very sad subject, one of which if I could I would remove from the world but I can not. I only post this because MJ sent it to me as she is sitting next to me. We are tiring to understand why this happens to those we truly love, and try not to blame everybody including ourselves. As many have m...	rotting to the core	3	1025	Jan 11, 2014 by Gracie
	Incivo 2x daily (Preview) Hi, Just spoke to a friend of mine who is geno type 1 who started triple therapy this week- peg interferon, ribavarin and incivo (incivec). His nurse has told him he only needs to take the Incivo twice a day(3 tablets). I was wondering if anyone else has come across this new regimen for incivo? Cheers, Ad...	Adamos40	3	673	Jan 8, 2014 by Gracie
	Merry Christmas SVR 21 (Preview) I know I haven't been around in a while. Just wanted to thank everyone here for all your support and wish a Merry Christmas. My insurance runs out the 31st of December and it will be a couple of months at the least before the insurance picks up on my new job so I called my Hepatologist and asked for testing be...	Dillo	12	1210	Jan 4, 2014 by lauralou57
	OK the official, official 12 week eot vl test (Preview) hi kids, it seems i had insurance all the way up until yesterday, so i took the opportunity to have one more vl test at the official 12 week eot mark. this is the email I got last night from my NP: "Kellie, HCV RNA undetectable. Congratulations! Cured! Happy New Year! Andi" I just wanted to shar...	Kellie	11	916	Jan 3, 2014 by Bloomster
	Hip and thigh pain (Preview) I am new to the forum and have been off Hep C triple therapy for close to 10 months. I am experiencing severe pain in my left hip, left thigh and lower back. The worse pain is that sharp pain in the middle of my left thigh. The doc says it is arthritis in my hip. I went to physical therapy and that helps some....	drtminor	3	898	Dec 30, 2013 by drtminor
	New to forum. Looking for post treatment words of wisodm! (Preview) Hello all. My name is Kathleen and I just turned 24. When I was 22 I was diagnosed with Hep C and started the triple drug therapy a few months later. I had a really rough time with treatment, as I'm sure most of you did. My red and white blood cells bottomed out very early in treatment and I was bed bound for mos...	Kathleen933	9	1221	Dec 24, 2013 by Tig
	Hep C Trust Post Treatment Survey Report (Preview) Between April 2006 and September 2007 just over 500 respondents completed the survey. All of these respondents were more than 6 months post treatment.http://www.hepctrust.org.uk/treatment/Post+Treatment+Survey+Report.htm#headingAnchor1	greenqueen	6	8365	Dec 24, 2013 by hepcat60
	Checking In! (Preview) I have been way too long since I have checked in on the forum. My life has been a bit nutso but all in all I am doing pretty well. My husband and I are still separated and have filed for divorceL. This is very hard on both of us. I am now over 120 days post treatment, happy to say my energy level has returned to nor...	GodsGrl	14	1188	Dec 24, 2013 by hepcat60
	10 years SVR! (Preview) Hi everyone, Andi here, SVR ten years following 48 weeks of interferon/ribavarin for 1A. First of all, while tx was Hell, I would definitely do it again. And yes, while I do have significant post-tx issues, I live a good life. It's not the life I thought I would be living but I am useful. My dr has downpla...	MandeAndi	8	1765	Dec 23, 2013 by dustbear
	10.5 weeks post eot (Preview) i found out the other day i am losing my medical insurance tonight at midnight so i asked my np if we could do my 12 week eot labs a little early. i'll have my vl results in a few days. i asked her to throw a thyroid panel in there too, along with the other tests.i think if it's going to come back, it will show up no...	Kellie	6	980	Dec 23, 2013 by dustbear
	No SVR (Preview) Returned home from shopping today to get voice message from specialist that 6 month psst treatment blood tests showed virus still active. Guess my battle not over yet.	Neil_Canuck	17	1430	Dec 23, 2013 by dustbear
	One problem solved (Preview) Hi all, My post-Rx story is getting like a soap opera. Since returning to golf, I've had R. forefoot pain after walking, usually starting after 6-10 holes. The pain is quite severe, and is relieved by taking off my shoe and walking without a shoe for 5 minutes. The pain usually returned after a few hole...	mallani	4	1090	Dec 23, 2013 by dustbear
	a wonderful xmas present - SVR! (Preview) Hi everybody, well the labs are back and it's official - UND! my blood work is splended - WBC 4.3; RBC 4.18; HGB 14.0; ALT 26; AST 22; platelets 234 mcv is still high at 99. breathing easier and oh so very grateful for the blessings in my life.	Kellie	19	1415	Dec 21, 2013 by Ckncali
	Simeprevir--Janssen Pharma (Preview) Is anybody on the triple oral treatment of IDX719, Simeprevir and Ribavirin??	52baddog	1	973	Dec 21, 2013 by rundout
	Good post-Rx labs for a cirrhotic (Preview) Hi all, Most of you have normal enzymes, but for me this has never been the case. I've just had some blood work done, and my ALT is 'just' within the normal range, for the first time since I started keeping records, in 1988. It's hard to predict how cirrhotics will respond to SVR, but I'm fairly happ...	mallani	15	1188	Dec 18, 2013 by DeRanger
	55 days post end of treatment. (Preview) I have not been posting much. Really have not felt well during treatment. Then 5 days after my last pill, 10/31/2013 another tragedy. My girl friends 22 year old passed on, unexpectedly. So I really don't no how much is from tx or how much discomfort is related to Travis's death. I just know now I have PH...	rotting to the core	7	926	Dec 17, 2013 by mallani
	Developing an ear infection, uggh!! (Preview) Over the last day and a half I've noticed the increasing discomfort in my right ear. Actually it's quite painful inside, outside and the eustachian tube is bubbling, popping and beginning to close I suspect. I had problems years ago with terrible external ear infections primarily but the occasiona...	Tig	4	869	Dec 15, 2013 by Tig
	Hubby Undetectable 3 Months Post Treatment! (Preview) Just got the result today, and we both are really happy about it. Only 3 more months until he achieves SVR. Plus, he is not having any side effects post treatment and is back to his pretreatment self! ~ Carol	Carolinca	16	1171	Dec 13, 2013 by Bloomster
	End of Treatment Day Arrives! (Preview) >>>EOT<<< The day has arrived! Last night at 11PM I ate the last 4 capsules of Victrelis. That ends my 28 week course of Triple Treatment. At midnight I had a small personal celebration and turned off all of those damn alarms I had set on my smartphone as medication reminders. I look...	Tig	13	1154	Dec 9, 2013 by DJ
	Visit to the Rheumatologist (Preview) Hi all, Continuing my post-Rx saga, today I saw a Rheumatologist about my post-Rx aches and pains. It took 2.5 months to get an appointment and he looks after liver patients from most of the Hepatologists in Brisbane. After checking my Xrays, blood tests and physical examination he concluded I had r...	mallani	3	972	Dec 8, 2013 by mallani
	4 years post treatment (Preview) Hi, I'm new at this site, but would like y'alls opinion. Used to belong to Janis & Friends, but couldn't get there today. My hubby went through the long treatment 4 years ago for the stubborn type C. He was undetectable at the 6 month post treatment. We finally got insurance that had no pre-exis...	newill	7	3010	Dec 8, 2013 by TeddyTrout
	Followup liver imaging (Preview) Hi all, Had my post SVR followup MRI today. My old practice has just installed the latest Siemans 3T machine, and the results are breathtaking. The same Radiologist has reported my liver imaging with Ultrasound, CT and MRI for the last 10 years. I was able to sit in a room with a bank of monitors, and re...	mallani	25	1469	Dec 5, 2013 by mallani
	YES! (Preview) I just completed my 6 months test and they called to say the results came back UND and I am now considered cured :) (and I do realize that the word cured isn't usually used, but she said it, and I loved hearing, so I am going with that). They said they don't need to see me for another year at which time they wi...	DJ	20	1121	Dec 5, 2013 by lauralou57
	Blood Lab Ordered Wrong Test for My Husband's 3 Month Viral Load Test Post Treatment (Preview) As my husband and I were awaiting his viral load test for his 3 month post treatment, we soon found out today that the blood lab put the wrong code and did an HIV test instead! I was so upset. We had to drive to the blood lab and repeat the viral load test today. So, I did call his primary doctor and asked her w...	Carolinca	2	1075	Nov 23, 2013 by mallani
	Perseverance (Preview) I did it, with all your help and support. I made it. Hep C Free	12Step Guy	16	1239	Nov 22, 2013 by TeddyTrout
	6 weeks eot vl still undectected (Preview) Whew! 6 more to go.	Kellie	7	1182	Nov 21, 2013 by Biggyb
	Colitis! (Preview) So last Friday night I start getting this really severe abdominal cramping. I mean this is a 10 on the scale of 1-10 for pain. I wait for it to pass. Nope - it just sits there. Finally at 0330 I wake my husband and we go to the er. After 8 hours, an abdominal, contrast CT scan, and heavy pain meds, they tell me...	Kellie	21	1957	Nov 15, 2013 by suziq
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