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The gift that keeps on giving
(Preview)
Went to the dentist yesterday for my 6 month check. They did the gum measuring thing where they poke your gums around your teeth then say a number between 1 & 5 (for me anyway). I usually have 2s, 3s and one or two 4s. Today, the 2s were 4s and the 3s were 5s!! I am scheduled to go back in 3 months for another...
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zuzusfam
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2
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752
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Anyone have joint/muscle inflammation after end of treatment?
(Preview)
I finished treatment a month ago. Energy is coming back and better attitude. But I'll be fine one day and then I felt like I tore my shoulder rotater. Excruciating. Like couldn't lift a glasss of water. Then after 3 days of that ebbing, feel pretty good again, then feel like injured groin muscles. This g...
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chatterbox
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13
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2875
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Doctor Just Called
(Preview)
and my 24 weeks labs are still good! 1 more test in 5.5 months! have a safe and happy thanksgiving everyone 
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iggle
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12
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1167
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Thought we had it beat!
(Preview)
Started triple therapy treatment Sept 2011 (Peg, Riba and Incivik). At all key labs (12, 24, 36, 48 week) undetectable. Then at week 60 came the smack in the face... Viral Load 10,300,000. Made for a depressing Thanksgiving. Thought we had it beat. Doc's gonna try to get me into another trial study...
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scotu
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14
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1406
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Non resopnder once and a relaps after trail about to do telipivier for 6 mo.
(Preview)
I'm brand new to any chat discussions and support I'm not new to hep C I may have been infected 25 + yrs I'm Geno type 1 I have cirrhosis stage 3 I can see there are some people here that sound the same as me 2008 tired ribv and intf cut off in 12 weeks non responder Aug 2010 started a trial / study DEB025 th...
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Bills
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30
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13283
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27 Weeks post tx update
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Well it's been 27 weeks since tx, I have been checking in from time to time but had nothing to update. My labs on 11/12/12 were wbc 7.2 rbc4.77 hgb 15.7 plt 205 sgot 11 sgpt 34 total bilirubin 0.5 Viral load UND!! Was also Und at week 6 and 16 post tx. Still not feeling as well as I had hoped but getting the...
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mc99
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6
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1009
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Finished Treatment
(Preview)
I was on incivek w/interferon and riba for 48 weeks 12 weeks with incivek. Since week 3 and1/2 less than 43 udetected all the way till last blood test maybe 8 weeks ago. Took blood test last week after 2 weeks of finishing therapy results less than 43 but detected. Doctor said lets wait for another blo...
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Sal
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9
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1024
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6 years post treatment
(Preview)
I have ben treated for Hep C 5 times in 8 years with failure.My last treatment of Pegatron ended in Jan 2007.Since then my life has taken a drastic fall.I have lost all energy,ringing in one ear constantly,stomach pain,depression,fibromyalgia,can't take the cold, major brain fog and much,much mor...
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c99
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10
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1944
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drug resistant blood test?
(Preview)
I recently started a new job in the biotech field and durring me prospecting for new clients I came across Monogram Biosciences. They recently developed an assay (test) for resistance to boceprevir and telapravir. Have any of you had this? I didnt...I had my IL28B tested but not this test...I don...
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LanaiSurferGirl
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0
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696
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6 mos post treatment
(Preview)
I haven't posted here for several months. I had responded well to triple therapy being undetectable at week 8 and all through treatment. Kaiser called last week to give me the results of the 6 months post treatment blood test. Hep C is back with the same VL (4,745,986)I had the start of treatment. Haven...
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Lowrider
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14
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1152
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What do you pick up?
(Preview)
I noticed when my Hep C was raging I tended to grab a sweet treat....a lot. Also when depression hit same deal. It was comfort or so I thought. Now a bit more mindful, off the meds and on the mend I'm trying to use fruit and water for my "reward" fix. I know a lot of us turned to drugs before our recov...
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Scout
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2
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881
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a little over 3 months post treatment
(Preview)
Hey! I am feeling great after treatment, have my energy back, gained some weight back (muscle), and my hair is growing back. My husband teases me and calls it "crazy hair"...the hair growing back on the top of my head stands up and looks like a mohawk so I have been wearing it in a pony tail, h...
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LanaiSurferGirl
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7
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1048
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9 months post tx update
(Preview)
Well it seems at times I forget I ever had hcv lol. Days go by super fast and I'm rarely tired at all anymore.I work all day long and still am not tired till late at night. Its amazin to feel this way, I know this is what i was supposed to feel like in my 20's however hcv was changing how I was for 10 years. My energ...
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jrc
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9
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1072
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Just got the dreaded phone call
(Preview)
It's back. I just wrapped up 36 weeks of triple therapy....and 3 weeks later I have a VL of 217,000. Really didn't think this was going to happen to me. Everything went so well throughout tx, I responded fast and it looked like a textbook case that I was headed for SVR. ugh.
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alohaKim
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20
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1586
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Virus is back for me, too
(Preview)
Got my results from 12-week-post today and it's no longer Und. I now have a viral load of 1.4 million. I know a few of us have had the same news, lately. (Also, I was only able to complete 23 weeks of tx, and was supposed to go 48 but body shut down.) Sure I'm disappointed as that tx was the most difficult t...
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Judy S
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28
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1515
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48 week slog. so far undetected :)
(Preview)
im cautiously optimistic so far. got my results today post treatment. UNDETECTED. thats all i needed to hear, the rest was blah blah blah blah
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kiwi
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10
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991
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Stlii UND
(Preview)
Well, I finished my 48 weeks on August 10, and on October 22 was still UND!! From 69 million plus to in just 48 weeks! I feel pretty confident that I'll stay this way, and so does my doctor. I think my vision is somewhat worse than before treatment, but I'm older too, of course. I have the joint and muscle pa...
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nohcvforme
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6
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947
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relapse after 8 weeks of tx
(Preview)
I wasnt sure where to put this so I started new topic. I went 8 weeks into triple tx and got off because of severe side fx. I went from.12 mill to und. At 8 weeks, when I got 30 post labs I was all the way up to 17 mill v.l. Anyways the abdominal pain in liver area is intense and constant. Dr says its just stretchin...
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shorty213
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2
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843
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Got my SVR today!
(Preview)
I've been M.I.A. from these boards for a few months now but wanted to pop back in and check on you guys. Also wanted to share my good news, Doc gave me the good news that i'm still undetectable and all liver fuctions are in normal range. I got my labs pulled last thursday and its been a rough week worrying abo...
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cntryboyar
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20
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1180
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Blood test quote from my doc
(Preview)
"Rita,
NO VIRUS !! So you are on your way to cure. This is called ETR - end of treatment response. Please repeat labs in 3 months."
Wishing all of you guys thd same great news!
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Margo
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15
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1490
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Interesting gyna labs
(Preview)
start of tx had high grade blah blah cells detected, followed up after six months. Gyno didn't see anything with coloscopy but did follow up pap any way. Rang today wants another follow up in 6 mths as test detected low grade cells. Not concerned as will do follow up and keep track of situation. Ponderin...
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K2
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1
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699
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post treatment viral load = im ****ting bricks waiting
(Preview)
well i confess, after reading round here, bout the virus coming back. (kim im so sorry) i am scared out of my brain waiting for these results. got friends saying, its zero, claim your healing, and all that positive stuff, but i just cant help being worried. waiting is something im hopeless at. jeez. on a...
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kiwi
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16
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1219
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Hair is thickening but has completely changed color?
(Preview)
Either that, or yes, there is life again after treatment. I was the Mad Hatter with my wife, Jen, as the Cheshire cat for last nights party. Happy Halloween! Dave
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davesf
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8
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1076
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2(1/2) weeks post-tx and I feel like a new woman!
(Preview)
Where did all this ENERGY come from?? And food-- it tastes SO GOOD! lol! The dark clouds of depression have parted, the brain fog is lifting...WOW, I'm remembering who I was when I began this journey. It's amazing how quickly all that energy came back to me. And my mood has improved so much, even j...
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alohaKim
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14
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2050
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12 Week Post Results - UND!!!
(Preview)
Still <43 NOT DETECTED. No declaration of SVR by my doctor, as he uses both 12 and 24 week tests, but don't see him til next month. All other blood work (CBC and Hepatic Function Panel) are normal for the first time in at least 15 years. ALT and AST at 21 and 15, down from 200 and 300. Generally feel pretty...
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Phil G
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26
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1540
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Its back and I'm back!
(Preview)
Went to see my doc yesterday for the results of 3 month post tx blood test. The virus is back and viral count is over 1 million this time. Doc says viral load will likely come back down as time goes on. It felt like a kick in the teeth. We talked about the new tx that is coming, he thinks it will be 2 years before ...
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sungoddess
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21
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1932
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1 week post tx update- feels like the treatment has begun
(Preview)
Hey guys, it's been a week without meds. Some weird symptoms I've noticed. Friday, when my shot was usually due, I began having some residual aches and pains like after the shot? First few days, I felt really uncomfortable as in the beginning of my treatment, I've had a feeling that I'm missing somethi...
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Margo
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7
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916
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Ten Weeks Post Treatment - Physical Training
(Preview)
Just wanted to share with you guys how the recovery is going ten weeks after. Believe it or not, I still have occasional Incivek related butt issues. I fear I'll have to learn to live with it. Nothing as intense as during treatment, but not fully back to normal. But the tiredness, confusion, out-of-bre...
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news
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19
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1385
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Finnished-now fingers crossed
(Preview)
Hi, I have been off all meds for a week now. I do feel somewhat better. The fog is lifting and my energy levels are returning slowly. I have not yet had post tx bloods done due to appointment mess ups. Will have them done this week and by next Friday I hope to have results. Thank you to all here for your suppor...
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K2
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28
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1383
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9 weeks post tx hair loss is less
(Preview)
I'm 9 weeks post now, and in the past few days, less hair has been falling out. 3 days post tx, my hair started falling out like crazy, much worse than while I was on tx. I thought for certain I'd go completely bald. I think I'm actually starting to grow a little hair back now. I think.
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Judy S
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4
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988
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