Hep C Discussion Forum

Cinnamon Girl · Cinnamon Girl

http://hcvadvocate.org/hepatitis/factsheets_pdf/Extrahepatic.pdf

Cinnamon Girl · Cinnamon Girl

This is a very informative and helpful article on understanding and managing Hep C, including common symptoms, treatment options and a list of patient assistance programs. Written by Alan Franciscus, the editor of the HCV Advocate website. In pdf format... http://hcvadvocate.org/hepatitis...

Tig · Tig

I had the opportunity to speak with a patient that is currently undergoing treatment for HCV GT 3 and on the Sov/Dac protocol. The topic of lab testing came up and the difficulty of getting a request written by your doctor and approved by your insurance carrier. Normally we do not promote retail or medi...

greenqueen · greenqueen

http://www.hcvadvocate.org/hepatitis/factsheets_pdf/Myths.pdf

greenqueen · greenqueen

http://www.hcvadvocate.org/hepatitis/Basics/Managing_Symptoms_10.pdf

greenqueen · greenqueen

TSP aims to improve the well-being of people affected by viral hepatitis. Trained peer counselors will provide emotional support, health information, and relevant referrals, working with callers to set health-related goals related to all stages of living with hepatitis C -- from risk assessme...

Observer · Observer

Darn...I really was hoping by 4 years post treatment the state of my liver would have improved but alas...my ultrasound results show Im still cirrhotic but.......at least there are no new tumours so thats awesome

Iris Dragonfly · Iris Dragonfly

I'm still in a state of shock, just got off the phone with Heath Net. The Dr. and I have appealed their denial of Harvoni for the third time, I think it is. Is that truly going to be the charm? I have been so pissed at Health Net for all the snafus in payments and other garbage which I wont go into now, but They s...

Iris Dragonfly · Iris Dragonfly

Hi folks!...had my return appt today after the many viles of blood drawn earlier this month to see if I qualified. Here's a couple results from tests that were high: AST- 45 ALT- 53 AFP - 6.2 (which is lower than it has been) HCV RNA quantitative real time PCR - 3,089,038 (log- 6. 49) Fibrotest actitest -...

JoshuaG · JoshuaG

My treatment before did not cure me. I want to give it a new try. I want to fight this. Am I eligible to be treated again and start a new life?

JoshuaG · JoshuaG

I am just curious and worried about my HEP C treatment. If I get cured will the virus show up again in my body or will it be gone forever?

Jaggles · Jaggles

Finally.... I am happy to announce that NHS have approved my treatment ....Today the hep nurse said that she is arranging an appointment for me for about 2 weeks time for pre treatment tests and she confirmed it's going to be Epclusa ...I cant tell you the relief I am feeling..ive cried on and off all aft...

Jaggles · Jaggles

my doctor has put me on ora morph for my joint pain and been checking my bloods each fortnight to makemsure my liver coping, she pointed out my levels of iron are really high and told me to research foods to eliminate. so....I had no idea it was connected to Hep c. my case was supposed to go to treatment pan...

Jaggles · Jaggles

hi Tig, my tests have lots of results but here are some you asked for months ago ...took me ages to get then brain fog went and lost them.....found now Alt 190 Ast 115 GGT 55 tot billirubin 6 albumin 42 globulin 35. Tot protein 76 Fibroscan 6.9 geno 3 diagnosed August 2016 1982 HBV believed t...

Jaggles · Jaggles

is it normal to feel like this? I'm so fed up with the daily groaning of pain in my joints and bones now. Burning splints in some finger and toe bones, so bad this morning (it's now 6am) don't know how I'm gonna get through today. Lately it's been moving around ...it hurts everywhere like, my feet crack, my...

Tig · Tig

I found an interesting article and want to share it. It's one person's story on what the cure meant to him. True Meaning

EricChuckFar1 · EricChuckFar1

I have a specialist doctor visit scheduled in a few days and I realized that now I have to disclose to every single doctor I go to that I have HCV. This made me curious. Are there any legal ramifications if HCV is not disclosed? It's not even clear when is it appropriate to do so. For instance, while getting...

Iris Dragonfly · Iris Dragonfly

So I had my return appt. the other day. This was because he suspected my insurance would deny my rx for Harvoni, and they did. However that hasn't stopped the pharmacy from calling me AGAIN to say they have my drugs but I can't have them. That was on Monday, my hepatologist is only there on Tuesdays. I don'...

ToshithaK · ToshithaK

Are you suffering from Hepatitis C? Or have you completed the treatment for Hepatitis C and you're virus-free now? Take a short survey about your treatment experience and earn $20. Give us your email associated with PayPal and get paid quickly.Click on the following link to get started: ZOOMRX SURV...

Tig · Tig

WorldHepatitisDay NoHep 2030

coolheat · coolheat

Does anyone know if the little red spots that appear on the body, which they say are from the hep c virus, do you know if these stop appearing or do they go away. Or are they like a hep c tattoo? thanks, CH

wmlj1960 · wmlj1960

I know it is not advised to add table salt etc. to the food a person with liver damage eats. How exactly does salt effect the body with liver damage? Thanks, Mike

Iris Dragonfly · Iris Dragonfly

Wooo Hooo!, I saw the Actual dr. that may be able to dispense the winning drug! I really don't want to get too excited just yet as there is a few preliminary tests to be done. I still have to be "sick enough" to recieve treatment as per my insurance. That just seems wrong to me. Anyway, the ball is rolling, I s...

Christinewhite · Christinewhite

Hello, everyone. My name is Christine and I work for HepC Alliance, a non-profit organization on a mission to stop the spread of Hep C. If you are needing advice or just someone to talk to, a great resource is help 4 hep. The website address is http://www.help4hep.org/ . Our organization's website is w...

Iris Dragonfly · Iris Dragonfly

Hi folks, Welp I offically have an appt. With a hepatologist (spell?) I had all but given up, my primary care person referred me to this place but I called and left messages 5 different times in about 3 or 4 different weeks at different times of the day ...always the answer machine. So I had complained t...

Tig · Tig

1. Diagnosis, 2. Treatment and 3. Support. Take a moment to bookmark this website. It's loaded with useful information on our unwelcome visitor and how treatment has improved along the way. It's provided by the American Liver Foundation. http://hepc.liverfoundation.org/

robertsamx · robertsamx

The benifit to everyone that drops in makes a big difference in there lives. They may not relise it at that time they drop in, but konwledge on hcv is just as much a treatment drug as the treatment drugs themselves. So if your just droping in, take your time, have a good look around, we welcome you and you...

Peaches71 · Peaches71

I was diagnosed to my initial disbelief back in early 2002 with Hep C. I was reckless in IV drug use with my husband who was infected and I was unaware. After 14 years, I've had very little problems with the virus progression but still did whatever I wanted in my life. I'm not anything but a social drinker s...

Gracie · Gracie

Four weeks after harvoni stopped blood work ... AFP went from 11 (high) down to 4 (normal) Platelets went from 82 up to 96 Oh yea, and I should mention that HCV is still UND. One more VL test to go ... WOOT!!!!!!

Tig · Tig

Some good information from one of the most ardent HCV advocates you will meet. Thanks to Lucinda Porter and Hepmag.com. https://www.hepmag.com/blog/hepatitis-c-and-wait -- Edited by Tig56 on Monday 25th of January 2016 02:55:40 AM

Topic		Started By	Replies	Views	Last Post
	STICKY: Extrahepatic Manifestations of Hep C - Updated Fact Sheet (Preview) http://hcvadvocate.org/hepatitis/factsheets_pdf/Extrahepatic.pdf	Cinnamon Girl	6	6668	Jun 26, 2019 by emilyjones
	STICKY: A Guide to Understanding Hep C (Preview) This is a very informative and helpful article on understanding and managing Hep C, including common symptoms, treatment options and a list of patient assistance programs. Written by Alan Franciscus, the editor of the HCV Advocate website. In pdf format... http://hcvadvocate.org/hepatitis...	Cinnamon Girl	2	4916	Jun 7, 2018 by Canuck
	STICKY: Personal Lab Testing Available (closed) (Preview) I had the opportunity to speak with a patient that is currently undergoing treatment for HCV GT 3 and on the Sov/Dac protocol. The topic of lab testing came up and the difficulty of getting a request written by your doctor and approved by your insurance carrier. Normally we do not promote retail or medi...	Tig	0	5409	Mar 27, 2016 by Tig
	STICKY: Dispelling HCV Myths (Preview) http://www.hcvadvocate.org/hepatitis/factsheets_pdf/Myths.pdf	greenqueen	6	10142	Nov 30, 2014 by beingsassy
	STICKY: Living with Hepatitis C: Managing Common Symptoms (Preview) http://www.hcvadvocate.org/hepatitis/Basics/Managing_Symptoms_10.pdf	greenqueen	3	17963	Aug 18, 2013 by Biggyb
	STICKY: New Hepatitis C helpline offers Information and Referrals (US) (Preview) TSP aims to improve the well-being of people affected by viral hepatitis. Trained peer counselors will provide emotional support, health information, and relevant referrals, working with callers to set health-related goals related to all stages of living with hepatitis C -- from risk assessme...	greenqueen	1	10128	Dec 4, 2012 by futureimperfect
	Still have cirrhosis (Preview) Darn...I really was hoping by 4 years post treatment the state of my liver would have improved but alas...my ultrasound results show Im still cirrhotic but.......at least there are no new tumours so thats awesome	Observer	13	4359	Feb 4, 2020 by Iris Dragonfly
	Pinch me please! (Preview) I'm still in a state of shock, just got off the phone with Heath Net. The Dr. and I have appealed their denial of Harvoni for the third time, I think it is. Is that truly going to be the charm? I have been so pissed at Health Net for all the snafus in payments and other garbage which I wont go into now, but They s...	Iris Dragonfly	19	4550	Jun 22, 2018 by SeeTheLight
	Maybe not sick enough (Preview) Hi folks!...had my return appt today after the many viles of blood drawn earlier this month to see if I qualified. Here's a couple results from tests that were high: AST- 45 ALT- 53 AFP - 6.2 (which is lower than it has been) HCV RNA quantitative real time PCR - 3,089,038 (log- 6. 49) Fibrotest actitest -...	Iris Dragonfly	37	9299	Jul 28, 2017 by Canuck
	I had Hep C treatment before that failed. Can I be treated again? (Preview) My treatment before did not cure me. I want to give it a new try. I want to fight this. Am I eligible to be treated again and start a new life?	JoshuaG	6	4988	Jun 5, 2017 by Iris Dragonfly
	If I get cured after my HEP C treatment, then will it ever come back again? (Preview) I am just curious and worried about my HEP C treatment. If I get cured will the virus show up again in my body or will it be gone forever?	JoshuaG	0	3442	Jun 5, 2017 by JoshuaG
	Panel have approved my treatment..Epclusa...yippeeee (Preview) Finally.... I am happy to announce that NHS have approved my treatment ....Today the hep nurse said that she is arranging an appointment for me for about 2 weeks time for pre treatment tests and she confirmed it's going to be Epclusa ...I cant tell you the relief I am feeling..ive cried on and off all aft...	Jaggles	35	7480	Apr 5, 2017 by Cinnamon Girl
	High iron now...ready to flip out...help (Preview) my doctor has put me on ora morph for my joint pain and been checking my bloods each fortnight to makemsure my liver coping, she pointed out my levels of iron are really high and told me to research foods to eliminate. so....I had no idea it was connected to Hep c. my case was supposed to go to treatment pan...	Jaggles	9	5354	Mar 18, 2017 by Jaggles
	My lab tests from October 4th 2016 Tig? (Preview) hi Tig, my tests have lots of results but here are some you asked for months ago ...took me ages to get then brain fog went and lost them.....found now Alt 190 Ast 115 GGT 55 tot billirubin 6 albumin 42 globulin 35. Tot protein 76 Fibroscan 6.9 geno 3 diagnosed August 2016 1982 HBV believed t...	Jaggles	12	5094	Mar 1, 2017 by Jaggles
	My bones and joint pain unbearable I'm so fed up (Preview) is it normal to feel like this? I'm so fed up with the daily groaning of pain in my joints and bones now. Burning splints in some finger and toe bones, so bad this morning (it's now 6am) don't know how I'm gonna get through today. Lately it's been moving around ...it hurts everywhere like, my feet crack, my...	Jaggles	4	4168	Feb 24, 2017 by Jaggles
	True Meaning of a Cure (Preview) I found an interesting article and want to share it. It's one person's story on what the cure meant to him. True Meaning	Tig	5	5209	Jan 14, 2017 by Loopy Lisa
	Disclosing (Preview) I have a specialist doctor visit scheduled in a few days and I realized that now I have to disclose to every single doctor I go to that I have HCV. This made me curious. Are there any legal ramifications if HCV is not disclosed? It's not even clear when is it appropriate to do so. For instance, while getting...	EricChuckFar1	9	6212	Oct 19, 2016 by EricChuckFar1
	Try try again (Preview) So I had my return appt. the other day. This was because he suspected my insurance would deny my rx for Harvoni, and they did. However that hasn't stopped the pharmacy from calling me AGAIN to say they have my drugs but I can't have them. That was on Monday, my hepatologist is only there on Tuesdays. I don'...	Iris Dragonfly	19	7533	Sep 18, 2016 by Tig
	Living with Hepatitis C Study (closed) (Preview) Are you suffering from Hepatitis C? Or have you completed the treatment for Hepatitis C and you're virus-free now? Take a short survey about your treatment experience and earn $20. Give us your email associated with PayPal and get paid quickly.Click on the following link to get started: ZOOMRX SURV...	ToshithaK	1	4551	Aug 25, 2016 by ToshithaK
	July 28 - World Hepatitis Day (Preview) WorldHepatitisDay NoHep 2030	Tig	5	5144	Jul 28, 2016 by Linuxter
	Small red spots (Preview) Does anyone know if the little red spots that appear on the body, which they say are from the hep c virus, do you know if these stop appearing or do they go away. Or are they like a hep c tattoo? thanks, CH	coolheat	17	7975	Jul 16, 2016 by Linuxter
	What exactly is the reasoning concerning reduced salt intake for a decompensated cirrhotic (Preview) I know it is not advised to add table salt etc. to the food a person with liver damage eats. How exactly does salt effect the body with liver damage? Thanks, Mike	wmlj1960	31	11232	Jun 6, 2016 by wmlj1960
	Had my 1st Hepatologist visit! (Preview) Wooo Hooo!, I saw the Actual dr. that may be able to dispense the winning drug! I really don't want to get too excited just yet as there is a few preliminary tests to be done. I still have to be "sick enough" to recieve treatment as per my insurance. That just seems wrong to me. Anyway, the ball is rolling, I s...	Iris Dragonfly	6	5498	May 18, 2016 by JimmyK
	Hep C Resources (Preview) Hello, everyone. My name is Christine and I work for HepC Alliance, a non-profit organization on a mission to stop the spread of Hep C. If you are needing advice or just someone to talk to, a great resource is help 4 hep. The website address is http://www.help4hep.org/ . Our organization's website is w...	Christinewhite	1	4639	May 17, 2016 by Tig
	Maybe it's happening? (Preview) Hi folks, Welp I offically have an appt. With a hepatologist (spell?) I had all but given up, my primary care person referred me to this place but I called and left messages 5 different times in about 3 or 4 different weeks at different times of the day ...always the answer machine. So I had complained t...	Iris Dragonfly	8	5755	Apr 8, 2016 by wendyo
	HEP C 1, 2, 3 (Preview) 1. Diagnosis, 2. Treatment and 3. Support. Take a moment to bookmark this website. It's loaded with useful information on our unwelcome visitor and how treatment has improved along the way. It's provided by the American Liver Foundation. http://hepc.liverfoundation.org/	Tig	9	5786	Apr 1, 2016 by wmlj1960
	Just Droped in, to see what condition my condition was in (Preview) The benifit to everyone that drops in makes a big difference in there lives. They may not relise it at that time they drop in, but konwledge on hcv is just as much a treatment drug as the treatment drugs themselves. So if your just droping in, take your time, have a good look around, we welcome you and you...	robertsamx	3	4903	Mar 30, 2016 by JimmyK
	3 False Negative Tests for Hep C (Preview) I was diagnosed to my initial disbelief back in early 2002 with Hep C. I was reckless in IV drug use with my husband who was infected and I was unaware. After 14 years, I've had very little problems with the virus progression but still did whatever I wanted in my life. I'm not anything but a social drinker s...	Peaches71	3	5373	Mar 22, 2016 by Canuck
	How about these numbers! (Preview) Four weeks after harvoni stopped blood work ... AFP went from 11 (high) down to 4 (normal) Platelets went from 82 up to 96 Oh yea, and I should mention that HCV is still UND. One more VL test to go ... WOOT!!!!!!	Gracie	12	6592	Feb 10, 2016 by Gracie
	Ten tips to help you stay calm (Preview) Some good information from one of the most ardent HCV advocates you will meet. Thanks to Lucinda Porter and Hepmag.com. https://www.hepmag.com/blog/hepatitis-c-and-wait -- Edited by Tig56 on Monday 25th of January 2016 02:55:40 AM	Tig	7	7158	Jan 25, 2016 by Shadowfax
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