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STICKY:
Extrahepatic Manifestations of Hep C - Updated Fact Sheet
(Preview)
http://hcvadvocate.org/hepatitis/factsheets_pdf/Extrahepatic.pdf
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Cinnamon Girl
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6
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7060
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STICKY:
A Guide to Understanding Hep C
(Preview)
This is a very informative and helpful article on understanding and managing Hep C, including common symptoms, treatment options and a list of patient assistance programs. Written by Alan Franciscus, the editor of the HCV Advocate website. In pdf format... http://hcvadvocate.org/hepatitis...
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Cinnamon Girl
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2
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5339
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STICKY:
Personal Lab Testing Available
(closed)
(Preview)
I had the opportunity to speak with a patient that is currently undergoing treatment for HCV GT 3 and on the Sov/Dac protocol. The topic of lab testing came up and the difficulty of getting a request written by your doctor and approved by your insurance carrier. Normally we do not promote retail or medi...
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Tig
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0
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5858
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STICKY:
Dispelling HCV Myths
(Preview)
http://www.hcvadvocate.org/hepatitis/factsheets_pdf/Myths.pdf
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greenqueen
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6
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10591
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STICKY:
Living with Hepatitis C: Managing Common Symptoms
(Preview)
http://www.hcvadvocate.org/hepatitis/Basics/Managing_Symptoms_10.pdf
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greenqueen
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3
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18376
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STICKY:
New Hepatitis C helpline offers Information and Referrals (US)
(Preview)
TSP aims to improve the well-being of people affected by viral hepatitis. Trained peer counselors will provide emotional support, health information, and relevant referrals, working with callers to set health-related goals related to all stages of living with hepatitis C -- from risk assessme...
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greenqueen
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1
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10497
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Still have cirrhosis
(Preview)
Darn...I really was hoping by 4 years post treatment the state of my liver would have improved but alas...my ultrasound results show Im still cirrhotic but.......at least there are no new tumours so thats awesome
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Observer
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13
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5108
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Pinch me please!
(Preview)
I'm still in a state of shock, just got off the phone with Heath Net. The Dr. and I have appealed their denial of Harvoni for the third time, I think it is. Is that truly going to be the charm? I have been so pissed at Health Net for all the snafus in payments and other garbage which I wont go into now, but They s...
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Iris Dragonfly
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19
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4973
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Maybe not sick enough
(Preview)
Hi folks!...had my return appt today after the many viles of blood drawn earlier this month to see if I qualified. Here's a couple results from tests that were high: AST- 45 ALT- 53 AFP - 6.2 (which is lower than it has been) HCV RNA quantitative real time PCR - 3,089,038 (log- 6. 49) Fibrotest actitest -...
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Iris Dragonfly
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37
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9862
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I had Hep C treatment before that failed. Can I be treated again?
(Preview)
My treatment before did not cure me. I want to give it a new try. I want to fight this. Am I eligible to be treated again and start a new life?
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JoshuaG
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6
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5398
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If I get cured after my HEP C treatment, then will it ever come back again?
(Preview)
I am just curious and worried about my HEP C treatment. If I get cured will the virus show up again in my body or will it be gone forever?
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JoshuaG
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0
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3805
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Panel have approved my treatment..Epclusa...yippeeee
(Preview)
Finally.... I am happy to announce that NHS have approved my treatment ....Today the hep nurse said that she is arranging an appointment for me for about 2 weeks time for pre treatment tests and she confirmed it's going to be Epclusa ...I cant tell you the relief I am feeling..ive cried on and off all aft...
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Jaggles
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35
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8035
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High iron now...ready to flip out...help
(Preview)
my doctor has put me on ora morph for my joint pain and been checking my bloods each fortnight to makemsure my liver coping, she pointed out my levels of iron are really high and told me to research foods to eliminate. so....I had no idea it was connected to Hep c. my case was supposed to go to treatment pan...
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Jaggles
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9
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5797
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My lab tests from October 4th 2016 Tig?
(Preview)
hi Tig, my tests have lots of results but here are some you asked for months ago ...took me ages to get then brain fog went and lost them.....found now Alt 190 Ast 115 GGT 55 tot billirubin 6 albumin 42 globulin 35. Tot protein 76 Fibroscan 6.9 geno 3 diagnosed August 2016 1982 HBV believed t...
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Jaggles
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12
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5521
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My bones and joint pain unbearable I'm so fed up
(Preview)
is it normal to feel like this? I'm so fed up with the daily groaning of pain in my joints and bones now. Burning splints in some finger and toe bones, so bad this morning (it's now 6am) don't know how I'm gonna get through today. Lately it's been moving around ...it hurts everywhere like, my feet crack, my...
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Jaggles
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4
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4570
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True Meaning of a Cure
(Preview)
I found an interesting article and want to share it. It's one person's story on what the cure meant to him. True Meaning
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Tig
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5
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5616
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Disclosing
(Preview)
I have a specialist doctor visit scheduled in a few days and I realized that now I have to disclose to every single doctor I go to that I have HCV. This made me curious. Are there any legal ramifications if HCV is not disclosed? It's not even clear when is it appropriate to do so. For instance, while getting...
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EricChuckFar1
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9
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6621
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Try try again
(Preview)
So I had my return appt. the other day. This was because he suspected my insurance would deny my rx for Harvoni, and they did. However that hasn't stopped the pharmacy from calling me AGAIN to say they have my drugs but I can't have them. That was on Monday, my hepatologist is only there on Tuesdays. I don'...
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Iris Dragonfly
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19
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8097
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Living with Hepatitis C Study
(closed)
(Preview)
Are you suffering from Hepatitis C? Or have you completed the treatment for Hepatitis C and you're virus-free now? Take a short survey about your treatment experience and earn $20. Give us your email associated with PayPal and get paid quickly.Click on the following link to get started: ZOOMRX SURV...
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ToshithaK
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1
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4938
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July 28 - World Hepatitis Day
(Preview)
WorldHepatitisDay NoHep 2030
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Tig
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5
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5680
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Small red spots
(Preview)
Does anyone know if the little red spots that appear on the body, which they say are from the hep c virus, do you know if these stop appearing or do they go away. Or are they like a hep c tattoo? thanks, CH
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coolheat
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17
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8416
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What exactly is the reasoning concerning reduced salt intake for a decompensated cirrhotic
(Preview)
I know it is not advised to add table salt etc. to the food a person with liver damage eats. How exactly does salt effect the body with liver damage? Thanks, Mike
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wmlj1960
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31
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12112
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Had my 1st Hepatologist visit!
(Preview)
Wooo Hooo!, I saw the Actual dr. that may be able to dispense the winning drug! I really don't want to get too excited just yet as there is a few preliminary tests to be done. I still have to be "sick enough" to recieve treatment as per my insurance. That just seems wrong to me. Anyway, the ball is rolling, I s...
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Iris Dragonfly
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6
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5907
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Hep C Resources
(Preview)
Hello, everyone. My name is Christine and I work for HepC Alliance, a non-profit organization on a mission to stop the spread of Hep C. If you are needing advice or just someone to talk to, a great resource is help 4 hep. The website address is http://www.help4hep.org/ . Our organization's website is w...
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Christinewhite
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1
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5023
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Maybe it's happening?
(Preview)
Hi folks, Welp I offically have an appt. With a hepatologist (spell?) I had all but given up, my primary care person referred me to this place but I called and left messages 5 different times in about 3 or 4 different weeks at different times of the day ...always the answer machine. So I had complained t...
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Iris Dragonfly
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8
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6203
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HEP C 1, 2, 3
(Preview)
1. Diagnosis, 2. Treatment and 3. Support. Take a moment to bookmark this website. It's loaded with useful information on our unwelcome visitor and how treatment has improved along the way. It's provided by the American Liver Foundation. http://hepc.liverfoundation.org/
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Tig
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9
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6188
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Just Droped in, to see what condition my condition was in
(Preview)
The benifit to everyone that drops in makes a big difference in there lives. They may not relise it at that time they drop in, but konwledge on hcv is just as much a treatment drug as the treatment drugs themselves. So if your just droping in, take your time, have a good look around, we welcome you and you...
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robertsamx
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3
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5348
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3 False Negative Tests for Hep C
(Preview)
I was diagnosed to my initial disbelief back in early 2002 with Hep C. I was reckless in IV drug use with my husband who was infected and I was unaware. After 14 years, I've had very little problems with the virus progression but still did whatever I wanted in my life. I'm not anything but a social drinker s...
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Peaches71
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3
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5874
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How about these numbers!
(Preview)
Four weeks after harvoni stopped blood work ... AFP went from 11 (high) down to 4 (normal) Platelets went from 82 up to 96 Oh yea, and I should mention that HCV is still UND. One more VL test to go ... WOOT!!!!!!
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Gracie
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12
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7022
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Ten tips to help you stay calm
(Preview)
Some good information from one of the most ardent HCV advocates you will meet. Thanks to Lucinda Porter and Hepmag.com. https://www.hepmag.com/blog/hepatitis-c-and-wait -- Edited by Tig56 on Monday 25th of January 2016 02:55:40 AM
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Tig
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7
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7602
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