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Hep C Discussion Forum -> Knowledge/Info Section -> Updated :Stigma and Hepatitis C
Post Info TOPIC: Updated :Stigma and Hepatitis C
Mary Jane


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RE: Updated :Stigma and Hepatitis C
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Thanks Jill sun.gif you are all special people...

Stephanie

 



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
Mary Jane


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Steff,

Well now that IS  funny laughing.gif  laughing with you all and at myself. You see I am a blogger on a non medical  discusion site and I have been on- line chatter since the X files .. so date me and call me a dinasour.. As you can tell I am a social person... thanks again for the link and insider info..

Stephanie aka Mary Jane flowerpot.gif



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
Cinnamon Girl


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Yes, it`s those of us who do the most chatting who get there first, Mary Jane! wink  Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
greenqueen


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That's great smile

I'll let you into a secret - you become a "guru" after 500 posts biggrin

We were having a laugh about that in this thread

http://hepcfriends.activeboard.com/t50464321/not-a-problem-but-how-is-membership-level-determined/

Steff xx



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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.
Mary Jane


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Steff,

You are welcome, I have some other links to share, as well I wish to help and be a positive proactive member.

When I read your link I cringed, and shook my head.  Journalism has really taken a nose dive in the past 15 years... IMO ...I bet if their MUM or Dad or friend had HEP C  they would look at it thru different eyes.  Just a pity the stigma they have placed on this disease...

Hopefully one day I will earn the staus of guru..giggles  keep up the good work

Stephanie flowerpot.gif aka Mary Jane

 

 



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
greenqueen


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Hi Mary Jane and welcome smile

Thanks for the link - There has been quite a lot of talk recently about targeting the "baby boomer" generation for testing here in the UK too. HCV has reached epidemic proportions and we need action!

As Tim has also mentioned, this type of journalism is disgraceful and distorts the picture, when it could have been a good opportunity to promote awareness furious

Steff xx



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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.
Mary Jane


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Hello Greenqueen.... I am a newbie but I am informed..

I work for the CDC in Atl. GA in the US and I also work in the Division Of Viral Hepatitis..  how's that for ironic.. I do not have a degree but I've been around for a long time..

I would like to share a link recently published in the MMWR.. it is public information ..

 Link to MMWR release of article  http://www.cdc.gov/mmwr/

I have heard so many negative comments from the past as HCV" the poor man's disease" to whatever negative contentions it can be referred to... Education is the KEY..  and those types of articles never help, this is a REAL problem and people need encouragement and support..

peace and love



-- Edited by Mary Jane on Monday 27th of August 2012 10:20:27 PM



-- Edited by Mary Jane on Monday 27th of August 2012 10:34:25 PM

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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
hrsetrdr


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Wow Steff- many            for your replies to the mentially myopic comment junkies there!

 

I guess fear and ignorance will always elicit such comments, it's a shame when a print publication ignores it's duty to paint a complete picture of the story at-hand, rather than providing a narrow view that quite possibly is deliberately inflammatory.

 



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
greenqueen


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Not long after World Hepatitis Day, my local rag had an article - when you read this, you realise just how ignorant some people are!

Of course I stuck my 2 cents worth in and what I would have liked to have written wouldn't have been printed.

Hepatitis Scourge

So much for raising awareness!

Steff xx



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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.
greenqueen


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http://www.hcvadvocate.org/hepatitis/factsheets_pdf/Stigma_10.pdf

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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.
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