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Post Info TOPIC: Terrified


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Hi Syxx,

What wonderful news! sun.gif

All the best for the future smile

Love Steff x


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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.



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Great news Syxx!! smile Thanks for the update.
All the best.
hugs
Heather
xxx


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Finished TX 2005. Geno 3. Achieved SVR - Heather.

When You Are Up To Your Neck In It - Keep Your Chin Up!!

'Knowledge. Is knowing that a tomato is a fruit. Wisdom is not using it in a fruit salad'. My dad. X.
ty


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Syxx,  That is awesome news!  I am so happy for you, now you can go out and live life to the fullest!biggrin

To the rest of you, I can only second what everyone else has said.  I could not have made it this far in the tx journey without the help and friendship of everyone here. teamwork.gif James is right about how lonely it would be without you all.  Take care, tysmile



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Genotype 2 - 24 week Tx - Start 10-8-2010 - 4 week PCR test UND, 12 week PCR test UND, 24 week PCR UND,  SVR Oct. 11 



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Syxx-

Glad to hear it ! Have fun with your new friend JOY !


Take care,

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11


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Hello all,

Just spoke to the nurse at the clinic and my tests have all come back clear! I think I'll be relieved once it actually sinks in that I am ok . Thanks to all you lovely kind souls for the reasurance and support you have given me. You are an amazing group of people. Wishing you all much happiness for the future, Syxx 

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Hi Dee, thanks for that. smile   Don`t worry, I know what it`s like - you want to answer everyone and say hello to everyone but when there are a lot of new postings it`s difficult sometimes to keep up.  Well, you were on tx for a long time so I guess it will take a while but glad you`re starting to feel better.  Fingers crossed for you as regards those blood results, it will be fantastic if you`re still negative.  thumbsup.gif

I`m ok thanks, plodding along and getting the last few weeks done.  Got a tooth infection but started on anti-biotics today.  Then I`ll have the choice of a root canal filling or have the tooth out.  Nice!   Glad you like Molly - she`s my constant companion.  smile

Take care, love from Jill xxx

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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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Hi Jill, I should have gotten back to you sooner. You have made a few nice comments to me and I never got back to you. Sorry! I'm getting lazy.  Thanks, I am coming along nicely but slowly.
It feels so much better not being on tx. I think back and can't believe how bad it was at times, especially in the beginning. I just hope I stay negative now. I will find out in the beginning of March. I get the blood work on Feb 28th. I hope you are feeling well. It won't be long before you will be telling us about your post tx. By the way, I love your kitty. Take care and be well. Hugs Dee


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Type 1b with cirrhosis. Started treatment April 9, 2010 for 48 wks. Maintained negative PCR from week 11 during tx but now I am detectable again.
                                                                                                           



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Hi Dee,

Right back atcha'. You guys were are a God send to me. I could never have done it without you all. How lonely and depressing that would have been

Love ya,

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11


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Hi folks, what lovely words from Ty and Dee, and so true. 

Hi Dee,  hope you`re doing ok and feeling better off tx.  I love that text - I can read it without having to peer at the screen!  smile

Take care everyone, we are here for you Syxx.

love from Jill xxx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 

ty


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Hi syxx,  You are in my thoughts and prayers.  Trust me on this one, you can do nothing greater for your kids than hug them and love them, now more than ever.  Take care, tysmile

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Genotype 2 - 24 week Tx - Start 10-8-2010 - 4 week PCR test UND, 12 week PCR test UND, 24 week PCR UND,  SVR Oct. 11 



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Hi James, I hope you are doing well. I checked out that web site and this was the the first thing that caught my eye .

 "As I take my first steps with hepatitis C, I am not alone because of all those who will help me along my journey with their wisdom, encouragement and hope". 
I had to copy it to tell everyone that, that is how I feel about all of you who helped me through tx. You all gave me wisdom, encouragement and hope  to make it thru.

Love and hugs Dee

Sorry for the messed up text, can't seem to adjust it




-- Edited by DGiga on Monday 31st of January 2011 04:34:12 PM

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Type 1b with cirrhosis. Started treatment April 9, 2010 for 48 wks. Maintained negative PCR from week 11 during tx but now I am detectable again.
                                                                                                           



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Syxx,

Check this out;



http://www.hcvadvocate.org/hepatitis/factsheets_pdf/Newly%20Diagnosed_10.pdf

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11


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Hi again Syxx, as Lesley said you are not contagious - you cannot pass the virus on through normal daily contact with others.  I brought up my 2 kids while having the virus  ( I didn`t know I had it then), and neither of them caught it.  My husband was infected too.  If it turns out you do have the virus then luckily this treatment exists. I would imagine the reason your GP sent the bloods to another hosp is that only certain hospitals over here deal with the treatment of Hep C and the blood tests will be quite specialised.  I don`t go to my local hospital for any of this, but have to travel further.
Those symptoms you describe could all quite easily be ezplained by other things, Syxxx, so try not to stress yourself.  I only had night sweats for a while when I was going through the menopause some years ago.  I`m not aware that it`s a symptom associated with Hep C.  Also looking after 3 such young children can be very tiring in itself! So try not worry. 

You are not a danger to others Syxx, so don`t worry about that.  You`ll get through this (like we all do).  Hope that is some help and reassurance - just ask if there`s anything else you`d like to know, one of us will try to help.

Take care and good luck with those results.

love from Jill xxx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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Hi Syxx
You're really beating yourself up about all this & I feel for you.  If you have the virus thats all it is & you're certainly not contagious.
The first thing I did after diagnosis was to go to my gp & went on prozac a double dose. 
I can honestly say that it kept me quite calm throughout the treatment & I only had 1 attack of riba rage.
Maybe if you see your gp & explain your anxieties they will be able to help. Especially if you start tx. you will find it advantageous I'm sure.

I hope you feel better soon
Lesley xx


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Hi everyone and thanks for all the replies, I really appreciate it.

Dreading this coming week, don't know which day I will get my results. I phoned on Friday and the nurse I spoke to said they will be longer than usual because these blood have gone to Liverpool to be tested rather than the local hospital. I am over analyzing everything and wondering if that means I have got it or not.

I feel like I am carrying this really contagious disease and that I am a danger to everyone. I'm frightened every time I touch my children in case I infect them. I know that's highly unlikely but its a constant worry.

I'm also obsessing over every little ache and pain I have ever had. I was diagnosed with an over active thyroid about 4 years ago and have just read that's really common in people with Hep C, feel really tired all the time too so I'm basically convincing myself I have it before I even know. Have really bad night sweats too, is this something others have experienced?

I'm scared I'm going to die, I have three beautiful children, my youngest is only 1 and I just can't bare the thought of not being here to look after them. Making myself sick with worry! cry

Syxx






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Hi Syxx, welcome to the forum from me. It`s perfectly understandable that you`re scared and confused at this point. I knew how I`d caught the virus straight away ( from sharing needles years earlier) but it was still a shock for me too when I first heard the diagnosis and I wasn`t given much info at all.  And when you`re shocked you don`t know what questions you want to ask.

Try to keep as calm as you can and take it one step at a time till you have more info - as James said you could have already cleared the virus. 

Wishing you all the best, take care and keep in touch - we are all happy to help if we can.  smile

Love from Jill xx

__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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Hi James, I got your white board message. I couldn't send you one back cause your page does not exist. It was nice that you thought about me. So here I am. Hi, back at you. I'm feeling pretty good. It is a slow process but I'm on my way back to join the living nod.gif. How are you doing? I hope everything is as good as can be expected.  Hugs Dee

__________________

Type 1b with cirrhosis. Started treatment April 9, 2010 for 48 wks. Maintained negative PCR from week 11 during tx but now I am detectable again.
                                                                                                           



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Syxx,

There was just a woman a moth ago in the forum who tested positive for anti bodies ( as anyone who has been exposed will) and negative for viral load. Meaning she cleared the virus herself which occurs 20% of the time. I hope this is the case with you ! If not, it is curable especially with the new drugs coming out this summer. Treatment is doable, four of us just finished in here, with three more close behind. I know there's nothing special about me and I did it. Easier said than done but try to relax, we're here for you fwiw.

Good luck,

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11


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James, sorry my first post isn't very clear at all. My head is all over the place. The nurse said I had tested positive for the hep C anti bodies and that the doctor wanted some more bloods done. It was crap really, she was very blase and told me very little and I didn't ask any questions because I was in shock. She gave me some leaflets about Hep C and that was it.

Syxx  

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Hi Syxx

Welcome to the forum. You will find many friends here who are in a similar situation as yourself & want to help. So any questions just fire away.

I know at presesnt you are in total shock but you will come to terms with it & fight the demon virus as we all are.
You are only a few miles from me in Merseyside, so we are neighbours on the site.
Welcome again!
Lesley xx

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You got your health, You got your wealth!!



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Hi Syxx,

Yes, quite a shocker, to be sure.  I was diagnosed just last month, you could have knocked me over with a feather.     But, as mentioned- it's no longer relevent "how" you got infected(once positively diagnosed), it's now your challengeas to how your'e going to live your life normally, while you're getting rid of this disease.

Take a deep breath, be thankful for all your blessings and approach this situation(the disease) as a task that you shall prevail over, with success.

Take care.

Tim

__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 



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Hi Syxx,

Have you been diagnosed with Hep C ?

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
ty


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Hi Syxx,  Welcome to the forum!  Yes, I know how scary it can be when you first find out that you might have Hep C.  As hard as it is to do, you need to just be as kind as you can to yourself and just wait for the more specific news.  Treatment is not the end of the world, (and thank goodness there is a treatment!) and as you get more info you will feel less and less afraid.  Take care, tysmile

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Genotype 2 - 24 week Tx - Start 10-8-2010 - 4 week PCR test UND, 12 week PCR test UND, 24 week PCR UND,  SVR Oct. 11 

BJ


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Gidday syxx,

Welcome to the Forum, it'll be a good place for you at this difficult time, I hope we can help you, and that you enjoy your stay.

Just finding out is always a very difficult thing, particlarly if you come from a low risk background, but sadly the virus finds it's way into us all one way or another, and how it got there is not important, getting rid of it is now your prime concern.

Your reaction is completely normal, I think if you asked the members here how they felt when first told, it'd be stunned, shocked.......how is that possible......there must be some sort of mistake.........why me ?

Finding out takes some getting used to, yes, you are carrying an infectious disease, but first the doctors will take some more blood from you, which it sounds like they did, and they'll run a few mre tests to determine your genotype and viral load.  Once we have that information they/you can start to look at how to get rid of the virus. 

A scan of your liver might be necessary to see if there has been any damage to your liver by the virus, if you have been a drinker of alcohol in the past this may make that damage more pronounced, but bybthe sounds of your symptoms that's a little unlikely at this stage.

Just try and settle down a bit, it's not easy to accept I know, but you can beat this and many do, so lets get concentrating on that.  I'm sure other members will be along shortly to say gidday, you are amongst friends here.

Cheers,

Brendan.

__________________

Geno 1b 72wk tx (Sept '09- Feb '11) Tx sucks, Sx's suck, but no one quits on my watch.   Pre-tx VL - 7.6 Million - Wk 4 - 480,000 - Wk 12 - 19,000....Wks 24, 36, 48 and 72 PCRs were all - negative :-))))Achieved SVR August 2011 



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I am in shock. Was just having routine tests and got called back by GP. I can barely remember what she said beyond something about my liver function being "off" So more bloods today except this time the nurse stuck a 'risk of contamination' sticker on the vial after she had taken my blood. confuse
How could I have even got this?? Had a transfusion a couple of years ago? was bit by a child at work last year. I also recently found out that an ex had slept with prostitutes before meeting me, do these things put me in the high risk group?
Haven't been well for a while, night sweats, always a tired and fluey.
I'm so scared! please help me cry

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