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Hep C Discussion Forum -> General Discussion -> Finally got to see a new doc.
Post Info TOPIC: Finally got to see a new doc.
Greg


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RE: Finally got to see a new doc.
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Hope ,

Wishing you all the vey best.
In my Prayers,
Greg



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The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
James10500


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Glad to hear your liver is doing well. Good luck moving forward.

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
hope87


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From my understanding of what he said, was that when there is little inflammation the drugs don't work as well.

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*~*~*~*Hope Taylor*~*~*~*

---A Merry Heart Doeth Good Like A Medicine, But A Broken Spirit Drieth The Bones.
                                             (Proverbs 17:22)
BJ


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Gidday Hope,

I'm sorry I missed you when you've been back on recerntly.  Well a lot of water has passed under that proverbial bridgensince then, you got that appointment at the University and have been through the tests again.  Well the biopsy is usually one of the last tests they do and although there is no cirrohsis, that's certainly no reason not to treat.  Is it because you can't get the drugs that you aren't treating now, because if that's the case the fact that there is inflammation should be enough, and treating when your liver is in the best available condition means the best chance of success.

The fact that you are young in my books is all the more reason to treat.  I know you are a clean living person and won't be damaging your liver like some of us did back when we were younger, so you should be in good hands.  I'll hope and pray for you that things remain OK until you are next tested, and perhaps drugs become available for you to rid yourself of this virus before it does any real damage.  Gpd bless.

Cheers,

Brendan.



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Geno 1b 72wk tx (Sept '09- Feb '11) Tx sucks, Sx's suck, but no one quits on my watch.   Pre-tx VL - 7.6 Million - Wk 4 - 480,000 - Wk 12 - 19,000....Wks 24, 36, 48 and 72 PCRs were all - negative :-))))Achieved SVR August 2011 

hope87


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Doc finally called me, little inflammation, no cirhossis. Go back in Dec for routine blood work. No treatment as of right now! Thank you all for your thoughts and your prayers!!! They were all very much appreciated!!!

__________________
*~*~*~*Hope Taylor*~*~*~*

---A Merry Heart Doeth Good Like A Medicine, But A Broken Spirit Drieth The Bones.
                                             (Proverbs 17:22)
Hep Me


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Glad to hear your biopsy went well Hope. Learn to play that waiting game well because it can also come in handy down the road. Please keep us up on the results.
Take care,
Randy

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"Ah but I was so much older then, I'm younger than that now."  Bob Dylan
Minerva


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Hi Hope.  

Hope you are feeling a bit better now.

All the best with your results and let us know how you get on. smile

Hugs

Heather xxx



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Finished TX 2005. Geno 3. Achieved SVR - Heather.

When You Are Up To Your Neck In It - Keep Your Chin Up!!

'Knowledge. Is knowing that a tomato is a fruit. Wisdom is not using it in a fruit salad'. My dad. X.
James10500


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Glad it went well ! Hoping your results are good.

Good luck,

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
Greg


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Hey Hope,

Glad the procedure went ok that's great, fingers crossed for you that everything is ok.

In our thoughts and Prayers,
Greg and Cate



__________________

The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
hope87


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The biopsy went so smoothly, WAY better than I expected. I am experiencing a little pain (it was done about 11 hours ago) but I can handle that. Can't wait to find out the results. I felt the numbing shot and nothing after that :) Definitely had good doctors today. Thanks everyone for the thoughts and prayers! Now the waiting game begins....

__________________
*~*~*~*Hope Taylor*~*~*~*

---A Merry Heart Doeth Good Like A Medicine, But A Broken Spirit Drieth The Bones.
                                             (Proverbs 17:22)
Moocow


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Tell them to give you some decent medications before that biopsy, so you tolerate it comfortably!!!!



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hope87


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Thanks ya'll!

__________________
*~*~*~*Hope Taylor*~*~*~*

---A Merry Heart Doeth Good Like A Medicine, But A Broken Spirit Drieth The Bones.
                                             (Proverbs 17:22)
James10500


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Good luck with the biopsy !

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
Greg


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Hey Hope,

Wishing you all the best with the biopsy.

Cheers,

Greg



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The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
PJ


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Hi hope,

Hope your treatment gets underway soon and best of luck to you!!

pj

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Diagnosed in 2006. Probably infected in the late 70s or early 80s. Genotype 1B. Starting TX on 5/5/11 with the SOC and Teleprevir. 
hope87


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I am scheduled to go in for a biopsy in 3 weeks!

__________________
*~*~*~*Hope Taylor*~*~*~*

---A Merry Heart Doeth Good Like A Medicine, But A Broken Spirit Drieth The Bones.
                                             (Proverbs 17:22)
hope87


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Thanks for the info. I have already printed out the applications for the assistance programs, now just gotta wait for my doc to prescribe me the treatment and get him to fill out his part!!! :)

__________________
*~*~*~*Hope Taylor*~*~*~*

---A Merry Heart Doeth Good Like A Medicine, But A Broken Spirit Drieth The Bones.
                                             (Proverbs 17:22)
ty


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Hi Hope and welcome back,

     I do hope you can get on one of those studies, it is very expensive to do the treatment for Hep C without insurance. 

     I read in your profile that you have high iron as well.  There is some sort of link between HCV and excess iron, but I'm not clear on what it is.  When they were doing bloodwork before I started tx for my Hep C they found that I had Hemochromotosis, a genetic condition where my blood keeps too much iron.  They wanted me to fix the iron problem before I started treatment.

     I was having many of the same health problems as you are and when they took out the iron, many of them cleared up for me.  While I had to go to a blood doctor for the diagnosis, the treatment for taking out the iron is free at the local blood donation center.  It's just like what you went to for donating, but I use a short form and rather than donating my blood, they destroy it instead. 

     It's part of a national progam for keeping the blood supply safe so there is no cost for the phlibotomy itself. (and they give you free cookies and juice!)  I've always told people that having too much iron in my blood is the easiest health problem I've ever had to solve and when they take the half-liter of blood out periodically, I feel much better every time.

     There are various reasons for too much iron in the blood, but all are treated the same way.  (OK, there is also a medicine, but it's thousands of dollars and has numeous side effects.  I've never heard of anyone using it.)  They take blood out and when it remakes itself it dilutes the iron in it.  My blood at it's highest was 1550, although I've heard of people with numbers in the 4000-5000 range. 

     When you are treated for Hep C and you get your iron into the normal range, you may find that you are feeling your young healthy self again.  Good luck with those phone numbers that James gave and with your new doctor.  I hope this info helps.  You are in my thoughts, tysmile



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Genotype 2 - 24 week Tx - Start 10-8-2010 - 4 week PCR test UND, 12 week PCR test UND, 24 week PCR UND,  SVR Oct. 11 
Moocow


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Hi there, Hope- so good to see you again, but not necessarily under these circumstances.

Good you went to another doctor!!! Seems that last one was a do nothing idiot! I'm sure if you treat, you will clear and fortunately, because of your age- you WILL bounce back more rapidly than some of us old fogies!!!

Keep in touch and let us know how things are going for you!!!



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James10500


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Hope you may have these #'s but I'll post them anyway.


Pegassist (Roche Pegasys system): 1-877-734-2797

Commitment to Care (Schering- Plough PEG-Intron system): 1-800-521-7157

And Victrelis.com will be up next week.

Trials of course are cost free, and some pay you. I have a friend in a Gilead trial now it pays $100.00 a week.
Check clinicaltrials.gov


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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
hope87


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THanks ya'll.
I don't have any health insurance.... :( So I am trying to get the assistance and get the meds free.

__________________
*~*~*~*Hope Taylor*~*~*~*

---A Merry Heart Doeth Good Like A Medicine, But A Broken Spirit Drieth The Bones.
                                             (Proverbs 17:22)
James10500


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Glad you found a new doc. What's up with your health insurance ? I spoke to the folks at Merck the other day and Victrelis (old name Boceprevir ) started shipping Monday. www.Victrelis.com will be open to the public next week for any questions you may have.

Good luck,

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
Greg


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G'Day Hope,

Welcome back to the forum and with great news as well, that's wonderful that you have found a sympathetic doctor who will treat you and hopefully with the new drug combo, we have had a lot of new people on here of late who have started with the new trials and they all are so positive which is great to see.

You have a major advanatge on your side and that is your age, and your faith. There is a lot of support here on the forum so if you have any questions just ask, there is always someone here to answer them or point you in the right direction. The first few weeks are a bit rough but you'll be ok and you'll be finished in no time.  Good luck with the ultrasound, wishing you all the best on your journey to beating this virus.

Good luck,
Greg



-- Edited by Greg on Thursday 19th of May 2011 03:12:43 AM

__________________

The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
hope87


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Today was my first appointment at the University Medical Center. I am SO thankful. As I mentioned before (I know I haven't posted in a while) the doctor I had didn't want to do anything for me just because I was "too young". So I saw my new doctor today and had about 10 vials of blood taken so he could do his own tests since I haven't had any since 2009. Then I go back next Wednesday for my liver ultrasound and June 15th to discuss what all my results are and the possibility of treatment! Yay! And I may be put on the new drug they approved last Friday!!! Keep praying for me! I will need to check into havin the pharmaceutical company help supply it for me!!!!



__________________
*~*~*~*Hope Taylor*~*~*~*

---A Merry Heart Doeth Good Like A Medicine, But A Broken Spirit Drieth The Bones.
                                             (Proverbs 17:22)
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