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Hep C Discussion Forum -> Post Treatment -> Mixed feelings...
Post Info TOPIC: Mixed feelings...
Gnome gardener


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RE: Mixed feelings...
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Hi everyone, Thank you all very much for understanding what I am going through. It sounds silly but knowing that other people went through the same exact thing makes me feel much, much better...I just need some time to transition. I will explain to my friends that we will celebrate but just not right now. Again thank you all for your wise and very kind words, J.

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Genotype 1b. Diagnosed in 1991. Stage 2 biopsy. Started treatment end of August 2010. Interferon 180 and Riba 1200/day. VL of 4,000,000 before treatment.UND since week 4 PCR. Did 44 weeks. Still UND 7 weeks after end of treatment.
Mashar


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GG,

I never really thought about that tx security but now that I read your post I do totally relate because while on the meds that virus is beat but once you get off there is a whole new waiting game waiting for SVR.  I can not wait to get there yet feel hesitate as well.  You will do just fine take it one day at a time.

hugs and congrats,

Mary



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Geno 3a, started 24wk tx 2/24  und @ 8 wks ended up doing 32 wks but 6 mo pcr UNDETECTED :D

A positive attitude can go a long way!
ty


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Hi GG,

     Yes, you sound normal to me.  I had to learn how to be on tx.  How much energy I could use, when I could drive (or not), when I could handle being around people, etc.

     Now I'm learning how to be well.  I can tell that it gets easier each day, but I'm not quite back to the full me yet.  Don't worry (be happy!?), your life will start to make sense soon enough.  Treat yourself exactly like you do on tx, be extra kind to yourself and take it one day at a time.  Take care, tysmile



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Genotype 2 - 24 week Tx - Start 10-8-2010 - 4 week PCR test UND, 12 week PCR test UND, 24 week PCR UND,  SVR Oct. 11 
PJ


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Hi GG,

Glad you are on your last shot and I understand now how it will be. It's not like, poof, there you are, all as good as new....it will take some time. This is strong stuff that we are dealing with......going to take time to figure out what's normal again. Hang in there!

xoxo pj

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Diagnosed in 2006. Probably infected in the late 70s or early 80s. Genotype 1B. Starting TX on 5/5/11 with the SOC and Teleprevir. 
Cinnamon Girl


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Hi Gnome, I know exactly how you feel, and it`s perfectly normal.  I`m 3 mnths post tx now and feeling a lot better and back to `myself`, but it took a while.  While you`re on tx you`re totally focused on getting through it week by week, shot by shot, and realising you`re at the end can be quite disorienting. 

I think we all lose touch with our `normal` lives during tx, that`s inevitable, and I found I felt quite lost when I first finished, especially as I was still feeling so rough, irritable, and unsociable.

Peoples` expectations have a bearing on this too - a couple of my friends imagined I`d be out and about socialising as soon as tx finished too. Far from it! Of course your friends and family are happy for you, but please don`t feel you have to do anything beyond what you feel like in order to please anyone.  You have  been through some tough tx so just go at your own speed and give yourself plenty of time to recover.

Congrats on getting to the last shot, be proud and take care of yourself.

Love, Jill xxx 



-- Edited by Cinnamon Girl on Thursday 16th of June 2011 07:38:45 PM

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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
James10500


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Oh Gg,

Congrats.

Be well,

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
Gnome gardener


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Dear James, Greg and Steff, Thank you all very much for your kind words...yes I guess I was not expecting to feel this way and it is a surprise to me...a big part of me is very happy to be almost done but too tired to celebrate. There is definitely a huge difference between how friends and family react and how I feel, even my doctor yesterday was congratulating me and looked really excited for me when I was just trying not to scratch the rash around my eye!! I guess you guys are right...one day at a time... Steff, thanks for the excellent links, James, I will be thinking of you for that 6 month PCR, Greg, may you have a smooth ride, J.:)

__________________
Genotype 1b. Diagnosed in 1991. Stage 2 biopsy. Started treatment end of August 2010. Interferon 180 and Riba 1200/day. VL of 4,000,000 before treatment.UND since week 4 PCR. Did 44 weeks. Still UND 7 weeks after end of treatment.
greenqueen


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Hi Gnome,

Wise words form Greg and James - there's nothing wrong with you. You've just been through a harrowing physical and emotional experience and it takes time to recover.

You will find that family and friends are unlikely to grasp this and expect you to be bouncing around like a teenager with a big grin on your face the minute you finished your last shot. Your treatment team may tell you that you'll feel great within a month or so and send you on your way

Bethland posted a link a while back to a brilliant blog about the post treatment experience.

http://evaday.blogspot.com/

Here's another link with some good tips.

http://www.hcvadvocate.org/hepatitis/factsheets_pdf/After%20treat_10.pdf

Love Steff xx

 



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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.
Greg


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Hi Gnome,

I can't imagine how your feeling, I'm only on week 20 and I know that during that time I have felt safe and secure in my "Treatment Zone" for want of a better description. If for any reason I needed to venture completely out of that zone I felt scared.

I'm not talking about running down to the local shops or anything like that, but about two months ago I had to drive a fair distance to a big city and I got myself so worked up over it my knuckles were white from gripping the wheel and I broke out in a rash all over my body, all because I was stressed about doing something normal.

This is a big step for anyone to take and if you have completed 48 weeks of treatment you can do anything, just take your time same as before "one day at a time" and you will get your normal life back, a healthier life back and achive SVR and remember we are still here for you. There is nothing wrong with you at all, your human and your a Dragon Slayer.

As James has said the meds will be in your body for some time and you will recover.

Well Done,
Greg

 



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The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
James10500


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You still are on meds so you're still effected by them, be patient. I'm just about 5 months done and I feel pretty darn good most days, I still have a crash day every now and then. But I'm not complaining life is good again. If I achieve SVR it will be REALLY good. That six month test is my only stress, my fingers are still crossed been that way for so long I think they are going to stay like that !

Hang in there,

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
Gnome gardener


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With only one shot to go I should be relieved and happy right now but for some reason I feel confused and SCARED... The meds kept the virus under control and my AST and ALT in the normal range...in a way that felt very safe although it was a tough ride. Everyone is so excited for me, they want to celebrate and I just want to hide a little longer. What is wrong with me? J.

__________________
Genotype 1b. Diagnosed in 1991. Stage 2 biopsy. Started treatment end of August 2010. Interferon 180 and Riba 1200/day. VL of 4,000,000 before treatment.UND since week 4 PCR. Did 44 weeks. Still UND 7 weeks after end of treatment.
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