Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Post Info TOPIC: Dispelling HCV Myths


Senior Member

Status: Offline
Posts: 132
Date:
RE: Dispelling HCV Myths
Permalink  
 


What a great fact sheet to dispel myths. I do have to say that I was asymptomatic. I never felt sick though I usually have the flu once a year. I never had muscle pain, headaches, fatigue or any of the usual symptoms of HCV. I felt fine until I started tx. Then I was sick. But I'm glad I did the tx just saying that some of us are asymptomatic. The entire time I new I was positive (20 years), I never felt any symptoms contributed to HCV. I guess I'm very fortunate.

gigi



__________________

genotype 2 completed sovaldi and ribavirin on 6/4/14. SVR on 12/3/14

Tig


Admin

Status: Offline
Posts: 9268
Date:
Permalink  
 

It is a good document and I believe something that would greatly benefit every reader in one way or another. It's an excellent first article to present to a new patient or someone curious about their own personal risk in a relationship with an HCV + partner. If we were able to dispel the myriad myths, we could also make progress improving/removing the stigma that continues to follow this disease.

Tig



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 



Senior Member

Status: Offline
Posts: 140
Date:
Permalink  
 

Great leaflet! Thank you!

"Myth HCV is an asymptomatic disease" - aka 'silent' disease...  this one has stuck in my craw for a long time.  I've read  many stories from people who went to their DRs with complaints and symptoms for years only to be ignored, or give pain meds, antacids and stern lifestyle lectures.  Finally some odd blood test alerts the Doc and an HCV test is done. Then they still tell you your symptoms have nothing to do with HCV.

evileye

 



__________________


Senior Member

Status: Offline
Posts: 230
Date:
Permalink  
 

Thank you for the link to this recent document written in April 2012.

"Myth People with normal ALT levels have minimal disease progression ...

some people (about 20%) with normal ALT levels have moderate to severe HCV disease progression,

and, many experts believe that the only way to really tell if an HCV positive person has liver damage is by a liver biopsy rather than through the measurement of ALT levels."

We need more complete testing in Canada and everywhere. 

If the ALT levels are normal, they do not go any further with testing and this is wrong.

I could have been diagnosed years ago, but no, my ALT levels were normal until last year.  I know I've had it for 30+ years, unsymptomatic!

And, the treatment should be paid for everyone who is infected, not just when the ALT levels are out of range.

 

 



-- Edited by dustbear on Saturday 3rd of August 2013 12:49:17 AM

__________________

Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"



Senior Member

Status: Offline
Posts: 228
Date:
Permalink  
 

Great article. This should be a handout from Dr.'s to newly diagnosed patients

to help ease the fears we've all experienced.



__________________

58 yrs, cirrhotic, Genotype 1b 48 weeks Victrelis triple, SOT 7/13/12 victrelis started week 5. Starting VL 4,000,000  Wk 8 33 copies  Wk 24 UND, EOT UND 6 months post Tx DET. The battle goes on.



Senior Member

Status: Offline
Posts: 115
Date:
Permalink  
 

Excellent link - thanks for posting this.



__________________


Guru

Status: Offline
Posts: 2282
Date:
Permalink  
 

http://www.hcvadvocate.org/hepatitis/factsheets_pdf/Myths.pdf



__________________
Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.

Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.

Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.