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Hep C Discussion Forum -> Post Treatment -> Bugger!!!- Beaten by my Dragon.
Post Info TOPIC: Bugger!!!- Beaten by my Dragon.
Deidre


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Bugger!!!- Beaten by my Dragon.
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I admit, I read this and didn't respond righ taway because I was and am at a loss for words.

So all I can say is two words: NEW TREATMENT!

 

Much love Greg to you and your's. the new treatment will work, I have faith.



-- Edited by Deidre on Monday 5th of September 2011 05:33:41 AM

__________________
 2nd time on tx Started 3 combo ( Incivek) 8/6/11 VL 2,940,000 Biopsy 2/2 w/bridging and some necrosis/Fibrosis/Inflammation.  4th week det, but in und range, 6th ,9th  13th, 19th, 23 ( under 5)-UNDETECTABLE Going for 30 weeks
Greg


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Hi Dragonfly and Dee,

Thank you so much for your ongoing support it's just wonderful, can feel the hugs from here.

Love to you both.
Greg xx



__________________

The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
DGiga


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Hi Greg, I missed all of this. I just popped on now and was reading your post and everyone's comments. I'm sorry I am so  late but I want to tell you how sorry I am to hear this bad news. I must be really brain fogged, how did this get by me. I know what you are going through, first hand. It's a real bummer! I am thinking about the new meds, mind you, just thinking. I was so sure that it just wasn't for me but I have been giving it a slight consideration. You can do it and this time you will win the war!

Everyone's reply posts were on the money. You are a true trooper and always ready to extend a helping hand to everyone. In return I can speak for everyone when I say, we will be here for you, when you need a helping hand or just to talk. In the meantime enjoy the no meds feeling and know that this is just a pit stop before your destination. 

Lots of hugs, Dee



__________________

Type 1b with cirrhosis. Started treatment April 9, 2010 for 48 wks. Maintained negative PCR from week 11 during tx but now I am detectable again.
                                                                                                           
dragonfly


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Hi Greg,

I feel for you, you will find yourself to be a stronger peron from all of this.  wishing you well.

Dragonflyxxx



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renata


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Hey Greg,

You are as always so generous.

So what's doing with you?    Maybe you've posted updates that I've missed, but I'm wondering what your body parts are saying to you these days, and what you say back to them.   How are the sx? 

Are you thinking of heading back to school?   Pros and cons?

And are you with the same doctor?    

Best to you, will let you know when I know more about my own battle,

renata



-- Edited by renata on Tuesday 23rd of August 2011 06:40:35 AM

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Greg


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Hi renata,

I must admit I am humbled by your most gracious post, and welcome to the forum and I'd like to extend my best wishes to you on your journey towards beating this dragon. Looking forward to your posts.

All the very best,
Greg



__________________

The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
renata


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Hi Greg,

I'm a newbie and you don't know me, but I feel as if I know you well from your posts (and from that bring-you-to-your-knees Avatar Photo).   Your posts were, out of everything I saw on this forum, what convinced me to join.   You got some Big Heart and Strong Spirit.   I hope along this journey to get me some of the same.    And I look forward to your updates on what you have in mind for that Dragon of ours.

Best to you,

Renata



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Greg


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Hi Jan,

Thanks for your kind words and support it is very much appreciated, I hope your doing very well haven't heard from you in a while, very nice to hear from you.

Hugs,
Greg xx



__________________

The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
jan


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Hi Greg,

 

You've been an inspiration to people here.  You'll come back all guns blazing and be successful next time.  Until then take it easy and prepare well.

 

Love Jan x



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Captain Over


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Greg,

I just saw this . . . . I am sorry to hear this, but heartened by the fact that you will have better options coming down the pipe. Like so many have said, I've appreciated your support and input, and I'm hopeful this will turn out to be a "bump in the road".

Regards,
David

__________________

Genome 1A, diagnosed in 2010, probably from blood transfusion in 1985. VL 1.5-7.0  Biopsy 2/2    Began clinical trial for Telaprevir 5/2011. Week 4 - UND and liver enzymes in  normal range. Week 12 UND.  Hope to finish tx 10-26-11
Greg


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Hi everyone,

Thank you for your wonderful words, I must apologise if my first post sounded cold and detatched, it was literally minutes after I heard the news that I posted. I'm feeling great to be honest as I know where I stand now and am announcing a RE-MATCH as soon as the new therapy hits our shores.

As everyone has said my liver is much better off now and it is, so really I'm healthier now and intend to stay that way.

I will be taking it easy for a while doing the odd jobs around the house that have been neglected and I have withdrawn from uni this semester as I was getting way too stressed but managed to get one assigement in and scored 90% so that's very encouraging.

I'll still be lurking about most likely in the SeedyBar next to the Jukebox and will be still chatting with you all my dear friends.

I love you all,
Greg



__________________

The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
Cinnamon Girl


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Oh no Greg, so very sorry to hear this, it`s not what we were all hoping for.  What can I say...only repeat what the others have said, you have always been such a warm and generous person on the forum, and I hope that if you feel up to it you will keep in touch...we are all here for you and for Cate any time.  

I could cry for you, but I know that in a lot of ways it must be a relief to stop the meds at this point, and at least you will have given the dragon a damned good thrashing.

Take it easy for a while Greg, let yourself recover, and then when you`re ready go in for the kill with the new meds.  The dragon might have won the battle but it hasn`t won the war. 

My thoughts are with you, love and hugs, Jill xxx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
tobytucker


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Greg that does suck but you have helped your liver already. The new drugs hopefully will knock this darn dragon's socks off. Get some r & r and come back into the boxing ring!!!!!

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Iris Dragonfly


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Oh Greg I' so sorry,  after reading about Kristin, then you, I'm crying for my friends  in the cyber world. I'm really very very sad, and hope that your spirits will remain high. You look like you have a very positive attitude and that my friend, is a great virtue. Please feel free to PM me any time. I'm there for you. Blessings, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
greenqueen


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So sorry to hear this, Greg.

I hope you're taking it easy after tx and you have a fast recovery.

You know that the new drugs are proving very successful if you decide to give them a go, but right now, enjoy that feeling of no meds.

Lots of love to to you and Cate

Love Steff xx



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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.
Lizard


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Greg, that sucks! but with all the new txs in the pipeline, I know there's something out there for you. I'm still feeling good after my 3rd shot yesterday am, so I do think I may be getting INF Lambda in my trial, don't know which PI though. But there is hope for a cure with fewer sx.  This inf Lambda looks pretty good.  My worst ongoing sx is a 4" itchy spot at the injection site - I can live with that...



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Genotype 1b. Diagnosed 1991. Started treatment July 12, 2011, in clinical trials. Viral load greater than 1.5 mill. Don't want to be sick...
PJ


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Greg, I'm so sorry to hear this.

Enjoy not being on tx for now, and know that one of the new treatments will killl that dragon for sure if you should decide to try again.

Hugs, PJ

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Diagnosed in 2006. Probably infected in the late 70s or early 80s. Genotype 1B. Starting TX on 5/5/11 with the SOC and Teleprevir. 
Minerva


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Hiya Greg.  Sorry to hear this news too.  You are most definitely a positive force here and i hope you know we are still here for you.

I hope that the new tx's will work better for you and i hope that you have a swift recovery from the tx.  Don't push yourself too soon and take it easy.  

Hugs

Heather xxx



__________________

Finished TX 2005. Geno 3. Achieved SVR - Heather.

When You Are Up To Your Neck In It - Keep Your Chin Up!!

'Knowledge. Is knowing that a tomato is a fruit. Wisdom is not using it in a fruit salad'. My dad. X.
ty


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Greg, I am so sad to hear your news.  But, as Kistin said those new drugs should do the job for you when you decide to treat again and you've given your liver a boost just by being on the two. 

     I agree with the others that you have been a very positive force on the forum since you came on and you and Cate have  cheered me many times when I was down.  Don't give up the good fight, we are going to beat this thing.  Take care buddy, ty



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Genotype 2 - 24 week Tx - Start 10-8-2010 - 4 week PCR test UND, 12 week PCR test UND, 24 week PCR UND,  SVR Oct. 11 
Kirstin


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Greg, what can I say my friend?.... Out of everyone I was certainly pulling for you. I am so very very sad to hear your news. You have & will always continue to be an inspiration to me. I am so sorry Greg.. But you know, the inhibbies are still to get here.. Another crack at it then huh?. I send you my love & best wishes xcxx



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Genotype 3a Started tx 11 May 2011 for 24 weeks. With scarring. VL before tx= 4 million.. UND@4 weeks. UND@12 
BeccaJune


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Greg,

Thanks for letting us know.  I feel so bad for you...  I'm sure you will regroup and consider your options, but for now you have done all you could.  Just have faith.

You have been such a voice of reason, and provided so much encouragement to others here. 

Love to your beautiful self and your sweet Cate.

Becca



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Diagnosed Dec. 2008. Genotype 1b, enlarged liver.  Started triple tx with Incivek on August 12, 2011.
Greg


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Hi Everyone,

Just had a call from my GP and was told that I'm still detected. Rang nurse Roz and spoke with her and told her, she was not happy that my GP told me, but it was my request that he did, anyway I can stop taking my meds as of now, which is great. biggrin

Cate is going away for a week so will have the Dance around the fire when she gets back. I'm disappointed yes but it has been a life changing experience in a very positive way.

I have so many people to thank for their love and support during the last 26 weeks and I will message them over the next few days. To all the new shooters don't let this dragon win.

Slay the Dragon!
Greg

 



__________________

The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
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