Hep C Discussion Forum

Greg, I LOVE your plan. Build urself back up and go knock hep c outta the ring! You're the can-do kid. Thanks for your comments. ditto back to ya. Resiliance? You got it! Off to work. A day of meetings. Maybe I can sneak a snooze.

Kirstin n Jill, you're like Old Faithful at Yellowstone. Your positive input is reliable and consistent. Have a Strong Day fellow dragon slayers! xo Karen

Hi Greg, you always have such a great attitude, you are a real inspiration to everyone here.    I like the idea of a `therapy washout`, that is just what you need right now.

This a time of respite for you, to rest, relax, and get your strength back.  As Kirstin said, the time will go by quicker than you think, and when the time is right you`ll get back in the ring and beat the living daylights out of the beast, once and for all.

Hi Kirstin, yes, we really are the lucky ones, I have so much respect for everyone who goes though 48 wks and longer, I felt as though I just about crawled to the finishing line after `only` 24!   You`ll be fine I`m sure, you`re cracking through it, even though you`re not exactly having an easy ride.

All the best to you all, love Jill xxx

Hi Everyone,

I saw my specialist this morning and was told that I could expect to begin triple tx in early 2013 which isn't far from what your doctor said Kirstin. Again this time frame is all due to the government approving funding etc.

Apparently there is a trial open at the moment here in Oz but only for tx naive patients and this would be a placebo base study group as well. (sounds like the one you may have been offered Kirstin, not sure) So all in all it's happening here but not as fast as one would like. lol

So my plan is to relax for the next 4 weeks. As my GP put it "undedrgo a therapy washout" then back into the day to day, but with a much clearer outlook and an apperaciation of simply enjoying a single second.
Have another blood test in 6 months and see how things are make sure all the nasty markers are in check and go from there.

Kirstin as Jill said you were UND at week 4, just brilliant! your going to be just fine and you over halfway you'll be finished sooner that you realize.

Karen,
I really think just your attitude is going to heal you by itself, it's a joy to read your posts.

Looking forward to Cate coming home tomorrow and then the "Fire Dance" can't wait to burn those boxes.

Greg

Good post Kirstin. I'm not always fully awake w this fever. I know other countries have great benefits. I'm thankful u are the recipient of that! That punch was my attempt at humor. I've been on a US forum in the last couple of weeks n see so many starting the triple tx here. I truly deep in my heart wish we could all have an equal opportunity at whatever we need to get cleared. That said: the offer still stands and my door is open. Lol. Really. We could all lay around n eat curds n whey and scratch n play darts. :P Karen

Hay guys. Yeah. In the US, I think they're offering inhibbies to all geno types. It's got a higher success rate for other types than the standard tx, but it is THE most effective tx for 1a. What's w/ em being all stingy w/ you? Get over here and get some; you can use my address. There's a few spiders, but hay. They'd prolly die if they bit one of us w/ all the drugs in our system. haha. Karen

Hi kirstin, I remember asking the same thing at one of my hopital visits.  Basically my nurse said the new drugs were developed to target geno 1 because the standard treatment (SOC) is already so successful with the other genos.  She told me if I hadn`t reached SVR at 6 mnths I would have to wait another 6 mnths and do it again, same tx.   Although of course I live in the UK so the new inhibbies could take longer to get here than over there in Oz.  Don`t know about that.

You`re 3a, like me, and I haven`t heard of anyone on this forum with that geno who hasn`t had a successful outcome, even though I know that statistically there is a 10 - 20 % failure rate. I think when you`ve gone UND at 4wks you don`t have much to worry about.  That`s been my viewpoint all the way through.  I think it`s enough to have to get through tx without having extra stress.   Tx is a hard battle, even for 24 wks, but I definitely would do it all again if necessary.

All the best to you, love Jill xxx

-- Edited by Cinnamon Girl on Monday 1st of August 2011 07:51:57 PM

Oh absolutely Brendan! I consider myself very lucky to only have to do 24 weeks, truly, I don't know how you guys do it. I have so much admiration for you all.

The reason I asked about the new drugs was because of Greg, I just wanted to know when they would be here & available for him to give it another shot when he was ready to do so

I totally agree with & understand that those who need it should get it first, without a doubt. I am not worried about needing them for myself. I have complete faith in my clearing it just how I am right now, with the help of the 2 drugs.

Brendan, I dont know if you remember, but when I first started at the forum I spoke about my Dr & how he gave me the choice of starting on the trial, which started in January or starting in Feb on just Inter/riba?. I felt pressured by him, he kept putting off starting me on Tx because he really wanted me to join the study. In fact, he kept pressuring me, putting off tx until May after he had told me Jan-Feb . So you can see how confused I am now, after the Dr today told me that people with my genotype can't have the new drugs, that they don't work, will never work & won't ever be used on us.. so not to even ask the question. So what happens if others who don't have 1a don't clear it? What other drugs are available for them?

 

Not sure why your doctors have conflicting information, but it was always my understanding that the drugs are for geno 1s only and that they don't really help with the other genotypes.