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Cinnamon Girl


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Hello! and some Post treatment questions
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Yes David, I agree with James, you`ll soon lose that irritable-with-the-world feeling and be back to your usual gracious self, riba rage does go!  I had to do a bit of apologising, and re-cement some relationships once I`d started recovering, you`ll be fine I`m sure!

Take care, and give yourself some time.  smile

All the best, Jill xx



-- Edited by Cinnamon Girl on Friday 28th of October 2011 09:39:30 AM

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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
James10500


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Dave your head will come back in no time.  It seems a lot easier for me to not worry about the minutuia in life post tx.  I hope this is the case with you as well.



-- Edited by James10500 on Friday 28th of October 2011 03:43:10 AM

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
Captain Over


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Hi, James-

Thank you very much for the well wishes! I hope you continue to improve until you feel great every day . . . . Living in that beautiful ski country, well, I'd probably wake up refreshed, once I got about a pot of coffee down!

I know everyone is different . . . I feel like I'll probably end up feeling good physically, but I'm worried about about getting my brain back and not being an agitated jerk to my wife, kids, and 90% of the town. I think I embarassed myself this morning at a four-way stop sign, got so agitated at some fool who wouldn't go when his turn came, that the whole intersection was staring at me like I'd lost my mind. . . . and I probably had!


Greg! Good to see you on here, thanks for your message and words of encouragement. The same to you, many times over. I hope that if you decide to treat again, that the tx will be gentler and more effective than it is now. I sure hope to read about it!

Best Regards,

David



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Genome 1A, diagnosed in 2010, probably from blood transfusion in 1985. VL 1.5-7.0  Biopsy 2/2    Began clinical trial for Telaprevir 5/2011. Week 4 - UND and liver enzymes in  normal range. Week 12 UND.  Hope to finish tx 10-26-11
James10500


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Good points Dave, and hoping you are back to normal ASAP !I've had some GREAT days post tx, just felt under the weather the past few weeks. But now I can blame everything on tx.....lol. Hell id hit my thumb with a hammer and blame it on tx. Great job, and I'm looking forward to you SVR thread!

James

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
Greg


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Hi David,

CONGRATULATIONS mate well done

So very happy for you David all the best for your future and onwards to SVR. You have fought the battle with quite courage and dignity.

Bless you,

Greg and Cate.



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The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
Captain Over


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Hi, James:

Thanks for your message.

I read over that info, thanks for the link.

Unfortunately, they don't differentiate between people that were on 24 week tx versus 48 wk. They also don't indicate whether the people were taking pegalated interferon, or the older-style tx, etc. Pegintron was approved for Hep C in the USA in 2001, but it looks like this survey was done in 2006, and in the UK or somewhere else that uses similar spelling.

Hard to tell how much of it will be relevant to me; I guess I'll know in the weeks and months ahead. The half-life of Ribavirin is 120-170 hours, depending on the person. That in itself tells you a lot about the differences in people and how they excrete the medicine.

FWIW, another doctor told me today that it would be 5 weeks before I could be allowed to return to my job; that's the time they predict that 90% of the Ribavirin is gone from the system of most metabolizers.

Regards,

David

 

PS, who the hell ever feels "refreshed" in the morning?   bleh

 



-- Edited by Captain Over on Wednesday 26th of October 2011 09:45:14 PM



-- Edited by Captain Over on Wednesday 26th of October 2011 09:48:28 PM



-- Edited by Captain Over on Wednesday 26th of October 2011 09:49:57 PM

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Genome 1A, diagnosed in 2010, probably from blood transfusion in 1985. VL 1.5-7.0  Biopsy 2/2    Began clinical trial for Telaprevir 5/2011. Week 4 - UND and liver enzymes in  normal range. Week 12 UND.  Hope to finish tx 10-26-11
Cinnamon Girl


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Many congrats to you David, so pleased for you!  smile  smile I found it took me a while for it to sink in once I`d finished - kept feeling as though I`d forgotten to take my pills. confuse

Wishing you all the best of luck with your recovery and your EOT results.

Love from Jill xxx

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
James10500


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Hmmm 38% of the 500 people that did the HCV trust survey would disagree with your Doc. I'm post tx nine months and would also disagree with him. I think not feeling refreshed in the morning is the worst part of it, that and the joint pain. Good luck to you Capt

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
Captain Over


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Well, I had my 24 Week visit today, so here I am!
Geez, hard to believe I'm done, but so far, it sure looks like it. Tonight would usually be my shot night.

I guess I'm not officially done until my labs com back, and then the 6 month check, but I did the triple therapy (Telaprevir) and the doc said that I have a 94% chance of SVR, based on being UND at week 4 and 8. He also said that if you are UND at week 24, then it's a 98% chance of SVR.


My HepC doc is a clinical researcher, has been treating Hep C patients for 20 years. He said that most of his patients seem to feel about 50% better after 30 days, with 90% of the side effects gone at 90 days, and the remaining 10% of sides clear more gradually, but generally do resolve within 6 months.

I'm looking forward to getting back to normal. I can't believe I'm done. It semed like such a long path 6 months ago. Thanks to all of you for sharing our experiences, and helping with mine.

Regards,

David

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Genome 1A, diagnosed in 2010, probably from blood transfusion in 1985. VL 1.5-7.0  Biopsy 2/2    Began clinical trial for Telaprevir 5/2011. Week 4 - UND and liver enzymes in  normal range. Week 12 UND.  Hope to finish tx 10-26-11
James10500


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http://www.hepctrust.org.uk/Resources/HepC%20New/Hep%20C%20Resources/Reports/Post%20Treatment%20Survey%20Report%202010.pdf

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Diagnosed 4/13/10; Started Tx 8/13/10; SVR 7/27/11
Cinnamon Girl


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Hello and congrats from me too! smile  Your experience of tx sounds pretty familiar.  I finished tx almost 8 mnths ago now, and I also found that it took me a few months to really say that I`d got over the sx of tx.  It does vary a lot though and some people start to feel better quite quickly.  I do remember though that the first improvement was that my head felt clearer, and I felt that within a week or so after the end of tx.

It`s best to allow yourself some time to recover - you`ve been taking some heavy duty meds and they do take a toll on our bodies.  All the best of luck with your studies!

Love from Jill xxx

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Minerva


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No problem.  That's what the forum is here for. smile  Hopefully you will feel more motivated as you feel some of the sides going.  

Best wishes.

Hxxx



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Finished TX 2005. Geno 3. Achieved SVR - Heather.

When You Are Up To Your Neck In It - Keep Your Chin Up!!

'Knowledge. Is knowing that a tomato is a fruit. Wisdom is not using it in a fruit salad'. My dad. X.
TDMartian


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Hi Heather, I'm a college student and I didn't want to take any time off but boy do I wish I did sometimes. thank you for your words of support, I really hope that my head clears up soon at least, it's so hard to study lately.


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Minerva


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Hi there TDM and congrats on finishing tx!!  Post-tx recovery seems to vary between individuals but you should start to notice some improvements within the first couple of weeks.  For me personally, it took a few months for many of the changes but it is reassuring when you suddenly realise that you no longer have 'x' side, or symptom.  

I think it is important not to push yourself too much post-tx.  We are often expected to feel better as soon as we finish and it just does not work like that.  I hope you have a speedy recovery and wish you all the best with your results.  

Hugs

Heather xxx 



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Finished TX 2005. Geno 3. Achieved SVR - Heather.

When You Are Up To Your Neck In It - Keep Your Chin Up!!

'Knowledge. Is knowing that a tomato is a fruit. Wisdom is not using it in a fruit salad'. My dad. X.
TDMartian


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Hello Everyone,

So I'm a few days out from my last dose of medication, been little over a week since the last shot. I was treated for type 3 for 6 months with Interferon and Ribavirin, I feel like I handled the treatment very well physically, I went from a viral count of 10mil down to 43 after the first month and was undetectable for the rest of the 6 months of treatment. Physically I was tired a lot, the first injection gave me flu symptoms but was alright the rest of the times, I noticed that I was irritable and depressed a lot of the time and spent most of the 6 months relaxing, I tried to plan the Tx for the summer while out of school, it wasn't until school started and I had all the stress that comes with it to deal with when I realized how much the treatment affected me, I was and still am unable to focus on much of my work having to do just a few assignments in a day makes me extremely irritated the depression seems worse and I just want to feel normal again and get back to doing well in my studies. How long have people here generally taken before they started functioning more normal? Does it take a few weeks or months?



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