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Hep C Discussion Forum -> On Treatment -> 1a. start peg/copeg tomorrow. q's about alcohol
Post Info TOPIC: 1a. start peg/copeg tomorrow. q's about alcohol
cola


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RE: 1a. start peg/copeg tomorrow. q's about alcohol
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recently diagnosed. even a very small amt of alcohol wipes me out! [i used to be able to drink alot at times.] if it doesn't have this effect on you, still it is greatly affecting you most likely. even a small amt. you just aren't aware of it as acutely as some. maybe because of the mix of symptoms and all the tiredness in general. but it is making you so much more tired yet whether you know it or not. and who knows what else? 

hoping this will strengthen and encourage you to stay away from it, even tho it can be hard. [i know.] you can do it.



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news


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Kind of reminds me of one of my co-workers. He's a programmer.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
K2


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Isicat, it's an emu, he can run the pants off a kangaroo.

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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
Kellyw


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Kiwi, yeah that is how I found out they were checking my urine, I happen to mention the mouthwash was burning my mouth, just an interesting side. but then she mentioned I shouldnt use it as it shows up in the urine or it can



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Kelly 2b dx 8/11. Tx begun 12/30/11. Apparently had it for decades.
Isiscat2011


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K2 wrote:

"No ****" I better change it thenno

 So funny!!  You changed it.

You changed it to a .......its a bird.....no, wait, its a.....what is that funny looking thing, anyway?



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
kiwi


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to be honest ive had a couple of beers now and then...  but it kicks my butt..

 



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
Kellyw


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Yeah I don't know about anyone else. But gi girls check me for alcohol in my urine once a month and I haven't had a drink in years. Not that they should believe me. They even suggested mouthwash with alcohol might show up in my urine.

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Kelly 2b dx 8/11. Tx begun 12/30/11. Apparently had it for decades.
Judy S


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I'm happy to report that the last thing in the world I desire while on TX is a drink.  I think that's true for most people, no?  I've also read posts from people who have completed TX a year or more ago, and they say the desire to drink has left them; it's just not appealing anymore. 



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
jrc209


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kandicemichelle wrote:

I start treatment tomorrow... 12 months long... do i really have to stop drinking that whole time? what about occasional drinking? i became hep-c positive because i used a syringe after an infected person... because i couldnt wait til i got home for a new one. i have so much regret built up... for myself and all the people i infected, too. im on effexor 150mg and welbutrin 300mg and all it does is make me tired but i cant sleep, in a daze where i think.. but im not thinking of anything... and im so worried aboutthe depression side effect of treatment.. i was on compazine but my dr took me off of it to start treatment.. and wont prescribe benzos.. maybe im just overly anxious because tomorrow is a big day for me. i have a 17 month old son that i wont to watch grow old.. dont mind me.. last minute drinking before giving it up has me a little emotional..... nice to meet you all. :)

 Dr will not treat anyone who drinks, your wasting your time if you drink while on tx



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Geno 1 A Started Tx 8-3-11, Viral Load  21.2 Million,  4 Week Lead of Soc ,9-1-11 <43 On Soc alone started victrelis 9-3 ,8 week pcr vL und.Week 12 Vl Und, Did Week 24 PCR Results UND @ Week 24!!! 1-11-12,End Of Tx 2-15-2012 !!
Sed3


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I'd change the antidepressants.   I've been on celexa and wellbutrin for 10 years, and it took 6 months to find a combination I was comfortable with.  Some had unacceptable side effects.

Wellbutrin is  usually well accepted, from what I understand, so maybe the effexor is the problem.   Maybe wellbutrin alone?

My doctor is the top addiction/depression psychiatrist at Columbia University, runs studies, published, blah blah blah.  He says its a crap shoot.



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Type 1B - Unknown for 30 years, diagnosed September 2011, started treatment February 2012

8 weeks Incivik - stopped early due to rash.

Continuing Pegasys and Ribavirin until January 2013 - 48 weeks

Undetectable from week 4 --> present
Isiscat2011


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K2 wrote:

"No ****" I better change it thenno

 LOL  Don't worry.  It's a cute little gnome poo.



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
K2


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"No ****" I better change it thenno



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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
Isiscat2011


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K2 wrote:

Bahahahahahaha, ur funnybiggrin

 

So are you, and I've been meaning to tell you something.  Every time I look at your chocolate photo I am reminded of poo.  Yes, a gnome shaped poo with a big bite out of its head.  Bahahaha



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
K2


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Bahahahahahaha, ur funnybiggrin

 



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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
Isiscat2011


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K2 wrote:

Don't stess isiscat, I don't wish to drink as a hobby. I'm talking a toast at a wedding or the OCASIONAL red with a special dinner. Hobbies already:-Cricket, cooking, guitar,reading, bush walking, gardening, bike riding. It's all good dude!

 Okay, I feel better already. smile



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Sailboatbend


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Celebrated 11 years this week, no drugs no drink



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K2


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Don't stess isiscat, I don't wish to drink as a hobby. I'm talking a toast at a wedding or the OCASIONAL red with a special dinner. Hobbies already:-Cricket, cooking, guitar,reading, bush walking, gardening, bike riding. It's all good dude!



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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
Isiscat2011


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K2 wrote:

If we clear this thing and obtain SVR can we have a drink then??

Dude!  Give your liver a break.  

The answer is you can but if you already have liver damage it will only continue to worsen if you continue to drink. 

Time for another hobby, perhaps?  Needlepoint, cricket, stamp collecting?biggrin



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Steve-o


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294288_2450301347811_1560326850_32629333_1571314873_n.jpg It is your life, no one can live it for you.

I have not touched a drop since diagnosis with Type 3A.

Or during 12 months of Treatment, and the following months while I await SVR.

I have been told, in no uncertain terms never to touch alcohol ever again.

The HCV, not drink related, left me with !00% Fibrosis, Chronic Cirrohsis, also Oesteopenia, and I have 3 columns of Oesaphageal Varices, I also have treatment for Calcium & Vit D deficency and my teeth are falling apart.

Drink would not only magnify the conditions but also slow or arrest the Repair process.

If you can't live without drinking, that will be a problem.

But you have to be alive to drink at all.

My advice? And I am a Biker which means an engrained drinking culture, is don't do it again, believe me you can do without, takes a bit of time but the older you get, the older you wanna get!

At the end of the day it will be your call, this is just advice, that's all.

But speak to your healthcare providers and seek their opinion, you will find the general consensus is to stay sober.

I have been asessed for possible future Liver Transplant and meet the criteria, but you are tested every month for signs of Alcohol and Tobacco, if detected positive you are off the list, no second chances.

Take Care my Friend, I wish you well.

Steve.



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Steve
K2


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If we clear this thing and obtain SVR can we have a drink then??

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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
Hep Me


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Hi again Kandice, You had one last hooray with the drinking, hey? It's okay.  Just take care of yourself for the rest of the night and if you can, start drinking lots of water even now. The urge to drink will probably not be as strong once you start treatment but yes, you should not drink while on tx. I have to go for now, feel free to send me a PM if you have trouble with drink cravings. I will try to help.
Randy



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"Ah but I was so much older then, I'm younger than that now."  Bob Dylan
saxman


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My best friend would not stop the drugs and alcohol, It had to be the worest way to dye so slow, He drowned in his own fluids. He was 46 it's been ten years, I still miss him. Its not worth it! If you have Hep c or have Hep c it's not worth it to have a drink.



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geno tye 1 alpa a non resonsive, started 10/31/11 at 21 million now .10  five years total treatment, done with incevik 1/22/12
krowdog


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Hi, and welcome.

I too got hep c being careless.  But the good news is the majority of people are beating this with treatment.

One other big reason not to drink on treatment is it messes up your blood work.  These tests are important, and alcohol does things like raising your AST (SGOT) level.  They watch this level to check for liver damage from things like the meds themselves.  Like Shaun said, they WILL stop TX if they know you are drinking, they told me so.

Fear before you start is normal...I think we all felt that before starting.  But as soon as you start, it seems like a determination to beat this virus takes over, and the fear leaves.

Treatment can be rough, but finding this forum will go a long way in helping you with information, side effect tips, and general support.  Ask lots of questions, drink LOTS of water, and DON'T miss any doses.

Good Luck!

Brad

 

(Geno 1a, Incivek triple TX, Und @ 4, 8, & 12 weeks)



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(Geno 1a, Incivek Triple Tx, 6 month post TX - 9/20/2012 = SVR!!!)
Shaun


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tanya lee wrote:

kandice well come to forum...i miss drink too but coz of this tx i m stuck..can u plz tell me wellbutrin u taking for what prob...is it for smoking quiting?i mean we can take that with tx...i need to start as well so wanna know more about it...stay happy..thx lvu

 They put me on welbutrin a few weeks into treatment.  Im still on it so it's OK.  It made the side effects more tolerable. 



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tanya lee


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kandice well come to forum...i miss drink too but coz of this tx i m stuck..can u plz tell me wellbutrin u taking for what prob...is it for smoking quiting?i mean we can take that with tx...i need to start as well so wanna know more about it...stay happy..thx lvu



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JIme


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My standard answer is:

If you have hep c and your drinking that's not good.

If I had lung cancer would I smoke?  This is hard enough to do without handicapping yourself right from the start.

This is serious business. Life and death for many of us. If your not ready mentally to start this I would wait until I was ready to go all in on this.

Good luck!



-- Edited by JIme on Monday 23rd of January 2012 08:45:18 PM

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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
kandicemichelle


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I start treatment tomorrow... 12 months long... do i really have to stop drinking that whole time? what about occasional drinking? i became hep-c positive because i used a syringe after an infected person... because i couldnt wait til i got home for a new one. i have so much regret built up... for myself and all the people i infected, too. im on effexor 150mg and welbutrin 300mg and all it does is make me tired but i cant sleep, in a daze where i think.. but im not thinking of anything... and im so worried aboutthe depression side effect of treatment.. i was on compazine but my dr took me off of it to start treatment.. and wont prescribe benzos.. maybe im just overly anxious because tomorrow is a big day for me. i have a 17 month old son that i wont to watch grow old.. dont mind me.. last minute drinking before giving it up has me a little emotional..... nice to meet you all. :)

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28 years old. geno: 1a - starting pegasys & copegus monday jan. 23rd!
Shaun


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There is no safe amount of alcohol when you have Hepatitis C period.   Drinking while on treatment will just lessen your chances of success, cause unknown side effects, make the known side effects worse, and you would most likely be forced to stop treatment if your medical provider found out. 

Alcohol takes 72 hours to leave your system. You should discuss this with your medical provider before you begin treatment.   Most likely they will have you delay starting treatment for a few days until the alcohol is out of your system.



-- Edited by Shaun on Monday 23rd of January 2012 04:58:59 AM

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